Friday, June 01, 2012

Help! Mom is Experiencing Chronic Pain with No Relief in Sight!

By paindrain Tuesday, November 13, 2007

Hello to everyone,

 

I am writing on behalf of my mom, who is 73 years old.  She has chronic pain in her arms, hips, legs, knees and feet.  She does not tolerate oral medications very well at all.

 

My mom has tried physical therapy and chiropractic therapy, neither of which has provided her with any relief.  She once had a chiropractor in Arkansas, who was able to help her quite a bit, but she can't find anyone in Montana who uses the same techniques.

 

I have suggested that my mom try acupuncture, since I got an entire year's worth of relief from migraines, many years ago, by getting acupuncture.  My mom is hesitant to even check into acupuncture, because she is not sure if her insurance will pay for it, nor does she know if she needs a referral from her PCP to see an acunpuncturist.  To be honest, I really feel like my mom is giving up hope of ever getting any relief from the constant pain she feels every day.

 

The doctor did tell my mom she should lose some weight, but she has a hard time doing exercises, due to the pain she is in.  She is not THAT overweight, and she barely eats much, even the ways things are right now.

 

I have read people's posts about pain management clinics and pain pumps.  How would my mom go about checking into these options?  Based on what I have written, do you think these are possible options for my mom?  Are there other options she might be able to try?

 

I appreciate any feedback and suggestions you might have for me (and my mom).  I want so very much for her to get relief from constant pain, and I am at my wit's end on what to do for her.

 

May you have many pain-free days,

 

Kay

11/14/07 9:56pm

Hi Kay,

 I am sorry to hear of your Mom's chronic pain.  There are definitely options she can look into regarding pain relief.  Some of the most common are:

Medications:  there are MANY medications used to help with pain.  From muscle relaxants, anti-depressants (used in lower doses to treat pain), anti-inflammatories, nerve pain medications (commonly medications that are also used for seizures and/or migraine), anti-anxiety medications, and of course, opiates.  

Do you know what types of medications she is on now?  Also, do you know what types of medications she has tried?

There are two types of opiate medications for pain.  One is a short acting medication, and these are the most well known.  Medications like Vicodin, Percocet and Tylenol with Codeine fall into this category. Often, these medications are used for pain that is expected to be short term in nature such as post-surgical pain or a broken bone, etc.  The other category is long acting opiates.  These medications are slowly released into the system over a period of hours or days.  They are prescribed for patients who have had pain for a longer period of time and the pain is not expected to get better in the very near future.  The advantages to long acting opiates are:

1. They last longer so the patient has less up and down of the pain and is less likely to need to 'catch up' to the pain.

2. Less pills to take (and there are also medications that are not pills at all, such as transdermal patches, lollipops, and of course injections).

A lot of the time chronic pain patients take both a long acting medication and a short acting medication for when the long acting med doesn't cover the severe 'flare-ups' of pain that happen throughout the day.  This regimen is very effective and many patients are able to function well despite their pain.

 

Other types of treatments that are available are things like therapy, biofeedback, physical therapy, injections (trigger point injections or spinal/cervical/joint injections),  accupuncture like you mentioned, massage, nutrition counseling, vitamins, relaxation therapy/meditation/yoga/guided imagery, etc.

 

I encourage you to find a pain management specialist in your area.  If her regular doctor or other specialists can not refer you, it is usually pretty easy to find a couple online. Some resources to find them are:

http://www.pain.com - scroll down and to the right you will find their pain clinic locator

http://www.aapainmanage.org/search/MemberSearch.php - American Academy of Pain Management's Member Locator

Universities - Many universities have great pain management clinics/docs

Referrals from Friends/Other Patients - Where do you live? There might be someone here who lives in the same area.

 

In any case, I hope this helps you.  Many patients find that the most helpful approach is a multidisciplinary one, in which they use many different treatment modalities to lessen the pain.  The idea is that the pain will probably not go away, but it will lessen to the point that functioning on a day-to-day basis is not as difficult. 

 

Please let me know if you have any other questions, and feel free to contact me if you need to chat!

Sincerely,

 Stacy

Chronic Pain Connection Expert 

 

 

11/15/07 1:17am
 Dove This is great that you care so much for your mom.  My mom is 73 this month and she is having some painful days. I wish I could help her more but I can't.  She has been there for me and my daughters so much here lately.  I hope that you can find relief for her soon. God bless and keep trying.
11/16/07 8:21pm

It's so wonderful to see you try to find help for mom.  She's a very fortunate woman to have you!

I will say I think Stacy has really given you some great answers to get you started and I second everything she said.

You mentioned something about a pain pump and I wanted to let you know that there is an ongoing discussion in the pain connection forums , with a very knowledgeable fellow that can answer your questions and concerns, regarding the possibility of a pain pump.

You also mentioned that your mother had trouble with pain medications, can you tell us anything about her sensitivites, and maybe we can also help lead you to some different medication sounrces too.

The pain connection forum is here:  http://forums.healthcentral.com/discussion/chronic-pain/forums  Click on this link and then scroll down the page to "General Discussion" and click on that, it will take you to another page that you can view the very long and active discussion with Bob on Pain medication Pumps, you'll have to sign up to ask Bob questions, but that only takes a few minutes and your ready.

I'm so sorry that your mother is enduring so much untreated pain, I can only imagine how horrible it is for her.  I've lived with undertreated pain myself and you do come to a place of hopelessness.  This is not very good for mom's extended health and I pray that you both find her some proper treatment for her pain.

God Bless you both

Betty

11/25/07 4:13am

Hello Betty Boop Too!

 

Thank you so much for responding to my post about my mom.  It is so nice to know that others have advice and suggestions for me to give to my mom.  Of course, I do not mean that it is nice that you all are in constant pain.  I just get so frustrated, trying to help my mom, and not knowing where to turn for help.

 

When it comes to oral medication, my mom is sensitive to EVERYTHING!  Antibiotics make her feel weird (spacey, nauseous); pain pills are the worst for her.  They just make her completely dopey and nauseated.  This is true of pain pills with codeine or just regular NSAID's.  My mom is even sensitive to vitamins and supplements.  In fact, I can't think of any medication that my mom has been put on, that didn't cause her a great deal of discomfort. 

 

She does take Tegretol for some lesions she has on her brain, but she has been on this for years, and her body has more or less adjusted to it.  I think she also takes a low dose of Zoloft and Ativan.  Again, she has been on these for a long time, so the side effects have pretty much diminished over time.

 

Do you know anything about Trigger Point Injections?  Do you think that these might be a viable option for my mom?  I have also suggested that she look into acupuncture, but she is skeptical of it and doesn't know if her insurance would pay for it.  I know I got a year's worth of relief from migraines after I had a round of acunpuncture, a long time ago.  It was a miracle treatment for me.

 

My Mom told me she has an appointment with a pain doctor the first week of December, and I am trying to arm her with all kinds of possibilities to discuss with the doctor.

 

I don't know if she would handle a morphine pump very well or not.  Would the pump cause her the same kind of side effects that oral medication would?

 

Well, thank you for everything.  I appreciate all of your support and encouragement for my mom. 

 

Wishing YOU many pain free days,

 

Kay

11/28/07 6:06pm

Kay

Hello again!

I was just wondering how your mom is doing.  Have you been able to take her into a doctor to discuss alternative pain delivery systems?

When I was thinking about your mom this morning during my prayer time.  I remembered a friend of mine that has FM/Lupus.  She is also very sensitive to medications and she and her doctor have worked out a program of pain meds using a bit different delivery than those of us who are able to use oral meds.

She gets injections to use and she also has been able to tolerate the actique Suckers they use for Cancer patients.  I could not remember if you said that your mom used the patch before or not, but that would certainly be another choice for you to discuss with her doctor.

Pain Clinics also use different anti-depressants and anti-seizure meds to help control pain too.  So Maybe it's just the case that they have not found the correct combination for her.  I know it makes it difficult that she's not able to handle oral pain relief, but there have to be many other people out there that have the same issues and and they're doctors are able to find another combination of meds to find the happy medium and some success.

You may want to also think about mom filling out a pain diary.  They are very helpful for doctors to see better what is going on and how much pain she is in on a dialy basis.  I'm big on documenting her pain, as 15minute apt with her doctor is really not enough time to paint the actual picture of how badly your mom is suffering.  You can find a printable version here; http://www.painfoundation.org/page.asp?file=Publications/Index.htm Just scroll down the page to Pain Notebook and click on the PDF link, extra copies of sheets are right underneith on the next line, so you can continue to go back and print new pages for her.  Doctors and medical staff normally use a numeric scale of pain from 0-10 with 10 being the worst pain you can imagine.  I use a scale with a small explaination along with the numeric value so I can be more precise and consistent with the number I use for each pain level.  I have written an article and have the numeric explanation on my face book page, your welcom to view it or copy it and print the numeric explainations out for your own use.  I also provide my physicians with a scale of the same one that I follow, so they have something to go by. http://www.facebook.com/topic.php?uid=6858670582&topic=3753  

I certainly help that your mom finds relief.

Betty

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By paindrain— Last Modified: 12/20/10, First Published: 11/13/07