avascular necrosis

deborama2 Community Member
  • Hi everyone I was diagnosed with avascular necrosis to my left hip Spring of this year.  In August I had a core decompression of the hip.  I was doing okay while I was on crutches but as soon as I started bearing weight again the pain returned.  I now have brusitis of this hip for 4 weeks.  It was getting better too but yesterday I was running up and down stairs and felt some pain.  The area is acutely swollen and so painful.  I have been dealing with groin pain since March 2007.  Both the surgeon and my GP both think I should be getting better and want to wean me off my pain meds.  Has anyone had avascular necrosis and/or core decompression?  I would love to hear from someone and compare experiences.  This is ruining my life.  I don't know where to turn or what to do anymore.  Any replies would be greatfully appreciated!

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Published On: November 22, 2009
122 Comments
  • mguay10
    Sep. 13, 2016
    just diagnosed with AVN, the pain as you all know is excruciating. WaIting to get MRI. looks like knee replacement is in the very near future. Can anyone give me a few tips on copeing with the pain. I work so it's very hard to deal with chronic pain on the job.
    • bnnysdiner
      Sep. 13, 2016
      When I still worked, I took breaks and put my feet up (I have AVN in both ankles) or taking naps during lunch. I also propped my feet up on the computer tower under my desk. Hot wraps helped whereas using ice made my joints ache. You'll have to try ice vs. heat to see what works best for you. Distraction is the best thing since my experience with AVN is there...
      RHMLucky777
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      When I still worked, I took breaks and put my feet up (I have AVN in both ankles) or taking naps during lunch. I also propped my feet up on the computer tower under my desk. Hot wraps helped whereas using ice made my joints ache. You'll have to try ice vs. heat to see what works best for you. Distraction is the best thing since my experience with AVN is there is the regular, all the time pain and the all of a sudden i am falling to the floor pain that comes and goes plus the other pain that comes from activity. Try planning your work around the "known" pain and save some types for when you are less able to ambulate such as phone calls, data entry and report writing. Try sitting on the floor, using lots of pillows and changing positions. Also, some employers allow telecommuting. Check with your HR department to see if that is an option. You are not alone! Good luck! CBC, AVN since 1994
  • rmupton34
    Sep. 12, 2016
    Hello. I am a 37 year old male. I was diagnosed with AVN in 2015 after many misdiagnoses including bursitis, gout, arthritis etc...for several years. This year i had my right hip replaced. This was done by an amazing young surgeon who was familiar with AVN. Took a few referrals to different doctors and specialists but finally found the right surgeon. Both my...
    RHMLucky777
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    Hello. I am a 37 year old male. I was diagnosed with AVN in 2015 after many misdiagnoses including bursitis, gout, arthritis etc...for several years. This year i had my right hip replaced. This was done by an amazing young surgeon who was familiar with AVN. Took a few referrals to different doctors and specialists but finally found the right surgeon. Both my hips are collapsed. One was worse than the other, and was replaced accordingly. I had the 'anterior approach' surgery which made my recovery speedy and less stressful. Waiting for my second hip replacement. Very depressing to know what is to come in regards to pain. Its already starting. Sleepless nights, aching, teeth grinding, immobility. I wish i could have the hip replacement now. I live in Canada. Fortunately, my surgery costs me 0 but there is atleast another 6-8 months to wait. Nobody seems to understand the pain including my family doctor. Barely able to walk... I wish every one who reads this who has AVN the very best. It will get better.
    • deborama2
      Sep. 13, 2016
      I too live in Canada. I experienced the wait for my surgery. I phoned the office of my surgeon several times a week letting them know how bad my pain was. They put me in sooner than I expected. Don't sit and wait. Make sure they know how much your life is altered while you wait! I wish you the best.
  • Bt1898
    Aug. 30, 2016
    Hello All, I was diagnosed with AVN of the right hip in Oct 2015. I had core decompression surgery in Feb 2016. The first couple of months were a struggle with the pain and no weight bearing, but by about late April I was doing pretty good. Really didn't have any pain at all. Now here it is late Aug 6 1/2 months after the surgery and I am starting to get a...
    RHMLucky777
    Read More
    Hello All, I was diagnosed with AVN of the right hip in Oct 2015. I had core decompression surgery in Feb 2016. The first couple of months were a struggle with the pain and no weight bearing, but by about late April I was doing pretty good. Really didn't have any pain at all. Now here it is late Aug 6 1/2 months after the surgery and I am starting to get a lot of pain again in my hip. My last check-up was in early July and the X-rays looked good so the doctor said I don't need to come back until Jan 2017. The pain is not horrible yet, but I am starting to get a good amount of discomfort. I should note I also just had major foot/ankle surgery two weeks as well. I have been trying to keep as much pressure off my right hip as I can, but it is hard since it my left foot that I cannot put any pressure on. I am using a scooter to get around as much as I can, but with having to go upstairs at my house for the bedroom it is hard. Has anyone else had pain in the hip months after the decompression even after it felt really good for a while? Thanks, Rob
    • deborama2
      Sep. 07, 2016
      I continued to have pain after the decompression and ended up having a total hip replacement about 8months later. This cured thee severe pain but I am left with chronic bursitis and swelling. Please don't let the doctors think that you are cured! Persist if you still have pain is my recommendation! Good luck!
    • bnnysdiner
      Sep. 13, 2016
      Hi. I survived Adult Respiratory Distress Syndrome in 1993 after being given large doses of Prednisone which is what led to the development of AVN in both ankles at the age of 25. I was very healthy before that and never drank alcohol or used drugs. I had to change many things in my life to maintain the quality of life including changing to a sedentary occupation...
      RHMLucky777
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      Hi. I survived Adult Respiratory Distress Syndrome in 1993 after being given large doses of Prednisone which is what led to the development of AVN in both ankles at the age of 25. I was very healthy before that and never drank alcohol or used drugs. I had to change many things in my life to maintain the quality of life including changing to a sedentary occupation and using crutches/wheelchairs to get around. I was able to work, raise my kids and do volunteer work modifying as needed. I underwent core decompressions, debridements, and two separate vascularized fibular grafts. The first graft relieved so much pain that after a year of healing, I was able to walk without crutches again until the other leg became to painful I underwent surgery on the other leg. Expecting the same results, I was sadly disappointed when this surgery left me in more pain than before. There are good days and bad days and horrible days but "regular people" have them too. Right? Having a good attitude and the right Dr.s who can understand what you have is key. Pain management is also important or it becomes to hard to do what you gotta do and live. It is not weakness to use pain medication (as prescribed!) or to ask for help or modifications or needing breaks. Upon reexamination of the first graft, it was found also to have failed and both ankles continue to break down. I have been waiting for stem cell treatment to catch on here in the US ever since. That has been 10 years but I have not given up hope. Don't you either! In the meantime, you have to do your research, exercise and eat wisely to maintain a healthy weight, and love your body for what it is still capable of doing.
    • rmupton34
      Sep. 13, 2016
      Hi there. I am sorry to hear what you are going through. I feel your pain. Everything I have read about core decompression and most of the doctors I have talked to tell me it is usually not effective. Do a quick search about it online. Most people will tell you the same. Total replacement appears to be the only option for a somewhat normal existence
  • geogemurry
    Aug. 05, 2016
    I was diagnosed with bone cancer, I am 36 year old male which makes this Mine was a high rate. and I have been in hell‎ having pains everyday swelling and rashes in my left leg, and also affected all over my body I have been on a sick bed I almost got disfigured from the bone cancer I've had lot treatment if I would be able to meet up my with life even the...
    RHMLucky777
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    I was diagnosed with bone cancer, I am 36 year old male which makes this Mine was a high rate. and I have been in hell‎ having pains everyday swelling and rashes in my left leg, and also affected all over my body I have been on a sick bed I almost got disfigured from the bone cancer I've had lot treatment if I would be able to meet up my with life even the Dr's don't no about my pains I was going through. Not on till I was recommended to a herbalist Dr online. last treatment I applied was the natural herbal medicine from Dr galiga herbal centre which finally healed me out from bone cancer, I can easily work and ran with my two legs. My post goes to every patients whom have be diagnosed with cancer. Here is the African herbalist email address i got healed with his natural herbal treatments drgaligaherbalcenter@gmail.com
  • tbooker122011
    Jun. 17, 2016
    I had core decompression hip surgery about 3 years ago, & at first, I was doing fine with the recovery for the first 3 months. After awhile, the pain returned, and it's been on and off again ever since. I even feel like I walk with a slight limp, as if the bone didn't heal right. Has anyone experienced that? I've been using goody powder for the pain ever...
    RHMLucky777
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    I had core decompression hip surgery about 3 years ago, & at first, I was doing fine with the recovery for the first 3 months. After awhile, the pain returned, and it's been on and off again ever since. I even feel like I walk with a slight limp, as if the bone didn't heal right. Has anyone experienced that? I've been using goody powder for the pain ever so often but don't take those every day because, of course, it's aspirin. I've gone back to my doctor to see if he could tell me if I'm healing up correctly. He said according to the X-ray, there were no significant deterioration, so the surgery went fine. He strongly suggested that I began walking on my leg so that I can get used to bearing the weight. The pain is so unbearable that I don't know what to do. I'm seriously thinking about going for a second opinion though, because I don't want to keep going through this. I agree with one reader too about praying to God for healing and I am doing just that each and every day. I just want my life back in order. It can be so depressing at times. Do anyone suggest that I get a second opinion?
    • rmupton34
      Sep. 14, 2016
      Core decompression rarely works Find a new orthopedic surgeon Preferably one that was trained in the last decade
  • belindalemen
    May. 14, 2016

    Yes I have had all the above. Im 47 and was diagnosed long after I had my fist pain. Took a long time for anyone to even see me due to me being on medicade. I refuse to ride in less pain than to walk in lots of pain. I was in stages 1 n 2 on my left hip and 2 to 3 on my right. I was ready in a wheel chair before i was diagnosed. And after the dr gave me a diagnoses...

    RHMLucky777

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    Yes I have had all the above. Im 47 and was diagnosed long after I had my fist pain. Took a long time for anyone to even see me due to me being on medicade. I refuse to ride in less pain than to walk in lots of pain. I was in stages 1 n 2 on my left hip and 2 to 3 on my right. I was ready in a wheel chair before i was diagnosed. And after the dr gave me a diagnoses my family had no reason to believe me that i was truly hurting. This was back in 2013, late 2013. I was wondering if ou or anyone has times when you can walk with out pain and then twist a bit and back in bed. It was a hour or so then i would be ok for awhile then I would have to rest. Now its May 2016 and my up time and rest time has ran into each other Friends and family still have trouble believing me cause im good one min and the next min im in way so much pain. please feel free to get in touch with me. I have a million questions. Thank you Belinda Lemen.

    • rmupton34
      Sep. 14, 2016
      I feel horrible for what you are going through Nobody understands the pain Be youe own advocate. Push for a better result and faster options. I am not sure how it works in the USA but in Canada, of u push hard and be a strong advocate for yourself, this helps significantly for a faster surgery
    • wnxace3
      Oct. 03, 2016
      I've had both my hips replaced now I'm 28 and I had the exact same pain ypu describe with my hips I spent a long time in a wheelchair since the hip replacements my pain has significantly been reduced I'm still in pain but no where near what it was and that's mainly because I didn't do my exercises like I was supposed to adter the replacement. Also now my knees...
      RHMLucky777
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      I've had both my hips replaced now I'm 28 and I had the exact same pain ypu describe with my hips I spent a long time in a wheelchair since the hip replacements my pain has significantly been reduced I'm still in pain but no where near what it was and that's mainly because I didn't do my exercises like I was supposed to adter the replacement. Also now my knees may have it I have to gp get checked. If yoir still going through it you can find me on facebook Joe Walton from linda or marysville california ill answer anything I can its been 3 years since my diagnosis
  • Sidonidal
    Apr. 28, 2016
    Hi I am Nidal 34 yrs. From six month some doctors told me I have AVNand some told me I have osteoporosis from that time sometimes i feel some pain is it normal to feel with only small pain or the pain in this stage should strong and more can any body explain how the pain feeling exactly and which area ?
  • Ammon1978
    Apr. 18, 2016
    I have avn in both my knees and both my hips.it's in my right shoulder and both ankles.My left hip is totally replaced and feels much better, but the pain in the other extremities is almost more than I can take.for anyone who thinks about giving up don't..just keep pushing.I am bed ridden for about for years but I have got out of bed and went to work for two...
    RHMLucky777
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    I have avn in both my knees and both my hips.it's in my right shoulder and both ankles.My left hip is totally replaced and feels much better, but the pain in the other extremities is almost more than I can take.for anyone who thinks about giving up don't..just keep pushing.I am bed ridden for about for years but I have got out of bed and went to work for two years now..why? Because I can and do can you.
  • charmaine
    Apr. 02, 2016
    Hi all, Thank you very much for sharing your experiences. We just have to pray that God will heal, and give thanks that you all have endured. Blessings and love to you all.
    • asianprincess007
      Apr. 11, 2016
      The story you just told is the same and they dont want to fix my hips due to im 40. It hurts im a nurse and cant make money this sucks. I cant bear weight on my lt hip now . i will be calling md this morning.
  • Typicallyavn
    Mar. 07, 2016
    I'm 29 and have had avn for past 2.5 yrs. I was suggested to get a thr but I have not considered it yet because of all the scary things I've heard about prosthesis and how sometimes the pain actually gets worse than before the surgery, no thank you....I'm in constant pain even though I can walk around. At this point in my life, I just need some verbal and mental...
    RHMLucky777
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    I'm 29 and have had avn for past 2.5 yrs. I was suggested to get a thr but I have not considered it yet because of all the scary things I've heard about prosthesis and how sometimes the pain actually gets worse than before the surgery, no thank you....I'm in constant pain even though I can walk around. At this point in my life, I just need some verbal and mental support. I don't know about any support groups. If someone knows anything about support groups for specifically for avn, please email me at typicallytropical4321@yahoo.com Thank you and good luck to all my avn friends on here. We are not alone.
    • Rrowe11
      Mar. 09, 2016
      It is a little bit of a relief to see someone closer to my age with the disease. I am 26 years old and was diagnosed with AVN of the left and right hip. My left hip collapsed and I had to get a total hip replacement in September 2014. Surgery went great but the recovery process sucked. It took about a year for my new hip to feel normal and strong. Now, my right...
      RHMLucky777
      Read More
      It is a little bit of a relief to see someone closer to my age with the disease. I am 26 years old and was diagnosed with AVN of the left and right hip. My left hip collapsed and I had to get a total hip replacement in September 2014. Surgery went great but the recovery process sucked. It took about a year for my new hip to feel normal and strong. Now, my right hip seems to be acting up and I am terrified the AVN in that hip has progressed. I could literally cry it is so upsetting. Just when everything started to get normal again. Anyway, had an MRI done and waiting for an appointment. Wanted to reply to you because you mentioned being frightened of THR. It is frightening but my hip had collapsed and it pretty much left me with no choice. I also heard that in some cases core decompression and cause more harm than good, so I went ahead with the replacement. If it turns out my right hip is getting worse, I would like to find out more about stem cell procedures.. Extremely expensive I'm sure, but worth it if it can save my hip. Don't know how I would do it but maybe there's a way. Anyway, I am very sorry for your diagnosis, I know how it is. It's nice to see that there are others out there like me. I do not know of any support groups, this is the closest thing I have seen. If you or anyone reading this knows or has any information on stem cell procedures or any other successful stories, please let me know. Element4life339@yahoo.com
    • JC123NC
      Mar. 28, 2016

      HI While it's nice to find other people with this I would rather not as it is truly horrible. I feel for both of you. The second poster, sorry missed your name, hit the nail on the head. You will eventually be "begging" for a THR. God forbid, you enter the realm of pain that induces suicidial ideation on some level you will be ready for them to do anything....

      RHMLucky777

      Read More

      HI While it's nice to find other people with this I would rather not as it is truly horrible. I feel for both of you. The second poster, sorry missed your name, hit the nail on the head. You will eventually be "begging" for a THR. God forbid, you enter the realm of pain that induces suicidial ideation on some level you will be ready for them to do anything. Hell I was ready to cut my leg off. I skipped core decompression on both hips, orthopedic surgeon agreed. It doesn't seem to do much good. Also the worse shape, more destruction that has occurred, and more pain you're in prior to THR the lower and poorer the expectations will be for you after THR. I do not know of anyone or anywhere doing stem cell treatment. Nor have I read of anyone having it done. Sadly there really isn't much that can be done for AVN. I am 30 and had left hip replaced last year on June 1st and right hip replaced August 31. My left hip had totally collapsed with secondary degenerative changes. By the time I had the THR my leg had shrunk and foot was about two size smaller than right. I ended up having to wait about six months post collapse(stage IV) I was not going to go through that again with the right. Now my left leg is operable but the pain is not gone or even close. Considering where I was prior to right hip replacement, leg locked up etc, I am grateful, especially after reminiscing. My right hip and leg is a whole different story. The difference between the two is night and day. It isn't perfect or pain free but when compared to the left it is. I don't know of any real world support groups. There is an osteonecrosis foundation with a forum. Google osteonecrosis foundation. Best wishes to you both. Josh

  • Jamie31
    Jan. 10, 2016
    I have just been diagnosed with Early stages of AVN in my right hip. The pain is horrible ands hurts constantly and keeps me up all night. I don't even want to know what the later stages feel like. I am in tears most of the time at night. I usually only getting about an hour of sleep a night unless I fall asleep in a hot bath. I'm on crutches and my doctors...
    RHMLucky777
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    I have just been diagnosed with Early stages of AVN in my right hip. The pain is horrible ands hurts constantly and keeps me up all night. I don't even want to know what the later stages feel like. I am in tears most of the time at night. I usually only getting about an hour of sleep a night unless I fall asleep in a hot bath. I'm on crutches and my doctors just put me on 50 mg tramadol and I'm still hurting constantly. Hurts even worse after physical therapy. I am also taking turmeric which helps some. Is there any other things that will help the pain and get a good night sleep? I'm desperate as I am falling asleep at work and struggle staying awake driving the 50 miles home. Jamie
    • Ammon1978
      Apr. 18, 2016
      I'm on a regimen of pain meds..otc...the real trick is stay on schedule.2tramdole in morning and 2 at night.2 in between.ibuprofen in morning. Tylenol for lunch.Alieve for afternoon snack and ibuprofen for dinner. Tylenol 4 for bed time..it sux but it keeps me moving.I cannot stress this enough.....stool softener is a must
    • belindalemen
      May. 14, 2016

      No you do not want to know.  I am in my last stage.

    • rmupton34
      Sep. 14, 2016
      Will get worse everyday Get an appointment with an orthopedic surgeon ASAP no matter what yur family doc says. Schedule your THT and get it done. Most non narcotic meds dont work and are waste of money. Depending on your wait u wiol need narcotics and sleeping pills to survive Sorry for the bad news. Get a thr and u will be back to normal Dont let them experiment...
      RHMLucky777
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      Will get worse everyday Get an appointment with an orthopedic surgeon ASAP no matter what yur family doc says. Schedule your THT and get it done. Most non narcotic meds dont work and are waste of money. Depending on your wait u wiol need narcotics and sleeping pills to survive Sorry for the bad news. Get a thr and u will be back to normal Dont let them experiment on you
  • Zens8tional
    Jan. 10, 2016
    Good site, I've learned lots about AVN. I was wondering if anyone knows how to tell if I've began to develop micro fractures or if the hip may be collapsing? The pain is horrendous when I step certain ways or turn with weight on the avn hip, feels like my leg is going to give out completely. Long story but getting worried that I'm going to step wrong and go...
    RHMLucky777
    Read More
    Good site, I've learned lots about AVN. I was wondering if anyone knows how to tell if I've began to develop micro fractures or if the hip may be collapsing? The pain is horrendous when I step certain ways or turn with weight on the avn hip, feels like my leg is going to give out completely. Long story but getting worried that I'm going to step wrong and go down one of these days!
    • JC123NC
      Mar. 28, 2016
      You need to have your doctor order imaging tests such a MRI or X-ray. I had X-rays used which are good when the disease has progressed and collapse is under way, or the bone has started to rot and break down. MRIs are preferable earlier on, stage 1-2, and earlier detection. Be careful with your activities as you want to preserve your joints as much as possible....
      RHMLucky777
      Read More
      You need to have your doctor order imaging tests such a MRI or X-ray. I had X-rays used which are good when the disease has progressed and collapse is under way, or the bone has started to rot and break down. MRIs are preferable earlier on, stage 1-2, and earlier detection. Be careful with your activities as you want to preserve your joints as much as possible. Potentially your femur could snap too or dislocate so take it as easy as possible which I know is easier said than done and is mentally taxing. I have AVN. 30 year old male. THR right hip June 2015. THR left hip September 2015. Best wishes to you and hang in there!
    • JC123NC
      Mar. 28, 2016
      Only way to tell is with X-ray or MRI. Xray will show collapse or crescent sign. MRI is used predominantly early on in the disease process for early detection. Preserve that joint! Best wishes and best of luck.
    • tbooker122011
      Jun. 17, 2016
      Hi, you definitely want to go check it out, because the longer you wait the worse it will get. Nest wishes to you☺
  • Sidonidal
    Jan. 01, 2016
    Hi i'm 32 years living in Dubai from 4 months ago i start suffering pain in my left hip and stated limping when i visit my doctor he told that i have spondylolysis in my back then after one month i visited another doctor he told me let's make X.ray then he told me i have to do MRI scan the tesualt was : Transient osteoporosis or avascular necrosis then i saw...
    RHMLucky777
    Read More
    Hi i'm 32 years living in Dubai from 4 months ago i start suffering pain in my left hip and stated limping when i visit my doctor he told that i have spondylolysis in my back then after one month i visited another doctor he told me let's make X.ray then he told me i have to do MRI scan the tesualt was : Transient osteoporosis or avascular necrosis then i saw one Italian Dr. He told me the same thing and also i show my Mri to syrian Dr.he said the same and all Doctors told me 70% transient osteoporosis an 30 % AVN after bone scan the resulat was impprision of AVN then Show all my scans (xray -Mri-bone scan )to american doctor and he confirmed that i have the AVN during this time the was around 1of 10 just i was feeling i m tired after this long trip with multinational doctors the american doctor recomended for me one British doctor specialist in hip because all previous doctors i saw them were specialist in knee and shoulders any way my trip with new doctor Richard villar who is very famous in the world I meet him in 22 of Nov. He saw all reports and he did physical examinatin and he listened to my history then he told me i can not tell u 100 % u have the AVN so he recomended another Mri . I did mri in 17.12.2015 and meet him in 23.12.2015 actualy the mri report were very bad for me because the suggested AVN in stage 3 and begging of collapse when I meet dr. Richard he told me even with this report i can not say that 100 % u have AVN , because in his openion this may be what i have either proggresive of AVN or improvment of Transient osteoporosis specialy he shaw my reports to 5 doctors in london and all of them didnot support the i have AVN So for now i will do third mri in 3 week and during this period i will do hyberbsric oxygen thearapy after he confirm the AVN may be i will do coredecomprtion with stem cell thearaby. Really im in very bad situation specialy my wife deliverd my second baby last night and i have to consetrat in my work also
    • Zens8tional
      Jan. 10, 2016
      Do not waste time or money with core decompression! Avn always progresses and requires a total hip replacement. Especially at stage 3, it is too late for any other options, they will only put off the inevitable (hip replacement). Just get it over with and move forward in your life. Recovery is approx 3 months. Good luck!
  • dencon
    Dec. 21, 2015
    I have had in in both hips cense 1997. I had core decompression. Worthless and a waste of time and because the insurance backed out on me. put me in so much debt. I ended up going into bankruptcy. Core Decompression is total B.S. I figured out that I got it from medication prescribed by doctors. Then when I got it, I listened to doctors. I allowed it to wreck...
    RHMLucky777
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    I have had in in both hips cense 1997. I had core decompression. Worthless and a waste of time and because the insurance backed out on me. put me in so much debt. I ended up going into bankruptcy. Core Decompression is total B.S. I figured out that I got it from medication prescribed by doctors. Then when I got it, I listened to doctors. I allowed it to wreck my life and stop doing what I did because the doctors said that I could no longer do things. I don't have the money for hip replacement. I wasted the best years of my life allow this disease and the doctors to let me think I could no longer be what I was. Then I decided that I was not going to let it stop me anymore. I take no medication. I take no pain killers. I learned to live with the pain to the point that much of the time, I do not notice it. I know my physical limitations and I learned how to work around them. I loved working on cars. Restoring them. Building them, Racing them. I did not go into my garage and work on my cars for 10 years. The pain of crawling under them over them in and out of them. I no longer enjoyed doing it. But then, I stopped being a slave to this AVN and I went back to doing the work I use to do, and got back into working on my cars. Damn the pain. Yes I have my days. There are some (Although very few) that I cannot even walk. But most of the times. I am mostly normal. No I will never run, Ski or hike a mountain ever again. Things I enjoyed very much. But I can spend a day at the races or car shows and walk around all day and be fine. I can have an enjoyable weekend building my hot rod. A few days ago I was under it rebuilding a new exhaust system. Crawling under and out, back a forth. Yeah, I was a little sore. But man does my Mustang sound good now. I had fun doing it. So what I am getting at. Yes, your life has changed. you have to learn to adapt. You have to learn to live with the pain and work around it. It is what it is and do not do what I did. Fall into that depression and think that you can no longed do all the things you use to and that your life is over. It is not. It changed and you have to stop doing a few things. But not everything and you can go on. This disease sucks. It's crippling. Take this from a guy whom has lived with it for 18 years. Do not stop. Do not sit on your butt and say , I can't walk up the steps. I can't walk around. I can't stand for a long time. I can't I can't I can't. The only thing I say I can't do. I CAN'T sit in one of those riding electric carts and scoot around Wal Mart. I walk by them and walk the entire store. Keep moving is the best thing to do. When you stop. The pain gets worse and the movement in the joints get less. KEEP MOVING! I hope this helps you out. I know that it is terrifying right now. It sucks. But you got to move forward. Well I'm gotta go. On my way to Kohls and WalMart for some Christmas Shopping. Going to do a bunch of walking around. Best of Luck to you. I do wish you all the best. You'll make it. Just do not listen to the negative crap.
    • Caring Nurse
      Jan. 11, 2016
      Thanks for the pep talk. We all needed this!
    • rmupton34
      Sep. 14, 2016
      Core decompression is useless Avn = thr No other lasting viable options
  • caring nurse
    Oct. 26, 2015
    I am 36 years old and I am a nurse. I started experiencing bad pain in my right hip following a fall in May 2015. The pain continued to increase rapidly. I went to an Ortho in June, 2015, received X-rays and was diagnosed with bursitis of the hip. The Ortho injected steroid into the bursa. I felt no relief. I returned to see my Dr. in July because the pain...
    RHMLucky777
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    I am 36 years old and I am a nurse. I started experiencing bad pain in my right hip following a fall in May 2015. The pain continued to increase rapidly. I went to an Ortho in June, 2015, received X-rays and was diagnosed with bursitis of the hip. The Ortho injected steroid into the bursa. I felt no relief. I returned to see my Dr. in July because the pain was terrible. Thinking they must have missed the injection site because I did not experience any relief, they injected my hip again. Still no relief and the pain had shifted from the side of my right hip to my groin area. On my third visit to the Ortho in September, I requested further testing because I knew this kind of pain was a sign that something was terribly wrong. The Ortho ordered an MRI with contrast and included another round of steroids. The MRI results showed AVN to the femur in stage 2 with no sign of collapse. The Ortho I was seeing was not a surgeon, so she referred me to a hip surgeon and told me to start using crutches immediately. When I saw the hip surgeon, he was very nonchalant about my diagnosis and pain. He wanted to refer me to a spine specialist to make sure there wasn't an issue with my spine. He did no manipulation or examination. At this point, I decided to get my records and go to another Ortho surgeon for a second opinion. My new Dr. took his time with me, explained AVN and the lack of medical advancements for this disease. He said this was a painful disease to have with few options. We discussed trials, which have not been very effective and finally decided to try core decompression. I am scheduled for this procedure in two weeks. I am nervous because I realize that positive results with core decompression are difficult to find, but he doesn't want to do a hip replacement at my age. I am to the point that I have to do something to try to get rid of this horrific pain. I am still working, but it is all I can do to get through the day. After a hard day of nursing, I am in tears by the time I get home. Nothing relieves this horrific pain!! I am praying for everyone on this site. Please pray for me. God bless you, each and every one.
    • verona_e
      Nov. 09, 2015
      Oh my goodness, I know just how you feel. I am suffering with AVN in my right knee. I too, am 36, and am too young for a replacement. I, like you, am on crutches. I hope you have better luck than I did with surgery. I found out Sept. 21st of this year after being dismissed by several doctors as having narcotic seeking behavior that I have stage III AVN...not...
      RHMLucky777
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      Oh my goodness, I know just how you feel. I am suffering with AVN in my right knee. I too, am 36, and am too young for a replacement. I, like you, am on crutches. I hope you have better luck than I did with surgery. I found out Sept. 21st of this year after being dismissed by several doctors as having narcotic seeking behavior that I have stage III AVN...not only AVN, but a fracture behind my knee. My course of treatment after 6 ortho surgeons opinions? MS Contin twice daily, percocet 4x daily for breakthrough pain, nortriptalyne for the nerve pain and anxiety associated with this. I will remain on crutches until I am old enough for surgery. (10+ years) please feel free to contact me at the following email address. It is good to have a support network. I'm in WV where it is a crime to be in pain. I'm sorry you are in the position you are. It is extremely painful and exhausting dealing with this disease. Sincerely, Chryssi. Email me @ verona_e@yahoo.com. take care.
    • JimmyBill
      Nov. 29, 2015
      Hope you found some piece. I have AVN left hip. I had core decompression with platelet rich plasma injection with a trabecular metal screw implant. I'm six weeks out from surgery. No weight bearing. On crutches. Still in pain daily. Doctor is reducing pain meds, which I feel is too soon. I'm having a few good days with lots of bad. BUT I don't want a THR because...
      RHMLucky777
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      Hope you found some piece. I have AVN left hip. I had core decompression with platelet rich plasma injection with a trabecular metal screw implant. I'm six weeks out from surgery. No weight bearing. On crutches. Still in pain daily. Doctor is reducing pain meds, which I feel is too soon. I'm having a few good days with lots of bad. BUT I don't want a THR because of the lifestyle changes seem to be drastic. Good luck.
    • Hiphips
      Dec. 11, 2015
      I am 34 and just had a total hip replacement 5months ago do to avascular necrosis,I was in the worse pain I've ever felt could hardly walk,I didn't want to have to get a replacement but really didn't have many choices,I'm happy I had the surgery,it still aches a lot but nothing like the pain I was having. I still don't know what caused mine,definitely was a...
      RHMLucky777
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      I am 34 and just had a total hip replacement 5months ago do to avascular necrosis,I was in the worse pain I've ever felt could hardly walk,I didn't want to have to get a replacement but really didn't have many choices,I'm happy I had the surgery,it still aches a lot but nothing like the pain I was having. I still don't know what caused mine,definitely was a surprise. It feels good to be able to stand on one leg and it not just give out in pain,it hurts different now,not when I'm standing or walking,but still does ache quite a bit,but maybe the muscles are still getting use to the implant,but I will take it over the pain I was in. I hate for anyone to have to have this and then get a replacement as well,it really took a toll on me physically and emotionally it's very hard and it does feel like a lot of docs don't understand the pain you're really in. Hang in there!!!
    • Caring Nurse
      Dec. 18, 2015
      Thank you all for sharing your experiences. I feel like I learn something new about this disease each time I read a post from someone who is actually living through it. I had core decompression four weeks ago. The Ortho Dr. bore one large hole as opposed to three small holes into my hip femur. He said he thought the three holes would fill up too quickly. I...
      RHMLucky777
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      Thank you all for sharing your experiences. I feel like I learn something new about this disease each time I read a post from someone who is actually living through it. I had core decompression four weeks ago. The Ortho Dr. bore one large hole as opposed to three small holes into my hip femur. He said he thought the three holes would fill up too quickly. I was totally non weight bearing for two weeks, then crutches for two weeks. At four weeks out, I am walking without any assistance. I am not using any prescription pain meds at this point. I am very pleased with the reduction of the severe pain I was having prior to the core decompression. My Dr. said that whatever is going to happen, will happen. There is nothing else we can do but wait and see. I will have a MRI in March '16 to view both hips for any changes. If I begin to experience the onset of severe pain I am to contact my Dr. immediately due to the possibility of fracture. If any sign of fracture is present I will move forward with a THR. Thanks to each one of you for your comments and kind words. Even though we don't personally know each other, I pray for each of you on this site. This is a tough, painful disease with no great options. It is good to speak with others who really understand what you are going through. Blessings!
    • Caring Nurse
      Jan. 11, 2016
      Went through all the steps of having core decompression and the pain has returned with a vengeance. I enjoyed only two weeks of little pain following a month of recovery from the core decompression. I am so disheartened at this point. My Dr. says that now we just wait until the femur collapses or fractures and I will have a THR. I used a month of accumulated...
      RHMLucky777
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      Went through all the steps of having core decompression and the pain has returned with a vengeance. I enjoyed only two weeks of little pain following a month of recovery from the core decompression. I am so disheartened at this point. My Dr. says that now we just wait until the femur collapses or fractures and I will have a THR. I used a month of accumulated sick leave for basically nothing (thankful I had the sick leave to use). AVN is a tough disease with no good options. If I had it to do over, I would not have core decompression.
  • cosmosisdown
    Aug. 01, 2015
    I broke my femur just below the joint while roller skating when i was 12, and had it put together with 3 screws. I lay in bed for a month, then began walking, slowly giving more weight every week or so. In about 8 month (kinda late) i had them removed and thats when ive been told i got avn on my lef hip. I would eventually get it, aftet such a fracture, but...
    RHMLucky777
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    I broke my femur just below the joint while roller skating when i was 12, and had it put together with 3 screws. I lay in bed for a month, then began walking, slowly giving more weight every week or so. In about 8 month (kinda late) i had them removed and thats when ive been told i got avn on my lef hip. I would eventually get it, aftet such a fracture, but i wasnt warned about it. I wore a plaster cast which separated my legs for three months, so the bone gets stronger and could bare my full weight. That ended, i had water gymnastics, later tegular gymnastics ofc, just to avoid back problems and try to make my left leg more flexible as i still cant drag it outward like i used to. That is my main problem right now, as it doesnt pain me to walk (unless i do it all day) and even that is minor. About half of my hip is missing. It reduces the length, which is also a big issue as i have to wear raisers or adjust the length of the sandals i wear. It sure does look bad. Anyway, im just trying to exercise as much as i can and do a lot of swimming. In the future im either going to lengthen my leg by the methods used to get taller, or wait until im 25 to get the hip replaced (im 16 now). It is ruining my life as i cant go out carelessy walking or running or jumping instead i have to mind my every step. Its sad, but life goes on. Compared to the universe, these little problems we, humans face are nothing. What do you guys do about the length issues and flexibility insufficiency (if there is any)?
    • Ammon1978
      Aug. 23, 2015
      Hello all, I have suffered avn in my left hip for 10 years. I am currently stage 3 where the femur has totally collapsed. Since it was pre-existing no insurance would touch me but that's not the case anymore.I was supposed to be bed ridden for years but I continued to work even though the pain is ridiculous but I am still moving and living.I guess what I am...
      RHMLucky777
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      Hello all, I have suffered avn in my left hip for 10 years. I am currently stage 3 where the femur has totally collapsed. Since it was pre-existing no insurance would touch me but that's not the case anymore.I was supposed to be bed ridden for years but I continued to work even though the pain is ridiculous but I am still moving and living.I guess what I am saying is.... keep the faith.
  • focuscision
    Apr. 23, 2015
    Hello, I was diagnosed with avn of the bilateral hips about 1 year ago. I was sent to several doctors and ultimately given the decision to wait until my hips collapse and have thr. The pain affects my entire back hips. The medicines prescribed have lost their effects and purpose. The pain is becoming unbearable not to mention the anxiety of not knowing when...
    RHMLucky777
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    Hello, I was diagnosed with avn of the bilateral hips about 1 year ago. I was sent to several doctors and ultimately given the decision to wait until my hips collapse and have thr. The pain affects my entire back hips. The medicines prescribed have lost their effects and purpose. The pain is becoming unbearable not to mention the anxiety of not knowing when I'll be able to be pain free. How do I approach my primary doctor who is managing my pain about the medicine without seeming like a drug seeker. I can't sleep and I'm pretty much in a bad mood all the time because my life changed without a proper explanation why. I just want to be comfortable until surgery but I'm not. Any one have suggestions or similar stories. I'm only 30. I also have copd and this all came from an asthma attack in 2013. I can't work due to pain can't sit for long can walk without a can. Someone respond with something for me please. Thank you in advance.
    • mhockelberg
      Oct. 08, 2015
      The orthopaedic surgeon will help with this. I wouldn't bother with a general practitioner for it.
    • leonsmosho
      Nov. 24, 2015
      I was diagnosed with stage 3 avn femoral head right hip a year ago, but I knew something was wrong last 4-5 years. I never recovered from what I thought was lower back injury from a very big judo throw. . it has annoyed me that the cause of avn didn't seem to matter to GP or orthopedic surgeons, and because of my general attitude to the human condition was...
      RHMLucky777
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      I was diagnosed with stage 3 avn femoral head right hip a year ago, but I knew something was wrong last 4-5 years. I never recovered from what I thought was lower back injury from a very big judo throw. . it has annoyed me that the cause of avn didn't seem to matter to GP or orthopedic surgeons, and because of my general attitude to the human condition was " your either dying or getting better " - I put the constant pain aside r years ... Anyway, there is a Point to this ramblings, my surgeon looked examined me carefully, and said to keep on truckin till it got unbearable- which it is on no substances 24/7. I'll get to that; he said my hip is totally fucked, full replacement needed, but I'm 35/ and although it might hurt it it always stronger than after surgery. He said after replacement you take it easy n might play golf- but I can't afford that shit, I'm working, physical work.. So i have found changing substances is best, never stick to one for too long. Methadone works Best, pity doctors are reluctant to prescribe for pain, interestingly scheduled stimulants (meth) completely nullify pain. It's a funny thing....
  • KC
    KC
    Feb. 26, 2015
    Hi, i think you need to get the facts regarding the stage of avn. In conservative treatment (for stage 1 and 2 )you can use alendronate tablets 70mg once a week for 6 months and take an injection Aclasta once a year for healthy bone development.Along with this you may need calcium and vitamin D tablets.Try and avoid surgery if possible give the meds a shot...and...
    RHMLucky777
    Read More
    Hi, i think you need to get the facts regarding the stage of avn. In conservative treatment (for stage 1 and 2 )you can use alendronate tablets 70mg once a week for 6 months and take an injection Aclasta once a year for healthy bone development.Along with this you may need calcium and vitamin D tablets.Try and avoid surgery if possible give the meds a shot...and you may need to be on crutches for 2-3 months till the meds kickin... all the best. - See more at: http://www.healthcentral.com/chronic-pain/c/25854/95894/avascular#sthash.ptfwEo48.dpuf
    • superman090810
      Sep. 10, 2016

      Thank you so much for letting me know about alendronate 70 mg presently I'm suffering from avascular necrosis of hip bilaterally I had MRI done recently for both right and left hip with and without contrast I am waiting for the report is there any possible way that I can get in touch with you either through email or telephone your guidance will be highly appreciated...

      RHMLucky777

      Read More

      Thank you so much for letting me know about alendronate 70 mg presently I'm suffering from avascular necrosis of hip bilaterally I had MRI done recently for both right and left hip with and without contrast I am waiting for the report is there any possible way that I can get in touch with you either through email or telephone your guidance will be highly appreciated and is it possible that I can start taking alendronate 70 mg and retard the warant for the as I'm only 26 years old. I have 7 tablets available with me for 7 weeks. I have a dental filling problem. Should I get that fixed before I start the process of Alendronate.

  • Rick
    Feb. 19, 2015
    At 26 I found out I had AVN in both hips. Left one was replaced at 30, and has been fine ever since. Right one is in extreme pain to the point of not being able to walk. Having THR in 3 days. I'm now 36. Core decompression was recommended early on for my right hip, but chose to not have it because I couldn't find any real success stories from people who've...
    RHMLucky777
    Read More
    At 26 I found out I had AVN in both hips. Left one was replaced at 30, and has been fine ever since. Right one is in extreme pain to the point of not being able to walk. Having THR in 3 days. I'm now 36. Core decompression was recommended early on for my right hip, but chose to not have it because I couldn't find any real success stories from people who've had it done. May need hips redone in my life because of age but ready to get back to somewhat of a normal life. Know first hand how painful AVN can be, and what it does to your life. Wish you all the best in your journey with it, remember your not alone.
    • mhockelberg
      Oct. 08, 2015
      I had the core decompression when I was 30. It worked for me for almost 15 years. I am 45 now and have my FHR in three weeks, but the CD bought me precious time given my age of diagnosis. I was non-weight bearing for a year after, but then I was feeling perfect. No pain. I was able to run and exercise. I would recommend it based on my experience. Get a great...
      RHMLucky777
      Read More
      I had the core decompression when I was 30. It worked for me for almost 15 years. I am 45 now and have my FHR in three weeks, but the CD bought me precious time given my age of diagnosis. I was non-weight bearing for a year after, but then I was feeling perfect. No pain. I was able to run and exercise. I would recommend it based on my experience. Get a great orthopaedic though.
    • ChristinaGrace
      Jan. 07, 2016
      My son has one of the worst cases of AVN known. He us 24, was diagnosed with AVN of the shoulders when he was 21 after being prescribed too high a dose of prednisone and decadron. He has had bilateral shoulders and hips done and bilateral knees done twice. It is in his ankles, but most recently more severe and in his elbows. He is having a right elbow core...
      RHMLucky777
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      My son has one of the worst cases of AVN known. He us 24, was diagnosed with AVN of the shoulders when he was 21 after being prescribed too high a dose of prednisone and decadron. He has had bilateral shoulders and hips done and bilateral knees done twice. It is in his ankles, but most recently more severe and in his elbows. He is having a right elbow core decompression with bone graft. It is a rather experimental surgery for the elbow. His surgeon at Shands Gainseville feels this is the best option. Has anyone has AVN of the elbow and/or had core decompression or elbow replacement? By the way, my son has ceramic hips, known to last for 30 plus years, and has no pain in his shoulders or hips. He had some complications with his knees, so he doesn't walk quite right yet, but it has only been a year since he had them done the second time, so with time he will hopefully recover fully. His only yearning in life is to have children and be able to play ball with his son and whatever with his daughter. He also wants to be a physician so he can help people, possibly a interventional radiologist to diagnose AVN and maybe help find a cure! Thanks for listening/reading Christina Grace
  • phjj
    Jan. 28, 2015
    I was recently diagnosed with chronic AVN to my left knee. I have been suffering for about a year off and on and constant pain the last 3 months. I went to the first orthopedic surgeon and he wanted to do core decompression but because I have COPD he sent me to another surgeon to do the surgery because my lung doctor foes not practice at the hospital he operates...
    RHMLucky777
    Read More
    I was recently diagnosed with chronic AVN to my left knee. I have been suffering for about a year off and on and constant pain the last 3 months. I went to the first orthopedic surgeon and he wanted to do core decompression but because I have COPD he sent me to another surgeon to do the surgery because my lung doctor foes not practice at the hospital he operates at. I am on and off steroids due to my lung disease and of course overweight due to chronic steroid use. The 2nd surgeon injected my left knee and put me non weight bearing on crutches for 6 weeks . Ok I am a marketer on my feet 90% of the day. Can't work with the job I do, he says if injection doesn't help next surgery but even though later on I will need knee replacement they won't due because I am 51. Ok I want the TKR instead. Who knows if I will even live another 15 years to have to have another one, and it should be my decision, the pain is horrible and the shot has not helped. My knee is killing me!!! I am going to se a 3rd surgeon next Monday to see if he will operate on me. I can't stand this! Non wt bearing is terrible and now I risk losing my job because external marketer have to have two legs to walk and carry all the stuff in to places. Any help or info would be appreciated. In severe pain. They haven't even offered me any pain meds. Just take Advil they say. Urg!
  • Chronically Fabulous
    Oct. 30, 2014

    Hello All!

     

    My AVN story starts with me being diagnosed with Autoimmune Hepatitis in 2009. I was prescribed 60mg of prednisone daily as well as an immunosuppressive.  I was on this therapy for about 10 months, we stopped due to blood sugar issues etc. & my autoimmune hepatitis was growing increasingly worse. By then I started to feel increased...

    RHMLucky777

    Read More

    Hello All!

     

    My AVN story starts with me being diagnosed with Autoimmune Hepatitis in 2009. I was prescribed 60mg of prednisone daily as well as an immunosuppressive.  I was on this therapy for about 10 months, we stopped due to blood sugar issues etc. & my autoimmune hepatitis was growing increasingly worse. By then I started to feel increased pain while walking, fatigue... & lots of other symptoms.  4-5 months later in late Feb- early March of 2011 I could barely get around without a cane. I just assumed it was due to my fibromyalgia, and failing liver. Went to my rheumatologist,  and he checked out my hip by lifting & twisting... I damn near jumped out of my seat with just the slightest manipulation.  He said I think you joint is gone... X-rays showed AVN & that my joint collapsed... the told me to get a walker & try to keep weight off until my surgery. I also have AVN in my shoulders and my left hip is starting to collapse.... I need to have another hip replacement,  but I can't have the surgery because I'm too sick... my liver failed after my 1st hip & I had a liver transplant in March of 2012. The anti-rejection meds caused my kidneys to fail and now I'm on dialysis.  My body is to sick to withstand the surgery... I know what's ahead, and knowing that I have to deal with the pain until I get a new kidney is unbearable.  Pain meds are not helping and I will be seeing a pain management doctor soon.

  • Bessie
    Oct. 26, 2014

    Two months ago my left knee had been hurting for months, thought sprained. I finally went to an orthopedic physician and was in shock that the X-rays showed I had very advanced avascular necrosis of my left hip.  I don't know what the cause was.  6 years ago I went through a terrible 2 year custody battle divorce for our one son who is in the autistic...

    RHMLucky777

    Read More

    Two months ago my left knee had been hurting for months, thought sprained. I finally went to an orthopedic physician and was in shock that the X-rays showed I had very advanced avascular necrosis of my left hip.  I don't know what the cause was.  6 years ago I went through a terrible 2 year custody battle divorce for our one son who is in the autistic spectrum.  My husband and I had been married 26 years and now my ex married his best friend's sister right away.  At the time I know I started drinking too much and went through some kind of rehab.  I managed life the best I could, found a job, supported my son but it took me 4 years to get over the divorce.  Ex is in the medical field and lives an expensive lifestyle but got away with next to nothing child support. Then last year I had a huge gout attack and took lots and lots of prednisone.  I had been doing hot yoga for 8+ years, but this last year I stopped and now this.  I have seen 5 orthopedic surgeons, 2 sets X rays, an MRI and they all recommend THR.  My son cannot stand his dad and stepmother, is always here and very difficult to live with.  I don't know how much worst life can get.  I have no family at all here.  What will give me some time before the THR?  Cortisone shots, pain clinics, what?  My AVN is too far for decompression.  Why doesn't this bone heal itself and grow back?  I live a clean life, no alcohol, smoking, take care of a difficult son, never go out.  A month ago I could run, now not at all.  Some pain but I'm thin so it helps.  How many months, years whatever can I put off THR with shots and meds?  I want my own living body, I want it to grow back, maybe some other procedure will give it fresh blood and it will grow.  I feel so unbelievably sad about my life...

  • Elayton
    Oct. 13, 2014
    I can not tell you how glad I found this site. I just found out I have AVN in the right hip. Had an MRI done and the dr told "now I now what the problem You have AVN " after my heart sank to my stomach he said there's three options. Three weeks on crutches with pain medication. Second is core decompresion. Third is a hip replacement. After three weeks of crutches...
    RHMLucky777
    Read More
    I can not tell you how glad I found this site. I just found out I have AVN in the right hip. Had an MRI done and the dr told "now I now what the problem You have AVN " after my heart sank to my stomach he said there's three options. Three weeks on crutches with pain medication. Second is core decompresion. Third is a hip replacement. After three weeks of crutches and pain medicine I opted to skip the core decompression and go for the hip replacement I thought that was the better way to go. I don't know what stage of AVN I have. What do you think? Mary.
    • Bessie
      Oct. 26, 2014

      Did you already have the THR?  I feel your shock when all of a sudden you find out you have AVN.  I'm so sorry but I hope the THR is doing well.  All five orthopedic surgeons told me it is usually successful and the best way to go.  Your stage must have been early if they suggested core decompression; mine is too far gone for that.  Did...

      RHMLucky777

      Read More

      Did you already have the THR?  I feel your shock when all of a sudden you find out you have AVN.  I'm so sorry but I hope the THR is doing well.  All five orthopedic surgeons told me it is usually successful and the best way to go.  Your stage must have been early if they suggested core decompression; mine is too far gone for that.  Did you lose a lot of flexibility and movement with the AVN?  Best luck to you, hopefully it will feel like your real hip.

    • Elayton
      Oct. 28, 2014
      Hi, I decided not too get the decommission I herd too many bad story about that. I am going for the hip replacement. I feel this is a better solution. Why Waite for my hip to collapse? The pain is gone for now but who knows when it will come back I can't deal with that. I got to get back up on my feet.
  • Miriam
    Sep. 11, 2014

    Hi All,

     

    i was diagnosed with bi lateral AVN 8 years ago at age 25.  I was on crutches for a while and then a wheelchair, with the aid of pain killers and aqua therapy this made it better and I was able to walk and be almost normal.  However as I get older (33 now) the pain is becoming much worse and is affecting my back.  Any ideas what...

    RHMLucky777

    Read More

    Hi All,

     

    i was diagnosed with bi lateral AVN 8 years ago at age 25.  I was on crutches for a while and then a wheelchair, with the aid of pain killers and aqua therapy this made it better and I was able to walk and be almost normal.  However as I get older (33 now) the pain is becoming much worse and is affecting my back.  Any ideas what I can do to ease the pain, as my weight is also now increasing due to not being very active.

  • Jessika
    Jun. 17, 2014
    My husband was diagnosed with AVN about a year ago. Both femural heads are 8-100 percent collapsed. Without insurance we can't afford total hi replacement surgery. He is in excruciating pain daily around the clock. He still works every day as a truck driver but pain is becoming unbearable and affecting his ability to work. Anyone have info on getting Medicaid...
    RHMLucky777
    Read More
    My husband was diagnosed with AVN about a year ago. Both femural heads are 8-100 percent collapsed. Without insurance we can't afford total hi replacement surgery. He is in excruciating pain daily around the clock. He still works every day as a truck driver but pain is becoming unbearable and affecting his ability to work. Anyone have info on getting Medicaid or help with paying for surgery. We live in Louisiana and he is only 33 yrs old.
    • missmyra
      Aug. 07, 2014

      I was trying to work everyday with Avascular Necrosis of the hip.  I drove most of the day and did house cleaning for a home health agency.  I could barely get my leg into the car or get out without my hip locking up.   Finally after suffering for over 2 years, I decided I had to quit work.  There is help out there, especially now with the...

      RHMLucky777

      Read More

      I was trying to work everyday with Avascular Necrosis of the hip.  I drove most of the day and did house cleaning for a home health agency.  I could barely get my leg into the car or get out without my hip locking up.   Finally after suffering for over 2 years, I decided I had to quit work.  There is help out there, especially now with the Affordable healthcare.  Because I had no income I qualified for a state Medicaid card.  If I didn't have it I could not be having hip replacement surgery next week or pay for my medications.  I pray you get some help and take care of that hip.

    • lynn.brobst
      Sep. 26, 2014

      I was in the same boat as your husband. I was diagnosed just a few months ago and I too did NOT have any insurance...HOWEVER there is hope. He WILL most certainly qualify for medical assistance. They may give him a 30 day pass that he will have to use to seek out a doctor and have tests done to verify the diagnosis. They will also give him a form to provide...

      RHMLucky777

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      I was in the same boat as your husband. I was diagnosed just a few months ago and I too did NOT have any insurance...HOWEVER there is hope. He WILL most certainly qualify for medical assistance. They may give him a 30 day pass that he will have to use to seek out a doctor and have tests done to verify the diagnosis. They will also give him a form to provide to the doctor that the doctor must fill out. It is about disability but it does not necessarily mean you are disabled and unable to work. My doctor checked the box that i am temporarily disabled but am able to still work if I want to. I sent this to the welfare office and was approved on the spot. Don't back down from this! I am in stage 4 and it advanced that fast in a mere 3 months. I am in severe pain every single day and need to be on chronic pain management medications. Please look into seeking medical assistance. 

      This disease is covered and will certainly qualify him. GOod luck! 

  • Linda S
    Apr. 17, 2014

    Hi all. I started having pain in my right hip in 07/2012 and thought I was just sitting too long at work.  I started stretching more and taking more walking breaks.  By 10/2012 the pain was unbearable.  Went to my doctor who took an x-ray and said my hip looked arthritic. I was sent for an MRI of both hips and before I even left the imaging center,...

    RHMLucky777

    Read More

    Hi all. I started having pain in my right hip in 07/2012 and thought I was just sitting too long at work.  I started stretching more and taking more walking breaks.  By 10/2012 the pain was unbearable.  Went to my doctor who took an x-ray and said my hip looked arthritic. I was sent for an MRI of both hips and before I even left the imaging center, the radiologist was on the phone with my doctor telling her to get me in to see an orthopedic surgeon (OS). I was diagnosed with AVN of both hips - late Stage II. I saw the OS that week who scheduled me for a semi-experimental procedure on my right hip which was the only side that I had symptoms on at the time. He performed a core decompression with platelet rich plasma therapy. I had to be non-weight bearing on my right hip for 6 weeks. I sucked at crutches so I ended up using a walker and wheelchair. The pain gradually diminished which excited me. The OS's intention was to try to delay total hip replacements (THR) for as long as possible. I was 48 at the time. After 6 weeks I was able to walk again. Unfortunately, the pain returned after 4 weeks which meant the procedure failed. I was then scheduled for a THR of my right hip for 01/2013 which went smoothly and a THR of my left hip in 04/2013 which also went smoothly.  I did physical and aquatic therapy.

     

    Things were going quite well and I was able to stop walking with my cane some time in the summer of 2013. I was able to walk well and did quite a bit of it. I was off all pain meds except for a little here and there. Then I started having sharp pain in my left groin around 09/2013. The OS said it was most likely a femoral nerve entrapment. Then I developed bilateral trochanteric bursitis which I've been told is not uncommon post THR. Now I'm back on daily pain medicine and getting injections into my hips and bursa. I don't think I'm ever going to feel normal again! I think about my hips all of the time. This disease really through me for a loop!!!

  • kelly
    Apr. 16, 2014

    Does anyone know how u can tell if ur hip collapses?

    • superman090810
      Sep. 10, 2016
      Well when you have a hip collage you lose the range of motion and excessive pain and that is how you'd realize that you have hip collapse and constant observation is also required thank you
  • Anonymous
    jackal
    Mar. 03, 2014

    i was diagniosed with avascular necrosis in both hips in feb 2009 i had my right hip replaced that year ,had a revision replacement in 2012 and now awaiting my third ,to descibe pain is not possible i am so fed up people dont understand what we we go through im only 46 and its really getting to me

     

    • kelly
      Apr. 16, 2014

      I have advacular necrosis too and people don't understand the pain at all all...they act like I'm milking it when I can't do something....my pain killers don't really work anymore and my GP won't give me anything stronger..I can't sleep at night time cuz the pain keeps waking me up....I was suppose to have a core decompression on march 12th but my surgeon canceled...

      RHMLucky777

      Read More

      I have advacular necrosis too and people don't understand the pain at all all...they act like I'm milking it when I can't do something....my pain killers don't really work anymore and my GP won't give me anything stronger..I can't sleep at night time cuz the pain keeps waking me up....I was suppose to have a core decompression on march 12th but my surgeon canceled it and didn't reschedule it yet....and I know for a fact the my go and sergeon have never experienced the pain of advascular nercrosis

       

  • Hoperemains
    Feb. 26, 2014

    I will keep this very brief...since I have tried to find sites and forums, even chat rooms where I might be able to talk to other people who are suffering from Avascular Necrosis.

    I was diagnosed with this disease in both knees March of 2013...and have struggled with the pain for many years before this diagnoses...I will leave my story here...until I can find...

    RHMLucky777

    Read More

    I will keep this very brief...since I have tried to find sites and forums, even chat rooms where I might be able to talk to other people who are suffering from Avascular Necrosis.

    I was diagnosed with this disease in both knees March of 2013...and have struggled with the pain for many years before this diagnoses...I will leave my story here...until I can find out how to sucessfully sign into this site...

    Good luck to all of you  suffering with this disease...

    • jfisher723
      Mar. 09, 2016
      I was diagnosed with bilateral osteonecrosis of the knee. I had a core decompression of the r knee dec 4 2016. I am back to work and the pain isn't completely gone but it's manageable. No pain meds at all. My knee only bends at like a 93 degree angle. I need plenty of physical therapy. Still can't squat or run
  • Anonymous
    cat lady
    Feb. 01, 2014

    Hello, It has been great reading all of this info and to know someone else has these issues. I was diagnosed by accident in 2012 via CT scan - AVN of both Femur heads (stage 1). I caught it as I was reading my test results. In 4/2013 I had core decompression with stem cell transplants to both hips. To date all xrays have shown no further deterioration but I...

    RHMLucky777

    Read More

    Hello, It has been great reading all of this info and to know someone else has these issues. I was diagnosed by accident in 2012 via CT scan - AVN of both Femur heads (stage 1). I caught it as I was reading my test results. In 4/2013 I had core decompression with stem cell transplants to both hips. To date all xrays have shown no further deterioration but I am scheduled for MRI to determine effectiveness of stem cells. My groin pain no longer exist, but I have had pain throughout my leg bone that has returned and have noticed an increase in my limping especially when walking for a while. I am really concerned as to the prosthetics being used for THA and all of the recalls. I am 54Y and concerned about how long it will last. My prefession is as a nurse which requires me to be on my feet alot. Any feedback greatly appreciated.

    • kat
      kat
      Feb. 03, 2014

      Looking for some feedback related to bilaterral hip avn, Pro and cons of surgery. surgeons, hip hardwear to use for replacement, diet, exercise program. Had core decompression in April with dtem cell transpllant, but now my legs are really starting to hurt

  • valfawn
    Jan. 10, 2014

    Hi,

    I know exactly what you are going through.

     

    My pain started on Jan. 11, 2013, after numerous visits to the health centre, and various types of pain meds.  I have had a number of tests done, an MRI, Bone Denisty, Ultrasound, various x-rays, the doctors also thought I had Bursitis, but after my bone denisty, it was determined that I have AVN, not...

    RHMLucky777

    Read More

    Hi,

    I know exactly what you are going through.

     

    My pain started on Jan. 11, 2013, after numerous visits to the health centre, and various types of pain meds.  I have had a number of tests done, an MRI, Bone Denisty, Ultrasound, various x-rays, the doctors also thought I had Bursitis, but after my bone denisty, it was determined that I have AVN, not only in my right side but both of my hips, I just recently had a "Right Hip Forage" in October, and I am still in pain and on pain killers.  I was told by my orthapaedic surgeon that my next option is to have a Right Hip Replacement. 

    • Aaron mills
      Mar. 28, 2014

      I have AVN it started November 2012 it's in my right hip and the pain is indescribable even with pain killers. So I no how you feel. I haven't worked since it started so I have to live on £60 a week witch doesn't help and to top it all off my left nee as had it I'm afraid im falling to peacese before my very eyes. anyway I hope every thinking works out...

      RHMLucky777

      Read More

      I have AVN it started November 2012 it's in my right hip and the pain is indescribable even with pain killers. So I no how you feel. I haven't worked since it started so I have to live on £60 a week witch doesn't help and to top it all off my left nee as had it I'm afraid im falling to peacese before my very eyes. anyway I hope every thinking works out for you ok.

  • Anonymous
    Kyle96
    Dec. 20, 2013
    Before my AVN I was an athlete of many sports and had been doing multiple martial arts since the age of 8. Unfortunately I was diagnosed with leukemia at the age of 16 and during my treatment was put on dexamethasone, a corticosteroid medication used standardly in the treatment of cancer. I'm now 17 and this use of steroids is what crippled both of my hips...
    RHMLucky777
    Read More
    Before my AVN I was an athlete of many sports and had been doing multiple martial arts since the age of 8. Unfortunately I was diagnosed with leukemia at the age of 16 and during my treatment was put on dexamethasone, a corticosteroid medication used standardly in the treatment of cancer. I'm now 17 and this use of steroids is what crippled both of my hips and now the pain has gotten so bad I'm stuck on crutches/wheelchair and will have to undergo core decompression. I have to say, i was strong dealing with chemotherapy, the scare of cancer and everything my diagnosis brought on, but AVN has been the worst thing I've ever had to go through being so fanatically involved in athletics and my lifelong passion for martial arts. But being so young, I have to stay optimistic. I saw this page as a place to openly share my story and inspire hope in others to help them realize things could always be worse; everyday I feel like emotionally succumbing to my situation but I remind myself things could always be worse. In your struggle with AVN remember to stay positive, patient and strong!
  • Anonymous
    Anonymous
    Nov. 04, 2013
    I also have cirrhosis stage 4. With that being said no one wants to give me anything for pain. So I go to the gym.i limp in pain walking in,excercise by working out my upper half with a few leg excercise a thrown in,and I walk out erect and no pain. This is an every other day or everyday temporary pain relief
    • deborama2
      Nov. 13, 2013
      So sorry to hear about your cirrhosis , it certainly poses some challenges for pain management. It sound like you have found a great way to deal with the pain. It is so important with chronic pain to keep moving and to find a form of exercise that works for you. If you are a candidate , I recommend the hip replacement. You have to deal with the recovery but...
      RHMLucky777
      Read More
      So sorry to hear about your cirrhosis , it certainly poses some challenges for pain management. It sound like you have found a great way to deal with the pain. It is so important with chronic pain to keep moving and to find a form of exercise that works for you. If you are a candidate , I recommend the hip replacement. You have to deal with the recovery but once that is done, the sky is the limit!! Best wishes and good luck to you Deb.
  • Kazya
    Oct. 29, 2013

    Hey, I had avascular necrosis when I was 15 in my foot, that took a year to get me back on my foot. By the end of the year though I apparently developed chronic regional pain syndrome, sending the nerves insane with pain leading them to believe that anything I felt was severe pain, that took a year to deal with. My hip fractured a couple of years later, the...

    RHMLucky777

    Read More

    Hey, I had avascular necrosis when I was 15 in my foot, that took a year to get me back on my foot. By the end of the year though I apparently developed chronic regional pain syndrome, sending the nerves insane with pain leading them to believe that anything I felt was severe pain, that took a year to deal with. My hip fractured a couple of years later, the drs think it was something to do with the avascular necrosis but never did any tests. My latest worry is the fact that my back has been giving me chronic pain with no apparent reason, I've been having similar pain to my original avascular necrosis saga so I'm freaking out quite a bit. How did your hip go? I'm not sure how old your post is, I'm just looking for other people with similar experiences.

    • Kazya
      Oct. 29, 2013

      By the way, by "get over the avascular necrosis" I mean for my doctors, parents and even myself to get sick of my whinging and put up barriers in my mind to try to block it out. Even though that means whenever I get a scratch everything I'm blocking out hurts because of that one little piece of pain.

    • deborama2
      Oct. 29, 2013
      Get the hip replacement! It was the best thing I ever did. Why live with the pain when there is a solution? Happy, but still hippy, Deb.
  • blueschill
    Oct. 08, 2013

    There is very little regarding AVN anywhere, especially AVN which doesnt involve the hips

     

     

    I was proudly serving in the Royal Navy when I was diagnosed with lymphoma cancer feb 2012 age 24 in the last stgage and nearly died 3 times in the space of the 8 months that i was hospitalised. ( im am a very lucky man )

     

    When I thought it was all...

    RHMLucky777

    Read More

    There is very little regarding AVN anywhere, especially AVN which doesnt involve the hips

     

     

    I was proudly serving in the Royal Navy when I was diagnosed with lymphoma cancer feb 2012 age 24 in the last stgage and nearly died 3 times in the space of the 8 months that i was hospitalised. ( im am a very lucky man )

     

    When I thought it was all over I started to pick up the pieces, the Navy medically discharged me, while this was all hapenning I had noticed i was getting very stiff in my legs.

     

    Eventually the pain was almost unbearable but with all the meds and sleeping pills from having cancer I got through it, later I was diagnosed with AVN in both hips at the beginning of 2013.

     

    I did not mess about, when it was found my bones were dead, fact. So I had two hip replacements done this year (age 27).

     

    I must say to anyone that a hip replacement is that way to go, a day after surgery, my hip pain was gone!!  ( only my wound pain was there but that is to be expected ) i was walking in 3 days ;) honestly!!

     

    Those years were the worst of my life when i was diagnosed with cancer i had ust had my little boy :( and i have missed him growing up.

    It was a living nightmarein fact, my pain was the most extreme possible though because I had so much pain meds during my cancer my tolerance was sky high, so I tak over 55 pills a day! plus morpiene patches and morphiene solution orally. there just like sweets to me now, its very upsetting that the doc just keep throwing tablets at me :( but they cant anymore because there not allowed to give me more because i am at the MAX possible.

     

    OCT 2013

    I think, no in fact I know I have AVN in my left shoulder and possibly in my left ankle which is so depressing im on the edge. I cant take any much more of it, even the docs wont address my depression.

     

    Top tips guys,   if your offered get a hip replacement donw, you wont regret it, no more insomnia!!! no more drugs!!!

    If you can handle it try to take as little meds as possible unlike me, as I am a complete mess because of it.

    If you havnt been offered a hip replacement, ask for one, it will save you so much pain and tears honestly.

     

     

    My battle is not over yet but I hope so soon,

     

    A Once a proud sailor of Her Majesty's Navy, A proud Father and a Husband. Now reduced to nothing but tears and drugs, I never thought I could feel so low after being on top of the world.

     

    I didnt do anything wrong in life to deserve this, and you guys probably didnt either, stay strong, chin up, take it a day at a time, and just keep believing it will all be over one day.

    • Adrinseattle
      Feb. 19, 2014

      I am very sorry to hear of your difficulties, but there is still hope for you. This is my second post in my whole life. I do not like talking to strangers but I feel very compelled to talk to you. You are right you have not done anything to deserve cancer or pain but there is a truth you do not know.You sound like an intelligent man so read my comments first...

      RHMLucky777

      Read More

      I am very sorry to hear of your difficulties, but there is still hope for you. This is my second post in my whole life. I do not like talking to strangers but I feel very compelled to talk to you. You are right you have not done anything to deserve cancer or pain but there is a truth you do not know.You sound like an intelligent man so read my comments first analyze later. What if I told you that just like we have physical DNA we also have a spiritual DNA? Yes that's right. When God created Adam and Eve they had everything but one day they disobeyed God and because of this human beings experience all the negative things imaginable.But God loving his creation ...us..so much that he sent Jesus Christ to earth his only son to die a cruel death so that we may have life and peace.You're at your last wits ends about you and your life. You feel like there is nothing more for you? Your wrong you are a warrior filled with many talents to give your family and others. I with all due respect...Challenge you to open your mind and heart to what about to share with you...Your last resort and best resort? His name is Jesus Christ. The one who died on the cross a cruel death.I challenge you to simply open your mouth and simply say to God.God I really need you if you exist like this lady says then I accept Jesus into my heart I repent of all the things I have done wrong. I need tou to talk to me and let me know you are real. Because I need your help. Talk to God like you would talk to a good friend. We dont need to do any weird religious excercise for HIM to listen to us. Lastly I do understand all of your physical and emotional pain. My medical history is as follows: Leukemia at age 12.Diabetic, Hep C.Suicidal for many years.Tumor 2 years ago. And now Avn. So by no means am I trying to minimize your situation by presenting to you God and his son Jesus Christ. The bible states I can do all things through Christ who strengthens me.Try talking to God.Just say hi God we need to talk. If your real like this lady from seattle says you are I accept Jesus Christ inro my heart I repent of all my wrong doings and I ask you to help me everyday of my life and I want to experience that peace and love in my heart that you offer according to the bible.I was heard that someone asked Princess Diana what she most feared and she answered.I fear someone who is on their knees praying to God more than an army if men coming against me.It seems obvious that Princess Diana was introduced as well to this mysterious truth PRAYER to God in the name of Jesus Christ.Prayer is simply talking to God from your heart.Later find you a bible and lastly find a church.Church is not a perfect place. Its a place where all types of people go with all types of problems to learn what the bible says and worship God. There you will find answers to alot of questions tou have.Investigate churches maybe online Or TBN.If you take the challenge if you accept my dare I guarantee you your life is never going to be the same. Oh..and you dont even have to feel anything overwhelming but what you do have to do is simply open your mouth and talk to God and HE will listen to you. What do you have to lose? No one has to see you..Lastly I decided to write to you because I believe your life is not over and there is an important mission you must complete here on earth.You can not Give up or die yet.Thank you for your contribution to the military and for reading patiently.May Almighty God bless you and your family. Take the challenge and watch how you will understand the true meaning of life.

       

       

  • megancollins33
    Mar. 06, 2013

    I wish that I had found this discussion forum a few years ago when I started going through these issues. I broke my hip in 2009 and thats when I had the first surgery on my hip. About a year later I started experiencing crippling pains in the same leg. I went back to my hip Dr and it took a few months before he diagnosed me with AVN and at that time...

    RHMLucky777

    Read More

    I wish that I had found this discussion forum a few years ago when I started going through these issues. I broke my hip in 2009 and thats when I had the first surgery on my hip. About a year later I started experiencing crippling pains in the same leg. I went back to my hip Dr and it took a few months before he diagnosed me with AVN and at that time I had quite a bit of collapse. He referred me to a Dr who does free vasularized bone grafting. I had that surgery in January of 2012 and the recovery was verrrrry long. I was on crutches for about 6 months while the graft healed and then started to slowly become full weight bearing. I felt great for the first few weeks but then slowly the pain started to return. I just went to my one year check up and my Dr told me that I now need  total hip replacement. I am very nervous since the last two surgeries haven't worked. I am also concerned that I am 24 and that I will need to have several more surgeries throughout my life since each hips last anywhere between 12 to 18 years. Has anyone had the same problem with the free vasularized fibular grafting surgery? Anyone had a total hip after this surgery?

    • deborama2
      Mar. 21, 2013

      They tried a similar surgery on me before my total hip.  It didn;t work.  GET YOUR HIP DONE!! I got a total hip replacement 2 years ago and it was the best thing ever.  I think the new hipa are supposed to last longer than you have stated.  I am 49 and the Dr. told me that mine would last for the rest of my life.  

      I am so sorry that...

      RHMLucky777

      Read More

      They tried a similar surgery on me before my total hip.  It didn;t work.  GET YOUR HIP DONE!! I got a total hip replacement 2 years ago and it was the best thing ever.  I think the new hipa are supposed to last longer than you have stated.  I am 49 and the Dr. told me that mine would last for the rest of my life.  

      I am so sorry that you have had so much difficulty!! I think a total hip is the way to go.  I have a big scar, but who cares!  I got ris of that horrible pain!  

      Keep me posted and good luck!!

    • megancollins33
      Mar. 21, 2013

      That is great to hear you have recovered so nicely after your total hip! My last two hip Dr's made having total hip sound like the worst possible option. The last one even compared it to a used car that your grandma gave you with 100,000 miles on it. I was so skeptical until I went to actually meet with a Dr who does total hips. The first bit of great...

      RHMLucky777

      Read More

      That is great to hear you have recovered so nicely after your total hip! My last two hip Dr's made having total hip sound like the worst possible option. The last one even compared it to a used car that your grandma gave you with 100,000 miles on it. I was so skeptical until I went to actually meet with a Dr who does total hips. The first bit of great news was how quickly I would recover. My other Dr's told me I would never be able to run or hike or do anything too active because it would wear down my hip too fast. They also said it would only last 12-18 years. The amount of misinformation was ridiculous! The total hip Dr expained I will be able to jog up to 5K and hiking will not be an issue. I will also have NO pain and way more range of motion. The hips he has been using are expected to last about 20-25 years! Needless to say I scheduled my hip replacement that day and will go in for sugery in the middle of April! I am very excited and hope everything turns out as expected. I will let you know!

    • deborama2
      Mar. 22, 2013

      Go girl!!!  I am so happy for you.  Seriously you will do just fine!!  

      Take care

      Cheers

      Laughing

    • deborama2
      Apr. 17, 2013

      Megan:  You will not regret your decision.  You have to go through a bit of discomfort (well maybe a little bit more than that:)  )  but you have been through the worst!!  I wish you nothing but success!!!!  

      Please do let me know!

      Cheers

      Deb.

  • Anonymous
    susan
    Jul. 25, 2012

    i have avn of the left hip. i have had it since 1985 and so i am on the back end of replacing this thing. its really hard kt come to this decision as i have a autistic son .  i am extremely overweight and i am really concerned as to how much i need to lose. since its more than 100 pounds and i have thyroid disease and struggling with menopause i just cant...

    RHMLucky777

    Read More

    i have avn of the left hip. i have had it since 1985 and so i am on the back end of replacing this thing. its really hard kt come to this decision as i have a autistic son .  i am extremely overweight and i am really concerned as to how much i need to lose. since its more than 100 pounds and i have thyroid disease and struggling with menopause i just cant seem the scale to budge atall. it seems the less i eat i see the scale to move but its so hard to keep it going. everything seems to depend on losing weight for this  hip surgery. i dont have any family help and so its hard to figure it all out. just me and my husband.

     

    i need to figure out about how many calories i really need to lose to get going with since i have to see my orthopedic surgeon in september.

    • deborama2
      Jan. 22, 2013

      Hello I am so sorry to hear of your struggles!  It is so hard to lose wieght let alone have thyroid disease and going through menopause at the same time.  You might want to work with your Dr. to fine tune your HRT if you are on it and your thyroid medication to make sure you are on the right doses.  

      Getting my hip replacement was the best thing...

      RHMLucky777

      Read More

      Hello I am so sorry to hear of your struggles!  It is so hard to lose wieght let alone have thyroid disease and going through menopause at the same time.  You might want to work with your Dr. to fine tune your HRT if you are on it and your thyroid medication to make sure you are on the right doses.  

      Getting my hip replacement was the best thing that I ever did.  I do have some discomfort at times but it is nothing compared to what I went through waiting for the hip replacement.

      Good luck with your quest! 

    • susan81354
      Jan. 22, 2013

      thanks for your comment deborah. i take synthroid for my thyroid and my tests have been great as far as that goes. in fact i have a thyroid appt soon and he always keeps tabs on me.

      i am sure with the menopause symptoms

       i still have  hormone changes is part of the deal. its just really the weight gain that has me flustered. i thought about re joining...

      RHMLucky777

      Read More

      thanks for your comment deborah. i take synthroid for my thyroid and my tests have been great as far as that goes. in fact i have a thyroid appt soon and he always keeps tabs on me.

      i am sure with the menopause symptoms

       i still have  hormone changes is part of the deal. its just really the weight gain that has me flustered. i thought about re joining weight watchers but with the issues i have i wasnt sure if i would be successful. it just seems the less i eaqt the better my weight loss is. i know ppl say you should eat more often to keep  your metabolic rate up but for me it doesnt seem to work that way. i have to almost starve to get the scale to move.

       

      my level of pain is so severe now and i have to see him in april but my son(who is autistic)  gets out of school in may. i am just worried about doing it as heavy as i am. i weigh more than 300 and so thats why i am scared. what about your recovery? how did that go and how long did it take? care to share?

       

      susan

  • Stephiekay
    Jul. 11, 2012
    Hi deb! Im so happy to read your struggles with avascular necrosis and decompression surgery. Im sorry your struggling but im so happy to have found you-i have it too and just had decompression surgery last week! Im misraeble! Nothing cuts the pain and the dr said they wont know until months from now if it worked. I have a walker now as i fell with my crutches...
    RHMLucky777
    Read More
    Hi deb! Im so happy to read your struggles with avascular necrosis and decompression surgery. Im sorry your struggling but im so happy to have found you-i have it too and just had decompression surgery last week! Im misraeble! Nothing cuts the pain and the dr said they wont know until months from now if it worked. I have a walker now as i fell with my crutches so they dOnt trust me Im hoping to walk again aug 13 but we also had some shocking news the dr said today i have it in my right hip too and would need to discuss it in aug. no way! I too feel lost, alone, in pain, just misraeble. Everyone all says oh just deal with it and tryto be positive! Well you be positive when you cant walk, are in horrible pain and deal with as much as i do!! I have had a kidney transplant, my right lung removed, i have invasive aspergillus and many more health problems and i wonder-when will it end??? I havent done anything that bad in life that youd want any of my health issues Find me on facebook, would love to be able to keep up with you and maybe we can work together to figure out whats best in our painful lives :)
  • Yaisa Hagood
    Mar. 21, 2012

    I learned I had AVG in my right hip in September. I had core bone decompression six weeks ago. Now trying to walk without crutches for the past few days is still painful. The movement is not normal and I am bent over. I hope this gets better. I am only 34.   

    • deborama2
      Mar. 22, 2012

      Best wishes with your recovery.  I had a core decompression which was unsuccessful.  I had a hip replacement 8 months later with great success. 

      Cheers, happy healing!!

  • Shawnea
    Jan. 20, 2011

    Hi, my name is Shawnea and I was recently diagnosed with AVN in my hips. Last week I had a core decompression surgery done on my left hip. I was told by the dr that about 3-4 days after surgery I should start noticing the pain gettin alot better. Well, its been a week and I am in so much pain I barely sleep at night. So my question is how long should I expect...

    RHMLucky777

    Read More

    Hi, my name is Shawnea and I was recently diagnosed with AVN in my hips. Last week I had a core decompression surgery done on my left hip. I was told by the dr that about 3-4 days after surgery I should start noticing the pain gettin alot better. Well, its been a week and I am in so much pain I barely sleep at night. So my question is how long should I expect to be hurting like this? Or is this maybe a sign that the surgery didn't work?

    • deborama2
      Jan. 20, 2011

      I so hope and pray for you that the decompression was successful.  If you can't sleep from the pain I would definitely go see your physician again.  My decompression seemed to work in the beginning, but as time went on it was apparent that it wasn't.  Good luck to you.  Please keep me posted!

      Deb. Smile

    • absofbeer
      Feb. 16, 2011

       I also have AVN in both hips.. In November I had a Core Decompression on my left hip.. it relieved the pressure and felt pretty good while on crutches. I am now about 13 weeks since the procedure.. My pain is just about as bad as it was.. I am really stiff and achy after I sit to long and it makes me walk with a limp.. There sometimes a certain way that...

      RHMLucky777

      Read More

       I also have AVN in both hips.. In November I had a Core Decompression on my left hip.. it relieved the pressure and felt pretty good while on crutches. I am now about 13 weeks since the procedure.. My pain is just about as bad as it was.. I am really stiff and achy after I sit to long and it makes me walk with a limp.. There sometimes a certain way that I move that makes my hip almost give out... I think it is the dead spot on it??

       

       Anyways.. My pain from the surgery lasted about a week and I didn't feel very much AVN pain.. Is it the exact same pain from before the surgery you feel?? AVN Pain? Or is it that the bone was drilled and the incision pain? 

       

       Bill in Indiana

    • Anonymous
      arenea
      Mar. 19, 2011

      Hi Shawnea. I am Adriane a 32 year old who has SLE (Systemic Lupus Erthyrmatosos) and as I result of taking steroids I too was diagnosed with AVN. I had to undergo a total hip replacement February of 2010.  It was alot of work rehab and all but my hip is wonderful.  But in January 2011 I was diagnosed with it in the left hip.  So my doctor suggested...

      RHMLucky777

      Read More

      Hi Shawnea. I am Adriane a 32 year old who has SLE (Systemic Lupus Erthyrmatosos) and as I result of taking steroids I too was diagnosed with AVN. I had to undergo a total hip replacement February of 2010.  It was alot of work rehab and all but my hip is wonderful.  But in January 2011 I was diagnosed with it in the left hip.  So my doctor suggested Core Decompression since it was detected at an early stage. I had the procedure done February 4,2011.  I noticed that about 2 weeks post op I started getting some relief.  I could move my hip and had a great painless range of motion.  I just got off crutches 2 days ago (after a looong six weeks) and last night i was hurting so bad till i couldn't hardly walk.  They said my xrays looked great and i was ok to walk but i don't know what is happening.  Has anyone experienced this?? I am getting a little nervous.

    • Anonymous
      Anonymous
      Mar. 28, 2011

      Hi Everyone,

       

      I am a 32yo female.  I was diagnosed with AVN of the right femoral head in 2001 while in the US army.  I underwent a Free Vascularized Fibula bone graft and the surgery is deemed a sucess...I guess.  The femoral head looks great now and no signs of collapse.  

      Why do I still have constant radiating pain in my right leg...

      RHMLucky777

      Read More

      Hi Everyone,

       

      I am a 32yo female.  I was diagnosed with AVN of the right femoral head in 2001 while in the US army.  I underwent a Free Vascularized Fibula bone graft and the surgery is deemed a sucess...I guess.  The femoral head looks great now and no signs of collapse.  

      Why do I still have constant radiating pain in my right leg still?  I know i have sciatic issues a bit, and some bursitis on by the incision site on my hip...

      Its like a gigantic tooth ache but in my leg.

      I never talk about it much, because I would just sound like a broken record to those around me.  But yet at the same time...I feel like I am not validated as having this invisible disability.  I have 3 small children under the age of 5, and my limatiations are become more apparent as they grow.  "Run with me Mommy!"....yeah...thats a hard one to hear.

       

      I hope wish you all well and hope to hear more about all of you.

       

      Warmly,

      Sabrina

    • Anonymous
      nick
      Oct. 03, 2011

      I too am in the army and  was diagnosed about a month ago. i should be getting surgery here in about two weeks. what should i expect post op? im a little scared.ive heard all too much on how this surgery dosent work. some doctors wont even perform this surgery. any info would be appreciated. thanks 

                  ...

      RHMLucky777

      Read More

      I too am in the army and  was diagnosed about a month ago. i should be getting surgery here in about two weeks. what should i expect post op? im a little scared.ive heard all too much on how this surgery dosent work. some doctors wont even perform this surgery. any info would be appreciated. thanks 

                                                                                                     nick

    • MaineMamarazzi
      Oct. 03, 2011

      Hi Nick,

      So sorry to hear about your diagnosis.  Do you know the cause of your AVN?  What stage are you in? 
      The army misdiagnosed me for a while, saying it was just a femoral neck stress fracture..then they decided to finally give me an MRI..and OOPS, your bones dead!!

      Gee thanks!

      Where are you located.  I had my FVFBG done at Brooke Army...

      RHMLucky777

      Read More

      Hi Nick,

      So sorry to hear about your diagnosis.  Do you know the cause of your AVN?  What stage are you in? 
      The army misdiagnosed me for a while, saying it was just a femoral neck stress fracture..then they decided to finally give me an MRI..and OOPS, your bones dead!!

      Gee thanks!

      Where are you located.  I had my FVFBG done at Brooke Army Medical center.  I was the FIRST one done there!!!  So I was their gunieau pig :-)

      Recovery sucked!  Especially waking up from anestesia. 
      You will have drainage tubes in your leg for a few days....and foot pumps to keep circulation going.  The worst part is when they take out the thin drainage tubes.

      You will have physical therapy...that was rough.

      So if you just get through the first few days...you will be fine.  Its just rough in the beginning. 
      I took con. leave and came home to recover for a month.  I was in wheelchair and crutches for like 6 months!  NO weight bearing.
      THings may have changed, seeings I was the first one done there...so perhaps they have learned more about the procedure.

      I could go on and on.  I would be happy to chat with you via email.

      fitmominmaine at gmail dot com :-)

      warmly,
      sabrina

    • susan81354
      Jan. 22, 2013

      H SABRINA I AM SO SORRY. I HAVE AVN FOR 28 YRS IN THE LEFT HIP AND I HAVE TO HAVE  A HIP REPLACEMENT SURGERY LATER THIS SUMMER, I ALSO HAVE A AUTISTIC TEENAGER AND SO THAT PLAYS INTO THE EQUATION OF THIS TOO AND NO FAMILY HELP. I CANT IMAGINE HAVE A LOT OF CHILDREN. I WISH YOU THE BEST SABRINA. TAKE CARE.

  • Anonymous
    VLT
    Jun. 02, 2010

    My husband is 4 month Post-op AVN Right Hip Core Decompression.  He was doing great on crutches and in physical therapy.  All of the sudden, in the last month he has developed hip pain again and groin pain..any idea?  Is this normal or should he go back to the surgeon?

    Thanks for any input

    God Bless!

    Vanessa

    • deborama2
      Jun. 02, 2010

      Hello, so sorry your husband is dealing with this awful condition.  I suggest he definitely goes back to the surgeon.  This is what happened to me as well I had the decompression August last year and the pain slowly but surely started creeping back.  January it was back to where it was before the procedure.  I saw the surgeon in Jan and...

      RHMLucky777

      Read More

      Hello, so sorry your husband is dealing with this awful condition.  I suggest he definitely goes back to the surgeon.  This is what happened to me as well I had the decompression August last year and the pain slowly but surely started creeping back.  January it was back to where it was before the procedure.  I saw the surgeon in Jan and I am now the proud owner of a new hip.  I had a total left hip replacement April 29th.  I am  doing and feeling awesome!  I wish that we did this in the first place, but I know the decompression works on some people, but I wasn't one of them. 

      Please stand your ground and be persistent.  I did see the surgeon a few times before Jan and I had to keep going back.  I wish you luck and a solution to your husband's discomfort.  AVN pain has been equated with bone cancer in it's comparison of level of pain. 

      Take care

      Deb. 

    • Anonymous
      VLT
      Jun. 03, 2010

      Thanks so much for replying to my post!  Your insight helps a lot.  I'm glad to hear that you are feeling much better after your hip replacement.  Take Care and God Bless!

      Vanessa

  • Anonymous
    AprilDawn
    Jan. 31, 2010

     I am 27 and I was diagnosed w/ AVN in 2007. I have seen an orthepedist 3 times, and a speciailist once throughout this whole process. Not because I'm not exsperiencing pain, but because I have no health insurance and cannot afford the high cost of having this disease. I struggle every day to mentally manage the pain, put it in the back of my mind, so...

    RHMLucky777

    Read More

     I am 27 and I was diagnosed w/ AVN in 2007. I have seen an orthepedist 3 times, and a speciailist once throughout this whole process. Not because I'm not exsperiencing pain, but because I have no health insurance and cannot afford the high cost of having this disease. I struggle every day to mentally manage the pain, put it in the back of my mind, so I can try to have as normal and fun of a day as possible. I don't go out much at all anymore and yes, I'd say my whole personality has changed from this. Yet, I choose to think of having AVN as just something that I have to deal with, and when I think about it I know that it could always be a whole lot worse! Smile

    • deborama2
      Feb. 06, 2010

      Wow you have an amazing outlook!  I am so sorry that you don't have medical care.  I so hope for your country that some form or universal health care is developed.  I live in Canada and even though we have wait lists I am so grateful that I have access to health care.  I just don't understand the system in the US.  The movie Sicko was...

      RHMLucky777

      Read More

      Wow you have an amazing outlook!  I am so sorry that you don't have medical care.  I so hope for your country that some form or universal health care is developed.  I live in Canada and even though we have wait lists I am so grateful that I have access to health care.  I just don't understand the system in the US.  The movie Sicko was an eye opener for sure.  I hope your pain isn't too severe Aprildawn. 

      As in my previous post I have to have a hip replacement.  The wait is supposed to be 6 monthsCry but I hope I can get in sooner. 

      Hope you are able to manage your pain.  Cheers

      Debo

    • jeff lazenby
      Feb. 15, 2011

      I too have avascular necrosis of both hips. My right femoral head has collapsed and usually the pain is intense. I have no health insurance and the pain of working was finally too much. I have dealt with this for a little over two years and the pain never seems to go away. My doctors will not give me any pain meds. They say i'm too young for hip replacement...

      RHMLucky777

      Read More

      I too have avascular necrosis of both hips. My right femoral head has collapsed and usually the pain is intense. I have no health insurance and the pain of working was finally too much. I have dealt with this for a little over two years and the pain never seems to go away. My doctors will not give me any pain meds. They say i'm too young for hip replacement and just deal with it . I was told to get a sit down job, but with no skills in that type of field it seems hopeless trying to find a job like that. I don't know what is going to happen over the next couple of years but I worry every day that I will end up homeless walking around with a cane looking like a freak. I hope others with this do not have problems like I do.

    • lynda
      Aug. 29, 2011

      Hi there..I'm so sorry to here your story and others..I too have AVN and have had it since 2/10 and have been back and forth to soo many docs. I am now on a waiting list for approx 1 1/2 years before they get to my name and then at that time set a appt which takes some additional time (lady at hospitlal explained)..Ito speak with a surgeon. I was...

      RHMLucky777

      Read More

      Hi there..I'm so sorry to here your story and others..I too have AVN and have had it since 2/10 and have been back and forth to soo many docs. I am now on a waiting list for approx 1 1/2 years before they get to my name and then at that time set a appt which takes some additional time (lady at hospitlal explained)..Ito speak with a surgeon. I was given info to call for status on the waiting period to see where I am on the list in the meantime. I called last week to get an update and the lady told me that there was a man that has been waiting for 7 years for a hip replacement...ARE YOU KIDDIN ME!!!..I am only 50 and very young at heart and all around. I HATE this and am at the end of my rope. I have 2 grown children and 2 grandkids..this really is sad..and what the worst part of all of this is the HELP and the misconception of this disease and the damage thats being done while walking or stressing on the hip..not good...maybe we all should get our crutches and wheel chairs..etc and stand in front of Mr.Obama's sorry blank and see if he'll take us on his next destress vacation...whatcha think?....yes I am bitter especially when I see people like myself hurting and struggling. Not only does this affect our lives but our families and friends...I don't know about you but I'v used alot of my please's and sorrys and help me please till I'm sick of hearing myself.

      Oh I could go on and on and I am but for now I will just say if you want to be updated on my findings on this journey with AVN..look out for my posts!..

      I hope everyone with this keeps the faith and DO NOT take the pain pills unless you really have to try something else...this will cause you another problem...pain pills once in a while but daily..NO WAY...I have seen bad situations come of this.

      Thanks for reading....Buffy with a smile..Cool stay positive...share a smile

    • jeff lazenby
      Oct. 14, 2011

      thnaks for sharing your stories with me. I dont know why more isnt known about avn. I went agian to the doctor last week and heard the same response. I know that you have pain and I know you need a hip replacement but your only 40 so at 60 you will need another one which will be much worse. At 40 years old,  i would like to live life again not be a shutin...

      RHMLucky777

      Read More

      thnaks for sharing your stories with me. I dont know why more isnt known about avn. I went agian to the doctor last week and heard the same response. I know that you have pain and I know you need a hip replacement but your only 40 so at 60 you will need another one which will be much worse. At 40 years old,  i would like to live life again not be a shutin and worry about falling or moving a certain way that makes my eyes water from the pain . I do not want pain managemnet I want to be fixed. I hope soon the medical profession will take this seriously because I belive that avn can be a disabling condition. It is with me, I cant even  find work because employers see me walk in to an interview limping and with a cane and i can tell it was a waste to even go to it. Good luck to everyone on this site and lets all hope things will bae better in the future, because we could all use some good news.

    • susan81354
      Jan. 22, 2013

      HI JEFF,

       

      I HAVE AVN AND HAVE DEALT WITH IT FOR ALMOST 30 YRS. I KNWO ITS HARD TO BELIEVE BUT I AM ON THE BACK END OF THE ISSUES WITH IT. I HAVE A UTISTIC SON AND SO IT COMPLICATES ME HAVING SURGERY AND WITH NO FAMILY ITS A TOUGH ONE TO CALL.. I DONT KNOW YOUR SITATION PERSONALLY BUT HAVE YOU THOUGHT OF APPLYING FOR A MEDICAL CARD THROUGH THE STATE....

      RHMLucky777

      Read More

      HI JEFF,

       

      I HAVE AVN AND HAVE DEALT WITH IT FOR ALMOST 30 YRS. I KNWO ITS HARD TO BELIEVE BUT I AM ON THE BACK END OF THE ISSUES WITH IT. I HAVE A UTISTIC SON AND SO IT COMPLICATES ME HAVING SURGERY AND WITH NO FAMILY ITS A TOUGH ONE TO CALL.. I DONT KNOW YOUR SITATION PERSONALLY BUT HAVE YOU THOUGHT OF APPLYING FOR A MEDICAL CARD THROUGH THE STATE. YOUR DR WOULD PROBABLY TELL THEM YOUR SITUATION AND SOUNDS LIKE YOU WOULD BE ELIGIBLE. PLEASE TRY AND MAYBE IT WOULD HELP. WHAT ABOUT SOCIAL SECURITY?

  • Anonymous
    Goodhope
    Dec. 06, 2009

    Hi, I was diagnosed with avascular necrosis of the femur about nine months after incurring what I thought was a severe groin strain during a Krav Maga training session.  I had a core decompression in March, 2007. The sharp pain decreased considerably over the first year. I hope that yours will as well. However, I still have pain in my groin every day....

    RHMLucky777

    Read More

    Hi, I was diagnosed with avascular necrosis of the femur about nine months after incurring what I thought was a severe groin strain during a Krav Maga training session.  I had a core decompression in March, 2007. The sharp pain decreased considerably over the first year. I hope that yours will as well. However, I still have pain in my groin every day.  Moreover, within the last four months, I have developed pain radiating down my leg and centering in my calf that, at times, feels like a "toothache".  It is possible that the radiating pain may be caused by my sciatica nerve and not have anything to do with avascular necrosis.  Unfortunately, I don't know.

    I returned to my orthopedist last week and was pleased that an x-ray showed no sign of collapse.  My  orthopedist, whom I believe to be highly qualified, said that there is very little chance of the hip collapsing in the future. However, he does not know what is causing the groin pain and the more recent radiating pain. He suggested that we could try a cortisone shot to relieve the pain, but I refused knowing that it is not curative. I have tried Celebrex which partly relieve the pain. However, I am concerned with its possible long term effect and it's expensive as well. Pleased that I will not need a hip replacement in the near future, I have decided not to medicate and do my best to live with the pain.

    • deborama2
      Feb. 06, 2010

      Sorry it has taken me so long to reply.  My major symptom was and still is groin pain.  I also get the calf pain as  well.  The core decompression didn't work for me.  It helped for a while and then at the beginning of January the severe pain started again, just like it was before the procedure.  I am now waiting for a partial...

      RHMLucky777

      Read More

      Sorry it has taken me so long to reply.  My major symptom was and still is groin pain.  I also get the calf pain as  well.  The core decompression didn't work for me.  It helped for a while and then at the beginning of January the severe pain started again, just like it was before the procedure.  I am now waiting for a partial hip replacement.  They want to replace just the femur.  I am relieved as this will fix the problem and then I will be able to go back to work and not be in constant pain all the time.  I am so surprised the Dr. wants to give you a cortisone shot as this is one of the reasins why people develop this disease in the first place.  I have had 2 cortisone shots before it was diagnoised and now they won't give me anymore due to the necrosis.  I wish you well and hope everything is healing and the necrosis isn't returnning.  Cheers!Laughing

    • Anonymous
      brad
      Dec. 13, 2010

      hello,

       

      i am 34 and was  diagnosed with avn on both hips a year ago.  Ive been to four doctors and have one surgery (core decompression) with no success to releive the pain.  How do you deal with the pain.  I have fallen back on pain meds, and even with them have a hard time dealing with the pain.  I wish someone could...

      RHMLucky777

      Read More

      hello,

       

      i am 34 and was  diagnosed with avn on both hips a year ago.  Ive been to four doctors and have one surgery (core decompression) with no success to releive the pain.  How do you deal with the pain.  I have fallen back on pain meds, and even with them have a hard time dealing with the pain.  I wish someone could help.  I wish the pain would go away.

       

       

    • deborama2
      Dec. 16, 2010

      I too had a core decompression to my left hip.  At first it helped, but 4 months after the pain gradually crept back.  I am now the proud owner of a new hip, I had a total hip replacement at the end of April of this year, and now I am returning to work gradually.  I am very lucky this is what I needed.  By the time I had my hip replacement...

      RHMLucky777

      Read More

      I too had a core decompression to my left hip.  At first it helped, but 4 months after the pain gradually crept back.  I am now the proud owner of a new hip, I had a total hip replacement at the end of April of this year, and now I am returning to work gradually.  I am very lucky this is what I needed.  By the time I had my hip replacement I was in pain for 2 years.  these were 2 of the worst years of my life.  The pain of avascular necrosis has been equated with bone cancer due to it's severity.  I so hope for you that hip replacements are in your future.  It was the only thing that cured me.  I thought I was never going to get better or ever go back to work again.  

      Be assertive in your quest for an orthopod to help you.  DONOT let them write you off as chronic pain.  The deciding factor for my surgeon was an injection of marcaine into my hip under fluroscopy.  This is done in the xray department by a radiologist.  It is a diagnostic way of determining if a hip replacement is needed.  Good luck to you.  I am so empathetic to your pain.  It is all consuming and never completely goes away.  Be strong and assertive!!!!!  I hope you get the help you need!  Please keep me posted.  

      Take care

    • Gai
      Gai
      Nov. 05, 2013

      I had Hip decompression 3mths ago and have been non weight bearing until 2wks ago,started walking with one crutch, now the pain in my groin and the "fire like" pain is back in my knee. My Orthopod said if the pain returned he would have to do a hip replacement  - thats the last thing I want. But I am so sick of this pain which I have had for over a year...

      RHMLucky777

      Read More

      I had Hip decompression 3mths ago and have been non weight bearing until 2wks ago,started walking with one crutch, now the pain in my groin and the "fire like" pain is back in my knee. My Orthopod said if the pain returned he would have to do a hip replacement  - thats the last thing I want. But I am so sick of this pain which I have had for over a year before it was correctly diagnosed and can not face having to use crutches again and being so dependant on others. What should I do, I am desperate this pain is killing me and I am scared

    • Prav
      Oct. 18, 2011

      Hello Brad,

      What is your situation now ,how is your pain ....did u undergo the surgery..pls reply

      Thanks

      Regards

      Prav

       

  • Betty Boop Too
    Nov. 27, 2009

    Hey Debo

     

    I'm so happy I ran onto your sharepost this evening.  I hope you had a Happy Thanksgiving, but I'm not sure this is a holiday in Canada, but Hope you had a good day anyhow. Wink

     

    I'm sorry to hear of your continued struggles and sincerely hope that you find some resolution to your pain issues.

     

    Hope to see you around, much love...

    RHMLucky777

    Read More

    Hey Debo

     

    I'm so happy I ran onto your sharepost this evening.  I hope you had a Happy Thanksgiving, but I'm not sure this is a holiday in Canada, but Hope you had a good day anyhow. Wink

     

    I'm sorry to hear of your continued struggles and sincerely hope that you find some resolution to your pain issues.

     

    Hope to see you around, much love and many hugs dear friend

    Take care

    Betty

    • Anonymous
      hevans
      Jan. 20, 2013

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is...

      RHMLucky777

      Read More

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is my only option. I spent one week in bed in total panic mode (fetal position).......................

       

      I'm so frightened but I have to do something for the pain. My son is a nurse and says I'm crazy to have surgery. somebody pray for me..

    • susan81354
      Jan. 22, 2013

      MY NAME IS SUSAN AND I HAVE HAD AVN FOR ALMOST 30 YRS. I HAVE YET TO HAVE THIS SURGERY BUT I HAVE TO BREAK DOWN AND DO IT LATER THIS YR. I AM THE SAME WAY. SLEEPING IS MURDER FOR ME TO. I HAVE TO NOW USE A ROLATOR AND AW HEELCHAIR IN THE HOUSE AND CANT HAVE CARPETING. I NEED TO LOSE MORE THAN 100 POUNDS AND SO I AM MORE SCARED ABOUT DOING IT AT THIS WEIGHT....

      RHMLucky777

      Read More

      MY NAME IS SUSAN AND I HAVE HAD AVN FOR ALMOST 30 YRS. I HAVE YET TO HAVE THIS SURGERY BUT I HAVE TO BREAK DOWN AND DO IT LATER THIS YR. I AM THE SAME WAY. SLEEPING IS MURDER FOR ME TO. I HAVE TO NOW USE A ROLATOR AND AW HEELCHAIR IN THE HOUSE AND CANT HAVE CARPETING. I NEED TO LOSE MORE THAN 100 POUNDS AND SO I AM MORE SCARED ABOUT DOING IT AT THIS WEIGHT. CARE TO SHARE?

    • Gimp22
      Apr. 17, 2013
      I have AVN in my right hip and have had it for almost 4 years (I also have hip dysplasia in both hips, right worse than left). After days of barely being able to walk and nights of agonizing pain, I finally got help. Since January I have been on a waiting list for a bone donor. I will be having a PAO for my hip dysplasia and a bone graph for my AVN. They say...
      RHMLucky777
      Read More
      I have AVN in my right hip and have had it for almost 4 years (I also have hip dysplasia in both hips, right worse than left). After days of barely being able to walk and nights of agonizing pain, I finally got help. Since January I have been on a waiting list for a bone donor. I will be having a PAO for my hip dysplasia and a bone graph for my AVN. They say its a hard recovery but at the point I'm at, its the only way to try and make it better. If when they get into my hip and realize they don't need the donor, they will be just drilling holes into the top of my femoral head so that the blood circulates through my bone and starts to heal on its own.
    • Hevans
      Apr. 17, 2013

      WOW, this is new information for me. I just got home from my 5th Ortho Surgeon for an opinion. I don't want to get caught up in the system with hip replacement after hip replacement. AVN in both hips............hyperbairic chamber has helped with the pain but I pretty much have to go everyday and it's not covered by insurance. What is PAO?

    • Gimp22
      Apr. 17, 2013
      A PAO is a periacetabular osteotomy, for the dysplasia. They will cut my hip bone, shift it, and screw it in. PAO's are done to delay the need for a hip replacement, preserves my own hip. Adds about 20+ years to my own hip.
    • Hevans
      Apr. 17, 2013

      Thanks for that info..............I'm going to check into it. I'll do anything to prolong hip surgery.........................God Bless you and I pray you have a good outcome. This is a lonely place to be...............in pain and life just goes on for everyone else............

    • Anonymous
      VR
      Nov. 05, 2013
      Hi, I was diagnosed with Hip AVN in 2008 when I was 28. I had my first baby and fell v. Sick at the time, and Drs gave me Prednisone steroid medicine and with that, I developed AVN. I had core decompression done on my left hip in June 2009 and 4.5 yrs later I got my MRI done and see some improvement. I do see help in my case. I have also been taking homeopathic...
      RHMLucky777
      Read More
      Hi, I was diagnosed with Hip AVN in 2008 when I was 28. I had my first baby and fell v. Sick at the time, and Drs gave me Prednisone steroid medicine and with that, I developed AVN. I had core decompression done on my left hip in June 2009 and 4.5 yrs later I got my MRI done and see some improvement. I do see help in my case. I have also been taking homeopathic meds from India as I wanted to try any Non surgical option out there. I want to get as much time as possible to avoid hip replacement as its not a once in lifetime deal. It gave me almost 5 yrs Sonu would recommend core decompression if your AVN is 30% affected and I'm thinking about core decompression but don't know if that is going to help me, yet to see a hip specialist on it. Just wanted to share my experience with you all if it helps. Nothing is like real bone so I didn't want hip replacement until 40yrs age atleast, Gotta see.
    • Anonymous
      hevans
      Jan. 20, 2013

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is...

      RHMLucky777

      Read More

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is my only option. I spent one week in bed in total panic mode (fetal position).......................

       

      I'm so frightened but I have to do something for the pain. My son is a nurse and says I'm crazy to have surgery. somebody pray for me..