avascular necrosis

deborama2 Community Member November 22, 2009
  • Hi everyone I was diagnosed with avascular necrosis to my left hip Spring of this year.  In August I had a core decompression of the hip.  I was doing okay while I was on crutches but as soon as I started bearing weight again the pain returned.  I now have brusitis of this hip for 4 weeks.  It was getting better too but yesterday I was running up and down stairs and felt some pain.  The area is acutely swollen and so painful.  I have been dealing with groin pain since March 2007.  Both the surgeon and my GP both think I should be getting better and want to wean me off my pain meds.  Has anyone had avascular necrosis and/or core decompression?  I would love to hear from someone and compare experiences.  This is ruining my life.  I don't know where to turn or what to do anymore.  Any replies would be greatfully appreciated!

    Deb.Smile

61 Comments
  • Jessika
    Jun. 17, 2014
    My husband was diagnosed with AVN about a year ago. Both femural heads are 8-100 percent collapsed. Without insurance we can't afford total hi replacement surgery. He is in excruciating pain daily around the clock. He still works every day as a truck driver but pain is becoming unbearable and affecting his ability to work. Anyone have info on getting Medicaid...
    RHMLucky777
    Read More
    My husband was diagnosed with AVN about a year ago. Both femural heads are 8-100 percent collapsed. Without insurance we can't afford total hi replacement surgery. He is in excruciating pain daily around the clock. He still works every day as a truck driver but pain is becoming unbearable and affecting his ability to work. Anyone have info on getting Medicaid or help with paying for surgery. We live in Louisiana and he is only 33 yrs old.
  • Linda S
    Apr. 16, 2014

    Hi all. I started having pain in my right hip in 07/2012 and thought I was just sitting too long at work.  I started stretching more and taking more walking breaks.  By 10/2012 the pain was unbearable.  Went to my doctor who took an x-ray and said my hip looked arthritic. I was sent for an MRI of both hips and before I even left the imaging center,...

    RHMLucky777

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    Hi all. I started having pain in my right hip in 07/2012 and thought I was just sitting too long at work.  I started stretching more and taking more walking breaks.  By 10/2012 the pain was unbearable.  Went to my doctor who took an x-ray and said my hip looked arthritic. I was sent for an MRI of both hips and before I even left the imaging center, the radiologist was on the phone with my doctor telling her to get me in to see an orthopedic surgeon (OS). I was diagnosed with AVN of both hips - late Stage II. I saw the OS that week who scheduled me for a semi-experimental procedure on my right hip which was the only side that I had symptoms on at the time. He performed a core decompression with platelet rich plasma therapy. I had to be non-weight bearing on my right hip for 6 weeks. I sucked at crutches so I ended up using a walker and wheelchair. The pain gradually diminished which excited me. The OS's intention was to try to delay total hip replacements (THR) for as long as possible. I was 48 at the time. After 6 weeks I was able to walk again. Unfortunately, the pain returned after 4 weeks which meant the procedure failed. I was then scheduled for a THR of my right hip for 01/2013 which went smoothly and a THR of my left hip in 04/2013 which also went smoothly.  I did physical and aquatic therapy.

     

    Things were going quite well and I was able to stop walking with my cane some time in the summer of 2013. I was able to walk well and did quite a bit of it. I was off all pain meds except for a little here and there. Then I started having sharp pain in my left groin around 09/2013. The OS said it was most likely a femoral nerve entrapment. Then I developed bilateral trochanteric bursitis which I've been told is not uncommon post THR. Now I'm back on daily pain medicine and getting injections into my hips and bursa. I don't think I'm ever going to feel normal again! I think about my hips all of the time. This disease really through me for a loop!!!

  • kelly
    Apr. 16, 2014

    Does anyone know how u can tell if ur hip collapses?

  • Anonymous
    jackal
    Mar. 03, 2014

    i was diagniosed with avascular necrosis in both hips in feb 2009 i had my right hip replaced that year ,had a revision replacement in 2012 and now awaiting my third ,to descibe pain is not possible i am so fed up people dont understand what we we go through im only 46 and its really getting to me

     

    • kelly
      Apr. 16, 2014

      I have advacular necrosis too and people don't understand the pain at all all...they act like I'm milking it when I can't do something....my pain killers don't really work anymore and my GP won't give me anything stronger..I can't sleep at night time cuz the pain keeps waking me up....I was suppose to have a core decompression on march 12th but my surgeon canceled...

      RHMLucky777

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      I have advacular necrosis too and people don't understand the pain at all all...they act like I'm milking it when I can't do something....my pain killers don't really work anymore and my GP won't give me anything stronger..I can't sleep at night time cuz the pain keeps waking me up....I was suppose to have a core decompression on march 12th but my surgeon canceled it and didn't reschedule it yet....and I know for a fact the my go and sergeon have never experienced the pain of advascular nercrosis

       

  • Hoperemains
    Feb. 26, 2014

    I will keep this very brief...since I have tried to find sites and forums, even chat rooms where I might be able to talk to other people who are suffering from Avascular Necrosis.

    I was diagnosed with this disease in both knees March of 2013...and have struggled with the pain for many years before this diagnoses...I will leave my story here...until I can find...

    RHMLucky777

    Read More

    I will keep this very brief...since I have tried to find sites and forums, even chat rooms where I might be able to talk to other people who are suffering from Avascular Necrosis.

    I was diagnosed with this disease in both knees March of 2013...and have struggled with the pain for many years before this diagnoses...I will leave my story here...until I can find out how to sucessfully sign into this site...

    Good luck to all of you  suffering with this disease...

  • Anonymous
    cat lady
    Feb. 01, 2014

    Hello, It has been great reading all of this info and to know someone else has these issues. I was diagnosed by accident in 2012 via CT scan - AVN of both Femur heads (stage 1). I caught it as I was reading my test results. In 4/2013 I had core decompression with stem cell transplants to both hips. To date all xrays have shown no further deterioration but I...

    RHMLucky777

    Read More

    Hello, It has been great reading all of this info and to know someone else has these issues. I was diagnosed by accident in 2012 via CT scan - AVN of both Femur heads (stage 1). I caught it as I was reading my test results. In 4/2013 I had core decompression with stem cell transplants to both hips. To date all xrays have shown no further deterioration but I am scheduled for MRI to determine effectiveness of stem cells. My groin pain no longer exist, but I have had pain throughout my leg bone that has returned and have noticed an increase in my limping especially when walking for a while. I am really concerned as to the prosthetics being used for THA and all of the recalls. I am 54Y and concerned about how long it will last. My prefession is as a nurse which requires me to be on my feet alot. Any feedback greatly appreciated.

    • kat
      kat
      Feb. 02, 2014

      Looking for some feedback related to bilaterral hip avn, Pro and cons of surgery. surgeons, hip hardwear to use for replacement, diet, exercise program. Had core decompression in April with dtem cell transpllant, but now my legs are really starting to hurt

  • valfawn
    Jan. 10, 2014

    Hi,

    I know exactly what you are going through.

     

    My pain started on Jan. 11, 2013, after numerous visits to the health centre, and various types of pain meds.  I have had a number of tests done, an MRI, Bone Denisty, Ultrasound, various x-rays, the doctors also thought I had Bursitis, but after my bone denisty, it was determined that I have AVN, not...

    RHMLucky777

    Read More

    Hi,

    I know exactly what you are going through.

     

    My pain started on Jan. 11, 2013, after numerous visits to the health centre, and various types of pain meds.  I have had a number of tests done, an MRI, Bone Denisty, Ultrasound, various x-rays, the doctors also thought I had Bursitis, but after my bone denisty, it was determined that I have AVN, not only in my right side but both of my hips, I just recently had a "Right Hip Forage" in October, and I am still in pain and on pain killers.  I was told by my orthapaedic surgeon that my next option is to have a Right Hip Replacement. 

    • Aaron mills
      Mar. 28, 2014

      I have AVN it started November 2012 it's in my right hip and the pain is indescribable even with pain killers. So I no how you feel. I haven't worked since it started so I have to live on £60 a week witch doesn't help and to top it all off my left nee as had it I'm afraid im falling to peacese before my very eyes. anyway I hope every thinking works out...

      RHMLucky777

      Read More

      I have AVN it started November 2012 it's in my right hip and the pain is indescribable even with pain killers. So I no how you feel. I haven't worked since it started so I have to live on £60 a week witch doesn't help and to top it all off my left nee as had it I'm afraid im falling to peacese before my very eyes. anyway I hope every thinking works out for you ok.

  • Anonymous
    Kyle96
    Dec. 20, 2013
    Before my AVN I was an athlete of many sports and had been doing multiple martial arts since the age of 8. Unfortunately I was diagnosed with leukemia at the age of 16 and during my treatment was put on dexamethasone, a corticosteroid medication used standardly in the treatment of cancer. I'm now 17 and this use of steroids is what crippled both of my hips...
    RHMLucky777
    Read More
    Before my AVN I was an athlete of many sports and had been doing multiple martial arts since the age of 8. Unfortunately I was diagnosed with leukemia at the age of 16 and during my treatment was put on dexamethasone, a corticosteroid medication used standardly in the treatment of cancer. I'm now 17 and this use of steroids is what crippled both of my hips and now the pain has gotten so bad I'm stuck on crutches/wheelchair and will have to undergo core decompression. I have to say, i was strong dealing with chemotherapy, the scare of cancer and everything my diagnosis brought on, but AVN has been the worst thing I've ever had to go through being so fanatically involved in athletics and my lifelong passion for martial arts. But being so young, I have to stay optimistic. I saw this page as a place to openly share my story and inspire hope in others to help them realize things could always be worse; everyday I feel like emotionally succumbing to my situation but I remind myself things could always be worse. In your struggle with AVN remember to stay positive, patient and strong!
  • Anonymous
    Anonymous
    Nov. 04, 2013
    I also have cirrhosis stage 4. With that being said no one wants to give me anything for pain. So I go to the gym.i limp in pain walking in,excercise by working out my upper half with a few leg excercise a thrown in,and I walk out erect and no pain. This is an every other day or everyday temporary pain relief
    • deborama2
      Nov. 13, 2013
      So sorry to hear about your cirrhosis , it certainly poses some challenges for pain management. It sound like you have found a great way to deal with the pain. It is so important with chronic pain to keep moving and to find a form of exercise that works for you. If you are a candidate , I recommend the hip replacement. You have to deal with the recovery but...
      RHMLucky777
      Read More
      So sorry to hear about your cirrhosis , it certainly poses some challenges for pain management. It sound like you have found a great way to deal with the pain. It is so important with chronic pain to keep moving and to find a form of exercise that works for you. If you are a candidate , I recommend the hip replacement. You have to deal with the recovery but once that is done, the sky is the limit!! Best wishes and good luck to you Deb.
  • Kazya
    Oct. 29, 2013

    Hey, I had avascular necrosis when I was 15 in my foot, that took a year to get me back on my foot. By the end of the year though I apparently developed chronic regional pain syndrome, sending the nerves insane with pain leading them to believe that anything I felt was severe pain, that took a year to deal with. My hip fractured a couple of years later, the...

    RHMLucky777

    Read More

    Hey, I had avascular necrosis when I was 15 in my foot, that took a year to get me back on my foot. By the end of the year though I apparently developed chronic regional pain syndrome, sending the nerves insane with pain leading them to believe that anything I felt was severe pain, that took a year to deal with. My hip fractured a couple of years later, the drs think it was something to do with the avascular necrosis but never did any tests. My latest worry is the fact that my back has been giving me chronic pain with no apparent reason, I've been having similar pain to my original avascular necrosis saga so I'm freaking out quite a bit. How did your hip go? I'm not sure how old your post is, I'm just looking for other people with similar experiences.

    • Kazya
      Oct. 29, 2013

      By the way, by "get over the avascular necrosis" I mean for my doctors, parents and even myself to get sick of my whinging and put up barriers in my mind to try to block it out. Even though that means whenever I get a scratch everything I'm blocking out hurts because of that one little piece of pain.

    • deborama2
      Oct. 29, 2013
      Get the hip replacement! It was the best thing I ever did. Why live with the pain when there is a solution? Happy, but still hippy, Deb.
  • blueschill
    Oct. 08, 2013

    There is very little regarding AVN anywhere, especially AVN which doesnt involve the hips

     

     

    I was proudly serving in the Royal Navy when I was diagnosed with lymphoma cancer feb 2012 age 24 in the last stgage and nearly died 3 times in the space of the 8 months that i was hospitalised. ( im am a very lucky man )

     

    When I thought it was all...

    RHMLucky777

    Read More

    There is very little regarding AVN anywhere, especially AVN which doesnt involve the hips

     

     

    I was proudly serving in the Royal Navy when I was diagnosed with lymphoma cancer feb 2012 age 24 in the last stgage and nearly died 3 times in the space of the 8 months that i was hospitalised. ( im am a very lucky man )

     

    When I thought it was all over I started to pick up the pieces, the Navy medically discharged me, while this was all hapenning I had noticed i was getting very stiff in my legs.

     

    Eventually the pain was almost unbearable but with all the meds and sleeping pills from having cancer I got through it, later I was diagnosed with AVN in both hips at the beginning of 2013.

     

    I did not mess about, when it was found my bones were dead, fact. So I had two hip replacements done this year (age 27).

     

    I must say to anyone that a hip replacement is that way to go, a day after surgery, my hip pain was gone!!  ( only my wound pain was there but that is to be expected ) i was walking in 3 days ;) honestly!!

     

    Those years were the worst of my life when i was diagnosed with cancer i had ust had my little boy :( and i have missed him growing up.

    It was a living nightmarein fact, my pain was the most extreme possible though because I had so much pain meds during my cancer my tolerance was sky high, so I tak over 55 pills a day! plus morpiene patches and morphiene solution orally. there just like sweets to me now, its very upsetting that the doc just keep throwing tablets at me :( but they cant anymore because there not allowed to give me more because i am at the MAX possible.

     

    OCT 2013

    I think, no in fact I know I have AVN in my left shoulder and possibly in my left ankle which is so depressing im on the edge. I cant take any much more of it, even the docs wont address my depression.

     

    Top tips guys,   if your offered get a hip replacement donw, you wont regret it, no more insomnia!!! no more drugs!!!

    If you can handle it try to take as little meds as possible unlike me, as I am a complete mess because of it.

    If you havnt been offered a hip replacement, ask for one, it will save you so much pain and tears honestly.

     

     

    My battle is not over yet but I hope so soon,

     

    A Once a proud sailor of Her Majesty's Navy, A proud Father and a Husband. Now reduced to nothing but tears and drugs, I never thought I could feel so low after being on top of the world.

     

    I didnt do anything wrong in life to deserve this, and you guys probably didnt either, stay strong, chin up, take it a day at a time, and just keep believing it will all be over one day.

    • Adrinseattle
      Feb. 19, 2014

      I am very sorry to hear of your difficulties, but there is still hope for you. This is my second post in my whole life. I do not like talking to strangers but I feel very compelled to talk to you. You are right you have not done anything to deserve cancer or pain but there is a truth you do not know.You sound like an intelligent man so read my comments first...

      RHMLucky777

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      I am very sorry to hear of your difficulties, but there is still hope for you. This is my second post in my whole life. I do not like talking to strangers but I feel very compelled to talk to you. You are right you have not done anything to deserve cancer or pain but there is a truth you do not know.You sound like an intelligent man so read my comments first analyze later. What if I told you that just like we have physical DNA we also have a spiritual DNA? Yes that's right. When God created Adam and Eve they had everything but one day they disobeyed God and because of this human beings experience all the negative things imaginable.But God loving his creation ...us..so much that he sent Jesus Christ to earth his only son to die a cruel death so that we may have life and peace.You're at your last wits ends about you and your life. You feel like there is nothing more for you? Your wrong you are a warrior filled with many talents to give your family and others. I with all due respect...Challenge you to open your mind and heart to what about to share with you...Your last resort and best resort? His name is Jesus Christ. The one who died on the cross a cruel death.I challenge you to simply open your mouth and simply say to God.God I really need you if you exist like this lady says then I accept Jesus into my heart I repent of all the things I have done wrong. I need tou to talk to me and let me know you are real. Because I need your help. Talk to God like you would talk to a good friend. We dont need to do any weird religious excercise for HIM to listen to us. Lastly I do understand all of your physical and emotional pain. My medical history is as follows: Leukemia at age 12.Diabetic, Hep C.Suicidal for many years.Tumor 2 years ago. And now Avn. So by no means am I trying to minimize your situation by presenting to you God and his son Jesus Christ. The bible states I can do all things through Christ who strengthens me.Try talking to God.Just say hi God we need to talk. If your real like this lady from seattle says you are I accept Jesus Christ inro my heart I repent of all my wrong doings and I ask you to help me everyday of my life and I want to experience that peace and love in my heart that you offer according to the bible.I was heard that someone asked Princess Diana what she most feared and she answered.I fear someone who is on their knees praying to God more than an army if men coming against me.It seems obvious that Princess Diana was introduced as well to this mysterious truth PRAYER to God in the name of Jesus Christ.Prayer is simply talking to God from your heart.Later find you a bible and lastly find a church.Church is not a perfect place. Its a place where all types of people go with all types of problems to learn what the bible says and worship God. There you will find answers to alot of questions tou have.Investigate churches maybe online Or TBN.If you take the challenge if you accept my dare I guarantee you your life is never going to be the same. Oh..and you dont even have to feel anything overwhelming but what you do have to do is simply open your mouth and talk to God and HE will listen to you. What do you have to lose? No one has to see you..Lastly I decided to write to you because I believe your life is not over and there is an important mission you must complete here on earth.You can not Give up or die yet.Thank you for your contribution to the military and for reading patiently.May Almighty God bless you and your family. Take the challenge and watch how you will understand the true meaning of life.

       

       

  • megancollins33
    Mar. 06, 2013

    I wish that I had found this discussion forum a few years ago when I started going through these issues. I broke my hip in 2009 and thats when I had the first surgery on my hip. About a year later I started experiencing crippling pains in the same leg. I went back to my hip Dr and it took a few months before he diagnosed me with AVN and at that time...

    RHMLucky777

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    I wish that I had found this discussion forum a few years ago when I started going through these issues. I broke my hip in 2009 and thats when I had the first surgery on my hip. About a year later I started experiencing crippling pains in the same leg. I went back to my hip Dr and it took a few months before he diagnosed me with AVN and at that time I had quite a bit of collapse. He referred me to a Dr who does free vasularized bone grafting. I had that surgery in January of 2012 and the recovery was verrrrry long. I was on crutches for about 6 months while the graft healed and then started to slowly become full weight bearing. I felt great for the first few weeks but then slowly the pain started to return. I just went to my one year check up and my Dr told me that I now need  total hip replacement. I am very nervous since the last two surgeries haven't worked. I am also concerned that I am 24 and that I will need to have several more surgeries throughout my life since each hips last anywhere between 12 to 18 years. Has anyone had the same problem with the free vasularized fibular grafting surgery? Anyone had a total hip after this surgery?

    • deborama2
      Mar. 21, 2013

      They tried a similar surgery on me before my total hip.  It didn;t work.  GET YOUR HIP DONE!! I got a total hip replacement 2 years ago and it was the best thing ever.  I think the new hipa are supposed to last longer than you have stated.  I am 49 and the Dr. told me that mine would last for the rest of my life.  

      I am so sorry that...

      RHMLucky777

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      They tried a similar surgery on me before my total hip.  It didn;t work.  GET YOUR HIP DONE!! I got a total hip replacement 2 years ago and it was the best thing ever.  I think the new hipa are supposed to last longer than you have stated.  I am 49 and the Dr. told me that mine would last for the rest of my life.  

      I am so sorry that you have had so much difficulty!! I think a total hip is the way to go.  I have a big scar, but who cares!  I got ris of that horrible pain!  

      Keep me posted and good luck!!

    • megancollins33
      Mar. 21, 2013

      That is great to hear you have recovered so nicely after your total hip! My last two hip Dr's made having total hip sound like the worst possible option. The last one even compared it to a used car that your grandma gave you with 100,000 miles on it. I was so skeptical until I went to actually meet with a Dr who does total hips. The first bit of great...

      RHMLucky777

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      That is great to hear you have recovered so nicely after your total hip! My last two hip Dr's made having total hip sound like the worst possible option. The last one even compared it to a used car that your grandma gave you with 100,000 miles on it. I was so skeptical until I went to actually meet with a Dr who does total hips. The first bit of great news was how quickly I would recover. My other Dr's told me I would never be able to run or hike or do anything too active because it would wear down my hip too fast. They also said it would only last 12-18 years. The amount of misinformation was ridiculous! The total hip Dr expained I will be able to jog up to 5K and hiking will not be an issue. I will also have NO pain and way more range of motion. The hips he has been using are expected to last about 20-25 years! Needless to say I scheduled my hip replacement that day and will go in for sugery in the middle of April! I am very excited and hope everything turns out as expected. I will let you know!

    • deborama2
      Mar. 22, 2013

      Go girl!!!  I am so happy for you.  Seriously you will do just fine!!  

      Take care

      Cheers

      Laughing

    • deborama2
      Apr. 17, 2013

      Megan:  You will not regret your decision.  You have to go through a bit of discomfort (well maybe a little bit more than that:)  )  but you have been through the worst!!  I wish you nothing but success!!!!  

      Please do let me know!

      Cheers

      Deb.

  • Anonymous
    susan
    Jul. 24, 2012

    i have avn of the left hip. i have had it since 1985 and so i am on the back end of replacing this thing. its really hard kt come to this decision as i have a autistic son .  i am extremely overweight and i am really concerned as to how much i need to lose. since its more than 100 pounds and i have thyroid disease and struggling with menopause i just cant...

    RHMLucky777

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    i have avn of the left hip. i have had it since 1985 and so i am on the back end of replacing this thing. its really hard kt come to this decision as i have a autistic son .  i am extremely overweight and i am really concerned as to how much i need to lose. since its more than 100 pounds and i have thyroid disease and struggling with menopause i just cant seem the scale to budge atall. it seems the less i eat i see the scale to move but its so hard to keep it going. everything seems to depend on losing weight for this  hip surgery. i dont have any family help and so its hard to figure it all out. just me and my husband.

     

    i need to figure out about how many calories i really need to lose to get going with since i have to see my orthopedic surgeon in september.

    • deborama2
      Jan. 22, 2013

      Hello I am so sorry to hear of your struggles!  It is so hard to lose wieght let alone have thyroid disease and going through menopause at the same time.  You might want to work with your Dr. to fine tune your HRT if you are on it and your thyroid medication to make sure you are on the right doses.  

      Getting my hip replacement was the best thing...

      RHMLucky777

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      Hello I am so sorry to hear of your struggles!  It is so hard to lose wieght let alone have thyroid disease and going through menopause at the same time.  You might want to work with your Dr. to fine tune your HRT if you are on it and your thyroid medication to make sure you are on the right doses.  

      Getting my hip replacement was the best thing that I ever did.  I do have some discomfort at times but it is nothing compared to what I went through waiting for the hip replacement.

      Good luck with your quest! 

    • susan81354
      Jan. 22, 2013

      thanks for your comment deborah. i take synthroid for my thyroid and my tests have been great as far as that goes. in fact i have a thyroid appt soon and he always keeps tabs on me.

      i am sure with the menopause symptoms

       i still have  hormone changes is part of the deal. its just really the weight gain that has me flustered. i thought about re joining...

      RHMLucky777

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      thanks for your comment deborah. i take synthroid for my thyroid and my tests have been great as far as that goes. in fact i have a thyroid appt soon and he always keeps tabs on me.

      i am sure with the menopause symptoms

       i still have  hormone changes is part of the deal. its just really the weight gain that has me flustered. i thought about re joining weight watchers but with the issues i have i wasnt sure if i would be successful. it just seems the less i eaqt the better my weight loss is. i know ppl say you should eat more often to keep  your metabolic rate up but for me it doesnt seem to work that way. i have to almost starve to get the scale to move.

       

      my level of pain is so severe now and i have to see him in april but my son(who is autistic)  gets out of school in may. i am just worried about doing it as heavy as i am. i weigh more than 300 and so thats why i am scared. what about your recovery? how did that go and how long did it take? care to share?

       

      susan

  • Stephiekay
    Jul. 10, 2012
    Hi deb! Im so happy to read your struggles with avascular necrosis and decompression surgery. Im sorry your struggling but im so happy to have found you-i have it too and just had decompression surgery last week! Im misraeble! Nothing cuts the pain and the dr said they wont know until months from now if it worked. I have a walker now as i fell with my crutches...
    RHMLucky777
    Read More
    Hi deb! Im so happy to read your struggles with avascular necrosis and decompression surgery. Im sorry your struggling but im so happy to have found you-i have it too and just had decompression surgery last week! Im misraeble! Nothing cuts the pain and the dr said they wont know until months from now if it worked. I have a walker now as i fell with my crutches so they dOnt trust me Im hoping to walk again aug 13 but we also had some shocking news the dr said today i have it in my right hip too and would need to discuss it in aug. no way! I too feel lost, alone, in pain, just misraeble. Everyone all says oh just deal with it and tryto be positive! Well you be positive when you cant walk, are in horrible pain and deal with as much as i do!! I have had a kidney transplant, my right lung removed, i have invasive aspergillus and many more health problems and i wonder-when will it end??? I havent done anything that bad in life that youd want any of my health issues Find me on facebook, would love to be able to keep up with you and maybe we can work together to figure out whats best in our painful lives :)
  • Yaisa Hagood
    Mar. 21, 2012

    I learned I had AVG in my right hip in September. I had core bone decompression six weeks ago. Now trying to walk without crutches for the past few days is still painful. The movement is not normal and I am bent over. I hope this gets better. I am only 34.   

    • deborama2
      Mar. 22, 2012

      Best wishes with your recovery.  I had a core decompression which was unsuccessful.  I had a hip replacement 8 months later with great success. 

      Cheers, happy healing!!

  • Shawnea
    Jan. 20, 2011

    Hi, my name is Shawnea and I was recently diagnosed with AVN in my hips. Last week I had a core decompression surgery done on my left hip. I was told by the dr that about 3-4 days after surgery I should start noticing the pain gettin alot better. Well, its been a week and I am in so much pain I barely sleep at night. So my question is how long should I expect...

    RHMLucky777

    Read More

    Hi, my name is Shawnea and I was recently diagnosed with AVN in my hips. Last week I had a core decompression surgery done on my left hip. I was told by the dr that about 3-4 days after surgery I should start noticing the pain gettin alot better. Well, its been a week and I am in so much pain I barely sleep at night. So my question is how long should I expect to be hurting like this? Or is this maybe a sign that the surgery didn't work?

    • deborama2
      Jan. 20, 2011

      I so hope and pray for you that the decompression was successful.  If you can't sleep from the pain I would definitely go see your physician again.  My decompression seemed to work in the beginning, but as time went on it was apparent that it wasn't.  Good luck to you.  Please keep me posted!

      Deb. Smile

    • absofbeer
      Feb. 15, 2011

       I also have AVN in both hips.. In November I had a Core Decompression on my left hip.. it relieved the pressure and felt pretty good while on crutches. I am now about 13 weeks since the procedure.. My pain is just about as bad as it was.. I am really stiff and achy after I sit to long and it makes me walk with a limp.. There sometimes a certain way that...

      RHMLucky777

      Read More

       I also have AVN in both hips.. In November I had a Core Decompression on my left hip.. it relieved the pressure and felt pretty good while on crutches. I am now about 13 weeks since the procedure.. My pain is just about as bad as it was.. I am really stiff and achy after I sit to long and it makes me walk with a limp.. There sometimes a certain way that I move that makes my hip almost give out... I think it is the dead spot on it??

       

       Anyways.. My pain from the surgery lasted about a week and I didn't feel very much AVN pain.. Is it the exact same pain from before the surgery you feel?? AVN Pain? Or is it that the bone was drilled and the incision pain? 

       

       Bill in Indiana

    • Anonymous
      arenea
      Mar. 19, 2011

      Hi Shawnea. I am Adriane a 32 year old who has SLE (Systemic Lupus Erthyrmatosos) and as I result of taking steroids I too was diagnosed with AVN. I had to undergo a total hip replacement February of 2010.  It was alot of work rehab and all but my hip is wonderful.  But in January 2011 I was diagnosed with it in the left hip.  So my doctor suggested...

      RHMLucky777

      Read More

      Hi Shawnea. I am Adriane a 32 year old who has SLE (Systemic Lupus Erthyrmatosos) and as I result of taking steroids I too was diagnosed with AVN. I had to undergo a total hip replacement February of 2010.  It was alot of work rehab and all but my hip is wonderful.  But in January 2011 I was diagnosed with it in the left hip.  So my doctor suggested Core Decompression since it was detected at an early stage. I had the procedure done February 4,2011.  I noticed that about 2 weeks post op I started getting some relief.  I could move my hip and had a great painless range of motion.  I just got off crutches 2 days ago (after a looong six weeks) and last night i was hurting so bad till i couldn't hardly walk.  They said my xrays looked great and i was ok to walk but i don't know what is happening.  Has anyone experienced this?? I am getting a little nervous.

    • Anonymous
      Anonymous
      Mar. 28, 2011

      Hi Everyone,

       

      I am a 32yo female.  I was diagnosed with AVN of the right femoral head in 2001 while in the US army.  I underwent a Free Vascularized Fibula bone graft and the surgery is deemed a sucess...I guess.  The femoral head looks great now and no signs of collapse.  

      Why do I still have constant radiating pain in my right leg...

      RHMLucky777

      Read More

      Hi Everyone,

       

      I am a 32yo female.  I was diagnosed with AVN of the right femoral head in 2001 while in the US army.  I underwent a Free Vascularized Fibula bone graft and the surgery is deemed a sucess...I guess.  The femoral head looks great now and no signs of collapse.  

      Why do I still have constant radiating pain in my right leg still?  I know i have sciatic issues a bit, and some bursitis on by the incision site on my hip...

      Its like a gigantic tooth ache but in my leg.

      I never talk about it much, because I would just sound like a broken record to those around me.  But yet at the same time...I feel like I am not validated as having this invisible disability.  I have 3 small children under the age of 5, and my limatiations are become more apparent as they grow.  "Run with me Mommy!"....yeah...thats a hard one to hear.

       

      I hope wish you all well and hope to hear more about all of you.

       

      Warmly,

      Sabrina

    • Anonymous
      nick
      Oct. 02, 2011

      I too am in the army and  was diagnosed about a month ago. i should be getting surgery here in about two weeks. what should i expect post op? im a little scared.ive heard all too much on how this surgery dosent work. some doctors wont even perform this surgery. any info would be appreciated. thanks 

                  ...

      RHMLucky777

      Read More

      I too am in the army and  was diagnosed about a month ago. i should be getting surgery here in about two weeks. what should i expect post op? im a little scared.ive heard all too much on how this surgery dosent work. some doctors wont even perform this surgery. any info would be appreciated. thanks 

                                                                                                     nick

    • MaineMamarazzi
      Oct. 02, 2011

      Hi Nick,

      So sorry to hear about your diagnosis.  Do you know the cause of your AVN?  What stage are you in? 
      The army misdiagnosed me for a while, saying it was just a femoral neck stress fracture..then they decided to finally give me an MRI..and OOPS, your bones dead!!

      Gee thanks!

      Where are you located.  I had my FVFBG done at Brooke Army...

      RHMLucky777

      Read More

      Hi Nick,

      So sorry to hear about your diagnosis.  Do you know the cause of your AVN?  What stage are you in? 
      The army misdiagnosed me for a while, saying it was just a femoral neck stress fracture..then they decided to finally give me an MRI..and OOPS, your bones dead!!

      Gee thanks!

      Where are you located.  I had my FVFBG done at Brooke Army Medical center.  I was the FIRST one done there!!!  So I was their gunieau pig :-)

      Recovery sucked!  Especially waking up from anestesia. 
      You will have drainage tubes in your leg for a few days....and foot pumps to keep circulation going.  The worst part is when they take out the thin drainage tubes.

      You will have physical therapy...that was rough.

      So if you just get through the first few days...you will be fine.  Its just rough in the beginning. 
      I took con. leave and came home to recover for a month.  I was in wheelchair and crutches for like 6 months!  NO weight bearing.
      THings may have changed, seeings I was the first one done there...so perhaps they have learned more about the procedure.

      I could go on and on.  I would be happy to chat with you via email.

      fitmominmaine at gmail dot com :-)

      warmly,
      sabrina

    • susan81354
      Jan. 22, 2013

      H SABRINA I AM SO SORRY. I HAVE AVN FOR 28 YRS IN THE LEFT HIP AND I HAVE TO HAVE  A HIP REPLACEMENT SURGERY LATER THIS SUMMER, I ALSO HAVE A AUTISTIC TEENAGER AND SO THAT PLAYS INTO THE EQUATION OF THIS TOO AND NO FAMILY HELP. I CANT IMAGINE HAVE A LOT OF CHILDREN. I WISH YOU THE BEST SABRINA. TAKE CARE.

  • Anonymous
    VLT
    Jun. 01, 2010

    My husband is 4 month Post-op AVN Right Hip Core Decompression.  He was doing great on crutches and in physical therapy.  All of the sudden, in the last month he has developed hip pain again and groin pain..any idea?  Is this normal or should he go back to the surgeon?

    Thanks for any input

    God Bless!

    Vanessa

    • deborama2
      Jun. 02, 2010

      Hello, so sorry your husband is dealing with this awful condition.  I suggest he definitely goes back to the surgeon.  This is what happened to me as well I had the decompression August last year and the pain slowly but surely started creeping back.  January it was back to where it was before the procedure.  I saw the surgeon in Jan and...

      RHMLucky777

      Read More

      Hello, so sorry your husband is dealing with this awful condition.  I suggest he definitely goes back to the surgeon.  This is what happened to me as well I had the decompression August last year and the pain slowly but surely started creeping back.  January it was back to where it was before the procedure.  I saw the surgeon in Jan and I am now the proud owner of a new hip.  I had a total left hip replacement April 29th.  I am  doing and feeling awesome!  I wish that we did this in the first place, but I know the decompression works on some people, but I wasn't one of them. 

      Please stand your ground and be persistent.  I did see the surgeon a few times before Jan and I had to keep going back.  I wish you luck and a solution to your husband's discomfort.  AVN pain has been equated with bone cancer in it's comparison of level of pain. 

      Take care

      Deb. 

    • Anonymous
      VLT
      Jun. 02, 2010

      Thanks so much for replying to my post!  Your insight helps a lot.  I'm glad to hear that you are feeling much better after your hip replacement.  Take Care and God Bless!

      Vanessa

  • Anonymous
    AprilDawn
    Jan. 31, 2010

     I am 27 and I was diagnosed w/ AVN in 2007. I have seen an orthepedist 3 times, and a speciailist once throughout this whole process. Not because I'm not exsperiencing pain, but because I have no health insurance and cannot afford the high cost of having this disease. I struggle every day to mentally manage the pain, put it in the back of my mind, so...

    RHMLucky777

    Read More

     I am 27 and I was diagnosed w/ AVN in 2007. I have seen an orthepedist 3 times, and a speciailist once throughout this whole process. Not because I'm not exsperiencing pain, but because I have no health insurance and cannot afford the high cost of having this disease. I struggle every day to mentally manage the pain, put it in the back of my mind, so I can try to have as normal and fun of a day as possible. I don't go out much at all anymore and yes, I'd say my whole personality has changed from this. Yet, I choose to think of having AVN as just something that I have to deal with, and when I think about it I know that it could always be a whole lot worse! Smile

    • deborama2
      Feb. 06, 2010

      Wow you have an amazing outlook!  I am so sorry that you don't have medical care.  I so hope for your country that some form or universal health care is developed.  I live in Canada and even though we have wait lists I am so grateful that I have access to health care.  I just don't understand the system in the US.  The movie Sicko was...

      RHMLucky777

      Read More

      Wow you have an amazing outlook!  I am so sorry that you don't have medical care.  I so hope for your country that some form or universal health care is developed.  I live in Canada and even though we have wait lists I am so grateful that I have access to health care.  I just don't understand the system in the US.  The movie Sicko was an eye opener for sure.  I hope your pain isn't too severe Aprildawn. 

      As in my previous post I have to have a hip replacement.  The wait is supposed to be 6 monthsCry but I hope I can get in sooner. 

      Hope you are able to manage your pain.  Cheers

      Debo

    • jeff lazenby
      Feb. 15, 2011

      I too have avascular necrosis of both hips. My right femoral head has collapsed and usually the pain is intense. I have no health insurance and the pain of working was finally too much. I have dealt with this for a little over two years and the pain never seems to go away. My doctors will not give me any pain meds. They say i'm too young for hip replacement...

      RHMLucky777

      Read More

      I too have avascular necrosis of both hips. My right femoral head has collapsed and usually the pain is intense. I have no health insurance and the pain of working was finally too much. I have dealt with this for a little over two years and the pain never seems to go away. My doctors will not give me any pain meds. They say i'm too young for hip replacement and just deal with it . I was told to get a sit down job, but with no skills in that type of field it seems hopeless trying to find a job like that. I don't know what is going to happen over the next couple of years but I worry every day that I will end up homeless walking around with a cane looking like a freak. I hope others with this do not have problems like I do.

    • lynda
      Aug. 29, 2011

      Hi there..I'm so sorry to here your story and others..I too have AVN and have had it since 2/10 and have been back and forth to soo many docs. I am now on a waiting list for approx 1 1/2 years before they get to my name and then at that time set a appt which takes some additional time (lady at hospitlal explained)..Ito speak with a surgeon. I was...

      RHMLucky777

      Read More

      Hi there..I'm so sorry to here your story and others..I too have AVN and have had it since 2/10 and have been back and forth to soo many docs. I am now on a waiting list for approx 1 1/2 years before they get to my name and then at that time set a appt which takes some additional time (lady at hospitlal explained)..Ito speak with a surgeon. I was given info to call for status on the waiting period to see where I am on the list in the meantime. I called last week to get an update and the lady told me that there was a man that has been waiting for 7 years for a hip replacement...ARE YOU KIDDIN ME!!!..I am only 50 and very young at heart and all around. I HATE this and am at the end of my rope. I have 2 grown children and 2 grandkids..this really is sad..and what the worst part of all of this is the HELP and the misconception of this disease and the damage thats being done while walking or stressing on the hip..not good...maybe we all should get our crutches and wheel chairs..etc and stand in front of Mr.Obama's sorry blank and see if he'll take us on his next destress vacation...whatcha think?....yes I am bitter especially when I see people like myself hurting and struggling. Not only does this affect our lives but our families and friends...I don't know about you but I'v used alot of my please's and sorrys and help me please till I'm sick of hearing myself.

      Oh I could go on and on and I am but for now I will just say if you want to be updated on my findings on this journey with AVN..look out for my posts!..

      I hope everyone with this keeps the faith and DO NOT take the pain pills unless you really have to try something else...this will cause you another problem...pain pills once in a while but daily..NO WAY...I have seen bad situations come of this.

      Thanks for reading....Buffy with a smile..Cool stay positive...share a smile

    • jeff lazenby
      Oct. 14, 2011

      thnaks for sharing your stories with me. I dont know why more isnt known about avn. I went agian to the doctor last week and heard the same response. I know that you have pain and I know you need a hip replacement but your only 40 so at 60 you will need another one which will be much worse. At 40 years old,  i would like to live life again not be a shutin...

      RHMLucky777

      Read More

      thnaks for sharing your stories with me. I dont know why more isnt known about avn. I went agian to the doctor last week and heard the same response. I know that you have pain and I know you need a hip replacement but your only 40 so at 60 you will need another one which will be much worse. At 40 years old,  i would like to live life again not be a shutin and worry about falling or moving a certain way that makes my eyes water from the pain . I do not want pain managemnet I want to be fixed. I hope soon the medical profession will take this seriously because I belive that avn can be a disabling condition. It is with me, I cant even  find work because employers see me walk in to an interview limping and with a cane and i can tell it was a waste to even go to it. Good luck to everyone on this site and lets all hope things will bae better in the future, because we could all use some good news.

    • susan81354
      Jan. 22, 2013

      HI JEFF,

       

      I HAVE AVN AND HAVE DEALT WITH IT FOR ALMOST 30 YRS. I KNWO ITS HARD TO BELIEVE BUT I AM ON THE BACK END OF THE ISSUES WITH IT. I HAVE A UTISTIC SON AND SO IT COMPLICATES ME HAVING SURGERY AND WITH NO FAMILY ITS A TOUGH ONE TO CALL.. I DONT KNOW YOUR SITATION PERSONALLY BUT HAVE YOU THOUGHT OF APPLYING FOR A MEDICAL CARD THROUGH THE STATE....

      RHMLucky777

      Read More

      HI JEFF,

       

      I HAVE AVN AND HAVE DEALT WITH IT FOR ALMOST 30 YRS. I KNWO ITS HARD TO BELIEVE BUT I AM ON THE BACK END OF THE ISSUES WITH IT. I HAVE A UTISTIC SON AND SO IT COMPLICATES ME HAVING SURGERY AND WITH NO FAMILY ITS A TOUGH ONE TO CALL.. I DONT KNOW YOUR SITATION PERSONALLY BUT HAVE YOU THOUGHT OF APPLYING FOR A MEDICAL CARD THROUGH THE STATE. YOUR DR WOULD PROBABLY TELL THEM YOUR SITUATION AND SOUNDS LIKE YOU WOULD BE ELIGIBLE. PLEASE TRY AND MAYBE IT WOULD HELP. WHAT ABOUT SOCIAL SECURITY?

  • Anonymous
    Goodhope
    Dec. 05, 2009

    Hi, I was diagnosed with avascular necrosis of the femur about nine months after incurring what I thought was a severe groin strain during a Krav Maga training session.  I had a core decompression in March, 2007. The sharp pain decreased considerably over the first year. I hope that yours will as well. However, I still have pain in my groin every day....

    RHMLucky777

    Read More

    Hi, I was diagnosed with avascular necrosis of the femur about nine months after incurring what I thought was a severe groin strain during a Krav Maga training session.  I had a core decompression in March, 2007. The sharp pain decreased considerably over the first year. I hope that yours will as well. However, I still have pain in my groin every day.  Moreover, within the last four months, I have developed pain radiating down my leg and centering in my calf that, at times, feels like a "toothache".  It is possible that the radiating pain may be caused by my sciatica nerve and not have anything to do with avascular necrosis.  Unfortunately, I don't know.

    I returned to my orthopedist last week and was pleased that an x-ray showed no sign of collapse.  My  orthopedist, whom I believe to be highly qualified, said that there is very little chance of the hip collapsing in the future. However, he does not know what is causing the groin pain and the more recent radiating pain. He suggested that we could try a cortisone shot to relieve the pain, but I refused knowing that it is not curative. I have tried Celebrex which partly relieve the pain. However, I am concerned with its possible long term effect and it's expensive as well. Pleased that I will not need a hip replacement in the near future, I have decided not to medicate and do my best to live with the pain.

    • deborama2
      Feb. 06, 2010

      Sorry it has taken me so long to reply.  My major symptom was and still is groin pain.  I also get the calf pain as  well.  The core decompression didn't work for me.  It helped for a while and then at the beginning of January the severe pain started again, just like it was before the procedure.  I am now waiting for a partial...

      RHMLucky777

      Read More

      Sorry it has taken me so long to reply.  My major symptom was and still is groin pain.  I also get the calf pain as  well.  The core decompression didn't work for me.  It helped for a while and then at the beginning of January the severe pain started again, just like it was before the procedure.  I am now waiting for a partial hip replacement.  They want to replace just the femur.  I am relieved as this will fix the problem and then I will be able to go back to work and not be in constant pain all the time.  I am so surprised the Dr. wants to give you a cortisone shot as this is one of the reasins why people develop this disease in the first place.  I have had 2 cortisone shots before it was diagnoised and now they won't give me anymore due to the necrosis.  I wish you well and hope everything is healing and the necrosis isn't returnning.  Cheers!Laughing

    • Anonymous
      brad
      Dec. 13, 2010

      hello,

       

      i am 34 and was  diagnosed with avn on both hips a year ago.  Ive been to four doctors and have one surgery (core decompression) with no success to releive the pain.  How do you deal with the pain.  I have fallen back on pain meds, and even with them have a hard time dealing with the pain.  I wish someone could...

      RHMLucky777

      Read More

      hello,

       

      i am 34 and was  diagnosed with avn on both hips a year ago.  Ive been to four doctors and have one surgery (core decompression) with no success to releive the pain.  How do you deal with the pain.  I have fallen back on pain meds, and even with them have a hard time dealing with the pain.  I wish someone could help.  I wish the pain would go away.

       

       

    • deborama2
      Dec. 16, 2010

      I too had a core decompression to my left hip.  At first it helped, but 4 months after the pain gradually crept back.  I am now the proud owner of a new hip, I had a total hip replacement at the end of April of this year, and now I am returning to work gradually.  I am very lucky this is what I needed.  By the time I had my hip replacement...

      RHMLucky777

      Read More

      I too had a core decompression to my left hip.  At first it helped, but 4 months after the pain gradually crept back.  I am now the proud owner of a new hip, I had a total hip replacement at the end of April of this year, and now I am returning to work gradually.  I am very lucky this is what I needed.  By the time I had my hip replacement I was in pain for 2 years.  these were 2 of the worst years of my life.  The pain of avascular necrosis has been equated with bone cancer due to it's severity.  I so hope for you that hip replacements are in your future.  It was the only thing that cured me.  I thought I was never going to get better or ever go back to work again.  

      Be assertive in your quest for an orthopod to help you.  DONOT let them write you off as chronic pain.  The deciding factor for my surgeon was an injection of marcaine into my hip under fluroscopy.  This is done in the xray department by a radiologist.  It is a diagnostic way of determining if a hip replacement is needed.  Good luck to you.  I am so empathetic to your pain.  It is all consuming and never completely goes away.  Be strong and assertive!!!!!  I hope you get the help you need!  Please keep me posted.  

      Take care

    • Gai
      Gai
      Nov. 05, 2013

      I had Hip decompression 3mths ago and have been non weight bearing until 2wks ago,started walking with one crutch, now the pain in my groin and the "fire like" pain is back in my knee. My Orthopod said if the pain returned he would have to do a hip replacement  - thats the last thing I want. But I am so sick of this pain which I have had for over a year...

      RHMLucky777

      Read More

      I had Hip decompression 3mths ago and have been non weight bearing until 2wks ago,started walking with one crutch, now the pain in my groin and the "fire like" pain is back in my knee. My Orthopod said if the pain returned he would have to do a hip replacement  - thats the last thing I want. But I am so sick of this pain which I have had for over a year before it was correctly diagnosed and can not face having to use crutches again and being so dependant on others. What should I do, I am desperate this pain is killing me and I am scared

    • Prav
      Oct. 18, 2011

      Hello Brad,

      What is your situation now ,how is your pain ....did u undergo the surgery..pls reply

      Thanks

      Regards

      Prav

       

  • Betty Boop Too
    Nov. 26, 2009

    Hey Debo

     

    I'm so happy I ran onto your sharepost this evening.  I hope you had a Happy Thanksgiving, but I'm not sure this is a holiday in Canada, but Hope you had a good day anyhow. Wink

     

    I'm sorry to hear of your continued struggles and sincerely hope that you find some resolution to your pain issues.

     

    Hope to see you around, much love...

    RHMLucky777

    Read More

    Hey Debo

     

    I'm so happy I ran onto your sharepost this evening.  I hope you had a Happy Thanksgiving, but I'm not sure this is a holiday in Canada, but Hope you had a good day anyhow. Wink

     

    I'm sorry to hear of your continued struggles and sincerely hope that you find some resolution to your pain issues.

     

    Hope to see you around, much love and many hugs dear friend

    Take care

    Betty

    • Anonymous
      hevans
      Jan. 19, 2013

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is...

      RHMLucky777

      Read More

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is my only option. I spent one week in bed in total panic mode (fetal position).......................

       

      I'm so frightened but I have to do something for the pain. My son is a nurse and says I'm crazy to have surgery. somebody pray for me..

    • susan81354
      Jan. 22, 2013

      MY NAME IS SUSAN AND I HAVE HAD AVN FOR ALMOST 30 YRS. I HAVE YET TO HAVE THIS SURGERY BUT I HAVE TO BREAK DOWN AND DO IT LATER THIS YR. I AM THE SAME WAY. SLEEPING IS MURDER FOR ME TO. I HAVE TO NOW USE A ROLATOR AND AW HEELCHAIR IN THE HOUSE AND CANT HAVE CARPETING. I NEED TO LOSE MORE THAN 100 POUNDS AND SO I AM MORE SCARED ABOUT DOING IT AT THIS WEIGHT....

      RHMLucky777

      Read More

      MY NAME IS SUSAN AND I HAVE HAD AVN FOR ALMOST 30 YRS. I HAVE YET TO HAVE THIS SURGERY BUT I HAVE TO BREAK DOWN AND DO IT LATER THIS YR. I AM THE SAME WAY. SLEEPING IS MURDER FOR ME TO. I HAVE TO NOW USE A ROLATOR AND AW HEELCHAIR IN THE HOUSE AND CANT HAVE CARPETING. I NEED TO LOSE MORE THAN 100 POUNDS AND SO I AM MORE SCARED ABOUT DOING IT AT THIS WEIGHT. CARE TO SHARE?

    • Gimp22
      Apr. 17, 2013
      I have AVN in my right hip and have had it for almost 4 years (I also have hip dysplasia in both hips, right worse than left). After days of barely being able to walk and nights of agonizing pain, I finally got help. Since January I have been on a waiting list for a bone donor. I will be having a PAO for my hip dysplasia and a bone graph for my AVN. They say...
      RHMLucky777
      Read More
      I have AVN in my right hip and have had it for almost 4 years (I also have hip dysplasia in both hips, right worse than left). After days of barely being able to walk and nights of agonizing pain, I finally got help. Since January I have been on a waiting list for a bone donor. I will be having a PAO for my hip dysplasia and a bone graph for my AVN. They say its a hard recovery but at the point I'm at, its the only way to try and make it better. If when they get into my hip and realize they don't need the donor, they will be just drilling holes into the top of my femoral head so that the blood circulates through my bone and starts to heal on its own.
    • Hevans
      Apr. 17, 2013

      WOW, this is new information for me. I just got home from my 5th Ortho Surgeon for an opinion. I don't want to get caught up in the system with hip replacement after hip replacement. AVN in both hips............hyperbairic chamber has helped with the pain but I pretty much have to go everyday and it's not covered by insurance. What is PAO?

    • Gimp22
      Apr. 17, 2013
      A PAO is a periacetabular osteotomy, for the dysplasia. They will cut my hip bone, shift it, and screw it in. PAO's are done to delay the need for a hip replacement, preserves my own hip. Adds about 20+ years to my own hip.
    • Hevans
      Apr. 17, 2013

      Thanks for that info..............I'm going to check into it. I'll do anything to prolong hip surgery.........................God Bless you and I pray you have a good outcome. This is a lonely place to be...............in pain and life just goes on for everyone else............

    • Anonymous
      VR
      Nov. 05, 2013
      Hi, I was diagnosed with Hip AVN in 2008 when I was 28. I had my first baby and fell v. Sick at the time, and Drs gave me Prednisone steroid medicine and with that, I developed AVN. I had core decompression done on my left hip in June 2009 and 4.5 yrs later I got my MRI done and see some improvement. I do see help in my case. I have also been taking homeopathic...
      RHMLucky777
      Read More
      Hi, I was diagnosed with Hip AVN in 2008 when I was 28. I had my first baby and fell v. Sick at the time, and Drs gave me Prednisone steroid medicine and with that, I developed AVN. I had core decompression done on my left hip in June 2009 and 4.5 yrs later I got my MRI done and see some improvement. I do see help in my case. I have also been taking homeopathic meds from India as I wanted to try any Non surgical option out there. I want to get as much time as possible to avoid hip replacement as its not a once in lifetime deal. It gave me almost 5 yrs Sonu would recommend core decompression if your AVN is 30% affected and I'm thinking about core decompression but don't know if that is going to help me, yet to see a hip specialist on it. Just wanted to share my experience with you all if it helps. Nothing is like real bone so I didn't want hip replacement until 40yrs age atleast, Gotta see.
    • Anonymous
      hevans
      Jan. 19, 2013

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is...

      RHMLucky777

      Read More

      I was diagnosed wwith AVN 4 months ago and after seeing 4 Dr;s I've been told that only way to rid myself of the pain (my left left bone aches and cramps daily.) is to have to have a total hip replacement (both hips) I sleep maybe 3 hours a night. the worst thing for me is to lay down. the worst thing is to stand up.

      I've come to the realization that this is my only option. I spent one week in bed in total panic mode (fetal position).......................

       

      I'm so frightened but I have to do something for the pain. My son is a nurse and says I'm crazy to have surgery. somebody pray for me..