Friday, June 01, 2012

I had my "trial" morphine pain pump done on 05/20/10 ~

By flowerstogo Saturday, May 22, 2010

I had a spinal surgery on 07/09/01 for degenerative disease at L4/L5 & L5/S1. I had a Stephe plate implanted at that time. My life was forever changed this day. I was diagnosed very shortly afterward with "failed spinal surgery", RSD and chronic pain since this day to present. I've been on oral meds for going on 9 yrs this summer. In 2002, I had a DCS implanted, which helped greatly with "masking" the pain, but never taking the pain away. Still with the DCS and oral meds, I had to end a 28.6 yr career. Having this chronic pain has changed my life immensly! When I was offered the chance to have the DCS implanted, I was given the choice of the DCS or the morphine pain pump. I was scared to death of the word "morphine pain pump" and quickly assumed that with this, I would get "addicted" to the morphine and wasnt sure I wanted to go that route. I choose the DCS (dorcel column stimulator). It helped somewhat with the RSD in the left leg, but not so much with the pain in my lower back. After going through so many batteries, new updated versions, etc...in Sept. 2009, I had to have it removed due to scar tissue and an issue of the 16 leads sitting on nerves thus creating even more pain. I spent 80% or more of my day, laying in bed. Along with my oral meds, I also have been on the fentanyl patch for 8 yrs. In March 2010, I had a severely painful blocked bowel, that the surgeon thinks was "partly" to blame on all the oral pain meds that I have to take along with my pain patch. Again, my pain Dr. said I would be a perfect candidate for the morphine pain patch. He feels that this would greatly lessen the chance of a re~occurance of the excrutiating blocked bowel! I researched information, watched the DVD and felt "prepared" to go ahead with the morphine pain pump implanted. This past Thursday, I had the trial done. I have to say, I was extremely, pleasantly surprised! I was kept at the hospital overnight for 23 hr observation, to which I had never thrown up so much in my entire life! Which I understand that this could have happened, because of the change from fentynal to morphine and the side effects of being without my patch along with the dosage of morphine being "adjusted". I understood this and was still ready to procede! The following day I couldn't believe how I felt! I literally went from a constant 9 to 10 (on the pain scale of 0-10) for the last 9 yrs to an easy 2 or 3! And this was just the trial! Somewhere around 2am the following morning......I woke up to an intense pain like no other!

I realized that I had fell asleep and didn't put my pain patch back on, did not take my usual does of night med's because I felt the morphine was still going and didnt want to "overdose", well, everything wore off and now I realized what it felt like to be with NOTHING! I have often asked my husband that I'd been on meds, patches and DCS's for so long, that I wondered what my pain level would be without all of them. I quickly found out! It felt like there was a little person under the PBS (portable blanket support that my husband made for me that holds blankets off of my RSD leg) with an ice pick stabbing my leg, back and neck! That was this morning, now with my oral med's taken, my patch re-applied, my follow up appointment is the 27th to schedule the surgery for the implant. I've waited over a year for it and now, I'm half excited and half scared. I'm not sure which feeling is more over powering at this point. The difference in the pain level was unbelievable! I wished I would have had it done a long time ago. I don't know anyone that has had one. I was directed to this site by a friend and after reading a few of the post, I'm still happy with my decision, but its still scary! I'm looking forward to those days of 2's and 3's after so many many years of 9's and 10's! I'm glad my friend directed me to this site ~

5/26/10 12:00pm

THERE IS NEVER A TRUE  WAY TOO BE PAIN FREE ..YOU ONLY REALLY GOT 2 CHOSES    YOU CAN LIVE WITH OR YOU CAN FIND A DOCTOR WHO UNDERSTANDS.. PAIN IS A TRUE DEC.. AND FOR THE LAST 40 YEARS THEY ARE COMING TO UNDERSTAND THIS, YOU WILL ALWAYS HAVE THE PEOPLE WHO DONT NEED THEM ,BUT THEY TAKE ANYTHING THEY CAN GET THERE HANDS ON, AND THAT MAKES IT HARDER FOR THE REAL PEOPLE WHO ARE IN TRUE PAIN. THE NEXT TIME YOU GO TOO A A DOCTOR FOR PAIN CONTROL AND HE STARTS GIVING YOU A HARD TIME YOU JUST TELL HIM THIS  I HAVE A RIGHT TOO LIVE IN A PAIN FREE BODY AND I SHOULDNT HAVE TOO SUFFER FOR  WHAT OTHER HAVE DONE TO HIM...PAIN IS A TRUE DES.. JUST LIKE A COLD  THE FLU, AND SO ON SO ON . IF UR IN TRUE PAIN YOU WONT GET THAT HIGH FEELING  BUT IF YOU TAKE THEM FOR FUN YOU ARE GOING TOO HAVE  A PROLBEM.. I HAVE BEEN ON PAIN MEDS FOR 22 YEARS IT STARTED IN MY BACK AND ENDED WHEN I GOT HIT ON MY MOTERCYCLE 2 BROCKEN LEGS,HIP,PELVIS,FEMER AND KNEE BROCKEN INTO 8 PEICES ,LEFT ANKLE SO ON SO ON  5 SURGEYSON RIGHT ON RIGHT LEG ANOTHER ON THE WAY      THIS MY FREANDS IS REAL PAIN.....

5/26/10 10:38pm

Wow, gosh MY FRIEND, I'm so sorry for your pain, however, you sound as if your angry at me. I was simply relating my story because I read a post on this site that REALLY helped me and my decision, and I was hoping I could help someone else just the same. YES, TRUE pain is something! I've had over 25 surgeries and THAT is on MY BACK ALONE. That doesnt account for the complete TOTAL KNEE REPLACEMENT on BOTH knees, AT THE SAME TIME (and I'm a girl, and I would think a pretty tough girl at that)!

I didn't mention this before but, I'm in this position because a NUEROSURGEON messed me up ~ BIG TIME! He is the reason why I' am where I am. He NEGLECTED to pay attention to what he was doing during surgery and damaged the nerves to my left leg thus creating RSD AND me not being able to lift my left leg on most days! AND with this, left me with a MESSED UP SPINE, FOR LIFE! I've been to several doctors that have told us to our face.....that dr. messed you up BAD!

Trust me, my friend......I ALSO know pain! And just because I say I "don't want to get addicted" to the med's, doesnt lessen the pain at all. I've worked for law enforcement (in narcotics) for over 28 yrs, I've seen addiction, and I've see TRUE pain....REAL TRUE PAIN......and yet, I still DO NOT WANT THE ADDICTION!

I won't mention this doctor's name because as of last thursday, I had heard that he is NO LONGER PRACTICING, ANYWHERE! And this was a REPUTABLE NUEROSURGEON! We made sure that we had, who we thought was "THE BEST"......but as my hubby says.....SOMEONE HAD TO GRADUATE AT THE BOTTOM OF THE CLASS!

 

I did not post my experiences to gain your opinion on what level my pain is, or even if it is what you call "TRUE PAIN" because you see "my friend", each one of us is a different individual. And while I sincerely feel for ANYONE that has any type of pain, I truly feel worse for you, because I believe you when you say you have "TRUE PAIN" but you "my friend" also seem to have a bit of an anger issue. I'll pray for you sir!

12/24/10 1:32pm

I would love to hear from flowerstogo, now that the pump has ben in awhile. I also have had a L4,5 & S1 fusion and have a D.C.S. I was told by a neuro surgeon a Pump would not work for me. Pain meds & narcotics have side effects for me also, and are not always real effective.  Grand M.

12/25/10 12:57pm

Thank you for reading my thoughts! I hope your having a Merry Christmas today!

 

I had to have that first pump removed because it developed an infection. However, once it healed (the site), the surgeon has re-implanted another on 10/18/10. Once again it developed not so much an infection but rather a "bulge" of body fluid at the base of the spine where the catheter was implanted. So on 11/24/10 the surgeon removed the catheter from that site and implanted it higher along the thorasic area (higher). IT is working MUCH better! No more BULGE! It was something about the pressure in the fluids in the spine that the lower the fluid goes, the higher the pressure was and it was building there. So, as of 11/24/10, its been much better. The dosage is raised about once a week until I get to where it gives me the relief I'll need for my stupid bad back. So far I'm at 1.5 ~ the dr said I'll probably end up at alittle over 2. something.

I can tell you that it's working for me, not sure how it would work for you. But if your not happy with that dr's decision, try another dr. A second opinion never hurts. It's DEFINITELY been worth it so far. My nuerosurgeon told me (before surgery), I' wont lie to hurt, its gonna hurt,,,,,,,he didnt lie. It hurts like hell, but it'll be ok when things heal up and they'll give you something for the pain until your ready for just the straight morphine, which is what I'm getting. I wish you nothing but the best! Keep me informed. ~ I'll help the best I can. I also went to every site I could on the computer and read up on these pumps. I wished I'd done it a long time ago......but its here now and life will be better once things heal up.

take care

 

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By flowerstogo— Last Modified: 12/25/10, First Published: 05/22/10