Hello , I have taken a post that I wrote this morning from "The Grind" , in the forum here at Chronic Pain .. and would like to share it here ..
Posted
Feb 6, 6:15 AM
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It is so good to see posts from both Peppi and Debo .. it is nice to know you both are taking care of yourselves amidst the pain .. it can be hard to keep it together or focus , but you two seem to have a good handle on things ..
Ellie , your son has made a decision, while it may be a difficult one in these times and no one would expect any less from you to have the feelings you have ..
Whne my eldest neice joined the National Guard , my bro hit the roof .. and was not pleased at all and tried very very hard to get her to back out .. he had been in the military for over 30 yrs. ..
As a Coast Guardsmen .. and did 4 years in the Air Force , prior to that .. while he was not involved in any "war" , he was in the frontlines of "homeland security" back then .. he had seen a lot of things in his time .. one being the "Haitian Crisis" , back in the late 80's ..
So he blamed his ex for this , and then became angry at everything .. part of his demeanor as the eldest and feelings of being left out of the loop for many years surfaced .. so I am glad you are able to express here ..
And it is totally understandable .. and Danielle , the news on the small business front , especially those funded in part or all by our government is grim .. while this "bail out" is just getting to the larger of companies now ..
It is sad , as I have seen on tv , that some of the places that help people who are either disabled or mentally challenged are getting closed .. my therapist has been going to legislature on a bi-weekly basis , sharing turns with her colleagues , fighting for our little place that I turn to for help ..
It is so not what should be happening .. and I am sorry that you are having these emotions now , with everything else , it is sometimes too much for me to even think about ..
As for myself , I am also facing pain now that wakes me up thoughout the night, and by (pacific standard time) 4 a.m. , I have to get up ..
Used to be where I could sleep pretty much through the nights for a very long time .. and it does not have to do with all the work .. this has been building up for quite sometime and is why I am anxious to get to AZ and find some good facilities, as Arizona IS the MS capital in the nation .. meaning they have many , many great research and facilities ..
All last year it bagan with a burning hot sensation and numblike affect on my hips when I slept .. after having a full body MRI , I got in to see a good neuro who prescribed the Baclofen .. all was good however now it has spread to all my extremities .. I try hard not to worry about it , but it is there ..
Waking up in pain is no fun nor is it easy for me to try to disseminate between MS or Fibro .. sharing some of this through out my recent ramblings but never fully explaining ..
This is not the only thing I have been experiencing, I have been also getting the bad cramping in my feet and calves .. my lower back (sciatica) his definately inflammed and my vision has been off ..


I do hope this doesn't turn out to be a flare...or if it is, that it's short-lived. Please let us know how you are doing.
You are so right about loving and accepting ourselves as we are. Focusing on positive things in our lives can make such a difference. Keep those positive statements flowing!
Hi Adrian,
I am catching up on reading my favourite shareposts. Even though I have read this post originally on the Grind, re-reading this today I felt compelled to write to you today. Sometimes, writings can be just words but yours is written from the heart.
I can sense the worry and also the bravery within you as tell us about your new and re-occurring symptoms......admitting simultaneously to yourself and to us that is may be an MS flare up. I am sorry Adrian that this is happening to you.
Like Karen, I commend your positive mantras as you come to terms with the new symptoms.
I hope you will get to see an MS specialist as soon as possible in Arizona. I understand, from what you have said, that there may not be anything to do but there may be some new developments in the treatment or some new ideas for you to consider to help you cope with your newest symptoms of this flare up.
Thank you for sharing,
DS Deb