Monday, February 13, 2012

I'm Going on Strike

I’ve decided I need a break. I’m going on strike.  I can only take so much and then I need to have some space and time of my own. I am tired of going from one appointment to another, draining the last bit of energy I have left in me.  I used to love having busy days at work and dashing from one interesting meeting to another, and I probably would still love that.  What I am talking about, however, is something very different and much more tiring.  I am talking about a three-week stretch during which I have at least one doctor’s appointment, sometimes two, every day. And the next two weeks look the same.   I’ve had it. Cancel them all!  Well, okay, cancel some of them.

 

I’ve written before about what it is like to have multiple chronic conditions and how you have to see so many specialists in order to manage all the symptoms, but in addition to those conditions that have been diagnosed and need to be followed, I have some symptoms that are not from those conditions so I have to see new doctors in a search for a diagnosis and if possible a cure, if not a treatment.  I’ve been dealing with the persistent cough, shortness of breath, high blood pressure for years and still no diagnosis. And none of the medications or treatments the doctors prescribed have been any help.  I also have been told that the discoloration and pain in my lower legs is from chronic cellulites, which is a result of an infection I got when a rod was implanted in my right leg after a serious fracture of my tyb/fib in which the bone came right through the skin.  My legs keep getting worse, however, and now it seems it might be something all together different so guess what; more tests need to be taken.

 

In the past two weeks I had 11 doctor or medical test appointments scheduled and like a good little girl I went to them, until yesterday.  Yesterday, after my second appointment where I was having the veins in my legs mapped, I cried Uncle.  Anyone with older siblings knows that when you cry Uncle they have to stop beating you up or tickling you or doing anything else that annoys you terribly.  Well I cried Uncle over going to doctors.  I cancelled two that I was scheduled for today and one for tomorrow, although I agreed to come back for the vein mapping of my other leg.  I might as well since I already had one done that showed there was a problem and before I could begin any treatment I would need to know the status in the other leg.

 

Have you ever gotten to the point where you need time away from medical professionals? In 2001-2002, I broke 5 bones and had 8 surgeries in 13 months.  I was in the hospital 10 times during that time, twice to fight the infection in my right leg, and the longest stay was for six weeks, including physical rehabilitation.  I honestly don’t know how I got through that time in my life, even when I was home there were nurses aides, public health nurses, physical therapists and occupational therapists coming on almost a daily basis.  I never got away from the medical world.

8/15/09 10:05pm

I totally agree with you! You need a break and I wouldn't feel the least bit guilty either. I don't go to near as many Drs. as you do and I feel the same way. My sister used to comment to me that "is that all you do is go to the Doctor"? Like I enjoy it? As you can see I said "used to". Well I got sick and tired of her attitude about my illnesses and decided not to talk to her about my illnesses anymore. Use this time to soothe your soul. I light candles, have my favorite tea, read a good book and wake up late. It really helps to kick back and not have to deal with Drs., tests, nurses, blood pressure cuffs, and especially the scale! LOL. Take care. Lorie

8/17/09 11:17am

Thank you for your kind and supportive comments.  I don't talk about how I feel to very many people at all.  I know they cannot understand what I am going through and at times they have acted like I go to doctors because I am looking to have something wrong.  I tried to explain that no, I go because I have a problem and I want to feel better.  But you are right, I need a break.  I'm going to do just as you advise and take care of myself.  Thanks again. I hope you are feeling well and having a nice summer.

8/16/09 6:15am

KUDOS!! denise! good for you,...i do beieve yor spirit can be broken, when all you do, is go to dr.appts..or anything involved with the medical field...when my gynocologist found a lump on my mammo, 5 years ago!!!...i had to go in for yet 2 more mammo, an ultrasound and then a biopsey..ALL in 3 days! and then when we decided what was the best action we could take (of course you have choices, as long as the dr agrees, it is the bestand most aggressive move to make)..after my surgery, staying in the hospital for a week, they had me set up w/ 38 sessions of radiation...3 times a week and a hour and 45 min. drive...oh boy, i didn't like that, because i needed a driver, and i hate to bother others w/ my problems. my husband couldn't take me all the time, jeez 5 years ago, i had all my 4 children still at home! :) we worked it out and as it happened, i didn't NEED to ask anyone, my friends volunteered!!...and then all the followups, to make sure they had zapped those nasty cancer cells away! and then a year later, i get hit by the car, that the driver didn't think she had to stop, did she not see me walking??? and here i am 3 years later, still trying to find a dr. that wil help me w/ this chronic back pain..after 6months w/ a physical therapist..2-3 times a week, and a chirpractor, same thing 6 months...2-3 times a week...i swear my planner looks like a dr. appointment book :) :)...and altho, denise, i have not had as much as you do going on...i think i kinda get it :):)Wink...so you cancel those appts (they're not gong anyplace)...and get your little butt on your scooter and have a helluva lot of fun!! enjoy your "freedom" :)...denise, for the next week ?or 2?...have fun...enjoy the weather...sit in the sun and start a new book...go to an outside cafe' and order a wonderful glass of white wine...whatever you do...ENJOY, ENJOY, ENJOY :)...cindi

8/17/09 11:24am

Thank you for your support and understanding Cindi.  It sounds like you have had your share of health problems.  I hope the cancer has stayed away and continues to do so.  I have lived with chronic back pain since I was 12 years old, that's 45 years now, although I finally have it managed with an intrathecal pump that delivers morphine, bupivicaine and baclofen (for my MS) right to my central nervous system.  

I know there are times when we have to see doctors, when something is acute or we need to have treatments, and I will eventually have to have the tests and appointments I am canceling now, but for right now, yes, I need a break.  Just getting to the appointments wears me out lately, so having two in one day is overwhelming.

I wish you much luck with your health and in finding relief from your pain.  Thanks for reading my Post and for your comment.

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (9574) >

Health Centers