The Rights of Chronic Pain Patients

helene Community Member
  • Is there anyone, or any group,  capable and willing to take on the doctors, as a group, who are responsible for denying us ongoing opiate prescriptions for appropriate, adequate, treatment of moderate to severe, long term chronic pain?

     

    I  view doctors as the people, who if they were willing to organize and become politically active,  could stop the DEA intrusion into our medical care.  I understand that doctors are concerned, as individuals, with their licenses.  However, as a group, if they would stop behaving like cowards, they have the AMA, even if they are not members, and other professional organizations, that control control considerable political power and lobbyists in Washington D.C.

    Add This Infographic to Your Website or Blog With This Code:

     

    Pain patients can and do, constantly call, sign petitions and write to their President, Congress Members and Senators, but we have achieved no results.  Pain patients face the DEA and the DOJ , who have instituted a War on Pain Patients because they have failed to win their unwinnable War on Drugs.  This means that chronic pain patients have a political problem.  Political problems require politicsl solutions.

     

    Pain Relief Network  is the only organization that has recognized and attempted to address this problem.  However, IMO, their strategy failed because it was incorrect.

     

    I want to do something different, but I am very ill and would need a lot of help. I am especially looking for pragmatic political activists and advocates with legal, medical, IT, professional writing or political knowlege and experience, to fight hard for the civil rights of chronic pain patients.

     

    Anyone interested can PM me here.

     

     

Published On: April 09, 2010
235 Comments
  • Celeste Cooper, RN
    Health Pro
    May. 25, 2015
    There are things we can do as patients to advocate for our rights. Many advocacy organizations are active to address all the things you mention, which are so important to changing the way pain is perceived, judged, and treated in the United States. You are welcome to visit my website > ADVOCACY, http://www.celestecooper.com/advocate.html. I also have a sample...
    RHMLucky777
    Read More
    There are things we can do as patients to advocate for our rights. Many advocacy organizations are active to address all the things you mention, which are so important to changing the way pain is perceived, judged, and treated in the United States. You are welcome to visit my website > ADVOCACY, http://www.celestecooper.com/advocate.html. I also have a sample advocacy letter with information on contacting everyone from the AMA to the President of the United States and the Secretary of Health and Human Services. Pain Pathways also has a plethora of helpful links, http://www.painpathways.org/pain-resources/ I am always pleased to meet someone who wants to be involved. It certainly has given me purpose and I wish the same for everyone commenting here.
    • Pat
      Pat
      Sep. 27, 2015
      You are on the right track, Celeste and Helene. Petitions, however, are fairly weak usually. Politicians get them often. It has to be unusual to get their attention. They usually take the path of least resistance. Once when I was trying to get help for autistic kids, I had everyone send a telegram. The biggest problem is that the people who are affected are...
      RHMLucky777
      Read More
      You are on the right track, Celeste and Helene. Petitions, however, are fairly weak usually. Politicians get them often. It has to be unusual to get their attention. They usually take the path of least resistance. Once when I was trying to get help for autistic kids, I had everyone send a telegram. The biggest problem is that the people who are affected are usually the sickest and weakest in the community and so it is difficult to get a crowd to march. God bless you in your efforts. Perhaps something like Gofundme? (not sure about the name) could pay for a telegram campaign.Then, maybe some healthy family members could stand outside a store and gather up names of those who support the effort and a telegram could be sent in their name. Like a petition, but much more startling. Also, perhaps look at what worked historically in the 60s. Those advocates accomplished amazing things. They not only helped minorities, but disabled, poor, and women as well.
    • kimmiann49
      Jan. 28, 2016
      I'm willing to help been on pain meds for 8 years just got told I would be weaned off over 3 months I suffer so much pain there's days can't even get out of bed I take 8 tens a day and your saying 3 months I go into seizures and high blood pressure when my body goes into pain we need to stand up my name is kim
    • Thomas Grinnell
      Jan. 29, 2016
      I would like to become involved in any way that would be helpful as I got a job at age 19 in Chico, Ca., at NT Enloe Memorial Hospital. Soon after moving there I found out that I had a skeletal connective tissue disease called Ankylosing Spondolitis. It is a severely painful disease and I had a great job as a Surgical Tech at Enloe on weekends. I wanted to...
      RHMLucky777
      Read More
      I would like to become involved in any way that would be helpful as I got a job at age 19 in Chico, Ca., at NT Enloe Memorial Hospital. Soon after moving there I found out that I had a skeletal connective tissue disease called Ankylosing Spondolitis. It is a severely painful disease and I had a great job as a Surgical Tech at Enloe on weekends. I wanted to become a Orthopedic Surgeon and all the Surgeons were helpful in that way but no one wanted to help when it came to the horrible chronic pain that came with this newly diagnosed disease and just because I asked for pain meds I was labeled an abuser/addict. California is one of the few states with legislation to help protect Doctors and Patients from people trying to deny them pain meds for real, biological pain. Doctor Harvey Rose of Carmichael, Ca., was one of those Physicians trying to help these patients not to suffer or worse, commit suicide due to horrible quality of life due to chronic pain. I was fired from my job at Enloe in the early-mid 1990's because I was asking Anesthesiologists for pain medicine via their Pain Clinics they ran on the side of Practicing Medicine as a Surgical Anesthesiologist. It got around to my boss that I was asking/seeking relief from these Doctors and this was their job- to relieve and alleviate pain. It was important to relieve pain for people who are having surgery and they don't just say "lets make sure your pain is relieved just for the time your having surgery, they make sure pain after surgery for a week or two is under control but if you have permanent, chronic pain you are not some how "qualified' to have your pain controlled. It seems as I had long term (I am talking twenty plus years) I was supposed to some how learn how to live with it. What a crock of you know what. I was to the point of considering suicide seriously. I simply had no quality of life. i had to move to Sacramento after getting fired from my job because of missing work due to calling in sick due to extreme pain. After a time I was let go from my job after a newspaper article in the Chico News and Review about me and my need for pain relief and the constant denial from local Doctors and a woman from another nearby town was also in the article and Dr. Harvey Rose a Sacramento Doctor who had committed most of his career to pushing legislation in California to protecting Doctors from reprisal from the state Medical Board if the Doctor is acting in good faith to help patients receiving pain medicine. Doctor Rose's legislation passed and if I remember by quite a margin on his side. I am sure without the help I received due the new legislation I would have committed suicide. I just want people who are so against pain medication to think real hard about what they would do if they had to live with unrelenting, horrible pain ALL OF THE TIME.- Thomas Grinnell, Rochester, Minnesota
    • MimiRay4
      Apr. 03, 2016
      You made your post over a year ago. You are a fellow nurse but are you a fellow chronic pain patient? Please read my post and tell me I am incorrect. Tell me how I have misjudged the situation. As a retired nurse, a clinical research associate, and due to an unfortunate surgical mistake a chronic pain patient I have found NO help in establishing basic patient...
      RHMLucky777
      Read More
      You made your post over a year ago. You are a fellow nurse but are you a fellow chronic pain patient? Please read my post and tell me I am incorrect. Tell me how I have misjudged the situation. As a retired nurse, a clinical research associate, and due to an unfortunate surgical mistake a chronic pain patient I have found NO help in establishing basic patient rights for chronic pain patients. It's as if we are lepers and society (at least anyone in society that does not have a condition that requires pain medication) would prefer if we die and reduce the surplus population. That is a harsh statement to make but I challenge ANYONE to prove otherwise. I could go into detail about my condition but MY CONDITION is not the point. I've found most CPP's (chronic pain patients) don't worry about what the FDA, DEA and now CDC are up to until it affects us. We shouldn't have to. If we were type2 diabetics and the FDA, DEA, or CDC produced a study stating that our condition could be controlled with diet, exercise and weight loss, thus mandating all type2 diabetics would be taken off insulin within 6 months to 1 year as it would not be needed if a strict diet and weight loss plan is followed, there would be a massive outcry and doctors would protest. No one will take a stand for CPP's because the world views us as one step up from being drug addicts. True CPP's aren't drug addicts we are dependent on medication the same as diabetics are. I wish I knew what the answer to our collective dilemma is but I do not. CPP suicides will rise, illegal drug seeking will rise, ER visits will rise and here is the punch line......METHADONE CLINIC profits will RISE. Our government makes more money from legally selling methadone than it ever will from allowing CPP's the right to quality health care and basic human rights.
    • lkirby7656
      Apr. 22, 2016
      Check out #PATIENTSNOTADDICTS
    • Barroyo65
      Aug. 11, 2016
      Hello I'm from ct I suffer from ms, fibromyalgia, spinal stenosis,carpal tunnel, and arthritis in my knee n spine, and after fighting to get pain Meds doctors trick me into agreeing to instead of 30 mg every 6 hours 10 mg each pill to 20 mg every 4 hours because pain management was gonna help me, I call pm they tell me stay with the 30 mg because we can't do...
      RHMLucky777
      Read More
      Hello I'm from ct I suffer from ms, fibromyalgia, spinal stenosis,carpal tunnel, and arthritis in my knee n spine, and after fighting to get pain Meds doctors trick me into agreeing to instead of 30 mg every 6 hours 10 mg each pill to 20 mg every 4 hours because pain management was gonna help me, I call pm they tell me stay with the 30 mg because we can't do better for you at this point, I call my doctor tell them don't change my Meds , they turn around n say it's been changed and they can't do anything about it all with in 12 hours,they have team meeting and they decide my life! And pain Meds without the main player in the meeting !!! Which it ME!!! How can doctors play God with your pain??? What gives them the right to treat you like your a junkie all because you tell them don't change my Meds.!!
    • Barroyo65
      Aug. 11, 2016
      Hello I'm from ct I suffer from ms, fibromyalgia, spinal stenosis,carpal tunnel, and arthritis in my knee n spine, and after fighting to get pain Meds doctors trick me into agreeing to instead of 30 mg every 6 hours 10 mg each pill to 20 mg every 4 hours because pain management was gonna help me, I call pm they tell me stay with the 30 mg because we can't do...
      RHMLucky777
      Read More
      Hello I'm from ct I suffer from ms, fibromyalgia, spinal stenosis,carpal tunnel, and arthritis in my knee n spine, and after fighting to get pain Meds doctors trick me into agreeing to instead of 30 mg every 6 hours 10 mg each pill to 20 mg every 4 hours because pain management was gonna help me, I call pm they tell me stay with the 30 mg because we can't do better for you at this point, I call my doctor tell them don't change my Meds , they turn around n say it's been changed and they can't do anything about it all with in 12 hours,they have team meeting and they decide my life! And pain Meds without the main player in the meeting !!! Which it ME!!! How can doctors play God with your pain??? What gives them the right to treat you like your a junkie all because you tell them don't change my Meds.!! Shortstuff36
    • gmason1017
      Sep. 07, 2016
      Name one thing we can do!!! Greg Mason
    • gmason1017
      Sep. 07, 2016
      All we do is talk! I have a pain management specialist, a lawyer, a Orthopedic Surgeon and No, Absolutely No One can Help!!! All I ever get is Go Away and Die!!! They still cash my checks Dr.'s, Lawyers, Hospitals and our Very Favorite US Government but I have Zero Rights - Less Rights than A Serial Killer!!! What Can We Do!!! Please enlighten Me - Please!!!...
      RHMLucky777
      Read More
      All we do is talk! I have a pain management specialist, a lawyer, a Orthopedic Surgeon and No, Absolutely No One can Help!!! All I ever get is Go Away and Die!!! They still cash my checks Dr.'s, Lawyers, Hospitals and our Very Favorite US Government but I have Zero Rights - Less Rights than A Serial Killer!!! What Can We Do!!! Please enlighten Me - Please!!! Greg Mason "Catastrophic Pain Patient"
  • One2another
    Sep. 07, 2016
    I was struck down by chronic pain over 14 years ago neuropathy..yet I'm not diabetic. I have it in both legs, arms through toes and fingers appearing in places I would rather not mention from time to time all without any real diagnosis. Don't get me wrong I've been through the mid-evil inquisition type testing such as everyone's favorite the dreaded NERVE CONDUCTION...
    RHMLucky777
    Read More
    I was struck down by chronic pain over 14 years ago neuropathy..yet I'm not diabetic. I have it in both legs, arms through toes and fingers appearing in places I would rather not mention from time to time all without any real diagnosis. Don't get me wrong I've been through the mid-evil inquisition type testing such as everyone's favorite the dreaded NERVE CONDUCTION TEST!You know the one they put six inch Needle's into your legs arms and back then run 60 thousand volts through them to "FIND OUT" if you have nerve damage all the while killing the best one's you've got left! No joke it's a real test..In fact it's mandatory when it comes to diagnosing neuropathy. Let's talk about mandatory shall we...Or the word we have all been fed by our Doctors of late...MANDATED. The fact is the CDC has NEVER mandated anything!!! They put out a guideline a simple guideline for primary care docs dentist to use when they were in doubt of the proper amount or situation when an opiate should be in use...THATS IT! I have read it word for word again and again. They have blown this simple thing up way out of proportion! WE ...WE..the ones who inspite of the silent screaming "Sometimes not so silent" we indure while trying to put one excruciating body part in front of the other trying to have some resemblance of a life that once was PAY FOR IT! Then our doctors (And I use that word loosely in most cases) Run blindly like the lemmings they are all the while pushing us..US the ones intrusting them with our lives or lack there of..OVER THE CLIFF!!! Really give it a read and you'll see what I mean. I too like the rest after so much BS finally found the proper dosage to be able to actually walk again. I had so much atrophied muscle in my legs it took a while but without the mind bending level 20 pain I over time on my own I might add achieved it after 5 years of a 4 cornered bed. I continued to push on did so well I dropped my SSI in place of a job...life was sweet. I'm now back In the "four corners" with less than no help from my personal "Lemming" we pay over 500 a month for not including co-pays. After reading many of yours and my own testimonial I know this sounds a bit insane but I still have a miniscule of faith that somehow somewhere someone with alot of letters after their last name, the inside track through the right channels of government or will have enough forthright to truly live the oath they took to heal and preserve the mind body and spirit of the people who truly need them most. Good luck to us all. Shawna Peterson
  • chinamike3710
    Aug. 29, 2016
    And once again law-abiding citizens are the ones who pay the price for the people who are breaking the laws and I've read a few of the messages that have been left here that people living with chronic pain have done everything they were asked to do it still being persecuted and being treated like a criminal and the cases is that the criminals are getting away...
    RHMLucky777
    Read More
    And once again law-abiding citizens are the ones who pay the price for the people who are breaking the laws and I've read a few of the messages that have been left here that people living with chronic pain have done everything they were asked to do it still being persecuted and being treated like a criminal and the cases is that the criminals are getting away with it once again because of a few undesirables ruin it for everybody else will be the laws and take some medication as prescribed but what else is not that they fail to mention is Jay you know since the 10-year War we've had an Afghanistan isn't it kind of funny and ironic that the country is now full with more heroin than ever before where's this house is heroin coming into this country is what I want to know and how come these criminals are making millions of dollars is bringing in the drugs to this the country you know what it seems like that this war on terrorism was nothing more than a wall to open up the trade routes so that heroin and opium can flow freely through the world all this law is going to create is more heroin addicts okay in the people selling the heroin I'm going to make more money and there's going to be more of that and there's one more thing I'd like to add to this and it's kind of funny that a hundred thousand hundred and fifty thousand Americans die each year from alcohol related deaths and there's no outrage over this anger why is that why do these special interest groups continually put money in the pockets of these corrupt politicians for their own agendas that's because the government and its politicians are involved with the drug trade don't let them fool you don't let them lie to you the government is killing us and our children all for the almighty dollar
  • ivgot7kids18
    Aug. 29, 2016

    I'm am a chronic pain patient. I was recently denied my desperately needed medications because of the DEA in the state of Alabama temporarily suspending my pain management Doctor's opiate license. I as well as 100's of other patients have been left with our agonizing pain to deal with on top of being forced to go through unimaginable withdrawals as well as...

    RHMLucky777

    Read More

    I'm am a chronic pain patient. I was recently denied my desperately needed medications because of the DEA in the state of Alabama temporarily suspending my pain management Doctor's opiate license. I as well as 100's of other patients have been left with our agonizing pain to deal with on top of being forced to go through unimaginable withdrawals as well as deal with our awful pain at the same time. This is not only just wrong but for some could be life threatening. I don't need nor want the Government telling me that I must suffer in order for them to cut back on drug control. They need to stick to doing their jobs on illegal drug use rather than making real pain sufferers pay for their mishaps. It's not only unfair. It's inhumane. I have never wished anything bad on anyone but whoever is behind all of this should experience some chronic pain so that they could suffer and know what their actions have done to good and honest pain management patients. I am very aware of some doctors and patients that are not deserving of their medical license and medications. However, the true Chronic pain patients shouldn't be put through this agony of suffering and desperately searching for another Doctor that can help them out. This is the most horrific and unjust thing that has ever happened to me. Shame on our DEA and the big Drug companies who should support this inhumane practice of making real pain patients suffer for their unwillingness and stupidity to step up and do the right thing. We the people have rights. Government people need to stay out of our business and get and prosecute the bad people out there. Dont punish everyone to make sure your punishing the right ones. I will fight this Discrimination as long as it takes for me legally and morally to force our Government to do the right thing. Stay out of a person's private medical business. Leave us good and honest people alone. Thank you all for reading this and may GOD TRULY BLESS YOU ALL. SDK1969

    • citizen
      Sep. 19, 2016
      I agree with you 100%. DEA should not be threatening doctors who write pain medicine in moderation & closely monitor patients with moderate to severe chronic pain. But the legitimate doctors are being threatened to have their license took away for doing what they were trained to do. The DEA is trying to force all chronic pain patients to have to go through...
      RHMLucky777
      Read More
      I agree with you 100%. DEA should not be threatening doctors who write pain medicine in moderation & closely monitor patients with moderate to severe chronic pain. But the legitimate doctors are being threatened to have their license took away for doing what they were trained to do. The DEA is trying to force all chronic pain patients to have to go through a pain management business to get relief from their pain. This is a place that treats everyone like a convicted abuser of medication. This should only be required by the proven abusers, not the whole public who have followed doctor orders & only went to 1 doctor. These pain management places make you do everything short of making you strip, bend over & cough. The DEA is abusing their power! You should be treated innocent unless proven guilty. Congress makes law. Congress can rewrite the law restricting DEA from abusing their power against legitimate doctors & their chronic pain patients.
  • reeves504
    Aug. 23, 2016
    I have lived with chronic pain for over half my life. And I fought hard to reclaim my life from this horrible disease as well as the apathy and ignorance that surrounds it. But now I’m at risk of losing everything. Up until a short time ago I was getting the medication I needed to lower my pain level, and allow me to have a life that wasn’t controlled...
    RHMLucky777
    Read More
    I have lived with chronic pain for over half my life. And I fought hard to reclaim my life from this horrible disease as well as the apathy and ignorance that surrounds it. But now I’m at risk of losing everything. Up until a short time ago I was getting the medication I needed to lower my pain level, and allow me to have a life that wasn’t controlled by constant pain. Several injuries to my lower back started my problem. After my second back injury and subsequent surgery I was diagnosed with chronic pain. But I was a signal parent in college and only had Medicaid. And Medicaid in the state of Louisiana didn’t consider chronic pain to be a valid medical conditions. So I had to file for disability which took years. And over that time without any proper medical care my condition just got worse. My pain level increased, and my mobility decrease. And then a car accident herniate another disc in my back. Something I don’t believe would have happened if I had been in even decent shape. I required another surgery… a fusion. That surgery failed. So I needed another surgery … which was a fusion using six screws and two rods at L4-L5-S1. Obtaining the proper medical care was a long and difficult struggle but ultimately I did find it. But still it wasn't easy. Finding a qualified doctor who would do what was best for me was only half the battle. We then had to find what would work for me. My physician tried more treatments than I can remember to relieve my pain. Injections, varies medications, and devices like the tens unit, to name a few. And all failed to offer me any relief. It was only after he put me on Oxycontin that I got any pain relief. And I finally had hope. And once we found the proper dosage that provided me optimal relief, the change to my life was dramatic. And when I say dramatic I am not exaggerating. My pain and mobility had gotten so bad that I had to use a walker to get around short distances. And I needed a scooter for long distances. I had also gained about 40 lbs. And I battled with depression. The relief that the Oxycontin provided me allowed me to reclaim my life. Now it took time but slowly I regained my strength and mobility. And I was able to stop using the scooter, and the walker. I also lost the weight. I felt good again both physically and emotionally. Now I never relied just on the medication though. Because to get the best results it is a combination of things like exercise, eating healthy, practicing relaxation techniques, and even making life changes that will yield the best results. So when the weather in New Orleans started to aggravate my pain level… High humidity is not kind to chronic pain… I made a difficult decision. I knew the weather would continue to increase my pain, and would just get worse as I got older, so I made the decision to move to Phoenix. And it was a good move. The drier climate here has been great, and has lowered my pain level further. I was even able to start driving again! Now I had to stop driving because of the chronic pain… which was over twenty years ago!! So to be able to drive again… to have the freedom that driving gives you…is huge. And it’s because of the Oxycontin, and the pain relief it provides. Now before moving here to Phoenix I found a physician to manage my pain medication and also a pharmacy that would fill it. I wasn't leaving anything to chance. And for the last few years everything has been great. I've built a life for myself here. But then my doctor here in Phoenix closed his practice. And now I'm at serious risk of losing the one treatment that has provided me significant relief from constant pain. And along with it the life I've been able to build for myself because of it. Does anyone knows of a physician they can recommend? I need someone who will put my care first. I've been trying to find a new doctor manage my pain medication. But even though they will acknowledge that its appropriate medical care for me they won’t treat me. And I get handed a list of other doctors that isn’t much use and sent on my way. Some have alluded to the reason being politics, another came right out and said it. After which she apologized numerous times, and then referred me to a physician who she believed would treat me. But they don't take my insurance. I'm on Medicare ... with Medicaid as secondary coverage. The treatment regime I’m on was only prescribed after years of trying other treatments. And it has dramatically improved my quality of life. I have a life now. And without any problems, or side effects. I don’t want to lose everything I have worked so hard to get back. Now I know there’s a doctor out there who will do what's right for me. I just need to find them. Please if anyone know someone or has any suggestions on how I can find someone please pass it along. Thank you. Lorraine
  • donmun2103
    Aug. 16, 2016
    I hope your messages reach the desired persons. So there is Justis served on behalf of all the chronic/long term pain patients. As I am one more of the chronic pain suffer's .
  • Sarahjane
    Aug. 14, 2016
    I am 47 years old. I have had over 26 surgeries since the age of 13. I have constant chronic pain that has been at least bearable. I have been seeing the same Dr for 20 years, I pass all my tox screens and do any and everything that has been asked. Then in April the rug was ripped from under me. I am being weaned down so rapidly that I'm in unbearable pain....
    RHMLucky777
    Read More
    I am 47 years old. I have had over 26 surgeries since the age of 13. I have constant chronic pain that has been at least bearable. I have been seeing the same Dr for 20 years, I pass all my tox screens and do any and everything that has been asked. Then in April the rug was ripped from under me. I am being weaned down so rapidly that I'm in unbearable pain. And I'm still being weaned!!! I can't find anyone to help. My Drs hands are tied, she does not want to do this but she has no choice because of these laws. Yes there should be tighter control but to make pain patients either suffer or die is not the answer. What do I do? I don't want to kill myself but I can't live like this either. I need help and I can't get it. They've had me on opiates for over half my life and now their saying" ooops our bad but screw you!!" Who is thinking about all the deaths of patients that can't stand living in pain and kill themselves? Again I ask what do I do? If you lawmakers had to live like this what would you do? Is it fair that you make these decisions on patients lives? Come to my house and watch me cry all night and watch my 18 year old son come apart because he can't stand to see his mother like this. Shame on you all who decide how much medicine I need to control my pain!!!
    • donmun2103
      Aug. 16, 2016
      Hello , I just read your message here on health central I am feeling very sorry that you have been into placed into this very complicated situation. From what I read here it appears through no fault of your own have been denied the usual amount of pain medication . Do you happen to know your states new laws and practices regarding opioids medication for chronic...
      RHMLucky777
      Read More
      Hello , I just read your message here on health central I am feeling very sorry that you have been into placed into this very complicated situation. From what I read here it appears through no fault of your own have been denied the usual amount of pain medication . Do you happen to know your states new laws and practices regarding opioids medication for chronic long term pain? Because I have read that legitimate and verified chronic pain patients are being an exception to new laws. Yes there are exceptions for chronic pain patients. I am one myself..I am in a similar situation as you. I've had multiple long serious spine surgeries. I was on very high doses of multiple opioid prescriptions. I was suddenly restricted to the amount of pain medication I had been use to for over 15 years. My body is going through a very hellish transition.As I'm sure you well know. However as we transition into and out of this hellish nightmare, I want to let you know your not alone. So we have to stick together to fight this battle . Write to your legislature, local councils, anyone in the media. Post a video to YouTube! Do not sit back quietly and suffer. I was taught to speak up for human rights. So this message to you is my begining. I am going to do just what I advised you to do. Write, speak up, let your voice be heard ! We have to make it understood, that we are not the "Drug Seekers". We are in pain ! A life in constant pain is degrading, unproductive, and honestly should not be tolerated ! So please speak up, let your voice be heard. We have to do this for ourselves or this will continue. I for one am sick and tired of being treated like I did something wrong. When all I did was get hurt at work !! Please, let you voice be heard.
  • very29
    Aug. 06, 2016

    It is the first week of August here in Washington State. Seattle Pain Centers have been all but shut down for illegal activity and patient deaths, STRANDING WHAT THE NEWSPAPER SAID WAS 25,000 PAIN PATIENTS in at least 3 counties across Washington. I am one of those patients. Informed by my pain doctor that he was merging with another company and would no longer...

    RHMLucky777

    Read More

    It is the first week of August here in Washington State. Seattle Pain Centers have been all but shut down for illegal activity and patient deaths, STRANDING WHAT THE NEWSPAPER SAID WAS 25,000 PAIN PATIENTS in at least 3 counties across Washington. I am one of those patients. Informed by my pain doctor that he was merging with another company and would no longer be taking my insurance, I found a new pain doctor. That was last June. My last visit with my doctor was the first week of July. My new doctor was with Seattle Pain Clinic. The week before my first end of July appointment with them, they cancelled on me and it turned out their director was under investigation for running a pill mill and causing patient deaths. He lost his ability to bill medicaid, effectively abandoning me a week before I ran out of medication. My former doctor would not make an exception, even temporarily, and take me back, even though my insurance would have paid him. Due to the emergency nature of 25,000 people suddenly unable to get pain care, my primary care doctor was given permission to refill my meds FOR 1 MONTH. Except she is not allowed to refill the meds I am taking, so I am being forced to take medication that is not strong enough to address my pain. And when I went to pick it up, I was not allowed to have it because I do not have prior authorization. I began this process in June, so that I would not have a crisis. I have been in pain for 30 years and have tried many many things before getting to this place where my pain is stable. Medication is only one part of my pain management program. I have followed all the rules and done everything I have been asked. I have been honest and proactive. Through no fault of my own, I am now in a crisis. I am not going to be stable. I am going to begin a pain cycle that will take a long time to fix and in a month will still not have a doctor. I am being forced to taper down to meds that WILL NOT MANAGE MY PAIN. I am going to be in pain. I may also suffer through a period of withdrawal before my prior authorization begins, which means I will be sick because even though I am not a drug addict (I do not crave, obsess over, or abuse my meds), I am habituated because I have taken these particular medications with doctor supervision for 2 years. I have no control over how I got in this situation and no control for making it better. And I am not alone. I have 25,000 fellow sufferers out here in Washington. PLEASE HELP US. WE NEED AN ATTORNEY. OUR CIVIL RIGHTS ARE BEING VIOLATED. ADA IS BEING VIOLATED. THE DOCTORS WHO ARE RESPONSIBLE FOR TREATING US HAVE VIOLATED THEIR RESPONSIBILITIES TO US. If ever there was a court case waiting to happen, this is it. If even a fraction of us form a class action group...do you see?

    • ballarenagirl1977
      Aug. 09, 2016
      My appointment was for 8-5 @ 4:30pm. I got a call from the clinic at 2:30pm to cancel my appointment. This is bullshit!!!!! Why did the state just not put someone else in charge of the clinic???? I was a drug counselor before I hot sick and you NEVER stop peoples meds!!!! I am so irate!!! Thank the Lord I am not on daily opiates, however I have them for my...
      RHMLucky777
      Read More
      My appointment was for 8-5 @ 4:30pm. I got a call from the clinic at 2:30pm to cancel my appointment. This is bullshit!!!!! Why did the state just not put someone else in charge of the clinic???? I was a drug counselor before I hot sick and you NEVER stop peoples meds!!!! I am so irate!!! Thank the Lord I am not on daily opiates, however I have them for my Fibromyalgia flare UP's........well, not anymore!!!!!
    • ehrlichlynn
      Aug. 15, 2016
      I am one of the 25,000 patients stranded(?) by Seattle Pain Center. My question is : does this situation legally constitute patient abandonment? It would have been much better for all involved for another qualified physician to take over when Dr Li was removed. Now we have a mess on our hands!
    • brandiechristian
      Aug. 15, 2016
      I too was a patient of Seattle Pain Center. I showed up at my appointment to find locked doors and a note. I have multiple condition that leave me permanently disabled. I received no tapper down. I was forced to stop that day. I have been having serious withdrawals. I don't know what to do. I had been on these meds for over 5 years. I just wish they would have...
      RHMLucky777
      Read More
      I too was a patient of Seattle Pain Center. I showed up at my appointment to find locked doors and a note. I have multiple condition that leave me permanently disabled. I received no tapper down. I was forced to stop that day. I have been having serious withdrawals. I don't know what to do. I had been on these meds for over 5 years. I just wish they would have warned me. I would have started taking smaller doses so the withdrawals are not so intense
    • ehrlichlynn
      Aug. 15, 2016
      Are you a SEATTLE PAIN CENTER patient??? Call Disability Rights Washington at: 206-324-1521 or 1-800-562-2702 You can also check their site at http://www.disabilityrightswa.org/ There IS help! Keep trying! If you can't make the call yourself ask someone to call for you. I am having trouble getting a copy of my records from them for continued care. Does anyone...
      RHMLucky777
      Read More
      Are you a SEATTLE PAIN CENTER patient??? Call Disability Rights Washington at: 206-324-1521 or 1-800-562-2702 You can also check their site at http://www.disabilityrightswa.org/ There IS help! Keep trying! If you can't make the call yourself ask someone to call for you. I am having trouble getting a copy of my records from them for continued care. Does anyone know of a pain clinic that will help if you don't have current records?? If we all start calling and asking the right ppl for help something has to happen!
    • donmun2103
      Aug. 16, 2016
      Hello, I have just read your message. I am in the same situation. My pain management doctor got arrested and left over 10,000 of his patient without any pain meds here in Western NY back in April 2016. Keep your voice going. Post a video, write your state legislature, local councilmen, and anyone in the media!! We are being put through a nightmare for what?...
      RHMLucky777
      Read More
      Hello, I have just read your message. I am in the same situation. My pain management doctor got arrested and left over 10,000 of his patient without any pain meds here in Western NY back in April 2016. Keep your voice going. Post a video, write your state legislature, local councilmen, and anyone in the media!! We are being put through a nightmare for what? No good reason. We did nothing wrong!!! We have to be diligent and make our voices heard, NOW !!! From your state on the Pacific to mine on the Atlantic oceans.
    • donmun2103
      Aug. 16, 2016
      Hi, I read your post. I'm sorry you are suffering and hope you find relief!! It appears many in this country are suffering for the same reason.I am on the other side of the country in NY state.The very same thing happened to myself and over 10,000 others at one practice as well in April 2016. If you happen to find out any info that will help us on this journey...
      RHMLucky777
      Read More
      Hi, I read your post. I'm sorry you are suffering and hope you find relief!! It appears many in this country are suffering for the same reason.I am on the other side of the country in NY state.The very same thing happened to myself and over 10,000 others at one practice as well in April 2016. If you happen to find out any info that will help us on this journey will you please post it here ?
    • beachbum.dm62
      Aug. 31, 2016
      I was also a patient my appointment was for July 15th I have to drive 2 hours to these appointments with no pain medication( I just don't take them if I have to drive) as of right now I am 100% off of pain medication and I can hardly move I haven't brushed my hair in a week my house looks like a bomb went off and this is all because I am in constant pain I...
      RHMLucky777
      Read More
      I was also a patient my appointment was for July 15th I have to drive 2 hours to these appointments with no pain medication( I just don't take them if I have to drive) as of right now I am 100% off of pain medication and I can hardly move I haven't brushed my hair in a week my house looks like a bomb went off and this is all because I am in constant pain I was disabled by Social Security because of my pain so the medication was not taken because I am a drug addict it was because I actually have pain or Social Security would never have disabled me where I live there is no doctors no nurses absolutely no one that will help me I noticed the phone number up there and I'm going to call it when I am done here I have gotten so close to just ending it all because right now there is no hope insight I even called them this morning Seattle Pain Clinic because when I was told July 15th that my appointment was canceled I requested my records as of today August 31st I still have not received my medical records
  • Tamibrat2004
    Jul. 23, 2016
    I've been on pain meds for over 4 yrs, I have chronic low back pain due to herniated disc, osteoarthritis, siatica nerve damage,l4 l5 disc problems, also C5 C6 damage with bone spurs in neck and arthritis, had knee surgery and have bone bruises in bone marrow, both feet have had surgery with no help, ect ect and I've been on MS Contin 60 mg three times a day...
    RHMLucky777
    Read More
    I've been on pain meds for over 4 yrs, I have chronic low back pain due to herniated disc, osteoarthritis, siatica nerve damage,l4 l5 disc problems, also C5 C6 damage with bone spurs in neck and arthritis, had knee surgery and have bone bruises in bone marrow, both feet have had surgery with no help, ect ect and I've been on MS Contin 60 mg three times a day , and norco's 20 mg three times a day, robaxon 1500 mg three times a day, gabapentin 300 mg 3 times a day and now all of a sudden she my doctor wants to taper me down to 3 MS Contin a day, 2 norco's a day , ect ect what r my rights as a disabled patient? I'm under a contract with my doctor can she break the contract ? Can I get a court order from a judge for my medication
  • lkirby7656
    Jul. 21, 2016
    I am a former paralegal of 33 years. I was a trial paralegal for 33 years in the personal injury field. I summarized medical records for all our clients. Not just their injury-related medical records, but also all their priors (looking for prior problems). In that time, I learned about diseases and injuries and what the routine course of diagnosis and treatment...
    RHMLucky777
    Read More
    I am a former paralegal of 33 years. I was a trial paralegal for 33 years in the personal injury field. I summarized medical records for all our clients. Not just their injury-related medical records, but also all their priors (looking for prior problems). In that time, I learned about diseases and injuries and what the routine course of diagnosis and treatment is. Also during that time I was co-developer of a software application targeting restorative care for nursing homes. The goal was to help individuals "achieve or maintain the highest level of functioning possible" as mandated by the government. In that capacity I learned how inactivity, such as that related to untreated or under-treated pain leads to depression and decrease in functionality and activities of daily living. After moving from Florida to Indiana, I learned what a mess the government has made with the chronic pain patients in their "War Against Opiates". I am a member of several patient advocate groups, including #PatientsNotAddicts. In that capacity, I interact with hundreds or thousands of people who are having extreme difficulties due to reduction or discontinuance of their pain meds. I have a fair amount of research on all aspects of this matter, including the information the CDC used to formulate the Guidelines, the DEA's involvement with leaning on doctors and pharmacies, and the affects of all this on the chronic pain patients. There have been multiple suicides and at least one death as a result of physician abandonment. A patient was sent home to detox alone. He vomited and aspirated and had a massive stroke. He died in the hospital in a vegetative state once he was taken off life support. He leaves behind two daughters. Another 58 year old black woman went to a hospital in the Florida panhandle with complaint that she could not breath. She was labeled a drug seeker and she was taken by handcuffs to the parking lot, all the while repeating, please help me, I can't breathe. The officer's badge camera picked up the video footage of her lying dead on the pavement with the nurses yelling at her "Get up - I know you can hear me." Lana Kirby (317) 441-2888
  • 1hourfishinadds1hourtoyourlife
    Jul. 01, 2016
    Did you find any attorneys willing to fight for people like us?
  • mrevenson57
    Jun. 24, 2016
    I have had chronic back pain for six years now (inoperable). This caused me to file for SS. The medication I take has become tolerant to the point of insanity. Doctors involved in "Pain Management" follow corporate policy which is laid out for them by, in most cases, "Corporate Lawyers". These lawyers are uneducated in the "Constitutional Rights" of American...
    RHMLucky777
    Read More
    I have had chronic back pain for six years now (inoperable). This caused me to file for SS. The medication I take has become tolerant to the point of insanity. Doctors involved in "Pain Management" follow corporate policy which is laid out for them by, in most cases, "Corporate Lawyers". These lawyers are uneducated in the "Constitutional Rights" of American citizens. The DOJ and the DEA, has well as other bureaucratic groups impose regulations on doctors under the color of law and doctors volunteer for them under the guise of a corporation. All these factors have made it difficult to fight doctors. You need a smart lawyer to de-validate these regulations as laws. Patients need to be very careful about signing documents which will cause them to volunteer their rights away. If you sign a document and you feel as if you are under duress, state that above your signature. Most likely you're under duress. Remember Regulations are not LAWS! See U.S. Criminal Code, Title 18, Chapter 13, Sections 241 & 242.
  • alemail123
    May. 21, 2016
    It has always been a fascination to me why in all history of the united states, any drug allowed to be prescribed by a licensed doctor was always mandated and directed by the FDA, DEA, and USP for manufacturing. Why are politicians deciding Medicinal Marijuana and stopping pain medicines. Does our political Structure now dictate what is medically best for a...
    RHMLucky777
    Read More
    It has always been a fascination to me why in all history of the united states, any drug allowed to be prescribed by a licensed doctor was always mandated and directed by the FDA, DEA, and USP for manufacturing. Why are politicians deciding Medicinal Marijuana and stopping pain medicines. Does our political Structure now dictate what is medically best for a patients treatment program. Chronic or acute pain has not been case studied by anyone in congress. This is a sham. Why Marijuana available and stopping pain medications regulated and controlled by our own personal doctors. Does anyone not get this irony...............Obama can go as soon as we can kick him out. This is a mess and we all need to get letters to our local representatives, congressmen, and white house to vote in favor of candidates that are in touch with a patients life, not legal guesswork. I suffer from a failed back surgery with stenosis on both sided of Lumbar vert meaning I have electric and burning pains down my legs to my feet ever step and every twist. No more meds are available because all doctors are afraid to lose the license if they help a patient. The lawmakers have a better care plan outlined for those of us who will not get better, will suffer more, and are just trying to survive this hell of physical body we are left with. Duhhh the heroin usage has continued to rise albeit the doctors are not writing the scripts. Who will not admit an error. H is cheaper and less problematic to get on the street. I have never been into conspiracy, but why would a government allow flooding of stronger opiates to flood our nation, unchecked and I cant remember any good H bust any time in the last years. Lets also give everybody Marijuana and increase its availability. So in a short time we have a nation addicted to H and stupid on Mary J.
    • rooshouse601
      Aug. 25, 2016
      Now marijuana is not a bad thing and should be medically legal but for chronic pain it most likely won't help vary much it is mostly useful for epilepsy and acute pain and it has been proven to be a habbet not addictive is more like snapping your fingers u fighting for pain medicine and saying that marijuana is bad makes you seem ignorant and uneducated on...
      RHMLucky777
      Read More
      Now marijuana is not a bad thing and should be medically legal but for chronic pain it most likely won't help vary much it is mostly useful for epilepsy and acute pain and it has been proven to be a habbet not addictive is more like snapping your fingers u fighting for pain medicine and saying that marijuana is bad makes you seem ignorant and uneducated on this subject and if you don't truly understand it u should not express your opinion 😉 have a good day
  • fostrona8
    May. 16, 2016
    After 16 yr's of doctor's prescribing Opiod's And now 4 chronic problem's they decide im a junky and criminal! Wow die ing is bad but noing u have no releaf after managing my life so i could take care of my self! I really dont no what to do? I have not done anything against the law! It's not my fault there war on drug's dont work, They want us dead or in jail!...
    RHMLucky777
    Read More
    After 16 yr's of doctor's prescribing Opiod's And now 4 chronic problem's they decide im a junky and criminal! Wow die ing is bad but noing u have no releaf after managing my life so i could take care of my self! I really dont no what to do? I have not done anything against the law! It's not my fault there war on drug's dont work, They want us dead or in jail! Forcing ppl in agony to try and organize! Doze any one else have this problem? And how can we organize? Talk about kicking ppl wile they are down!
  • elyhuntangle
    May. 12, 2016
    I am also a sufferer of chronic pain that was told due to the Gov. That laws have changed and they must reduce my dose to so low that last time I was on such a low dose I never left my house for 2 years due to my pain level till my doctor finally increased them and then I was able to leave home and do things as my back was numb and it made me happy to have...
    RHMLucky777
    Read More
    I am also a sufferer of chronic pain that was told due to the Gov. That laws have changed and they must reduce my dose to so low that last time I was on such a low dose I never left my house for 2 years due to my pain level till my doctor finally increased them and then I was able to leave home and do things as my back was numb and it made me happy to have somewhat of my life back and it was by no means even close to what it was before my low back 3 disc fushion and after 3 back surgeries and over 100 injections that never worked and now they are dropping my dose to ween me down really great I'm in fear that I will be back where I was in severe pain stuck at home and thinking about suicide all the time to end the pain, so in this country we are not going forward we are going backwards. So if a Lawyer had backbone to take on the Gov. To fight for chronic pain sufferers where they can get the medication they need to live, no matter how much it cost there are so many chronic sufferers that if we all chip In money to a lawyer I would be willing to donate as much as I can and if all of us did we should be able to fund this type of lawyer. If one is found I hope I find out so I can chip in and spead the word as we would be able ro raise alot to get our rights back, and for every person whom commits suicide due to chronic pain their family should be allowed to sue the Gov for millions for each person who dies due to their control on managing pain meds when they should not be involved, instead they should be training Dr's To take care of their chronic pain patients who have went through all the loop holes and have proven they have tried or exhausted all their resources to fix their chronic pain and have had no sucess, and when a patient goes to a Dr for let's say their shoulder hurts or knee hurts do not give them pain meds as they do not know if they are lying, send them off to a specialist, if this would have been applied years ago we wouldn't be in this situation.
  • jenn719dreis
    May. 10, 2016
    I read an article about chronic pain patients and suicide and also the overdose statics on opioid, perscription, and cocaine. It says we have 100 MILLION PEOPLE suffering from chronic pain in the US. We are told we have a huge opioid addiction/overdose "EPIDEMIC" yet there were 18k total perscription overdose deaths and they estimate the suicides of pain suffers...
    RHMLucky777
    Read More
    I read an article about chronic pain patients and suicide and also the overdose statics on opioid, perscription, and cocaine. It says we have 100 MILLION PEOPLE suffering from chronic pain in the US. We are told we have a huge opioid addiction/overdose "EPIDEMIC" yet there were 18k total perscription overdose deaths and they estimate the suicides of pain suffers at over 20k.... Either way it's .02% of the 100 million pain suffers and I can't believe that the suicides account for all the deaths even thougb the number is larger, I am certain that there are accidental deaths and things also, but with these number's isn't the pain the epidemic and not the deaths? It also stated we spend a whopping $4 per person to research and treat pain in new and different ways despite the fact it's the number 1 cause of disability! Exploring the link between chronic pain and suicide by Judy Foreman also says "The dismal situation with chronic pain — and the potential link with suicide — is unlikely to improve until the federal government takes the pain epidemic seriously. While the government spends $2,562 on research for every person with HIV/AIDS, it spends only $4 for every person with pain. Clearly, chronic pain needs more attention and more research dollars. After all, it is the main reason Americans go on disability. And it appears to be driving growing numbers of Americans to kill themselves. Judy Foreman is the author of “A Nation in Pain: Healing Our Biggest Health Problem.” Seems like in addition to contacting the elected government representatives, the news outlets in our respective areas and raising awareness to get our doctors hands untied - we may want to Che k out this lady's book since she seems to care not only about pain suffers giving up but the source of the problem - the real EPIDEMIC of chronic pain!
    • reptevia
      May. 26, 2016
      It's actually worse than that. According to CDC, the actual deaths from all opioids is 28,647. The breakdown using CDC's 2014 numbers is thus: Heroin:10574 Fentanyl: 514 Methadone: app: 9549 Based on the CDC's estimate of 2% of Methadone prescriptions being for chronic pain which means methadone/pain deaths=191 Total: 20637 (Though, as CDC has admitted, these...
      RHMLucky777
      Read More
      It's actually worse than that. According to CDC, the actual deaths from all opioids is 28,647. The breakdown using CDC's 2014 numbers is thus: Heroin:10574 Fentanyl: 514 Methadone: app: 9549 Based on the CDC's estimate of 2% of Methadone prescriptions being for chronic pain which means methadone/pain deaths=191 Total: 20637 (Though, as CDC has admitted, these numbers are inaccurate, so who really knows what the real numbers are.) Other opioids approximately: 8010 +191 Total deaths due to chronic pain prescriptions= 8201 (Roughly 28% of all opioid deaths) To me, this begs a question. Why are we seeing the near hysteria about the opioid “epidemic” being focused on people who make up only 28% of those deaths? Logic dictates that we should be concentrating on lowering death rates in the other 72%.
  • tamigoodson24
    May. 02, 2016
    I am a chronic pain patient due to a hysterectomy where transvaginal mesh, produced by Boston Scientific. I am currently involved in a law suit because of this product and the health issues it has created for me. I live in Georgia and I am drug tested every month, which is beyond ridiculous. I have no drug record, yet I am treated like an addict. I have been...
    RHMLucky777
    Read More
    I am a chronic pain patient due to a hysterectomy where transvaginal mesh, produced by Boston Scientific. I am currently involved in a law suit because of this product and the health issues it has created for me. I live in Georgia and I am drug tested every month, which is beyond ridiculous. I have no drug record, yet I am treated like an addict. I have been going to the same doctor for sometime and was recently tested and this morning they tell me I failed due to meth! I have never in my life done any meth or even seen it. It didn't matter what I told the doctors office, they didn't care. It's absolutely not possible that someone made a mistake, they have automatically labeled me. I demanded that they redo it, but no. After years of clean tests, it didn't matter. I am 49, but evidently have become a meth user without my knowledge. It amazes me that we are treated this way. Now I have to find a new doctor and I don't know what to do. Is it going to prevent me from seeing another doctor? I absolutely need my medication and don't know what to do. Any advice would be appreciated. Also I have attended college to become a paralegal but temporarily put it on hold because of my health.
    • luckylaurie2
      May. 05, 2016
      This happened to my brothers friend, just recently...came back with all types of street drugs, and her doctor would not re-test her either...I find it strange that all sudden people's test are coming back dirty...was this at a primary doctors office or pain management, were you able to get your test results from the lab, I would want to see them myself.
    • bear022013
      May. 06, 2016
      This is not a free country,as it was in 1776. The "USA" government cares nothing about human suffering. I have had 12 major surgeries.Four major cervical/lumbar and now thoracic and about to give up. Sorry for your suffering so young.
    • martigras72
      May. 10, 2016
      It's rediculous what your going through! I lost my insurance and was put on a county based indigent health care plan to get me through and my pain management doctor of 6 yrs did not take it and left me screwed, I finally got to see one of the 3 I could see on the plan and he didn't examine me or look at my records he just said oh u gonna die taking this and...
      RHMLucky777
      Read More
      It's rediculous what your going through! I lost my insurance and was put on a county based indigent health care plan to get me through and my pain management doctor of 6 yrs did not take it and left me screwed, I finally got to see one of the 3 I could see on the plan and he didn't examine me or look at my records he just said oh u gonna die taking this and cut my meds by 70 percent , not kidding and I've gone to the ER twice in 4 months and tried talking to my primary who isn't taking my pain serious or treating me with any kind of dignity or respect, he told me to stay with him bec changing doctors looks worse ? The new pm doctor won't even call me back and my last visit he was in Pakistan so I'm stuck with very little relief , I've got kidney issues and urinating blood and waiting another month to see the urologist and still I can't get any relief...I want to die, I can't live with this pain anymore ! My primary was joking around saying that pain management doctors get props for getting rid of patients so they so an show the DEA see I drop patients ...what has gone wrong in this country ! Legitimate pain sufferers are going to either go to illegal drugs or kill the,selves to end the suffering that nobody will pay attention too! It's disgusting how chronic pain sufferers are treated or not treated these days!
    • LeighRN
      May. 15, 2016
      I can empathize more than you know. There's little more degrading than being accused of something you didn't do and being treated like a liar and a criminal when you are the most honest person you know and who adheres to strict standards of personal integrity. As a chronic pain patient, I know precisely what the medical staff are thinking in these instances...
      RHMLucky777
      Read More
      I can empathize more than you know. There's little more degrading than being accused of something you didn't do and being treated like a liar and a criminal when you are the most honest person you know and who adheres to strict standards of personal integrity. As a chronic pain patient, I know precisely what the medical staff are thinking in these instances because I also happen to be an RN. So I get the unfortunate experience of being on both sides of the fence. It's devastating to see patients automatically presumed guilty for no other reason than they happen to be in pain and found opioid analgesics most helpful; this despite their demonstration of being able to use them responsibly. I too have also had issues with drug testing. These tests are not perfect, and, logically, the more tests you are subjected to, the more likely a mistake will be made that will not only destroy your reputation, but will also ruin any chance of being able to continue the treatment that allowed you to be a productive member of society or maintain some semblance of quality of life. I've had three instances where the results came up screwy. The first, it came up + for cocaine. Uh...I can't even handle the effects of caffeine! Fortunately, I was able to immediately retake it and it came out fine. The second came out with about 5 drug positives. 3 of the 5 were drugs I've never taken in my life, and the one drug I was taking at the time didn't show up in the results. I had proof that the persons who administered the test broke protocol and I chose to contest the results legally, but ended up in a bad car accident during this time and my case was dismissed because of "noncompliance" with the process (because I was busy recovering from injuries sustained in the crash! And for which I was not adequately treated for pain!). The third time was just this past December. I took my routine drug test at my PCP's office. It came back negative (despite having taken a dose the night before). After some research, I discovered that the cut-off was likely too high given the low dose I was prescribed. As well, I don't see any consideration given for the variability in body weight and BUN/creat in the official results. My PCP tried calling the lab to have the sample retested, but her call was delayed because of the holidays, and by the time the call was placed, the lab had already thrown it out. So my PCP, apologetically discontinued my therapy "per policy". Unfortunately, I wasn't immediately told about the negative results or that the drug would be discontinued. I only found out 3 weeks after the fact when I initiated routine contact to request my monthy refill (on time) in January. So I received another apology for the delay and ended up with virtually no medication to taper with. Went through a delightful withdrawal and a severe rebound of my primary RLS (and secondary from the withdrawal itself). My RLS had been successfully surpressed the entire time during my opioid therapy. Opioids are also the only thing that is helpful for that because I do not respond well at all to alpha 2 deltas or dopamine agonists. So I'm now S.O.L. in that department as well. At present, I can no longer work. And because I can no longer work, I've had to bite the bullet and apply for medicaid. Was refused disability (of course). So now I'm back to navigating a corrupted and heavily biased healthcare system. So far, nothing alternative that I have access to has helped (which isn't much with medicaid). All I honestly want more than anything is to be able to live with a manageable degree of pain. I don't ever expect to be pain free and that's perfectly fine (and rational). And I just want to get back to nursing and being an advocate for the millions of people out there who are like me who deserve to be treated with dignity, and to be given the care and respect they deserve so they can have some hope for quality of life. My heartfelt sympathies to you and what you're going through. And to anyone else reading this who is suffering because of the needless bureaucracy and cruel prejudice. You're not alone. And if I ever get myself put back together, I can promise that I'll be back out there on the front lines fighting for you. That may sound a bit cheesy, but I mean it with all sincerity. Much love to all. -Leigh ❤
  • EMPRESSROOTSGAL
    Apr. 30, 2016
    My neurosurgeon is never available until the exact day of my appointment. It is WC, but it took over 20 years to get this fusion/artificial disc/surgery to happen, and they waited so long, my L-5 nerve was "frayed", and had to be sewn during the 7 hour surgery. I also ended up with scoliosis, spurring, and "too many annular tears to count". They kept sending...
    RHMLucky777
    Read More
    My neurosurgeon is never available until the exact day of my appointment. It is WC, but it took over 20 years to get this fusion/artificial disc/surgery to happen, and they waited so long, my L-5 nerve was "frayed", and had to be sewn during the 7 hour surgery. I also ended up with scoliosis, spurring, and "too many annular tears to count". They kept sending me for those ESI or Radio Frequency.. He wrote me a prescription for 10 mgs of oxyccodone, 1 every 6 hours. He knows I am not coming back for 30 days, so why did he only give me 80 instead of 90? I was cut front and back, only 3 months ago, and we never discussed stopping pain medication. Still, his receptionist said, "You will have to take this up at your appointment.". WHAT IS THAT? He has not increased my Gabapentin, and I am on the smallest dose TID, while trying to walk again. I have to use a cane because I lost the feeling in my left big toe, so my balance is off. I wear a bone stim belt for 4 hours a day. It hurts to take every single step, and I finally made it around the block, but i have to stop, about 5-6 times. My left leg is throbbing it hurts so bad. I am not even asking for an increase in the lousy little 30 mgs I am getting. I think the Gabapentin is suppose to be increased after 3 weeks, never mind 3 months later! This is so messed up, all because of cheap skate WORKERS COMPENSATION, who thinks this is all fun and sun for us. Who do I report this too? Can I go to the ER with the pill bottle and the date of my appointment and show them, that he shorted me, and see if they will write a script for 3 days, or go to my primary care doctor? This is risky, irresponsible behavior based on GREED and corruption. I am going to do whatever I have to to to take care of me. Meanwhile, I have to DC my WALKING THERAPY, because it increases the nerve pain. Someone needs to oversee workers compensation patients, and I do not mean an attorney. I have never used one and I do not plan to now. They just want ot stip everyone out, because they play both sides of the fence for their 20%. I refused to do this, and I am glad I did. They can never give you enough for a MAJOR surgery if you have been told you will need a fusion at some point. Waiting for the newly invented artificial discs, worked out good for me. The surgeon not responding to any phone calls, is terrible.
  • cmwmkw
    Apr. 29, 2016
    I found 2 petitions,,moveon.org,,repeal all cdc regulations,,,,and petition2congress due no harm,,,now the petition2congress,,,is exactly that,,,your letters WILL actually go to your state senators and the president,,,soooo at least they have been given the knowledge their willfully killing people,,,,if their is ever a lawsuit against the United States,,,,we...
    RHMLucky777
    Read More
    I found 2 petitions,,moveon.org,,repeal all cdc regulations,,,,and petition2congress due no harm,,,now the petition2congress,,,is exactly that,,,your letters WILL actually go to your state senators and the president,,,soooo at least they have been given the knowledge their willfully killing people,,,,if their is ever a lawsuit against the United States,,,,we have the proof via that petition,,,that they were made aware of the harm they have willfully inflicted onto all the physically ill ,,,Also if u live in Tennessee,,,,,lawhern@hotmail.com,,,,Red Lawhern,,,is the guys name,,,,he is getting together a lawsuit against the government of Tennessee,,,,,I hope this helps all of us,,,maryw
    • an_office_pro
      May. 12, 2016

      I'm not sure if there's any lawyer in az that'll take this up or not, but I've literally called about a dozen thus far and I've been laughed at when I said I want to sue the government over its crackdown on pain meds. Bc ppl assume instantly u must be a druggie if ur fighting for this. Furthermore, I just saw on Fox news that pain meds should only be for cancer...

      RHMLucky777

      Read More

      I'm not sure if there's any lawyer in az that'll take this up or not, but I've literally called about a dozen thus far and I've been laughed at when I said I want to sue the government over its crackdown on pain meds. Bc ppl assume instantly u must be a druggie if ur fighting for this. Furthermore, I just saw on Fox news that pain meds should only be for cancer patients!!! Wtf, oh, really, so I should just kill myself bc I can't get out of bed without them? This is rediculous! And it needs to stop, I'm going to my media and I will make noise until someone hears me! I'm done being quiet bc ppl make assumptions. I say we all find laywers, get a group together and make noise together! Anyone who wants to do that with me, I'm Meghan, 30, tucson. Stop letting them victimize us!

    • fayedra1
      May. 14, 2016
      I think that we should all come together as United States citizens as a whole to get the attention that needs to come to the powers-that-be and the media. And also get together all the Chronic pain patients in each state. The pressure needs to persistent at every level of the government. And not just once here and there. Even if we have to copy and paste our...
      RHMLucky777
      Read More
      I think that we should all come together as United States citizens as a whole to get the attention that needs to come to the powers-that-be and the media. And also get together all the Chronic pain patients in each state. The pressure needs to persistent at every level of the government. And not just once here and there. Even if we have to copy and paste our responses send it in weekly. The old saying is the squeaky wheel gets the grease !!!! We have to keep on bombarding them all of them including the media we must not stop until it gets the attention of every u.s. citizen, Government official, CDC, DEA, DOJ, FDA, AMA, Etc... But this is called the United States of America so as USA citizens that are in Chronic pain patients need to come together as a whole. We need to figure out where we can all come together on social networking site like Facebook page something like that to where we can all band together to get this going and hit them & hit them HARD. Just like they did to us !!! I know for a fact That every one of us in the USA that are chronic pain patients we all have unique & special set of skills.As well as skills to make this work. Engineers, medical professionals, business people, people in the science community, Etc..... Together if we all speak as one we can do this !!!!! Thank you, Jen
  • drylab2000
    Apr. 26, 2016
    The political problem is complex. It goes back more than a hundred years, and is based on unfounded claims and assumptions from that period. But, with law and politics, old is better, because it is more engrained and harder to change. There has been one mention of the Pain Relief Network (PRN) here. What most people do not realize is the PRN and its founder,...
    RHMLucky777
    Read More
    The political problem is complex. It goes back more than a hundred years, and is based on unfounded claims and assumptions from that period. But, with law and politics, old is better, because it is more engrained and harder to change. There has been one mention of the Pain Relief Network (PRN) here. What most people do not realize is the PRN and its founder, Siobhan Reynolds, were largely responsible for the easing of the war against patients and doctors in the early 2000's. She scared the fed warriors, because she took court action. She scared them so much that they assigned AUSA Tanya Treadway to destroy her by any means possible -- constitutional or otherwise. Constitutional scholars have agreed that what they did to her simply should not stand. At any rate, on Christmas Eve of 2011, the movement toward humanitarian treatment of pain patients died with with her, and the feds soon started up their machine again to essentially remove opioid therapy from the country. Reynolds has proven largely irreplaceable. Nobody has the guts she did, or the knowledge to fight them. They do not care about petitions. They do not care about the truth. They do not care about much of anything because they are omnipotent and well funded by ignorance, obstinance, and the remnants of the drug war finance machine. There are several legs to the research which needs to be done to better understand the problem and what can be done about it. It is social and political science, as well as medical science. It also has the peculiar distinction of being based in assumptions which are tightly held, but untrue. That is hard to beat. What needs to be understood better is how the history of opioid prohibition has affected public opinion and understanding of the problem, leading to knee-jerk support for drug warriors and anything they say. Also, we need to better understand the federal government's interest in opioid prohibition. Why is it so important to them? They say they care about our health and safety. Right. If you believe that, I have some real estate for you to look at! Why are they so adamant? Is it because the artificial contraband value of the drug is somehow exploited by the government? Is it because of the medical lobby (morphine transformed the medical profession from snake-oil salesmen into high priests of modern society, and they may want to maintain absolute control). Is it because of the pharmaceutical lobby -- wanting to replace opioids, which are too old to be patented, with newer, patented, and lucrative, drug sales? There are other possible explanations, all of which need to be explored. We need to understand what motivates this monster. They may can be placated in some other way. A calm, rational approach is best, as truth will eventually win. The thing to understand is petitions, even presentation of facts to Congress, simply has failed, as stated by the author. This is a major issue in patient rights and individual rights which will take time, resources, and a many-pronged approach to eventually put to rest. In the meantime, all we can do is help people suffer with dignity. It is not the first time in history a population has had to deal with torture, injustice and oppression, and the solutions are not always quick.
    • cmwmkw
      Apr. 29, 2016
      I agree w/u 1000%,,,I read about that women,,and often wonder if her plane accident was no accident...Our government has/will kill before,,,,,,Soo tell me,,,how do we fix this w/no money???A lawsuit against the United States Government will work,,,but none of us have 1 mill ,,to slap down,,,,Soo how do we help those who can't help themselves,,,the physically...
      RHMLucky777
      Read More
      I agree w/u 1000%,,,I read about that women,,and often wonder if her plane accident was no accident...Our government has/will kill before,,,,,,Soo tell me,,,how do we fix this w/no money???A lawsuit against the United States Government will work,,,but none of us have 1 mill ,,to slap down,,,,Soo how do we help those who can't help themselves,,,the physically ill w/painful medical conditions??maryw
    • reptevia
      May. 26, 2016
      The CDCGuessline was pushed in large part by Physicians for Responsible (Read-No opioid prescribing) Opioid Prescribing or PROP. PROP was started and I believe is run by the owners of The Phoenix House. The Phoenix House owns a string of (routinely cited for negligence) rehab centers. Most of their inmates/patients are committed by the drug courts. What will...
      RHMLucky777
      Read More
      The CDCGuessline was pushed in large part by Physicians for Responsible (Read-No opioid prescribing) Opioid Prescribing or PROP. PROP was started and I believe is run by the owners of The Phoenix House. The Phoenix House owns a string of (routinely cited for negligence) rehab centers. Most of their inmates/patients are committed by the drug courts. What will happen when legitimate chronic pain patients are forced off opioids,( and don't kid yourself, that is where this is going.) and new patients are refused treatment. Where will they turn to taper and deal with with being abandoned by their doctors? If they seek their relief elsewhere, say illegal sources, where will they end up? Maybe dead or more likely-Drug Court! The only question I have is: How did PROP get so much power?
    • drylab2000
      Jun. 05, 2016
      I wish I had an answer, cmwmkw. The only thing I can recommend is education. Many people affected by this do not really know much about opioids, and have no understanding how blantant the discrepancies in public policy are. They often accept medical wisdom and opinons at face value. If they are told they have drug problem, they believe it. They cannot believe...
      RHMLucky777
      Read More
      I wish I had an answer, cmwmkw. The only thing I can recommend is education. Many people affected by this do not really know much about opioids, and have no understanding how blantant the discrepancies in public policy are. They often accept medical wisdom and opinons at face value. If they are told they have drug problem, they believe it. They cannot believe our society is that corrupt. The warriors can only get away with it because of the engineered secrecy surrounding opioids. The only allowed and respected opinions are those of people involved in the deception. Prohibition of opioids in the early 20th century resulted in the entire domain of public knowledge about the poppy and its derivatives to be sequestered as "secret medical knowledge" and "secret police knowledge" on which only medical doctors and law enforcement could legitimately opine and comment. Slowly, they effectively removed the entire domain from public scrutiny, over several generations, creating a public that simply does not know enough to make a reasoned argument. Most people simply do not know enough about it to have a well formed opinion. All policy is therefore driven by a small, closed group, who have an interest in maintaining prohibition. The public is like a child whose parents conceal critical information by spelling words they do not want the public to understand, like c-a-n-d-y. reptivia, ...wow! What a find! There is an excellent example of what can and should be done. If the public knew that (and the many other superficially concealed conflicts of interest), they could understand it all better! Good work! - See more at: http://www.healthcentral.com/chronic-pain/c/317/108819/pain-patients#sthash.G3PhTLW8.dpuf
  • Ali40extreme
    Apr. 18, 2016
    I have Two types of Cancer had 2 radiation treatments 3 surgeries. I have arthritis and spinal canal stenosis two buldged disks. I'm limited to walking and having the use of my arms and hands. They found tumors in my uterus just recently. I suffer from migraines and severe muscle spasms all over my body. I have a stack of orders and tests that still need to...
    RHMLucky777
    Read More
    I have Two types of Cancer had 2 radiation treatments 3 surgeries. I have arthritis and spinal canal stenosis two buldged disks. I'm limited to walking and having the use of my arms and hands. They found tumors in my uterus just recently. I suffer from migraines and severe muscle spasms all over my body. I have a stack of orders and tests that still need to be conducted. I was refused pain killers by my primary doctor and by my orthopedic physician. I have been trying to get into a pain clinic for months but no luck. I'm by all means disabled but not on disability as of yet. I just personally want to thank all of the addicts out there for helping me not have some type of quality of life! My doctors are cowards and since I have moved to this horrible state of Florida it has been nothing but a medical insulting nightmare! Everyone always says to fight when you get the big C or your diagnosed with debilitating illnesses.. Your not fighting the disease as much as your fighting the bureaucratic BS with doctors today. These doctors have been horrible here and money grubbing pigs!!! I had to go to the ER due to extreme pain and the physician told me about the problem with dispensing pain killers..how shameful!! I am just sooo mad and now I get to spend my days crying and wondering why I have to continue like this! Oh ..junkies!!
  • helpthecuase
    Apr. 16, 2016
    I do believe their is a problem in this world with pain meds. However not anymore becuase doctors will no longer give them out. The sad part it the people who took them and did not need them . This is the typical thing that happens with anything good that works. People take advantage and ruin it for those who really need it. Doctors are responsible for letting...
    RHMLucky777
    Read More
    I do believe their is a problem in this world with pain meds. However not anymore becuase doctors will no longer give them out. The sad part it the people who took them and did not need them . This is the typical thing that happens with anything good that works. People take advantage and ruin it for those who really need it. Doctors are responsible for letting this happen. One thing I dont understand is ocycodone kills people becuase the mix of Tylenol. Why dont they just remove that or make the Tylenol part lower. Or why can they just figure out a way to make sure that who ever gets the pain meds can get only the amount they need. You dont need 4 or 6 a day. Two to three should be the max. Why cant they come up with an canister that counts and only allows the amount you need per day to be released. When your done you return it to your pain doctor and they can see if you abused it. If not you get more. Look the main thing here is there are many people that need these meds. Yes they do make you feel good and the narcotic side of it relives the pain and makes you a bit happy. Without it you have no quality of life. Too much of it and you have no quality of life. So max three a day. 3o day or every two weeks the doctors check and if all is good you keep getting them. Periodic evaluations, I can understand why politicians would go from everyone getting them to just about cutting everyone off. I can tell you this. I know there are politicians out there that need pain meds. How are they getting them. I think they should be exposed. I hate to wish pain on anyone but whoever pushed for this without coming up with an option i hope one day the realize that they screwed up. While they are watching loved ones in sever pain and they cant get anything for it. Really. I say any politician that voted to just remove the pain meds should be out of office. Please vote them out. Every pain patent find out what politician voted to outlaw pain meds and get them out of office. Also if possible lets see if a lawyer would be willing to take them on. Marijuana is legal why can you get pain meds when your in sever pain. What a bunch of morons. I know I said it but I really do not want anyone in pain it is more of an example. I hope even the people who made these decisions just come to their senses i dont wish pain on them. Please come up with an option so Doctors are not afriad to lose their jobs and these people in pain can get some relief.
    • looloo.1965
      Apr. 20, 2016
      I too suffer from chronic pain.I had a Dr. who lost his license for overprescribing, leaving me completely out on the street. Since that time, I have searched high and low for a provider who will help me. I live in WA state and the laws here are ridiculous, to say the least. I have been humiliated, turned away, thrown out of Dr.'s offices, "Fired", told I was...
      RHMLucky777
      Read More
      I too suffer from chronic pain.I had a Dr. who lost his license for overprescribing, leaving me completely out on the street. Since that time, I have searched high and low for a provider who will help me. I live in WA state and the laws here are ridiculous, to say the least. I have been humiliated, turned away, thrown out of Dr.'s offices, "Fired", told I was a junkie, and the list goes on and on. I have legitimate pain, and without narcotic pain medication, my life is almost unbearable. My husband has sided with the "Professionals" and come to the conclusion that I am just wanting to get high. This is absolutely heart-breaking. I buy them when I can, but since they are in such high demand on the street, they are just too expensive. I never thought I would resort to this, but you have to do what you have to do sometimes. I am tired of being treated like a piece of crap because I hurt. People who have no clue, tell me to just "tough it out", pain won't kill you. Well, I am here to tell you, if you live with pain and no help in sight, it can and will kill you, whether by your own hand, or your body just giving up. This is the first time I have posted, because I have not been able to find anything current to comment on. We need someone to advocate for us. The DEA is powerful, and it's going to take power to fight power. I am all in to help with whatever needs to be done. I am tired of living this way!! hurting in WA
    • mjp3396
      Apr. 22, 2016
      I'm a disabled veteran, I worked in pain for 35 years to support my family. Then I collapsed... too much damage fone. Spent 6 months under Psychiatric care. Pain was re, no sign of depression. Also tested in lowest segment for physiological dependency for addictive behaviors. I fracture my foot.. at urgent care the doctor refused to provide any pain relief......
      RHMLucky777
      Read More
      I'm a disabled veteran, I worked in pain for 35 years to support my family. Then I collapsed... too much damage fone. Spent 6 months under Psychiatric care. Pain was re, no sign of depression. Also tested in lowest segment for physiological dependency for addictive behaviors. I fracture my foot.. at urgent care the doctor refused to provide any pain relief... refereed me to PC.. 5 week wait. Had oral surgery the following week, Dentist pulled out prescribe pad... then saw I had pain contract... 5 week wait. 8 years... 0 failed tests... Punished by System for doing all the right things. .... Greedy Patients or Greedy Doctors. .... Google what happens to Medical professionals when they violate drug .... .you will be Pissed.
    • cmwmkw
      Apr. 29, 2016
      I believe,,since u,,nor anyone else can physically feel the physical pain of another,,it is literally IMPOSSIBLE for you to feel the physical pain of another,,,,,thus no-one has the divine right to decide who is to suffer in physical pain,,,,Soo y do u feel u have the divine right to decide who is to suffer in physical pain and for how long they are to suffer??ie...
      RHMLucky777
      Read More
      I believe,,since u,,nor anyone else can physically feel the physical pain of another,,it is literally IMPOSSIBLE for you to feel the physical pain of another,,,,,thus no-one has the divine right to decide who is to suffer in physical pain,,,,Soo y do u feel u have the divine right to decide who is to suffer in physical pain and for how long they are to suffer??ie your comment ,''u should only need 1 or 2 medicines pills???I would love to know why,,if u literally cannot physically feel the physical pain of another,,,why u think u have that right to decide how much medicine is needed??Thus deciding who is to suffer and for how long they r to suffer??It is my belief,,,in order to reach a goal of a civilized society,,that forced human suffering will not achieve a humane,civilized society,,,quiet thee opposite,,,forced human suffering creates societies like hitlers,,,,,Soo as a humane civilized society,,,no man has the right to decide who is to suffer in physical pain,,,NO-ONE,,,HAS THE DIVINE RIGHT TO DECIDE WHO IS TO SUFFER IN PHYSICAL PAIN,NOR FOR HOW LONG THEY ARE TO SUFFER..There ARE SOMETHINGS MANKIND DOES NOT HAVE THE RIGHT TO DECIDE,,,,,maryw
    • jenn719dreis
      May. 10, 2016
      So 1, they make oxycodene without Tylonal - they don't make Percocet without it. It comes in 15mg, 30mg, and other strenghts as well as a slow release formula name braded oxycotin. Now 2, lucky you that YOU don't need more than three pain pills a day and great for you that you feel good when you take them - not everyone does. It is my understanding (and my...
      RHMLucky777
      Read More
      So 1, they make oxycodene without Tylonal - they don't make Percocet without it. It comes in 15mg, 30mg, and other strenghts as well as a slow release formula name braded oxycotin. Now 2, lucky you that YOU don't need more than three pain pills a day and great for you that you feel good when you take them - not everyone does. It is my understanding (and my pain specialists as well) that you are most likely getting to much at once if you get any of the euphoria or happy type feelings and should take either a slow acting medicine or less medicine more often. I take 1 extended release every 12 hours and still NEED at least 3 immediately released rescue/or break through pain pills per month. Most pain contracts I have seen/been on/or known someone on require you to take your pills with you every time you go to the office - be it to get a prescription or to have an appointment so if they want to they can count your pills and see if you have the correct number so that is already a real thing. My pain doc office is trying to cover their butts so much I am treated to a UA every appointment and anytime I pick up an rx - I comply to get some treatment although it is not enough treatment and I schedule things down to showers, cooking, buying food, seeing a doc - I can do 1 a day - 2 if I am lucky. I also have the other common pain contract things, but also have to agree to try "all alternative pain relief therapies" and cannot use any thc even though I am in CO where it's used for non medical daily by many, not even the strain with almost no thc that has all the cannabinoids that help with many things minus the psychoactive properties - but I agree to get some help. But I just don't know why you think like the government - that there is one maximum for pain pills. There is no such thing as "ONE SIZE FITS ALL PAIN MEDS" the current rules went from a 4 pill ir pain pill a day limit to 300mg morphine mg equivalents that went into effect on Feb 1 2016 and stated that over time that they had intention to further reduce to 120mme (mme is morphine equivalents) and that they would provide significant time for tapering and lower to that amount slowly, however they gave 2 weeks notice and it went into effect in March I believe - witch is not close to what they said in December about the 300mme for non cancer, non hospice pain care. So not only are they taking pain treatment option decisions away from the doctors (the people who actually went to medical school and everything) and they are legislating chronic pain suffers into a position where they will be forced to find the street drugs like heroin to treat the pain just so there is some relief and quality of life- if you go to an na meeting or a rehab facility you will here that of the few chronic pain people that become addicted it started because they could no longer get the meds under the care of their doc and turned to the street stopping all the doctor oversight and care so they slid down the slippery slope where there is no way to say take this amount this often since there is no way to have control over doses of anything. The legislators are actually creating a system that will not only have the addicts on heroin, but also chronic pain patients.
  • cheryl hunt
    Apr. 13, 2016
    I am all of these comments and I so depressed and hopeless about what to do? I have never been in trouble with the law but because I have severe disabilities and need pain meds I am labeled and I am sick of it!!!???
    • helpthecuase
      Apr. 16, 2016
      Find out what politicians voted for this and vote them out.. I say find a lawyer and sue your docotr if your in pain and they will not help. Treating you like a drug attic is deformation of character.
    • jenn719dreis
      May. 10, 2016
      If you have medicade please call and get your umbusman's number and call them. They are the independent paicent advocates that help find treatment and also take complaints for care....please don't sue the doctors that have had their hands tied by the government and are doing all they can to help people (other docs not trying to help people aren't included in...
      RHMLucky777
      Read More
      If you have medicade please call and get your umbusman's number and call them. They are the independent paicent advocates that help find treatment and also take complaints for care....please don't sue the doctors that have had their hands tied by the government and are doing all they can to help people (other docs not trying to help people aren't included in my request) but I do know that my pain doc is so fed up with the red tape, consistently changing limits with little or no notice and the law suits raising the malpractice insurance to a point that they can't afford to be doctors are adding to the problems, not helping it. The bottom line is that the people that went to med school should be the ones making medical descisions not the legislators and docs shouldn't fear prison for trying to give people some quality of life!
  • tiffani.henry.photographer
    Mar. 31, 2016
    I've been trying to do this for a long time, it will be harder for us because of our chronic pain and the lack of care we are getting. But I don't want to feel that way ever again. That feeling you have when you walk out of the doctors office, the last resort, with nothing but a deep, black hole of depression from a feeling of helplessness-no hope-no way of...
    RHMLucky777
    Read More
    I've been trying to do this for a long time, it will be harder for us because of our chronic pain and the lack of care we are getting. But I don't want to feel that way ever again. That feeling you have when you walk out of the doctors office, the last resort, with nothing but a deep, black hole of depression from a feeling of helplessness-no hope-no way of doing anything about your situation and the ones in control treat you horribly and send you home in agony. I've been in a severe depression for 3 months. I'm tired of fighting. So tired. But if I had help-If WE had help...we can do this. This is our life. You can contact me anytime, anyone with actual chronic pain, my daughters willing to help, she wants her mother back-im theabandonedpatient33 Thank you-I've been searching forever-what can I do?
  • David 401
    Mar. 31, 2016
    I am A 51 year old man I have had degenerive disc disease since I was in my early 20's and have been successfully treated with pain meds through my life, when I say successfully treated with pain meds don't mean that I have a normal life on them I mean I was able to getof bed and to struggle through the day doing the normal things people should be able to do...
    RHMLucky777
    Read More
    I am A 51 year old man I have had degenerive disc disease since I was in my early 20's and have been successfully treated with pain meds through my life, when I say successfully treated with pain meds don't mean that I have a normal life on them I mean I was able to getof bed and to struggle through the day doing the normal things people should be able to do like make breakfast get dressed you know the simple things, today I dictate this message on this phone using the voice because I'm unable to type and hold the phone and my um without the support of my stomach it's been 2 days since I went to my pain management in the lower my meds and I lay here before you with chronic back pain severe chronic testicular pain shoulder pain I have had over 2 years not able to make breakfast this morning so I am eating cookies and sadly I'm a diabetic I wanna know why I'm suffering today because some Doctor's mishandled giving out pain meds two people who didn't need them late them to construction workers that were brothers they were given opiates so they could continue doing heavy construction work we're all I wanted to do today was make breakfast I am very sympathetic to the people who overdosed on these medicines and I honestly have to say the doctors are part of that problem because they miss diagnose patients who are in real need of pain meds the pain management will I go watches me so close counts my pills every month and that first I thought this is horrible then I came to realize this is how the the system should work I would gladly give up my privacy and have them watch me to see how my life is without pain meds I would gladly pee in the cup weekly to make sure I am taking the meds I would gladly let them count them pills every time they see me to make sure I'm not taking any extra I give my pain management credit because they did all this they watch me like a hawk and that's the way it should be today that little bit of life I had it's been taken away from me I somehow wish the DEA could hear our voices the people who are in real chronic pain fibromyalgia Disc disease Cancer debilitating arthritis in the list goes on my prayers and thoughts are with everyone who is in my situation right now I will keep writing is everywhere I can in hopes that someone hears my voice if not I am not sure I'll be able to stay in my home I'm not sure what my future Holds for me so I beg Pass this around thank you for your time to listen to this. my name is David chalifoux I live in Pawtucket Rhode Island
  • Jenness1
    Mar. 31, 2016
    I have been taking pain meds for many years due to Fibro. Thanks to my meds I am high functioning and contribute to society by working a full time job as a CPA, taking care of my parents and caring for my son. When I do not take my meds I am practically bedridden due to the pain. I cannot comprehend how the people who are making these new laws can simply disregard...
    RHMLucky777
    Read More
    I have been taking pain meds for many years due to Fibro. Thanks to my meds I am high functioning and contribute to society by working a full time job as a CPA, taking care of my parents and caring for my son. When I do not take my meds I am practically bedridden due to the pain. I cannot comprehend how the people who are making these new laws can simply disregard our rights to pain management. Put them in our bodies for just one day and they would understand. We've all tried the alternatives as we jumped through hoops to get meds to help control our pain, and obviously the alternatives didn't work or we would be taking them instead. I hope there is a strong organization out there that we can support in fighting for our rights.
  • jbcinyelm
    Mar. 29, 2016
    This was a brilliant article. How can we better get together to fight off this giant witch hunt?Donate money to a lobby in our interest? To perhaps help Helene in this effort. Anyway I am so worried....I saw a hearing and it was so one sided and these are our policy makers???
    • MimiRay4
      Apr. 03, 2016
      As a retired nurse, a clinical research associate, and due to an unfortunate surgical mistake a chronic pain patient I have found NO help in establishing basic patient rights for chronic pain patients. It's as if we are lepers and society (at least anyone in society that does not have a condition that requires pain medication) would prefer if we die and reduce...
      RHMLucky777
      Read More
      As a retired nurse, a clinical research associate, and due to an unfortunate surgical mistake a chronic pain patient I have found NO help in establishing basic patient rights for chronic pain patients. It's as if we are lepers and society (at least anyone in society that does not have a condition that requires pain medication) would prefer if we die and reduce the surplus population. That is a harsh statement to make but I challenge ANYONE to prove otherwise. I could go into detail about my condition but MY CONDITION is not the point. I've found most CPP's (chronic pain patients) don't worry about what the FDA, DEA and now CDC are up to until it affects us. We shouldn't have to. If we were type2 diabetics and the FDA, DEA, or CDC produced a study stating that our condition could be controlled with diet, exercise and weight loss, thus mandating all type2 diabetics would be taken off insulin within 6 months to 1 year as it would not be needed if a strict diet and weight loss plan is followed, there would be a massive outcry and doctors would protest. No one will take a stand for CPP's because the world views us as one step up from being drug addicts. True CPP's aren't drug addicts we are dependent on medication the same as diabetics are. I wish I knew what the answer to our collective dilemma is but I do not. CPP suicides will rise, illegal drug seeking will rise, ER visits will rise and here is the punch line......METHADONE CLINIC profits will RISE. Our government makes more money from legally selling methadone than it ever will from allowing CPP's the right to quality health care and basic human rights.
  • charlenebeck83
    Mar. 23, 2016
    I'm new to all of this and I have nerve damage in my abdomen I've been diagnosed as an chronic pain patient and after a year my doctor is refusing me of my pain meds what are my right
    • brucewyner77
      Mar. 28, 2016
      Sadly you have no rights,my doctor of 7 years recently retired and I've been on pain Medicine since 2003 here in the Boston area finding a Dr to sympathize with your plight is nearly impossible even though 2 long acting pills a day relieve my pain enough to live I have been treated like a common drug addict even though I played by their rules and never broke...
      RHMLucky777
      Read More
      Sadly you have no rights,my doctor of 7 years recently retired and I've been on pain Medicine since 2003 here in the Boston area finding a Dr to sympathize with your plight is nearly impossible even though 2 long acting pills a day relieve my pain enough to live I have been treated like a common drug addict even though I played by their rules and never broke a contract tomorrow I will have a pain pump implanted which is considered a last resort to be honest the trial for the pump went well as far as pain is concerned I had none for the first time in 13 years I lied in bed with no pain but it wasn't a total success because my stomach grew the size of a basketball which they claimed they never saw that before,they even went as far to ask me if I fell,to which I replied did you drop me ?mysteriously when they pulled the epidural from my spine the basketball disappeared Also urinating was extremely difficult which they said was the medicine.In the end I would rather take my 2 pills a day rather then put a mechanical devise that does not belong in my body most people have great success with the pump but some have had nightmares,it also requires surgery every 5 to 6 years to replace the battery.This is the boat I'm in it's impossible to live with the pain so I have no choice i was very comfortable taking my 2 pills a day rather then the put this device in my body and all the risk associated with it.
    • jenn719dreis
      May. 10, 2016
      I found help switching from my pcp to a pain specialist, but with the new strict morphine mg equivalent limit it depends on your dose if they can help much, if you are over the morphine equivalent of 120 mg a day you might be able to get a prior authorization for tapering down to that amount. We all need to get in contact with our elecited officials and get...
      RHMLucky777
      Read More
      I found help switching from my pcp to a pain specialist, but with the new strict morphine mg equivalent limit it depends on your dose if they can help much, if you are over the morphine equivalent of 120 mg a day you might be able to get a prior authorization for tapering down to that amount. We all need to get in contact with our elecited officials and get with a pain paicent advocate group (my pain doc recommended these steps and a group, but I was having a horrid day so won't have the group name for another week or so, but she is requesting everyone call and right to untie her hands!) I hope this helps you.
  • jennasam68
    Mar. 22, 2016
    I had a serious accident in 1997. My 2 year old unbuckled his car seat & put my van in drive. I had put the emergency brake on but was told afterwards it wasn't fully engaged, just an inch more, even though light said on. Anyways my femur was crushed between the van & a brick wall, everything else was fine but me. I have been diagnosed with RSD or chronic...
    RHMLucky777
    Read More
    I had a serious accident in 1997. My 2 year old unbuckled his car seat & put my van in drive. I had put the emergency brake on but was told afterwards it wasn't fully engaged, just an inch more, even though light said on. Anyways my femur was crushed between the van & a brick wall, everything else was fine but me. I have been diagnosed with RSD or chronic pain syndrome, the pain was so bad that wind, pants, sheets caused me severe pain if it touched my leg. I have been put on so many meds & opiates are the only thing that makes my day manageable, it does not take the pain away but makes it where I can function. I have been called a drug addict, been directed to drug rehabs, even accused of selling my meds & had to go thru a drug program to get pain meds. I have had 2 total knee replacements, 2xs on 1 leg & approx 7 surgeries on both legs. Been questioned by doctors as to "how do I function on a level that would knock an elephant out" but my body is TOLERANT to high levels. Asking a dr to increase my level is like signing my soul away. I have been turned down at filling scripts out of state & even said I would pull my pants down so they could see my scars cause "I didn't look as though I needed those types of meds". Am I supposed to look sickly cause if I do they assume I'm getting a fix, how am I supposed to look when I'm in pain everyday?? I have a life & want to live but according to everyone I'm not allowed to if I'm in pain, according to Drs, nurses, family, etc I should be in a corner crying with the amount of pain I say I'm in but I would like every critic of myself & other chronic pain suffers to put themselves in our shoes for 1 day, even 1 hour & see how they would live. Deal with the predujices, accusations, whispers, eye rolling or even the Drs who when you have another procedure change my dose!!! I have had all the testing in the world done that shows I never go into REM sleep due to my pain, eeg's showing my nerves reactioning at a high level to a very slight shock, mri's & the whole abc testing plus my history of my accident a 130 pound woman against a brick wall & 3 ton vehicle(sorry if weight on vehicle is wrong) it was a 1990 dodge caravan, the big one!! What else do I or anyone in pain have to do to prove our pain is real!!!!
    • jenn719dreis
      May. 10, 2016
      I hope this info helps, but in my experience a doctors dea number is only good in the state where they practice so filling out out state with any opioid now will either be hard or impossible, it varies some state to starts and class of drug to class, but I have had better results having a trusted person get my rx, fill and mail them - this was before the Feb...
      RHMLucky777
      Read More
      I hope this info helps, but in my experience a doctors dea number is only good in the state where they practice so filling out out state with any opioid now will either be hard or impossible, it varies some state to starts and class of drug to class, but I have had better results having a trusted person get my rx, fill and mail them - this was before the Feb 16 and March 16 changes though and was also more expensive with overnight shipping...
    • jenn719dreis
      May. 10, 2016
      I hope this info helps, but in my experience a doctors dea number is only good in the state where they practice so filling out out state with any opioid now will either be hard or impossible, it varies some state to starts and class of drug to class, but I have had better results having a trusted person get my rx, fill and mail them - this was before the Feb...
      RHMLucky777
      Read More
      I hope this info helps, but in my experience a doctors dea number is only good in the state where they practice so filling out out state with any opioid now will either be hard or impossible, it varies some state to starts and class of drug to class, but I have had better results having a trusted person get my rx, fill and mail them - this was before the Feb 16 and March 16 changes though and was also more expensive with overnight shipping...
  • BJ
    BJ
    Mar. 20, 2016
    I too have Kaiser in Oregon. I'm in so much pain from advanced disc degeneration, osteoporosis with compression fractures in my back, rotary scoliosis, arthritis in my hips with spurs, and fibromyalgia. I was stable on the same 2 meds at the same dose for nearly 10 years. Never needed them replaced or needed them early. Their pain clinic docs are not listening;...
    RHMLucky777
    Read More
    I too have Kaiser in Oregon. I'm in so much pain from advanced disc degeneration, osteoporosis with compression fractures in my back, rotary scoliosis, arthritis in my hips with spurs, and fibromyalgia. I was stable on the same 2 meds at the same dose for nearly 10 years. Never needed them replaced or needed them early. Their pain clinic docs are not listening; I went to one when the pain became too much with the reductions. The guy (MD sounds to good for him) had his little dog and pony show with a social worker there. He excitedly told me how the pain meds don't work for long term pain, (altho he couldn't tell me how the meds could then magically work for long term cancer patients) and how much better I'll feel without them but he would allow me to keep 4 a day. I declined, 4 a day wouldn't touch me and was vastly lower than the reduction that brought me there. End of the story: I'm in so much pain I'm virtually stuck on my couch/bed. I sleep for minutes at a time; I have a recurring dream that a very heavy man falls on me and breaks my back, and then I wake up in excruciating pain. All this was so unnecessary. The MDs keep talking about getting arrested; if an MD says this to you refer them to the DEA website for prosecution of docs. There are hundreds but not one single, not ONE, prosecuted for prescribing long term pain meds at ANY dose for patients like us. I too am going to leave Kaiser at the end of the year. To anyone thinking of switching to Kaiser, there is a sign you can't see until its too late. It reads "Abandon hope all ye who enter here."
    • Thomas Grinnell
      May. 24, 2016
      I was a Kaiser employee in the mid to late 1990's and I have Ankylosing Spondylitis and systemic spinal and connective tissue disease. I had my hip replaced at the age of 30 and it probably needs to be revised. I was lucky to have Harvey Rose M.D. take me as a patient and he saved my life. Doctor Rose was not a Kaiser Doctor and I think Kaiser feared not filling...
      RHMLucky777
      Read More
      I was a Kaiser employee in the mid to late 1990's and I have Ankylosing Spondylitis and systemic spinal and connective tissue disease. I had my hip replaced at the age of 30 and it probably needs to be revised. I was lucky to have Harvey Rose M.D. take me as a patient and he saved my life. Doctor Rose was not a Kaiser Doctor and I think Kaiser feared not filling the scripts because Doctor Rose had already been thru hell and back for his patients and with the courts and so on. Kaiser feared him I think and they never gave me a problem with filling the scripts but what if they had not? My father thinks I am a druggy even though I take less than the prescribed doses of meds only because the disease is in its 25th year approximately but the pain is still bad. I e-mailed President Obama and I think it is important for pain patients to contact the President,Governors, Senators and as many news agency's as possible. The message needs to be as publicized as possible. I know it is easy to give up when you are in so much pain but there are groups and agencies out there to assist and the best thing to do is to be the biggest pain in the ass to Doctors and hospitals and let them know no one deserves the right to suffer and it is in the bill of rights not to so NEVER give up!!!!!!!!! Thomas P. Grinnell, Rochester, Minnesota. P.S., there are some new drugs coming out that are suppose to be potent and non narcotic so those of us in real pain who don't care what kind of drug/substance it is that controls our pain there is light on the horizon. I know it is difficult to even spend one day in constant pain so keep being a pain in the ass to your Doctor, your City, your State and mostly at a federal level with the Federal Government. It is in the bill of rights in the U.S. Constitution not to suffer excessively so try not to give up. If you have to, move to a country that pain medicine is readily available in. I know this sounds simple but dying is what Doctors want us to do so we won't be a pain in the ass to them. I would say contact me but I am currently recovering from a Traumatic Brain Injury and I live in a adult "foster" care facility but the man who runs it is VERY supportive of me in my control of chronic pain. In general, DOCTORS are pussies who avoid prescribing narcotics for the most idiotic reasons but you must keep on them and as a group we could become lobbiest's against those who deny the right. It is a Doctors responsibility to relieve pain and suffering so the more of us that become organized the more of us will get treated and like I said, new drugs are on the HORIZON so try not to give up and I know you all need relief until then. GOD BLESS EVERYONE IN PAIN- Thomas Grinnell
  • mapax2410
    Mar. 09, 2016
    My husband just had a visit today at the Va clinic and was informed his pain medication, Tramadol, was going to be discontinued. He has jumped through the hoops of trying weird medications such as gabapentin, which made him manic and he still had pain. Now they're talking about Lyrica and Tegretol (a seizure medication?) in place of the Tramadol. My husband...
    RHMLucky777
    Read More
    My husband just had a visit today at the Va clinic and was informed his pain medication, Tramadol, was going to be discontinued. He has jumped through the hoops of trying weird medications such as gabapentin, which made him manic and he still had pain. Now they're talking about Lyrica and Tegretol (a seizure medication?) in place of the Tramadol. My husband does not abuse his medication. I don't think four Tramadol is going to kill him! He has taken and passed six drug tests (through his job and the Va) and has passed them all. He never touches my medications that I take for chronic pain because he is responsible and trustworthy and values the job he has been on for 11 years! I asked questions regarding why this med was being taken away, only to be given some double talk about "it inhibits respiration and if you take with alcohol, other meds or continue taking it you could stop breathing and die." I think if that was going to happen it would have already. It's just a line of doube talk and they're putting everyone in the same box, and not treating individual cases. With regular drug testing they and closely monitoring prescription usage, I think they could safely prescribe the medication, and then if someone is abusing it, take it away at that point. I feel like my husband is being punished because of what the irresponsible have caused, and his quality of life is now worsened because of them not sticking with what works. He doesn't ask for much!
    • EMPRESSROOTSGAL
      Apr. 30, 2016
      If he had bad effects from gabapentin (which I take now) then, Lyrica may do the same. It made me go into my bed and pull the covers over my head. I could not even form a sentence. I do not know why never meds effect us mentally, but obviously it does. I cannot even get my neurosurgeon to change or write anything until my appointment date. Keep on complaining...
      RHMLucky777
      Read More
      If he had bad effects from gabapentin (which I take now) then, Lyrica may do the same. It made me go into my bed and pull the covers over my head. I could not even form a sentence. I do not know why never meds effect us mentally, but obviously it does. I cannot even get my neurosurgeon to change or write anything until my appointment date. Keep on complaining because they is what is required these days. The squeaky wheel methodology works. Good luck to your husband and I hope he feels better~
    • saundra
      Aug. 16, 2016
      This is so interesting because Tramadol literally makes me feel like it affects my breathing! I can't handle my Tramadol, but my eldest sister says it saves her life! My physician will readily prescribe Tramadol, Antidepressants, anti convulsants which have horrendous long term side effects and don't help my chronic pain one little bit. I have been in chronic...
      RHMLucky777
      Read More
      This is so interesting because Tramadol literally makes me feel like it affects my breathing! I can't handle my Tramadol, but my eldest sister says it saves her life! My physician will readily prescribe Tramadol, Antidepressants, anti convulsants which have horrendous long term side effects and don't help my chronic pain one little bit. I have been in chronic pain for 22 years worsening and contemplate removing myself from this life if I can't get someone to trust me to prescribe OCCASIONAL pain relief, not everyday, but just one fecking day a week of relief😡😡😡 Good luck to your husband.
  • catherine.anya
    Feb. 24, 2016
    Why is it that heroin addicts are treated better than those of us with chronic pain? We get called drug seekers and addicts, while people who are actually addicted to heroin get their heroin substitute Methadone every day, which I'm told by someone who literally goes every day to a clinic has the exact same effect as heroin does, it's just legal. And free....
    RHMLucky777
    Read More
    Why is it that heroin addicts are treated better than those of us with chronic pain? We get called drug seekers and addicts, while people who are actually addicted to heroin get their heroin substitute Methadone every day, which I'm told by someone who literally goes every day to a clinic has the exact same effect as heroin does, it's just legal. And free. We get treated like heroin addicts while they get treated like us, people who need pharmaceutical assistance for our pain, not to get doped up. Maybe we should all start going to these clinics, because most of them claim they're only going "for pain". I have had chronic pain and illness for as long as I can remember.Plus, I'm a total klutz, so I am a semi regular visitor to the ER. I went last night, my mother drove me because we suspect I have bulging or slipped discs. The orthopedist sent me to physical therapy and wants me to do a month of that before he'll even do an MRI. My pain level has almost tripled in the six days since I went to my appointment. Last night my mother approached the PA that Ive seen many times and who ive always considered a good PA. Until he said to her "What drugs does she want now?" When I heard that I went nuts. I immediately put my clothes on and went to the front desk to file a grievance. My mom was finishing up when I went to use the bathroom. And who did I run into? Yup, the PA. He essentially forced me back to the room, and shut the door in my mother's face, telling her she wasnt responsible for me and wasnt allowed in. Ive had her in the room multiple times before, with him as well. I told him he was rude, insulting, and how dare he make an assumption that I'm an addict. He then looked at my Rx history and said "oh, is Dr. A your MD. is he the one who's supplying the drugs for you?" I was appalled, first I'm a drug addict, second of all you accuse one of your own colleagues of supplying me with narcotics. And there doesn't seem to be anything I or anyone else can do about it, thats what makes me so angry.
    • alawyer2b
      Mar. 22, 2016
      Unfortunately, You Are severely misinformed. Currently, about 70 to 80% of the patients at methadone clinics are pain patients. Pain patients who can no longer get the appropriate level of care. Of course it is simply outrageous that your husband is being denied access the very mild loosely associated to the real opioids, drug Tramadol. The DEA is absolutely...
      RHMLucky777
      Read More
      Unfortunately, You Are severely misinformed. Currently, about 70 to 80% of the patients at methadone clinics are pain patients. Pain patients who can no longer get the appropriate level of care. Of course it is simply outrageous that your husband is being denied access the very mild loosely associated to the real opioids, drug Tramadol. The DEA is absolutely out of control and the war on pain patients and their war agaisnt doctors and our right to privacy between us and our doctors is completely unacceptable and the only way to change it is straight out revolutionary action. Write your congressional reps...the president and demand the dissolution of the DEA. Demand the legalization of opioids without prescription. Allow us our own destny...you will see suicide by heroin and pills decline by leaps and bounds. BTW, Methadone is not exactly like heroin. In fact, when correctly dosed it does not have any europhoric effects, effectively relieves withdrawal symptoms and like many pain medications very effectiveley does stop significant pain.
  • cbrice393
    Feb. 07, 2016
    My doctor who I also worked with for 15 years as a nurse (she calls me a friend) has left me high and dry without any pain control at all. All because a PA who works under her, whom I have never seen as a patient, decided to cut my hydrocodone 7.5 from MDD of6/day to 3/day. I was never informed, they left that to the pharmacist. Thinking my doctor/friend must...
    RHMLucky777
    Read More
    My doctor who I also worked with for 15 years as a nurse (she calls me a friend) has left me high and dry without any pain control at all. All because a PA who works under her, whom I have never seen as a patient, decided to cut my hydrocodone 7.5 from MDD of6/day to 3/day. I was never informed, they left that to the pharmacist. Thinking my doctor/friend must have been out of the office when the PA rx'd and was uncomfortable with giving #180 for 30 days (understandable) I took the hydrocodone as I have for the past 2 years or more. No more than 6/day. In the interim I had a scheduled appointment with my doctor and asked her what was going on with the hydrocodone? She acted flustered and asked me how many I had, which I had enough for 2 weeks and I did tell her I was taking the MDD of 6/day not 3. She told me to call in 2 weeks to remind her to give me a new rx. So I did and I was ignored, then treated like a drug seeker, I lost it and left an angry message on the nurse line. I was asked to call the next day. This went on from Wed to Fri. I even asked for a short appointment with her to discuss pain control. Nothing. Just kept getting told she was "studying" it with all the New York State rules. IN OTHER WORDS SHE IS CYA, breaking her oath of "first do no harm"!!!!! I am just sick. Not with withdrawls, I don't get those from narcotics. I am just sick because I was one of the first nurses in NYS to be credentialed to use I-Stop and for a long time the only one in the office who was allowed. I absolutely hate being on this side of health care. I can no longer work d/t inflamatory arthritis with chronic medium to severe pain. I feel like a skeleton, everything hurts. Even my knee replacements. Other than venting, which helped a little. Thank you if you've read all this. I am looking for some guidance in how to find a health care advocate? Thanks and God Bless.
    • ferretmom
      Feb. 24, 2016
      Amen! If you live in n.y. state we're all screwed> The DEA has these doctors so terrified that "do no harm" went right out the window. I was diagnosed with ms in 2005 when I was initially prescribed massive amounts of pain meds. Through the help of my current primary care physician Wed were able to titrate me down from #120 lortab 7.5's & 180 talwin...
      RHMLucky777
      Read More
      Amen! If you live in n.y. state we're all screwed> The DEA has these doctors so terrified that "do no harm" went right out the window. I was diagnosed with ms in 2005 when I was initially prescribed massive amounts of pain meds. Through the help of my current primary care physician Wed were able to titrate me down from #120 lortab 7.5's & 180 talwin nx's per month to #0 lortab &90 talwin nx's (3/day), per month.I was very proud of my ability to cope with my pain and still function. Well, apparently this is not good enough for the DEA. She told me I had been investigated and and accused of doctor shopping and narcotic abuse! The only time I used a different narcotic was POST SURGICAL. Now in N.Y.S. you apparently are not allowed post surgical meds. YOU HAVE GOT TO BE KIDDING ME. Keeping in mind that I always fully disclosed my med list and suspended my regular long-term chronic pain meds until the acute post op pain meds were done. I am now labeled a drug abuser and narcotic seeker. My baseline meds kept me functioning, just barely, on a daily basis. I have to be able to function because I have a fully disabled son who needs constant care. The way she told me was humiliating and I could tell she couldn't care less about me. She was terrified of having her license yanked by the DEA. For the love of Ike, they don't know my medical history or even my diagnoses but they saw fit to dictate my medical care. How is that Okay? Now I won't be able to get appropriate care by any doctor because I have been flagged so they won't want to have anything to do with me. I was so angry That I called theDEA in Albany and demanded an agent come and accuse me to my face. No response!!!!!! There needs to be some reasonable middle ground that allows patients with provable conditions proper pain relief treatments without the docs fearing reprisals. Penalizing an entire population (the rest of nys) because of unethical behavior of some docs , over prescribing or worse prescribing for profit and the addicts narcotic seeking behaviors in the 5 burroughs. I truly believe that most of us tjhat use pain meds for chronic pain are exceedingly careful and take exactly what they're supposed to when they're supposed to. I have since 2005. New York state has lost its' collective mind. Some common sense please. Anyone interested in putting together a class action suit or needs statements please post somewhere where the entire state population will see it. The DEA needs to be reigned in!!! any Ideas or help[?
  • wandatrull
    Jan. 18, 2016
    I have been in chronic pain for about 15 years. about 8 yrs. ago the pain became so unbearable that I had to take an early retirement from my teaching career, which I dearly loved and felt I was an individual who had the kind of love for all human beings and a special concern for children who were struggling and falling farther and farther behind.The pain became...
    RHMLucky777
    Read More
    I have been in chronic pain for about 15 years. about 8 yrs. ago the pain became so unbearable that I had to take an early retirement from my teaching career, which I dearly loved and felt I was an individual who had the kind of love for all human beings and a special concern for children who were struggling and falling farther and farther behind.The pain became so severe about 3 years ago that I felt my only way to cope with the depression, anxiety, and pain was to do as my Bone and Joint Doctor advised, Go to a Pain Clinic. This put such fear in me that I'm sure all my conditions made me worse.I have always been terribly afraid of medications, and this form of drugs terrified me.I cannot even mop or sweep my floors I can lift only the weight of a gallon of milk. I feel like a druggie when I tell doctors that I go to a pain clinic. At that point their whole attitude changes and they quickly let me know there is little they can do to help me. They seem to rush me out and not even care that I am in chronic pain, and all i had to go through just to get up, prepare to come for the patient visit, sit for hours in an uncomfortable waiting room, and then have to go home feeling like less than a human. I am thankful this group has formed. I will do whatever it takes to help each of us get the word to every member of government and every medical, and pharmaceutical company. Just someone let me know what is needed and as much as I can possibly do , I will fight for our human rights! Thank all of you who have agreed to fight the fight. A fight not only for us but for our children , grandchildren, and all that will come after us. God Bless each and every sufferer and you families. I pray our families will be compassionate to understand and help us to get through this Hell we are facing! Many family members don't understand when it's not them going through this illness and pain. May we all trust God who knows our plight, who is by our sides to strength and give us the hope and the strength to hold on to Him. He will lead us through the gate of death, and as was His Son Jesus, we will be resurrected and escorted into His eternal home where we will be forever without pain, suffering ,and death. Let's get going!
    • psherfey2001
      Sep. 06, 2016
      NEW YORK STATE IS FOR THE BIRDS MY COUSIN WHO LIVES IN THE SOUTH GETS MORE THEN ANYONE IN NEW YORK STATE DOES. MY FINANCES IS IN PAIN ALL THE TIME THEY DROPPED HIM FROM 80 MG TO 20 MG AND ONLY 6 A DAY. HIS DOCTOR SAYS IF YOUR IN PAIN DON'T TAKE IT JUST WORK THRU THE PAIN. THEN WHY DO THEY GIVE YOU THE PAIN MEDICINE IF YOUR IN PAIN TAKE IT BUT THE DUMB DR'S...
      RHMLucky777
      Read More
      NEW YORK STATE IS FOR THE BIRDS MY COUSIN WHO LIVES IN THE SOUTH GETS MORE THEN ANYONE IN NEW YORK STATE DOES. MY FINANCES IS IN PAIN ALL THE TIME THEY DROPPED HIM FROM 80 MG TO 20 MG AND ONLY 6 A DAY. HIS DOCTOR SAYS IF YOUR IN PAIN DON'T TAKE IT JUST WORK THRU THE PAIN. THEN WHY DO THEY GIVE YOU THE PAIN MEDICINE IF YOUR IN PAIN TAKE IT BUT THE DUMB DR'S IN NEW YORK STATE SAY NOT TOO. BEEN TRYING TO GET THEM TO INCREASE IT TO 8 A DAY WON'T DO IT. WISH THEY LIVED IN HIS BODY FOR JUST ONE DAY. IT'S GETTING WERE THE DR'S DON'T LISTEN TO THERE PATIENTS THEY ARE AFRAID OF THE STATE. YOU DON'T DO WHAT THE STATE OF NEW YORK TELLS U TO DO I'LL TAKE YOUR LICENCE THAT IS BS IN MY BOOK. WE NEED SOMEONE TO HELP PEOPLE LIKE HIM WHO IS IN PAIN ALL THE TIME. GUESS WE NEED TO GO OUT OF STATE OR GET IT FROM OVERSEAS.
  • sabrinapeters
    Jan. 06, 2016
    I would love to help with the fight against the DEA and Kaiser Doctors with the lack of ability to fight for our needs! My husband and I are already suffering due to the force of reduction of our medications and this is truly a crime against those who need them. In reality if you look at the problem, the DEA are profiling against those who need pain meds! Those...
    RHMLucky777
    Read More
    I would love to help with the fight against the DEA and Kaiser Doctors with the lack of ability to fight for our needs! My husband and I are already suffering due to the force of reduction of our medications and this is truly a crime against those who need them. In reality if you look at the problem, the DEA are profiling against those who need pain meds! Those of us who abide by our contracts and use the medications appropriately are being punished for those who misuse them. Its against the law for the Police to use profiling when enforcing the law so shouldn't it be the same when the DEA use profiling against the medical profession (i.e Kaiser/Legacy Doctors) to reduce and eventually eliminate the use of pain medications to patients in need. Our Doctors say their hands are being forced to do this and our doctors are the ones who know our medical history and what we need to be able to have quality of life. The DEA have no idea what they are doing, they are making a bigger mess than they really know. They are pushing people to the brink and many unfortunate events will unfold...The inability to cope with the pain will force people out of their jobs and have to depend on the system which is already being depleted.
  • allthings721
    Dec. 31, 2015

    I love this simple but passionate, uniting, and absolutely correct statement. 13 years ago, while riding a large but young horse to help a fellow trainer, the horse reared up, causing me to fall directly onto my back and then endure some part of the 1,300lb. horse flipping onto me. This is always fatal type of horseback riding fall, whether they had their helmet,...

    RHMLucky777

    Read More

    I love this simple but passionate, uniting, and absolutely correct statement. 13 years ago, while riding a large but young horse to help a fellow trainer, the horse reared up, causing me to fall directly onto my back and then endure some part of the 1,300lb. horse flipping onto me. This is always fatal type of horseback riding fall, whether they had their helmet, like I did, or not. However, practically EVERY doctor, whether ER or other, looks completely unfazed, (even when they are the one to ask about the origin for my chronic upper back pain!), and rush on to the next seemingly-scripted line. As for your goal of collecting people who are willing to do whatever may be needed to fight for our lost rights as patients, both my fiancé and I live in Birmingham, Alabama. We discovered we suffered the same condition after we met and work to advocate for each other, and anyone else we meet who also have CP and feel helpless. I am shocked by the number of acquaintances, people sitting in the ER, etc. that are desperate with pain. My fiancé has worked in politics up to the national level. We have discussed starting our own pain clinic and have the interest of several doctors. We are beginning to look for investors. The doctors we have seen and really talked to are frustrated. Imagine going through the financial and time-intensive marathon that is medical school, and actually make it to be a doctor, with all of the privilege and responsibility entailed. Then you find out the state laws and federal laws have scared your wokplace into a "policy." The hospital, clinic, or office you now work for is going to disallow you from writing certain medications in certain classes/ schedules. It's never mind your own judgement, we are castrating you here and now. There are doctors that are often seething underneath the "policies" and are looking for a place to truly practice, as they see fit. We need for them to join us in making a stand. And as for the gov't... OUR government needs to realize the War on Drugs is lost, and since prohibition seemingly taught them nothing, the collateral damage is unacceptable.

  • mspighee69
    Dec. 29, 2015
    i have stage 3 copd, arthritis in both hands, carpel tunnel in my right hand and arm, hernia and congestive heart failure, but my doctor treats me like im a drug addict and wont prescribe me pain meds
    • abby
      Jan. 06, 2016
      Under treated pain and untreated pain is unethical and inhumane torture. It is now unacceptable and there are many Government Bills in reference to chronic pain and it being acceptable to treat with narcotics and should be treated. It is wrong in many states look up pain patients bill of rights in your state too. The more we know about our legal rights to pain...
      RHMLucky777
      Read More
      Under treated pain and untreated pain is unethical and inhumane torture. It is now unacceptable and there are many Government Bills in reference to chronic pain and it being acceptable to treat with narcotics and should be treated. It is wrong in many states look up pain patients bill of rights in your state too. The more we know about our legal rights to pain treatment the better we can fight discrimination and cruelty of learn to live with it or get over it its in your head BS. Chronic Pain is a disease of the central nervous system and left untreated is dangerous. Too many have died from doctors neglect to treat there pain or worse cut down or off treatment people undeserving of it from their opioid medications because of fear of addiction or fear they will get in trouble with the law for giving out pain medications. None the less the results are the same chronic pain suffers are suffering in unrelenting pain that don't have to be with the medications available today. Suffering because the media is pushing we are all addicts when in reality studies have found very few get addicted to their pain medication. Dependence on medication is very different then addiction. Both will cause withdrawal if suddenly stopped but addiction is taken when not needed or excessively to get a high etc.... Dependence is from taking it regularly to control pain taken when needed for pain relief not a high etc....Chronic Pain Patients need to continue to speak out as much as we can to get past the mistreatment
  • Smr189
    Dec. 09, 2015
    I'm a retired police officer that was hurt on duty. I have chronic pain but get treated like a drug addict by doctors, pharmacists and hospitals. I'm will to help anyway I can. Also what organizations are out there to help this. I was actually refused my scripts by a pharmacist after doctor and insurance approval. You can contact me at ohiofishking@gmail.com
    • Thomas Grinnell
      Dec. 23, 2015
      I am 46 years old and have had Ankylosing Spondolitis since I was 19 years old. A.S. for short, is an auto-immune disease of the spine and connective tissue often affecting joints including the hips, knees, ankles and feet, shoulders, sternum and ribs. The disease is excruciatingly painful and really affects one's desire just to live. I was diagnosed when I...
      RHMLucky777
      Read More
      I am 46 years old and have had Ankylosing Spondolitis since I was 19 years old. A.S. for short, is an auto-immune disease of the spine and connective tissue often affecting joints including the hips, knees, ankles and feet, shoulders, sternum and ribs. The disease is excruciatingly painful and really affects one's desire just to live. I was diagnosed when I was nineteen years old when I was living in Chico, California. I was working as a surgical tech and was surrounded by Anesthesiologists who all had pain clinics which were nothing more than a glorified one stop steroid injection clinic. These Doctors saw me quickly debilitate and no one offered any help. I was approached by a local paper to do an article on what it is like to be in pain constantly with no help. After doing this article, I could see Doctors and Nurses talking about me, some of them supported me by very few and none would prescribe medication which would help. I went through periods of extreme suicidal thoughts and I was fired from my job at NT Enloe Memorial Hospital, a place i loved to work and a lot of the surgeons loved to teach as I wanted to be an Orthopedic surgeon but as the disease became worse, the pain chronic and severe, I was branded a drug addict and fired from my job all because I asked for help from the Anesthesiologists via their "Pain Clinics". No one offered to help and no one sided with me- verbally anyway. I lost a lot of friends, a girl I loved and wanted to marry but she was a nursing student and I did not want to "drag" her into my war. Finally I had to move to Sacramento as I said I was fired from my job. I began to work for a Surgical Staffing Agency in Sacramento and I was "taken advantage of" by being sent to every difficult and highly technical Surgical Posting from the San Francisco Bay area to places North , South and all around Sacramento and Lake Tahoe as well as Reno. After working and traveling that hard the work slowed and I was forced to take a job at Kaiser Permanente which I loved. I did not approve of Kaisers approach to Pain treatment as it was heavy duty anti inflammatory drugs which were just too dangerous and I was diabetic so I had to avoid drugs hard on my liver and such so narcotics were the ONLY reasonable treatment- in comes Dr. Harvey Rose, Carmichael, Ca who was taken on by the California Medical Board for "over prescribing" which he was not doing, it was simply that no other Physicians wanted to deal with chronic pain so they all found their way to Doctor Rose, and Doctor Rose was the kind of guy who hated to see people suffer so he had many patients and I don't think he ever retired, as a matter of fact he was writing prescriptions for his patients on his death bed, that is the kind of Doctor and human being he was, the kind of person he was. I have no doubt he is an angel in heaven now and still does his best to look out for his former patients and everyone in pain- He did save my life as I was close to putting a bullet in my head when he took on my case so he did "save my life" and I will always remember him fondly. As I said
  • prncsprple
    Dec. 08, 2015
    I have herniated discs lumbar and cervical spinal stenosis. Had to close workers comp case because of bad treatment by dr. Same issues and phrases. Trying to decide what to do about insurance, surgeries needed, and of course pain management. Been BIGGEST issue since hurt, in 2013. I am now researching the net about insurance, waiting periods, need multiple...
    RHMLucky777
    Read More
    I have herniated discs lumbar and cervical spinal stenosis. Had to close workers comp case because of bad treatment by dr. Same issues and phrases. Trying to decide what to do about insurance, surgeries needed, and of course pain management. Been BIGGEST issue since hurt, in 2013. I am now researching the net about insurance, waiting periods, need multiple surgeries by a NEUROSURGEON not orthopedic, which is what workers comp had me seeing. Took 4 months to even get ANY pain medicine from doctor othere than Tramadol. Won't even give muscle relaxer with because of resperation depression... took me off pain meds when I asked if we could increase dose to 3x daily, or next dose up. My primary care wrote him a letter telling him to increase dose, I have a history of chronic high blood pressure skyrocketing when in pain. GP told him to increase. Instead decided I was seeking and took me off completely. He has prescribed 50 MG Tramadol twice daily since. Then I got pregnant while waiting for diagnostic procedure approval... with twins. Yes it was hard. Was on bed rest before pregnancy. My OB and high risk pregnancy drs put me on better meds while pregnant than my regular doctor will give... now I need insurance, surgery asap, have twins that are almost 10 months and I cannot pickup anymore. Heard Obama care isn't good insurance, need AMAZING DR to operate. Wasn't going to have surgery when I first got hurt... I have learned you don't have a choice. I can't live like this. I have no range of motion, but the PAIN IS UNBEARABLE. I LITERALLY just had this conversation with my psychiatrist I've known over 20 yrs and he completely agrees. BECAUSE OF THE LAWS PASSED TRYING TO PREVENT PAIN MEDS ADDICTION, PEOPLE IN REAL CHRONIC PAIN CANNOT GET THEM ANYMORE. IT IS NOT RIGHT. I HAVE BEEN TO ER FOR FLAREUPS MORE TIMES THEN I CAN COUNT. I need surgery ASAP, heard Obama care options are not good. MIL said to look into Kaiser because they have no waiting period, or its only 15 days. I don't know what to do. Does Kaiser even havery good back surgeons? Do they have othopedic drs or neurosurgeons operate? The whole reason I am settling my case is to take my medical care in my own hands, but don't know what to do. I was planning to marry my fiance and get private insurance, but apparently from what I've found there is a one year waiting period on preexisting conditions. But the main reason I need my medical care not in workers comps hands is so my care is not in someone else's hands. Is Kaiser my answer or just another problem? And how bad are they with pain medication? And if you don't agree with your doctor, what is the policy? Do you get to see another or are you stuck? PLEASE RESPOND I'M DESPERATE and miserable. Stenosis FLAREUP on Thanksgiving from picking up one of my babies left me in tears while everyone was eating. In so much pain next week the only reason I didn't go to ER is uninsured. My stenosis is worse than thought. It's bad enough I was having weakness in legs. So recommendations? Get Kaiser and deal with them? Obama care? If I go to kaiser and I going to be stuck in the same boat in a different lake??? The othere reason I didn't go to hospital is because I didn't want to be treated as drug seeking. It's getting old. All drs are terrified to write a prescription anymore. I've had three tell me I need pain management. Well can you write me a referral? No, they all say you need pain management and pain medicine, but won't even write referral. You can't be seen without. I cannot get one because of workers comp doctor. I also have RA, triggered after pregnancy. I cannot take care of my own children. I can't even help the nanny I pay money I don't have to take care of my beautiful twins I always wanted because I am in TOO MUCH PAIN. If I don't have pain medication, I cannot move, literally. I understand maybe drug addicts were able to get medication too easily, but do people with CHRONIC PAIN, ILLNESSES AND INJURIES GALORE NOT HAVE RIGHTS TOO? EVEN PHARMACIES TREAT YOU LIKE UR AN ADDICT. LIKE I WHEN I WAS 34 WEEKS PREGNANT WITH TWINS, HERNIATED LUMBAR DISC, CERVICAL STENOSIS IN NECK. I WAS USING TWO CANES. I HAD TO GO TO 3 PHARMACIES TO EVEN GET IT FILLED, NO ONE HAD IT (JUST PERCOCET). WHEN I FOUND ONE THAT HAD IN STOCK THE WOMAN TREATED ME HORRIBLE. LIKE I WAS SWITCHING PHARMACIES BECAUSE I'M A DRUG ADDICT THAT IS PREGNANT WITH TWINS AND USING TWO CANES TO PLAY IT OFF? ?? AND LIKE I TOLD HER, I JUST MOVED HERE. I'VE BEEN USING THE FURTHER LOCATION STILL BECAUSE THEY ARE 24 HRS, THIS IS THE CLOSEST ONE TO ME AND IF YOU HAVEN'T NOTICED BY LOOKING AT ME I DON'T GET OUT MUCH, TOO MUCH PAIN. POINT IS MY QUALITY OF LIFE SUCKS. I'M A VET TECH. IF I WERE A DOG, THEY WOULD SAY INCREASE PAIN MEDS OR PUT TO SLEEP. I'VEVERYTHING HAD DOGS ON 4X THE AMOUNT OF TRAMADOL THEY GAVE ME. TRAMADOL IS A JOKE OF A MEDICATION ANYWAY. DOESN'T WORK AT ALL. SYNTHETIC. WORSE FOR YOU THEN REAL OPIATES. TO PUT IN PERSPECTIVE WHAT IS ACTUALLY NEEDED FOR PAIN, OB CALLED IN PAIN MANAGEMENT BECAUSE Dilaudid IV every 4 hours and Percocet every 4 (so one every 2 hrs) DID NOTHING. I THOUGHT NURSE WASN'T EVEN GIVING ME THE DILAUDID. PAIN MANAGEMENT WAS CALLED IN. SHE WAS WONDERFUL AND FINALLY HELPED... TWO WEEKS LATER CALLED AND SAID SHE NEEDED REFERRAL FROM NEUROSURGEON SINCE NOT PREGO ANYMORE, NEEDED A CURRENT REFERRAL FOR LEGAL REASONS. WHICH WORKERS COMP WON'T LET ME SEE... SO I CANNOT GO UNTIL I GET ALL OF THIS FIGURED OUT. BUT MY DECISION ON INSURANCE WILL BE BASED ON MY BACK, THE ROOT OF ALL PROBLEMS. I NEED RECOMMENDATIONS FROMY ANY AND ALL REGARDING SPINAL ISSUES, QUALITY OF CARE FOR OBAMA CARE AND KAISER. NEED TO KNOW IF ANYONE CARES THAT I HURT SO BAD I, CAN'T WIPE MYSELF ON TOILET BECU
    • prncsprple
      Dec. 08, 2015
      Accidentally hit post. Point is, I the most painful thing i do every single day of my life is to try to turn and wipe myself on toilet. I have IBS, so I am there often. Since I got hurt, I've been in tears at least 75% of the time I've seen my doctor, as I AM MOST DAYS OF MY LIFE SINCE INJURY. I have told my Dr that I cannot wipe and barely able to bathe but...
      RHMLucky777
      Read More
      Accidentally hit post. Point is, I the most painful thing i do every single day of my life is to try to turn and wipe myself on toilet. I have IBS, so I am there often. Since I got hurt, I've been in tears at least 75% of the time I've seen my doctor, as I AM MOST DAYS OF MY LIFE SINCE INJURY. I have told my Dr that I cannot wipe and barely able to bathe but once a week because of PAIN.... HAVE DOCTORS FORGOTTEN THAT HIPPOCRATIC OATH? THAT DO NOT HARM APPLIES TO PEOPLE IN CHRONIC PAIN AS WELL AS THOSE WITH SUBSTANCE ABUSE ADDICTIONS? WHEN DID PEOPLE WITH REAL MAJOR PROBLEMS AND PAIN RIGHTS' BECOME 2ND TO DRUG ADDICTS? ALL DOCTORS EVERYWHERE IVE SEEN WILL AGREE WITH ME (except the one that matters), YES IT'S TOO HARD FOR PEOPLE IN REAL PAIN TO GET HELP THESE DAYS.... I REALLY FEEL FOR YOUR I WISH THERE WAS SOMETHING I COULD DO... ADVOCATE FOR PATIENTS. WE ALL NEED SOMEONE IN THE MEDICAL FIELD WILLING TO STAND UP AND SAY THIS IS BECOMING A REAL PROBLEM. I LIVE IN GEORGIA, WHERE (I DIDN'T KNOW THIS) EVIDENTLY THE GOVERNMENT THINKS THERE IS A PILL PROBLEM. JUST CHANGED LAWS AGAIN. I DON'T UNDERSTAND HOW ADDICTS ALWAYS HAVE DRUGS, BUT PATIENTS CANNOT GET MEDICINE? ????
    • prncsprple
      Dec. 08, 2015

      I AM AT A LOSS. DO NOT KNOW WHAT TO DO. I HAVE MY DREAM FAMILY NOW, BUT I CANNOT PARTICIPATE IN IT BECAUSE OF THE CURRENT STATE OF THINGS REGARDING PAIN CONTROL. WHAT PART OF I CAN'T NOT EVER MOVE MY BODY AGAIN FOR THE REST OF MY LIFE, I HAVE TO MOVE, AT LEAST A LITTLE WITHOUT SCREAMING OUT IN PAIN, FALLING TO THE GROUND, LAYING IN THE FETAL POSITION ON THE...

      RHMLucky777

      Read More

      I AM AT A LOSS. DO NOT KNOW WHAT TO DO. I HAVE MY DREAM FAMILY NOW, BUT I CANNOT PARTICIPATE IN IT BECAUSE OF THE CURRENT STATE OF THINGS REGARDING PAIN CONTROL. WHAT PART OF I CAN'T NOT EVER MOVE MY BODY AGAIN FOR THE REST OF MY LIFE, I HAVE TO MOVE, AT LEAST A LITTLE WITHOUT SCREAMING OUT IN PAIN, FALLING TO THE GROUND, LAYING IN THE FETAL POSITION ON THE FLOOR BAWLING BECAUSE PAIN MANAGEMENT IS NOT A CONCERN FOR DOCTORS ANYMORE. THE DEA, LAWS, AND DOCTORS AFRAID OF LAWSUITS AND LOSING THEIR LICENSE.... I JUST WANT TO FUNCTION. EVEN AS A HANDICAP PERSON. I CANNOT DO ANYTHING FOR MYSELF. CAN'T EVEN GET OWN DRINKS OUT OF FRIDGE. I CAN IF I'M ON MEDS, OTHERWISE MY FIANCE, WHOM IS ALSO DISABLED, HAS TO DO EVERYTHING FOR ME. DID I MENTION WE HAVE INFANT TWINS? OH AND THAT I'M AN ANIMAL PERSON. A RESCUER OF ANIMALS WITH SEVERE PHYSICAL PROBLEMS. I GOT HURT HELPING DOGS... POINT IS MY LIFE DIDN'T STOP WHEN I GOT HURT, BUT MY ABILITY TO PARTICIPATE IN IT DID WHEN THEY DID ALL OF THIS WITH PAIN MEDS. IT'S RIDICULOUS. IT'S DISGUSTING. DID ANYONE NOT THINK ABOUT US PEOPLE WITH CHRONIC PAIN BEFORE PASSING ALL THESE LAWS. I AM AWARE AND I AGREE THAT ADDICTION IS AN ILLNESS. BUT IT IS ONE THAT REQUIRES ACTIVE PARTICIPATION. DRUGS DON'T JUMP IN ADDICTS BODIES. THEY PARTICIPATE. YET IT IS AN ILLNESS THAT IS PROTECTED, RIGHT? BUT AN ADDICT CAN GET METHADONE FOR TREATMENT, CORRECT? BUT I CANT GET ANYTHING FOR MY CHRONIC PAIN THAT HAD HANDICAPPED ME FOR THE REST OF MY LIFE... MAKES TONS OF SENSE TO ME??? I HAD NO PARTICIPATION, DID NOT CONTRIBUTE TO INJURY CAUSING CHRONIC PAIN, MY ILLNESS. YET I AM FORCED TO HURT AND SUFFER. I DON'T THINK MANY PEOPLE HAVE ANY IDEA WHAT SOME OF US GO THROUGH PAIN WISE EACH AND EVERY SECOND OF THE DAY.... AND NIGHT BECAUSE YOU CAN'T SLEEP FROM YOUR PAIN... ANYONE HAVE ANY ANSWERS??

    • Cdwprof
      Jan. 21, 2016
      Hello - I just saw your post, and my heart truly goes out to you - I have lived with chronic pain for many years, and I can't imagine how difficult it must be for you to not be able to be the mother you want to be for your beautiful babies - I am so, so, sorry! Something that has been a tremendous help to me is something called "Kratom". Have you heard of it?...
      RHMLucky777
      Read More
      Hello - I just saw your post, and my heart truly goes out to you - I have lived with chronic pain for many years, and I can't imagine how difficult it must be for you to not be able to be the mother you want to be for your beautiful babies - I am so, so, sorry! Something that has been a tremendous help to me is something called "Kratom". Have you heard of it? It is a plant, in the same family as the coffee plant, that works in much the same way as opiate pain killers. The best part is, you don't need a prescription. Here's a link to some useful information: http://www.kratomforcheap.com/. Understand - Kratom comes with its own set of challenges, but, it also comes with blessed pain relief! Good luck to you - God bless, and whatever else you do, DO NOT GIVE UP!! Whenever you are discouraged, just rememberthat God chose you to be the mother of those two precious, perfect, little angels - and after everything you (and your husband) have been through, you must be a pretty amazing person!!
  • wishingitwereover
    Dec. 01, 2015
    I was just diagnosed a little over a year ago with RSD after having surgery of first dorsal compartment release. It was diagnosed within only 7 days after surgery. Worst part? It's workers comp. So, I went as long as I could with the pain before I physically could not take it another minute which was 7 1/2 months. I also have fibromyalgia, chronic migraines,...
    RHMLucky777
    Read More
    I was just diagnosed a little over a year ago with RSD after having surgery of first dorsal compartment release. It was diagnosed within only 7 days after surgery. Worst part? It's workers comp. So, I went as long as I could with the pain before I physically could not take it another minute which was 7 1/2 months. I also have fibromyalgia, chronic migraines, painful women issues and problematic issues, anxiety, depression. Going through this entire process which is not even close to being over has rendered me into major depression, and heightened my anxiety. Which now are also allowed on my claim. I am having separate attorneys working on my SSDI case which will be another 12-16 month wait since the first 2 were denied (they believe due to my age) not taking a look at the fact that I am on MS contin 2 times a day and Dilaudid 4 times a day along with 8 other medications to where I am taking 25 medications total in a day and still in pain. Mentally and physically. Everyday is a fight in which I have to want to live. I pray everyday and night for it to be my last and for God to please just let me go in my sleep and let me come be in heaven. I am tired, I am alone, I am in pain, and my family doesn't get what I am going through. If it wasn't for the great pain doctor I have that he has been so generous and patient and working with and knowing what a beast RSD is alone I don't think I would have made it this far. I still have to keep pushing to make it but at least I know there are some good doctors out there that do care. I wish there were more. Trust me. I don't know what I will ever do if he retires. Ha or if i will be around to see that. I just know too many people are suffering because of those who NOT only ABUSE the medications but that go into pain management and SELL their medications. It makes it worse on those of us truly suffering. That's where a bigger stand has to be taken and these people need to stop getting chance after chance while we are given once (so it feels and a lot of times is true) God bless each and every one of you.
  • Doc Anonymous
    Nov. 23, 2015
    People are saying that they want to participate in improving access to pain care and limiting the detrimental impact of the DEAs war on pain patients. Here is some thing that is easy to do: Sign this petition from other people who feel the same way. A little bit harder step would be to spread the word and for each one of us to get 10 more people to sign: http://petitions.moveon.org/sign/let-doctors-prescribe
    • curtss74
      Feb. 01, 2016
      I have been waiting on 2 knee replacements also neck and back surgery. And many more ailments. It's been months since I have heard from my surgeon. No pain meds or not even a return call. I am virtually a prisoner in my own home. I can barely walk. The pain is unbearable. What can I do?
    • anita.nerio
      Mar. 11, 2016
      I am 2 weeks post cystocele /rectocele repair and learned yesterday I am not healing properly and may have to have a repair..I go back to check next week. I have no history of abusing any kiND of medication and took my pain meds less than prescribed when I was discharged. I am still in a lot of pai, as it takes 6-8 weeks for stitches to begin dissolving and...
      RHMLucky777
      Read More
      I am 2 weeks post cystocele /rectocele repair and learned yesterday I am not healing properly and may have to have a repair..I go back to check next week. I have no history of abusing any kiND of medication and took my pain meds less than prescribed when I was discharged. I am still in a lot of pai, as it takes 6-8 weeks for stitches to begin dissolving and falling out. I advised I needed more pain medication and the doctor looked at me almost in horror and said " You had 60 pills and it isn't NORMAL for you to have pain at 2 weeks. My RX was to take w every 4 hours and be sure to stay ahead of the pain. I point he this out that at 16 days post surgery, obviously I am out, without abusing. They gave me 30 pills and said we can give you no more pain medicine after this like I was a drug addict.I felt degraded and disgusted and will report this. This dr. Did this after examining and seeing get I am not even healing properly! I have extreme Osteoarthritis in my neck, shoulders and back documented by MRI in 2009. My doctor for years before I moved back to DFW area did offer me pain meds, but, I refused, as I did not know when I could have surgery to stop the progression of C4 thru C-7 Injury due to no insurance. And, I know pain meds are hard on your organs. The pain became constant and almost unbearable, but I still worked and quality of life went down greatly. I worked out most of my life and ate well, no smoking or drinking or drugs. I got insurance last year and had triple acdf surgery, which has been a total success, But I am still healing, but it does not stop the chronic arthritis pain and my cspine specialist stated it wouldnt. Injections for pain management haven't helped, so I am on nothing. OTC pain meds do not touch it. I have tried non narcotic pain meds in the past to no avail. I understand if you overuse, do not have a condition or surgery, the need to halt or not prescribe to this type of patient. But it is not my case and I am sngry, embarrassed and can't get my quality if life back that I miss desperately. I tolerate narcotic pain meds well, office from home for my job and would never take meds and drive, even though I feel alert on them. What can we do about this? 2 weeks post surgery this is the final straw. I am not a drug addict, have no history of this and I want my doctor to make me comfortable and manage my painI ke they are supposed to do. I have had a lot of physical therapy and even accupuncture which helped get me strong again, but my chronic pain is ruining my life. Please tell me what to do. I feel helpless and brushed aside my the medical profession at this point. Thank you.
  • missyjo2772
    Nov. 16, 2015
    I am a chronic pain patient and have been since about 99. I have been poked and done physical therapy and even tried being hypnotized...everything short of surgery because the things wrong wld just worse I'm being told. I am 37 years old and have fibro myalgia, psyatic sac and nerve disease, I have 4 hurniated divs and 3 bulging g discs, I have a rib disease...
    RHMLucky777
    Read More
    I am a chronic pain patient and have been since about 99. I have been poked and done physical therapy and even tried being hypnotized...everything short of surgery because the things wrong wld just worse I'm being told. I am 37 years old and have fibro myalgia, psyatic sac and nerve disease, I have 4 hurniated divs and 3 bulging g discs, I have a rib disease I that is a long name but it's where one of my ribs is deformed so it causes my spine to b out of wack, I also have a bad right knee, I had a broken collar bone for 2 years and ended up with surgery, and I have been in 3 bad car accidents one as early as this last year and one in 2002 I actually died in, the list goes on... I have messed up in the past but haven't for over 5 years now and then my Dr tells me the DEA is cracking down and my pain isn't bad enough for meds but he said his opinion is that yes I do need to b on meds. I have been on fentenyl patch now for about 9 years and currently have been on 100mcgs and never asked to b upped for the 5 years I have been on 100's I just switched brands that had a lil more fentenyl so that I cld up self but now they are telling me at a cash clinic cuz I have had no luck with Dr's at clinics that DEA is cracking down and needs to cut me way down!!??? And I have never messed up or asked for more and I have been with this clinic for 2 years!! I have so much to say about this but I wld end up with a book on here. I am in mn does anyone know where I can find a dr or clinic that is not scared to prescribe meds!? Plz help Thanks I am at a loss
  • Jj
    Jj
    Nov. 16, 2015
    Hello I am a chronic pain sufferer, diagnosed with CRPS (RSD) a decade ago, because of a Drs mistake. I'm the past few years I have seen my level of care drop drastically because Drs are petrified to help. I am looking to get involved with an advocacy group. I feel we must seriously start fighting for our rights back. I do fear for my survival. I know there...
    RHMLucky777
    Read More
    Hello I am a chronic pain sufferer, diagnosed with CRPS (RSD) a decade ago, because of a Drs mistake. I'm the past few years I have seen my level of care drop drastically because Drs are petrified to help. I am looking to get involved with an advocacy group. I feel we must seriously start fighting for our rights back. I do fear for my survival. I know there had to be many people in my position. Can someone give me some information?
    • Thomas Grinnell
      May. 24, 2016
      Who is ultimately responsible for this? Unwilling government at the State and Federal level to which as a group pain patients need a lawyer or better yet, a firm of lawyers. I am willing to do whatever necessary to assist others in pain like me. I cannot walk away as that would be unethical and personally unavoidable so lets get together and bring this to the...
      RHMLucky777
      Read More
      Who is ultimately responsible for this? Unwilling government at the State and Federal level to which as a group pain patients need a lawyer or better yet, a firm of lawyers. I am willing to do whatever necessary to assist others in pain like me. I cannot walk away as that would be unethical and personally unavoidable so lets get together and bring this to the federal level and make sure suffering from pain becomes an issue of the past in the United States...maybe move to a country like Thailand where you can purchase these medications over the counter. I know this brings up a plethora of new problems but just news of something like this will put a lot of fear into Doctors and other health professionals who feel we should suffer in silence. FRANKLY
  • Jamie
    Nov. 13, 2015

    I am defiantly up for helping to organize a plan of action against our own government gif taking away our medications. I too am in chronic pain with several diseases and I just got thrown in the frying pan by my doctor. After finally getting sable on medications my doctor decides to leave her position. I am left trying to find a doctor to manage my pain. It...

    RHMLucky777

    Read More

    I am defiantly up for helping to organize a plan of action against our own government gif taking away our medications. I too am in chronic pain with several diseases and I just got thrown in the frying pan by my doctor. After finally getting sable on medications my doctor decides to leave her position. I am left trying to find a doctor to manage my pain. It is clear to me after interviewing these cowardly doctors that they have found a sweet spot for billing addition fees to insurance. Let's do somethings!

  • shane
    Nov. 03, 2015
    Doctors and our government is now hated by its own people. They say they are fighting the war on drugs,guess that is why they have taken even the smallest dose of medicine from the elderly and ones that have been hurt. How dare them. They are evil heartless creatures that have made good people suffer, they have ruined lives and families. The so called doctors...
    RHMLucky777
    Read More
    Doctors and our government is now hated by its own people. They say they are fighting the war on drugs,guess that is why they have taken even the smallest dose of medicine from the elderly and ones that have been hurt. How dare them. They are evil heartless creatures that have made good people suffer, they have ruined lives and families. The so called doctors of the USA take a oath to keep people from sickness and pain,yet that is all they have caused. They should and will be hated by all. They are spineless skum of the earth for what they have done. They have turned the people again them and helped distroy our country.
  • oahumike96817
    Oct. 29, 2015
    My pain doctor has been giving me hydromorphone (4mg bid), and norco. When the norco stopped working, he started morphine sulfate 30mg ER that didn't work so he then have me 15 mg oxycodone.( in fairness I took 3 on an empty stomach and was taken to hospital for 2 hrs. This is the reason my dr released me after one mistake in 2 years.o have scoliosis, spondilosis....
    RHMLucky777
    Read More
    My pain doctor has been giving me hydromorphone (4mg bid), and norco. When the norco stopped working, he started morphine sulfate 30mg ER that didn't work so he then have me 15 mg oxycodone.( in fairness I took 3 on an empty stomach and was taken to hospital for 2 hrs. This is the reason my dr released me after one mistake in 2 years.o have scoliosis, spondilosis. I also have a drop for that hurts tremendously. I have perineal neropothy in that leg. I also suffer from reocurrins carpal tunnel syndrome on one hand and SEVERE cubital tunnel on both hands. I suffer a fracture at my L5/S1,sciatica down left leg drop foot leg). I have a degenerating disc in thorasic spine. With out my meds I have many days I can't even get out of bed. At least with meds I can make it to grocery store but NO MORE. I'm a homebound disabled man of 55. With the lack of meds I'm stuck. How can a respected Dr or likely a different a new Dr get me back on the meds I must have to survive? Thanks oahumike96817@gmail.com
  • Littleagle
    Oct. 22, 2015
    I don't know how many of you are still out there living in fear of our government's over reach using suspicion less searches on people in pain I want you to know that I will be seeing an attorney this week to discuss filing a class action lawsuit over this intrusion. We will need all the help we can to pull this off. If you are interested being added to the...
    RHMLucky777
    Read More
    I don't know how many of you are still out there living in fear of our government's over reach using suspicion less searches on people in pain I want you to know that I will be seeing an attorney this week to discuss filing a class action lawsuit over this intrusion. We will need all the help we can to pull this off. If you are interested being added to the list to be updated as to my progress just send me an email at Littleagleye@gmail.com. The only way we can win back our rights is to stand together as a Group united for one cause, the restoration of the Fourth Ammendment. Gary Arizona
    • designteam2011
      Oct. 25, 2015
      I am totally interested in becoming part of this class action suit....I will email you right now.. Patricia
    • 5280
      Oct. 29, 2015
      I am also at the point of looking for legal action to help me get back to control over my pain. No wonder the suicide rate is soaring after the DEA/FDA's new controls on pain meds. Responsible people are now left with nothing and being told to take anti-depressants instead. Never clinically depressed because of pain, which was controlled for almost 20 years...
      RHMLucky777
      Read More
      I am also at the point of looking for legal action to help me get back to control over my pain. No wonder the suicide rate is soaring after the DEA/FDA's new controls on pain meds. Responsible people are now left with nothing and being told to take anti-depressants instead. Never clinically depressed because of pain, which was controlled for almost 20 years with a total of no more than 5 Norcos/day, and now cut off from those meds, I am falling into depression because I can barely function with no control over my pain. The NSAIDS are causing additional pain in my stomach and do not come close to taking the edge off the pain. After trying the anti-depressants and feeling worse, I refuse to take anti-depressants to control pain due to back and nerve problems verified with MRIs and nerve tests. Weight gain from anti-depressants contribute to increased pain in my back and hips, as the CATCH 22 related to pain/exercise also continues. I am being pushed to undergo back surgery which I do not want, but almost willing to try because I can't handle the constant pain anymore. I fear I will still be in pain after surgery (heard of ONLY TWO people NOT pain free after back surgery). Does anyone else feel part of some sick experiment by suddenly being denied pain control and then having anti-depressants and/or surgery pushed at you? Way beyond frustration, I am so angry the Government and doctors are making responsible people, who for years followed doctors' instructions and never had an issue with pain meds, pay with their lives, all because of drug abusers and of course the mob mentality against the meds fueled by the media . See another blog "PAIN MEDICINE - ABUSE Da JOUR" at http://5280kpop.blogspot.com/?m=1 I am being harmed by being forced to live with this level of pain.
    • moonbunny
      Nov. 04, 2015
      Hi Gary! Just saw your post and your invitation to a class action suit. Absolutely, count me in. I've been contacting attorneys and sending my 8 page complaint to ACLU, Arizona Medical Board, Arizona Nursing Board just to start. I also just sent my story to AZ central news. I'm not done. I won't stop until I'm heard. This involves my 17 year old daughter and...
      RHMLucky777
      Read More
      Hi Gary! Just saw your post and your invitation to a class action suit. Absolutely, count me in. I've been contacting attorneys and sending my 8 page complaint to ACLU, Arizona Medical Board, Arizona Nursing Board just to start. I also just sent my story to AZ central news. I'm not done. I won't stop until I'm heard. This involves my 17 year old daughter and her pain management. Dr. Wad dismissed her. Long story short, because I was asking questions. Soooooo wrong. I'm sooooo done. I would love to support your class action lawsuit. If you're still in motion with this I'd like to figure out a way we could find a more secure way to exchange contact information. Toodles for now................
    • ldld1
      Nov. 06, 2015

      Yes, lets get a big class action suit going against this abrogation of our first, fourth and fifth amendment rights. There should be millions in it for the legal eagles because at the root of it is the not so invisible hand of the insurance companies running the medical field from top to bottom: Anything to jack up the rates. Pain centers, expensive drug screenings...

      RHMLucky777

      Read More

      Yes, lets get a big class action suit going against this abrogation of our first, fourth and fifth amendment rights. There should be millions in it for the legal eagles because at the root of it is the not so invisible hand of the insurance companies running the medical field from top to bottom: Anything to jack up the rates. Pain centers, expensive drug screenings paid for by the suspect himself! What kind of fools are we? You get to the donut hole a lot faster if you are paying for a drug screening every time you go in to pick up your meds. And what is the only point of the test? Nothing medical; no, nothing to help you, it is a data base of evidence for the Drug Enforcement Agency to use against you!!! When did the doc's become narcs? And why should we help them to do that? I thought the drugs you get in a Doctors officer were legal by definition?!! How do you trust any part of this system? No other country does this to old guys with nerve damage. The Reagan revolution: America....First to worst. Now Nancies vast army is marching around your doctors office in their kevlar nazi suits and little machine guns looking amoung the retirees for Kingpins. And the creepy way it makes you feel just to go to the doctor anymore; everybody accusing you with their eyes, as much as saying out loud "here's your cup con, any slip ups and its curtains for you!" Having nerve damage is now a crime, don't you just love a medical system run by an insurance oligopoly? Let's figure a way to quantify pain, maybe use their own actuarial guys to do it and then sue them for one dollar a milligram for all the missing; held up and prescribed under duress (those illigal urine test contracts), pain pills. I think the pain centers (and their insurance company affiliate owners) will settle early with the doctors and ligitimate patients will get there meds without criminal suspicion and illigal search. L W Strother

    • poppia
      Nov. 18, 2015
      greetings , I have a file of information how the government agenda forced propaganda about veteran administration the new drug dealer to vets , the statement by doctor in front of congress about veterans suicide corresponding to not getting medication and using opiats to overdOSE , they used this fact to take away their rights to access opiates for long term...
      RHMLucky777
      Read More
      greetings , I have a file of information how the government agenda forced propaganda about veteran administration the new drug dealer to vets , the statement by doctor in front of congress about veterans suicide corresponding to not getting medication and using opiats to overdOSE , they used this fact to take away their rights to access opiates for long term care . Forcing pain patients off meds is torture , pain patients that are physically dependant is dangerous and leeds to major disability and new inability for normal function . This is well established with those who abuse opiates and rely on the detox profession to keep them well . The same is the right of pain patients , instead they have forced them into withdrawal without medical supervision or access to the absolute right to continue on opiates , They have tortured our military men and women by denieng them the same protections as those addicted to heroine . Many Vets committed suicide because the VA played with their well being after becoming dependent on these drugs . We know the real harm as brain envolvement is well established , the reason that they want to avoid opiats for long term care . This fact does not relieve them of absolut responsibility to continue to take care of those who are physically dependant on these drugs . This law suit must protect all such incidents access to opiates for life and the choice of alternative options , what the individual needs to restore health and function . The long term problem is a problem of liability as patients are able to sue doctors for aDDICTION . dRUG TESTING PAIN PATIENTS THAT ARE DEPENDANT , MEANING DISABLING WITHDRAWAL AND PHYSICAL DEPENDANCE IS A CRIME . tHE DEA must grow our own supply as long as the medical establishment relys on this drug , it is a miracle and curse , most all who function because of it would be willing to protect access as medications for function as insulin and heart meds . WE need to get it right . Perhaps a statement of patients rights to be established to avoid lawsuits would be more effective , my regards , Janine
    • poppia
      Nov. 18, 2015
      greetings , I have a file of information how the government agenda forced propaganda about veteran administration the new drug dealer to vets , the statement by doctor in front of congress about veterans suicide corresponding to not getting medication and using opiats to overdOSE , they used this fact to take away their rights to access opiates for long term...
      RHMLucky777
      Read More
      greetings , I have a file of information how the government agenda forced propaganda about veteran administration the new drug dealer to vets , the statement by doctor in front of congress about veterans suicide corresponding to not getting medication and using opiats to overdOSE , they used this fact to take away their rights to access opiates for long term care . Forcing pain patients off meds is torture , pain patients that are physically dependant is dangerous and leeds to major disability and new inability for normal function . This is well established with those who abuse opiates and rely on the detox profession to keep them well . The same is the right of pain patients , instead they have forced them into withdrawal without medical supervision or access to the absolute right to continue on opiates , They have tortured our military men and women by denieng them the same protections as those addicted to heroine . Many Vets committed suicide because the VA played with their well being after becoming dependent on these drugs . We know the real harm as brain envolvement is well established , the reason that they want to avoid opiats for long term care . This fact does not relieve them of absolut responsibility to continue to take care of those who are physically dependant on these drugs . This law suit must protect all such incidents access to opiates for life and the choice of alternative options , what the individual needs to restore health and function . The long term problem is a problem of liability as patients are able to sue doctors for aDDICTION . dRUG TESTING PAIN PATIENTS THAT ARE DEPENDANT , MEANING DISABLING WITHDRAWAL AND PHYSICAL DEPENDANCE IS A CRIME . tHE DEA must grow our own supply as long as the medical establishment relys on this drug , it is a miracle and curse , most all who function because of it would be willing to protect access as medications for function as insulin and heart meds . WE need to get it right . Perhaps a statement of patients rights to be established to avoid lawsuits would be more effective , my regards , Janine
    • abby
      Nov. 18, 2015
      I am also interested in filing a class action suit for the chronic pain being inflicted on legitimate pain patients in the pursuit on the drug war caused by abusers drug addicts. Addicts and pain patients are not the same they need to stop lumping us together in one category we aren't criminals we are patients and whats happening is cruel inhumane torture being...
      RHMLucky777
      Read More
      I am also interested in filing a class action suit for the chronic pain being inflicted on legitimate pain patients in the pursuit on the drug war caused by abusers drug addicts. Addicts and pain patients are not the same they need to stop lumping us together in one category we aren't criminals we are patients and whats happening is cruel inhumane torture being inflicted on pain patients by reducing working high dose opioid treatments out of fear of abuse. Even when there is no sign of abuse this must be stopped. But because high doses of opioids for pain relief in chronic pain is not understood people are being forced into to endure torture from unrelenting pain. Doctors and ins. co.'s and workers comp. review boards are cutting people off from life saving treatment and the only treatment that gives them relief from unrelenting pain is an atrocity we have a humane right to pain relief and a quality of life like everyone else. Another driving factor is the high cost for many of these medications is why they are being pulled away because the ins and work comp co.'s don't want to pay these high prices for your pain relief so they are found unacceptable reduced or cut off from the only pain relief you had. After years of successful pain relief without any dose increases in 8 years even though there has not been even a single incident of abuse or misuse I am now being cut down and off because a work comp review doctor claims it to be an unacceptable treatment. Regardless of my ongoing pain relief regardless of the facts that I have never failed a drug test regardless of the fact I have never ever abused or misused my opioid pain medications. I started oxycontin almost 18 years age and after all those years not a single incident of abuse or misuse but because it is so extremely over priced ins and work comp co.'s don't want to pay for it. I soon will be like many others in too much pain to fight so while I can I am going to fight. We have to fight or its going to make law abiding citizens criminals to just get a little pain relief or in the worst cases they will commit suicide as so many already have.
    • Thomas Grinnell
      Dec. 23, 2015

      I am VERY interested in a class action Law suite and get a hold of me anytime. - Thomas Grinnell

    • wife of man treated inhumane by medical profession
      Jan. 17, 2016

      My husband has severe diabetic nueropathy he was prescribed 40mg. Oxycontin. 3x a day for 7 mths. We moved the new Dr. Continued the Oxycontin 40 mg. 3x aday & added oxycodone 5mg. 3x aday. The nurse gives him a .UA . Makes him pee twice .my husband has iron overload in his blood scirrossis of the liver help-c. Out of control insulin dependant diabetes.takes....

      RHMLucky777

      Read More

      My husband has severe diabetic nueropathy he was prescribed 40mg. Oxycontin. 3x a day for 7 mths. We moved the new Dr. Continued the Oxycontin 40 mg. 3x aday & added oxycodone 5mg. 3x aday. The nurse gives him a .UA . Makes him pee twice .my husband has iron overload in his blood scirrossis of the liver help-c. Out of control insulin dependant diabetes.takes. over counter zantac 75 for indigestion . Has very high liver enzymes etc.the liver.UA cameback. Positive. For illicit street drug. His Dr. Is out of the country the nurse cuts him off from the fill in physician and refuses withdrawal medication for him etc. It was a false positive. .UA THAT SAME DR. ACCEPTED HIM BACK AS A PATIENT NOW PRESCRIBES HIM TRAMADOL 50 MG. 3 X ADAY A SCHEDULE 4 DRUG IN OREGON. It's. (NOT-NARCOTIC ) drug it's a psychotic drug for seizures and other ailments that work on the pain nuero -septers of your brain. Blocking pain .now they want a pain contract for that medicine too.tying to make it a SCHEDULE 2 drug. It's wrong to invade the person. Dtone. Shouldn't be responsible for a PATIENT activities in their personal life . Pain contracts should be for controlling that. The patient isn't. Seeing more than one prescribing. physician. For pain meds. And the drug dealers aren't taking advantage. And the .UA should' be to monitor that the patient is getting enough medication and not too much medicine. FAct all the antibiotics that didn't work to save his leg from amputation. Recently almost killed him. Has caused him serious medical problem . He was on life support for several days from antibiotics that didn't work but was continually prescribed them anyways with no regard to his flora and good bacteria being. Killed off. And a hospital. Put him on a PCA morphine pump. His heart stopped & they blamed the patient. With good pt. Dr. Relationship. Good. Dr. Care. Good communication .

    • Jillpat67
      Mar. 16, 2016
      Gary, I'm not sure if your in Arizona, but I live in NJ but travel a few times a year because my kids and grandchildren live there. I was in a very serious car accident March 18, 2008 and have had many surgeries, many of them failed, and I've been on pain medication ever since. I've had doctors lower my medication of I complained about all the injections I...
      RHMLucky777
      Read More
      Gary, I'm not sure if your in Arizona, but I live in NJ but travel a few times a year because my kids and grandchildren live there. I was in a very serious car accident March 18, 2008 and have had many surgeries, many of them failed, and I've been on pain medication ever since. I've had doctors lower my medication of I complained about all the injections I was receiving that didn't help my pain, but added so much weight to my frame. The last year I've been seeing a PCP and she's been prescribing my pain medication. I just had a spinal stimulator inserted into my back for the pain caused by severe neuropathy in my buttocks, legs, and feet caused by the herniated discs crushing the nerves in my lumbar region. Last month my PCP informed all her patients that the DEA told her clinic that they couldn't prescribe pain medication anymore. I was going to postpone my surgery out of fear but my doctor called a pain management doctor and made an,appointment for me She told me that she wouldn't abandon me, that she would help me until I secured a doctor that would write my specific scripts. I take 60mg MS Contin 3x daily, oxycodone 30 mg 4 x daily, and Soma 350 mg 4x daily, so not every pain management doctor prescribes these medications. I just had my surgery, I have an incision above my right buttock where they put the generator and another on the middle of my back, where the leads were placed. The surgeon had to remove none in both areas to make pockets so the hardware would fit and the incisions are closed with 40 staples. It was a horrific surgery and I'm out of my mind with oain. I went to my first visit with the new pain management doctor, and I was told today was the wrong day, which it wasn't and I showed her the appointment card with today's date on it. She shrugged her shoulders and told me that I couldn't be seen for 3 more weeks! I started to tell her about my surgery and how I couldn't wait that long with thus pain. She then told me that this doctor wouldn't even prescribe any medication on the first visit!!! I can't stop crying, I've broken out with such a severe case of the shingles because of all the stress in under, since I dont know what I'm going to do? Do we even have any rights?? It just doesn't seem as if we do and I don't even want to write on a public forum what my mind is telling me to do. I dont drink, smoke, take illegal drugs, I don't doctor shop, I follow doctors orders to a tee. It's so unfair and should be illegal what's being done to me.
    • Jillpat67
      Mar. 16, 2016
      Gary, I'm not sure if your in Arizona, but I live in NJ but travel a few times a year because my kids and grandchildren live there. I was in a very serious car accident March 18, 2008 and have had many surgeries, many of them failed, and I've been on pain medication ever since. I've had doctors lower my medication of I complained about all the injections I...
      RHMLucky777
      Read More
      Gary, I'm not sure if your in Arizona, but I live in NJ but travel a few times a year because my kids and grandchildren live there. I was in a very serious car accident March 18, 2008 and have had many surgeries, many of them failed, and I've been on pain medication ever since. I've had doctors lower my medication of I complained about all the injections I was receiving that didn't help my pain, but added so much weight to my frame. The last year I've been seeing a PCP and she's been prescribing my pain medication. I just had a spinal stimulator inserted into my back for the pain caused by severe neuropathy in my buttocks, legs, and feet caused by the herniated discs crushing the nerves in my lumbar region. Last month my PCP informed all her patients that the DEA told her clinic that they couldn't prescribe pain medication anymore. I was going to postpone my surgery out of fear but my doctor called a pain management doctor and made an,appointment for me She told me that she wouldn't abandon me, that she would help me until I secured a doctor that would write my specific scripts. I take 60mg MS Contin 3x daily, oxycodone 30 mg 4 x daily, and Soma 350 mg 4x daily, so not every pain management doctor prescribes these medications. I just had my surgery, I have an incision above my right buttock where they put the generator and another on the middle of my back, where the leads were placed. The surgeon had to remove none in both areas to make pockets so the hardware would fit and the incisions are closed with 40 staples. It was a horrific surgery and I'm out of my mind with oain. I went to my first visit with the new pain management doctor, and I was told today was the wrong day, which it wasn't and I showed her the appointment card with today's date on it. She shrugged her shoulders and told me that I couldn't be seen for 3 more weeks! I started to tell her about my surgery and how I couldn't wait that long with thus pain. She then told me that this doctor wouldn't even prescribe any medication on the first visit!!! I can't stop crying, I've broken out with such a severe case of the shingles because of all the stress in under, since I dont know what I'm going to do? Do we even have any rights?? It just doesn't seem as if we do and I don't even want to write on a public forum what my mind is telling me to do. I dont drink, smoke, take illegal drugs, I don't doctor shop, I follow doctors orders to a tee. It's so unfair and should be illegal what's being done to me.
  • kareng422
    Oct. 21, 2015
    I have been a chronic pain patient since 1992, following a serious car accident and injuring my neck in many ways. I also suffer from M.S. (dx in 1986) and have survived 4(four) bouts of cancer...2 lungs cancer,2 breast cancer). It took me 13 years of research(pre computer days)to find a "true" Dr. that managed my pain successfully that included Methadone for...
    RHMLucky777
    Read More
    I have been a chronic pain patient since 1992, following a serious car accident and injuring my neck in many ways. I also suffer from M.S. (dx in 1986) and have survived 4(four) bouts of cancer...2 lungs cancer,2 breast cancer). It took me 13 years of research(pre computer days)to find a "true" Dr. that managed my pain successfully that included Methadone for the main long acting medication, Hydrocodone for breakthrough medication, facet injections, trigger point injections and Botox in injections.felt like I struck gold!~ In November of 2014, he and I had an email dispute regarding a disability question on a standard utility disability form(that my PCP usually fills out for me every year to update their records) and as a result he politely, to my surprise,, dismissed me as my clinician. It was then, and only then, did I discover how difficult it is to find dr.'s that treat for chronic pain, and refuse to medicate, as they bluntly admit that they are afraid of our government and the DEA snatching their licences away!~I very much would like to get involved in fighting this issue. We, the honest pain patients, are being completely discriminated upon, as a result of all the drug abusers out there. I even went to a Methadone clinic and rejected. I was told if I was obtaining my medication illegally off the street, they would have taken my on. However, because I'm a legitimate chronic pain p;atient, I do not meet their criteria. OMG! How corrupt is that. So if you have any suggestions, or are in need of supporters I'm available. My email address is kgins422@gmail.com. Appalled in the U.S.!
    • kareng422
      Oct. 21, 2015
      Thank you so much for the info. I will most certainly look into it asap! I'm a newbie, and this is my 1st attempt to speak out against the injustice (minor understatement) that millions needlessly suffering from. Thank you for your p[rompt reply! Have a wonderful day! :)
  • Barbarita
    Oct. 18, 2015
    10/16/2015 Is this a war on drugs Or A WAR ON PAIN PATIENTS. Is anyone sure we are not living In NAZI GERMANY IN THE 1940'S. I thought the USA was a DEMOCRACY! ! Why is the government Involved in how pain patients obtain their pain meds; shouldn't that be the doctor's' domain. Could these new government regulations enforced by the DEA be a way that could lead...
    RHMLucky777
    Read More
    10/16/2015 Is this a war on drugs Or A WAR ON PAIN PATIENTS. Is anyone sure we are not living In NAZI GERMANY IN THE 1940'S. I thought the USA was a DEMOCRACY! ! Why is the government Involved in how pain patients obtain their pain meds; shouldn't that be the doctor's' domain. Could these new government regulations enforced by the DEA be a way that could lead to the Detriment and even demise of so many people that legitimately suffer? And is this really the gover Nments' way to possibly get rid of the poor, the elderly and the disabled? Do we really live in a Society where only THE STRONG WILL SURVIVE. WHAT'S REALLY GOING ON IN THIS COUNTRY!,, I too am a pain patient who has suffered immensely and who became disabled because Of the debilitating effects of my neurological condition which caused the pain. I am sick and tired Of living in pain which I'm sure the rest of you are as well. I choose not to go into the details of My pain and how the new DEA regulations have affected me but rather ask in a broader scope ? What's really going on in our country???
    • Maddierose2320033
      Dec. 06, 2015
      We must fight. One grain of sand can turn a tide. I know its hard to do anything when you are in such chronic pain, but we must speak up..
    • julie a
      Mar. 31, 2016
      you are damn right I would like one of these drs to be in this kind of pain I am 64 worked 3 2 and 3 jobs my whole life and now have to deal with this bs
  • kerstgenkelly
    Oct. 16, 2015
    I have a similar situation. I was forced to seek an orthopedic surgeons help, out of state, to fix my hips without metal- My hipa are bone on bone with tears in my labrums. The arthroscopy at Wake Forest Baptist in Winston Salem NC showed me pictures of my hip looking like craters on the moon. My tendons and hamstrings were barely attached to my pelvis. All...
    RHMLucky777
    Read More
    I have a similar situation. I was forced to seek an orthopedic surgeons help, out of state, to fix my hips without metal- My hipa are bone on bone with tears in my labrums. The arthroscopy at Wake Forest Baptist in Winston Salem NC showed me pictures of my hip looking like craters on the moon. My tendons and hamstrings were barely attached to my pelvis. All those years of sports and running, hiking, rock climbing had caught up with me bc of an autoimmune disease, called Lupus. I sought help from 5 local orthopedic surgeons - who sent me to a pain clinic for 5 years where I live, and they ALL said there was nothing I could do at age 41....except wait 20 years and get metal hip replacements. WTH! I have lost my job, my life, my sense of safety and well being. I have been a nurse for 16 years. All I want is to return to work and be able to try to enjoy life. Our what is left of it. After they did my left hip, I was doing fine for the first few weeks, but then in took a serious fall, leaving my right arm paralyzed, cuts to my face and head, and a blood sugar of 30. I had been vomiting and had no appetite for that past week, bc my pain management doctor started to cut my pain medicine back immediately. He is also 400 miles away from my ortho surgeon, but he is local, near my house. My right hip is still bone on bone and I ran into a problem. After these falls, I went all the way back to Wake Forest to see my surgeon. I told him my pain doctor was cutting my medicine back, but since the falls, I am in a great deal of pain again. He asked me to call him and see if he would return me to my former dose, until things got better. He said no. I ended up being 3 days short of medication, bc I was told to take extra if I could not stand it any longer. The pain is making me so sick, i barely leave home bc I'm so sick, and I just cannot leave the house. My actual surgeon was told the pain doctor refused to fill my prescription 3 days early. He diagreed, given my circumstances of falls and my pain teaching a solid 9. My hair was falling out , crying, screaming, praying,.... it didn't matter. I knew this was bad. The surgeon prescribed me a month supply of a different pain medication, to take for the 3 days, and then only to use for any "breakthough" pain I had..... bc my dose was too low from my pain mgmt doc. When I returned home and saw my pain doc at my regular appt, he discharged me. I said why would you do that? I had called him to explain my urgent situation. He said DHEC had called him, guessing I may have been"doctor shopping" to obtain medications. And that violated my pain contract. NOT! Both doctors knew clearly about each other and I had called and left messages explaining the situation and to call me back. If my surgeon says I have injured my 7 procedures and I need the medication, them I do! So, I call to tell the pain mgmt doctor, and he still dismisses me. All I did was have an accident, saw the actual surgeon, who knew I was suffering, because I had too low of a dose to keep the repaired hip and the other hip not surgically corrected yet, out of pain. The pain doc did some fake empathizing, saying he told he explained it to DHEC. The problem is I have used the same doctors, same pharmacy, etc, for years and never ran into such bull crap! If my surgeon thought it was a violation of my pain contact, why did he not want me to suffer and why did he offer to give me something for the "breakthrough" pain. Now, I'm stuck with 1/2 the amount of a MG of drug that does not work, and I have no one to see. HOW will I be able to find help to treat my injuries without driving 400 miles to do so. (My surgery is new, so only a handful of doctors do it - so that is how I got referred so far away. I'm scared and the withdrawals are sickening. What am I going to do, because I'm only 35% healed and I still have lupus, degenerative disc disease, osteoporosis, degenerative arthritis and my right hip is still bone on bone, while the left is suffering from tendonitis and damaged tendons from the fall onto the concrete. Plus my paralyzed rt hand, wrist, and lower arm (my dominant hand). I'm suffering and feel awful and hurting so bad I cannot sleep or eat. I just pike and lay on ice packs. He gave me no titration scale and I'm stuck. I've even called the SC DHEC myself to file a complaint - explaining there are two sides to every story and I want them to know the TRUTH! I have still received no help or contact!!! I should not have to suffer! Will someone else (another pain mgmt doctor) give me a chance to prove that it was recommended - and my surgeon had full knowledge I was under a pain contract? But, I'm also under His care (the surgeon, for the next 2 months) What to do, how do I get my medicine without anymore suffering, trying to come off this stuff when I have taken this medication for 5 years and been nothing g short of absolutely compliant. It was a mistake on the doctors coordination of care, not my fault! I am really injured and I have the MRI's to prove it! Plz help! #Misled #Not my fault #ImNotAnAddict #MyPainIsREAL! - Suffering Nurse with Chronic Pain and Proof of Injury in NC
    • designteam2011
      Oct. 25, 2015
      I can not help you but if I could I would...your story is HEARTBREAKING but I so understand your pain...have any of your Dr's ever discussed a Medtronic Pain pump? At least with a pain pump you NEVER hear the word addict or refuse to give you meds....I so hope things get better for you... Patricia chronic pain sufferer for 17 years and who has gone thru withdrawals...
      RHMLucky777
      Read More
      I can not help you but if I could I would...your story is HEARTBREAKING but I so understand your pain...have any of your Dr's ever discussed a Medtronic Pain pump? At least with a pain pump you NEVER hear the word addict or refuse to give you meds....I so hope things get better for you... Patricia chronic pain sufferer for 17 years and who has gone thru withdrawals more times than I would like to count!
  • chrissiebo
    Oct. 08, 2015
    I'm wondering if this is happening to anyone else out there. I have Kaiser Permanente insurance. I've been a chronic pain pt since 2000. With Kaiser since 2004. In Aug. of 2012, after 12 years of the same dose of meds, total compliance with my opioid contract, they said my dose was too high, and started cutting my meds. Three years of hell followed. Took me...
    RHMLucky777
    Read More
    I'm wondering if this is happening to anyone else out there. I have Kaiser Permanente insurance. I've been a chronic pain pt since 2000. With Kaiser since 2004. In Aug. of 2012, after 12 years of the same dose of meds, total compliance with my opioid contract, they said my dose was too high, and started cutting my meds. Three years of hell followed. Took me off morphine, put me on fentanyl patches, then put me back on morphine. Reduced my dose to half of what it was, and are now reducing it again. I keep getting the same catch phrases from them, over and over. There's been a "paradigm shift" in the way we treat chronic pain. You may have " opioid induced hyperalgesia", which is an icreased pain response to the same pain stimuli. I never increased my dose. "Respiratory depression", people are dying in their sleep. Drug addicts are dying in their sleep, not responsible patients. I've been fighting them for three years. Keep going back to tell them that my pain is NOT under control. I did everything they asked of me, went to pain classes, tried a TENS unit, went for biofeedback. Nothing helped enough to give me my quality of life back. I had a simple quality of life before this. I cooked, cleaned, walked my dogs. I was in pain, but i could function. Now, I'm in bed 99% of the time. My pain is so bad, all the time. I finally took it all the way up to the head of the pain clinic...and her response, you need less pain meds, not more. So now, my primary dr is going to reduce my meds once again. Kaixer has a morphine cap of 120 mg a day. Right now I'm at 240. Ithought they were going to leave me there. But, because I kept standingu up for myself, my squeaky wheel is getting reduced again. I want to find others that are getting this done to them. Maybe if we can band together, we can force them to hear us. I'll be leaving Kaiser at the end of the year, but they're telling me to expect it no matter where I go in Oregon for pain treatment. I'm at the end of my rope.
    • Barbarita
      Oct. 18, 2015
      Yes, I am a client of that wonderful HMO as well. (Lol). They have given me those same Catch phrases as well: opiate induced hyperalgesia and safety. I have been a member for 2 years and plan on leaving at the end of year. I have been through 3 doctors and they all Act the same and say the same things. Just a different face with the SOS. Noone has ever did...
      RHMLucky777
      Read More
      Yes, I am a client of that wonderful HMO as well. (Lol). They have given me those same Catch phrases as well: opiate induced hyperalgesia and safety. I have been a member for 2 years and plan on leaving at the end of year. I have been through 3 doctors and they all Act the same and say the same things. Just a different face with the SOS. Noone has ever did a pain assessment. They are supposed to. They cut my pain meds as well. I really can't stand it there. Also, get your medical records. One doctor slandered my name, wrote lies about me And tried to make me out to be a psych case. I don't trust them. Whether they say it's all the same elsewhere, we really don't know unless we try To actually move on. That's my plan. Take care and God bless you.
    • Barbarita
      Oct. 18, 2015
      Yes, I am a client of that wonderful HMO as well. (Lol). They have given me those same Catch phrases as well: opiate induced hyperalgesia and safety. I have been a member for 2 years and plan on leaving at the end of year. I have been through 3 doctors and they all Act the same and say the same things. Just a different face with the SOS. Noone has ever did...
      RHMLucky777
      Read More
      Yes, I am a client of that wonderful HMO as well. (Lol). They have given me those same Catch phrases as well: opiate induced hyperalgesia and safety. I have been a member for 2 years and plan on leaving at the end of year. I have been through 3 doctors and they all Act the same and say the same things. Just a different face with the SOS. Noone has ever did a pain assessment. They are supposed to. They cut my pain meds as well. I really can't stand it there. Also, get your medical records. One doctor slandered my name, wrote lies about me And tried to make me out to be a psych case. I don't trust them. Whether they say it's all the same elsewhere, we really don't know unless we try To actually move on. That's my plan. Take care and God bless you.
    • designteam2011
      Oct. 25, 2015
      I am not sure where you live but the Kaiser in California sucks as bad but they do install Medtronic pain pumps which may help you a lot...I would ask or I would TELL them that you would like to do a trial and see if that would help you...I am so sorry that you are going thru this hell and that is exactly what it is...HELL! Patricia chronic pain sufferer for...
      RHMLucky777
      Read More
      I am not sure where you live but the Kaiser in California sucks as bad but they do install Medtronic pain pumps which may help you a lot...I would ask or I would TELL them that you would like to do a trial and see if that would help you...I am so sorry that you are going thru this hell and that is exactly what it is...HELL! Patricia chronic pain sufferer for 17 years.
  • Pat
    Pat
    Sep. 26, 2015
    It is not just about how comfortable we are or whether we can stand pain.. Most of us have others who depend on us. I am nearly 80 and I have a grown severely autistic son and a grown son who is clinically depressed and a husband who is totally paralyzed due to a massive stroke. When I am down with pain, their quality of life goes down majorly. My husband atm...
    RHMLucky777
    Read More
    It is not just about how comfortable we are or whether we can stand pain.. Most of us have others who depend on us. I am nearly 80 and I have a grown severely autistic son and a grown son who is clinically depressed and a husband who is totally paralyzed due to a massive stroke. When I am down with pain, their quality of life goes down majorly. My husband atm needs me most of all and I try to be there for him every day. Not one state agency or organization or family member or friend really helps at all. I cannot afford to hire help even though he and I worked two jobs most of our lives. After paying for a family member in nursing home with Parkinson dementia,($40000)and husband in nursing home, there is no money left. (We also contributed to community groups and advocacy . We donated money for Katrina and other causes.I do not want sympathy. I am strong. All I am asking now is don't get in my way at least and don't bring me down by treating me like a criminal. I do not need help to be able to control myself. I need to be able to clean my house, cook, take my son out to see his dad, and visit my husband every day and cheer him up. I need to be able to help both my sons. I have the after effects of advanced lyme disease, degenerative spine disorder, herniated discs, a bad knee and foot and RA.
  • Celeste Cooper, RN
    Health Pro
    Jul. 24, 2015
    This is an ongoing topic that I think all of us who live with pain consider one of our biggest hurdles, having our pain managed without societal stigma or political agendas. Please know that the AMA is fighting for you. Take a look at what they are doing regarding a bill that is very important to pain patients, pain as the fifth vital sign. http://www.painsproject.org/pain-is-a-vital-sign/...
    RHMLucky777
    Read More
    This is an ongoing topic that I think all of us who live with pain consider one of our biggest hurdles, having our pain managed without societal stigma or political agendas. Please know that the AMA is fighting for you. Take a look at what they are doing regarding a bill that is very important to pain patients, pain as the fifth vital sign. http://www.painsproject.org/pain-is-a-vital-sign/ Follow span to see what is being done and offer support by sharing on social media, including twitter with #chronicpain @SenateFloor @congressdotgov @HHSGov @NIH @PoliticsNation The official Twitter account for@msnbc's PoliticsNation with @TheRevAl You can find links and other useful information regarding the "Patient Bill of Rights." http://www.celestecooper.com/patient-bill-of-rights.html The Pains Project is an initiative of the Center for Practical Bioethics and they are working in collaboration with others to change the way pain is perceived, judged, and treated in America. http://www.celestecooper.com/the-pains-project.html Pain Advocacy http://www.celestecooper.com/pain-advocacy.html is important to all of us.
    • Amh
      Amh
      Oct. 25, 2015
      We need to organize. Bruce seen, match on Washington, the DEA,FDA, let America see out pain.
    • Jamie
      Nov. 13, 2015
      Celeste, One of the big problems is that doctors do not understand the roles that the new pain management bill talks about. They are trying to rule with an iron fist and not take each case as an individual case. I have been interviewing doctors for myself and they have a inherent canned response to amounts of pain medication I am on. Instead of wanting to treat...
      RHMLucky777
      Read More
      Celeste, One of the big problems is that doctors do not understand the roles that the new pain management bill talks about. They are trying to rule with an iron fist and not take each case as an individual case. I have been interviewing doctors for myself and they have a inherent canned response to amounts of pain medication I am on. Instead of wanting to treat the patient I believe some of them see this as a way to generate large revenue from the insurance companies. They are billing out excessive charges for UAs and licking their chops at the promise of forcing patients yo adhere to the one stop shop! Jamie
    • Maddierose2320033
      Dec. 06, 2015
      Have you tried an online pharmacy. They seem legit, and most have no complaints from the BBB. At least they respect that patients know what they need. I sure the government will find a way to shut them down soon, so get while you can. I'm placing an order soon. Bad part insurance won't pay, but what the hell I want relief now. Well hope this helps good luck.
  • zx10rse
    Jul. 24, 2015
    All, If we don't stand up, organize, fight and focus a very bright light on this assault, we very may well be left to a life not worth living. I submit to a very brief outline of my idea to address this injustice. We need to create a plan centered on a national ID system where membership can only be granted by board certified pain management physicians in good...
    RHMLucky777
    Read More
    All, If we don't stand up, organize, fight and focus a very bright light on this assault, we very may well be left to a life not worth living. I submit to a very brief outline of my idea to address this injustice. We need to create a plan centered on a national ID system where membership can only be granted by board certified pain management physicians in good standing with the DEA. These physicians will be required to maintain a license which permits them to issue memberships in the system to a chronic pain sufferer. Pharmacies would be required to use a finger print scanner for identification. Once in place, this system would provide the DEA with the ability to create a completely new set of guidelines for members of the system. I realize there are many different ways this can be implemented. I dont to argue the specifics of the process. I would like to know if the general idea has merit in your opinions? Thanks
  • wlhabitat
    Jun. 02, 2015
    Here, every doctor I have talked to about pain has become very, very defensive regarding pain meds and quick to refer me to a pain management specialist for pain and yet they do not prescribe pain meds either. They will however gladly inject me with cortisone or other drug mixtures into my spine but no way pain pills. They also will gladly prescribe anti-seizure...
    RHMLucky777
    Read More
    Here, every doctor I have talked to about pain has become very, very defensive regarding pain meds and quick to refer me to a pain management specialist for pain and yet they do not prescribe pain meds either. They will however gladly inject me with cortisone or other drug mixtures into my spine but no way pain pills. They also will gladly prescribe anti-seizure meds, which by the way have horrible drug withdrawal side effects and usually don't work on pain in the first place. Tragically, pain specialists are just as afraid to prescribe pain meds as are the primary doctors. My primary doctor told me today that the reason no pain meds are prescribed here in WI and IL is because these areas are high abuse communities and doctors are afraid of going to jail and she used an example of a pain specialist that did end up in jail for prescribing narcotics. I'm a chronic pain patient, not an addict. There is a big difference. There was a time when your primary doctor decided what pain med was used to treat your pain but those days are gone forever. Doctors are now terrified of losing their license or ending up in jail or both. The average responsible chronic pain patient has to get their drugs elsewhere I guess since the old way of seeing your doctor no longer works. Is there an effective power that will get behind this issue and speak for people in chronic pain who need daily pain meds but don't know where to turn? Or has it been decided that we can just suffer because there's too many drug addicts. I don't see the connection.
  • kodella600
    Apr. 26, 2015
    I've been disabled for 15 yrs and on opiates, muscle relaxers, anxiety meds. I was cutoff in Dec 14 because no drugs were in my system. I know ppl throwing out those costly contracts and buying street drugs. My Dr. Wanted me to go to a mental health pro also to get my tramadol n zanax!! Someone has to start listening to us , we know our pain level, what works...
    RHMLucky777
    Read More
    I've been disabled for 15 yrs and on opiates, muscle relaxers, anxiety meds. I was cutoff in Dec 14 because no drugs were in my system. I know ppl throwing out those costly contracts and buying street drugs. My Dr. Wanted me to go to a mental health pro also to get my tramadol n zanax!! Someone has to start listening to us , we know our pain level, what works and how much we need. I refuse to just exist, I want to live! Neither the DEA nor my Dr, is going to make me live that way. I don't need a mental health pro, I need adequate pain control.
  • jlmp1961
    Apr. 02, 2015
    I suffer from chronic pain am in my early 30's - I have 5 screws in my ankle, recent knee surgery and severe back pain. I am also depressed and the same doctor who prescribed my pain meds put me on Zoloft. I recently had to do a urine test. Well it came up positive from some benzo drug that I am not even taking. After a few minutes of online searching I find...
    RHMLucky777
    Read More
    I suffer from chronic pain am in my early 30's - I have 5 screws in my ankle, recent knee surgery and severe back pain. I am also depressed and the same doctor who prescribed my pain meds put me on Zoloft. I recently had to do a urine test. Well it came up positive from some benzo drug that I am not even taking. After a few minutes of online searching I find that Zoloft can show up as positive for the benzo things. So guess what the doctor that prescribed me these meds has now dropped me as a patient. What am I to do now. Any suggestions.
    • kerstgenkelly
      Oct. 16, 2015
      I have a similar situation. I was forced to seek an orthopedic surgeons help, out of state, to fix my hips without metal- My hipa are bone on bone with tears in my labrums. The arthroscopy at Wake Forest Baptist in Winston Salem NC showed me pictures of my hip looking like craters on the moon. My tendons and hamstrings were barely attached to my pelvis. All...
      RHMLucky777
      Read More
      I have a similar situation. I was forced to seek an orthopedic surgeons help, out of state, to fix my hips without metal- My hipa are bone on bone with tears in my labrums. The arthroscopy at Wake Forest Baptist in Winston Salem NC showed me pictures of my hip looking like craters on the moon. My tendons and hamstrings were barely attached to my pelvis. All those years of sports and running, hiking, rock climbing had caught up with me bc of an autoimmune disease, called Lupus. I sought help from 5 local orthopedic surgeons - who sent me to a pain clinic for 5 years where I live, and they ALL said there was nothing I could do at age 41....except wait 20 years and get metal hip replacements. WTH! I have lost my job, my life, my sense of safety and well being. I have been a nurse for 16 years. All I want is to return to work and be able to try to enjoy life. Our what is left of it. After they did my left hip, I was doing fine for the first few weeks, but then in took a serious fall, leaving my right arm paralyzed, cuts to my face and head, and a blood sugar of 30. I had been vomiting and had no appetite for that past week, bc my pain management doctor started to cut my pain medicine back immediately. He is also 400 miles away from my ortho surgeon, but he is local, near my house. My right hip is still bone on bone and I ran into a problem. After these falls, I went all the way back to Wake Forest to see my surgeon. I told him my pain doctor was cutting my medicine back, but since the falls, I am in a great deal of pain again. He asked me to call him and see if he would return me to my former dose, until things got better. He said no. I ended up being 3 days short of medication, bc I was told to take extra if I could not stand it any longer. The pain is making me so sick, i barely leave home bc I'm so sick, and I just cannot leave the house. My actual surgeon was told the pain doctor refused to fill my prescription 3 days early. He diagreed, given my circumstances of falls and my pain teaching a solid 9. My hair was falling out , crying, screaming, praying,.... it didn't matter. I knew this was bad. The surgeon prescribed me a month supply of a different pain medication, to take for the 3 days, and then only to use for any "breakthough" pain I had..... bc my dose was too low from my pain mgmt doc. When I returned home and saw my pain doc at my regular appt, he discharged me. I said why would you do that? I had called him to explain my urgent situation. He said DHEC had called him, guessing I may have been"doctor shopping" to obtain medications. And that violated my pain contract. NOT! Both doctors knew clearly about each other and I had called and left messages explaining the situation and to call me back. If my surgeon says I have injured my 7 procedures and I need the medication, them I do! So, I call to tell the pain mgmt doctor, and he still dismisses me. All I did was have an accident, saw the actual surgeon, who knew I was suffering, because I had too low of a dose to keep the repaired hip and the other hip not surgically corrected yet, out of pain. The pain doc did some fake empathizing, saying he told he explained it to DHEC. The problem is I have used the same doctors, same pharmacy, etc, for years and never ran into such bull crap! If my surgeon thought it was a violation of my pain contact, why did he not want me to suffer and why did he offer to give me something for the "breakthrough" pain. Now, I'm stuck with 1/2 the amount of a MG of drug that does not work, and I have no one to see. HOW will I be able to find help to treat my injuries without driving 400 miles to do so. (My surgery is new, so only a handful of doctors do it - so that is how I got referred so far away. I'm scared and the withdrawals are sickening. What am I going to do, because I'm only 35% healed and I still have lupus, degenerative disc disease, osteoporosis, degenerative arthritis and my right hip is still bone on bone, while the left is suffering from tendonitis and damaged tendons from the fall onto the concrete. Plus my paralyzed rt hand, wrist, and lower arm (my dominant hand). I'm suffering and feel awful and hurting so bad I cannot sleep or eat. I just pike and lay on ice packs. He gave me no titration scale and I'm stuck. I've even called the SC DHEC myself to file a complaint - explaining there are two sides to every story and I want them to know the TRUTH! I have still received no help or contact!!! I should not have to suffer! Will someone else (another pain mgmt doctor) give me a chance to prove that it was recommended - and my surgeon had full knowledge I was under a pain contract? But, I'm also under His care (the surgeon, for the next 2 months) What to do, how do I get my medicine without anymore suffering, trying to come off this stuff when I have taken this medication for 5 years and been nothing g short of absolutely compliant. It was a mistake on the doctors coordination of care, not my fault! I am really injured and I have the MRI's to prove it! Plz help! #Misled #Not my fault #ImNotAnAddict #MyPainIsREAL! - NC Hip chronic Pain Sufferer
  • looking out for the people
    Mar. 31, 2015
    You now have the govt trying to invade the privacy of a Dr. Patient relationship. If a Dr. decides a patient needs a pain medication then he makes that decision. The govt doesn't want that. They are acting like its their big to oversee a Dr.'s decision. Sounds like Big Brother is over Stepping the boundaries once again. Kaiser wanted me to agree to sign a form...
    RHMLucky777
    Read More
    You now have the govt trying to invade the privacy of a Dr. Patient relationship. If a Dr. decides a patient needs a pain medication then he makes that decision. The govt doesn't want that. They are acting like its their big to oversee a Dr.'s decision. Sounds like Big Brother is over Stepping the boundaries once again. Kaiser wanted me to agree to sign a form regarding following all their implemented rules regard mess. I asked if this was a true legal form. The lady said no it's not and we can't force you to sign it...BUT....Your Dr. may stop your medicines. Now there is a scare tactet. Sign this unleagal form or we may stop your meds. Ask questions and know what the law is before you agree to sign ANYTHING from Kaiser. To me the govt is trying to get access to otherwise private medical issues. Stand up and dont bow down to this crap.
    • Thomas Grinnell
      Mar. 07, 2016
      I was a Kaiser Permanente patient in the mid 1990's until about 2003. Kaiser Doctors would not do anything for my severe chronic pain resulting from Ankylosing Spondolitis which is a connective tissue disease of the musculo-skeletal system. My thoughts are that pain patients must bond together and fight for laws and rights that Doctors cannot over-ride just...
      RHMLucky777
      Read More
      I was a Kaiser Permanente patient in the mid 1990's until about 2003. Kaiser Doctors would not do anything for my severe chronic pain resulting from Ankylosing Spondolitis which is a connective tissue disease of the musculo-skeletal system. My thoughts are that pain patients must bond together and fight for laws and rights that Doctors cannot over-ride just because they are a fricking Doctor. I worked in Surgery as a Surgical Tech and am also well educated. I wrote a letter to President Obama and asked him to give certain signs when he was on TV so I would know he got them, he did but nothing is for sure. I live in Rochester, Minnesota and and he visited Mayo Clinic shortly after I sent him an e-mail. I received a warning from my Doctor not to contact President Obama again. I think pain patients should group together and take a bus to Washington D.C. and basically demand to see the President or we will raise holy hell on the news and any and everywhere else where the Public will see it. I would leave my name and phone number here but I live in a group home recovering from a traumatic brain injury and the staff and other patients/housemates would go nuts if the phone number was ringing all the time. I would love to get together person(s) to person(s) and discuss the problems with these issues. I have been around addicts and abusers and they are the biggest hurdle to getting appropriate care. I knew a woman when I lived in Chico, California and she had fibromyalgia which I think is often branded on people who complain about chronic pain but have no other source or diagnosis for the pain. She and her husband "shared" her medication and frankly I question the supposedly "severe" level of her pain and her husband, definitely a "pill popper" looking for the high. I immediately distanced myself from them but was corralled into doing a newspaper article with them which cost me a job I loved and the city/town I loved living in and all the health care professionals I worked with, Doctors,, Nurses, Anesthesiologists and Nurse Anesthetists, very few sided with me but the article was with the kind and passionate Sacramento family practice Doctor, Dr. Harvey Rose, who because of my diagnosis I could see it in his eyes that he could not turn me away- a true Physician who did what was right and saved my life because suicide would have been the only alternative and I just thought if only the pain was controlled my life would be somewhat normal- it was normal to the best Doctor Rose could get it and I continued to work until I needed a hip replacement and the pain was just causing to many problems to work so I had to stop working. Now, I am in Minnesota, where I am from and am under the care of a Mayo Clinic family physician who seems to be doing well but I never know what is around the next corner and I have an appointment with her in about two hours so I have to get ready for that as my prescription dose was cut in half and now as the Doctor said it- we are just going to take the edge off. T. Grinnell, Minnesota
  • teschej
    Mar. 22, 2015
    It's become a crime to have chronic pain just because a lot of people lie and take pain medication for non-medical reason. So the ill get mistreated because of others' misdeeds. But, we can't give up, because a lot of us that truly have chronic pain won't want to live in the pain they have. How many of us have been mistreated medically because of pain medicine...
    RHMLucky777
    Read More
    It's become a crime to have chronic pain just because a lot of people lie and take pain medication for non-medical reason. So the ill get mistreated because of others' misdeeds. But, we can't give up, because a lot of us that truly have chronic pain won't want to live in the pain they have. How many of us have been mistreated medically because of pain medicine prejudice? How many chronic pain patient have died because they were medically mistreated because they take pain medicine. I almost died because of the prejudice. They thought I was overdosing on my pain medicine, put me on the drug addict floor when it was sepsis from an undiagnosed UTI that became pyelonephritis (kidney infection). By the time I got to my family doctor's care, I was semi-comatose. How many others have died this way and never get their story told. I didn't sue, but I still wonder how many others will die because I didn't. It's hard to stand up for yourself when your in pain, sick and disabled. But..we can't give up. There has to be a doctor, lawyer or Politian somewhere that will finally hear our message.
    • JOdywan22
      Mar. 27, 2015
      I have been a 12 year patient at a pain management in MA. Never had any issues w/ abuse, etc. Never failed a drug test ( random ). Never had any problem when randomly told to bring in meds to be counted. Now, the state of MA has new regs, & ALL the docs are being cowardly, saying " studies " show that no one EVER needs more than a certain amount of meds,...
      RHMLucky777
      Read More
      I have been a 12 year patient at a pain management in MA. Never had any issues w/ abuse, etc. Never failed a drug test ( random ). Never had any problem when randomly told to bring in meds to be counted. Now, the state of MA has new regs, & ALL the docs are being cowardly, saying " studies " show that no one EVER needs more than a certain amount of meds, etc. I just found out 2 days ago from another of my docs that my prn Klonopin cannot be filled, in fact he was belligerent- he said :" you are a nurse- you should know that new studies show an increased likelihood of risk of dementia w/ Klonopin". I am a nurse, & have B>S> in Biology & Chemistry as well , plus some grad work in bio. What I DO know is that data can easily be manipulated, & the docs are covering their asses, & protecting their licenses. I've heard that, in my state, someone at the upper levels in drug reg. had a child who died from an overdose of prescription drugs, which were NOT prescribed for him/her. Bought them on the street. So this is their answer? I realize that many people abuse prescriptions, but what about those of us who do not!!! I'm fed up! I probably can't do much to help myself, but I sure as hell will do everything I can to help others in this situation. I have really had it. The Klonopin was the final straw. Any one have any GOOD ideas? JOdywan
  • toldyouso
    Mar. 17, 2015
    You are right that doctors SEEM afraid when they have it well in their power to stand up for their right to prescribe necessary and reasonable continuous low 2-15mg oxycodone or hydrocodone, or many other opiates that work effectively without causing serious adverse effects, ( being a fraction about 1/10th of the needed dose base on a person weighting 150lbs,...
    RHMLucky777
    Read More
    You are right that doctors SEEM afraid when they have it well in their power to stand up for their right to prescribe necessary and reasonable continuous low 2-15mg oxycodone or hydrocodone, or many other opiates that work effectively without causing serious adverse effects, ( being a fraction about 1/10th of the needed dose base on a person weighting 150lbs, Yes this is the 'Rule of Tens", compared with a dose that would cause an such severe physiological depression that the drug would cause you to OD), on a consistent basis. The picture is much larger than M.D.'s, O.D.'s, N.P.'s, P.A.'s ect. and pharmacist being scared to be what they where trained to be. It's like a man with no penis and testicles, he's a man but he is ineffective at procreation. And these 'health care professionals' are acting like bitches for a reason. The doctors are freezing the opiates and anything that works on pain due to a hysteria created by the DEA and FDA over medications that people need for pain cutting off all pain meds and acting like scumbags who LIE to patients faces or refuse to help persons in need. If you saw a man about to fall and injure or be killed because he lost his balance and you were well within the proximity to help him and you had the strength to do so, if you simple stood still and let him fall what would that say about you? No think back to the doctor with a patient with clear diagnostic tests indicating that they are in pain, or they exhibit, or simply state I have pain. No one can PROVE the patient is not in pain and frankly the fact the patient is putting the medication in his/her oun body voluntarily with an entire page of literature attached to the medication and access to online information about the risks of the drug, ect. and the patient takes the drug willingly I can not see how in any way it is anyone but the patient's choice as nothing was forced on him and the risks had been explained at least in writing. A doctor and pharmacist should verbalize and have the patiet verbalize that they understand the risks and benefits of the medication and have complete autonomy as to whether they will take the medication, and even signing informed consent could avoid all the BS about not giving patients their medications. The Doctors don't want to play lets make the sick person better anymore. this is the new game. The Government in America has been sold out for decades, and no act is too shameful when it comes to exploiting people or bullying them into actions they do not want to take while taking away their right to choose the best treatment for themselves without harm or stigma towards them, as no one can judge you for taking a chance on something that has been observed and used to a degree that makes it very predictable. Opiates and narcotics from hundreds of years past. here is the NEW game. Doctors have the power to change the wrongs that are obvious to all reasonable people not brainwashed into thinking it's okay to let a pain patient either suffer or be turned into a lab rat, and made to pay dearly for it with their hard earned cash and their health as these new drugs get pushed through to the public with apathetic and even malicious intent guiding the marketing behind these often dangerous drugs. Vioxx killed and injured half a million people in the US alone. ADD & ADHA, two made up psychiatric disorders had CHILDREN eating up METHAMPHETAMINES EVERY DAMN DAY back in the 90's. And WHY? Because they knew that they could and NOW They want you to take EVERYTHING EXCEPT WHAT 1. WORKS 2. HAS A TRACK RECORD OF BEING USED REASONABLY BY PERSONS WITH CHRONIC PAIN WHEN COMMUNICATING EFFECTIVELY WITH THEIR PCP's 3. HAS A TRACK RECORD OF ADDICTION FOR SUCH PATIENT's OF 2-8% ISSUES WITH ADDICTION THAT ARE REMEDIED BY SWITCHING THE PATIENT OFF TO A DIFFERENT FORMULA OF PAIN MEDICATION THAT IS AFFECTIVE BUT WILL NOT MAKE THEM START THINKING ABOUT RE-INGESTING THE MEDICATION EVERY TEN MINUTES TO FEEL A CERTAIN WAY. 4. DEPENDANCE, AND NOT ADDICTION IS THE DANGER WITH ANY DRUG. That being screamed... The FDA has members of their board that are investors in the drug companies which is highly unethical and they do not care because they are entitled and you are cattle. SO, What is given instead of the CORRECT medications for pain? Anti-seizure meds, antihistamines, antidepressants, immuno-supressants, off-label injections into your SPINE. NERVES AND NEURAL TISSUE CAN NOT REGENERATE like other cells of the body so if you mess those nerves up you are in trouble!. NEVER let them do this to you in stead of taking a 5 mg tablet of oxycodone WHICH IS NOT HEROINE NO MATTER WHO IS TRYING TO LIE TO YOU!!! You are padding a doctors wallet ever time he gives you a new expensive and absolutely INAPPROPRIATE DRUG so he/she can benefit financially at the cost of your well being. Doctors are as bad as the DEA but their "underlings" MUST do what they say or face stigma, criminal charges, and loss of their livelihood. THAT is why doctors do NOTHING to help patients. Patients just don't match the drug companies unless they carry insurance policies that cost about 8-10K a year when monthly fees and copay and deductibles are factored in. These people should be flogged, instead YOU will suffer.
  • spidergarciatattoos
    Feb. 25, 2015
    just stop going to the doctor for 3 months it will get there ATTENTION WHO WANT TO HAVE COPS TREATING YOU ANYWAYS SO UNTIL THE REAL DOCTORS COME OUT JUST SAVE YOUR MONEY FOR CARE BY REAL DOCTORS AND ANY DOCTORS WHO INVOLVE POLICE ARE NOT REAL DOCTORS THEY FOUGHT THEMSELVES OVER THIS ISSUE BACK IN THE DAY LOOK IT UP
    • Pat
      Pat
      Sep. 27, 2015
      You are right. I cannot believe how willing people are to just passively allow this invasion of their rights and privacy. Facebook and the internet has gotten them used to being tracked everywhere.
  • leblancnorma13
    Jan. 23, 2015
    I haven't seen anyone bring up the statistics of how many people were dropped from their pain management due to a bogus urinalysis. Not only is it embarrassing but there is very little you can do to dispute it. Medical records are permanently tarnished, and the likelihood of finding another pain doctor for treatment is difficult. It seems to me that long term...
    RHMLucky777
    Read More
    I haven't seen anyone bring up the statistics of how many people were dropped from their pain management due to a bogus urinalysis. Not only is it embarrassing but there is very little you can do to dispute it. Medical records are permanently tarnished, and the likelihood of finding another pain doctor for treatment is difficult. It seems to me that long term chronic pain patients who are unwilling to undergo surgery are no longer wanted by doctors when they can make so much more money doing surgeries. One way or another they will find a way to get rid of you even if you did nothing wrong.
    • jlmp1961
      Apr. 02, 2015
      I have had the surgeries - I am facing at 30 - a knee replacement and an ankle fusion - my urine thing came from when my doctor prescribed Zoloft for my depression from hurting all the time ended up reading a false positive for something benzo what ever - and now I have no doctor.
    • rae1159
      Oct. 14, 2015
      You are correct. I had one urine test that came back that there was nothing in my system. I was accused of selling my pain meds. There is no way! I need my medicine for my pain! I am a 55 year old woman with Spinal Stenious, 3 bulging disc that are pressing on my nerves, My shoulder is bad and I have arthritis in my back, fingers, wrist etc....I could go on....
      RHMLucky777
      Read More
      You are correct. I had one urine test that came back that there was nothing in my system. I was accused of selling my pain meds. There is no way! I need my medicine for my pain! I am a 55 year old woman with Spinal Stenious, 3 bulging disc that are pressing on my nerves, My shoulder is bad and I have arthritis in my back, fingers, wrist etc....I could go on. I have a heart problem so I can not take the injections or have surgery unless it is an emergency. I went to another pain Dr. and 3 months ago I had another urine test (and I knew I was going to have one). This one came back that I had Tramadol in my system. Again there is NO WAY! I take 3 10/325 of hydrocodone and that barely helps me. This PA was trying to get me to say I took someone else's meds. This was the first time I even saw this woman, she never even opened my chart.( I am not going to lie) so I told her I had no idea how Tramadol got into system! So she fired me. I asked to speak to the doctor I was seeing and was denied twice. So now I am lost and in pain. I just feel like giving up! I did call them and tell them I am on Venlafaxine and that has showed up as positive for Tramadol but I have been dismissed anyway!
    • Pjluv
      Dec. 06, 2015
      I was just booted out of my pain management doctors clinic for having nothing show up on my urine test. I've been taking these same meds for four years, I took one a few hours before my appointment so I'm not sure how it wouldn't have shown up. I've got two weeks left of meds and no pain doctor has an appointment in that time period. I'm beside myself, stressed...
      RHMLucky777
      Read More
      I was just booted out of my pain management doctors clinic for having nothing show up on my urine test. I've been taking these same meds for four years, I took one a few hours before my appointment so I'm not sure how it wouldn't have shown up. I've got two weeks left of meds and no pain doctor has an appointment in that time period. I'm beside myself, stressed about going through withdrawals two days before Xmas. It should be illegal for them to summarily dismiss you with no warning, she could have asked for another UA, a pill count, anything to prove I actually am taking my meds. It's bordering on malpractice, withdrawal off long term, heavy opiates is dangerous without a controlled wd. So mad.
  • Dye59
    Jan. 09, 2015
    New York, chronic pain, whole back thing. Yesterday after 8 years of giving me my meds for pain. I was cut off. His reason, I did not op on you. No the doc that did twice left the office. This doc took over. 8 years your done, what about withdrawals and pain. Been just a great 24 x hours. Never took anything else or too much. Do not really know what to do,...
    RHMLucky777
    Read More
    New York, chronic pain, whole back thing. Yesterday after 8 years of giving me my meds for pain. I was cut off. His reason, I did not op on you. No the doc that did twice left the office. This doc took over. 8 years your done, what about withdrawals and pain. Been just a great 24 x hours. Never took anything else or too much. Do not really know what to do, I wll not beg! But I will grow some great weed, that eaten really helps. Sad government, has made me enemy number one instead of terrorists.
    • hankinslaurhenda
      Nov. 22, 2015
      I have been in 10 serious car wrecks since 1995. I have had all sorts of injuries from these. I fell in 2010 and broke my right arm, destroyed my rotor cuff, which was ignored and rebuilt18 months later by a great surgeon. Pain rules my life. I have been found disabled by our goverment and over the years, began on hydrocodone til it no longer worked, a year...
      RHMLucky777
      Read More
      I have been in 10 serious car wrecks since 1995. I have had all sorts of injuries from these. I fell in 2010 and broke my right arm, destroyed my rotor cuff, which was ignored and rebuilt18 months later by a great surgeon. Pain rules my life. I have been found disabled by our goverment and over the years, began on hydrocodone til it no longer worked, a year of 90 mg of Morphine daily I begged to be taken off of. I now have been told I need A spinal fusion, 2 cadaver vertebrae L-4 and L-5 and I have 3 bone spurs growing around and through the nerve canal in my spine. Im a mess, I knew it, now they get it. I was scheduled for surgery last month in Tennessee, my home state. My husband is a pipeliner, so we travel. I would have nobody to help me around so I opted to come to Texas with him, and have surgery here. I went to Houston with my 4 inch thick Medical records and my list of meds. Oxycontin 20 mg. 2 daily Oxycodone 10 mg. 4 daily, Gabapentin, Flexeril, and Valium 10 mg. 3 a day. The extremely young doctor at the Houston Pain Center laughed at my records, said my surgeon knew nothing if he told me all that was wrong, refused to give me any meds and sent me out. A nurse came in after she left and apologized for my treatment. Now, I have been on pain meds since 1998 and I was sent out with nothing. Is this not dangerous to us? as in, can we have seizures, strokes or other problems besides the agony and illness of no medication. This has never happened to me in my life, is this common in Texas or becoming the normal? I am 49 and my husband is married to a 70 year ols woman. Pain meds gave me the ability at certain times of the day to cook, shop, household chores. I was never pain free, but it was workable. Now what, back to bed, crying, thinking of suicide because the pain is so great I have no life. All over DEA. My own family doctor is quiting before Christmas. He cant practice medicine, he is controlled by DEA.
  • jkbubbabutt
    Jan. 08, 2015
    I fully understand that certain people either elect to abuse opiates and/or choose to sell them on the black market. People like that make it incredibly hard for the rest of us. I am a chronic pain sufferer as well as I'm certain most of you are also. The problem is, in my view, something that should be handled on the streets, by law enforcement. Not something...
    RHMLucky777
    Read More
    I fully understand that certain people either elect to abuse opiates and/or choose to sell them on the black market. People like that make it incredibly hard for the rest of us. I am a chronic pain sufferer as well as I'm certain most of you are also. The problem is, in my view, something that should be handled on the streets, by law enforcement. Not something politicians should try to regulate at the physician/ patient/ pharmacy level! I am willing to stand with all of you to take our rights as patients back! We are NOT criminals because of our conditions. In fact, we are the victims of a huge political power grab in one of the allegedly freest countries on the planet! The only way we, as patients will win this is to stand up, together, and MAKE our voices heard! Get the media involved. No politician wants to come across to the voters as a bad guy, so, let's let the people know exactly what they have allowed to happen!
    • debbiegriffith1962
      Feb. 19, 2015
      Is there an organization to represent those of us who suffer from chronic pain and the accompanying depression and lack of quality life? I used to be busy all the time. I had a respectable job, and genuinely enjoyed life. I took vacations, I enjoyed hobbies and I engaged in visits with friends and family. I injured my back in 1998 lifting a heavy box. I never...
      RHMLucky777
      Read More
      Is there an organization to represent those of us who suffer from chronic pain and the accompanying depression and lack of quality life? I used to be busy all the time. I had a respectable job, and genuinely enjoyed life. I took vacations, I enjoyed hobbies and I engaged in visits with friends and family. I injured my back in 1998 lifting a heavy box. I never dreamed that incident would open the floodgates of continuous, debilitating pain. My injury was exacerbated by a car accident in 2009. I now have five herniated disks in my neck and two in my lower back. In addition, I have four or five bulging disks. All that being said, unfortunately my quality of life is horrible. I have a six year old daughter and I feel terrible that I can't interact with her the way she deserves. What can people like us do? We are citizens. We are taxpayers. We are humans who deserve a decent degree of quality of life. I understand the concern that most of the pain medications that help chronic pain sufferers function and have some quality life cause physical dependence. But if that is the issue, then wouldnt the fact that diabetics, people with high blood pressure, and people with other illnesses are physically dependent on their medications? Why are these physical ilnesses treated appropriately and with dignity, while sufferers of chronic pain discriminated against? Any insight or suggestions would be appreciated.
    • chippy3166
      May. 24, 2015
      Living with chronic pain is bad enough, now we all are subject to unconstitutional restrictions as patients. In my opinion, a great majority of us have worked and paid our taxes most of our lives. Our doctors went to school and gain their licenses to practice medicine. They are the true professionals and know what they are doing when they prescribe the medication...
      RHMLucky777
      Read More
      Living with chronic pain is bad enough, now we all are subject to unconstitutional restrictions as patients. In my opinion, a great majority of us have worked and paid our taxes most of our lives. Our doctors went to school and gain their licenses to practice medicine. They are the true professionals and know what they are doing when they prescribe the medication needed for our treatment. The government isn't licensed to practice medicine, but now they are doing that very thing. It's not just the fact that they are attacking our doctors, but now they are also attacking the very people who put them in office by the increased costs of medical care. With me it's now almost 50% of our monthly income. Obviously they didn't take that into consideration, or did they? I worked 33 years of my life, I paid my taxes and just recently I became disabled. I have filed for my SSDI but anyone who has filed would know that it always takes an unfair amount of time to receive it. We are living on a single income at this time, I had to cash in my 401k and now that's gone. My wife has borrowed from hers and this is all due to medical bills. Now that my surgeries are done, now I have to go to my pain specialist every single month just to get my medications. I go in, he asks me a couple of questions and writes my prescriptions. I get charged a full office visit for 5 minutes of conversation. Because my insurance only allows 4 office visits a year that are eligible for copay, now it's a 70/30 split, not to mention that it also is a 70 mile round trip so you can add gas prices on to the final total. With the monthly cost of insurance for my wife and I, plus our doctors visits, it equals out to $526 per month. At what time does the affordable health care act become affordable? Our federal government is causing more pain then my disease ever has.
  • Jerry loyd
    Jan. 07, 2015
    I have congenital spinal stenosis,sciatica and severe arthritis in my back ankles knees and hips. I take gabapenten Mobic and until 6 months ago norco. Now I have no norco. Why? Because I tried some marijuana last April after a day when I spent 10 hours in a car. The pain was unbearable and the weed helped. I'm 57 years old and haven't played with marijuana...
    RHMLucky777
    Read More
    I have congenital spinal stenosis,sciatica and severe arthritis in my back ankles knees and hips. I take gabapenten Mobic and until 6 months ago norco. Now I have no norco. Why? Because I tried some marijuana last April after a day when I spent 10 hours in a car. The pain was unbearable and the weed helped. I'm 57 years old and haven't played with marijuana since my teens, but when I tested positive the doctor said that she could no longer prescribe my meds per the federal government mandate. Why is the federal government involved in my healthcare? Because the evil weed though legal for med marijuana patients in my state( and yes I did have a Drs rx, though I hadn't used it yet)is a schedule 1 drug the same as heroin. So here I am with the same physical problems as before and now unable to work because of the chronic pain that I can no longer get adequate relief for.ive already been approved for disability. So thanks to our 1930s era drug policies I'm now a drain on the system. We should all be voicing our opinions on this outdated policy to our elected officials. I know I'm not the only one to fall into this idiotic loophole.
  • Frank Repchick
    Jan. 03, 2015
    my wife and i were in a severe accident that disabled us ,surgeries have been done but the surgen did say it would not help our pain in the back ,we each have 9 heriations as well as fractures,the doctors can't do any thing else to help ,now my doctor just informed me that he is taking me off my pain meds that just help a little ,i can't take any thing else...
    RHMLucky777
    Read More
    my wife and i were in a severe accident that disabled us ,surgeries have been done but the surgen did say it would not help our pain in the back ,we each have 9 heriations as well as fractures,the doctors can't do any thing else to help ,now my doctor just informed me that he is taking me off my pain meds that just help a little ,i can't take any thing else because of bleeding issues so oxyc/acte is the only thing that has not caused me side effects ,that leaves me with no pain relief as well as the insurance company that is involved is geico they have stacked the deck against us and offered much to those that bring us down,the law is slow to keep us going and we do and have reported to the proper channels,however the intimadation of the victum still goes on and we owe the state taxpayers hundereds of thousands due to the doctors and insurance that is pushing the debt onto the public,my doctor is the next that we have to file on because we can't go with out pain relief ,there is laws to stop pain pills but no laws to help those who need pain relief.once again the goverment is the problem never the answer.
  • Kadd
    Dec. 03, 2014
    Tramadol was givin. 2 me in the ER a few yrs ago it hasn't helped . Sciatic nerve damage degenerated disks pain always up & down. Let's get our bodies back 2 working. Please don't poison me anymore. I'm trying so hard 2 get better hen they tried Savella that really sends u out there !! My god I'm 51. Not looking 4 a buzz if I wanted .2 I could just go down...
    RHMLucky777
    Read More
    Tramadol was givin. 2 me in the ER a few yrs ago it hasn't helped . Sciatic nerve damage degenerated disks pain always up & down. Let's get our bodies back 2 working. Please don't poison me anymore. I'm trying so hard 2 get better hen they tried Savella that really sends u out there !! My god I'm 51. Not looking 4 a buzz if I wanted .2 I could just go down the street or so & that s the problem y do these people keep getting our meds. I no it's a problem but please don't punish us. We want so much to b better and no how we feel. Show some compassion & I have talked 2 the FDA . Acpa. American chronic pain association they want 2. Hear this but already no ... Do y do I and others have to practicly die b 4 anyone is willing 2 HELP!! The injections sent me into diabeties do much for that. So how long how much money & ins. Bills u can't pay. Meds making u sicker. & u can't afford 2 live. It's a sorry way things have gotten . I miss my life & so does my family & friends who've tried so hard to help ! But can't. So do I have to live like this or is there HELP If u can answer this then maybe I'd no better way to do... I can't take this much longer. These pain management places won't listen ether . Hey have hurt do many others is crazy to hear the stories. So again sweet people of this great country wat r we supposed 2 do ? I want my life back in ohio & so many others in PAIN . It's rediculuss!! Thank u I hope my doctor will help this morning thanks to the ER doctor who finally listened ... Stop the tramadol trap. He said & this anxiety that's sent me over the edge a few times. I used to work as a parks ranger trained with the best of the best & now I'm lucky if I can take a shower & rest. Live love life. Karen
  • Chrimsum
    Sep. 28, 2014

    Hi. I live in Txas but I am one of the over 100 million chronic pain sufferers in this country. Although I write to my representatives in and of this state the correspondence has yet to be reciprocated. I remain persistent. Endeavoring to persevere in our condition is tough. We need representation at all levels. We need a vicious advocate, a legal representative...

    RHMLucky777

    Read More

    Hi. I live in Txas but I am one of the over 100 million chronic pain sufferers in this country. Although I write to my representatives in and of this state the correspondence has yet to be reciprocated. I remain persistent. Endeavoring to persevere in our condition is tough. We need representation at all levels. We need a vicious advocate, a legal representative with teeth like a shark and a plan to be so "in their face", that they can no longer deny us our rights to a better quality of life.

    • raz
      raz
      Oct. 05, 2014

      YellI agree with you wholeheartedly, but finding this 'ANGEL OF MERCY" will be next to imposible i believe. I dont believe in the system anymore. Its all about money, the govt cant make money if they dont have something to have a war on, war on drugs, makes the govnmt lots of money. So how does a chronic pain patient who cant be consistant in their fight, due to...

      RHMLucky777

      Read More

      YellI agree with you wholeheartedly, but finding this 'ANGEL OF MERCY" will be next to imposible i believe. I dont believe in the system anymore. Its all about money, the govt cant make money if they dont have something to have a war on, war on drugs, makes the govnmt lots of money. So how does a chronic pain patient who cant be consistant in their fight, due to the nature of the pain beast, ever hope to be heard? They know that we will eventually give up, or give in to suicide, before wed get a chance to be heard? I, as well as so many here, because of the bogus reason a dr gives to fire us, have been dismissed by my pain dr because of my fear of him, had a panic attack, never ever had one until that fatal visit! Had er visit! Saw him next day, mm and he says, i think it best for you if we part ways, btw, after being on 80mg 4x day plus bt meds ; was given 24 pills of 20mg, not to be filled 4 a week! At this point im out, w/d's, nearly die#, bp crazy, so low was bedbound, couldnt even stand or walk, acute infection, dehydration, malnutriton, lost 15 lbs 3 days! Thank the powers that be, knowing a body can stand only need so much,that after this , when i could actually feel the pain i had b4, now amplified, plus a new kind of fun, neuropothy so bad couldnt sleep my 4 3 days in a row, rollin on floor in a  ball just to try and stop my legs from wanting to keep moving. I finally little by little got a bit stronger , but it took 2 months to be able to get outside in the chair to once again which i so missed. Btw out of desperation, b4.this happened, got taken for 600$ for trying to get anything to stop the w/d's, even buying online meds, which i never got, btw. So out of meds, nearly losing my life, severe unsupervised withdrwals, losing money, the only person that cared what happened to me, my husband, has stayed with me, talked 4 me when i couldnt, i mm am now 4 months, no meds, blacklisted, and called a 'drug seeker", am now re validating my issues that caused my drs to n rx opioids, in the first place,  in the hope of finding a new pain dr .Am i hopeful, yes, but realistic, i may have to "just deal with it". I have found 'some 'relief with a herbal supplement for pain, that is legal 4 now, but if the gvnmt has any say,it wont be for long. Until a high profile , rich, newsworthy person n dies or as it happened to me, get deathly ill, none of us will be taken notice of. It will take a lot of suffering b4 it changes, and it wont happen in my lifetime. I have written the govenor, my statesman, and was told tell the dea, were just following the laws. Hmm, too bad 4 u, just tell someone else cuz they r passing the buck mm as usual, nobody gives a damn if people suffer as long as its not them. Ive tried, written more letters, signed petitions etc, got nowhere. I wish you all the best In luck in your efforts! Heres to a pain less life for us all.

       

    • rpiano55
      Nov. 27, 2014
      What do we do????
  • Chrimsum
    Sep. 23, 2014

    I have read all the comments and I share the pain with everyone here. In Texas the DEA and DOJ have been on a rampage scaring doctors and crippling legitimate, documented and irrefutable chronic pain sufferers. We're going to have to make a huge increase in numbers on a petition to get any legislative help. I have contacted my politicians here in Texas. But...

    RHMLucky777

    Read More

    I have read all the comments and I share the pain with everyone here. In Texas the DEA and DOJ have been on a rampage scaring doctors and crippling legitimate, documented and irrefutable chronic pain sufferers. We're going to have to make a huge increase in numbers on a petition to get any legislative help. I have contacted my politicians here in Texas. But we need everyone, everywhere to write, and to call incessantly until they learn that they can not ignore us. This is a fight for our quality of life. This is a fight for our life.

    • Kadd
      Dec. 03, 2014
      Thank u . I 2 have tried so many products 2 get better. The cost alone for ins . Now spent the holiday week dealing with withdrawals... I've sent my best regards 2 the DEA... How much more experimenting do we have to put up with. I've talked the FDA they want more info on wats been happening . It's so simple PAIN... Treat me for that not this new fibromyalgia...
      RHMLucky777
      Read More
      Thank u . I 2 have tried so many products 2 get better. The cost alone for ins . Now spent the holiday week dealing with withdrawals... I've sent my best regards 2 the DEA... How much more experimenting do we have to put up with. I've talked the FDA they want more info on wats been happening . It's so simple PAIN... Treat me for that not this new fibromyalgia drugs . Even if I'm still in pain show some compassion. & help . We no wats not working. & I can't afford all the bills . Now an ER trip. The anxiety alone was unbearable!! Please Help. This ER doctor said he could tell how bad I was . & sent me home with Xanax & some Codeine low dose & it helped . I get mad wen I think that this drug gas caused so many problem s ... Not sure if I can take this ... I finally get 2 my doctor 2day... She's even tried 2 put me on these depression drugs . I'm not 2 depressed ... Only b cause of this PAIN . I want my life back & feel do bad for all the others ... So many stories I've seen about bad pain management .. The shots sent me into diabetes.. I hope we can all get better . But wat more do we have 2 do.. & if I do die I'm just saying then eat am I considered ??? I love life & want 2 get back. I'm almost afraid 2 spend the money on doctors . Afraid 2 leave the house. I'm allergic 2 fish & seafood so I can't try these omega things but with chronic pain I don't need 2 b looked down upon
  • Responsibleprescriptiondruguser
    Sep. 04, 2014

    This article looks like it dates back to 2010 and the writer may no longer be available.  Yet, we should come here anyway and brainstorm some solution(s) or ways to address this issue.

    • Chrimsum
      Sep. 28, 2014

      Yes in Deed. We do need to get more patients to come here. There are over 100 million chronic pain sufferers in this country. We need strong advocates and a kick butt attorney to champion our cause. Federal laws are being broken left and right when it comes to patients rights. Obviously this will take time. If you're on FB provide a link to this website....

      RHMLucky777

      Read More

      Yes in Deed. We do need to get more patients to come here. There are over 100 million chronic pain sufferers in this country. We need strong advocates and a kick butt attorney to champion our cause. Federal laws are being broken left and right when it comes to patients rights. Obviously this will take time. If you're on FB provide a link to this website. Whatever social media you use...spread the word. We have to be so loud, persistent and in their face that they can no longer ignore and abuse us. We did not choose to be in pain. No one ever goes to the doctor and asks to be in pain. And the D.E.A. and the DoJ do not have MD at the end of their titles.

    • Pink Angel
      Nov. 05, 2014
      I live in Texas also, and I will do anything I can to help, because it's just wrong for my Dr to deny my medication when I am in so much acute pain, I have repeatedly told him I have a loose knee prosthesis, which the total body bone scan shows, but he refuses to give me anything. My orthopaedic dr is very apprehensive to do another surgery, because I'm petite...
      RHMLucky777
      Read More
      I live in Texas also, and I will do anything I can to help, because it's just wrong for my Dr to deny my medication when I am in so much acute pain, I have repeatedly told him I have a loose knee prosthesis, which the total body bone scan shows, but he refuses to give me anything. My orthopaedic dr is very apprehensive to do another surgery, because I'm petite and this would be my third replacement. I remain strong some days because I pray a lot and always have Hope. I am willing to sign my name to any petition or whatever it takes to fight this battle, and that's exactly what it has become is a Battle. Sincerely Pink Angel
  • tuneses
    Aug. 31, 2014

    My experperience as a media activist mya help with this issue as well and I'm willing to take it on. My latest contract demands that I use only one specific pharmacy, not a specific chain but a specific pharmacy. It also doesn't allow anyone else to pick up my prescriptions no matter how much pain I'm in or if I can even drive. I can't even pre-arrange my spouse...

    RHMLucky777

    Read More

    My experperience as a media activist mya help with this issue as well and I'm willing to take it on. My latest contract demands that I use only one specific pharmacy, not a specific chain but a specific pharmacy. It also doesn't allow anyone else to pick up my prescriptions no matter how much pain I'm in or if I can even drive. I can't even pre-arrange my spouse (if I had one) to pick them up.   If I travel East to see family and friends I have to come back to get my prescriptions. It takes a week to recover from the trip. So my pain contract prevents me from helping my sister who has terminal breast cancer. The urine I don''t care about except that I have to pay for it. It's hard to believe that some of these are legal. Does anyone else have this level of harrassment? Please let me know. My contract is with El Rio in Tucson AZ. And it's not the doctors, it's administrators.

    • Ohio.Gal
      Sep. 03, 2014

      Yes. I have the exact same issues and I am in Ohio. I have been in "chronic pain treatment" since 2005. It is utter Hell. 

    • Pink Angel
      Nov. 05, 2014
      Please take this on to the Media. I live in the Houston TX area & thought of doing so myself locally. There are a lot of chronic pain patients out here hurting, and this is so unfair because the DEA cannot do their jobs and control the drug dealers and cartels, so they make patients suffer that actually need their medications. I support your getting this out...
      RHMLucky777
      Read More
      Please take this on to the Media. I live in the Houston TX area & thought of doing so myself locally. There are a lot of chronic pain patients out here hurting, and this is so unfair because the DEA cannot do their jobs and control the drug dealers and cartels, so they make patients suffer that actually need their medications. I support your getting this out to the Media, and I pray you can get your drug situation rectified. Pink Angel!
    • abbyinokc
      Nov. 11, 2014

      I have been saying this for years that this is exactly what we need to do is ban together and take our story to the media!  That as well as ban together with other chronic pain patients in each state, and protest on the steps of our state capitol buildings!  I truly believe this is THE ONLY way we will ever be heard.  The PROP doctors, the DEA...

      RHMLucky777

      Read More

      I have been saying this for years that this is exactly what we need to do is ban together and take our story to the media!  That as well as ban together with other chronic pain patients in each state, and protest on the steps of our state capitol buildings!  I truly believe this is THE ONLY way we will ever be heard.  The PROP doctors, the DEA and pretty much every other government agency have the doctors tucking tail and running.  It does absolutely no good to email or call our senators, representatives, etc., because most of them are totally clueless or side with the DEA, etc.  And one would think that as old as some of our senators, etc. are, that surely they've experienced chronic pain at some point.  Anyone who has had a major surgery but isn't suffering with chronic pain SHOULD understand how this would feel if they had to live the rest of their lives feeling that severe of pain every single day??  I have also suggested that we as chronic pain patients should make it known to our pain management doctors that if they ever have the DEA or anyone like them or the State Medical Board threatening to take their licenses away, to know that we as their patients would certainly appear in front of the State Medical Board and fight for them!  If you are in any way connected to the media, I'm sure you'd have no problem getting a HUGE group of chronic pain patients together to head to our local tv stations in each state and even our local radio stations.  We ceratinly have the right!  And as for our rights regarding our pain medications:  

      If a patient is denied a medication upon presentation of a valid/on-time prescription for a controlled substance, that patient may be eligible to file an ADA complaint.

      If the patient is disabled, as determined by coverage under Social Security, Medicare, or private disability insurance, that patient is covered under the Americans with Disabilities Act (ADA). Many chronic pain patients meet this criterion.

      The ADA parallels the Civil Rights Act of 1964. People who are disabled cannot be discriminated against because of their disabilities.

       

      Causes

      Legitimate refusal: A pharmacist can refuse to fill a valid/on-time prescription for a controlled substance if doing so would harm the patient, such as when the patient is allergic to the medication, the medication would adversely interact with other medications that the patient is taking, or the prescribed dose is above the recommended dosage, although some specialists can and do prescribed above normal doses for a patient and the practice is perfectly legal.

      Civil rights violation: The failure of the pharmacy or pharmacist to fill a valid/on-time prescription for a controlled medication is a violation of the patient’s civil rights under the ADA. This may happen because of the pharmacy’s policies, the pharmacist’s “professional discretion,” or rationing by the wholesaler of the amount of controlled medications available for pharmacy purchase.

      Rationing: Three major drug wholesalers have elected to establish arbitrary monthly rations, limiting the amounts of controlled medications that each pharmacy can purchase. This may prevent a number of patients from obtaining necessary medications upon which they rely.

       

      Options

      Patient action: Only the patient can help rectify these issues, by filing complaints with appropriate governmental agencies. The patient does not need an attorney. Individuals can go to the websites listed below and complete a complaint form.

      Boards of Pharmacy: The permit holder/store owner, the pharmacist in charge, the pharmacist who refuses to fill a prescription, and the wholesaler are all licensed by their state’s Board of Pharmacy. A complaint for unprofessional conduct can be filed against each with the appropriate Board of Pharmacy.

      Medical Licensing Board: Some believe that persons who refuse to fill valid/on-time prescriptions are in essence “practicing medicine.” In that case, a complaint to the state Medical Licensing Board may be appropriate.

      HIPAA: If the prescription department staff has disclosed a patient’s private health information (PHI) in a manner that someone else could overhear, the patient may be able to file a HIPAA complaint.

    • rpiano55
      Nov. 27, 2014
      I have suffered for yeas but especially after undergoing back surgery and contracting Staph Infection from a dirty hospital and negligent doctors. They let me lay in severe back pain after 1st surgery and surgeon came in next am and ripped my sheets back and bed was soaked with spinal fluid. He should've done emergency surgery night before but went to another...
      RHMLucky777
      Read More
      I have suffered for yeas but especially after undergoing back surgery and contracting Staph Infection from a dirty hospital and negligent doctors. They let me lay in severe back pain after 1st surgery and surgeon came in next am and ripped my sheets back and bed was soaked with spinal fluid. He should've done emergency surgery night before but went to another patient. I then had to IV Infusion for 4 months with a shunt in my chest, going in everyday, even Christmas, to no avail. They finally did a pinpoint Cat Scan to remove additional fluid causing the extreme pain I was in. Was given Toradol (joke) and told to take Tylenol. Another joke. I've had 3 more surgeries after that one and finally a titanium rod and screws inserted and Calcium deposits scraped off lower spine. When I woke, my surgeon never even came in to talk to me. I was in so much pain I begged God to bring me home. They assumed I was suicidal and didn't feed me for 3 days and some woman kept coming in my room to see if I was going to do something. Had no way. Laid flat on back in the worst pain ever. Since, I've been put on Fentanyl Patch 25 and now they want to drug test all the time. I'm fed up! They did this to me and now I have to travel 1hour and 45 minutes to just get drug tested and refills. They don't care about what the patient has been through. Just so it looks good on paper. Government!! Since that, told Dr. I just could not sleep. She put me on Phenibaritol and that caused me to fall and pass out. Broke Facial cheek bone, big toe, and ring finger. I've been a human guinea pig and don't know how to get off the wheel. DESPERATE FOR HELP. Have FMS too, muscle pain terrible, nerve damage in legs, splitting headaches, and most days I can't get out of bed even. But have to go for refills once a month and drug tested. What are they doing to us? Killing us, slowly, painfully, and without warrant to do so. Any suggestions?
  • Anonymous
    RDH
    May. 29, 2014

    I have rare Hepatitis C with Extra Manifestation Cryogloblunimia, Methadone and Diazapam was perscribed by my Physician outside the VA System, after following all known referrals to All related Physician of my condition. It is a progressive uncurable auto immune manifestation. I have failed Clinical Trials of Interferon/Ribavarin (Rebatron). I had finally been...

    RHMLucky777

    Read More

    I have rare Hepatitis C with Extra Manifestation Cryogloblunimia, Methadone and Diazapam was perscribed by my Physician outside the VA System, after following all known referrals to All related Physician of my condition. It is a progressive uncurable auto immune manifestation. I have failed Clinical Trials of Interferon/Ribavarin (Rebatron). I had finally been perscribed Methadone and Diazapam, and was determined after exhusted trials of other medications. My former physician retired, and I had to fall back on VA med. protocal, which has removed opiate medications. I now live in constant increasing pain. SSI is my only income and cannot afford an outside physician. I find this policy change outrageous and inhumane. There are VA patients that absolutely need opiate medications that the VA refuses to dispense!

    • leblancnorma13
      Jan. 24, 2015
      This lack of dispensing adequate pain meds, especially to men and women that have served this country is truly maddening! I knew a few Veterans who were in horrendous pain and were being treated at their closest V.A. hospitals. If they no longer prescribe opiods, I just can't imagine how they are managing now?!
  • Anonymous
    jenjen88
    May. 21, 2014

    I am in the pain clinic at the Va yet again. Already been through it and ended up being put on narcotics by the clinics pharmacist. Yes I know, highly unusal, given the "the va pain clinic does no rx narcotics" we normally get. I was even called an outright liar by the first md I saw at Tucson va, and the pain clinic pharm and the regular pharm. I hate being...

    RHMLucky777

    Read More

    I am in the pain clinic at the Va yet again. Already been through it and ended up being put on narcotics by the clinics pharmacist. Yes I know, highly unusal, given the "the va pain clinic does no rx narcotics" we normally get. I was even called an outright liar by the first md I saw at Tucson va, and the pain clinic pharm and the regular pharm. I hate being called a liar, especially when it's documented in front of them.So I did research. I looked each doctor's credentials. The first one doesn't belief in pain and has yoga/natural meds stores with the wife; the second one is a doctor of pharmacology....who, guess what? According to their degrees can not, I repeat, can not prescribe or diagnose medications or diseases. Hence the non-narcotic and non-opioid drugs in most pain clinics. So unless you have a medical doctor prescribing meds, like I did back home, don't use the clinic. Yes, it's the Va's and the insurance companies way of avoiding the  narcotic/opioid drug question.  They don't want to put their names on a contract of treatment. And here's another little tidbit for you. Technically a specialist is not supposed to rx chronic pain meds for you. They are supposed to start you off. And your primary care doctor is supposed to take the care plan  and continue with it. You are also supposed nicely ask them to do this. The Va thinks that the military mindset of blindly follow orders continues to doctors who haven't served. they haven't and they don't treat us with the respect that we deserve, especially the women. The one that called me a liar also laughed in my face when I told him my chronic pain was partly caused by being caught in an explosive blast, "Medical doesn't go in the field especially women!"  I asked him who he thought brought the wounded back?  Anyway I digress, keep on going fellow CP's.  Hope my advise helps some one. 

  • Evan C. Stout Sr.
    May. 20, 2014

    I HAD A BACK SURGEY ON MAY,5 2014.TO REMOVE MY DISC BETWEEN L2 &L3.MY SURGEON AND I,ALONG WITH MY PAIN DOCTOR HAD ALL AGREED THAT ONCE I WAS OUT OF THE HOSPITAL MY PAIN MANAGEMENT DR.WOULD COVER MY PAIN MEDICINE WHILE IN RECOVERY.

    I WOULD LIKE IT TO BE KNOWN THAT I HAVE SEEN A PAIN PHYSICIAN SINCE JUNE OF 1999.I HAD ONLY SEEN ONE THRU OUT MY ENTIRE CAREER...

    RHMLucky777

    Read More

    I HAD A BACK SURGEY ON MAY,5 2014.TO REMOVE MY DISC BETWEEN L2 &L3.MY SURGEON AND I,ALONG WITH MY PAIN DOCTOR HAD ALL AGREED THAT ONCE I WAS OUT OF THE HOSPITAL MY PAIN MANAGEMENT DR.WOULD COVER MY PAIN MEDICINE WHILE IN RECOVERY.

    I WOULD LIKE IT TO BE KNOWN THAT I HAVE SEEN A PAIN PHYSICIAN SINCE JUNE OF 1999.I HAD ONLY SEEN ONE THRU OUT MY ENTIRE CAREER OF NEEDING A PAIN DR.

    THAT WAS UP UNTIL 8 TO 10 MON'S AGO WHEN MY PAIN DOCOTOR DECIDED HE WAS GOING TO CLOSE HIS PRACTICE AND WORK FOR THE VETERAN ARRAIR'S.WHILE I RESPECTED HIS DESICION.I WAS VERY FEARFUL OF HOW THIS WAS GOING TO WORK.

    I WENT TO AND AM STILL SEEING THE PAIN DR. HE TOLD US TO GO TO.

    SO,TO JUMP FORWARD TO THIS SURGERY TWO WEEKS AGO.WELL I HAD THE SURGEY AND THE HOSPITAL DID A GREAT DEAL TO HELP ME WITH THE PAIN.

    OM THE DAY I WAS BEING RELEASED,I CALLED MY PAIN DR.'S OFFICE 3 TIMES.FINALLY I RECIEVED A CALL STATING THAT THE DOCTOR WAS IN CLINIC MEANING HE WAS ON THE GROUNDS)AND I WOULD HEAR SOMETHING AS SOON AS THE NURSE AT HIS OFFICE HEARD FROM HIM.I REMINDED THEM.I LIVE BY MY SELF IN CLAREMORE,OKLAHOMA AND THE SURGERY HAD BEEN DONE IN TULSA,OKLAHOMA AND I WOULD HAVE NO WAY TO GET BACK TO TULSA TO GET A NEW OR TEMPERARYLY DIFFERENT SCRIT.I WAS TOLD AGAIN I WOULD HAVE TO WAIT TIL SHE HEARD FROM THE DR. WHOM WAS IN THE SAME BUILDING.A GREAT FRIEND OF MINE TOOK ME HOME AND HELPED ME AS MUCH AS POSSIBLE.THEN HE HEADED BACK TO HIS HOME IN TULSA.I NODDED OFF AND LOOKED AT MY PHONE WHEN I AWOKE AT ABOUT 5:30 P.M. AND SAW THEY HAD CALLED.I CHECKED THE MESSAGE AND TO MY TOTAL AND COMPLETE DISBELIEF THE NURSE SAID THE DR.HAD TOLD HER TO TELL ME THAT WAS TO CONTINUE TAKING THE EXACT SAME MEDICINE I HAD BEEN TALKING FOR THE LAST 7 TO 9 YEARS AND IN THE EXACT SAME DOSE I HAD TAKEN IT IN FOR THE LAST 7 YEARS.I TRYIED AND IT WAS TOTALLY UNBERIBALE.I CALLED THEM ON FRI. AND MONDAY WITH NO RETURN JUST ME SUFFERING LIKE AN ENEMY OF WAR (LITTERALY,AND NO DISRESPECT TO ANY OF OUR ARMED FORCES).I CALLED MY SURGEON'S HEAD NURSE AT HIS OFFICE AND SHE COULD NOT BELIEVE WHAT I HAD TOLD HER.HER AND I AGREED THAT WE WOULD DO NOTHING AT THIS TIME BECAUSE I DID NOT WANT MY PAIN CONTRACT BROKEN.I FINALLY RECIEVED A CALL ON TUES. FROM MY PAIN DR.'S NURSE AND SHE SAID "YOU KNOW HE HAS ALREADY TOLD YOU TO CONTINUE WITH YOUR SAME MEDICINE AND DOSE".WHEN I TOLD HERE I HAD SPOKEN TO MY SURGEON'S HEAD NURSE AND SHE COULD NOT BELIEVE WHAT WAS GOING ON.MY PAIN DR.'S NURSE SAID"WELL DOES SHE KNOW YOU TAKE 12 PILLS A DAY"(WHICH ACTUALLY IT'S 11).I TOLD HER MY SURGEON'S NURSE HAS MY CHART IN FRONT OF HER WHEN WE SPEAK.THE PAIN DR.'S NURSE THEN SAID "WELL IF THEY WOULD LIKE TO CALL OVER HERE THAT'S FINE".I CALLED MY SURGEON'S NURSE AND SHE DIDN'T WANT ME TO BREAK MY PAIN CONTRACT PLUS SHE KNEW I WOULD BE IN TO SEE THE SURGEON IN 5 DAY'S.

    THIS IS WHERE I GET REALLY ######.IF MY PAIN DR. WAS CONCERNEDABOUT THE NUMBER OF MEDICATION I WAS TAKING,HE COULD HAVE EASILLY SAID OK DON'T TAKE ANYMORE OF YOUR REGULAR SCRIPT FOR THE NEXT 6 TO 8 WEEKS AND I WILL CHANGE YOUR MEDICATIONS UP FOR A SHORT TIME TO TRY AND HELP YOU AS BEST AS I POSSIBLY CAN.BUT,NO HE DID NO SUCH THING AND NOW I'VE BEEN SUFFERING LIKE YOU DON'T WANT TO KNOW.

    I CAN GIVE DR.'S NAME'S,PHONE NUMBER'S AND ADDRESSES UPON REQUESTFROM A RELIABLE PERSON WHOM CAN HELP ME.I MEAN I'M ONLY TWO WEEKS OUT OF SURGERY TODAY AND GO SEE MY SURGEON TOMORROW.I DON'T GET TO SEE MY PAIN DR UNTIL THE 28TH OF MAY.PLEASE HELP IF POSSIBLE.THANK YOU,SINCERLY E.C.S.SR.

     

    Moderator's Note: Please do not post personal contact information including email addresses and phone numbers.

    • Kadd
      Dec. 03, 2014
      Sounds so familiar. I feel ur pain. Lv
    • Kadd
      Dec. 03, 2014
      Wish all doctors would b like like this ER doctor . He could tell I was in pain & simply afraid to ask for help. He wanted to reassure me & so I did. Wow it was such a change . He really wanted to help ! It was so refreshing... Now I get to go to my doctor & again explain that tramadol has sent me crazy.. So many problems & cost. Wish I could stay with the...
      RHMLucky777
      Read More
      Wish all doctors would b like like this ER doctor . He could tell I was in pain & simply afraid to ask for help. He wanted to reassure me & so I did. Wow it was such a change . He really wanted to help ! It was so refreshing... Now I get to go to my doctor & again explain that tramadol has sent me crazy.. So many problems & cost. Wish I could stay with the ER doc. Xoxo I'm 51 I don't need a buzz... Just meds. To help feel better. It's not right & a shame for this country !
  • backpainworse
    May. 11, 2014

    I just went through 2 years of horrific pain fighting a Kaiser Pain Clinic. Suddenly after years of being medicated for chronic medical pain the doctors started to titrate me down saying their patients all needed to be placed on multimodal treatment which included, exersize, stretching, meditation, diet and attending classes along with physical therapy and...

    RHMLucky777

    Read More

    I just went through 2 years of horrific pain fighting a Kaiser Pain Clinic. Suddenly after years of being medicated for chronic medical pain the doctors started to titrate me down saying their patients all needed to be placed on multimodal treatment which included, exersize, stretching, meditation, diet and attending classes along with physical therapy and psychiatry analysis. Problem was I was already doing alot of those things my entire life along with the medication.

    They made me feel like I was seeing a parole officer when I had never failed a pee test or done any rehab in my life. I don't drink or smoke. But they just looked at me with a deadeye stare and said if I was having problems with pain it was just too bad. I documented everything and I am filig complaints with every state and federal agency. It's probably not going to help but I decided that if they were going to cause me pain I would return the favor as best as I could. Now I am going to call all the radio talk shows that I can and see if any TV stations will put me in the shadows to talk about the problem. Next fall on October 15 when the insurance companies have open enrollment I plan on writing letters to the editors of local papers warning people about Kaiser and about this problem. Strangely enough our only salvation may be when medical marijuana is OK'd by the Federal government but until then it can be a problem with Social Security Disability... If you have dealt with SSDI and Marijuana for pain please write in and share your experience. 

    • Kadd
      Dec. 03, 2014
      So r they going 2 help with ur bills 2. Who. & how r we all supposed 2 these things without meds . That help. Help us feel better. I'm hoping 2 get better. But so many bills & who's going 2 take me 2 all these places. If I could do all that I'd b working again & helping my family!!!
  • kellie nolen
    May. 08, 2014

    I have several medical issues. Ive had them for several years. I have been to dr after dr telling me there is nothing they can do. Take tylenol or ibprophen.  Well, when u already had a hole in ur stomach because of it, do u really wanna put another one?? But yet they tell u there is other meds out there.  There r sooo many other side effects with...

    RHMLucky777

    Read More

    I have several medical issues. Ive had them for several years. I have been to dr after dr telling me there is nothing they can do. Take tylenol or ibprophen.  Well, when u already had a hole in ur stomach because of it, do u really wanna put another one?? But yet they tell u there is other meds out there.  There r sooo many other side effects with ulcers.  Who wants to feel like a ginney pig??  The drs dont care for us!! They just want what the government wants.  Excuse me dr, but the government put all of us Iin a bad spot. When the us falls on its ass do u really think the government will take care of u?? I have bipolar and the dr is wanting me to take that medication just to zombie me out so I wont think its there. That is the problem wirh america now. There r to many people on this for depression. According to drs, its all in our head. This must be y 75 percent of americans are over weight. The medication puts u in more of a depression. Start reading up on the side effects of anti depressants . Its no worse than pain meds anyday. The government wants zombies. Wake up people. Its all government. we have to fight for our rights. For all we know the government is probally saving it all for them like all the amonition.  Just saying!!

  • Donoharm
    Feb. 11, 2014

    First it began being diagnosed with RA, which I was prescribed methotrexate for.  I took that for almost two years until one day I ended up in ER with pancreatitis.  They told me to stop the methotrexate as it was very bad for the pancreas.  Forward five years, and many gastro problems later, having gallbladder removed, bloating after meals ect..then...

    RHMLucky777

    Read More

    First it began being diagnosed with RA, which I was prescribed methotrexate for.  I took that for almost two years until one day I ended up in ER with pancreatitis.  They told me to stop the methotrexate as it was very bad for the pancreas.  Forward five years, and many gastro problems later, having gallbladder removed, bloating after meals ect..then finally came PAIN, that never went away.  I didnt know that it was all caused from the first acute attack  of pancreatitis till I was diagnosed with chronic pancreatitis in 2012.  The pain was relentless and excruitiating with bouts of acute attacks ontop of the chronic.  It took a year to get any  pain managment.  My specialist would write an occasional script to help get me by, but I was pretty much left to suffer or be hospitalized when I couldnt take it anymore.  Now that I am in pain managment, I have a doctor who says he doesnt know what CP is, and treats me with low dose meds, and keeps asking when are you getting surgery every month, knowing that I cannot afford a transplant, he continually tells me that he cant keep treating me forever.  I have only  been his patient less than a year.  I tell him how severe the pain is and my blood pressure should tell him I am not lying close to 160, but he says if we up the long acting med we will have to reduce break through meds to the point where it is of no help to even bother asking for more relief.  So I am left to suffer, and afraid to look for another doctor due to "doc shopping"  I am new to this and dont know what my rights are if I even have any.  For those of you who dont know what pancreas pain feels like it is like a shark gnawing on your back and chewing your nerves, it causes severe nerve pain ontop of that dead organ pain and its constant, but worse with eating, so we dont eat much.  Now the specialist that was my only support is gone due to hospital litigation, so I have no one to advocate for me, or to even check on my condition to see how its doing (pancreatic cancer, ect).  Its cruel and heartless to be treated with such negligence, and all because of a medication that come to find out now I didnt even need.  Two weeks ago I saw a new rhuemy who told me they are checking me again to see if I even had RA, so far tests are all negative.  She said many of my old doctors patients were mis-diagnosed, perhaps due to a faulty MRI machine.  However she does think I do have psoratic arthritis due to other changes but who knows if I wouldve still been treated in the same aggressive manner as taking chemo.  I am with you here, hoping that somehow we as patients, and doctors regain our rights to be able to treat pain instead of allowing people like me to suffer needlessly with undertreatment.  I hear way too many people on these boards saying they think death would be a better alternative.  How are they fighting a war on drugs by taking away our legal rights to treatment?  I guess its the easy way out rather than to face the street criminals, who are probably loving that the DEA is only helping build thier client base.  The pain contract should just state that if you overdose on your meds by your own negligence then you or your family cannot hold prescribing doctor accountable.  Maybe that would resolve the worrry they have about people doing just that, now they have another worry about how many people will take thier own lives due to inadequate pain control.  I have already seen it happen myself, a cancer patient only prescribed on 15mg extended relief morphine one pill per day, well, he shot himself in his back yard, guess he was tired of suffering.  What if they were held accountable for not treating pain?  I wonder.

    • tim8001
      Jul. 29, 2014

      we have to find some way of getting legal rights. Remember Siobann Reynolds head of teh pain relief network. Tanya Treadway had it in for her then she Siobann became engaged to a lawyer who was going to start working wiht us pain sufferers. It was the first time i actually thought we were going to get legal rights. I said to myself she is walking on thin ice...

      RHMLucky777

      Read More

      we have to find some way of getting legal rights. Remember Siobann Reynolds head of teh pain relief network. Tanya Treadway had it in for her then she Siobann became engaged to a lawyer who was going to start working wiht us pain sufferers. It was the first time i actually thought we were going to get legal rights. I said to myself she is walking on thin ice as they already have it in for her. I was not at all surprised to hear that Siobann and her fiancee and his mother were in a small plane coming in for a landing and crashed???? I am or  was a private pilot and this really sounds suspisious, just putting it out there. There went our legal representative. Maybe one day a lawyer will get caught up in cronic pain or maybe his mother or sister or wife. Maybe then when they get to experience the real hell of chronic pain will something happen but for now we are jsut easy picking. After all were sick and can't really defend our selves like someone who is well. Karma will be a b-----for all these doctors and moron dea agents who are too cowardly to go after drug dealers. After all i wonder how many legitimate pain patients are forced to the streets. If your in enough pain you will do any thing to get out of it. No one seems to care about how many people are forced to take their own lives due to pain

    • jlw41675
      Dec. 20, 2014

      I am sorry about what you are going through, but I am somewhat thankful to know that I am not the only one. I think about taking my life all of the time and I get so upset and angry because I don't want to die, but I can't take the pain. I was "fired" because I physically couldn't make it to appts. a lot and had such a difficult time with transportation since...

      RHMLucky777

      Read More

      I am sorry about what you are going through, but I am somewhat thankful to know that I am not the only one. I think about taking my life all of the time and I get so upset and angry because I don't want to die, but I can't take the pain. I was "fired" because I physically couldn't make it to appts. a lot and had such a difficult time with transportation since I no longer drive. This was a new doctor and she took this personal for some reason and I don't know what exactly she wrote in my file, but whatever it was, she might as well have blacklisted me. Everytime I went to see a new doctor they were nice to me until they got my file. Then, I was treated so rudely and like I was a drug addict. I had the added bonus of them decreasing my pain meds. I lost my morphine and eventually all my hydrocodone. I can't even express how it feels to have someone treat you like a criminal, like a liar, an addict, like nothing. You don't matter. You're just a drug addict. You have chronic pain? Your pain doesn't ever go away and you've had it for years and years? Well, it must be that you just don't want to get better; you just want drugs. If I wanted drugs to get high, then I wouldn't have left my former doctor who had me on 240 mg of morphine, now would I? But, I guess that doesn't matter because this other doctor I went to afterwards, who I thought would help me get better, just made sure that I don't ever get to see my family or spend time with them at holidays. Last Christmas, it was spent in bed alone and no one even called to see how I was. You know what? I think that after a year of missing out on things, they were used to it. I get to spend everyday in bed or on the couch. I never leave my home now because of the pain I'm in and most days, I pray to God that He will just take me home when I go to sleep because I don't want to have to kill myself. But, I feel like I'm forced into having to do just that because no one will help me. I thought that doctors took an oath to do no harm. I wish that everyone of them could feel all the pain I feel at my worst just for one day. I'll bet they would pray for death too. I have so much pain that some days I have to take sleeping pills now because I can't stand to be awake. I didn't do anything to deserve all this pain. Why should I be punished because the doctors I've had never tried to help me get better and that's why I still have the same pain 12 yrs. later? Why should I be treated without the least bit of compassion? If I were a dog or a cat, I would have been uthenized by now so as to not let me suffer. But, because I'm a person let me suffer day after day after day. Not giving me pain pills and treating me like a drug addict is so wrong. Now, even though I've never taken pot before. That may be the only thing I can do and what happens if I get caught? Well, I go to jail, but it's the doctors that made me seek out the real drugs in the first place! I think that they should go to jail, instead. I live in Nebraska, which I love, but I wish they would help people by allowing mmj. How can people be so naïve? MMJ doesn't even get you high b/c it doesn't have the THC in it and it's not going to make your hair fall out, give you short term amnesia, increase your pain in the long run or increase your suicidal thoughts. For being doctors, they don't seem to be that smart. Sorry for rambling, but I haven't slept in two days. That's what happens when your pain is too high. You don't sleep until your body just gives into complete exhaustion. That usually happens for me around day three though. If there is something I can do to change this, tell me and I will do it. (As long as it's physically possible).

    • Donna Veino
      Jan. 08, 2016
      I wonder if mehotrexate is why i am having gastro issues also..ive been on it for 7-10 years now. Thank you for sharing!
  • Anonymous
    WJD
    Jan. 08, 2014
    My Pain Dr and I have been working together over the 3+ last years (I fumbled around with different, helpful Dr., but my PD's treatment finally started giving me relief). It's the pharmacy who will fill my prescriptions for a while and then suddenly cut me off, leaving me searching all over for another pharmacy that will fill my scrips for OxyContin - have...
    RHMLucky777
    Read More
    My Pain Dr and I have been working together over the 3+ last years (I fumbled around with different, helpful Dr., but my PD's treatment finally started giving me relief). It's the pharmacy who will fill my prescriptions for a while and then suddenly cut me off, leaving me searching all over for another pharmacy that will fill my scrips for OxyContin - have been on everything else - this is the only one that works on my pain and allows me to be the wife, mother, business owner who I want to be. I am trying to figure out who is responsible for the pharmacists treating us this way? Is it the Pharamacists, the co. they are employed by, the DEA, or the FDA or families of people who have ODed? We legit. Pain patients need to do something! We are not doing anything wrong.
    • Donoharm
      Feb. 11, 2014

      I have read somewhere recently that the DEA is putting pressure on pharmacists to screen pain patients, so this could be why your pharmacy is unwilling to provide you medication.  The DEA is supposedly requiring them to ask the doctors questions as to why you need the meds, and other questions (dont remember them all).  I remember a doctor commenting...

      RHMLucky777

      Read More

      I have read somewhere recently that the DEA is putting pressure on pharmacists to screen pain patients, so this could be why your pharmacy is unwilling to provide you medication.  The DEA is supposedly requiring them to ask the doctors questions as to why you need the meds, and other questions (dont remember them all).  I remember a doctor commenting that it is unreasonable for the DEA to ask pharmacist to come between the provider/patient relationship.  Too bad I cant remember where I read this or I would put up the link  to the site.  I guess it's just another tactic on the side of the DEA to meddle with legal rights of patients and thier providers.  I have had trouble if I dont go to same pharmacy every month bc say they are out that month, and will be out for too long of a time to wait for refill so I go to another pharmacy to fill, which usually requires careful searching, only to come back to my regular pharmacy and have them say no  you didnt fill here last month so we cant see you.  In this case I will try to go to someone who's familiar with the fact that I normally go there to see if I can gain back my right to fill there again.  It's a headache for all involved.  

  • Anonymous
    Sean hinchliffe
    Jul. 23, 2012
    We have similar problems here as its difficult to get a medical team together as some medical professionals don't recognise the illness (ess) . Then to add further insult we have fight on our hands with those in authority who are supposed to help disabled / long term health sufferers as they believe it's all psychosomatic. As if we don't suffer enough. Again...
    RHMLucky777
    Read More
    We have similar problems here as its difficult to get a medical team together as some medical professionals don't recognise the illness (ess) . Then to add further insult we have fight on our hands with those in authority who are supposed to help disabled / long term health sufferers as they believe it's all psychosomatic. As if we don't suffer enough. Again its able bodied (normal) people in charge who have no clue what is like to be one of us. I am one of the lucky few who is prescribed tramadol, baclofen (antimuscle spasm) drug and morphine, and some strong paracetamols. But like one your readers your body does build up a tolerance so I complained and then was prescribed duloxetine which does ok for neuropathy but it can mess with your head unless you suffer with depression also. But I do feel not enough is being done to seek a cure and over here it can be difficult for your rights to be covered under the disability discrimination act as I lost some help through a tribunal because my condition varies, from being able to move around to sometimes being immobilised. But we keep battling on.
  • SickCall
    Jul. 17, 2012

    I live in New York and this happened to me about a month ago. I wrote it in respose to another article and the temptation to just copy and paste was too much but I think you will get the idea. Its what your talking about.

    Sir-
      Unfortunately I can empathize with this article. It was 4 years ago that I herniated a disk in my neck while lifting a patient...

    RHMLucky777

    Read More

    I live in New York and this happened to me about a month ago. I wrote it in respose to another article and the temptation to just copy and paste was too much but I think you will get the idea. Its what your talking about.

    Sir-
      Unfortunately I can empathize with this article. It was 4 years ago that I herniated a disk in my neck while lifting a patient in a residential care facility while working for New York State. I was 36 and I did not want to undergo invasive back surgery.
      For the Last 10 years I have seen the same PCP. At my last office visit I was told I was being discharged as a patient because my doctor could “no longer treat my pain”. O.K., but isn’t that what doctors do? I will spare you the details of my personal suffering and instead I will cut to the chase and tell you the real reason why.
      I found out from his nurse that my doctor had a professional relationship with another doctor. This other doctor was jailed for writing false prescriptions or some such shady business. This resulted in my physician “taking in” the jailed doctors patients. This apparently interested the DEA as he was “red flagged” by them for prescribing too much opioid medication.
      I went in for a scheduled appointment to discuss altering my medications as I felt that a 50mcg Duragesic patch was overkill for my symptoms. This resulted in my immediate discharge. I left the office stunned, confused, and feeling abandoned.
    Only later did I find out the details and the real reason behind his actions. It would be easy to blame the doctor but I tend to take a wider view and I do pay attention to the man behind the curtain. The “War on Drugs” has found a new target. Doctors and persons with conditions that cause chronic pain. Lets call a spade a spade. This is simple discrimination against persons with disabilities. It pained me (no pun intended) to read that story. I know how she felt all too well.

    • shaley bauim
      May. 13, 2014

      my dr discharged me yestrday when i was to grt my regular refeel im in baltimore is there any one i can go to, its the 2nd time in 4 yrs the exact same thg happened this time they saidthey were dropping me becuz no oxycodone showed up in my urine, if he bothered to ask i had a stomach flu for 5 days an had to allow the fentan. patches to do theyre work because...

      RHMLucky777

      Read More

      my dr discharged me yestrday when i was to grt my regular refeel im in baltimore is there any one i can go to, its the 2nd time in 4 yrs the exact same thg happened this time they saidthey were dropping me becuz no oxycodone showed up in my urine, if he bothered to ask i had a stomach flu for 5 days an had to allow the fentan. patches to do theyre work because i would of vomitted 5 days of oxycodone. now in one day ill be experiancing withdrawal, an if that isnt frightning enuff, i wont be able to turn in bed muchless walk, witout pain. is there any dr to go to who prescribes patches an oxycodone? i also suffer from PTSD ,armed robbery as bank teller gun to my face, then 8 hours hostage. so panic kicks in when safety is threatened, i just want to be able to make dinner, any help immediately for pain meds?

  • jbaysinger
    Jan. 10, 2012

    i have pain 7/24  amd i;m sick of people trying to keep DR:S from treating their patents pain- only the one in pain know what there pain leavel is and how bad and what helps. Like i;d try something besides pain pills oh no i don;t have INS. I can;t aford anything but pain pills And a DR< should not be responsoble if a patients over dos.That is the patients...

    RHMLucky777

    Read More

    i have pain 7/24  amd i;m sick of people trying to keep DR:S from treating their patents pain- only the one in pain know what there pain leavel is and how bad and what helps. Like i;d try something besides pain pills oh no i don;t have INS. I can;t aford anything but pain pills And a DR< should not be responsoble if a patients over dos.That is the patients fault not the DR;,s The F>D>A needs to stay out of DR:S, being DR:>S Let them do their job not someone that no longer understands pain or anything about the body ;only the person knows how they feel

  • Theresa
    Jan. 11, 2011

    Im also in Chronic Pain daily and have to suffer becuz no dr seems to care. I have L3-4, L4-5 in my back bad and several in my neck that are pinched, spurred and arthiritis all in it. It causes terrible headaches. I also have RSD in my left arm and hand. Ive suffered for many yrs now with no relief. My regular dr gives me pain pills but it's not touching the...

    RHMLucky777

    Read More

    Im also in Chronic Pain daily and have to suffer becuz no dr seems to care. I have L3-4, L4-5 in my back bad and several in my neck that are pinched, spurred and arthiritis all in it. It causes terrible headaches. I also have RSD in my left arm and hand. Ive suffered for many yrs now with no relief. My regular dr gives me pain pills but it's not touching the pain. He's afraid to try anythiing stronger I guess for fear from the DEA. I have never been on drugs or alcohol. I am a strong christian that trusts God daily and prays for relief. A healing in body would be great! But since whatever reason HE hasnt healed me I feel that some compassion from my drs would be appreciated. Not only am I going to my reg dr but I go to a pain management dr. In over a yr that Ive been to him Ive only recieved injections of steriods which didnt help and made my peptic ulcers flare up. He only has tried me on Cymbalta ( had bad side effects so couldnt take), kolinipin ( helps some with depression but not pain)and tranzadone (never filled cuz already have sleeping meds) not for pain.

    I have expressed to the pain management that I dont understand why they havent tried me on different meds til they found the one that would give me relief. They said that since the symbalta didnt help and Ive tried the neurotin with no luck from the other dr that there was nothing else left to try. But nothing stronger than lorcets have been tried by my reg dr. And it doesnt help witht he neck pain and arm pain. It helps with the back pain some but not elimanating all pain. SO I SUFFER EVERY DAY>>

  • bassguitar444
    Oct. 05, 2010

    OKAY PEOPLE, MY RHUMETOLOGIST PUT ME ON 50 MGS OF TRAMADOL 1 PILL 4 TIMES A DAY, WITH ALL MY BACK WHICH HE KNOWS AND FIBROMYALGIS, I WOULD GET MORE RELIEF TAKING M&M'S!  ANYWAY, I WENT TO WEB MD AND IT SAID AFTER A FEW WEKS I COULD INCREASE, THE MAX ON THE MEDICATION IS 400 MGS A DAY, SO INSTEAD OF CALLING MY NEARLY RETIRED OLD SCHOOL RHMETOLOGIST,...

    RHMLucky777

    Read More

    OKAY PEOPLE, MY RHUMETOLOGIST PUT ME ON 50 MGS OF TRAMADOL 1 PILL 4 TIMES A DAY, WITH ALL MY BACK WHICH HE KNOWS AND FIBROMYALGIS, I WOULD GET MORE RELIEF TAKING M&M'S!  ANYWAY, I WENT TO WEB MD AND IT SAID AFTER A FEW WEKS I COULD INCREASE, THE MAX ON THE MEDICATION IS 400 MGS A DAY, SO INSTEAD OF CALLING MY NEARLY RETIRED OLD SCHOOL RHMETOLOGIST, I TOOK IT UPON MY SELF AS I FELL I AM MORE EDUCATED IN MEDICATIONS, ALL KIDS THEN ANY DOCTOR IS, THATS THE TRUTH.  MY FRIENDS COME TO ME FIRST BEFORE THEY GO TO THEIR DOCOTRS.  IF THEIR IS SOMETHING I AM NOT SURE ABOUT, I GO TO WEB MD, END OF STORY.

    TO CONTINUE ON, I DECIDED AFTER 2 WEEKS OF TAKING TRAMADOL 1 50 MG 4 X A DAY (M&M) CAUSE IT DIDNT DO ANYTHING FOR MY SEVERE BACK PAIN AGGRIVATED BY THE FIBROMYALGIA, MY RHUMEY KNOWS THIS, C'MON ALREADY DOC.  WELL I STATRED FOR THE LAST 3 WEEKS TAKING 200 MGS IN THE MORNING , 6 AM AND 200 MGS IN THE AFTERNOON, 8 HOURS LATER.  NO SIDE EFFECTS AT ALL!  JUST FEELING BETTER!  IS THAT A SIDE EFFECT.  WELL BOTTOM LINE, I WROTE MY RHUMEY A LETTER IN THE MAIL 3 WEEKS AGO, 3 WEEKS AGO!  HE JUST GOT IT!

    I GET A CALL FROM HIS OFFICE IN A FRANTIC VOICE, DONT TAKE ANY MORE TRAMADOL, YOUR OVERDOSEING!  CALL US IMMEDIATELY.  ARE YOU FREAKING KIDDING ME?

    NEEDLESS TO SAY, I DIDNT CALL HIM, I WENT TO WEBMD, PRINTED OUT THE PAGE THAT SAID YOU COULD TAKE 400 MGS A DAY AND WROTE HIM A LONG LETTER BECAUSE IM TIRED OF ALL THE BULLSHIT, WHICH MEANS BOTHMY HUBBY AND I SEE THE SAME DOCTOR , THE RHUMETOLOGIST BABYS MY HUBBY, MY HUBBY IS OVERWEIGHT, DOESNT ASK HIM TO EXCERSISE OR WALK, BUT EXPECTS ME TO DO ALL THE ABOVE, AND I DID AND LOST 60 POUNDS!!!! 

    DO I GET CREDIT FOR IT, NO!  NOW I AM GETTING SHIT FOR THE TRAMADOL WHICH IS WORKING.

    HEY MY HUBBY IS TAKING STUFF THE DOCTOS DONT EVEN KNOW IN ADDITION TO THE PAIN MEDS, THAT WENT IN MY LETTER TO THE DOCTOR.  SO I TOLD HIM TO GET OFF MY CASE! 

    TIRED OF ALL THE CRAP, TIRED OF ALL THE DOCTORS MY HUBBY AND I SEE AT SEPERATE TIMES, AND THEY BABY HIM.  NOT FAIR.  THEY NEED TO KNW FROM ME WHATS REALLY GOING ON.  HE SITS ON HIS ASS ALL DAY.  HE IS RETIRING FROM HIS JOB RIGHT NOW AND HIS RESONING FOR NOT HELPING DO NOITHING IS BECAUSE HE DOESNT WANT TO WIND UP IN SEVERE PAINLIKE ME!  WHAT A MAN!

    I HAVE SEVERE TENDINTIOIOUS IN MY ELBOW, HIPS BAD SPINE NECK, PICHED NERVE, MY HUBBY FIBROMYALGIA, WHICH I JUST FOUNF OUT HIS VITAMIN D-3 LEVEL IS LOW AND THAT CAN CAUSE ACHES AND PAINS, SO GUESS WHAT, HE MIGHT NOT HAVE FIBROMYAGIA BECAUSE THE ASS WONT GO IN THE SUN, I LIVE IN THE SUN.

    I TEY TO GET HIM IN THE SUN, NO WAY.  THIS IS A MAN WHO USED TO LIVE IN OUR POOL AND THEN ONE DAY STOPPED FOR NO REASON.  HE HAS BEEN ON MANY ANTIDEPRESSANTS, THEY DONT WORK. 

    I AM CURRENTLY SEEING A PSYCHIATRIST TO DEAL WITH HIM AS I AM AHVING ANXIETY ATTACKS SINCE HE HAS BEEN HOME SINCE DEC OF 09.  I HAVE NO ONE TO TALK TO ABOUT THIS EXCEPT MY FRIE D WENDY.  NO DR, IS LISTENING TO ME EXCEPT MY SHRINK.

    SO MY RHUMETOLOGIST GOT A KIND OF NASTY REAL LONG LETTER FORM ME TODAY AND I TOLD HIM EVERYTHING ABOUT MY HUBBY KENNY AND THE FACT I AM TAKING THE MEDS ACCORDING TO THE WESITE AND TO GET THEM SET UP WITH MAIL ORDER PLEASE AND DONT GIVE ME BULL SHIT OVER IT.....THANK YOU ALL FOR LISTENING..I AM WAITING FOR MY HUBBY TO GO TO HIS DR.'S APPT. THEN I WILL VENT TO MY 24 YR OLD NURSING SCHOOL DAUGHTER ABOUT THIS WHO LIVES IN DELAWARE AND HAS LUPUS.  SHE IS MY OTHER VENT.  THA NK GOD. SHE WILL GET ALL OVER A STEP DADS SHIT.  HE IS EITHER PRE DIABETIC OR DIABETIC, HE GOES THURS FOR MORE BLOODWORK, HE IS BLOWING THIS OFF TOO...........THEN YOU WONDER WHY I TAKE KLONOPIN TO RELAX AND SEE SHRINK..............LOVE TO ALL TAMMY ..I WILL LET YOU KNOW THE OUTCOME.............^j^

     

  • bassguitar444
    Aug. 26, 2010

    I WAS JUST INFORMED BY MY PAIN MAMANGEMENT DOCTOR THAT IN ORDER TO RECIEVE NARCOTICS, I NOW HAVE TO  BE UNDER THE CARE OF A PHYCHIATRIST.  I NEVER HEARD OF THIS BEFORE.  I LIVE IN NEW YORK STATE. 

     

    ANYONE ELSE HAVING THIS PROBLEM WHO LIVES IN NEW YORK?  PLEASE LET ME KNOW.  I JUST E-MAILED "NEW YORKS MEDICAL CONDUCT...

    RHMLucky777

    Read More

    I WAS JUST INFORMED BY MY PAIN MAMANGEMENT DOCTOR THAT IN ORDER TO RECIEVE NARCOTICS, I NOW HAVE TO  BE UNDER THE CARE OF A PHYCHIATRIST.  I NEVER HEARD OF THIS BEFORE.  I LIVE IN NEW YORK STATE. 

     

    ANYONE ELSE HAVING THIS PROBLEM WHO LIVES IN NEW YORK?  PLEASE LET ME KNOW.  I JUST E-MAILED "NEW YORKS MEDICAL CONDUCT PROGRAM-A GUIDE FOR PHYSICIANS"  WAITING FOR A RESPONSE FROM THEM.  I JUST WANT TO MAKE SURE SHE ISNT TRYING TO PULL WOOL OVER MY EYES.  I DONT NEED TO SEE PHYSCHIATRIST.  SHE WANTS ME TO GO AND TALK ABOUT MY CHRONIC PAIN, HOW BORING! 

     

    OTHER THEN SHARING THINGS ON THIS BOARD, I DON'T SEE THE NEED TO TALK TO A PROFESSIONAL.  RIGHT NOW MONEY IS TIGHT AND I DONT NEED TO PAY ANOTHER CO-PAY RIGHT NOW FOR A DOCTOR I DONT NEED.  I RECENTLY, OVER THE LAST 2 MONTHS WENT TO ANOTHER PSYCHIATRIST BECAUSE MY PAIN MANAGMENT DOCTOR WANTED ME TO GO TO MAKE SURE I AM NOT ADDICTED.  I WENT TO HIM , HAD 2 SESSIONS, HE DIDNT UNDERSTAND WHY I WAS THERE AND DIDNT SEE ANY ADDICTIONS SIGNS AND EVEN TOLD ME HIMSELF THAT WHEN YOU ARE IN CHRONIC PAIN YOU CANT GET ADDICTED, HELLO!!!  THIS IS WHAT I TOLD HER AGAIN AFTER HE TOLD ME THAT.  SO WHAT THE HELL DOES SHE WANT FROM ME?

     

    I AM AGGRIVATED OVER THIS.  I AM LOOKING FOR A NEW PHYSCHIATRIST BECAUSE THE GUYI JUST SAW WANTED ME TO GO BEHIND MY PAIN MANAGEMENTS BACK AND SEE ANOTHER PAIN MANAGMENT DOCTOR TO SEE IF SHE/ HE PRESCRIBES THE SAME MEDICATION WHICH IS PERCOCET. 

     

    I THOUGHT THIS WAS UNPROFESSIONAL.  I LIKE MY PAIN MANAGMENT DOCTOR, IT WAS SO HARD FOR ME TO FIND ONE TO GIVE ME PAIN MEDS IN THE FIRST PLACE.  OTHER PAIN MANAGMENT DOCTORS DONT PRESCRIBE NARCOTICS.  IT TOOK ME 11 YRS SUFFERING TERRIBLY FROM FIBROMYALGIA AND SEVERE BACK OAIN TO DECIDE TO GO THE NARCOTIC WAY, I DIDNT WANT TO, IN AM 49 YRS OLD AND WHEN I TURNED 46, I MADE MY DECISSION, COULDNT TAKE THE PAIN ANYMORE.  THIS HAPPENS AS WE AGE, PAIN TOLERANCE GETS TO WHERE YOU CANT TAKE THE PAIN ANYMORE AND WHO SHOULD LIVE IN PAIN THESE DAYS ANYWAY?  ITS NOT A WAY OF LIFE!

     

    SO THIS WAS A BIG STEP FOR ME AS I CONSIDER MYSELF A STRONG WILLED TOUGH EXTERIOR PERSON.  AND TRUST ME, I DONT LET ANYKIND OF PAIN STAND IN  MY WAY AS FAR AS GETTING THIGS DONE AROUND MY HOUSE.  I AM NOW BECAUSE OF MY WILL AND STUBBORNESS, SUFFERING TERRIBLY FROM TENDONITIOUS IN RIGHT ELBOW, SO BAD I CANT EVEN STRAIGHTEN OUT MY ARM.  MY TWO HIPS HAVE BURCITIOUS IN THEM TOO. 

     

    WHY YOU ASK IS THIS HAPPENEING?  FIRAT OF ALL I DO HAVE FIBROMYALGIA, THIS IS ASSOCIATED WITH THE DISEASE.  I DO HEAVY YARD WORK, CLEANING, MOW THE GRASS, I JUST RECENTLY RIPPED UP MANAULLY MY WHOLE LAWN TO RESEED IT, HAD TO RAKE UP ALL THE DEAD GRASS.  I PLANTED MY GARDENS, CONSTANTLY WEED AND NOW GOING TO CLEAN MY ATTIC OUT AND BASEMENT.  GOING TO SCRAPE AND PAINT GARAGE DOOR AND RE-CEMENT BOTTOM OF HOUSE.  WONDERING MY HUSBANDS INVOLVEMENT IN ALL OF THIS?  THE ANSWER IS NONE!

     

    HE IS BEEN HOME SINCE DEC. 2010.  HE IS GOING THROUGH RETIREMENT FROM HIS JOB AND TERYING TO GO OUT ON DISABAILITY FOR A MINOR HEART CONDITION.  I HAVE ASKED HIM TO HELP ME, HE DOES NOTHING EXCEPT LAUNDRY, SOMETIMES VACUU. AND HE LOADS THE DISHWASHER.  THATS IT.  HE HAS IN THE PAST WHEN HE WAS WORKING FULL TIME, STARTED 20 PROJECTS AROUND THE HOUSE, NEVER FINSIHED ONE.

     

    I ASKED HIM WHY DONT YOU START FINISHING THE PROJECTS NOW THAT YOU HAVE THE TIME?  HE WONT AS HE TOLD ME.  HE HAS FIBROMYALGIA TOO, TRUST ME HE DOESNT HAVE 9 BULGING DISCS LIKE I DO, TENDONTIOUS, SHOULDER PROBLEMS OR HIP PROBLEMS.  HE JUST HAS MUSCLE ACHES AND PAIN, WELL SO DO I AND EVERTYHING ELSE!  I AM IN WORSE SHAPE THEN HIM AND HIS ANSWER IS HE WONT DO ANYWORK BECAUSE HE DOESNT WANT TO WIND UP IN MORE PAIN THEN ME!!!!!

     

    HE SAID I AM TEARING UP MY BODY, WELL I TOLD HIM THINGS NEED TO BE DONE AROUND HERE AND I AM NOT SITTING ON MY ASS AS THE WEEDS GROW AND EVERYTHING ELSE FALLS APART.  HE DOESNT SEE IT MY WAY AND THINKS ONCE HE IS OFFICALLY RETIRED (NEXT YEAR SOMETIME) AND WHEN HE GETS HIS ANNUITY CHECK, THAT MONEY WILL BE USED TO HIRE PEOPLE TO FINISH THE HOUSE!

     

    I REALLY THINK HE NEEDS A PHYCHIATRIST AND WHEN I DO GO SEE ONE, WHO DOMYOU THINK I WILL TALK ABOUT????  NOT ME.  SO AS IT STANDS, I AM NOT ALLOWED TO RIP UP MY 30 YEAR OLD BEDROOM CARPET UNTILL MY ELBOW HEALS, THIS WAS A BIG FORGHT WE HAD OVER THIS ISSUE.  I ASKED HIM TO DO IT HIMSELF, HE SAID NO AND WIND UP IN MORE PAIN LIKE ME.  HE SITS AROUND HOUSE ALL DAY ANDW ATCHES TV. 

     

    HOW CAN YOU HAVE FIBROMYALGIA PEOPLE AND BABY YOURSELF?  I DONT GET IT!  HE NEEDS TO LOOSE 80 POUNDS, BECAUSE OF ME CONSTANTLY MOVING AS IT SHOULD BE, I LOST 60 POUNDS IN 3 YEARS THAT I NEEDED TO LOOSE!  I TOOK ON A DOG WALKING JOB 3 YEARS AGO AMONG EVERTYHING ELSE I DO EVERYDAY.  MY SCEDUALE IS VERY FULL.  I WOULDNT WANT IT NOT OTHER WAY.

     

    MY HUBBY HAS BEEN ON CYMBALTA FOR 2 YRS BECAUSE OF THE FIBRO.  ALL IT DID WAS MAKE HIM FAT AS ALL ANTI-DEPRESSANTS DO.  THE DOCTORS DONT TELL YOU THAT.  BEEN THERE DONE THAT, BEEN ON EVERYONE OF THEM FOR ANXIETY.  HE IS SEEING OUR RHUMETOLOGIST NEXT WEEK TO WEAN OFF CYMBALTA.  BELEIVE ME I HAVE TOLD ALL OF OUR DOCTORS, WE SEE THE SAME ONES WHAT HE ISNT DOING AND WHAT I AM DOING AS FAR AS WORKING AROUND THE HOUSE.

     

    THE DOCTORS BABY MY HUSBAND.  THEY DONT SAY ANYTHING, I DONT KNOW WHAT TO DO AT THIS POINT.  ANY SUGGESTIONS WOULD BE HELPFUL.  FINANCES ARE TIGHT.  IN THE MEANTIME, I WILL CONTINUE TO WORK ON THE HOUSE WILL THE QUEEN SITS.  HE DOSENT UNDERSTAND THAT IF HE MOVES AROUND HE WILL FEEL BETTER, IF HE WALKS WITH ME HE WILL FEEL BETTER.  WONT DO IT AT ALL. 

     

    WE HAVE BEEN MARRIED FOR 18 YRS AND TOGETHER FOR 20.  I WANT MY SKINNY, MUSCULAR, TANNED MAN BACK.  HE USED TO BE SO HANDSOME, STRONG AND NEVER LET ANYTHING STAND IN HIS WAY.  I MISS THAT.  HE HAS BECOME HIS DISEASE.  HE LETS THE FIBROMYALGIA RUN HIS LIFE AND BELIVE ME I HAVE TOLD HIM THAT.  ITS REAL SAD.  SO WHEN MY ELBOW HEALS, I CAN RIP UP THE CARPET, I HAVE HIS PERMISSION, WHAT A MAN!  HE WILL LET HIS WIFE RIP UP A LARGE ROOM OF CARETING BY HERSELF WHE  I HEAL!  LADIES DONT BE JEALOUS NOW. 

     

    HE IS ALL MINE.  ANYWAY, THANKS FOR LETTING ME VENT AND HOPE SOMEONE WILL HEAR MY CRIES AND GIVE ME SOME GOOD ADVICE.  IT IS HARD WHEN YOUR HUBBY AND YOU HAVE THE SAME DISEASE.  PLUS ON TOP OF ALL THIS, I AM LOOKING AT 3 HOURS OF SURGERY WHICH I HAVE NOT SCEDUALED YET BECAUSE THE HYSTERECTOMY I HAD 4 YRS AGO DIDNT TURN OUT RIGHT AND EVERYTHING HAS TO BE RE-DONE AGAIN.  NICE HUH? 

     

    CANT DO ANYTHING ABOUT IT AS FAR AS SUEING THE DOCTORS BECAUSE NY STATUE OF LIMITATIONS IS ONLY 2 YRS.  I AM DELAYING THIS OPERATION UNTIL MY HUBBY IS COMPLETELY RETIRED.  I WILL HAVE TO REST FOR 3 MONTHS OR SO TO BE COMPLETELY HEALED.  NOT LOOKING FOWARD TO THAT.  I CANT SIT STILL.  TAKE CARE EVERYONE AND THANKS FOR LISTENING, TAMMY ^j^

    • Anonymous
      nixxxy
      Apr. 14, 2014

      Wow.. well, i doubt you will see this since its been like four years, but.. hi.  I am 32, have a 16 year old and a 3 year old, and a disabled spouse.  I have arnold chiaris (was decompressed surgically in 2006), fibromyalgia, occipital neuralgia, severe IBS, anxiety and depression.  My husband has chronic back pain.  I used to be like you.....

      RHMLucky777

      Read More

      Wow.. well, i doubt you will see this since its been like four years, but.. hi.  I am 32, have a 16 year old and a 3 year old, and a disabled spouse.  I have arnold chiaris (was decompressed surgically in 2006), fibromyalgia, occipital neuralgia, severe IBS, anxiety and depression.  My husband has chronic back pain.  I used to be like you.. before I got the IBS and anxiety ontop of everything.  Before it got so bad i had to give up what i felt to be my entire identity.. my job.  I will say, at first, before it got really really bad, i was angry at him.  I felt, i was working while he was home on disability, and it felt really unfair because we were in about the same position.  but, i made a lot of money, and i loved my job.  i could kinda squeeze by, but attendance was becoming a major issue with my employer.  A year or so ago, I got a bad flu..and suddenly things went from Really bad, to crisis.  The flu never went away.  it was accompanied by extreme labour like pain, and i had to give up my job.  'severe ibs'.  No doctor will touch me now.  ive been through the canadian system, where you have no control over who your dr is, and you cant change drs, where they put you in pain clinics that are shut down eventually for lack of funding, and NOBODY will perscribe the only thing that actually helps me; narcotics.  theyll perscribe 30 other meds that dont though.  It sounds to me like you have absolutely no empathy for your husband.  I almost wonder if you even love him, it sounds like you had a superficial love, and now that he isnt the same person because, thats what chronic illness does to most people; it changes them completely.  it is great that you are strong willed.. but it sounds to me, like you are over exerting yourself, and you are really angry about it.  Youre pushing yourself too hard, and blaming him for it..when really, you shouldnt be so mad at the situation.  you need to find a common ground and a means of accepting it.  he isnt the same man.  hes sick now, and even if he handles it differently than you would, if you really love him, you would nurture him the best you can.  concentrate on the things he DOES do, and help him do those more often.  I think if you slacked off a bit on your chores and whatnot, youd be a lot happier.  I had to..  I used to clean my ceilings and walls once a week with bleach, had a sparkly clean house you could eat off the floor.. but now.. here i am.  sick.  with a 3 year old who has no concept of why making messes is not good for sick mommy.  I cant change what my situation has become.. but i can change how i handle it.  and in order for me to be happy, i had to change what i considered to be acceptable behaviour, because like you i was taught to just tough it out and keep going (and i mean, im a fighter.. i raised my daughter alone at 16, put myself through highschool while single handedly paying rent with no family or friends, moved to the city from the village, got off welfare, employed, college, etc etc..even brain surgery didnt keep me down) but there gets a point where enough is enough, and we do the best we can with what we have at the time and what we know to do.  You are making yourself and him miserable by your approach to the situation.  yelling at him, isnt making him do anything.  being mad at him, is going to make him listen less.  try compassion.  try..being happy instead of trying to maintain who you used to be before you got sick.  illness changes your life.  but you have to find a means of accepting it.

    • cc
      cc
      Sep. 22, 2014

      New York state is antiquated I have never seen more people mismanaged my whole life. MOM ING HERE FROM OUT OF STATE WHAT A MISTAKE.  OTHER STATE TREATMENT PATIENT LIKE PEOPLE SHOULD BE TREATED. JUST A NURSE HERE I AM AM AZ ED AT WHAT I'VE SEEN SO FAR.

  • Anonymous
    Marie
    May. 10, 2010

    I have had fibro for a long time ,and its never going away and it will get worse over the yrs.

     

    I know this because I live it Doctors never gave me pain meds up untill 4 yrs ago and they gave me my life back! I have been on every antidepressent on the market along with meds for neropathy pain.Well after being given pain meds waking up is...

    RHMLucky777

    Read More

    I have had fibro for a long time ,and its never going away and it will get worse over the yrs.

     

    I know this because I live it Doctors never gave me pain meds up untill 4 yrs ago and they gave me my life back! I have been on every antidepressent on the market along with meds for neropathy pain.Well after being given pain meds waking up is the hartest part of the day.I would take my Thyroid,Premarin,and antidepressent medication along with a pain pill and within a half hour I could move and start getting things done around my house and even go back to walking you see I have back problems too the doctors would say the back and neck didnt look to bad on X-rays.But I always thought that it was worse because of the Fibro anyway I havnt been able to hold down a job for 16 yrs although I keep trying,But know they just stopped my pain meds and not that I want to take any of the drugs I'm on at all but after being off them now for 5 months wish I could have them back.The meds I take at night don't help they have me on Depikote,Zanex,neurontin,Savella and then the pills I listed on top of letter.Well I think with the side afects of all medication the choice should be mine and yours.I have stomach problems which started way before the pain meds and with the pain pills I could eat anything I wanted again.I'm hating life again.They say the pain will make you depressed,So will antideprents and well dosent everything?   

  • mike677
    Apr. 23, 2010

    You are right the doctor and patient should be the ones to decide what pain medication is needed for the person suffering from pain, this should be done without fear of DEA or other law enforcement reprisals. There are several organizations working to stop the DEA from prosecuting doctors who treat pain with opioid medications, one is PRN you can do an engine...

    RHMLucky777

    Read More

    You are right the doctor and patient should be the ones to decide what pain medication is needed for the person suffering from pain, this should be done without fear of DEA or other law enforcement reprisals. There are several organizations working to stop the DEA from prosecuting doctors who treat pain with opioid medications, one is PRN you can do an engine search and find many online, together we can get the pain medications and stop the needless suffering of patients who suffer from chronic pain.

  • Skye
    Apr. 17, 2010

    The truth is that most opiates no longer are under patents so they are not very profitable for the pharmaceutical companies. Perhaps with the new pain medications being developed, they will throw some of their dollars in the direction of lobbying for easing off of persecuting people who truly need narcotic medication to live.

    This is my opinon...

    RHMLucky777

    Read More

    The truth is that most opiates no longer are under patents so they are not very profitable for the pharmaceutical companies. Perhaps with the new pain medications being developed, they will throw some of their dollars in the direction of lobbying for easing off of persecuting people who truly need narcotic medication to live.

    This is my opinon and I am certain there is some truth in it.

    SkyeSealed

  • jason crist
    Apr. 16, 2010

    YOU HAVE HIT THE NAIL ON THE HEAD!!My father is a Doctor, with a large practice,and they used to help me when I could not find a Doctor to treat me. I broke my neck at c5 and my back at L4. Now they are no longer willing to see me at all and I am family. The goverment has put the fear of God in almost every doctor I have come across including pain management...

    RHMLucky777

    Read More

    YOU HAVE HIT THE NAIL ON THE HEAD!!My father is a Doctor, with a large practice,and they used to help me when I could not find a Doctor to treat me. I broke my neck at c5 and my back at L4. Now they are no longer willing to see me at all and I am family. The goverment has put the fear of God in almost every doctor I have come across including pain management doctors. My most recent visit to Nova Pain management resulted in me being ask to leave after only two visits, needless to say I was was very articulated.I am with you all the way!! Jason Crist

  • Chris
    Apr. 16, 2010

    Pain management "contracts" are becoming de riguer at pain management institutions. These "contracts" seek to take over decisions that are rightfully not theirs to make, and strip the pain patient of civil rights.  Pain management "contracts" destroy one's morale through intimidation, humiliation and coercion.  They strip...

    RHMLucky777

    Read More

    Pain management "contracts" are becoming de riguer at pain management institutions. These "contracts" seek to take over decisions that are rightfully not theirs to make, and strip the pain patient of civil rights.  Pain management "contracts" destroy one's morale through intimidation, humiliation and coercion.  They strip and individual of his/her civil rights through demand of mandatory random drug screens even if there is no probable cause to believe a patient is drug seeking or abusing, or else they will cut an existing patient off without notice.  Should patients use the emergency room and/or are given drugs for anything, ie, broken limb, colitis, being hit by a car, childbirth they will be cut off by pain management and a note will be put in their chart they were drug seeking.   A person signing this agreement cannot accept drugs from dentists in order to allow dental procedures such as pulling a tooth, or deep root cleaning, or even a root canal.  The pain doctors can mandate that the patient go to therapy (even if it is against your religion) or else - no treatment.  If you want the pain doctor and his fear to run your life then sign the agreement.  If one does not sign, one cannot get health care.  Coercion.  Intimidation.  The real problem is the DEA's persecution of pain doctors and their patients.  It's rather like shooting fish in a barrel.  They can't stop the drug cartels.  Obviously.  But these agreements will send more and more business the cartel's way, as pain patients decide to gamble on street drugs rather than face the humiliation of dealing with pain doctors and the abdication of their civil rights.

    • jason crist
      Apr. 16, 2010

      lm just about at the end of my rope I am starting to feel like a ping pong ball being bounced back and forth doctor to doctor.Sometime I am starting to dying would be much easier than living with the pain and the day to day,month to month fight with the doctor or doctors its really all the same now.I wonder what happened to the HYPOCRATIC OATH MUST HAVE GOTTON...

      RHMLucky777

      Read More

      lm just about at the end of my rope I am starting to feel like a ping pong ball being bounced back and forth doctor to doctor.Sometime I am starting to dying would be much easier than living with the pain and the day to day,month to month fight with the doctor or doctors its really all the same now.I wonder what happened to the HYPOCRATIC OATH MUST HAVE GOTTON LOST IN MONEY RATTER THAN ETHICS. Jason Crist,Jacksonville nc

    • Chris
      Apr. 16, 2010

      Oh dear.  A broken neck.  And the emotionally abusive "pain doctors" care more about whether a small percentage of the population - drug addicts  - are stopped than they do about you. They will never stop drug addiction.  Most addicts get their drugs on the street as there are no questions asked or from the few unscrupulous...

      RHMLucky777

      Read More

      Oh dear.  A broken neck.  And the emotionally abusive "pain doctors" care more about whether a small percentage of the population - drug addicts  - are stopped than they do about you. They will never stop drug addiction.  Most addicts get their drugs on the street as there are no questions asked or from the few unscrupulous doctors looking to make a buck.  It is doubtful a pain patient with corroborating test results would sell his/her drugs "in the schoolyard" yet this is the story I got from my last pain doctor as to why I must be treated as a  convicted felon.  Doctors, with their powerful AMA, do nothing to fight the situation on behalf of their profession.  They are bending over backwards to accomodate DEA.  They certainly put patients last on their list.  Perhaps they should all become GP's and treat babies with colds.  At present, they are of no use to me. 

       I know just how you feel.  Betrayed.  Abandoned in your pain.  Thinking there is no help for you.  I want you to know I care.  I felt myself to be a target because of my pain, so I left the medical system.  This was my choice, and it has worked for me. This course of action may be impractical for you or others and I am not making recommendation here for anyone else. I began to help myself in as holistic a way as possible.  I practice meditation, self-hypnosis, yoga, guided imagery, music therapy, lie in the pool, spa or in the bathtub, get Schatz physical therapy and take OTC drugs.  I quit going to doctors (a relief beyond measure), and my self esteem returned!   I walk (or limp around) each day, even if it is only around my backyard so I can quit or sit down if I need to.  I rescued a dog and trained him to be my service dog (you can do this under ADA) and take him everywhere.  Since I have been off the pain drugs  I have found my joy again as I don't have to deal with the side effects of the medications anymore, and have taken back my personal power.  My own endorphins are working again.  Yes, I am dealing with great intractable pain.  But that is not who I am.  It is not who you are.  I wish you everything good in life, Jason. You deserve the very best.  Be good to yourself.  xxoo  Chris

  • dennisjibew
    Apr. 15, 2010

    by all means we must act and win the war on drugs. lives are destroyed every

    day due to drugs.we must all act to keep these drugs out of our children's hand.

    there are people out there who live in chronic pain 24/7-365 days a year and i

    am one who lives in hell each and every day.3back surgery's and the last was fusion L3-L4 L4-L5 -L5-S1. I HAVE TRIED...

    RHMLucky777

    Read More

    by all means we must act and win the war on drugs. lives are destroyed every

    day due to drugs.we must all act to keep these drugs out of our children's hand.

    there are people out there who live in chronic pain 24/7-365 days a year and i

    am one who lives in hell each and every day.3back surgery's and the last was fusion L3-L4 L4-L5 -L5-S1. I HAVE TRIED EVERYTHING A PERSON  CAN DO. I DO

    NOT LIKE DRUGS BUT IF THEY MAKE LIFE BEARABLE AND A LITTLE LESS PAINFUL

    WHAT IS WRONG WITH THAT??????????????????????.I SEE BOTH SIDES OF THE WAR ON DRUGS. PEOPLE TAKING DRUGS TO GET HIGH AND THE PEOPLE

    TAKING DRUGS TO GET SOME OF THEIR LIVES BACK DUE TO THERE CHRONIC PAIN 24/7-365 DAYS A YEAR.IT IS UP TO OUR DOCTORS TO HELP PEOPLE AND TO PROVIDE HELP TO ALL AND IF DRUGS WILL HELP GETTING SOME OF THERE LIVES BACK WHAT IS WRONG WITH THAT.

     

    • Chris
      Apr. 16, 2010

      Absolutely nothing is wrong with that. 

  • Tonio Larabi
    Apr. 15, 2010

    I have just stopped seeing a truly unethical, almost illegal physician, with regards to managing my pain. Between he and I, it was simply a "personality" issue. The physician used his power of his DEA license to control me, or so he thought. He started me on OC 30MG, twice a day. Then, when it came to refill the prescription, it was two days before I was totally...

    RHMLucky777

    Read More

    I have just stopped seeing a truly unethical, almost illegal physician, with regards to managing my pain. Between he and I, it was simply a "personality" issue. The physician used his power of his DEA license to control me, or so he thought. He started me on OC 30MG, twice a day. Then, when it came to refill the prescription, it was two days before I was totally out. He told me that "it would jeopardize his license and is against the DEA rules to prescribe this medication early". Remember, I had five pills left and was two days away from being completely out. He wanted me to jump through hoops and lied to me. So, as Purdue (the makers of OC) states as a huge caution, that STOPPING THIS MEDICATION ABRUPTLY IS DANGEROUS, I am reporting him to the Board of Medical Examiners and the DEA. He is insecure and did not follow through with his commitment of caring for me. I think we have to take these physicians on one at a time, until there is an organization, which we can support.

    • Chris
      Apr. 16, 2010

      Get a malpractice attorney.  This could be patient abandonment and endangering a patient's life. 

    • corlaw
      Apr. 16, 2010

      If you were taking two pills a day and you had five left what would be the problem with refill in two days, was it a weekend and he wanted you to wait until monday, am I missing something here?

       

       

      My PM doctor waits until the last hour to give me my patches, drives me nuts but as we all know, they have control, I would hate to have 1 -5 pills too...

      RHMLucky777

      Read More

      If you were taking two pills a day and you had five left what would be the problem with refill in two days, was it a weekend and he wanted you to wait until monday, am I missing something here?

       

       

      My PM doctor waits until the last hour to give me my patches, drives me nuts but as we all know, they have control, I would hate to have 1 -5 pills too many, omg what would I do with them????

       

      Some of these doctors are just becoming inpractical.

       

       

       

       

    • jdettrey
      Jul. 31, 2015
      If we think that some wonderful government related group will start to advocate our rights as chronically ill PEOPLE,not drug addicts,prescription numbers or insurance ID'S,We will be terribly disappointed.I can honestly say my Dr is wonderful.He has actually put pharmacists who call him telling him how I should be treated in their place. I now use a Cigna...
      RHMLucky777
      Read More
      If we think that some wonderful government related group will start to advocate our rights as chronically ill PEOPLE,not drug addicts,prescription numbers or insurance ID'S,We will be terribly disappointed.I can honestly say my Dr is wonderful.He has actually put pharmacists who call him telling him how I should be treated in their place. I now use a Cigna home delivery service. The problem now is the hoops I need to jump through to get the prescription filled. No longer can my Dr refill over the phone. I now have to drive 40 mins away to his office for a paper written,water marked official RX. I then have to fill out a 2 page form for the insurance company. Then I have to take it to the post office to have proof I mailed it out. Oh and if I am really low on medication I have to pay 40.00$ to expedite the delivery. Now, the insurance company always has some issue that delays the pharmacy from completing the RX. Finally the prescription is sent but,it's not over yet ,Now the package cannot be delivered without someone signing for it.The place I have it sent to is not where I live because I am at work when it's delivered. However, the place it's delivered to the man who would typically sign has a hearing problem and often the package goes back to UPS and will be rescheduled for the next delivery in two days.So much for the 40.00 dollars to expedite. Did I mention by now I have maybe 2-3 doses left to last 3 days. Oh and the Dr cannot request a one time refill,No ! In 3 mos I have to do this all over again.I am stage four cancer survivor with many post chemo/radiation side effects Mouth scars,difficulty swallowing,unable to open my mouth to get even spoon in and a chronic cough. The pain in my joints is impossible to describe .You all know what kind of pain I mean. Iam 55 yrs old. Every year it gets harder and harder to work.I struggle everyday to go to work because I never wanted to get disability and I HONESTLY feel the system is abused and I don't want to take from someone else who may really need it. But it's hard when you are chronically ill and age is biting you in the butt. The only way we will stop this insanity is to ban together as a group of sick drug needing PEOPLE and not drug abusers.We need to hit them in their pockets,call out these people in our govt who know nothing about our problems but yet make our lives more difficult. I bet if this were them having to follow these laws they would change their minds on the necessity of a blanket law.I think those that are truly chronic and show credibility should not follow the same agenda as a clinic hopper searching for their next high .It's up to us PEOPLE What do you want to do?
    • Shel
      Nov. 07, 2015
      I have been prescribed. 80 mg. OC 3's x's day for close to 4 years. No one told me at the age 20 that I would become drug dependent.now at the age of 42 my, or should I say my Dr.'s pnp, refused to write my persription or even see me....ever, as well as anyone else in that office, due to a ua. Now rather an illegal drug showed up or not I believe that the purpose...
      RHMLucky777
      Read More
      I have been prescribed. 80 mg. OC 3's x's day for close to 4 years. No one told me at the age 20 that I would become drug dependent.now at the age of 42 my, or should I say my Dr.'s pnp, refused to write my persription or even see me....ever, as well as anyone else in that office, due to a ua. Now rather an illegal drug showed up or not I believe that the purpose is to monitor my medication. Had that been what it was about they would see that my meds are right in point. Due to the fear of their "losing her licence" now I am in fear of losing my life. The withdrawals are just beg. To start after 3 1/2 days of no meds. Do they ask who will help with my kids and 1 1/2 yr. Old grandbaby. I have been clinically disabled since 2007. The ocs were the first real relief in 18 years. That is what made it even possible to get out of bed EVERY day. Now due to obviously not letting a Dr. Control my meds but the DEA and a "whoever is available in the office to see me" I will have to thank those that are abusing their meds and selling them on the streets because this is now where I will ocasionally be able to find some sort of relief once the withdrawals become too much for me to handle, as well as my family.
  • Anonymous
    Anonymous
    Apr. 15, 2010

      It is refreshing that someone has finially realized the travisty that has been brought upon the cronic pain suffers of this nation, the government has waged a "War On Drugs" for over forty years and the primary loosers were the people of this country that suffer from cronic pai every day and can not get the medication they need to fight it.  Not...

    RHMLucky777

    Read More

      It is refreshing that someone has finially realized the travisty that has been brought upon the cronic pain suffers of this nation, the government has waged a "War On Drugs" for over forty years and the primary loosers were the people of this country that suffer from cronic pai every day and can not get the medication they need to fight it.  Not that the medication is not available as in some third world countries but because the government has mis-used their power and created an atmosphere where even the doctors that should be more concerned with the wellfair of their patients are more worried about themselves being arrested and charged with drug trafficing.  Meanwhile poeple like myself and many others go through each day suffering needlessly, if the government of this land were more concerned with the well being of its citizens instead of fighting an unwinable war against its own people then we would be able to get the medication that we need and perhaps be able to live a life free from pain.  Now wouldn't that be a refreshing change.

    • Little Mo
      Apr. 15, 2010

      I am amazed at some of these comments regarding their Doctors.  Maybe it is because I live in Canada, but I have never (and I am 78) come across a Doctor in this country, who has not been sincere in assisting me in overcome whatever pain I was going through at the time.  My last episode was for pain in my legs due to degenerative disk disease. ...

      RHMLucky777

      Read More

      I am amazed at some of these comments regarding their Doctors.  Maybe it is because I live in Canada, but I have never (and I am 78) come across a Doctor in this country, who has not been sincere in assisting me in overcome whatever pain I was going through at the time.  My last episode was for pain in my legs due to degenerative disk disease.  He immediately gave me two sets of pills and for the first time in months, slept through the night and have never had pain since. I discussed with him as to whether I would need to increase the dosage in time, and he said just let him know when I was getting pain again and we would discuss how to manage it.

       

      When I was in hospital last year for removal of a gallbladder, I was in extreme pain afterwards.  The nurses and Doctors assisted me in any way they could including controlling the pain, BUT I did learn one thing.

       

      If I had to continue with that extreme pain, without assistance for the Doctors, I would have said  YES to anybody that would have offered me POT.  I have never smoked in my life but I would have done under those circumstances.

       

      In all the comments I have read this morning there has not been one mention as to how marijuana (if that is how you spell it) could help people in extreme pain when nothing else worked.  Why is it that we and you down the States, not fighting that issue.   Pot is no worse and no less than cigarettes and  alcohol. It is giving relief to thousands who have been able to get it legally through their Doctors and from what I have read, they are blessing the day that it came into their lives.   Why are we not relieving serious pain in this way when there is so many being litterally tortured by the pain they are going through.  Does anybody know?   Does Pot relieve pain in the way it is reported.

       

      That all being said, I am very happy with my Doctor and Doctors in the past but if I had not been, I would have changed him/her in the blink of an eye. 

  • CurtinColorado
    Apr. 10, 2010

    I hope this post is the start of a movement to take back control of our pain treatment from the DEA.  I've been undertreated for my pain for over ten years due to doctor's reluctance to risk the wrath of our government - the government who is charged with our health and safety.  I totally understand that each doctor wants to keep practicing medicine...

    RHMLucky777

    Read More

    I hope this post is the start of a movement to take back control of our pain treatment from the DEA.  I've been undertreated for my pain for over ten years due to doctor's reluctance to risk the wrath of our government - the government who is charged with our health and safety.  I totally understand that each doctor wants to keep practicing medicine - their livelyhood.  Not only are we undertreated with the amount of medication we are prescribed, but it's also difficult to even find a doctor willing to treat chronic pain patients.

     

    The other area where we are undertreated is in the world of chronic fatigue.  Stimulents such as Adderall have only been tested on 6 - 12 year old patients and the FDA recommended dosages are far too low for most adults.  My doctors have been unwilling to prescribe a therapeutic amount of medication because they are so frightened of the DEA.  And, I'm sure there are other maladies that are also undertreated.  We patients need a strong voice to ensure we are treated properly.    It's time to stop living in pain and fatigue because our doctors have been intimidated by OUR government!!!!

    • pamfry
      Apr. 11, 2010

      I have been taking Oxycontin 20 mg. 3 times a day for 5 years. I have built up a tolerance now. And have asked my doctor to raise the dosage," he tells me that if he was taken the amount of pain meds you take I would be flat on my back". He is not me and does not have my pain.

       

      Ten years ago I started going to a pain clinic, they had me so grugged...

      RHMLucky777

      Read More

      I have been taking Oxycontin 20 mg. 3 times a day for 5 years. I have built up a tolerance now. And have asked my doctor to raise the dosage," he tells me that if he was taken the amount of pain meds you take I would be flat on my back". He is not me and does not have my pain.

       

      Ten years ago I started going to a pain clinic, they had me so grugged I did'nt know my name! 80mg. Oxycontin 4 times aday. When I changed Doctors(the one I have now) he sent me to a pain clinic that got me down to the does I am on now. I have begged my current Dr. to send me back to the pain clinic, he just wont do it. I think he knows my tolerance level after 5 years, and doesn't want the pain clinic to go against him and prescibe a higher does. I don't know what I'm going to do. It is starting to become an emerency situation.

       

      If anyone has any ideas let me know

    • CurtinColorado
      Apr. 11, 2010

      Good morning, Pamfry.

       

      I'm so sorry to read about your difficult situation.  Please know that you are not alone. Near the end of your post, you mentioned that your situation is becoming an emergency.  If your pain is getting out of control, then a trip to the ER might be a good idea.  The ER doc may be able to give you a little extra medication...

      RHMLucky777

      Read More

      Good morning, Pamfry.

       

      I'm so sorry to read about your difficult situation.  Please know that you are not alone. Near the end of your post, you mentioned that your situation is becoming an emergency.  If your pain is getting out of control, then a trip to the ER might be a good idea.  The ER doc may be able to give you a little extra medication to get you through the worst of the pain. He may also have some ideas on other pain treatments.

       

      For the long-term though, you may need to change doctors.  If your current doctor is a road block to getting the help you need, find a new one.  I know that switching doctors is hard because your current MD knows you so well.  I was forced to look for another doctor and I found a gem who referred me to a great pain doctor (an osteopath) who has really helped me - not with just medication but also with manipulation and acupuncture (spelling?).  I've read so many horror stories about people being under-treated for pain and I'm sorry you're in the same boat. 

       

      Best of luck and keep posting here.  There are many people on this site who have great ideas that may help you.

       

      Cheers.

    • Linda
      Apr. 12, 2010

      Pamfry,

       I totaly agree with C.C., it does suck to change Docs, but if you have to, do it. Also the Emergency room i agree with as well, If it is the money, or lack of insurance you cannot be turned away!!!! atleast you will get some relief and hopefully the E.R. doc might have someone whom he/she can recommend for you to see so you get the help you need.......

      RHMLucky777

      Read More

      Pamfry,

       I totaly agree with C.C., it does suck to change Docs, but if you have to, do it. Also the Emergency room i agree with as well, If it is the money, or lack of insurance you cannot be turned away!!!! atleast you will get some relief and hopefully the E.R. doc might have someone whom he/she can recommend for you to see so you get the help you need.... very sorry for your situation.. my heart goes out to you.         Linda

    • Amanda
      Apr. 13, 2010

      Unfortunately, chronic pain patients are at the mercy of their doctor. I can see why many would think going to the ER is a good idea but in reality (or my own experience) the doctor is either going to give you a small amount of the same pain meds you're already getting because they feel uncomfortable prescribing anything stronger, and recommend that you...

      RHMLucky777

      Read More

      Unfortunately, chronic pain patients are at the mercy of their doctor. I can see why many would think going to the ER is a good idea but in reality (or my own experience) the doctor is either going to give you a small amount of the same pain meds you're already getting because they feel uncomfortable prescribing anything stronger, and recommend that you follow up with your Primary Care, or they won't give you any additional pain meds because they know you already have a prescription once you explain your situation. You will have to tell the ER doctor what you're being prescribed now because if not, then you'll be given a script for about 20 basic 5 mg Vicodin or Percocet to get you through until you can see your PCP.

       

      As for changing doctors, this too is easier said than done. Maybe it's because of where I live (Massachusetts) and the state has strict DEA laws but you can't easily doctor shop. I've been having a difficult time with my doctor and getting a referral to see a rhuematologist about Fibromyalgia so I thought about changing doctors. I thought it would be simple enough to transfer my records and at least get the same meds and treatments as I do now; my chronic pain issues and pain clinic visits are all documented and go back 10+ years. When I began calling physicians that specialize in chronic pain, one of the very first things I was told by many different office staffs is that the doctor will not prescribe pain medication. Even after I explained that I already had a prescription for it, I was again told that their doctor wouldn't prescribe it to me. In short, I'm still seeing the same doctor I've always seen out of fear that if I switch, I will have to start back at square 1, where I was 10 years ago when it all started for me.

       

      There aren't any easy solutions, or any solutions that I have found anyway. Those of us living in chronic pain on a daily basis are in our own private hell that NO ONE else can relate to unless they live it. I think we all wish that our doctors could live one week feeling the way we do, and I bet that getting a prescription would't be the equivalent of jumping through hoops of fire.  

    • Skye
      Apr. 17, 2010

      My ER turned me down flat as they now have a no opiate for even greatly increased "chronic pain".

      Going to a different doctor after no help from a clinic that mis-diagnosed me for months didn't help as my "medical records" followed me with out-right lies about my behavior. They misdiagnosed me for months and wrote numerous notes about my drug seeking...

      RHMLucky777

      Read More

      My ER turned me down flat as they now have a no opiate for even greatly increased "chronic pain".

      Going to a different doctor after no help from a clinic that mis-diagnosed me for months didn't help as my "medical records" followed me with out-right lies about my behavior. They misdiagnosed me for months and wrote numerous notes about my drug seeking behavior and addiction to "several painkillers" when I didn't even have access to any and an impinged nerve in my neck!(besides all the other"junk" that I have. Those records are hard to explain to any new doctor whom has not established the honesty of your relationship.

      I am too tired from this pain and frustrated about the whole pain/no drug debate that I am too tired to fight so please, don't kindly suggest that I do. Sorry.

      Skye

    • craig
      Apr. 14, 2010

      my wife has had rsd   for about 2 years, there is no cure but to control the pain, anyway you can ,or do something bad to yourself or others. find a new doctor now do not waite yours knows nothing about pain he has never had pain and doesn't care ! where do you live? find a pain clinic now and get the meds you need!!

    • Steven Thorne
      Apr. 15, 2010

      Ive been in pain to many years of my life.for the last ten years or so been in pain management.i was at a point that my pain was bare able when they stopped my medicine and started a knew one.Was lied to why.his/her excuse was that my insurance wouldn't cover it no more after two plus years on it.Dint really care just want pain free.so was prescribed 2 instead...

      RHMLucky777

      Read More

      Ive been in pain to many years of my life.for the last ten years or so been in pain management.i was at a point that my pain was bare able when they stopped my medicine and started a knew one.Was lied to why.his/her excuse was that my insurance wouldn't cover it no more after two plus years on it.Dint really care just want pain free.so was prescribed 2 instead of one prescriptions.now being on these for a long time not working as well as used to.actually not at all sometimes.so when i told them he said he wanted to stop them all together.and urine test every month fort past 6 months.worried if change Dr's it will be harder for pain management.hard enough living with pain and then he tells me he wants me to stop my med all at once.

       

    • Wainzwhirled
      Apr. 15, 2010

      I have ran into the same problem twice now.  I simply went back to the receptionist and told them I wanted a different doctor.  I never cease to be amazed by the lack of competence of some doctors and I won't let myself get stuck with one those idiots.  On the other hand, most pain management doctors are very considerate of your condition and...

      RHMLucky777

      Read More

      I have ran into the same problem twice now.  I simply went back to the receptionist and told them I wanted a different doctor.  I never cease to be amazed by the lack of competence of some doctors and I won't let myself get stuck with one those idiots.  On the other hand, most pain management doctors are very considerate of your condition and won't hesitate to increase your level of opiates.  I have to assume that, for some reason you can't change doctors.  Well, there are other pain management techniques and many books (Managing Pain Before it Manages You) that can help you - self massage - physical therapy - mental control - spinal implants - TENS - etc.  BUT ULTIMATELY, YOU HAVE TO GET RID OF THAT DOCTOR!  There are good ones out there - really.

    • corlaw
      Apr. 16, 2010

      why cant you just have referral from specialist whom diagnosed you in the first place and have him or her refer you back to pain clinic minus the new doc.....

    • Skye
      Apr. 17, 2010

      I am not certain that your pain clinic will still give you an increase in dosage. My clinic used to give me fentanyl patches, percocet and keep me grogged up too. Now they won't even dispense even tramadol to chronic pain patients especially if part of your Dx is Fibro!

      The comment your doctor made about your dose of medicine laying him flat, is true.

      If I...

      RHMLucky777

      Read More

      I am not certain that your pain clinic will still give you an increase in dosage. My clinic used to give me fentanyl patches, percocet and keep me grogged up too. Now they won't even dispense even tramadol to chronic pain patients especially if part of your Dx is Fibro!

      The comment your doctor made about your dose of medicine laying him flat, is true.

      If I have a great deal of pain, it takes a greater amount of medication to even feel  pain relief...you don't need enough to feel "high". I certainly don't when given an adjusted and carefully monitored dosage.

      Hope things get better.

      Skye

    • paranormalresearch
      Apr. 14, 2010

      I have been in chronic pain for over 10 years. I have migraines and just now FINALLY being diagnosed with Lupus. It has gone on for so long I do not know how many organs have been effected. My bones hurt so bad and are swollen and deformed and still I have problems getting even tramadol.... My doctor left so now I have to start all over again. I have been to...

      RHMLucky777

      Read More

      I have been in chronic pain for over 10 years. I have migraines and just now FINALLY being diagnosed with Lupus. It has gone on for so long I do not know how many organs have been effected. My bones hurt so bad and are swollen and deformed and still I have problems getting even tramadol.... My doctor left so now I have to start all over again. I have been to 1 doc who would not give me anything period even though she saw my mri. My spine is deterating due to the Lupus and I have a cyst. I can barley walk and still no dice. I am a drug seeker!  I have a new app in 2 weeks and hoping this doc has a brain in her head. Mean while in 2 days I visit a rhumatoligist for the fist time and am praying at the very least for some tramadol. Some days I just want to die. I am so tired of being looked at like a drug abuser. I have offered to pee in a cup, sign what ever they want and still nothing. I hate starting over with new doctors. It is so hard.

       

      Good luck to you all and send me good vibes.

    • Steven Thorne
      Apr. 15, 2010

      I know the feeling,sorry to say.I was burglarized and out of everything they took my pain meds were included.Just had them filled two days prior.My Dr said no refills and he had all control over every one not to refill my prescriptions.I ended uip in the emergency ward for 7 hrs and the gave me scripts for 30 days.Myt Dr said he wouldnt refill but to do whatever...

      RHMLucky777

      Read More

      I know the feeling,sorry to say.I was burglarized and out of everything they took my pain meds were included.Just had them filled two days prior.My Dr said no refills and he had all control over every one not to refill my prescriptions.I ended uip in the emergency ward for 7 hrs and the gave me scripts for 30 days.Myt Dr said he wouldnt refill but to do whatever I could to get meds.I wonder how far he wanted me to go.ever since that episode he urine test me every month and questions me about be a drug addict and says he wants to stop my prescriptions.Dont know what to do if he does.I signed my rights and life away to this Dr having trust in him.Hate to say but its going to get worse berfore it gets better.

      peace and love

      Steve

    • jason crist
      Apr. 25, 2010

      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its...

      RHMLucky777

      Read More

      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its been 3 months without pain meds from a doctor so I am centen they feel I dont need them. I have been waiting for the "smoke to clear" medical records to be shuffeled around and for the present pain clinic to make there minds up if they will take me, in the mean time the dope dealers are getting rich!  In my eyes pain clinics and pain doctors are like snake oil peddelers from the past if they dont like you dont get anything the goverment and the doctors..... who works for who I wonder freedom,free country free choice ya right,? Jason crist

    • jason crist
      Apr. 25, 2010

      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its...

      RHMLucky777

      Read More

      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its been 3 months without pain meds from a doctor so I am centen they feel I dont need them. I have been waiting for the "smoke to clear" medical records to be shuffeled around and for the present pain clinic to make there minds up if they will take me, in the mean time the dope dealers are getting rich!  In my eyes pain clinics and pain doctors are like snake oil peddelers from the past if they dont like you dont get anything the goverment and the doctors..... who works for who I wonder freedom,free country free choice ya right,? Jason crist

    • Anonymous
      ReeReeberry1
      Aug. 24, 2010

      I hear you and I'm sick and tiered of the goverment and the right they think they should hold on us for what they do/not feel as a chronic pain suffer myself. I'm so tiered and want to go postal on the Social Security and goverment. and have many times wanted to stand out side the white house steps and protest but I'm to sick to do so. 

    • Anonymous
      a
      Jan. 30, 2012

      the dea has created a epidemic and violated my civil and constitutional rights not to mention HIPPA and ADA plus as good doctors are attacked despite  Chronic Pain Act that is suppose to protect them but demands for enforcement are not heard so as the Medical Board In Arkansas has elimanated every single pain clinic or terrifed doctors to not prescribe...

      RHMLucky777

      Read More

      the dea has created a epidemic and violated my civil and constitutional rights not to mention HIPPA and ADA plus as good doctors are attacked despite  Chronic Pain Act that is suppose to protect them but demands for enforcement are not heard so as the Medical Board In Arkansas has elimanated every single pain clinic or terrifed doctors to not prescribe pain medication Thousands of Chronic Pain patients are suffering, forced to go on disability and commit suicide all from this epidemic that provides job security to dea agents. Since the war on Doctors, Pain Clinics or pill mills are the only placce to get pain medication if you can find one. They demand cash up front and cut back your medication. As for drug diversion, the dealers who have unlimited networking and tons of money have no problems finding doctors, and are not in pain that caused them to be homebound and unable to function. The chronic pain patients get there meds cut to justify pill mills prescribing to those who slip them extra money. After the 2 hour drive to this pill mill, my exam for $100 cash amounts to being checked for track marks and screw any medical problems I have just sit while the doctor writes script, then when I get kicked out for going to the ER for pnemonia treatment, (NO Narcotics just antiboitics) but without even getting a report accused of violateing drug contract, now am forced to illegal sources of drugs while watching everything in my life fall apart and when I can't afford the outrageous prices for illegal meds, I'll probably end up killing myself before living in unbearable pain so once again supporting the DEAs reasons for WAR on Drugs. As for drug diversion, I have first hand knowledge of any drugs that are taken by law enforcement being diverted right bacck to the streets after evidence is no longer needed. My dad use to deal for the Sheriff in our local town and if you look at crime rates in countries where drugs are minor offense or legal, THERE IS NO CRIME. sO HOW IS THE dea AND MEDICAL BOARDS GETTING AWAY WITH THIS ILLEGAL ACTION AND NO ONE DOING ANYTHING. A NATIONWIDE CIVIL ACTION NEEDS TO BE STARTED AND ONE GOOD LAWYER NEEDS TO STEP UP AND SUE. wITHOUT CONSEQUENCES FOR THERE ACTIONS THEY WILL NEVER STOP AND SINCE THE WAR ON DRUGS IS ABOUT NOTHING BUT MONEY AND BRIBES, A CIVIL ACTION HIGHLY PUBLICIZED JURY TRIAL WITH BILLIONS OF DOLLARS AWARDED NO SETTLEMENT BEHIND CLOSED DOORS. That is the only way to stop this insantiy and all it will take is one highly publicized win for all ambulance chasers to get in the game and start suing the medical board, dea and each person involved in this insane attack on pain patients and doctors. If they face consequences for there actions, they will think twice before continuing. Some attorney needs to step up and take this just cause on. I've contacted the ACLU and hope to hear something from them within a month but others need to do the same and anyone who has a friend that is a lawyer please get them to fight for our rights. Right now you cannot get to a pain clinic wihthin 100 miles of Arkansas. My last doctor only had 4 patients with chronic pain and was run out of town. Meanwhile the doctors that deserve to have there license suspended like the quacks that caused my chronic pain, are not even investigated because all resources of the medical boards are tied up with attacking pain doctors. And despite there own laws saying a doctor cannot abandon a patient, when they shut down a doctor leaving 250 patients in Chronic pain and withdrawl from high doses of medications and you ask them to recommend a pain doctor, they refuse to help, and when the doctor is shut down all your medical records dissapear, no referral, no proof of treatment and the medical board in arkansas won't even listen to pain patients in the hearing where 50 patients showed to speak for our doctor, the chairman publically stated, "we can't let them cloud the issue, there is nothing that can be done for them anyway. Well My life was fine being out of pain for the first time in 20 years and now my health, my finances and my home are destroyed with no medical care and pain unmanaged over a year now. I've taken the same dose of pain medication for 4 years and only needed increase when the new formula oxycontin did not work as well also my ADD medication is not being prescribed and can't afford 3 doctors a month to take care of mediall my medical problems that were being well managed by my GP  who also acted as my shrink giving me someone to talk to now depressionand hopelessness with relationship and friends gone due to not being a nice person when in pain and hiding from everyone, and only reason I even get out of bed is my wolf who is my baby and now she is sick and I am failing her with no pain medication I barely give her insullin and thyroid nd can't even take her for walks everyday so when I cause her death, the dea will be able to add me to the statistics of people who died of overdose.   so someone needs to step up now before its too late.

    • Anonymous
      Anon13
      Apr. 25, 2013

      Hey there. I realize this is old thread,but your story touched me, as did all.

      I so identify with you. Today was real bad day with new pain dr. and i'm sick and tired of being sick and tired. He took my breakthrough meds away after 10 years. There is no quality of life and i'm not feeling sorry for myself. It's just that I'm so weary on this journey of advocating...

      RHMLucky777

      Read More

      Hey there. I realize this is old thread,but your story touched me, as did all.

      I so identify with you. Today was real bad day with new pain dr. and i'm sick and tired of being sick and tired. He took my breakthrough meds away after 10 years. There is no quality of life and i'm not feeling sorry for myself. It's just that I'm so weary on this journey of advocating to be treated humanely.

      You and the initial poster are correct. Nothing short of class action law suit and lobbying is going to aid us.

      I've been multiplied disabled for 20+yrs and about 10yeaars in my then husband(he's divorcing me after 21 yrs b/c of my health) caught me climbing out a 2nd story window to jump. No longer could i tolerate the ever present pain. This was after 7 surgeries on limbar.

      Currently have 40 degree slippage of L2/3, bi-lateral hip dysplasia, 3 bone spurs on brain stem and C6/7 completely gone. The listed issues are in addition to all pain stemming from the 7 surgeries.

      I'm ready for street drugs or i just don't know. I've been an activist for several years. Ido this so i don't lie in bed feeling sorry for self. Now,as of late, unable to help anyone else.

      Please write me. Reading your post actually gave me relief/hop>I'm not alone.

      Blessings and peace to all who pass here.

      X

    • mandyway57
      Nov. 07, 2013

      I want to do whatever i can to help all of us. I am particularly interested in what one post said about finding a lawyer to take this on and that he had been in contact with the ACLU. 

    • Anonymous
      Doc ForthePeople
      Nov. 07, 2013

      Did you ever hear from ACLU? Are the chairman's remarks documented somewhere so that they can be used as evidence? May be very helpful if they are recorded in writing or on tape. Or if they are not recorded are there other people that can corroborate that the chairman of the Arkansas Medical Board said what he said?

    • abbyinokc
      Nov. 11, 2014

       

      If a patient is denied a medication upon presentation of a valid/on-time prescription for a controlled substance, that patient may be eligible to file an ADA complaint.

      If the patient is disabled, as determined by coverage under Social Security, Medicare, or private disability insurance, that patient is covered under the Americans with Disabilities Act...

      RHMLucky777

      Read More

       

      If a patient is denied a medication upon presentation of a valid/on-time prescription for a controlled substance, that patient may be eligible to file an ADA complaint.

      If the patient is disabled, as determined by coverage under Social Security, Medicare, or private disability insurance, that patient is covered under the Americans with Disabilities Act (ADA). Many chronic pain patients meet this criterion.

      The ADA parallels the Civil Rights Act of 1964. People who are disabled cannot be discriminated against because of their disabilities.

       

      Causes

      Legitimate refusal: A pharmacist can refuse to fill a valid/on-time prescription for a controlled substance if doing so would harm the patient, such as when the patient is allergic to the medication, the medication would adversely interact with other medications that the patient is taking, or the prescribed dose is above the recommended dosage, although some specialists can and do prescribed above normal doses for a patient and the practice is perfectly legal.

      Civil rights violation: The failure of the pharmacy or pharmacist to fill a valid/on-time prescription for a controlled medication is a violation of the patient’s civil rights under the ADA. This may happen because of the pharmacy’s policies, the pharmacist’s “professional discretion,” or rationing by the wholesaler of the amount of controlled medications available for pharmacy purchase.

      Rationing: Three major drug wholesalers have elected to establish arbitrary monthly rations, limiting the amounts of controlled medications that each pharmacy can purchase. This may prevent a number of patients from obtaining necessary medications upon which they rely.

       

      Options

      Patient action: Only the patient can help rectify these issues, by filing complaints with appropriate governmental agencies. The patient does not need an attorney. Individuals can go to the websites listed below and complete a complaint form.

      Boards of Pharmacy: The permit holder/store owner, the pharmacist in charge, the pharmacist who refuses to fill a prescription, and the wholesaler are all licensed by their state’s Board of Pharmacy. A complaint for unprofessional conduct can be filed against each with the appropriate Board of Pharmacy.

      Medical Licensing Board: Some believe that persons who refuse to fill valid/on-time prescriptions are in essence “practicing medicine.” In that case, a complaint to the state Medical Licensing Board may be appropriate.

      HIPAA: If the prescription department staff has disclosed a patient’s private health information (PHI) in a manner that someone else could overhear, the patient may be able to file a HIPAA complaint.

    • 11Charlie
      Jan. 26, 2016
      My son is DAV. Served in both campaigns. He has TBI with migraines .A destroyed knee. A rod in his back. Etc. The VA had him on Vicodin He fell and had the local ER put his wrist in a soft cast. The ER doc gave him 10 Tylenol 3 pills. The VA took advantage of this and said he broke his pain med contract and immediately discontinued his Vicodin Go Army... but...
      RHMLucky777
      Read More
      My son is DAV. Served in both campaigns. He has TBI with migraines .A destroyed knee. A rod in his back. Etc. The VA had him on Vicodin He fell and had the local ER put his wrist in a soft cast. The ER doc gave him 10 Tylenol 3 pills. The VA took advantage of this and said he broke his pain med contract and immediately discontinued his Vicodin Go Army... but VA sucks ! Local Congressman won't help. "They" are buying into the whole DEA farce the people in pain are junkies. My son's pain has driven him closer and closer to the END that plauges most Vets.