Friday, June 01, 2012

Please read so I can feel like I am sharing with people who may understand

By sally Wednesday, May 20, 2009

     I am really upset. I have chronic back pain and just made it through 8 bad days. Today started great. I had a baby sitter and went to a physical therapist that I really like, the simple exercise felt great. I got home and had a nice relaxing few hours while the kids napped. Then it was time to take them to school. the teacher wanted to hold class outside today. Firstly I never take my kids out into free range by myself. My children are almost 3 and almost 2. I cannot expect anyone to understand and take on responsibility of my children. I am unable to manage them and my back condition without walls. I am really freaked out. I think more freaked out than in pain.  Usually my pain grows so I don’t feel it right away. I feel like I am conditioned to have fear and pain, pain and fear of pain.
        So, I am in this situation that no one else can understand. The kids have stopped minding are behaving crazy and it is approaching the point that I will have to carry both my children home. It scares me. I am scared to be without help in a place that I am scared to go (a playground) I am scared of the real possibility of 8 more days of bad pain ahead of me. I am crying because I am sick of being unable to do what I want to do sick of being sacred to do what I need to do. I am scared of pain. I am scared of the demands my young children put on my broken body. I am sad because I feel isolated and not many people understand. Thanks for listening.--Alison 39 mother of young children, malformed 10th thorasic vertbre,  vicodin , tramidol, parafon forte

I took my med early!
5/21/09 10:41am

The first thing you need to do is to quit being upset.  The more you stress over every thing the more your pain will increase.  I know, I have Fibromyalgia and Arthritis, and have had them for over 10 years and that would happen to me.  This may be the reason your children are misbehaving, they are reacting to your actions. 

I take Tramadol, which is a beta-blocker, and yes it does have some opioates (not spelled right) in it, but it has cut my pain way down.    As a rule I don't get drowsy and sleep unless I didn't get a very good nights sleep.  Sleep is another thing your body needs to heal.  If you don't get enough really good sleep your body is unable to heal itself.  My doctor perscribed Amitripiline (miss spelled) for me.  It's a mild and a very old antidepressant but it works perfectly for me.  After several nights of sleeping all night I had no pain. 

Recently I also did a liver cleanse and all my meds starting working better and I'm taking less of them also my pain has been reduced.  Over the years of taking antibiotics a person can end up with a build up of what I call bad bacteria in the colon which can make us sicker.  I do a cleanse after everytime I have to take antibiotics. 

These are just a few things to discuss with your doctor.  I hope this will help you in some way.

5/21/09 4:16pm

darlin', first take a coupple deep breaths....you are running yourself ragged!!! i knoow it is so much easier said than done, but you HAVE to relax first,,, to get your head on straight!!! i am not putting you down, by NO MEANS...i know how it feels.....now, did you take those deep breaths??? :)Wink....chronic pain suckss!!! but you really do have to slow down for a second ( or 2 or 100)...i am not trying to make light of the subject, i have been where you are at and still am sometimes. what kind of pain do you have? do you have pain meds? are they working for you? may sound like stupid questions but i am just trying to get to know yo, and try and help if i can and if i can't help you someone else can, you have come to the right site, you will meet some exrtaordinary people on here, i, myself have made a vvery good friend whom i can talk to about just anything...so, maybe yo need to put your children in a different nursery, was it?? someplace, boy and this is a hard one, where they understand your needs, for your children...do you work out of the home?? maybe you can have your dear children stay home witth you, hard as it may be to take  care of your children, when you are in constant pain, believe me, some of us have done it, it isn't easy but then you would be more comfortable, AT THIS TIME, to have them home, knowing where they are at what they  are doing....truthfully, i think this is a big part of your anxiety (by thhe way, doyou take any meds for anxiety?, not trying to push meds, but...) i stayed home with my kiddos for 12 years, i have 4, i was lucky enuff to stay home with them (?) :), then you have to try and get your pain under control as much as you can...darlin', you are going to have to take it step by step....you are too wound up right now to even try and get your pain under control as much as possible! your children  are probably acting up because they feel your anxiety, so maybe try and get that under control first....when your babes go down for a nnap, YOU take a nap, or just ly down and relax. ...i know that i am being repitcious (close enuff :) on tellling you to relax, but you do need to do this before you go just totally loose it all togeether. if you want to write back to me, i have a BIGG ol' shoulder and i will listen to you but only if you take deep breaths while you are writiing me :)....calm down, and write to someone, even if it isn't me, we will get you thru this, cindi

5/22/09 12:01am

Thanks for listening, its was really scary for me but, I MADE IT!!!! it was not too stimulating. Yep your are right about the anxity. I had it under controle with homopathy but i dont take it regularly , i sould pack it with me or go get the regular stuff. i also moved back to sleeping on the floor and it helps but, not so great for inhancing a love life. i take my drugs and when my pain is not so bad it works fine but when its bad it dosent work. my pain has changed alot after my youngest started wanking 10 months ago. now it comes in waves its ofton so unpredicatible. it was almost easier when it was just bad all day every day instead of comming and going 10-40 times and hour. thanks for listening  and the breathing advice. --Alison

Anonymous
Anonymous
5/23/09 6:57pm

I am going to tell you something no one else will. This is medical information and not advice, as I am a pediatrician (an old, old one) and cannot give out advice.

 

Do the one thing I tried to get every patient's mom to do. GET A PLAYPEN FOR EACH CHILD. Put the child in the playpen. Leave them in there. They may cry in the beginning, but they will learn to love their own little home. I swear, after a while, they will cry when you take them out ! !

 

For the mom's who did this on my recommendation, I actually had them crying because they hadn't listened to me, but instead, to all the touchy-feeling magazines/women's daytime TV shows/the mother-in-law and finally, really much too young other doctors who said kids "environments shouldn't be limited". Pooh! Mine is. Why should they start life "owning the whole house"? 

 

Kids will play all day in discarded, cardboard boxes. They love it.

 

All childcare, like fashion, comes in waves. You just have to be around long enough to see it happen. Ex. We put babies on their tummies in the nursery when I started medicine. Provable low incidence of SIDS. Then, along came the on-the-back theory and I had every RN in the nursery following me around and turning my patients onto their backs. Upsurge in SIDS. It took 20 yrs to get back to the place where I started, and putting babies on their tummies. Drop in SIDS.

 

Do one real step at a time. Even a small one. Find a source for playpens on the internet. Mark it. Later, cruise it. Later, pick one. Find a credit card and put in beside the computer. Next day, order the playpen. Baby steps.

 

Never go anywhere in the open public spaces you talk about without a harness on each kid and the end of that harness around your waist or snapped to your jeans.

People have been known to criticize parents for this ("that is a child, not a dog").

I tell my mom's to answer, "yes, and why would I treat my dog more diligently than my child?). Now, to make it more palatable, put a little fanny pack or tiny backpack on the kid with the harness underneath, and voila, camouflage.

 

Think about your drop in anxiety from this alone. When those babysitters, strangers, teachers, friends possibly criticize you for dropping back to the 1950's in childcare, remember, they aren't paying for your medical care. They aren't suffering your pain. When they can do that, they can pass on the disapproval. Until then, just tell them you

have consulted a child psychologist who will be published in an important medical journal soon, and won't they be jealous not getting in on this sooner. Then close your

mouth.

 

The urge to explain instead of just "do", holds us all back. And hey. You need some

pain killers like slow release morphine (Kadian)--which you cannot even feel in your body--not like oxycontin, and something for anxiety. Sleeping on the floor and taking herbs in not going to cut it. Do aromatherapy after you admit you are in pain and what you are doing isn't working and then triage your problems with the first being pain relief, minimizing your kids' environments outside and in, (without all that tense running around and defending your anxiety about your kids free-range roaming you might improve tense muscles and fatigue immediately).

 

It took me 8 months to fill a practice to the brim, by word of mouth and absolutely no

advertising. The first question I ask (never about insurance--I don't want to hear about it), is "Do you want to hear the truth or a lie". Once a parent gets over this, 100 % of them told me "the truth". Along with that comes my promise to answer any question they ask and refer them to any specialist they want. As many appointments as is takes.

 

Like in an airplane that depressurizes, "Put on your mask first or you'll never be able to help out your kids". 

 

 

5/23/09 10:35pm

Hi anonymous,
     Thanks for the letter. I got a good laugh from a few of your comments.  It is very good advice and I agree that child raising styles change. I do have one harness and I will dig out the other one right now, as I am packing to go on a trip tomorrow. There done—two harnesses packed. Thanks for the good advice. I use the cribs as a place to put them when I have too or when they are in trouble but I do give them a lot of freedom in the house. I am not sure how to take that way from them and I have the house pretty well child proofed. I do need a drug change, I talked to my doctor about it and she just stared at me and said that it would not change anything. She never refers me anywhere and doesn’t help me, doesn’t advise me she just gives me the same old drugs and leaves me feeling like I got my hand slapped for it. Luckily I have an OBGYN who I can talk too and who will refer me to people who are good. I NEED A NEW DOCTOR! But I am sacred to go and have to start all over.  Thanks replying to my post, Question—What is your opinion on spanking?  --Alison

Anonymous
Anonymous
5/24/09 11:43am

Well, "spanking". That is like an I.E.D. in the pediatric world. My views may make sense and may not. This is medical education and not advice, as I explained.

 

You've heard that spanking a kid just teaches them violence. Actually, I think it teaches everyone, all ages, to NOT go to the next step in preventing the behavior they are supposedly trying to alter or prevent. The next step requires more mental energy and self-discipline than we are willing to give, or maybe we just don't know if not hitting the kid will work. Will a namby-pamby, new-age, coddle-the-kid technique work, when we can be sure the tried-and-true method of physical harm will train an ameba, much less a human?

 

I admitted it to myself decades ago when rearing my kids. I was either tired, not paying close enough attention just before the bad behavior ( when the kid was giving all kinds of signals he was up to something), or I was mad at someone/something else. You name "our" excuses. And by the way, admit like I did, that after hitting that kid, you actually exaggerated in your mind "why" you actually hit him. Oh, sure. I castigated myself, but said to myself that the kid was headstrong, had his daddy's hard head, was going thru a phase, etc. But I never, ever got that sick feeling out of the pit of my stomach that the minute I struck my kid, I had lost that battle. It eats at you and diminishes your self-worth, sub-consciously, and what we are here to do it raise your self-worth. Mine needed at the time and still does.

 

NOW, here is when all I said above goes out the window. It's called extreme circumstances call for extreme measures.

 

My adult daughter asked me if I had spanked her. She never remembered it.

 

I said, INDEED, I had. "Under what circumstances?" she asked. This was emotional for me, so I'll tell it in full.

 

I told her that when it came down to her life or her body parts vs. physical punishment, I decided to chose the former. I explained that there was an occasion when she was about to use a regular toy to reach up and pull down a pan of boiling water onto herself. (hard to explain due to my guilt). I jumped over and got the burn instead. I immediately realized she would have died, whether from my fault or her lack of understanding. I spanked on the butt and screamed (on purpose, at the top of

my lungs) to her to invoke an "avoidance" response for that stove, as much as I 

psychologically could. (Even if she hated stoves all her life, which is more important?)

 

I used as many senses she had to try to carve a pathway in her brain that said "stay away from the stove". Like Maria Montessori's techniques, the more senses you use, the more likely the conditioning/learning will stick. You could add immediately taking two pans together and banging them as hard as possible. Whatever scares her and you enough for both of you to pee your pants, do it. And I didn't care if she hated me then or later. Would you care if you scared her this bad if you had to drag her away from a pedophile? No.

 

Remember, this was before the words "child-proofing" the home had been invented. So what. I could be the first of all our friends. I put up a gate to the kitchen. No kids allowed in. Period. They were in playpens right outside the gate and could watch me and me them. It wasn't punishment. It became a fun routine. And next to candy, kids love routines. (Same book at bedtime, same blanky, same TV show)

 

No. No run of any part of the house except the room I was in, and watching them, not TV, and I mean a small room. All other doors, especially bathroom were closed. 

 

They are small people. They need only small environments. They just get sensory overload with too much to see and do in an environment that are too much. Like me in IKEA or Harrod's of London and they'll make fools of themselves like me. 

 

Get your physical limitations set up for them. Stick to your guns. They will adapt. The strong look on your face tells them to give up. A mewling, "poor baby" voice from you will tell them to just keep on going until they reach your breaking point.

 

If you do the physically restrictive things, there will be less chance of them doing the

things that would call for punishment. My daughter tried to crawl over the seat in the shopping cart and tipped the whole thing over. I immediately went over to the pet section, bought a harness, strapped her to the seat, and the danger was gone. Later, she was mad when I forgot to bring it along.

 

Sad note. We would always let the kids sit in the TV section at Sears on a Saturday AM while we were in the aisles nearby. Adam Walsh was abducted in the same store on the same day, while John Walsh was doing the same. That was when we adopted the harness and leash rule. If we forgot that, I always tied a string or my belt or the cord from my windbreaker to the kid's hand and mine.

 

Am I mean? I don't think so. Parents who do these things are resisting a lot of modern/pop psychology. But they see that as the kid feels safe in the smaller environment, both parent and child have a better relationship for teaching the right way to behave (both of them) because their is just more time for it. They become teacher and student rather than jailer and inmate.

 

"Keep 'em alive til 25 ! !"  That's what I tell parents. The kid can hate you later. But they never do. And if they did yell at you later, smile, because it means they're able to draw a breath to do so. 

 

PS Never had to ground a kid a single time. One explained that the worst punishment they could have had was in disappointing parents and teachers. 

 

The fewer variables in your life (where is that kid now?) and the more constants (I know for a fact he's in the playpen in front of me), the more likely you are to have time to give some attention to the perceived impossibilities in your life. Those things which take thought, baby-step actions, and small but additive accomplishments.

 

Sorry to be so long, but really, how much time have we all wasted doing a whole bunch of less productive things than read one person's attempt to help a stranger in need?

Anonymous
Anonymous
5/21/09 7:03pm

Hi

One thing that you can try that is helpful for back pain is massage therapy ... because of the pain and spinal problems the muscles are overused and tight.  massage therapy can help loosen the muscles and get the blood flowing to the area.  It is not an answer alone but another weapon in your attack against the pain.  If you try it make sure that you are the one in control .... that means that the therapist doesn't tell you how deep the pressure should be ....  you must tell the massage therapist what you are feeling at all times ... sometimes in the beginning they have to go very gently and coax the muscles to relax.  A good therapist can help ease some of your symptoms.

I agree with others that you have to stop beating yourself up .... there comes a time when you have to accept that this is your life and don't fight yourself dealing with it ... save your energy to deal with the individual symptoms and little by little you will find things and meds that work for you.  Don't expect one thing to be the total answer ... don't expect doctors to have the total answer ... no one knows your body better than you ...

good luck

5/26/09 6:53pm

i know how you feel. i have had fibromyalgia for nine years now. i am sick and tired of being sick and tired. i'm on three different kinds of morphine for my back, flexeril, and neurontin. when i run out of any one of the medications, my body lets me know it. the weather plays a huge part of how i am going to feel. my children are teenagers, but they werent nine years ago. i used to hate it when i couldnt play with them. hang in there, it doesnt ever get better, but it will get easier.

Anonymous
Mandy
5/27/09 11:21am

Hi Sally, I feel your pain. I too suffer from Chronic back pain, and its unreal! I have RA, osteoporosis, and 15 herniated discs due to a back injury in October. I am only 29! I have Crohns disease and am currently on Remicade for RA and that. Seems like every 4 weeks I am in pain. Pain that is so bad that I begged my husband to end it. I have seen a neurosurgeon and he is refusing to do surgery because my inflamation levels are so bad. They put me on Toradol and Lidocane patches for the pain, and it doesnt seem to work. I can relate to your story so much. We have a 9 year old son, and it seems like I get only 2 good weeks a month to be functioning normally. Its awful!  Support always helps! Take Care and hope to hear from you soon. ~Mandy

Anonymous
Coleen
6/20/09 7:40pm

I'm so sorry doll. I sure wish there were real live next door neighbor kind of help, here, online, instead of the sadness I feel when there is someone obviously in a jam with no imeadiate help for it. I know it's nice to have someone say- I care! I do, I wish I could help! and I do, I do care and wish exactly that. Call someone if you can, call in the troops, family, husband, friends, church, drag the teacher into a bathroom and start a conversation with-  You are a great teacher, I admire no end your style and methods- Here's my situation, and lay it on her- truth-fact-concern  maybe she can understand and find a soulution for next time. then grab the kids and go home. warm bath, meds, you in bed and the kids with popcorn and a Pixar movie taking good care of mommy and her owie. Children are brilliant and have a lot of empathy and don't consider it some form of abuse to bring Mommy a juice box, instead of the other way around. You sound like a lovely person. I wish you best of luck and better pain free days. C Shin

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By sally— Last Modified: 12/20/10, First Published: 05/20/09