Wish upon a star~ (something mostly just for fun) ~ with a serious side as well.

Hello to the Knowers of Pain~

I've not yet filled in the "about me" portion of my profile, but for those of you interested rIGHT noW! I have Ehlers Danlos Syndrome, Cranio-cervical Instability, Tethered Cord and POTS as my major illnesses.

My serious question to you all today is~ what do you do with isolation and being disabled? I've gone from being totally athletic, teaching yoga, swimming, dancing, rock climbing, you name it ~ to a hobble around the house with a cane and neck to the waist brace, unable to drive person. (who just happens to have seizures and faints, ect and can't drive) 

I live in a forest, which is Grand~ but have no neighbors or TV. I don't have many willing drivers either~ the few I have are disgruntled at being bothered to say the least, and to tell the truth, my road and the roads in general around here cause enough damage to my already compressed brainstem that I end up being unable to function or in such horrendous pain I can't wait to get home anyway-

I've managed thus far to keep aT my artistic endevors, which considering my loss of dexterity is difficult, but it's something I enjoy- and have found places to share my humble artwork and poetry. I have several 'networkings' of people I would call supportive and those are an absolute God-Send. (one of them is here- if you don't know about it and are in need, check out the Off-Topic section) What else is there~ ???

I have another sharepost up where I share a bit of the feelings of loss- and the opening statement is true really, (no- pity party here ) There's very little in the way of joy~

I'll be really open to hearing any suggestions you all might have- ThankS. (hope you enjoy the poem- it's the just for 'fun' part)

(Star light, Star Bright, First Star I've seen tonight-
I wish I may, I wish I might have this wish I wish tonight)

Wish Upon A Star
~~~~~~~~~~~~~~~~~~

Milkly way charming
tinged silver white
My childhood dreams twinkle,
dazzle in moonlight*

A wished upon star
plummets towards Mars
I reach for another
they all seem so far-

Half waking I'm spell-bound
in time warp lagoon
trying to swim with my
head in the moon

My arms, I have mislaid-
legs, I don't know where they
lay if they're mine or some
part of tomorrow

I watch day dreamers skip ovr'
night dreamers drown in their
star strewn imagined,
elongated sorrows

Pluto laughs heartily
She sees the length of me
borne on the shoulder of angelic wings

My head's still left spinning, I am not
sure who's winning, as I ride
on the fringe of my derelict dreams

I turn just in time to see
massive hands whirl by me,

passing by planets in lullaby tempo~

Catching the burning star, still fiery hot
He hands it to me with a chivalrous nod
I fall to my knees,I am speechless and stunned
"You wished on this star, my Child, did you not!"
I can only reply ~with bashful teardrops~
...that fall into prisms in glorious spots...