Hi everyone

Thank-you all for the warm wishes.  I had a tvt bladder procedure 1 1/2 years ago today I started looking up different things and found cases of persistant groin pain post procedure.  I will bring the literature to my Dr.  I will visit this site often.  SO wonderful to know that I am not alone!!

THank-you so much I am having trouble with the site recognizing my password......  any suggestions??

okay now it is working I am confused I tried to get onto the daily grind and wasn't able to!!!!  Is it down??

If you go to the forums page, it is down just before the TMJ group forums. So if you see the "introductions" page at the top, go down until you see "Daily Grind" and click on the September page. Hope that helps!

If you go to the forums page, it is down just before the TMJ group forums. So if you see the "introductions" page at the top, go down until you see "Daily Grind" and click on the September page. Hope that helps!

still having flipping problems.........

won't quit trying though

ty for the help!!

Today was a good day!!

JO thank-you so much for your reply.  I am a registered nurse and have been so for 21 years.  I worked in a burn unit for 7 and then moved.  I floated around doing mostly surgical nursing, and then found myself in ER.  It is my passion.  I love this type of nursing.  I have been away from it for 6 months.  I feel like I have lost a bit of my identity being a patient instead of a nurse.  It is hard being on the other side. 

I divorced 9 years ago, and re-married.  My second husband has 4 children and I have 3 so we are busy.  Ages ranged trom 14-22.  My 14 yr old son lives with us and my other son lives with his Dad.  I really hate that he lives with his Dad.  He is 16 and struggles so.  He won't move back with me so I have to deal with it the way it is. 

      I lost a sister to murder 10 years ago, and my stepson early in our marriage to suicide.  We have been through so much as a couple......  also my Mom-in law too.  We have definately been getting stronger though.  Talking and listening lots.  Plagued with disagreements about the children.  I am too soft and inconsistant....  I need to buck up!

      I have had a 6 month journey through pain.  Multiple tests and no answer.  I was diagnosed with a herniated disc with no radiological proof which didn't work in my favour.  When the MRI was negative, my doc was stumped.  Some of my blood work showed inflammation, so I was sent to a rheumatologist.  I recently have had a CT of my abdomen and a MRI of my hip.  The CT shawed something but I have to wait until the 14th to find out.  My pain is primarily in my left groin it burns so.  I also get back pain and general body aches.  I had a partial hysterectomy and a tvt bladder repair Jan 2007.  A colleague and my husband told me that I haven't been the same since, which is very true now that I think back.  I did a literature search on tvt procedure and persistant groin pain.  Low and behold there are cases!!  nerve entrapment and burning pain unrelieved with anything except a localized injection, and surgery to remove the tape!!  Ah ha.  I have requested a apt with a urologist, but you know they have to agree to see me first!!

This is long winded thank-you for sharing your story!!

Oh I am 44.........

Hope to keep talking .........  HUGS!

Deb.

Hi Debs, Sounds like you had it pretty rough too.I had my hystrectomy when I was 42, about your age.I thought my right groin pain was due to the staples and getting constipated thus pushing against the staples causing pain.But I had no bladder repair.My daughter Bonnie had some bad pains in her bladder area.She is a radiology tech.But she has always had a very high tolerance for pain.Amy and I (my oldest daughter) both had 3 day long labors and we watched as Bonnie delivered her daughter first born to the tune of yall are standing in front of the t.v. and I want to see the end.Amy and I looked at each other like no way is that fair.But as it turns out she had what you called pelvic congestion.Have you addressed that.I try not to take it for granted that someone knows something and I also hate it when others automatically think I don't.One for instance is did you ever consider going to a chiropractor.I said gee.Only went to one for 20 years.Maybe I was defensive.But I try to keep it in the middle of the road.I had never heard of pelvic congestion.They said it was from having babies.And her youngest is 10 so it wasnt something that just happened right after having a baby.Some of the blood supply was cut off due to this condition.Now I have never heard what a tvt procedure is.I have had bladder problems all of my life.Mostly I have bladder spasms without the infection.I had to have some kind of mercury procedures at Mayo when I was working there.But after about a dozen of them I said enough.I hate to be cathed.Don't you too?

    I am so sorry you lost your sister and your step son.Sounds like you and your husband have really had more than your share.And I get you about the disputes on the difference of parenting.I think just go with your gut.They really aren't born with a set of instructions Hah! But my youngest had behavior problems.We actually had reverse child abuse.I think that is the only thing me and my husband ever argued about.He is a blessing though.And my youngest was only 7 when I married him.The other 2 were 13 and 14.They,I thought would have been the normal age to have a strict parent all of a sudden but no.They idolized him and my youngest tried to ruin my marriage.They hated each other from the first.Which was hard for me to be in the middle.But she did have behavor problems and we had to put her in ST.Johns for 4 months.Attend the meetings twice a week.It was harder on me than on her.She also was obese.I was always worrying about that.My other 2 daughters are tiny.Rachael did eventually have a gastric bypass.I thought the last ten years I have been sick she turned out to be the only one who stood by me.She understood.When she was about 19 she had an 81/2 lbs necrotic tumor.And the dumb e.r. doctor sent her home because her white count was near normal.Well it only takes common sense when someone is screaming in pain.He gave her percocet and said come back if it gets bad.Well ofcourse you are going to get some relief.But then sometime in the middle of the night she called me and said mom I don't think I am going to make it.Thank God Dr.Shimansky was on duty.I worked at Mayo at that time and we used the new St.Lukes hospital and I knew he was top notch.He loved the E.R, you could tell.But he said well I have a general surgeon,a gynecological and also Dr.Metzger who is a genius as far as I was concerned.She was put on the video to Rochester and to Scottsdale Mayo Clinic as a surgery that doesn't follow the rules.I was told if a doctor treats merely by blood work really isnt't a good doctor.Just one who goes by the book instead of just commmon sense.She has so many scars on her stomach.With the bypass and the tumor.There is mesh in there and she is pregnant.Due any day.They have a specialist at Jax Shands who will do a c-section going into the groin underneath the mesh etc.She still has hernias in there.So ofcourse I am so worried.After Rachael moved out on her own.Our marriage was like heaven.My husband was adopted so to him my children were his too.He even carried around pictures of our first grand kid.He was 28 when he became a Papa.I was 36.Now we both felt like she was our baby.They moved to S.C. for 5 years when Jesse was about 5 months old.But when Amy came home for visits.Jesse wanted to sleep with us.So you can see how special she was.Right before they moved back she had a baby boy(Amy did) and he was the first boy born in our family in 36 years.So he became Cody Master.Later to be changed to Master of Disaster.He you couldn't help loving.In a Christmas play he was a sheperd and he kept winking at our Preacher.Actually it was a couple who preached together.They were probably in their 70's at the time.But Cody could melt anyone's heart.He is 17 now and when he comes in he automatically starts massaging Nanny's neck and back.How could you not love that.So I am expecting what I think will be my last grand kid.And I will aslo be a great grandmother when Jesse has hers in Feb or March.So my grand kids are as follows.Jesse 20,Cody 17,Taylor(a girl) 15.Payton(boy) 10 and Elijah is 10 also and the last little girl(darn it) is 6 and her name is Raven Skye .Maybe Jesse will have a girl.I am just prone to girls because that is what I had.But Bob also loves girls too.He thinks they are easier to raise.Then I remind him of Rachael.And he says well most of them.We laugh.I have had a good time telling you about my life.And I keep a little book now for this site.I like to remember who has what.And I have short term memory loss.So it isn't like being a spy or anything.I just can remember better if I write the outstanding events in everybody I share post with.It has been a couple of hours I have been on the computer and my neck is screaming at me so welcome Debs.Talk to ya soon...Jo

HI Sammy thank-you for the letter and support!  I am closer to finding an answer now!!  By some of my own research I have found that I may have nerve entrapment due to a bladder repair surgery that I had.  This is the reason for the burning groin pain, which leads to limping, that has inturn caused problems with my lower hip and back.  I see a urologist next week to discuss this issue.  My husband and I have done a bit of work in the relationship area nad it seems to be going alot better. 

Since my inital letter, I have been going to the daily grind in the chronic pain forums.

You should come and join.  It's a checkin and chat everyday.........  about pain or anything else.  It's wonderful.  Thank-you for your kindness and caring.  It is so nice to know that I am not alone in this journey.

Deb.