Questions regarding Morphine Pump

Dr Mike Community Member March 22, 2007
  • I have had 6 major back surgeries. Presently have the Medtronic Simulator. It is not working. Thinking about the MP. Does the morphine cause you to have that drunk feeling. I take 60mg a day orally and 4 vicodin 10/325. I hope with the MP it will reduce the vicodin. What are your thoughts?
37 Comments
  • Anonymous
    George Bolis
    Nov. 06, 2010

    I have since about 1978.  I am presently medically retired from the US Navy because of the severity of pain I suffer on a daily basis.  I have done everything from spine surgery, use of a T.N.S. unit, epidermal injections, chiropractor and acupuncture with little to no results.  I am presently taking 60 mg of S/R morphine twice a day along...

    RHMLucky777

    Read More

    I have since about 1978.  I am presently medically retired from the US Navy because of the severity of pain I suffer on a daily basis.  I have done everything from spine surgery, use of a T.N.S. unit, epidermal injections, chiropractor and acupuncture with little to no results.  I am presently taking 60 mg of S/R morphine twice a day along with 30-45 mg of I/R morphine once to twice daily and still suffer with pain daily.  I have numbness down my leg causing me to loose control and fall.  I also suffer incontinence and impotency.  I have been looking in to laser spine surgery, but it is not 100% and my fail share will cost me $10,000 had sever back problems. What would you suggest?

     

    George T. Bolis

  • Gen
    Gen
    Oct. 19, 2010

    How does the testing go for a morpine pump?

  • worried
    Aug. 17, 2010

    Hi, I got the pump about a year ago and now I have lots of problems with my gut and stomach............they dont work right. and everyone is telling me its the morphine is it?.............

  • Anonymous
    Brad Welton
    Oct. 02, 2007

      I was just wondering about refills for the pump. How often do you need to refill the pumps, say 2 to 3 years out from 1st starting up on the pump.  Someone recommended that for 2 years, monthly refills are appropriate, then for 2 more years, refill every 45 days, then every 60 days for the next 2 years, then every 90 days for the years thereafter. Is...

    RHMLucky777

    Read More

      I was just wondering about refills for the pump. How often do you need to refill the pumps, say 2 to 3 years out from 1st starting up on the pump.  Someone recommended that for 2 years, monthly refills are appropriate, then for 2 more years, refill every 45 days, then every 60 days for the next 2 years, then every 90 days for the years thereafter. Is this really viable from people's experience?

     

    Thanks for any input.

  • betty deaderick
    Sep. 23, 2007
    hi i have a medtronics spine stimulator in me but it has not worked for me either! i just went through a 3 day trial with the morphine pump and it worked! i am going in this wes to have it put in perm! so yes i have a fracture of my spine and 3 bad discs and have been searching and trying out pills patches shots stimulators and i believe i have finally found...
    RHMLucky777
    Read More
    hi i have a medtronics spine stimulator in me but it has not worked for me either! i just went through a 3 day trial with the morphine pump and it worked! i am going in this wes to have it put in perm! so yes i have a fracture of my spine and 3 bad discs and have been searching and trying out pills patches shots stimulators and i believe i have finally found a way to control my pain and live a better life ! i would recommend this pump to anyone who has tryed as i did or is trying to relieve back pain! thanks betty deaderick
  • Anonymous
    illinois
    Aug. 31, 2007
    I have been suffering with this for 4 years now. I have  tried lots of meds. {side effects were horriable} Im wondering if i should try this ? Any feedback will be greatly appriciated.  Thanks, In Pain in ~Illinois~
  • medicfl1
    Aug. 15, 2007

    Morphine/fentora/fentenyl has not made me feel any side affects.

    The Fentora was useless so i stopped it and went back to the percocet 10/325.

     

    I wear the duragesic patches; 3 of them total 300mcg or 30 mg an hour.

     

    Your body gets so used to this stuff so quick that i doubt that anything could get me high or "drunk" as you say.

     

    I utilize...

    RHMLucky777

    Read More

    Morphine/fentora/fentenyl has not made me feel any side affects.

    The Fentora was useless so i stopped it and went back to the percocet 10/325.

     

    I wear the duragesic patches; 3 of them total 300mcg or 30 mg an hour.

     

    Your body gets so used to this stuff so quick that i doubt that anything could get me high or "drunk" as you say.

     

    I utilize about 200 plus percocets a month for BTP (break thru pain).

     

    I want to kill myself after 10 min. of sitting. The knawing at my back and left side is un bearable.

     

    I had major surgery only after about seven years of swallowing entire 500 count  motrins.

     

    I had to work, there was NO question about it; a mortgage, child support,life costs etc.

     

    I don't know what you call major sugery but after all the little procedures/surgeries I had 3 lamies and 4 way fusion. L3/L4 L5/S1

     

    That was, for me the worst I could have done.

     

    My vertebre were no longer "inline" fusion only locked them there----plus I now have Siatica and worsening anterior left thigh/femur numbness and tingleing with a rare jolt og spike pain.

     

    Sadely any drug that does work for you , your body will get "used to" or tolerant of.

     

    What I/we need is something to kill the nerves but my dr says that there is no guar. that muscle nerve damage/usage will not occur.

     

    Reguardless i will have to do it just before suicide as no one can live like this for long.

     

    So far..seven years of procedures for me.

     

    I won't even go into the total knee replacement i had, s/p years of other treatments.

     

    TRY you pain meds if they upset you , you can always go back. Just remember you will get used to them.

    • Bill
      Aug. 30, 2007

      Hi, I don't mean to butt in ... however I had RFA Radio frequency oblation that was supposed to stop the nerve pain going down my leg from an entrapped fascet joint opening.  It "helped" but didn't remove entirerly for 4-6 months and then the nerves re-grew or re-routed and the pain was back.  I am headed for a medtronics itrathecal...

      RHMLucky777

      Read More

      Hi, I don't mean to butt in ... however I had RFA Radio frequency oblation that was supposed to stop the nerve pain going down my leg from an entrapped fascet joint opening.  It "helped" but didn't remove entirerly for 4-6 months and then the nerves re-grew or re-routed and the pain was back.  I am headed for a medtronics itrathecal pain pump.

      I know a couple of other folks at the pain center I go to who had RFA.  One has been very pleased, two others had an experience like me.

      peace, bill

  • Anonymous
    Teri C
    Jul. 26, 2007

    In Oct '06 I was fighting a gi infection of e-coli.  As I ended the Rx of anti-biodics I woke up one morning and couldn't feel my legs. I was diagnosed with Guillian-Barre Syndrome and was given IVIG therapy for 2 days.  At that time I contracted Aseptic Meningitis and the IVIG stopped.  Once the A.M. ended a new neurologist took over...

    RHMLucky777

    Read More

    In Oct '06 I was fighting a gi infection of e-coli.  As I ended the Rx of anti-biodics I woke up one morning and couldn't feel my legs. I was diagnosed with Guillian-Barre Syndrome and was given IVIG therapy for 2 days.  At that time I contracted Aseptic Meningitis and the IVIG stopped.  Once the A.M. ended a new neurologist took over my case and decided not to give me the last 3 doses of IVIG.  After 9 days in the hospital I was released.  I spent 2 months in my home regaining some feeling in my legs, but not all.  The nerve damage was severe.  I learned to walk again with the use of a walker.  Still, I couldn't go very long distances with a walker so I had to get an electric wheelchair. I went back to work in Jan '07 and found myself back in the ER on the evening after my first day back to work. From there my neurologist decided only to let me continue on 1/2 time. I finished out the school year (I am a teacher) working 11am-2:20pm, 4 days a week (I only could work 48 hours and then had to have 24 hours rest before I could work again. I took Wednesdays off.)

    Now, July 26th 2007, I have tried various (by which I mean 15+?)medications to control my nerve pain.  You cannot touch my legs.  The pain is excruciating.  I take 80mg Oxycontin twice a day and then take up to 80mg of percocet (10/325) a day, as well.  I also am diabetic and take lantus and metformin.  I have recently started trileptal, which definitely does help with the pain, but I still need the narcotics.  I also gained severe panic attacks when the pain would get so bad, so I take .10g of Xanex when needed (usually one does every 3 or 4 days, albeit sometimes daily.) I also take 100mg of Nortryptaline at bedtime and 60mg of Cymbalta, as well.

     

    A new school year is ready to start.  I can't get through 3 hours w/o a nap as I am fatigued so easily.  My oxycontin is taken at 6am and 6pm.  By 3pm my pain increases dramatically.  I have 3 more hours to wait to take the pill.  That's when the use of the percocet comes into play, and why I have to use so much.  Same in the a.m. when I wake up at 6am I am already in pain so I must take the oxycontin AND percocet to help the pain subside until the oxycontin kicks in which can take up to THREE hours at times.

     

    I just saw a Neurologist at the UW Medical Center, via referral of my neurologist and both believe that this severe pain in my legs is permanent.  Also, both think a pump could be beneficial.

     

    When I called the pain clinic back to get scheduled for a visit the nurse was very abrupt and was telling me that "these pumps just aren't given out to everyone" and "Just because you want it, doesn't mean you'll get it."  I told her that taking so many oral meds is really an issue, they don't take care of the pain, I spike all day long, and I want to go back to school (work) and have some sort of a life that isn't dictated by a pill schedule!!

     

    This pain controls my life.  I find myself spending so much time on the couch instead of actually DOING things.  I am an avid sports player and since the GBS I understand I won't be playing sports again.  However, with these pills I always seem to be "waiting" for something to kick in so I can be at least partially normal and participate in life.

     

    What are your thoughts about me being a candidate for the pain pump?  From what I read, it seems that people get back more of their "normal" life.  Or at least more than they did when tied down to relying on pills to control the pain.

     

    Should I be seeing someone else? Am I not explaining myself?  AFter 9 months, can't someone control my pain? I just feel like I am a chicken running around with my head cut off.

     

    Any feedback is appreciated.

     

    Teri Campbell

    • Mattsmon
      Aug. 18, 2007
      I have just joined this site, so forgive me if this is old news and you have already gotten the pump.  Sounds to me like you need a new set of doctors first!  I have a similar story to yours and most readers and was fortunate enough to receive a pump in 2003.  The trial I had was overnight in the hospital which I will tell you is NOT sufficient...
      RHMLucky777
      Read More
      I have just joined this site, so forgive me if this is old news and you have already gotten the pump.  Sounds to me like you need a new set of doctors first!  I have a similar story to yours and most readers and was fortunate enough to receive a pump in 2003.  The trial I had was overnight in the hospital which I will tell you is NOT sufficient enough---it should be longer.  I did get the pump and it is better than anything I have ever done.  It does not take away all of the pain and I expect nothing will, but it is much better than lying on a couch all day, unable to participate in your own life, as I'm sure you will agree by now.  FIND A BETTER SET OF PAIN MANAGEMENT DOCTORS AND NURSES!!  The doctor who had my pump placed was overcharging by 100% his fee every time I had a refill.  When we discovered this (accidentally) he dropped me as a patient and I had to scramble to find someone to fill my pump.  12 doctors turned me down  and only through a huge mistake by a nurse did I find a FABULOUS female anesthesiologist, whose main concern is to TREAT PAIN and not pad her bank account.  I thank God every day for her.  The drugs in the pump go directly into your spinal cord which eliminates the need for digestion from oral meds.  A very small amount is required, as opposed to oral meds and they will not dope you up.  What  is not well known in the public is that many studies have been done that prove chronic pain patients metabolize the drugs very differently than people who are just trying to get high.  Too bad they spoil it for the rest of us, trying to get the  theraputic amounts we need for good pain relief.  Be your own best advocate.....fight and scream until you get results...YOUR LIFE is so worth the effort and no one can do it as well as you can.....don't give up and don't give in!  Wishing you peace and good health!
    • annebeckett
      Aug. 27, 2007

      Teri;

      Now, I do know that this is an OLD post but, I did note that you're taking (or, were taking) trileptal.  Can you tell me more about it?  I just saw my neuro this morning and he asked me to try it.  I'm a bit more than nervous about this!

      So, if you are taking it, can you say how it works for you?  If you have stopped taking it,...

      RHMLucky777

      Read More

      Teri;

      Now, I do know that this is an OLD post but, I did note that you're taking (or, were taking) trileptal.  Can you tell me more about it?  I just saw my neuro this morning and he asked me to try it.  I'm a bit more than nervous about this!

      So, if you are taking it, can you say how it works for you?  If you have stopped taking it, what made you stop?

      How much were you using for pain?  My doc has prescribed only 75 mg, at night, to start.  After a few days, he wants me to up it to 150mg a nght.  Again, I am very nervous about this.

      Any advice you can give regarding this drug, specifically, would be most appreciated!  Anne

    • ElemenTeri
      Aug. 28, 2007

      Hi Anne!

       

      Trileptal was a Godsend, for me!!  I first took a 150/mg at breakfast and one at dinner.  2 days later, I could BARELY feel my pain.  I mean, no wheelchair, no walker at ALL.  It was like a miracle.  I did have a side effect.  I slept ALL the time and my eyes had a euphoric feeling..like what I was seeing may not...

      RHMLucky777

      Read More

      Hi Anne!

       

      Trileptal was a Godsend, for me!!  I first took a 150/mg at breakfast and one at dinner.  2 days later, I could BARELY feel my pain.  I mean, no wheelchair, no walker at ALL.  It was like a miracle.  I did have a side effect.  I slept ALL the time and my eyes had a euphoric feeling..like what I was seeing may not have really been there!

       

      After 2 weeks, the side effects were gone.  The pain remained covered.  About 2 months after starting Trileptal, I started to feel my pain again.  Not to the degree before, but definitely the first and last thing I thought about during a day. 

       

      I told my primary Doctor and she told me to go to two 150/mg tablets a day.  That is the max dose.  I didn't have any side effects this round.  The pain didn't realy subside all that much.

       

      Let me add though, I have been off all summer as I am a teacher.  So I am pretty much off my legs.  I just started back today, for teacher days, and the kids come next Wednesday, the 5th.  So after my first day, doing a full 7-3 job, I was home at 3:15 and decided to lie down for a nap. I got up at 6:45pm.  So after day 1, I can tell that my legs become stiff and my ankles, feet and hands are swollen.  I am taking it as the more I walk, the more the pain. 

       

      I wouldn't go back to life w/o Trileptal, either.  Gabapentin and Lyrica didn't do a THING for me.  Trileptal was the last resort.  When it worked, I was in dismay, to say the least.    It's now over 2 months and the pain is back, but at a 4, instead of a constant 6 (or more on work days.)

       

      If you have any other questions or would like to keep in contact as you begin this medicine I will be happy to help in any way I can!!  You can answer here or email me at elementeri @ hotmail dot com.

       

      Hugs,

      Teri C

    • annebeckett
      Aug. 28, 2007

      THANKS for that, Teri!

      Okay, after such a rave review, I will take my first (half of a) pill tonight.  I didn't want to try it last night as I had a doc's appointment this morning (and really like this new internist... first in a LONG time that I've liked any docs).. I was afraid of any residual effects, as noted on their precautions. ...

      RHMLucky777

      Read More

      THANKS for that, Teri!

      Okay, after such a rave review, I will take my first (half of a) pill tonight.  I didn't want to try it last night as I had a doc's appointment this morning (and really like this new internist... first in a LONG time that I've liked any docs).. I was afraid of any residual effects, as noted on their precautions.  So, okay;  I'll let you know how it works, if it works.  And, if I have further questions, I hope you don't mind my asking..

      Again, thanks for the help.  I'll be in touch soon!

      Anne

  • Anonymous
    Angi
    Jul. 15, 2007

    Hi there,

     

    Really wanted to comment and let you know that the MP has changed my life and many others. If the morphine is in the pump it does NOT give you any "high" or strange feelings, just removes the pain. It is SO much better than taking all the oral meds...saved and changed my life. I would recommend speaking with your pain physician or...

    RHMLucky777

    Read More

    Hi there,

     

    Really wanted to comment and let you know that the MP has changed my life and many others. If the morphine is in the pump it does NOT give you any "high" or strange feelings, just removes the pain. It is SO much better than taking all the oral meds...saved and changed my life. I would recommend speaking with your pain physician or contacting Medtronics (they are the maker of the pump) they have an informative DVD that helps explain and put your mind at ease about proceeding with the surgery as it can be very confusing and even scary when you aren't sure what you are getting into. I've only had 4 back surgeries, severe nerve damage tho, and I'm telling you...DO IT! You'll have to go through a trial, where the dr. will inject your spine with Morphine to be sure that it is successful for you, if it is, really it saved my life, my sanity, and has helped me move on, go back to college, enjoy life and truly WANT to live again. Best of luck to you!

    • ElemenTeri
      Aug. 28, 2007

      Ang,  I know it's been a while since you posted but I am trying to get some ideas here.

       

      When you went to FIRST see the neurosurgeon, what was the appointment like?  What kinds of info does he want?

       

      Some people are saying that I might not even BE a candidate.  I take 160mg of Oxycontin a day.  They are 12hr release tablets,...

      RHMLucky777

      Read More

      Ang,  I know it's been a while since you posted but I am trying to get some ideas here.

       

      When you went to FIRST see the neurosurgeon, what was the appointment like?  What kinds of info does he want?

       

      Some people are saying that I might not even BE a candidate.  I take 160mg of Oxycontin a day.  They are 12hr release tablets, but by the 9th hour I go into some pain places.  Then I use my 10/325 percocets (usually 4) until I get to my 12th hour.  That is a LOT of drugs.  I don't want to have to a) endure the pain for the 3 hours the oxycontin doesn't do it and b)stuck to a pill schedule.  2 neurologist and a pain clinic have both said this is the next step.

       

      What was it like when you met the neurosurgeon.

       

      I welcome anyone elses' opinion if they have been through this.  Thanks!

       

      Teri C

    • Bill
      Aug. 30, 2007

      Hi, I am going for the trial of the pain pump.  If you look at my profile you'll see that I am on an 8 year/ 4 surgery journey.  One way I was able to take a lower dose of oxycontin (I take 60mg a day)  "layering" it - my idea but supported by my doctor.  I take 20 at breakfast(6:30am), 20 at lunch 12-12:30 and 20 at supper. ...

      RHMLucky777

      Read More

      Hi, I am going for the trial of the pain pump.  If you look at my profile you'll see that I am on an 8 year/ 4 surgery journey.  One way I was able to take a lower dose of oxycontin (I take 60mg a day)  "layering" it - my idea but supported by my doctor.  I take 20 at breakfast(6:30am), 20 at lunch 12-12:30 and 20 at supper.  When I am up most, during the day I have the max coverage and at night when I am laying down I only have 20mg being time released (I am off my feet for good most nights at 9pm).  The time release on each pill will put what you need in your system - they don't in any way cancel out or interupt.  I also need to lay down for an hour or more twice during the day and some days are worse and I am off my feet most of the day.  I am lucky to have a job where I can work (part-time) from home most days.

      I also need breakthrough meds.

      I am headed for the pain pump because I had a friend who had good results and was in a similar situation.  He let me know it's not a magic wand but it has improved his pain and quaility of life.  That's my hope - simple improvement.  I know it will take a bit of pain and trouble to get there but I am going for the in-hospital 48 hour trial.  I heard that is best to be sure you are a good candidate.  It's all a little scary but if the trial doesn't work I go back to the oral meds and I tried.

      I wish you good luck and peace, Bill

    • tim
      tim
      Jun. 16, 2010

      I can only speak for my self. Have a 8840 synchromedII b morphine pump for the last year. the surgery was alot more serious than we  were told. Now I have a huge protrusion ( LIKE A BAR OF SOAP)  on my side. By the way the caether came out of my spine & because we lost our insurance they didnt want to fix it. Legally they had to.  please...

      RHMLucky777

      Read More

      I can only speak for my self. Have a 8840 synchromedII b morphine pump for the last year. the surgery was alot more serious than we  were told. Now I have a huge protrusion ( LIKE A BAR OF SOAP)  on my side. By the way the caether came out of my spine & because we lost our insurance they didnt want to fix it. Legally they had to.  please talk to as many people as you can. I may be the exception.

  • Anonymous
    Anonymous
    Apr. 30, 2007

    My husband probalbly wouldn't post so I'm doing it for him.  He has tried just about everyhting as well for his chronic T-5, S-l back pain. He had a MedTronic Stimulator put in as a trial 2 weeks ago and reports that it stimulates his legs, his rib cage, but not the site of pain.  We are going back on WEdnesday for the doctor to 1) adjust...

    RHMLucky777

    Read More

    My husband probalbly wouldn't post so I'm doing it for him.  He has tried just about everyhting as well for his chronic T-5, S-l back pain. He had a MedTronic Stimulator put in as a trial 2 weeks ago and reports that it stimulates his legs, his rib cage, but not the site of pain.  We are going back on WEdnesday for the doctor to 1) adjust the electrodes to try to get the target area and if that works, 2) to put in the permanent Stimulator.  The doc. says he's one of the few people on whom it seems not to have worked. I think he shouldn't and should have gotten a 2nd opinion long ago. 

    Vicodin has worked well but there's danger of liver damage.  Anyone know if Vicodin can be used in a pump instead of Morphine?  Any other comments will be much appreciated.

    • Anonymous
      Angi
      Jul. 15, 2007
      Hi there, no Vicoden cannot be used in the pump. Morphine really is the best so far, I know they're currently doing research on other meds that may be available in the future, but "Morphine" may sound scary, but seriously changed my life.
    • Anonymous
      Dave
      Jun. 16, 2011

      Hi, My name is Dave .Their is a different med. for the pump,it is called Baclifin. u may want to ask your doc. about it working for him

    • Karla Brinkley
      Oct. 15, 2013

      my Dr is wanting to put in s pain pump.  I'm really looking forward to seeing if it works but the one thing I'm worried about is I really bad rebound headaches from morphine.  does anyone else have that kind of problem and will I continue to have the rebound headaches with the pump?

    • Anonymous
      nikki
      Jun. 25, 2009

      I wouldnt say one of the few that it hasnt worked for. I tried every kind of stimulator they make and mine were removed before I left the clinic. Its been five years for me. I seen several different doctors and clinics. Now after everything they tried that they were sure would  work my condition is worse, my pain is more and in more places, and I...

      RHMLucky777

      Read More

      I wouldnt say one of the few that it hasnt worked for. I tried every kind of stimulator they make and mine were removed before I left the clinic. Its been five years for me. I seen several different doctors and clinics. Now after everything they tried that they were sure would  work my condition is worse, my pain is more and in more places, and I am just now getting the referral for the pain pump. I would wonder if they havent got the "spot of pain" why put one in permanently?

    • Anonymous
      downunder
      Jan. 12, 2011

      three years ago i was crushed in a coal mine accident. fractured my pelvis in six places,broke my left hip off , had a two inch gap in my left femur, several broken ribs, a blood clot on the brain,and lord knows the nerve damage from the waist down.i have suffered 24 hours a day 7 days a week since the accident.i have tried everything on the market  with...

      RHMLucky777

      Read More

      three years ago i was crushed in a coal mine accident. fractured my pelvis in six places,broke my left hip off , had a two inch gap in my left femur, several broken ribs, a blood clot on the brain,and lord knows the nerve damage from the waist down.i have suffered 24 hours a day 7 days a week since the accident.i have tried everything on the market  with no relief. i go in tomorow for a moraphine pump test i pray that it works.wish me luck.

    • JimBJammin
      Apr. 21, 2012

      Greetings Downunder,

       

      My husband has the Medtronics Spinal Cord Stimulator, its not working, apparently it has not worked for at least 4 others as we learned. It has made the pain worse, and this is not good money spent. Although, it may work for others, his back as it is entirely, is just in horrid shape. I am sure you understand.

       

      How did the...

      RHMLucky777

      Read More

      Greetings Downunder,

       

      My husband has the Medtronics Spinal Cord Stimulator, its not working, apparently it has not worked for at least 4 others as we learned. It has made the pain worse, and this is not good money spent. Although, it may work for others, his back as it is entirely, is just in horrid shape. I am sure you understand.

       

      How did the M.P. work for you ? Did you find the relief that you hoped to find, without side effects. Dave responded in another commentary, and I must agree, his doctor did the right thing, trial in the hospital to tweek the dosage correctly, watch for allergic reactions,then release him after a week. Did your doctors do the same for you?

       

      If your in Austrailia I am sure the medical care is much better, here in the USA they like to farm you in and out of any surgery or trial to a Pain Management Clinic and for removal of anything, same day surgery and your home, Not good Healthcare at all... It does Not matter what insurance you have..

       

      Thanks for your time and feedback on the M.P.

       

      Theresa

       

       

    • RJG
      RJG
      Oct. 07, 2012

      Hey there, I am trying to get approval with the ins. co. to do a test with the pain pump. I've tried every drug my doc. knows of with very little success. I have the Medtronic stimulator in and it is discouraging how little it helps. I read it is helping alot more people than it is not. But at this point I am ready for any thing to try. Any response is appreciated....

      RHMLucky777

      Read More

      Hey there, I am trying to get approval with the ins. co. to do a test with the pain pump. I've tried every drug my doc. knows of with very little success. I have the Medtronic stimulator in and it is discouraging how little it helps. I read it is helping alot more people than it is not. But at this point I am ready for any thing to try. Any response is appreciated.

  • Nancy
    Mar. 27, 2007

    Jean,

    I would love to hear more from you, as I am considering trying the pain pump for my severe sacral and tailbone pain. Nothing I'm doing seems to be working, and I have tried just about everything. What type of back pain do you have? I also have alot of difficulty sitting and standing.

    Nancy

    • Anonymous
      Keith Tobeck
      Aug. 02, 2009

      I may be the same as you, I have nerve damage below the coyxx, near the rectual area, pain 24 hours a day ona scale of 7-8, however I had the rectum removed back in '84 from cancer.  now I cannot sit, have had this pain for three years ,  have done everything from oxicotin to fentyal to stimulators, all kinds of eastern medicine, have a trial morphine...

      RHMLucky777

      Read More

      I may be the same as you, I have nerve damage below the coyxx, near the rectual area, pain 24 hours a day ona scale of 7-8, however I had the rectum removed back in '84 from cancer.  now I cannot sit, have had this pain for three years ,  have done everything from oxicotin to fentyal to stimulators, all kinds of eastern medicine, have a trial morphine injection scheduled for next week, how are you doing and what are your thoughts, will try the pain pump if the porphine works, I used to play golf three times a week and softball twice,am 66 years old and was very active, this is killing me mentally

       

      Keith

  • Optomistic Jean
    Mar. 27, 2007

    I have had a pump for 2 years and it has changed my life.  All of the nasty side effects from oral meds are gone.  It took 3 weeks to get the dosage adjusted to control my pain adequately.


    One recommendation that I have is to have a 3-5 day hospital trial as opposed to one injection to see if you are allergic to the medication.  By the time I...

    RHMLucky777

    Read More

    I have had a pump for 2 years and it has changed my life.  All of the nasty side effects from oral meds are gone.  It took 3 weeks to get the dosage adjusted to control my pain adequately.


    One recommendation that I have is to have a 3-5 day hospital trial as opposed to one injection to see if you are allergic to the medication.  By the time I was discharge the doctor had a very good idea of what dosage to start me on.  He started me on 75% of the hospial dosage and increased it twice within the first 3 weeks.  If you just have an injection, you might be started on a very low dose that could take months to get to a really helpful dose.


    I love my pump.  Pre-pump, I spent every day laying on the couch with no ability to sit and standing was for just a few minute.  Now I can go for a walk every day.  I really have to listen to my body and react accordingly, but if I don't over do, I have a reasonably good life.


    If you have more question, I'll try to give you my unprofessional medical answers. Just remember that I am just a patient.


    Optomistic Jean

    • Bill
      Aug. 30, 2007

      Hi, I am headed for a pump trial in Sept and reading your post was very helpful.

      peace, Bill

    • atung111
      Oct. 08, 2012

      Hi Jean,  I had 3 failed back surgeries.  I tried everything possible.  I cannot take any of the nacotic medications.  They all make me very depressed.  I am thinking about getting the morphine pump.  I know you like it very much.  Do you have any of the side effects, like constipation, sweating, urine retention, nausea, insomnia? ...

      RHMLucky777

      Read More

      Hi Jean,  I had 3 failed back surgeries.  I tried everything possible.  I cannot take any of the nacotic medications.  They all make me very depressed.  I am thinking about getting the morphine pump.  I know you like it very much.  Do you have any of the side effects, like constipation, sweating, urine retention, nausea, insomnia?  Please email me at 'atung111@yahoo.com'.  I am not too familiar with HealthCentral  yet.  Thanks, Annie 

  • Dr Mike
    Mar. 24, 2007
    thanks for the comments. The medtronicx  stimulator is not getting the results I expected. Will give it another month and them evauate the situation with my doctor. Thanks
    • JimBJammin
      Apr. 21, 2012

      We have had a hard time with the Medtronics SCS now for some time.

       

      I am the wife (Mrs. JimBJammin), of a husband that has the SCS and I can tell you, It worked for a bit, for the price, it should work all the time under anything.... my husbands body is rejecting it.. and it has been now for about 2-4 years.. He has lost weight so badly, and this of course,...

      RHMLucky777

      Read More

      We have had a hard time with the Medtronics SCS now for some time.

       

      I am the wife (Mrs. JimBJammin), of a husband that has the SCS and I can tell you, It worked for a bit, for the price, it should work all the time under anything.... my husbands body is rejecting it.. and it has been now for about 2-4 years.. He has lost weight so badly, and this of course, adds to no muscle tone to his body, so he suffers when he lays down, sits, etc...  Everyone is different, when the numbers add up, and you find this out, it makes it all too real... good med. gone bad....

      Let us know how this MP goes if you have that done.. please.

       

      Thanks so much,

      Mrs. JimBJammin

  • Anonymous
    jeff m
    Mar. 24, 2007

    go to www.medtronic.com...then email me back for REALity...have had mine for a yr. and we are still tweaking for right dosage/concentration,etc..........but it does not leave you with a huge drugged flng or dry mouth...pre-pump days iwas taking 165 mg/day of mrphn,60 mg orally(liquid),3 soma, and 3 mg. xnx....now it's 8mg./day thru pump,and oxycdn 10/325...

    RHMLucky777

    Read More

    go to www.medtronic.com...then email me back for REALity...have had mine for a yr. and we are still tweaking for right dosage/concentration,etc..........but it does not leave you with a huge drugged flng or dry mouth...pre-pump days iwas taking 165 mg/day of mrphn,60 mg orally(liquid),3 soma, and 3 mg. xnx....now it's 8mg./day thru pump,and oxycdn 10/325 (4) for brkthru..but still increasing pump til its "comfortable"...i wish i would have done this10 yrs. ago!

    • Anonymous
      Mark
      Jun. 10, 2007
      Jeff-Does it have E.D. as a side-effect? I ask because one of my doctors suggested it--I currently suffer from E.D. by taking morphine orally (180 mg/day) ... Mark
    • jeff12step
      Jul. 01, 2007
      mark...as everyone will tell you, each pt. is different. But, i was better off --on the pump.yousee, oral opiates have all these preservatives in them and pump meds don,t!Now it takes some time-but if ED is a problem already-get my drift? Let's just say my girlfriend at the time ,didn't complain. Wishing you well and the pump works great on the pain!.....jeff12step
    • Gen
      Gen
      Oct. 19, 2010

      What was your test like?  Did you come home with it for several days or did you go into the hospital 3 times for 23 hours each time?

    • medicfl1
      Aug. 15, 2007

      okay it's been throught march....

       

      update...is it working!

       

      I need to know.

      JIm