fibromyalgia and profused sweating.

By Mariepi Thursday, July 09, 2009

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Hope to find help or undesrtanding.

I was diagnosed with fibromyalgia a while ago, had try everything new to get at it to only fail and have some bad reactions from the new meds on the market.

I am at my wits end, I perspire so badly( sorry, women glows, not me I sweat), that none of the usual treatments can help me. I have generalized perspiration, starting at the top of my head going down my torso and my legs. Bad enough to make it impossible to put jeans on because of the wetness. I am fine with underarm, feet and hands, those are okay. I had all the tests done for glandular problems, thyroid is okay with meds, I must be the only hypo sweating. Adrenals are fine...I am over 65 and should be done with menopause, was taking hormonal supp for years and still on a very low dosage about .365 very 3 days trying to cut it completely but can't. I have been sweating that way for over 8 years , having spells of drippings 3-4 times a day, summer is a bummer. cant even think it makes me sweat and this summer is not hot yet. I do have nights sweat too. Strangely enough I don't sweat when I am in public or when I nervous it is only when I moved and sometimes think. Crazy....??

I had to stop walking because I get so wet and my face burns for days, in winter I freeze. When I start to walk or exercise and get in that state ( everytimes ) my muscles get crampy and sore I have to stop. The result of that is putting pounds on me, I am getting fat, I need to move to keep my metabolism working.

Can't get ahead of myself that way. It makes my life miserable. It's not enough having all that pain I have to sweat like a old horse forced to run.

Are there other fibromites with that problem and if so what do you do to live with it without becoming crazy.

Obesity Linked to Increased Risk for Fibromyalgia !!!

Comments (10) | Add comment

David1ray1@hotmail.com

7/ 9/09 6:41pm

Hi I just read your story and am wondering if you have tried any meds for it. I take methadone for chronic pain and when I started on it the sweating was so bad coming from the head and then everywhere. My Pain Dr. gave me Robinul or the generic name is called Glycopyrrolate. Comes in 1 and 2 mgs. You have to build it up in the system and then back off or you will dry out too much. I think the medication is actually for ulcers or intestinal stuff but I have no side effects from it at all except it stops my sweats. I usually dont have to take it everyday now since its built up. Maybe you can ask your Dr. to let you try this and see if it works for your sweats providing it wont interferre with anything else your taking or medically wise. Just wanted to pass this on and hope it works for you...take care David

Mariepi

7/10/09 10:28am

Thanks for reading and replying. I did try these meds but it was drying my inside not the sweat on the skin. It's why I am at my wits end.

Marie

Anonymous

7/13/09 6:40pm

,,,Sorry,but i don't have much pain except in my hips,but when i go to a store or out i start sweating at the head before i leave the store or grocery store my shirt is so wet you can see it my face,neck i'm so imbaressed,,i think mine is because of some of my medicine,i'm not going thru the change i'm over 70,me

Mariepi

7/13/09 10:21pm

Gee....I am just a couple of years younger, don't tell me I'll never get over the change of life .....Oh men-o-pause!!!

Anonymous

7/14/09 5:20pm

Thanks,i'm at the men pause stage,but not menapuse,i had 9 children..so i think some times i have about had it,ha,me

Stillsearchingforrelief

7/25/09 2:14am

Try using a migraine ice patch in various spots on your body. You can hide them under your clothes. That helps me a lot. Mine are still hot flashes, and I had a horrible June this year with them. The doc up'd my hormone dose for the summer only.

I have not officially been diagnosed with fibro yet, but my doc has said he suspects that's what I have.

BethKoe

9/ 2/10 6:17am

No you are not alone. I sweat so bad I hate getting dressed. If I do any kind of moving, cleaning, dishes, heck just watching TV I sweat. My head starts and my hair gets soaked, so that looks like crap. then it moves to my back and front. I use clinical strength DO under my arms and regular DO else were. so I am fine there. Every time I go out to eat with my Hubby I have to put my hair into a pony tail, and I still sweat. which isn't good. I try to look my best when we go out but what can I do. I do the ice pack and cold towels. any ideas??? thanks

Mariepi

9/ 2/10 10:45pm

I do sweat from the head down, I am okay in the arm pits and hands but my back runs like white water. In winter to be able to go for a walk I place a towel in my back, I do the same all year round. I am so tired of it. My Dr prescribed me clonidine, It helps a bit but not much. The drs accuse my pain meds but I started that before taking the pain meds.

I do ice pack too. I used a bandanna for people who work outside You place it in cold water,the gel fills with it and last a long time but it's good only when no one are around it's not very fashionable, but works. It doesn't last long cause it takes a yucky smell after few uses ,I guess my body react with the gel.

If that can help you, it worth's to try

Sunshine

9/18/10 8:59pm

I have had this severe sweating over 12 years, getting very tired of this. My quality of life is declining, pain is increasing since md's trying different meds. Been tested for acromegaly, neg. All my labs normal, blood glucose great, Hgb a1c last time 5.3 which is excellent. Told I could have prediabetes but have not been told why. I am a retired nurse of 64. I am printing this site for my NEW primary care md. Hope it will help. I have several thoughts on the issue. It seems no one knows what to do with us. It is very discouraging. If I get anywhere with my follow ups in near future will post info. There is a need for treatment for us.

Mariepi

9/18/10 10:39pm

I sweat with you. Fibro can do that. I am hypothyroid on meds and I sweat, hyppo is not supposed, they are all the time cold, me before fibro.

Karen posted this goodnighties

Goodnighties Recovery Sleepwear: A Product Review

http://www.healthcentral.com/chronic-pain/c/5949/114652/

I have not try it yet but Karen did and love the product .

I have this problem, my thermostat is broken and have none of the markers for other stuff. It makes me mad. I sweat thinking about doing a call I don't know why using the phone does that to me.....I go out with a towel in my back so it is more comfortable.

Fibro is one of these little gremlin that finds ways to make our lives miserable. Don't let iy define you.

Mariepi

fibromyalgia and profused sweating.

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