In all honesty, I have no idea what this site really does, but it seems to help people and at this point I'll try anything. I haven't seen anyone my age at all. I'm 21 and have had endometriosis for 11 years and have gradually developed autoimmune problems and worsening conditions from a spinal birth defect all my life. I started out as a kid that was into every sport. Now it's hard for me to even walk on my own. My friends all found different friends and interests. I can't blame them. It's no fun to try and hang out with someone who spends a quarter of their life bedridden. But it gets a bit lonely. I write a lot. Not about the chronic pain, but about domestic violence and child abuse, which I've also lived through. I hope someday I'll be able to walk more than five minutes without it causing pain, as I've always had a dream of being a cop.
Hello!?Amanda
I am gald to see you have never stopped dreaming. At your age having known suffering through most of your life that is usually the first part of one's self that is stripped away slowly' is the ability to dream. I hope with the medications you take they have a proper group therapy you vist frequently to educate one on what tools are available in adjusting to a dibilitating situation as you grow in life physically and mentally. I have foun group therapy helful and am glad to see how open and honset you are with your current status this helps one find self healing by not hidding from the realities of their condition and limitations. I do urge you to be cautious with the medicines they have you on and that young, it is like they are giving you poision and I know far to well about those meds (oxy & morphn) I spent 7 years on them and at 280mg a day of oxy' it just about ruined my liver and kidney. Thankfuly I got off 'em at the hospital after 28 days and went on to somthing better which you should check into the Duragisic fentnyl Patch . I have to tell you this patch is not as addicitive as those other's and honestly I sometimes never wore it if had had a good 3 days without the withdrawl sickness and owe how my bones ached like on fire (thank God I got off em'). The thing is alot of pain medications actually CAUSE more suffering the body naturally just wants more like anything (food, liquids,ciggeretts,caffine) I mean once those keys in your brain are turned on they cannot be unturned and the body developes more hurt and eventually it will give in to this poision ie..kidney,liver failure and alot of other health ailments. I can honestly attest to this bein that I have not taken any pain medication nor sleeping meds in three years and gave up drinking two years ago as well. I realize how much pain I personally can live with compared to the agony I was in while taking those meds. The challange is to find the tool to deal with this ailment not have medicines cause you other health problems. The one thing you have to consider is longevity and your physical health not the limitation you have, but the abilities to do more in the future and sometimes those meds tend to cause more harm than good; maybe the Fentnyl patch would be less harmful for someone your age?
I found in time with bio-feedback and breathing exercises and like you I am gifted with artistic talents' mine bein a jeweler and I refocus my pain towards creativity and healing works. Your writting is this tool and I hope this gift you have can be shared with the world and that it brings you peace and comfort everyday Amanda. Never stop dreaming or beliving in yourself everything and anything is possible and I and many out here care.
Hope to hear your words again.
Hope this finds you in good spirits this day Amanda!
Sincerley
MB