The Rights of Chronic Pain Patients

helene Community Member April 09, 2010
  • Is there anyone, or any group,  capable and willing to take on the doctors, as a group, who are responsible for denying us ongoing opiate prescriptions for appropriate, adequate, treatment of moderate to severe, long term chronic pain?

     

    I  view doctors as the people, who if they were willing to organize and become politically active,  could stop the DEA intrusion into our medical care.  I understand that doctors are concerned, as individuals, with their licenses.  However, as a group, if they would stop behaving like cowards, they have the AMA, even if they are not members, and other professional organizations, that control control considerable political power and lobbyists in Washington D.C.

     

    Pain patients can and do, constantly call, sign petitions and write to their President, Congress Members and Senators, but we have achieved no results.  Pain patients face the DEA and the DOJ , who have instituted a War on Pain Patients because they have failed to win their unwinnable War on Drugs.  This means that chronic pain patients have a political problem.  Political problems require politicsl solutions.

     

    Pain Relief Network  is the only organization that has recognized and attempted to address this problem.  However, IMO, their strategy failed because it was incorrect.

     

    I want to do something different, but I am very ill and would need a lot of help. I am especially looking for pragmatic political activists and advocates with legal, medical, IT, professional writing or political knowlege and experience, to fight hard for the civil rights of chronic pain patients.

     

    Anyone interested can PM me here.

     

     

65 Comments
  • Chrimsum
    Sep. 28, 2014

    Hi. I live in Txas but I am one of the over 100 million chronic pain sufferers in this country. Although I write to my representatives in and of this state the correspondence has yet to be reciprocated. I remain persistent. Endeavoring to persevere in our condition is tough. We need representation at all levels. We need a vicious advocate, a legal representative...

    RHMLucky777

    Read More

    Hi. I live in Txas but I am one of the over 100 million chronic pain sufferers in this country. Although I write to my representatives in and of this state the correspondence has yet to be reciprocated. I remain persistent. Endeavoring to persevere in our condition is tough. We need representation at all levels. We need a vicious advocate, a legal representative with teeth like a shark and a plan to be so "in their face", that they can no longer deny us our rights to a better quality of life.

    • raz
      raz
      Oct. 05, 2014

      YellI agree with you wholeheartedly, but finding this 'ANGEL OF MERCY" will be next to imposible i believe. I dont believe in the system anymore. Its all about money, the govt cant make money if they dont have something to have a war on, war on drugs, makes the govnmt lots of money. So how does a chronic pain patient who cant be consistant in their fight, due to...

      RHMLucky777

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      YellI agree with you wholeheartedly, but finding this 'ANGEL OF MERCY" will be next to imposible i believe. I dont believe in the system anymore. Its all about money, the govt cant make money if they dont have something to have a war on, war on drugs, makes the govnmt lots of money. So how does a chronic pain patient who cant be consistant in their fight, due to the nature of the pain beast, ever hope to be heard? They know that we will eventually give up, or give in to suicide, before wed get a chance to be heard? I, as well as so many here, because of the bogus reason a dr gives to fire us, have been dismissed by my pain dr because of my fear of him, had a panic attack, never ever had one until that fatal visit! Had er visit! Saw him next day, mm and he says, i think it best for you if we part ways, btw, after being on 80mg 4x day plus bt meds ; was given 24 pills of 20mg, not to be filled 4 a week! At this point im out, w/d's, nearly die#, bp crazy, so low was bedbound, couldnt even stand or walk, acute infection, dehydration, malnutriton, lost 15 lbs 3 days! Thank the powers that be, knowing a body can stand only need so much,that after this , when i could actually feel the pain i had b4, now amplified, plus a new kind of fun, neuropothy so bad couldnt sleep my 4 3 days in a row, rollin on floor in a  ball just to try and stop my legs from wanting to keep moving. I finally little by little got a bit stronger , but it took 2 months to be able to get outside in the chair to once again which i so missed. Btw out of desperation, b4.this happened, got taken for 600$ for trying to get anything to stop the w/d's, even buying online meds, which i never got, btw. So out of meds, nearly losing my life, severe unsupervised withdrwals, losing money, the only person that cared what happened to me, my husband, has stayed with me, talked 4 me when i couldnt, i mm am now 4 months, no meds, blacklisted, and called a 'drug seeker", am now re validating my issues that caused my drs to n rx opioids, in the first place,  in the hope of finding a new pain dr .Am i hopeful, yes, but realistic, i may have to "just deal with it". I have found 'some 'relief with a herbal supplement for pain, that is legal 4 now, but if the gvnmt has any say,it wont be for long. Until a high profile , rich, newsworthy person n dies or as it happened to me, get deathly ill, none of us will be taken notice of. It will take a lot of suffering b4 it changes, and it wont happen in my lifetime. I have written the govenor, my statesman, and was told tell the dea, were just following the laws. Hmm, too bad 4 u, just tell someone else cuz they r passing the buck mm as usual, nobody gives a damn if people suffer as long as its not them. Ive tried, written more letters, signed petitions etc, got nowhere. I wish you all the best In luck in your efforts! Heres to a pain less life for us all.

       

  • Chrimsum
    Sep. 23, 2014

    I have read all the comments and I share the pain with everyone here. In Texas the DEA and DOJ have been on a rampage scaring doctors and crippling legitimate, documented and irrefutable chronic pain sufferers. We're going to have to make a huge increase in numbers on a petition to get any legislative help. I have contacted my politicians here in Texas. But...

    RHMLucky777

    Read More

    I have read all the comments and I share the pain with everyone here. In Texas the DEA and DOJ have been on a rampage scaring doctors and crippling legitimate, documented and irrefutable chronic pain sufferers. We're going to have to make a huge increase in numbers on a petition to get any legislative help. I have contacted my politicians here in Texas. But we need everyone, everywhere to write, and to call incessantly until they learn that they can not ignore us. This is a fight for our quality of life. This is a fight for our life.

  • Responsibleprescriptiondruguser
    Sep. 04, 2014

    This article looks like it dates back to 2010 and the writer may no longer be available.  Yet, we should come here anyway and brainstorm some solution(s) or ways to address this issue.

    • Chrimsum
      Sep. 28, 2014

      Yes in Deed. We do need to get more patients to come here. There are over 100 million chronic pain sufferers in this country. We need strong advocates and a kick butt attorney to champion our cause. Federal laws are being broken left and right when it comes to patients rights. Obviously this will take time. If you're on FB provide a link to this website....

      RHMLucky777

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      Yes in Deed. We do need to get more patients to come here. There are over 100 million chronic pain sufferers in this country. We need strong advocates and a kick butt attorney to champion our cause. Federal laws are being broken left and right when it comes to patients rights. Obviously this will take time. If you're on FB provide a link to this website. Whatever social media you use...spread the word. We have to be so loud, persistent and in their face that they can no longer ignore and abuse us. We did not choose to be in pain. No one ever goes to the doctor and asks to be in pain. And the D.E.A. and the DoJ do not have MD at the end of their titles.

  • tuneses
    Aug. 31, 2014

    My experperience as a media activist mya help with this issue as well and I'm willing to take it on. My latest contract demands that I use only one specific pharmacy, not a specific chain but a specific pharmacy. It also doesn't allow anyone else to pick up my prescriptions no matter how much pain I'm in or if I can even drive. I can't even pre-arrange my spouse...

    RHMLucky777

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    My experperience as a media activist mya help with this issue as well and I'm willing to take it on. My latest contract demands that I use only one specific pharmacy, not a specific chain but a specific pharmacy. It also doesn't allow anyone else to pick up my prescriptions no matter how much pain I'm in or if I can even drive. I can't even pre-arrange my spouse (if I had one) to pick them up.   If I travel East to see family and friends I have to come back to get my prescriptions. It takes a week to recover from the trip. So my pain contract prevents me from helping my sister who has terminal breast cancer. The urine I don''t care about except that I have to pay for it. It's hard to believe that some of these are legal. Does anyone else have this level of harrassment? Please let me know. My contract is with El Rio in Tucson AZ. And it's not the doctors, it's administrators.

    • Ohio.Gal
      Sep. 03, 2014

      Yes. I have the exact same issues and I am in Ohio. I have been in "chronic pain treatment" since 2005. It is utter Hell. 

  • Anonymous
    RDH
    May. 29, 2014

    I have rare Hepatitis C with Extra Manifestation Cryogloblunimia, Methadone and Diazapam was perscribed by my Physician outside the VA System, after following all known referrals to All related Physician of my condition. It is a progressive uncurable auto immune manifestation. I have failed Clinical Trials of Interferon/Ribavarin (Rebatron). I had finally been...

    RHMLucky777

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    I have rare Hepatitis C with Extra Manifestation Cryogloblunimia, Methadone and Diazapam was perscribed by my Physician outside the VA System, after following all known referrals to All related Physician of my condition. It is a progressive uncurable auto immune manifestation. I have failed Clinical Trials of Interferon/Ribavarin (Rebatron). I had finally been perscribed Methadone and Diazapam, and was determined after exhusted trials of other medications. My former physician retired, and I had to fall back on VA med. protocal, which has removed opiate medications. I now live in constant increasing pain. SSI is my only income and cannot afford an outside physician. I find this policy change outrageous and inhumane. There are VA patients that absolutely need opiate medications that the VA refuses to dispense!

  • Anonymous
    jenjen88
    May. 20, 2014

    I am in the pain clinic at the Va yet again. Already been through it and ended up being put on narcotics by the clinics pharmacist. Yes I know, highly unusal, given the "the va pain clinic does no rx narcotics" we normally get. I was even called an outright liar by the first md I saw at Tucson va, and the pain clinic pharm and the regular pharm. I hate being...

    RHMLucky777

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    I am in the pain clinic at the Va yet again. Already been through it and ended up being put on narcotics by the clinics pharmacist. Yes I know, highly unusal, given the "the va pain clinic does no rx narcotics" we normally get. I was even called an outright liar by the first md I saw at Tucson va, and the pain clinic pharm and the regular pharm. I hate being called a liar, especially when it's documented in front of them.So I did research. I looked each doctor's credentials. The first one doesn't belief in pain and has yoga/natural meds stores with the wife; the second one is a doctor of pharmacology....who, guess what? According to their degrees can not, I repeat, can not prescribe or diagnose medications or diseases. Hence the non-narcotic and non-opioid drugs in most pain clinics. So unless you have a medical doctor prescribing meds, like I did back home, don't use the clinic. Yes, it's the Va's and the insurance companies way of avoiding the  narcotic/opioid drug question.  They don't want to put their names on a contract of treatment. And here's another little tidbit for you. Technically a specialist is not supposed to rx chronic pain meds for you. They are supposed to start you off. And your primary care doctor is supposed to take the care plan  and continue with it. You are also supposed nicely ask them to do this. The Va thinks that the military mindset of blindly follow orders continues to doctors who haven't served. they haven't and they don't treat us with the respect that we deserve, especially the women. The one that called me a liar also laughed in my face when I told him my chronic pain was partly caused by being caught in an explosive blast, "Medical doesn't go in the field especially women!"  I asked him who he thought brought the wounded back?  Anyway I digress, keep on going fellow CP's.  Hope my advise helps some one. 

  • Evan C. Stout Sr.
    May. 19, 2014

    I HAD A BACK SURGEY ON MAY,5 2014.TO REMOVE MY DISC BETWEEN L2 &L3.MY SURGEON AND I,ALONG WITH MY PAIN DOCTOR HAD ALL AGREED THAT ONCE I WAS OUT OF THE HOSPITAL MY PAIN MANAGEMENT DR.WOULD COVER MY PAIN MEDICINE WHILE IN RECOVERY.

    I WOULD LIKE IT TO BE KNOWN THAT I HAVE SEEN A PAIN PHYSICIAN SINCE JUNE OF 1999.I HAD ONLY SEEN ONE THRU OUT MY ENTIRE CAREER...

    RHMLucky777

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    I HAD A BACK SURGEY ON MAY,5 2014.TO REMOVE MY DISC BETWEEN L2 &L3.MY SURGEON AND I,ALONG WITH MY PAIN DOCTOR HAD ALL AGREED THAT ONCE I WAS OUT OF THE HOSPITAL MY PAIN MANAGEMENT DR.WOULD COVER MY PAIN MEDICINE WHILE IN RECOVERY.

    I WOULD LIKE IT TO BE KNOWN THAT I HAVE SEEN A PAIN PHYSICIAN SINCE JUNE OF 1999.I HAD ONLY SEEN ONE THRU OUT MY ENTIRE CAREER OF NEEDING A PAIN DR.

    THAT WAS UP UNTIL 8 TO 10 MON'S AGO WHEN MY PAIN DOCOTOR DECIDED HE WAS GOING TO CLOSE HIS PRACTICE AND WORK FOR THE VETERAN ARRAIR'S.WHILE I RESPECTED HIS DESICION.I WAS VERY FEARFUL OF HOW THIS WAS GOING TO WORK.

    I WENT TO AND AM STILL SEEING THE PAIN DR. HE TOLD US TO GO TO.

    SO,TO JUMP FORWARD TO THIS SURGERY TWO WEEKS AGO.WELL I HAD THE SURGEY AND THE HOSPITAL DID A GREAT DEAL TO HELP ME WITH THE PAIN.

    OM THE DAY I WAS BEING RELEASED,I CALLED MY PAIN DR.'S OFFICE 3 TIMES.FINALLY I RECIEVED A CALL STATING THAT THE DOCTOR WAS IN CLINIC MEANING HE WAS ON THE GROUNDS)AND I WOULD HEAR SOMETHING AS SOON AS THE NURSE AT HIS OFFICE HEARD FROM HIM.I REMINDED THEM.I LIVE BY MY SELF IN CLAREMORE,OKLAHOMA AND THE SURGERY HAD BEEN DONE IN TULSA,OKLAHOMA AND I WOULD HAVE NO WAY TO GET BACK TO TULSA TO GET A NEW OR TEMPERARYLY DIFFERENT SCRIT.I WAS TOLD AGAIN I WOULD HAVE TO WAIT TIL SHE HEARD FROM THE DR. WHOM WAS IN THE SAME BUILDING.A GREAT FRIEND OF MINE TOOK ME HOME AND HELPED ME AS MUCH AS POSSIBLE.THEN HE HEADED BACK TO HIS HOME IN TULSA.I NODDED OFF AND LOOKED AT MY PHONE WHEN I AWOKE AT ABOUT 5:30 P.M. AND SAW THEY HAD CALLED.I CHECKED THE MESSAGE AND TO MY TOTAL AND COMPLETE DISBELIEF THE NURSE SAID THE DR.HAD TOLD HER TO TELL ME THAT WAS TO CONTINUE TAKING THE EXACT SAME MEDICINE I HAD BEEN TALKING FOR THE LAST 7 TO 9 YEARS AND IN THE EXACT SAME DOSE I HAD TAKEN IT IN FOR THE LAST 7 YEARS.I TRYIED AND IT WAS TOTALLY UNBERIBALE.I CALLED THEM ON FRI. AND MONDAY WITH NO RETURN JUST ME SUFFERING LIKE AN ENEMY OF WAR (LITTERALY,AND NO DISRESPECT TO ANY OF OUR ARMED FORCES).I CALLED MY SURGEON'S HEAD NURSE AT HIS OFFICE AND SHE COULD NOT BELIEVE WHAT I HAD TOLD HER.HER AND I AGREED THAT WE WOULD DO NOTHING AT THIS TIME BECAUSE I DID NOT WANT MY PAIN CONTRACT BROKEN.I FINALLY RECIEVED A CALL ON TUES. FROM MY PAIN DR.'S NURSE AND SHE SAID "YOU KNOW HE HAS ALREADY TOLD YOU TO CONTINUE WITH YOUR SAME MEDICINE AND DOSE".WHEN I TOLD HERE I HAD SPOKEN TO MY SURGEON'S HEAD NURSE AND SHE COULD NOT BELIEVE WHAT WAS GOING ON.MY PAIN DR.'S NURSE SAID"WELL DOES SHE KNOW YOU TAKE 12 PILLS A DAY"(WHICH ACTUALLY IT'S 11).I TOLD HER MY SURGEON'S NURSE HAS MY CHART IN FRONT OF HER WHEN WE SPEAK.THE PAIN DR.'S NURSE THEN SAID "WELL IF THEY WOULD LIKE TO CALL OVER HERE THAT'S FINE".I CALLED MY SURGEON'S NURSE AND SHE DIDN'T WANT ME TO BREAK MY PAIN CONTRACT PLUS SHE KNEW I WOULD BE IN TO SEE THE SURGEON IN 5 DAY'S.

    THIS IS WHERE I GET REALLY ######.IF MY PAIN DR. WAS CONCERNEDABOUT THE NUMBER OF MEDICATION I WAS TAKING,HE COULD HAVE EASILLY SAID OK DON'T TAKE ANYMORE OF YOUR REGULAR SCRIPT FOR THE NEXT 6 TO 8 WEEKS AND I WILL CHANGE YOUR MEDICATIONS UP FOR A SHORT TIME TO TRY AND HELP YOU AS BEST AS I POSSIBLY CAN.BUT,NO HE DID NO SUCH THING AND NOW I'VE BEEN SUFFERING LIKE YOU DON'T WANT TO KNOW.

    I CAN GIVE DR.'S NAME'S,PHONE NUMBER'S AND ADDRESSES UPON REQUESTFROM A RELIABLE PERSON WHOM CAN HELP ME.I MEAN I'M ONLY TWO WEEKS OUT OF SURGERY TODAY AND GO SEE MY SURGEON TOMORROW.I DON'T GET TO SEE MY PAIN DR UNTIL THE 28TH OF MAY.PLEASE HELP IF POSSIBLE.THANK YOU,SINCERLY E.C.S.SR.

     

    Moderator's Note: Please do not post personal contact information including email addresses and phone numbers.

  • backpainworse
    May. 11, 2014

    I just went through 2 years of horrific pain fighting a Kaiser Pain Clinic. Suddenly after years of being medicated for chronic medical pain the doctors started to titrate me down saying their patients all needed to be placed on multimodal treatment which included, exersize, stretching, meditation, diet and attending classes along with physical therapy and...

    RHMLucky777

    Read More

    I just went through 2 years of horrific pain fighting a Kaiser Pain Clinic. Suddenly after years of being medicated for chronic medical pain the doctors started to titrate me down saying their patients all needed to be placed on multimodal treatment which included, exersize, stretching, meditation, diet and attending classes along with physical therapy and psychiatry analysis. Problem was I was already doing alot of those things my entire life along with the medication.

    They made me feel like I was seeing a parole officer when I had never failed a pee test or done any rehab in my life. I don't drink or smoke. But they just looked at me with a deadeye stare and said if I was having problems with pain it was just too bad. I documented everything and I am filig complaints with every state and federal agency. It's probably not going to help but I decided that if they were going to cause me pain I would return the favor as best as I could. Now I am going to call all the radio talk shows that I can and see if any TV stations will put me in the shadows to talk about the problem. Next fall on October 15 when the insurance companies have open enrollment I plan on writing letters to the editors of local papers warning people about Kaiser and about this problem. Strangely enough our only salvation may be when medical marijuana is OK'd by the Federal government but until then it can be a problem with Social Security Disability... If you have dealt with SSDI and Marijuana for pain please write in and share your experience. 

  • kellie nolen
    May. 08, 2014

    I have several medical issues. Ive had them for several years. I have been to dr after dr telling me there is nothing they can do. Take tylenol or ibprophen.  Well, when u already had a hole in ur stomach because of it, do u really wanna put another one?? But yet they tell u there is other meds out there.  There r sooo many other side effects with...

    RHMLucky777

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    I have several medical issues. Ive had them for several years. I have been to dr after dr telling me there is nothing they can do. Take tylenol or ibprophen.  Well, when u already had a hole in ur stomach because of it, do u really wanna put another one?? But yet they tell u there is other meds out there.  There r sooo many other side effects with ulcers.  Who wants to feel like a ginney pig??  The drs dont care for us!! They just want what the government wants.  Excuse me dr, but the government put all of us Iin a bad spot. When the us falls on its ass do u really think the government will take care of u?? I have bipolar and the dr is wanting me to take that medication just to zombie me out so I wont think its there. That is the problem wirh america now. There r to many people on this for depression. According to drs, its all in our head. This must be y 75 percent of americans are over weight. The medication puts u in more of a depression. Start reading up on the side effects of anti depressants . Its no worse than pain meds anyday. The government wants zombies. Wake up people. Its all government. we have to fight for our rights. For all we know the government is probally saving it all for them like all the amonition.  Just saying!!

  • Donoharm
    Feb. 11, 2014

    First it began being diagnosed with RA, which I was prescribed methotrexate for.  I took that for almost two years until one day I ended up in ER with pancreatitis.  They told me to stop the methotrexate as it was very bad for the pancreas.  Forward five years, and many gastro problems later, having gallbladder removed, bloating after meals ect..then...

    RHMLucky777

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    First it began being diagnosed with RA, which I was prescribed methotrexate for.  I took that for almost two years until one day I ended up in ER with pancreatitis.  They told me to stop the methotrexate as it was very bad for the pancreas.  Forward five years, and many gastro problems later, having gallbladder removed, bloating after meals ect..then finally came PAIN, that never went away.  I didnt know that it was all caused from the first acute attack  of pancreatitis till I was diagnosed with chronic pancreatitis in 2012.  The pain was relentless and excruitiating with bouts of acute attacks ontop of the chronic.  It took a year to get any  pain managment.  My specialist would write an occasional script to help get me by, but I was pretty much left to suffer or be hospitalized when I couldnt take it anymore.  Now that I am in pain managment, I have a doctor who says he doesnt know what CP is, and treats me with low dose meds, and keeps asking when are you getting surgery every month, knowing that I cannot afford a transplant, he continually tells me that he cant keep treating me forever.  I have only  been his patient less than a year.  I tell him how severe the pain is and my blood pressure should tell him I am not lying close to 160, but he says if we up the long acting med we will have to reduce break through meds to the point where it is of no help to even bother asking for more relief.  So I am left to suffer, and afraid to look for another doctor due to "doc shopping"  I am new to this and dont know what my rights are if I even have any.  For those of you who dont know what pancreas pain feels like it is like a shark gnawing on your back and chewing your nerves, it causes severe nerve pain ontop of that dead organ pain and its constant, but worse with eating, so we dont eat much.  Now the specialist that was my only support is gone due to hospital litigation, so I have no one to advocate for me, or to even check on my condition to see how its doing (pancreatic cancer, ect).  Its cruel and heartless to be treated with such negligence, and all because of a medication that come to find out now I didnt even need.  Two weeks ago I saw a new rhuemy who told me they are checking me again to see if I even had RA, so far tests are all negative.  She said many of my old doctors patients were mis-diagnosed, perhaps due to a faulty MRI machine.  However she does think I do have psoratic arthritis due to other changes but who knows if I wouldve still been treated in the same aggressive manner as taking chemo.  I am with you here, hoping that somehow we as patients, and doctors regain our rights to be able to treat pain instead of allowing people like me to suffer needlessly with undertreatment.  I hear way too many people on these boards saying they think death would be a better alternative.  How are they fighting a war on drugs by taking away our legal rights to treatment?  I guess its the easy way out rather than to face the street criminals, who are probably loving that the DEA is only helping build thier client base.  The pain contract should just state that if you overdose on your meds by your own negligence then you or your family cannot hold prescribing doctor accountable.  Maybe that would resolve the worrry they have about people doing just that, now they have another worry about how many people will take thier own lives due to inadequate pain control.  I have already seen it happen myself, a cancer patient only prescribed on 15mg extended relief morphine one pill per day, well, he shot himself in his back yard, guess he was tired of suffering.  What if they were held accountable for not treating pain?  I wonder.

    • tim8001
      Jul. 29, 2014

      we have to find some way of getting legal rights. Remember Siobann Reynolds head of teh pain relief network. Tanya Treadway had it in for her then she Siobann became engaged to a lawyer who was going to start working wiht us pain sufferers. It was the first time i actually thought we were going to get legal rights. I said to myself she is walking on thin ice...

      RHMLucky777

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      we have to find some way of getting legal rights. Remember Siobann Reynolds head of teh pain relief network. Tanya Treadway had it in for her then she Siobann became engaged to a lawyer who was going to start working wiht us pain sufferers. It was the first time i actually thought we were going to get legal rights. I said to myself she is walking on thin ice as they already have it in for her. I was not at all surprised to hear that Siobann and her fiancee and his mother were in a small plane coming in for a landing and crashed???? I am or  was a private pilot and this really sounds suspisious, just putting it out there. There went our legal representative. Maybe one day a lawyer will get caught up in cronic pain or maybe his mother or sister or wife. Maybe then when they get to experience the real hell of chronic pain will something happen but for now we are jsut easy picking. After all were sick and can't really defend our selves like someone who is well. Karma will be a b-----for all these doctors and moron dea agents who are too cowardly to go after drug dealers. After all i wonder how many legitimate pain patients are forced to the streets. If your in enough pain you will do any thing to get out of it. No one seems to care about how many people are forced to take their own lives due to pain

  • Anonymous
    WJD
    Jan. 08, 2014
    My Pain Dr and I have been working together over the 3+ last years (I fumbled around with different, helpful Dr., but my PD's treatment finally started giving me relief). It's the pharmacy who will fill my prescriptions for a while and then suddenly cut me off, leaving me searching all over for another pharmacy that will fill my scrips for OxyContin - have...
    RHMLucky777
    Read More
    My Pain Dr and I have been working together over the 3+ last years (I fumbled around with different, helpful Dr., but my PD's treatment finally started giving me relief). It's the pharmacy who will fill my prescriptions for a while and then suddenly cut me off, leaving me searching all over for another pharmacy that will fill my scrips for OxyContin - have been on everything else - this is the only one that works on my pain and allows me to be the wife, mother, business owner who I want to be. I am trying to figure out who is responsible for the pharmacists treating us this way? Is it the Pharamacists, the co. they are employed by, the DEA, or the FDA or families of people who have ODed? We legit. Pain patients need to do something! We are not doing anything wrong.
    • Donoharm
      Feb. 11, 2014

      I have read somewhere recently that the DEA is putting pressure on pharmacists to screen pain patients, so this could be why your pharmacy is unwilling to provide you medication.  The DEA is supposedly requiring them to ask the doctors questions as to why you need the meds, and other questions (dont remember them all).  I remember a doctor commenting...

      RHMLucky777

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      I have read somewhere recently that the DEA is putting pressure on pharmacists to screen pain patients, so this could be why your pharmacy is unwilling to provide you medication.  The DEA is supposedly requiring them to ask the doctors questions as to why you need the meds, and other questions (dont remember them all).  I remember a doctor commenting that it is unreasonable for the DEA to ask pharmacist to come between the provider/patient relationship.  Too bad I cant remember where I read this or I would put up the link  to the site.  I guess it's just another tactic on the side of the DEA to meddle with legal rights of patients and thier providers.  I have had trouble if I dont go to same pharmacy every month bc say they are out that month, and will be out for too long of a time to wait for refill so I go to another pharmacy to fill, which usually requires careful searching, only to come back to my regular pharmacy and have them say no  you didnt fill here last month so we cant see you.  In this case I will try to go to someone who's familiar with the fact that I normally go there to see if I can gain back my right to fill there again.  It's a headache for all involved.  

  • Anonymous
    Sean hinchliffe
    Jul. 23, 2012
    We have similar problems here as its difficult to get a medical team together as some medical professionals don't recognise the illness (ess) . Then to add further insult we have fight on our hands with those in authority who are supposed to help disabled / long term health sufferers as they believe it's all psychosomatic. As if we don't suffer enough. Again...
    RHMLucky777
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    We have similar problems here as its difficult to get a medical team together as some medical professionals don't recognise the illness (ess) . Then to add further insult we have fight on our hands with those in authority who are supposed to help disabled / long term health sufferers as they believe it's all psychosomatic. As if we don't suffer enough. Again its able bodied (normal) people in charge who have no clue what is like to be one of us. I am one of the lucky few who is prescribed tramadol, baclofen (antimuscle spasm) drug and morphine, and some strong paracetamols. But like one your readers your body does build up a tolerance so I complained and then was prescribed duloxetine which does ok for neuropathy but it can mess with your head unless you suffer with depression also. But I do feel not enough is being done to seek a cure and over here it can be difficult for your rights to be covered under the disability discrimination act as I lost some help through a tribunal because my condition varies, from being able to move around to sometimes being immobilised. But we keep battling on.
  • SickCall
    Jul. 17, 2012

    I live in New York and this happened to me about a month ago. I wrote it in respose to another article and the temptation to just copy and paste was too much but I think you will get the idea. Its what your talking about.

    Sir-
      Unfortunately I can empathize with this article. It was 4 years ago that I herniated a disk in my neck while lifting a patient...

    RHMLucky777

    Read More

    I live in New York and this happened to me about a month ago. I wrote it in respose to another article and the temptation to just copy and paste was too much but I think you will get the idea. Its what your talking about.

    Sir-
      Unfortunately I can empathize with this article. It was 4 years ago that I herniated a disk in my neck while lifting a patient in a residential care facility while working for New York State. I was 36 and I did not want to undergo invasive back surgery.
      For the Last 10 years I have seen the same PCP. At my last office visit I was told I was being discharged as a patient because my doctor could “no longer treat my pain”. O.K., but isn’t that what doctors do? I will spare you the details of my personal suffering and instead I will cut to the chase and tell you the real reason why.
      I found out from his nurse that my doctor had a professional relationship with another doctor. This other doctor was jailed for writing false prescriptions or some such shady business. This resulted in my physician “taking in” the jailed doctors patients. This apparently interested the DEA as he was “red flagged” by them for prescribing too much opioid medication.
      I went in for a scheduled appointment to discuss altering my medications as I felt that a 50mcg Duragesic patch was overkill for my symptoms. This resulted in my immediate discharge. I left the office stunned, confused, and feeling abandoned.
    Only later did I find out the details and the real reason behind his actions. It would be easy to blame the doctor but I tend to take a wider view and I do pay attention to the man behind the curtain. The “War on Drugs” has found a new target. Doctors and persons with conditions that cause chronic pain. Lets call a spade a spade. This is simple discrimination against persons with disabilities. It pained me (no pun intended) to read that story. I know how she felt all too well.

    • shaley bauim
      May. 13, 2014

      my dr discharged me yestrday when i was to grt my regular refeel im in baltimore is there any one i can go to, its the 2nd time in 4 yrs the exact same thg happened this time they saidthey were dropping me becuz no oxycodone showed up in my urine, if he bothered to ask i had a stomach flu for 5 days an had to allow the fentan. patches to do theyre work because...

      RHMLucky777

      Read More

      my dr discharged me yestrday when i was to grt my regular refeel im in baltimore is there any one i can go to, its the 2nd time in 4 yrs the exact same thg happened this time they saidthey were dropping me becuz no oxycodone showed up in my urine, if he bothered to ask i had a stomach flu for 5 days an had to allow the fentan. patches to do theyre work because i would of vomitted 5 days of oxycodone. now in one day ill be experiancing withdrawal, an if that isnt frightning enuff, i wont be able to turn in bed muchless walk, witout pain. is there any dr to go to who prescribes patches an oxycodone? i also suffer from PTSD ,armed robbery as bank teller gun to my face, then 8 hours hostage. so panic kicks in when safety is threatened, i just want to be able to make dinner, any help immediately for pain meds?

  • jbaysinger
    Jan. 10, 2012

    i have pain 7/24  amd i;m sick of people trying to keep DR:S from treating their patents pain- only the one in pain know what there pain leavel is and how bad and what helps. Like i;d try something besides pain pills oh no i don;t have INS. I can;t aford anything but pain pills And a DR< should not be responsoble if a patients over dos.That is the patients...

    RHMLucky777

    Read More

    i have pain 7/24  amd i;m sick of people trying to keep DR:S from treating their patents pain- only the one in pain know what there pain leavel is and how bad and what helps. Like i;d try something besides pain pills oh no i don;t have INS. I can;t aford anything but pain pills And a DR< should not be responsoble if a patients over dos.That is the patients fault not the DR;,s The F>D>A needs to stay out of DR:S, being DR:>S Let them do their job not someone that no longer understands pain or anything about the body ;only the person knows how they feel

  • Theresa
    Jan. 11, 2011

    Im also in Chronic Pain daily and have to suffer becuz no dr seems to care. I have L3-4, L4-5 in my back bad and several in my neck that are pinched, spurred and arthiritis all in it. It causes terrible headaches. I also have RSD in my left arm and hand. Ive suffered for many yrs now with no relief. My regular dr gives me pain pills but it's not touching the...

    RHMLucky777

    Read More

    Im also in Chronic Pain daily and have to suffer becuz no dr seems to care. I have L3-4, L4-5 in my back bad and several in my neck that are pinched, spurred and arthiritis all in it. It causes terrible headaches. I also have RSD in my left arm and hand. Ive suffered for many yrs now with no relief. My regular dr gives me pain pills but it's not touching the pain. He's afraid to try anythiing stronger I guess for fear from the DEA. I have never been on drugs or alcohol. I am a strong christian that trusts God daily and prays for relief. A healing in body would be great! But since whatever reason HE hasnt healed me I feel that some compassion from my drs would be appreciated. Not only am I going to my reg dr but I go to a pain management dr. In over a yr that Ive been to him Ive only recieved injections of steriods which didnt help and made my peptic ulcers flare up. He only has tried me on Cymbalta ( had bad side effects so couldnt take), kolinipin ( helps some with depression but not pain)and tranzadone (never filled cuz already have sleeping meds) not for pain.

    I have expressed to the pain management that I dont understand why they havent tried me on different meds til they found the one that would give me relief. They said that since the symbalta didnt help and Ive tried the neurotin with no luck from the other dr that there was nothing else left to try. But nothing stronger than lorcets have been tried by my reg dr. And it doesnt help witht he neck pain and arm pain. It helps with the back pain some but not elimanating all pain. SO I SUFFER EVERY DAY>>

  • bassguitar444
    Oct. 05, 2010

    OKAY PEOPLE, MY RHUMETOLOGIST PUT ME ON 50 MGS OF TRAMADOL 1 PILL 4 TIMES A DAY, WITH ALL MY BACK WHICH HE KNOWS AND FIBROMYALGIS, I WOULD GET MORE RELIEF TAKING M&M'S!  ANYWAY, I WENT TO WEB MD AND IT SAID AFTER A FEW WEKS I COULD INCREASE, THE MAX ON THE MEDICATION IS 400 MGS A DAY, SO INSTEAD OF CALLING MY NEARLY RETIRED OLD SCHOOL RHMETOLOGIST,...

    RHMLucky777

    Read More

    OKAY PEOPLE, MY RHUMETOLOGIST PUT ME ON 50 MGS OF TRAMADOL 1 PILL 4 TIMES A DAY, WITH ALL MY BACK WHICH HE KNOWS AND FIBROMYALGIS, I WOULD GET MORE RELIEF TAKING M&M'S!  ANYWAY, I WENT TO WEB MD AND IT SAID AFTER A FEW WEKS I COULD INCREASE, THE MAX ON THE MEDICATION IS 400 MGS A DAY, SO INSTEAD OF CALLING MY NEARLY RETIRED OLD SCHOOL RHMETOLOGIST, I TOOK IT UPON MY SELF AS I FELL I AM MORE EDUCATED IN MEDICATIONS, ALL KIDS THEN ANY DOCTOR IS, THATS THE TRUTH.  MY FRIENDS COME TO ME FIRST BEFORE THEY GO TO THEIR DOCOTRS.  IF THEIR IS SOMETHING I AM NOT SURE ABOUT, I GO TO WEB MD, END OF STORY.

    TO CONTINUE ON, I DECIDED AFTER 2 WEEKS OF TAKING TRAMADOL 1 50 MG 4 X A DAY (M&M) CAUSE IT DIDNT DO ANYTHING FOR MY SEVERE BACK PAIN AGGRIVATED BY THE FIBROMYALGIA, MY RHUMEY KNOWS THIS, C'MON ALREADY DOC.  WELL I STATRED FOR THE LAST 3 WEEKS TAKING 200 MGS IN THE MORNING , 6 AM AND 200 MGS IN THE AFTERNOON, 8 HOURS LATER.  NO SIDE EFFECTS AT ALL!  JUST FEELING BETTER!  IS THAT A SIDE EFFECT.  WELL BOTTOM LINE, I WROTE MY RHUMEY A LETTER IN THE MAIL 3 WEEKS AGO, 3 WEEKS AGO!  HE JUST GOT IT!

    I GET A CALL FROM HIS OFFICE IN A FRANTIC VOICE, DONT TAKE ANY MORE TRAMADOL, YOUR OVERDOSEING!  CALL US IMMEDIATELY.  ARE YOU FREAKING KIDDING ME?

    NEEDLESS TO SAY, I DIDNT CALL HIM, I WENT TO WEBMD, PRINTED OUT THE PAGE THAT SAID YOU COULD TAKE 400 MGS A DAY AND WROTE HIM A LONG LETTER BECAUSE IM TIRED OF ALL THE BULLSHIT, WHICH MEANS BOTHMY HUBBY AND I SEE THE SAME DOCTOR , THE RHUMETOLOGIST BABYS MY HUBBY, MY HUBBY IS OVERWEIGHT, DOESNT ASK HIM TO EXCERSISE OR WALK, BUT EXPECTS ME TO DO ALL THE ABOVE, AND I DID AND LOST 60 POUNDS!!!! 

    DO I GET CREDIT FOR IT, NO!  NOW I AM GETTING SHIT FOR THE TRAMADOL WHICH IS WORKING.

    HEY MY HUBBY IS TAKING STUFF THE DOCTOS DONT EVEN KNOW IN ADDITION TO THE PAIN MEDS, THAT WENT IN MY LETTER TO THE DOCTOR.  SO I TOLD HIM TO GET OFF MY CASE! 

    TIRED OF ALL THE CRAP, TIRED OF ALL THE DOCTORS MY HUBBY AND I SEE AT SEPERATE TIMES, AND THEY BABY HIM.  NOT FAIR.  THEY NEED TO KNW FROM ME WHATS REALLY GOING ON.  HE SITS ON HIS ASS ALL DAY.  HE IS RETIRING FROM HIS JOB RIGHT NOW AND HIS RESONING FOR NOT HELPING DO NOITHING IS BECAUSE HE DOESNT WANT TO WIND UP IN SEVERE PAINLIKE ME!  WHAT A MAN!

    I HAVE SEVERE TENDINTIOIOUS IN MY ELBOW, HIPS BAD SPINE NECK, PICHED NERVE, MY HUBBY FIBROMYALGIA, WHICH I JUST FOUNF OUT HIS VITAMIN D-3 LEVEL IS LOW AND THAT CAN CAUSE ACHES AND PAINS, SO GUESS WHAT, HE MIGHT NOT HAVE FIBROMYAGIA BECAUSE THE ASS WONT GO IN THE SUN, I LIVE IN THE SUN.

    I TEY TO GET HIM IN THE SUN, NO WAY.  THIS IS A MAN WHO USED TO LIVE IN OUR POOL AND THEN ONE DAY STOPPED FOR NO REASON.  HE HAS BEEN ON MANY ANTIDEPRESSANTS, THEY DONT WORK. 

    I AM CURRENTLY SEEING A PSYCHIATRIST TO DEAL WITH HIM AS I AM AHVING ANXIETY ATTACKS SINCE HE HAS BEEN HOME SINCE DEC OF 09.  I HAVE NO ONE TO TALK TO ABOUT THIS EXCEPT MY FRIE D WENDY.  NO DR, IS LISTENING TO ME EXCEPT MY SHRINK.

    SO MY RHUMETOLOGIST GOT A KIND OF NASTY REAL LONG LETTER FORM ME TODAY AND I TOLD HIM EVERYTHING ABOUT MY HUBBY KENNY AND THE FACT I AM TAKING THE MEDS ACCORDING TO THE WESITE AND TO GET THEM SET UP WITH MAIL ORDER PLEASE AND DONT GIVE ME BULL SHIT OVER IT.....THANK YOU ALL FOR LISTENING..I AM WAITING FOR MY HUBBY TO GO TO HIS DR.'S APPT. THEN I WILL VENT TO MY 24 YR OLD NURSING SCHOOL DAUGHTER ABOUT THIS WHO LIVES IN DELAWARE AND HAS LUPUS.  SHE IS MY OTHER VENT.  THA NK GOD. SHE WILL GET ALL OVER A STEP DADS SHIT.  HE IS EITHER PRE DIABETIC OR DIABETIC, HE GOES THURS FOR MORE BLOODWORK, HE IS BLOWING THIS OFF TOO...........THEN YOU WONDER WHY I TAKE KLONOPIN TO RELAX AND SEE SHRINK..............LOVE TO ALL TAMMY ..I WILL LET YOU KNOW THE OUTCOME.............^j^

     

  • bassguitar444
    Aug. 26, 2010

    I WAS JUST INFORMED BY MY PAIN MAMANGEMENT DOCTOR THAT IN ORDER TO RECIEVE NARCOTICS, I NOW HAVE TO  BE UNDER THE CARE OF A PHYCHIATRIST.  I NEVER HEARD OF THIS BEFORE.  I LIVE IN NEW YORK STATE. 

     

    ANYONE ELSE HAVING THIS PROBLEM WHO LIVES IN NEW YORK?  PLEASE LET ME KNOW.  I JUST E-MAILED "NEW YORKS MEDICAL CONDUCT...

    RHMLucky777

    Read More

    I WAS JUST INFORMED BY MY PAIN MAMANGEMENT DOCTOR THAT IN ORDER TO RECIEVE NARCOTICS, I NOW HAVE TO  BE UNDER THE CARE OF A PHYCHIATRIST.  I NEVER HEARD OF THIS BEFORE.  I LIVE IN NEW YORK STATE. 

     

    ANYONE ELSE HAVING THIS PROBLEM WHO LIVES IN NEW YORK?  PLEASE LET ME KNOW.  I JUST E-MAILED "NEW YORKS MEDICAL CONDUCT PROGRAM-A GUIDE FOR PHYSICIANS"  WAITING FOR A RESPONSE FROM THEM.  I JUST WANT TO MAKE SURE SHE ISNT TRYING TO PULL WOOL OVER MY EYES.  I DONT NEED TO SEE PHYSCHIATRIST.  SHE WANTS ME TO GO AND TALK ABOUT MY CHRONIC PAIN, HOW BORING! 

     

    OTHER THEN SHARING THINGS ON THIS BOARD, I DON'T SEE THE NEED TO TALK TO A PROFESSIONAL.  RIGHT NOW MONEY IS TIGHT AND I DONT NEED TO PAY ANOTHER CO-PAY RIGHT NOW FOR A DOCTOR I DONT NEED.  I RECENTLY, OVER THE LAST 2 MONTHS WENT TO ANOTHER PSYCHIATRIST BECAUSE MY PAIN MANAGMENT DOCTOR WANTED ME TO GO TO MAKE SURE I AM NOT ADDICTED.  I WENT TO HIM , HAD 2 SESSIONS, HE DIDNT UNDERSTAND WHY I WAS THERE AND DIDNT SEE ANY ADDICTIONS SIGNS AND EVEN TOLD ME HIMSELF THAT WHEN YOU ARE IN CHRONIC PAIN YOU CANT GET ADDICTED, HELLO!!!  THIS IS WHAT I TOLD HER AGAIN AFTER HE TOLD ME THAT.  SO WHAT THE HELL DOES SHE WANT FROM ME?

     

    I AM AGGRIVATED OVER THIS.  I AM LOOKING FOR A NEW PHYSCHIATRIST BECAUSE THE GUYI JUST SAW WANTED ME TO GO BEHIND MY PAIN MANAGEMENTS BACK AND SEE ANOTHER PAIN MANAGMENT DOCTOR TO SEE IF SHE/ HE PRESCRIBES THE SAME MEDICATION WHICH IS PERCOCET. 

     

    I THOUGHT THIS WAS UNPROFESSIONAL.  I LIKE MY PAIN MANAGMENT DOCTOR, IT WAS SO HARD FOR ME TO FIND ONE TO GIVE ME PAIN MEDS IN THE FIRST PLACE.  OTHER PAIN MANAGMENT DOCTORS DONT PRESCRIBE NARCOTICS.  IT TOOK ME 11 YRS SUFFERING TERRIBLY FROM FIBROMYALGIA AND SEVERE BACK OAIN TO DECIDE TO GO THE NARCOTIC WAY, I DIDNT WANT TO, IN AM 49 YRS OLD AND WHEN I TURNED 46, I MADE MY DECISSION, COULDNT TAKE THE PAIN ANYMORE.  THIS HAPPENS AS WE AGE, PAIN TOLERANCE GETS TO WHERE YOU CANT TAKE THE PAIN ANYMORE AND WHO SHOULD LIVE IN PAIN THESE DAYS ANYWAY?  ITS NOT A WAY OF LIFE!

     

    SO THIS WAS A BIG STEP FOR ME AS I CONSIDER MYSELF A STRONG WILLED TOUGH EXTERIOR PERSON.  AND TRUST ME, I DONT LET ANYKIND OF PAIN STAND IN  MY WAY AS FAR AS GETTING THIGS DONE AROUND MY HOUSE.  I AM NOW BECAUSE OF MY WILL AND STUBBORNESS, SUFFERING TERRIBLY FROM TENDONITIOUS IN RIGHT ELBOW, SO BAD I CANT EVEN STRAIGHTEN OUT MY ARM.  MY TWO HIPS HAVE BURCITIOUS IN THEM TOO. 

     

    WHY YOU ASK IS THIS HAPPENEING?  FIRAT OF ALL I DO HAVE FIBROMYALGIA, THIS IS ASSOCIATED WITH THE DISEASE.  I DO HEAVY YARD WORK, CLEANING, MOW THE GRASS, I JUST RECENTLY RIPPED UP MANAULLY MY WHOLE LAWN TO RESEED IT, HAD TO RAKE UP ALL THE DEAD GRASS.  I PLANTED MY GARDENS, CONSTANTLY WEED AND NOW GOING TO CLEAN MY ATTIC OUT AND BASEMENT.  GOING TO SCRAPE AND PAINT GARAGE DOOR AND RE-CEMENT BOTTOM OF HOUSE.  WONDERING MY HUSBANDS INVOLVEMENT IN ALL OF THIS?  THE ANSWER IS NONE!

     

    HE IS BEEN HOME SINCE DEC. 2010.  HE IS GOING THROUGH RETIREMENT FROM HIS JOB AND TERYING TO GO OUT ON DISABAILITY FOR A MINOR HEART CONDITION.  I HAVE ASKED HIM TO HELP ME, HE DOES NOTHING EXCEPT LAUNDRY, SOMETIMES VACUU. AND HE LOADS THE DISHWASHER.  THATS IT.  HE HAS IN THE PAST WHEN HE WAS WORKING FULL TIME, STARTED 20 PROJECTS AROUND THE HOUSE, NEVER FINSIHED ONE.

     

    I ASKED HIM WHY DONT YOU START FINISHING THE PROJECTS NOW THAT YOU HAVE THE TIME?  HE WONT AS HE TOLD ME.  HE HAS FIBROMYALGIA TOO, TRUST ME HE DOESNT HAVE 9 BULGING DISCS LIKE I DO, TENDONTIOUS, SHOULDER PROBLEMS OR HIP PROBLEMS.  HE JUST HAS MUSCLE ACHES AND PAIN, WELL SO DO I AND EVERTYHING ELSE!  I AM IN WORSE SHAPE THEN HIM AND HIS ANSWER IS HE WONT DO ANYWORK BECAUSE HE DOESNT WANT TO WIND UP IN MORE PAIN THEN ME!!!!!

     

    HE SAID I AM TEARING UP MY BODY, WELL I TOLD HIM THINGS NEED TO BE DONE AROUND HERE AND I AM NOT SITTING ON MY ASS AS THE WEEDS GROW AND EVERYTHING ELSE FALLS APART.  HE DOESNT SEE IT MY WAY AND THINKS ONCE HE IS OFFICALLY RETIRED (NEXT YEAR SOMETIME) AND WHEN HE GETS HIS ANNUITY CHECK, THAT MONEY WILL BE USED TO HIRE PEOPLE TO FINISH THE HOUSE!

     

    I REALLY THINK HE NEEDS A PHYCHIATRIST AND WHEN I DO GO SEE ONE, WHO DOMYOU THINK I WILL TALK ABOUT????  NOT ME.  SO AS IT STANDS, I AM NOT ALLOWED TO RIP UP MY 30 YEAR OLD BEDROOM CARPET UNTILL MY ELBOW HEALS, THIS WAS A BIG FORGHT WE HAD OVER THIS ISSUE.  I ASKED HIM TO DO IT HIMSELF, HE SAID NO AND WIND UP IN MORE PAIN LIKE ME.  HE SITS AROUND HOUSE ALL DAY ANDW ATCHES TV. 

     

    HOW CAN YOU HAVE FIBROMYALGIA PEOPLE AND BABY YOURSELF?  I DONT GET IT!  HE NEEDS TO LOOSE 80 POUNDS, BECAUSE OF ME CONSTANTLY MOVING AS IT SHOULD BE, I LOST 60 POUNDS IN 3 YEARS THAT I NEEDED TO LOOSE!  I TOOK ON A DOG WALKING JOB 3 YEARS AGO AMONG EVERTYHING ELSE I DO EVERYDAY.  MY SCEDUALE IS VERY FULL.  I WOULDNT WANT IT NOT OTHER WAY.

     

    MY HUBBY HAS BEEN ON CYMBALTA FOR 2 YRS BECAUSE OF THE FIBRO.  ALL IT DID WAS MAKE HIM FAT AS ALL ANTI-DEPRESSANTS DO.  THE DOCTORS DONT TELL YOU THAT.  BEEN THERE DONE THAT, BEEN ON EVERYONE OF THEM FOR ANXIETY.  HE IS SEEING OUR RHUMETOLOGIST NEXT WEEK TO WEAN OFF CYMBALTA.  BELEIVE ME I HAVE TOLD ALL OF OUR DOCTORS, WE SEE THE SAME ONES WHAT HE ISNT DOING AND WHAT I AM DOING AS FAR AS WORKING AROUND THE HOUSE.

     

    THE DOCTORS BABY MY HUSBAND.  THEY DONT SAY ANYTHING, I DONT KNOW WHAT TO DO AT THIS POINT.  ANY SUGGESTIONS WOULD BE HELPFUL.  FINANCES ARE TIGHT.  IN THE MEANTIME, I WILL CONTINUE TO WORK ON THE HOUSE WILL THE QUEEN SITS.  HE DOSENT UNDERSTAND THAT IF HE MOVES AROUND HE WILL FEEL BETTER, IF HE WALKS WITH ME HE WILL FEEL BETTER.  WONT DO IT AT ALL. 

     

    WE HAVE BEEN MARRIED FOR 18 YRS AND TOGETHER FOR 20.  I WANT MY SKINNY, MUSCULAR, TANNED MAN BACK.  HE USED TO BE SO HANDSOME, STRONG AND NEVER LET ANYTHING STAND IN HIS WAY.  I MISS THAT.  HE HAS BECOME HIS DISEASE.  HE LETS THE FIBROMYALGIA RUN HIS LIFE AND BELIVE ME I HAVE TOLD HIM THAT.  ITS REAL SAD.  SO WHEN MY ELBOW HEALS, I CAN RIP UP THE CARPET, I HAVE HIS PERMISSION, WHAT A MAN!  HE WILL LET HIS WIFE RIP UP A LARGE ROOM OF CARETING BY HERSELF WHE  I HEAL!  LADIES DONT BE JEALOUS NOW. 

     

    HE IS ALL MINE.  ANYWAY, THANKS FOR LETTING ME VENT AND HOPE SOMEONE WILL HEAR MY CRIES AND GIVE ME SOME GOOD ADVICE.  IT IS HARD WHEN YOUR HUBBY AND YOU HAVE THE SAME DISEASE.  PLUS ON TOP OF ALL THIS, I AM LOOKING AT 3 HOURS OF SURGERY WHICH I HAVE NOT SCEDUALED YET BECAUSE THE HYSTERECTOMY I HAD 4 YRS AGO DIDNT TURN OUT RIGHT AND EVERYTHING HAS TO BE RE-DONE AGAIN.  NICE HUH? 

     

    CANT DO ANYTHING ABOUT IT AS FAR AS SUEING THE DOCTORS BECAUSE NY STATUE OF LIMITATIONS IS ONLY 2 YRS.  I AM DELAYING THIS OPERATION UNTIL MY HUBBY IS COMPLETELY RETIRED.  I WILL HAVE TO REST FOR 3 MONTHS OR SO TO BE COMPLETELY HEALED.  NOT LOOKING FOWARD TO THAT.  I CANT SIT STILL.  TAKE CARE EVERYONE AND THANKS FOR LISTENING, TAMMY ^j^

    • Anonymous
      nixxxy
      Apr. 13, 2014

      Wow.. well, i doubt you will see this since its been like four years, but.. hi.  I am 32, have a 16 year old and a 3 year old, and a disabled spouse.  I have arnold chiaris (was decompressed surgically in 2006), fibromyalgia, occipital neuralgia, severe IBS, anxiety and depression.  My husband has chronic back pain.  I used to be like you.....

      RHMLucky777

      Read More

      Wow.. well, i doubt you will see this since its been like four years, but.. hi.  I am 32, have a 16 year old and a 3 year old, and a disabled spouse.  I have arnold chiaris (was decompressed surgically in 2006), fibromyalgia, occipital neuralgia, severe IBS, anxiety and depression.  My husband has chronic back pain.  I used to be like you.. before I got the IBS and anxiety ontop of everything.  Before it got so bad i had to give up what i felt to be my entire identity.. my job.  I will say, at first, before it got really really bad, i was angry at him.  I felt, i was working while he was home on disability, and it felt really unfair because we were in about the same position.  but, i made a lot of money, and i loved my job.  i could kinda squeeze by, but attendance was becoming a major issue with my employer.  A year or so ago, I got a bad flu..and suddenly things went from Really bad, to crisis.  The flu never went away.  it was accompanied by extreme labour like pain, and i had to give up my job.  'severe ibs'.  No doctor will touch me now.  ive been through the canadian system, where you have no control over who your dr is, and you cant change drs, where they put you in pain clinics that are shut down eventually for lack of funding, and NOBODY will perscribe the only thing that actually helps me; narcotics.  theyll perscribe 30 other meds that dont though.  It sounds to me like you have absolutely no empathy for your husband.  I almost wonder if you even love him, it sounds like you had a superficial love, and now that he isnt the same person because, thats what chronic illness does to most people; it changes them completely.  it is great that you are strong willed.. but it sounds to me, like you are over exerting yourself, and you are really angry about it.  Youre pushing yourself too hard, and blaming him for it..when really, you shouldnt be so mad at the situation.  you need to find a common ground and a means of accepting it.  he isnt the same man.  hes sick now, and even if he handles it differently than you would, if you really love him, you would nurture him the best you can.  concentrate on the things he DOES do, and help him do those more often.  I think if you slacked off a bit on your chores and whatnot, youd be a lot happier.  I had to..  I used to clean my ceilings and walls once a week with bleach, had a sparkly clean house you could eat off the floor.. but now.. here i am.  sick.  with a 3 year old who has no concept of why making messes is not good for sick mommy.  I cant change what my situation has become.. but i can change how i handle it.  and in order for me to be happy, i had to change what i considered to be acceptable behaviour, because like you i was taught to just tough it out and keep going (and i mean, im a fighter.. i raised my daughter alone at 16, put myself through highschool while single handedly paying rent with no family or friends, moved to the city from the village, got off welfare, employed, college, etc etc..even brain surgery didnt keep me down) but there gets a point where enough is enough, and we do the best we can with what we have at the time and what we know to do.  You are making yourself and him miserable by your approach to the situation.  yelling at him, isnt making him do anything.  being mad at him, is going to make him listen less.  try compassion.  try..being happy instead of trying to maintain who you used to be before you got sick.  illness changes your life.  but you have to find a means of accepting it.

    • cc
      cc
      Sep. 22, 2014

      New York state is antiquated I have never seen more people mismanaged my whole life. MOM ING HERE FROM OUT OF STATE WHAT A MISTAKE.  OTHER STATE TREATMENT PATIENT LIKE PEOPLE SHOULD BE TREATED. JUST A NURSE HERE I AM AM AZ ED AT WHAT I'VE SEEN SO FAR.

  • Anonymous
    Marie
    May. 10, 2010

    I have had fibro for a long time ,and its never going away and it will get worse over the yrs.

     

    I know this because I live it Doctors never gave me pain meds up untill 4 yrs ago and they gave me my life back! I have been on every antidepressent on the market along with meds for neropathy pain.Well after being given pain meds waking up is...

    RHMLucky777

    Read More

    I have had fibro for a long time ,and its never going away and it will get worse over the yrs.

     

    I know this because I live it Doctors never gave me pain meds up untill 4 yrs ago and they gave me my life back! I have been on every antidepressent on the market along with meds for neropathy pain.Well after being given pain meds waking up is the hartest part of the day.I would take my Thyroid,Premarin,and antidepressent medication along with a pain pill and within a half hour I could move and start getting things done around my house and even go back to walking you see I have back problems too the doctors would say the back and neck didnt look to bad on X-rays.But I always thought that it was worse because of the Fibro anyway I havnt been able to hold down a job for 16 yrs although I keep trying,But know they just stopped my pain meds and not that I want to take any of the drugs I'm on at all but after being off them now for 5 months wish I could have them back.The meds I take at night don't help they have me on Depikote,Zanex,neurontin,Savella and then the pills I listed on top of letter.Well I think with the side afects of all medication the choice should be mine and yours.I have stomach problems which started way before the pain meds and with the pain pills I could eat anything I wanted again.I'm hating life again.They say the pain will make you depressed,So will antideprents and well dosent everything?   

  • mike677
    Apr. 23, 2010

    You are right the doctor and patient should be the ones to decide what pain medication is needed for the person suffering from pain, this should be done without fear of DEA or other law enforcement reprisals. There are several organizations working to stop the DEA from prosecuting doctors who treat pain with opioid medications, one is PRN you can do an engine...

    RHMLucky777

    Read More

    You are right the doctor and patient should be the ones to decide what pain medication is needed for the person suffering from pain, this should be done without fear of DEA or other law enforcement reprisals. There are several organizations working to stop the DEA from prosecuting doctors who treat pain with opioid medications, one is PRN you can do an engine search and find many online, together we can get the pain medications and stop the needless suffering of patients who suffer from chronic pain.

  • Skye
    Apr. 16, 2010

    The truth is that most opiates no longer are under patents so they are not very profitable for the pharmaceutical companies. Perhaps with the new pain medications being developed, they will throw some of their dollars in the direction of lobbying for easing off of persecuting people who truly need narcotic medication to live.

    This is my opinon...

    RHMLucky777

    Read More

    The truth is that most opiates no longer are under patents so they are not very profitable for the pharmaceutical companies. Perhaps with the new pain medications being developed, they will throw some of their dollars in the direction of lobbying for easing off of persecuting people who truly need narcotic medication to live.

    This is my opinon and I am certain there is some truth in it.

    SkyeSealed

  • jason crist
    Apr. 16, 2010

    YOU HAVE HIT THE NAIL ON THE HEAD!!My father is a Doctor, with a large practice,and they used to help me when I could not find a Doctor to treat me. I broke my neck at c5 and my back at L4. Now they are no longer willing to see me at all and I am family. The goverment has put the fear of God in almost every doctor I have come across including pain management...

    RHMLucky777

    Read More

    YOU HAVE HIT THE NAIL ON THE HEAD!!My father is a Doctor, with a large practice,and they used to help me when I could not find a Doctor to treat me. I broke my neck at c5 and my back at L4. Now they are no longer willing to see me at all and I am family. The goverment has put the fear of God in almost every doctor I have come across including pain management doctors. My most recent visit to Nova Pain management resulted in me being ask to leave after only two visits, needless to say I was was very articulated.I am with you all the way!! Jason Crist

  • Chris
    Apr. 15, 2010

    Pain management "contracts" are becoming de riguer at pain management institutions. These "contracts" seek to take over decisions that are rightfully not theirs to make, and strip the pain patient of civil rights.  Pain management "contracts" destroy one's morale through intimidation, humiliation and coercion.  They strip...

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    Pain management "contracts" are becoming de riguer at pain management institutions. These "contracts" seek to take over decisions that are rightfully not theirs to make, and strip the pain patient of civil rights.  Pain management "contracts" destroy one's morale through intimidation, humiliation and coercion.  They strip and individual of his/her civil rights through demand of mandatory random drug screens even if there is no probable cause to believe a patient is drug seeking or abusing, or else they will cut an existing patient off without notice.  Should patients use the emergency room and/or are given drugs for anything, ie, broken limb, colitis, being hit by a car, childbirth they will be cut off by pain management and a note will be put in their chart they were drug seeking.   A person signing this agreement cannot accept drugs from dentists in order to allow dental procedures such as pulling a tooth, or deep root cleaning, or even a root canal.  The pain doctors can mandate that the patient go to therapy (even if it is against your religion) or else - no treatment.  If you want the pain doctor and his fear to run your life then sign the agreement.  If one does not sign, one cannot get health care.  Coercion.  Intimidation.  The real problem is the DEA's persecution of pain doctors and their patients.  It's rather like shooting fish in a barrel.  They can't stop the drug cartels.  Obviously.  But these agreements will send more and more business the cartel's way, as pain patients decide to gamble on street drugs rather than face the humiliation of dealing with pain doctors and the abdication of their civil rights.

    • jason crist
      Apr. 16, 2010

      lm just about at the end of my rope I am starting to feel like a ping pong ball being bounced back and forth doctor to doctor.Sometime I am starting to dying would be much easier than living with the pain and the day to day,month to month fight with the doctor or doctors its really all the same now.I wonder what happened to the HYPOCRATIC OATH MUST HAVE GOTTON...

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      lm just about at the end of my rope I am starting to feel like a ping pong ball being bounced back and forth doctor to doctor.Sometime I am starting to dying would be much easier than living with the pain and the day to day,month to month fight with the doctor or doctors its really all the same now.I wonder what happened to the HYPOCRATIC OATH MUST HAVE GOTTON LOST IN MONEY RATTER THAN ETHICS. Jason Crist,Jacksonville nc

    • Chris
      Apr. 16, 2010

      Oh dear.  A broken neck.  And the emotionally abusive "pain doctors" care more about whether a small percentage of the population - drug addicts  - are stopped than they do about you. They will never stop drug addiction.  Most addicts get their drugs on the street as there are no questions asked or from the few unscrupulous...

      RHMLucky777

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      Oh dear.  A broken neck.  And the emotionally abusive "pain doctors" care more about whether a small percentage of the population - drug addicts  - are stopped than they do about you. They will never stop drug addiction.  Most addicts get their drugs on the street as there are no questions asked or from the few unscrupulous doctors looking to make a buck.  It is doubtful a pain patient with corroborating test results would sell his/her drugs "in the schoolyard" yet this is the story I got from my last pain doctor as to why I must be treated as a  convicted felon.  Doctors, with their powerful AMA, do nothing to fight the situation on behalf of their profession.  They are bending over backwards to accomodate DEA.  They certainly put patients last on their list.  Perhaps they should all become GP's and treat babies with colds.  At present, they are of no use to me. 

       I know just how you feel.  Betrayed.  Abandoned in your pain.  Thinking there is no help for you.  I want you to know I care.  I felt myself to be a target because of my pain, so I left the medical system.  This was my choice, and it has worked for me. This course of action may be impractical for you or others and I am not making recommendation here for anyone else. I began to help myself in as holistic a way as possible.  I practice meditation, self-hypnosis, yoga, guided imagery, music therapy, lie in the pool, spa or in the bathtub, get Schatz physical therapy and take OTC drugs.  I quit going to doctors (a relief beyond measure), and my self esteem returned!   I walk (or limp around) each day, even if it is only around my backyard so I can quit or sit down if I need to.  I rescued a dog and trained him to be my service dog (you can do this under ADA) and take him everywhere.  Since I have been off the pain drugs  I have found my joy again as I don't have to deal with the side effects of the medications anymore, and have taken back my personal power.  My own endorphins are working again.  Yes, I am dealing with great intractable pain.  But that is not who I am.  It is not who you are.  I wish you everything good in life, Jason. You deserve the very best.  Be good to yourself.  xxoo  Chris

  • dennisjibew
    Apr. 15, 2010

    by all means we must act and win the war on drugs. lives are destroyed every

    day due to drugs.we must all act to keep these drugs out of our children's hand.

    there are people out there who live in chronic pain 24/7-365 days a year and i

    am one who lives in hell each and every day.3back surgery's and the last was fusion L3-L4 L4-L5 -L5-S1. I HAVE TRIED...

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    by all means we must act and win the war on drugs. lives are destroyed every

    day due to drugs.we must all act to keep these drugs out of our children's hand.

    there are people out there who live in chronic pain 24/7-365 days a year and i

    am one who lives in hell each and every day.3back surgery's and the last was fusion L3-L4 L4-L5 -L5-S1. I HAVE TRIED EVERYTHING A PERSON  CAN DO. I DO

    NOT LIKE DRUGS BUT IF THEY MAKE LIFE BEARABLE AND A LITTLE LESS PAINFUL

    WHAT IS WRONG WITH THAT??????????????????????.I SEE BOTH SIDES OF THE WAR ON DRUGS. PEOPLE TAKING DRUGS TO GET HIGH AND THE PEOPLE

    TAKING DRUGS TO GET SOME OF THEIR LIVES BACK DUE TO THERE CHRONIC PAIN 24/7-365 DAYS A YEAR.IT IS UP TO OUR DOCTORS TO HELP PEOPLE AND TO PROVIDE HELP TO ALL AND IF DRUGS WILL HELP GETTING SOME OF THERE LIVES BACK WHAT IS WRONG WITH THAT.

     

    • Chris
      Apr. 15, 2010

      Absolutely nothing is wrong with that. 

  • Tonio Larabi
    Apr. 15, 2010

    I have just stopped seeing a truly unethical, almost illegal physician, with regards to managing my pain. Between he and I, it was simply a "personality" issue. The physician used his power of his DEA license to control me, or so he thought. He started me on OC 30MG, twice a day. Then, when it came to refill the prescription, it was two days before I was totally...

    RHMLucky777

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    I have just stopped seeing a truly unethical, almost illegal physician, with regards to managing my pain. Between he and I, it was simply a "personality" issue. The physician used his power of his DEA license to control me, or so he thought. He started me on OC 30MG, twice a day. Then, when it came to refill the prescription, it was two days before I was totally out. He told me that "it would jeopardize his license and is against the DEA rules to prescribe this medication early". Remember, I had five pills left and was two days away from being completely out. He wanted me to jump through hoops and lied to me. So, as Purdue (the makers of OC) states as a huge caution, that STOPPING THIS MEDICATION ABRUPTLY IS DANGEROUS, I am reporting him to the Board of Medical Examiners and the DEA. He is insecure and did not follow through with his commitment of caring for me. I think we have to take these physicians on one at a time, until there is an organization, which we can support.

    • Chris
      Apr. 15, 2010

      Get a malpractice attorney.  This could be patient abandonment and endangering a patient's life. 

    • corlaw
      Apr. 16, 2010

      If you were taking two pills a day and you had five left what would be the problem with refill in two days, was it a weekend and he wanted you to wait until monday, am I missing something here?

       

       

      My PM doctor waits until the last hour to give me my patches, drives me nuts but as we all know, they have control, I would hate to have 1 -5 pills too...

      RHMLucky777

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      If you were taking two pills a day and you had five left what would be the problem with refill in two days, was it a weekend and he wanted you to wait until monday, am I missing something here?

       

       

      My PM doctor waits until the last hour to give me my patches, drives me nuts but as we all know, they have control, I would hate to have 1 -5 pills too many, omg what would I do with them????

       

      Some of these doctors are just becoming inpractical.

       

       

       

       

  • Anonymous
    Anonymous
    Apr. 15, 2010

      It is refreshing that someone has finially realized the travisty that has been brought upon the cronic pain suffers of this nation, the government has waged a "War On Drugs" for over forty years and the primary loosers were the people of this country that suffer from cronic pai every day and can not get the medication they need to fight it.  Not...

    RHMLucky777

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      It is refreshing that someone has finially realized the travisty that has been brought upon the cronic pain suffers of this nation, the government has waged a "War On Drugs" for over forty years and the primary loosers were the people of this country that suffer from cronic pai every day and can not get the medication they need to fight it.  Not that the medication is not available as in some third world countries but because the government has mis-used their power and created an atmosphere where even the doctors that should be more concerned with the wellfair of their patients are more worried about themselves being arrested and charged with drug trafficing.  Meanwhile poeple like myself and many others go through each day suffering needlessly, if the government of this land were more concerned with the well being of its citizens instead of fighting an unwinable war against its own people then we would be able to get the medication that we need and perhaps be able to live a life free from pain.  Now wouldn't that be a refreshing change.

    • Little Mo
      Apr. 15, 2010

      I am amazed at some of these comments regarding their Doctors.  Maybe it is because I live in Canada, but I have never (and I am 78) come across a Doctor in this country, who has not been sincere in assisting me in overcome whatever pain I was going through at the time.  My last episode was for pain in my legs due to degenerative disk disease. ...

      RHMLucky777

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      I am amazed at some of these comments regarding their Doctors.  Maybe it is because I live in Canada, but I have never (and I am 78) come across a Doctor in this country, who has not been sincere in assisting me in overcome whatever pain I was going through at the time.  My last episode was for pain in my legs due to degenerative disk disease.  He immediately gave me two sets of pills and for the first time in months, slept through the night and have never had pain since. I discussed with him as to whether I would need to increase the dosage in time, and he said just let him know when I was getting pain again and we would discuss how to manage it.

       

      When I was in hospital last year for removal of a gallbladder, I was in extreme pain afterwards.  The nurses and Doctors assisted me in any way they could including controlling the pain, BUT I did learn one thing.

       

      If I had to continue with that extreme pain, without assistance for the Doctors, I would have said  YES to anybody that would have offered me POT.  I have never smoked in my life but I would have done under those circumstances.

       

      In all the comments I have read this morning there has not been one mention as to how marijuana (if that is how you spell it) could help people in extreme pain when nothing else worked.  Why is it that we and you down the States, not fighting that issue.   Pot is no worse and no less than cigarettes and  alcohol. It is giving relief to thousands who have been able to get it legally through their Doctors and from what I have read, they are blessing the day that it came into their lives.   Why are we not relieving serious pain in this way when there is so many being litterally tortured by the pain they are going through.  Does anybody know?   Does Pot relieve pain in the way it is reported.

       

      That all being said, I am very happy with my Doctor and Doctors in the past but if I had not been, I would have changed him/her in the blink of an eye. 

  • CurtinColorado
    Apr. 10, 2010

    I hope this post is the start of a movement to take back control of our pain treatment from the DEA.  I've been undertreated for my pain for over ten years due to doctor's reluctance to risk the wrath of our government - the government who is charged with our health and safety.  I totally understand that each doctor wants to keep practicing medicine...

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    I hope this post is the start of a movement to take back control of our pain treatment from the DEA.  I've been undertreated for my pain for over ten years due to doctor's reluctance to risk the wrath of our government - the government who is charged with our health and safety.  I totally understand that each doctor wants to keep practicing medicine - their livelyhood.  Not only are we undertreated with the amount of medication we are prescribed, but it's also difficult to even find a doctor willing to treat chronic pain patients.

     

    The other area where we are undertreated is in the world of chronic fatigue.  Stimulents such as Adderall have only been tested on 6 - 12 year old patients and the FDA recommended dosages are far too low for most adults.  My doctors have been unwilling to prescribe a therapeutic amount of medication because they are so frightened of the DEA.  And, I'm sure there are other maladies that are also undertreated.  We patients need a strong voice to ensure we are treated properly.    It's time to stop living in pain and fatigue because our doctors have been intimidated by OUR government!!!!

    • pamfry
      Apr. 11, 2010

      I have been taking Oxycontin 20 mg. 3 times a day for 5 years. I have built up a tolerance now. And have asked my doctor to raise the dosage," he tells me that if he was taken the amount of pain meds you take I would be flat on my back". He is not me and does not have my pain.

       

      Ten years ago I started going to a pain clinic, they had me so grugged...

      RHMLucky777

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      I have been taking Oxycontin 20 mg. 3 times a day for 5 years. I have built up a tolerance now. And have asked my doctor to raise the dosage," he tells me that if he was taken the amount of pain meds you take I would be flat on my back". He is not me and does not have my pain.

       

      Ten years ago I started going to a pain clinic, they had me so grugged I did'nt know my name! 80mg. Oxycontin 4 times aday. When I changed Doctors(the one I have now) he sent me to a pain clinic that got me down to the does I am on now. I have begged my current Dr. to send me back to the pain clinic, he just wont do it. I think he knows my tolerance level after 5 years, and doesn't want the pain clinic to go against him and prescibe a higher does. I don't know what I'm going to do. It is starting to become an emerency situation.

       

      If anyone has any ideas let me know

    • CurtinColorado
      Apr. 11, 2010

      Good morning, Pamfry.

       

      I'm so sorry to read about your difficult situation.  Please know that you are not alone. Near the end of your post, you mentioned that your situation is becoming an emergency.  If your pain is getting out of control, then a trip to the ER might be a good idea.  The ER doc may be able to give you a little extra medication...

      RHMLucky777

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      Good morning, Pamfry.

       

      I'm so sorry to read about your difficult situation.  Please know that you are not alone. Near the end of your post, you mentioned that your situation is becoming an emergency.  If your pain is getting out of control, then a trip to the ER might be a good idea.  The ER doc may be able to give you a little extra medication to get you through the worst of the pain. He may also have some ideas on other pain treatments.

       

      For the long-term though, you may need to change doctors.  If your current doctor is a road block to getting the help you need, find a new one.  I know that switching doctors is hard because your current MD knows you so well.  I was forced to look for another doctor and I found a gem who referred me to a great pain doctor (an osteopath) who has really helped me - not with just medication but also with manipulation and acupuncture (spelling?).  I've read so many horror stories about people being under-treated for pain and I'm sorry you're in the same boat. 

       

      Best of luck and keep posting here.  There are many people on this site who have great ideas that may help you.

       

      Cheers.

    • Linda
      Apr. 11, 2010

      Pamfry,

       I totaly agree with C.C., it does suck to change Docs, but if you have to, do it. Also the Emergency room i agree with as well, If it is the money, or lack of insurance you cannot be turned away!!!! atleast you will get some relief and hopefully the E.R. doc might have someone whom he/she can recommend for you to see so you get the help you need.......

      RHMLucky777

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      Pamfry,

       I totaly agree with C.C., it does suck to change Docs, but if you have to, do it. Also the Emergency room i agree with as well, If it is the money, or lack of insurance you cannot be turned away!!!! atleast you will get some relief and hopefully the E.R. doc might have someone whom he/she can recommend for you to see so you get the help you need.... very sorry for your situation.. my heart goes out to you.         Linda

    • Amanda
      Apr. 12, 2010

      Unfortunately, chronic pain patients are at the mercy of their doctor. I can see why many would think going to the ER is a good idea but in reality (or my own experience) the doctor is either going to give you a small amount of the same pain meds you're already getting because they feel uncomfortable prescribing anything stronger, and recommend that you...

      RHMLucky777

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      Unfortunately, chronic pain patients are at the mercy of their doctor. I can see why many would think going to the ER is a good idea but in reality (or my own experience) the doctor is either going to give you a small amount of the same pain meds you're already getting because they feel uncomfortable prescribing anything stronger, and recommend that you follow up with your Primary Care, or they won't give you any additional pain meds because they know you already have a prescription once you explain your situation. You will have to tell the ER doctor what you're being prescribed now because if not, then you'll be given a script for about 20 basic 5 mg Vicodin or Percocet to get you through until you can see your PCP.

       

      As for changing doctors, this too is easier said than done. Maybe it's because of where I live (Massachusetts) and the state has strict DEA laws but you can't easily doctor shop. I've been having a difficult time with my doctor and getting a referral to see a rhuematologist about Fibromyalgia so I thought about changing doctors. I thought it would be simple enough to transfer my records and at least get the same meds and treatments as I do now; my chronic pain issues and pain clinic visits are all documented and go back 10+ years. When I began calling physicians that specialize in chronic pain, one of the very first things I was told by many different office staffs is that the doctor will not prescribe pain medication. Even after I explained that I already had a prescription for it, I was again told that their doctor wouldn't prescribe it to me. In short, I'm still seeing the same doctor I've always seen out of fear that if I switch, I will have to start back at square 1, where I was 10 years ago when it all started for me.

       

      There aren't any easy solutions, or any solutions that I have found anyway. Those of us living in chronic pain on a daily basis are in our own private hell that NO ONE else can relate to unless they live it. I think we all wish that our doctors could live one week feeling the way we do, and I bet that getting a prescription would't be the equivalent of jumping through hoops of fire.  

    • Skye
      Apr. 16, 2010

      My ER turned me down flat as they now have a no opiate for even greatly increased "chronic pain".

      Going to a different doctor after no help from a clinic that mis-diagnosed me for months didn't help as my "medical records" followed me with out-right lies about my behavior. They misdiagnosed me for months and wrote numerous notes about my drug seeking...

      RHMLucky777

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      My ER turned me down flat as they now have a no opiate for even greatly increased "chronic pain".

      Going to a different doctor after no help from a clinic that mis-diagnosed me for months didn't help as my "medical records" followed me with out-right lies about my behavior. They misdiagnosed me for months and wrote numerous notes about my drug seeking behavior and addiction to "several painkillers" when I didn't even have access to any and an impinged nerve in my neck!(besides all the other"junk" that I have. Those records are hard to explain to any new doctor whom has not established the honesty of your relationship.

      I am too tired from this pain and frustrated about the whole pain/no drug debate that I am too tired to fight so please, don't kindly suggest that I do. Sorry.

      Skye

    • craig
      Apr. 14, 2010

      my wife has had rsd   for about 2 years, there is no cure but to control the pain, anyway you can ,or do something bad to yourself or others. find a new doctor now do not waite yours knows nothing about pain he has never had pain and doesn't care ! where do you live? find a pain clinic now and get the meds you need!!

    • Steven Thorne
      Apr. 15, 2010

      Ive been in pain to many years of my life.for the last ten years or so been in pain management.i was at a point that my pain was bare able when they stopped my medicine and started a knew one.Was lied to why.his/her excuse was that my insurance wouldn't cover it no more after two plus years on it.Dint really care just want pain free.so was prescribed 2 instead...

      RHMLucky777

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      Ive been in pain to many years of my life.for the last ten years or so been in pain management.i was at a point that my pain was bare able when they stopped my medicine and started a knew one.Was lied to why.his/her excuse was that my insurance wouldn't cover it no more after two plus years on it.Dint really care just want pain free.so was prescribed 2 instead of one prescriptions.now being on these for a long time not working as well as used to.actually not at all sometimes.so when i told them he said he wanted to stop them all together.and urine test every month fort past 6 months.worried if change Dr's it will be harder for pain management.hard enough living with pain and then he tells me he wants me to stop my med all at once.

       

    • Wainzwhirled
      Apr. 15, 2010

      I have ran into the same problem twice now.  I simply went back to the receptionist and told them I wanted a different doctor.  I never cease to be amazed by the lack of competence of some doctors and I won't let myself get stuck with one those idiots.  On the other hand, most pain management doctors are very considerate of your condition and...

      RHMLucky777

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      I have ran into the same problem twice now.  I simply went back to the receptionist and told them I wanted a different doctor.  I never cease to be amazed by the lack of competence of some doctors and I won't let myself get stuck with one those idiots.  On the other hand, most pain management doctors are very considerate of your condition and won't hesitate to increase your level of opiates.  I have to assume that, for some reason you can't change doctors.  Well, there are other pain management techniques and many books (Managing Pain Before it Manages You) that can help you - self massage - physical therapy - mental control - spinal implants - TENS - etc.  BUT ULTIMATELY, YOU HAVE TO GET RID OF THAT DOCTOR!  There are good ones out there - really.

    • corlaw
      Apr. 16, 2010

      why cant you just have referral from specialist whom diagnosed you in the first place and have him or her refer you back to pain clinic minus the new doc.....

    • Skye
      Apr. 16, 2010

      I am not certain that your pain clinic will still give you an increase in dosage. My clinic used to give me fentanyl patches, percocet and keep me grogged up too. Now they won't even dispense even tramadol to chronic pain patients especially if part of your Dx is Fibro!

      The comment your doctor made about your dose of medicine laying him flat, is true.

      If I...

      RHMLucky777

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      I am not certain that your pain clinic will still give you an increase in dosage. My clinic used to give me fentanyl patches, percocet and keep me grogged up too. Now they won't even dispense even tramadol to chronic pain patients especially if part of your Dx is Fibro!

      The comment your doctor made about your dose of medicine laying him flat, is true.

      If I have a great deal of pain, it takes a greater amount of medication to even feel  pain relief...you don't need enough to feel "high". I certainly don't when given an adjusted and carefully monitored dosage.

      Hope things get better.

      Skye

    • paranormalresearch
      Apr. 13, 2010

      I have been in chronic pain for over 10 years. I have migraines and just now FINALLY being diagnosed with Lupus. It has gone on for so long I do not know how many organs have been effected. My bones hurt so bad and are swollen and deformed and still I have problems getting even tramadol.... My doctor left so now I have to start all over again. I have been to...

      RHMLucky777

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      I have been in chronic pain for over 10 years. I have migraines and just now FINALLY being diagnosed with Lupus. It has gone on for so long I do not know how many organs have been effected. My bones hurt so bad and are swollen and deformed and still I have problems getting even tramadol.... My doctor left so now I have to start all over again. I have been to 1 doc who would not give me anything period even though she saw my mri. My spine is deterating due to the Lupus and I have a cyst. I can barley walk and still no dice. I am a drug seeker!  I have a new app in 2 weeks and hoping this doc has a brain in her head. Mean while in 2 days I visit a rhumatoligist for the fist time and am praying at the very least for some tramadol. Some days I just want to die. I am so tired of being looked at like a drug abuser. I have offered to pee in a cup, sign what ever they want and still nothing. I hate starting over with new doctors. It is so hard.

       

      Good luck to you all and send me good vibes.

    • Steven Thorne
      Apr. 15, 2010

      I know the feeling,sorry to say.I was burglarized and out of everything they took my pain meds were included.Just had them filled two days prior.My Dr said no refills and he had all control over every one not to refill my prescriptions.I ended uip in the emergency ward for 7 hrs and the gave me scripts for 30 days.Myt Dr said he wouldnt refill but to do whatever...

      RHMLucky777

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      I know the feeling,sorry to say.I was burglarized and out of everything they took my pain meds were included.Just had them filled two days prior.My Dr said no refills and he had all control over every one not to refill my prescriptions.I ended uip in the emergency ward for 7 hrs and the gave me scripts for 30 days.Myt Dr said he wouldnt refill but to do whatever I could to get meds.I wonder how far he wanted me to go.ever since that episode he urine test me every month and questions me about be a drug addict and says he wants to stop my prescriptions.Dont know what to do if he does.I signed my rights and life away to this Dr having trust in him.Hate to say but its going to get worse berfore it gets better.

      peace and love

      Steve

    • jason crist
      Apr. 25, 2010

      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its...

      RHMLucky777

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      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its been 3 months without pain meds from a doctor so I am centen they feel I dont need them. I have been waiting for the "smoke to clear" medical records to be shuffeled around and for the present pain clinic to make there minds up if they will take me, in the mean time the dope dealers are getting rich!  In my eyes pain clinics and pain doctors are like snake oil peddelers from the past if they dont like you dont get anything the goverment and the doctors..... who works for who I wonder freedom,free country free choice ya right,? Jason crist

    • jason crist
      Apr. 25, 2010

      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its...

      RHMLucky777

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      I understand what you going though. I am in the the process of finding a new doctor myself, and I starting to wonder what is written in my records. I feel like I am going to the court house instead of the doctors office.I wish I was able to drug test all the doctors I have been to in the past and ask for all the medical records, wonder what we would find! Its been 3 months without pain meds from a doctor so I am centen they feel I dont need them. I have been waiting for the "smoke to clear" medical records to be shuffeled around and for the present pain clinic to make there minds up if they will take me, in the mean time the dope dealers are getting rich!  In my eyes pain clinics and pain doctors are like snake oil peddelers from the past if they dont like you dont get anything the goverment and the doctors..... who works for who I wonder freedom,free country free choice ya right,? Jason crist

    • Anonymous
      ReeReeberry1
      Aug. 24, 2010

      I hear you and I'm sick and tiered of the goverment and the right they think they should hold on us for what they do/not feel as a chronic pain suffer myself. I'm so tiered and want to go postal on the Social Security and goverment. and have many times wanted to stand out side the white house steps and protest but I'm to sick to do so. 

    • Anonymous
      a
      Jan. 30, 2012

      the dea has created a epidemic and violated my civil and constitutional rights not to mention HIPPA and ADA plus as good doctors are attacked despite  Chronic Pain Act that is suppose to protect them but demands for enforcement are not heard so as the Medical Board In Arkansas has elimanated every single pain clinic or terrifed doctors to not prescribe...

      RHMLucky777

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      the dea has created a epidemic and violated my civil and constitutional rights not to mention HIPPA and ADA plus as good doctors are attacked despite  Chronic Pain Act that is suppose to protect them but demands for enforcement are not heard so as the Medical Board In Arkansas has elimanated every single pain clinic or terrifed doctors to not prescribe pain medication Thousands of Chronic Pain patients are suffering, forced to go on disability and commit suicide all from this epidemic that provides job security to dea agents. Since the war on Doctors, Pain Clinics or pill mills are the only placce to get pain medication if you can find one. They demand cash up front and cut back your medication. As for drug diversion, the dealers who have unlimited networking and tons of money have no problems finding doctors, and are not in pain that caused them to be homebound and unable to function. The chronic pain patients get there meds cut to justify pill mills prescribing to those who slip them extra money. After the 2 hour drive to this pill mill, my exam for $100 cash amounts to being checked for track marks and screw any medical problems I have just sit while the doctor writes script, then when I get kicked out for going to the ER for pnemonia treatment, (NO Narcotics just antiboitics) but without even getting a report accused of violateing drug contract, now am forced to illegal sources of drugs while watching everything in my life fall apart and when I can't afford the outrageous prices for illegal meds, I'll probably end up killing myself before living in unbearable pain so once again supporting the DEAs reasons for WAR on Drugs. As for drug diversion, I have first hand knowledge of any drugs that are taken by law enforcement being diverted right bacck to the streets after evidence is no longer needed. My dad use to deal for the Sheriff in our local town and if you look at crime rates in countries where drugs are minor offense or legal, THERE IS NO CRIME. sO HOW IS THE dea AND MEDICAL BOARDS GETTING AWAY WITH THIS ILLEGAL ACTION AND NO ONE DOING ANYTHING. A NATIONWIDE CIVIL ACTION NEEDS TO BE STARTED AND ONE GOOD LAWYER NEEDS TO STEP UP AND SUE. wITHOUT CONSEQUENCES FOR THERE ACTIONS THEY WILL NEVER STOP AND SINCE THE WAR ON DRUGS IS ABOUT NOTHING BUT MONEY AND BRIBES, A CIVIL ACTION HIGHLY PUBLICIZED JURY TRIAL WITH BILLIONS OF DOLLARS AWARDED NO SETTLEMENT BEHIND CLOSED DOORS. That is the only way to stop this insantiy and all it will take is one highly publicized win for all ambulance chasers to get in the game and start suing the medical board, dea and each person involved in this insane attack on pain patients and doctors. If they face consequences for there actions, they will think twice before continuing. Some attorney needs to step up and take this just cause on. I've contacted the ACLU and hope to hear something from them within a month but others need to do the same and anyone who has a friend that is a lawyer please get them to fight for our rights. Right now you cannot get to a pain clinic wihthin 100 miles of Arkansas. My last doctor only had 4 patients with chronic pain and was run out of town. Meanwhile the doctors that deserve to have there license suspended like the quacks that caused my chronic pain, are not even investigated because all resources of the medical boards are tied up with attacking pain doctors. And despite there own laws saying a doctor cannot abandon a patient, when they shut down a doctor leaving 250 patients in Chronic pain and withdrawl from high doses of medications and you ask them to recommend a pain doctor, they refuse to help, and when the doctor is shut down all your medical records dissapear, no referral, no proof of treatment and the medical board in arkansas won't even listen to pain patients in the hearing where 50 patients showed to speak for our doctor, the chairman publically stated, "we can't let them cloud the issue, there is nothing that can be done for them anyway. Well My life was fine being out of pain for the first time in 20 years and now my health, my finances and my home are destroyed with no medical care and pain unmanaged over a year now. I've taken the same dose of pain medication for 4 years and only needed increase when the new formula oxycontin did not work as well also my ADD medication is not being prescribed and can't afford 3 doctors a month to take care of mediall my medical problems that were being well managed by my GP  who also acted as my shrink giving me someone to talk to now depressionand hopelessness with relationship and friends gone due to not being a nice person when in pain and hiding from everyone, and only reason I even get out of bed is my wolf who is my baby and now she is sick and I am failing her with no pain medication I barely give her insullin and thyroid nd can't even take her for walks everyday so when I cause her death, the dea will be able to add me to the statistics of people who died of overdose.   so someone needs to step up now before its too late.

    • Anonymous
      Anon13
      Apr. 25, 2013

      Hey there. I realize this is old thread,but your story touched me, as did all.

      I so identify with you. Today was real bad day with new pain dr. and i'm sick and tired of being sick and tired. He took my breakthrough meds away after 10 years. There is no quality of life and i'm not feeling sorry for myself. It's just that I'm so weary on this journey of advocating...

      RHMLucky777

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      Hey there. I realize this is old thread,but your story touched me, as did all.

      I so identify with you. Today was real bad day with new pain dr. and i'm sick and tired of being sick and tired. He took my breakthrough meds away after 10 years. There is no quality of life and i'm not feeling sorry for myself. It's just that I'm so weary on this journey of advocating to be treated humanely.

      You and the initial poster are correct. Nothing short of class action law suit and lobbying is going to aid us.

      I've been multiplied disabled for 20+yrs and about 10yeaars in my then husband(he's divorcing me after 21 yrs b/c of my health) caught me climbing out a 2nd story window to jump. No longer could i tolerate the ever present pain. This was after 7 surgeries on limbar.

      Currently have 40 degree slippage of L2/3, bi-lateral hip dysplasia, 3 bone spurs on brain stem and C6/7 completely gone. The listed issues are in addition to all pain stemming from the 7 surgeries.

      I'm ready for street drugs or i just don't know. I've been an activist for several years. Ido this so i don't lie in bed feeling sorry for self. Now,as of late, unable to help anyone else.

      Please write me. Reading your post actually gave me relief/hop>I'm not alone.

      Blessings and peace to all who pass here.

      X

    • mandyway57
      Nov. 07, 2013

      I want to do whatever i can to help all of us. I am particularly interested in what one post said about finding a lawyer to take this on and that he had been in contact with the ACLU. 

    • Anonymous
      Doc ForthePeople
      Nov. 07, 2013

      Did you ever hear from ACLU? Are the chairman's remarks documented somewhere so that they can be used as evidence? May be very helpful if they are recorded in writing or on tape. Or if they are not recorded are there other people that can corroborate that the chairman of the Arkansas Medical Board said what he said?