PAIN CLINIC

MARCIABAKER Community Member August 11, 2007
  • Hello everyone!  The time has come to go to the pain clinic.  It has been very hard for me to take this step because that means that there is no fixing my crushed ankle and nothing else can be done.  I didn't think very highly of the pain clinic until I joined this website and learned more about it.  You always think this is a place for people that are addicted to pain medication but I found out otherwise.  What a little bit of knowledge can do.  However, I am a little scared at what to expect when I go.  If anyone has any advice they can give me I would appreciate it.  One of my good friends works their and she got me in for next week.  The wait time here to get in the pain clinic is approximately 3 months.  I guess it is good to have connections. I want a baby so badly and now at age 35 this is my only option to be able to do that.  I cannot be on the medication I am on and have a healthy baby.  I hope they will be able to take me off the anti-depressent, sleeping pills, and pain medication.  It is funny how it seems like everyone is on this combination.  If you think about it, the chornic pain causes depression, the pain causes you not to be able to sleep, and the pain medication doesn't take all the pain away.  I just pray one day that they will find help for all of us who suffer daily.   
11 Comments
  • Anonymous
    Frances
    Feb. 05, 2012

    I need advice. I had total knee replacement 8 months ago, the surgeon broke my femur by mistake.  I now have more pain then before I had the knee done. I also have pseudogout and nerve damage. I finally have an appointment with a pain doctor. Can anyone tell me what to expect from the pain doctor.  I cannot get another surgeon to see me, they say...

    RHMLucky777

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    I need advice. I had total knee replacement 8 months ago, the surgeon broke my femur by mistake.  I now have more pain then before I had the knee done. I also have pseudogout and nerve damage. I finally have an appointment with a pain doctor. Can anyone tell me what to expect from the pain doctor.  I cannot get another surgeon to see me, they say i am too much of a liability.

  • annebeckett
    Aug. 25, 2007

    I just re-read what I had posted to you and, of course, it was another "all about me rant".  Sorry, this is where I was.

    I think, as there is nothing I can do about my situation, we should gt back to yours.

    So, are you to have he cast off this week?  or, have they as of yet changed their mind(s), again?  What about the pain clinic? ...

    RHMLucky777

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    I just re-read what I had posted to you and, of course, it was another "all about me rant".  Sorry, this is where I was.

    I think, as there is nothing I can do about my situation, we should gt back to yours.

    So, are you to have he cast off this week?  or, have they as of yet changed their mind(s), again?  What about the pain clinic?  Do you have an appointment date yet?

    Just thought it was time to check in.  So, what's going on for you?

    Hope it's going better..

    Anne

    • MARCIABAKER
      Aug. 31, 2007

      Hi Anne!  How are you coming along?  I hope things have gotten better.  Well, I went to my orthopedic doctor and got no where.  He basically said he didn't know what else to do and to go to the pain clinic.  It allowed me the out I needed to go to this doctor in Boston.  I go there at the end of October.  I went to the...

      RHMLucky777

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      Hi Anne!  How are you coming along?  I hope things have gotten better.  Well, I went to my orthopedic doctor and got no where.  He basically said he didn't know what else to do and to go to the pain clinic.  It allowed me the out I needed to go to this doctor in Boston.  I go there at the end of October.  I went to the pain clinic on Tuesday and the doctor was so nice and I just really liked him.  After examining me, the 3 nerve blocks that he wanted to do are not going to be an option for me.  He wants to put me on a stronger lasting pain medication like Morphine or Oxycontin.  The other option is to insert a stimulator into my spine that will block the nerve pain.  I decided to go with the stimulator.  I can't have it done yet until I go and see the doctor in Boston because after it is implanted, I cannot have an MRI.  Well, that is the plan.  He is going to let me stay on my Lortab for a couple more months until I get the implant.  Gosh I hope this works.  I hope you are doing much better and I often think about everyone on this site and pray that we all get at least to a point we can live a normal life.  Chat with you later!  Let me know your status.

      Marci B.

    • annebeckett
      Aug. 31, 2007

      hey, Marci.

      I tried to send you a note (a long one) earlier today..... since i'm not used to this laptop (which my wonderful son gave to me for surgery- sort of a get well) and ended up losing all of the post.

      Anyway, GLAD to hear that your doc is thinking outside the box!  Seems like a decent plan for now, surely!  And, I hope it helps.  According...

      RHMLucky777

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      hey, Marci.

      I tried to send you a note (a long one) earlier today..... since i'm not used to this laptop (which my wonderful son gave to me for surgery- sort of a get well) and ended up losing all of the post.

      Anyway, GLAD to hear that your doc is thinking outside the box!  Seems like a decent plan for now, surely!  And, I hope it helps.  According to many people here, there are a lot of benefits, painwise, with this procedure!  I do wish I could do it, too, but, no plastics for me!  *reminds me of the "soup-nazi"....;  "NO PLASTICS FOR YOU"... ha

       

      So, you'll be off to Boston, too?  You know this is where I'm planning on flying (OUCH flying without jaw-joints is almost impossible as far as pain is concerned) back to in order to have the new joints seated.  Of course, the awful chick in the OMS's office is still holding to the, "nobody is going to make you joints for what Medicare pays", even though the joint-maker, himself, had promised me that he IS MAKING MY JOINTS NOW...  the mean chick really hates that I have been able to get past her, TWICE now!  HA and PHFFffTtt to her!

      Anyway, I did try to subscribe to your posts or page so I could PM you.. somehow, it has not worked yet..  I'll try agian in a minute.

      Again, I'm so glad that you have a PLAN in the works!  I truly hope this helps!

      I'll pm if I can.. Anne

  • annebeckett
    Aug. 20, 2007

    Hi, Marcia.

    i just thought I'd check in on you and see if you had yet been to the pain-doc.  If so, how did it go?  I understand your wish to cut back on or get off of pain meds in order to have a child.  Hopefully, if this can be done safely AND reasonably, you can meet your goal.

    So, I wanted to see how it went.. I'm sure a lot of us...

    RHMLucky777

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    Hi, Marcia.

    i just thought I'd check in on you and see if you had yet been to the pain-doc.  If so, how did it go?  I understand your wish to cut back on or get off of pain meds in order to have a child.  Hopefully, if this can be done safely AND reasonably, you can meet your goal.

    So, I wanted to see how it went.. I'm sure a lot of us are curious!

    Best to you;  Anne

    • MARCIABAKER
      Aug. 20, 2007

      Well, I wish I could say that I went but they had to cancel my appointment because my orthopedic doctor decided to put me in a cast at my appointment the day before I was to go to the pain clinic.  I waited 2 hours for him to spend 3 minutes with me.  He refused to read the notes from the physical therapist saying he anticipates what...

      RHMLucky777

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      Well, I wish I could say that I went but they had to cancel my appointment because my orthopedic doctor decided to put me in a cast at my appointment the day before I was to go to the pain clinic.  I waited 2 hours for him to spend 3 minutes with me.  He refused to read the notes from the physical therapist saying he anticipates what the therapist said.  I was really upset.  In North Carolina it is over 100 degrees these last couple of days and I am in this stupid cast for 2 weeks.  He didn't give me a reason except to calm my ankle down.  Anyway, the pain clinic doctor didn't want to see me until I get out of the cast.  I get my cast off this Monday and then go to the pain clinic on Tuesday.  I am looking around for another physician for my ankle.  My doctor is really good but if you can't get him to listen to you, it doesn't matter how good they are.  Thanks for asking about me.  Lets me know I am not alone in this painful world.  How are you doing?  I hope these surgeries work for you.  I think I may be looking at a joint replacement in my ankle or he is going to want to fuse it together.  Gee look forward to that.  Take care my dear friend.

      Love,

      Marci B. 

    • annebeckett
      Aug. 20, 2007

      marci;  sorry for that.. really!  What are these docs thinking?

      Personally, I am sicker than sick;  the acrylic-based bone-cement in my joints is burning and causing me fevers and weakness.  Also, I just heard from the joint-maker;  wanted to know just WHAT the surgeon may have left in "there".  I'm uspet, ill, and...

      RHMLucky777

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      marci;  sorry for that.. really!  What are these docs thinking?

      Personally, I am sicker than sick;  the acrylic-based bone-cement in my joints is burning and causing me fevers and weakness.  Also, I just heard from the joint-maker;  wanted to know just WHAT the surgeon may have left in "there".  I'm uspet, ill, and mad.

      I cannot believe they would actually put you in a cast--NOW!  But, I don't understand why your other doc wouldn't want to see you until it's off.  To me, that makes little sense.  What do I know though, huh?

      well, in my case, I KNEW that I was ALLERGIC TO ALL PLASTICS;  and, some doctors just do NOT listen..

      sorry for the rant... it's just been a terrible 3 weeks and I still have to wait another month in this situation... ugh.. for you and for me!  If crying didn't cause so much more pain, I would do just that.

      Let us all know what they do, ok?

      Anne

    • MARCIABAKER
      Aug. 21, 2007

      Hello Anne!  I guess yours didn't go all that great either.  Do these people not realize that our body does not like some things left inside.  What could he have left in there or is it just the joint replacement that you are rejecting?  I have had to have everything taken out because my body doesn't like screws or plates.  I...

      RHMLucky777

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      Hello Anne!  I guess yours didn't go all that great either.  Do these people not realize that our body does not like some things left inside.  What could he have left in there or is it just the joint replacement that you are rejecting?  I have had to have everything taken out because my body doesn't like screws or plates.  I had my heal cut off and moved over.  He then put this long screw to attach it back on.  I guess you could say I got screwed.  Once it healed, I had to have the screw taken out.  He couldn't get the plastic part that held the screw out so it is still in there.  I am sure you are pretty discouraged right now.  YOu can vent to me anytime.  We will just vent back and forth.  So what are they going to do to solve this problem? You keep me posted too okay!

    • annebeckett
      Aug. 21, 2007

      The mess is my head is BONE-CEMENT.. do NOT ask me why it is even there!  Honestly, I cannot understand why, after he removed (supposedly) all of my hardware, he would go ahead and insert the blobs of putty-looking bone-cement.  It does not look like it is keeping ANTHING IN PLACE;  isn't gluing or cementing anything together from what I...

      RHMLucky777

      Read More

      The mess is my head is BONE-CEMENT.. do NOT ask me why it is even there!  Honestly, I cannot understand why, after he removed (supposedly) all of my hardware, he would go ahead and insert the blobs of putty-looking bone-cement.  It does not look like it is keeping ANTHING IN PLACE;  isn't gluing or cementing anything together from what I can see. and I do have the 3-d ct scan on my computer..; freaky!

      i DO know that the acrylic.. the cement base, is really making me SICK!  It burns and makes me feel feverish and nauseated.  Then, there's the one broken screw-head which had migrated toward my left eye.  I had tried to bring this up but was again, not listened to!  THIS stuff irritates me to no end!

      So, no, I'm just in the middle of these precedures or surgeries.  I am supposed to be feeling like garbage right now.  The worst part of this is that I am not feeling ANY better than immediately after surgery;  guess I'm supposed to awaken each and every morning feeling like I've JUST BEEN CUT...;  AGAIN! 

      Today, I think I will FINALLY call my pain doctor.  I have certainly had more than enough and it looks like we're still at least one full month out from the seating of the new joints....  I do NOT know how I will deal with that...

      I hope your docs help you more than this, without the insane waiting and extra pain!

      Anne

  • annebeckett
    Aug. 12, 2007

    Hi, Marcia.

    I'm GLAD you have decided to take this step.  It does NOT, however, mean that there is no helping you out regarding your ankle.  It does, surely, mean that you need to be on pain-meds in the interum and no surgeon should or will continue to write scripts with no end in sight. 

    When I first saw the pain doc, the oral-surgery...

    RHMLucky777

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    Hi, Marcia.

    I'm GLAD you have decided to take this step.  It does NOT, however, mean that there is no helping you out regarding your ankle.  It does, surely, mean that you need to be on pain-meds in the interum and no surgeon should or will continue to write scripts with no end in sight. 

    When I first saw the pain doc, the oral-surgery field had not yet come to where they are now with patient-specific joints for those of us who have had prior joint replacements.  Now (and for some time, unbeknownst to me), they are there and I am having my joints replaced with escatly this:  very soon!!!  However, for the past 13 years, I have had a doc who has been willing to help me with some relief while waiting to get something more permanent done..

    The BIGGEST THING you NEED to know:  Be absolutely honest with yourself and with your pain doc regarding WHICH MEDS or which COMBINATION of meds work for you!!!  Do not stop yourself from telling the absolute TRUTH about what, specifically, and in what dosages, really does work.  He or she will, most likely, have you sign a contract that you will get your meds from this doctor, only;  will fill at only ONE pharmacy, etc..  However, if you, for instance, generally take 2 vicodin (not saying that this is what you take) do NOT tell him or her that you can make it okay with one..;  if you need to take them every three hours rather than every four hours, be truthful about it.  The doctor should NOT look down on you or think less of you for taking what works for you!  If this does happen, go to another doctor.  Pain doctors and pain clinics are there to HELP you in dealing with your pain.  This does include writing prescriptions for the exact pain-meds that work for you!!!

    Good luck with this.  Personally, I would ABSOLUTELY not be alive were it not for my my pain doc AND my acceptance of the fact that I will ALWAYS have pain.  I do remember the exact day/moment when I realised I would never again be pain free..;  I did cry (alone) about it but, the realisation, itself, was a relief!

    Good luck with this. I hope that your pain-doc works for you and with you and, if not, find another one.  There are many fish is that sea, after all!

    Best... Anne

    • Anonymous
      Brad
      Aug. 15, 2007

      Marcia:  I read your story and I just want to share with you what I feel should be your greatest concern regarding going to a pain clinic. 

       

      Please be more concerned with the quality of your life rather than being worried about being on meds for any significant amount of time.  Feel fortunate that you have the resources to access meds,...

      RHMLucky777

      Read More

      Marcia:  I read your story and I just want to share with you what I feel should be your greatest concern regarding going to a pain clinic. 

       

      Please be more concerned with the quality of your life rather than being worried about being on meds for any significant amount of time.  Feel fortunate that you have the resources to access meds, or, whatever, may help you.  Some things can and will get better with time.