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I am 43 yrs. old and was diagnosed with TOS 13 years ago. There are many doctors that do not believe in TOS but I was referred to a vascular surgeon who specialized in TOS and, after thorough examination as well as a multitude of trial regimens, such as trigger point injections, my diagnosis of TOS was confirmed. I even went to a specialist in Philadelphia who concurred with the diagnosis. He told me that it is very rare to have a patient that truly has TOS but I definitely had it. I underwent a 1st rib resection as well as a scalenectomy and my symptoms were relieved. It is truly a shame when dealing with a doctor that doesn't believe in the syndrome. I have encountered many, including my orthopaedist, whom I see for another problem. I recommend that anyone whom suspects they have this syndrome should seek a doctor that specializes in TOS and do not give up if your doctor suggests that it is either not real or they cannot definitively diagnosis. Keep seeking a doctor who will listen and believe in you. I am not overweight and was diagnosed at a young age so I disagree with the article that states that this ailment affects middle-aged overweight women. Good luck to all.
Yes, many doctors don't believe. But, how fortunate surgery worked for you. I have TOS and see a doctor in Denver, but I am curious to know who did your successful surgery. Please e-mail me at sharonkellybland@verizon.net
Thoracic outlet syndrome comes in 3 varieties, two of which are congenital. Further, it has nothing to do with the size of your arms or your age. Further, it is a chronically degenerative condition that can kill you with aneurysms and embolisms, not just a neurological issue. It affects your subclavian arteries, and will leave you severely disabled unless it is detected early and treated quickly (and you change jobs or activities)
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In 1999, in Los Angeles, I was diagnosed with Thoracic Outlet Syndrome. We moved to South Carolina in 2005, and was still experiencing pain. Went to an Orthopedic Specialist (terrific doctor) and he removed part of my collar bone...Consequently, no more pain in that area. Unfortunately, it was only part of my pain history with Fibromyalgia...I am awaiting the day when true pain relief becomes a reality. Yes, I am a middle aged woman.