Friday, June 01, 2012

I don't know what to do from here. I just know I am miserable.

By Carla Anna Olson Wednesday, August 27, 2008

The worst part is that I cannot go to a doctor like this.  Whenever I describe what is going on I can't help but express my anger towards the medical system.  I always feel like they give up on me, or make an assumption about me too soon, and after that, anything I say would be taken out of context, written in their transcripts, and on and on goes the soap opera.  I feel like the more I go for help, the worse things get.  

All of the psych meds I am supposed to take just plain suck!  I was having seizures.  Sleepwalking.  Digestion problems, Blackouts- tons and tons of blackouts by taking the prescribed amount.  Seriously.  Some of them made me really really paranoid.  If I included the list of all of the psych meds I have been on....jeez.  My friends are suprised I am not dead.  Please help me do something.  I am not stupid, I am not crazy, and I am not a drug addict.  I will move anywhere I will do anything to help this.  I had to move to CA from MN because the cold was too painful.  This runs my life, and no matter what I do I can't make it better.  I lost 35 lbs. in the last month.  I exercise constantly to try and create painkilling endorphins, and I am naturally a super lazy person.  I will do anything to make this manageable. I want a life.me

 

Anonymous
Dilaudid
8/27/08 4:38pm

      When you go to a Dr, they are working FOR you!  Remind them of this.  If you are not happy, it is not illegal to search for someone whom you are ccomfortable with.  Doctors have recently been forced by the DEA to require urine testing?  These doctors are basically saying that they do not believe what their clients are telling them.  The first thing that a 'Sports Med' doc wanted was my urine. I have lower back pain from a short life of hard living.  So now I am without my medication I need to work.  I am drinking a beer now hoping that it will make me feel better until an appointment I made with a friends Dr next week.  I too am young and have gone through numerous physical therapies, local shots, and three epiderals in my spine.  I would do anything to feel better... Do I want to take narcotic pain killers everyday?  NO.  Do I just want to not feel the pain?  YES.  How is this wrong>/\\*^$

8/27/08 11:18pm

You have no idea how much you took the words out of my mouth by the last thing you said.  It is really annoying that people go to the doctor and get narcotics because their feelings are hurt or whatever.  It puts a lot of pressure on the docs.  I have been in so many situations where their hands are tied.  My shrink sent me to a doc a few months ago that prescribes narcotics.  I listened to the consult in the next room before he came in to see me.  He seemed like such an *****, and I cannot work with someone that only gives me 5 minutes.  If I am going to take serious measures with this I have to have a doc that pays a bit more attention.  My body is rejecting medicine left and right. I have been ruined by all of the alternative measures to treat something so simple.  People have had pain since the dawn of time.  Narcotics, benzos, whatever are miracle drugs when used properly.  I take adderal for ADD/ADHD, and people have offered to buy it from me.  I have had roommates steal my meds to get high, and I am creeped out.  I don't get high off of it, because it treats a real problem.  I don't take more than I am prescribed, but there are lots of people out there that lose control, and have to steal.  They are also sick people so I don't hold resentments.  I just move.  When they steal my meds or offer to buy them I always want to say, "Would you walk up to someone in a wheelchair and offer them cash so that you can wheel around and have a good time?  Meanwhile the guy you got it off of is in a bush somewhere."

I am really sick, and I attract sick people.  I am 29, and my boyfriend is a 56 yr. old every nite blackout drinker I take care of.  I immediately connected with him when we met because he is so cynical about his illness.  I have to laugh at myself sometimes, too.  I just hate it when he lectures me, and says it is all in my head.  He says I create my symptoms myself.  It is hard to take advice from someone that drinks vodka and tequila straight every nite to deal with  his own ailments.  I haven't drank in years.  I just end up super fucked up when I do drink.  It also causes seizure for me, so the option is not there.  I used  to drink a lot to escape the physical pain and insomnia and so on.  I do connect with alcoholics to a point.  As I said, though, all they have to do is heal their mind.  Those ****** don't know how good they have it.  All they have to do is sit around in a circle and blab about their messed up childhoods.  It goes beyond that for me.  I wish wish wish I was just a plain old drunk, junkie, or whatever.  They say the grass is always greener, but that idea just makes me angry.  You have no idea how much anger is inside of me.  I just want to wake up from this nightmare.  I am not stupid, and unfortunately I am not a drug addict.  Those guys have a solution.  My reality is much more complicated.  I know there is no fairy dust or magic wand someone can wave, but I am having a hard time even knowing what is real and what is psychosomatic.  Most of my emotional baggage stems from my pain.  The tail has been waging the dog for 14 years.  I am ready and willing to try something new.  I can't seem to get away from abusive relationships.  I always run into the arms of someone or something that causes more harm.  I want to address the root of the problem, NOW.  How do I find a doctor that understands?  I have accomplished a lot by finding this forum.  Now what?

Anonymous
Family friend
10/11/08 2:41pm

Carla passed away oct. 9 - o8 and she will be missed :(

8/28/08 3:02am

Carla

 

Hello Dear

I wanted to stop by and Say "Welcome to the Chonic Pain Connection!"  I'm really thankful you've found us and I hope we can help support you with frienship, understanding and maybe some suggestions about how and where you can find some proper treatment for your pain.

 

I also want you to know that you are no longer alone in your pain and there are hundreds of us here and around that would love to try and help support you in any way we can.  Chronic Pain can be a very, very, very lonely place and many of us have no exterior problems that would allow others to see our pain.  So they just don't get it.

 

Pain knows no boundries, it knows no age, it does not come or go with your financial success or loss, nor does it matter what our physical looks are. It takes a great deal of commitment & hard work from yourself and your team of healthcare providers, to manage it properly.  I can see that you've already been drug around and tossed here & there and with all that type of frustration and ill treatment its no wonder your depressed and considering a terminal illness being a better way to go.  I understand what you mean and also remember a time years back that I thought some similair thoughts.

 

My first recomendation for you, is to study here and all over the internet, everything & anything about chronic pain.  There is a tremendous library of articles and great information on this site alone to keep you busy reading for quite some time.  When you've finished or want to move onto more sites & info, let me know and I can refer you to some very good informative and supportive sites to include in your library or bookmarks as your best pain mgt web-sites.  There are many home treatments that you will want and need to put into your pain toolbox, to use for those high pain days or even for every day management.  It also appears that maybe you can use some help and guidance on how to talk with your doctors and get them to begin to listen to your symptoms and hopefully get you on a proper dosage of pain meds and intigrate your other meds together to get you stable physically & mentally.  Many or most of us take pain meds and also antidepressants or other meds to manage all of our conditions.  It sometimes takes years to get the correct dosage and correct drugs to do this, but by educating yourself on pain mgt techniques you will be able to approach your doctors from a different angle and they will respond and listen to you better.

 

Unfortunately for you.  Your at an age that will make alot of doctors raise their brows or drug seeker antenias as soon as they look at your chart.  So we need to help you to communicate your pain & health problems in a different lite, so they will know that your not just seeking drugs, your seeking pain relief.  You want a life, you want to learn to live with the pain.  If you cannot get rid of it, then I'm sure you want to know how to live with it more comfortably and learn to deal with it.  YOU DESERVE TO HAVE A LIFE AND A HEALTH CARE TEAM THAT WILL TREAT YOU PROPERLY!.

 

It's a plesure to meet you.  Thank you for sharing with us. It has really helped to get to know you better and also to hear where your coming from.

If I've mis understood you in any way, I apologize, but I think I do understand your frustration.

 

Hope to hear from you soon.

Take Care and sleep well

Contact me any time you'd like to talk or if you have any questions regarding this site or anything else.

Gentle Hugs, We care about you and want to help

Betty

8/30/08 9:50pm

Thanks Betty I was sure I was reading a generic welcome- the same one everyone gets.  You know, sent out the second you sign up.  Then, how weird, you actually took the time to address my specific problems.  I didn't even want to tap back into this site.  I always get super embarassed about what I write.  I feel crazy when I go back to find out what actually came out of my mouth (via keyboard).  Seems like once I say it the intensity kind of lifts a bit.  I will stick around a bit.  You are right about people around me.  They tell me it is not real or I am making myself miserable by my own will.  There is such a curious part of me that wants to grab onto that, and hope they are right.  So I go with it sometimes.  Years have gone by, though.  I have read things I wrote in my early 20s.  I can see how far I have come in so many different areas.  The one place I have had no changes in opinion, though, is when I talk about my pain.  It was a struggle then, and the struggle is exactly the same.  No matter how I spin it.  No matter whom I am trying to explain things to.  It is the same.  I want to stop hating myself and blaming myself for all of this.  I want to be around people that understand.  My boyfriend hurt my feelings soooo bad last week when he said that he demanded that I come to terms with the fact that this is all just my imagination.  I won't be talking to him about it anymore.  I will be leaving him as soon as I can.  I just don't to walk myself into another relationship- more of the same. That is why I came to the site

8/30/08 9:50pm

Thanks Betty I was sure I was reading a generic welcome- the same one everyone gets.  You know, sent out the second you sign up.  Then, how weird, you actually took the time to address my specific problems.  I didn't even want to tap back into this site.  I always get super embarassed about what I write.  I feel crazy when I go back to find out what actually came out of my mouth (via keyboard).  Seems like once I say it the intensity kind of lifts a bit.  I will stick around a bit.  You are right about people around me.  They tell me it is not real or I am making myself miserable by my own will.  There is such a curious part of me that wants to grab onto that, and hope they are right.  So I go with it sometimes.  Years have gone by, though.  I have read things I wrote in my early 20s.  I can see how far I have come in so many different areas.  The one place I have had no changes in opinion, though, is when I talk about my pain.  It was a struggle then, and the struggle is exactly the same.  No matter how I spin it.  No matter whom I am trying to explain things to.  It is the same.  I want to stop hating myself and blaming myself for all of this.  I want to be around people that understand.  My boyfriend hurt my feelings soooo bad last week when he said that he demanded that I come to terms with the fact that this is all just my imagination.  I won't be talking to him about it anymore.  I will be leaving him as soon as I can.  I just don't to walk myself into another relationship- more of the same. That is why I came to the site

9/14/08 10:47pm

Hello Carla

 

I'm sorry it's been so long for me to reply.  I've been in the grips of my own situation and pain and have not been able to respond like normal.

 

I'm really sorry for your bf's hurtful comments, I've heard them all too.  they certainly don't feel very good and can be harmful for your own mental well being when someone tells you your pain is all in your head.  Many of us have been told the same thing.  Well, I've got good news for you.  "YOUR PAIN IS NOT ALL IN YOUR HEAD OR IMAGINATION!" 

 

I really would encourage you to do as much research here on chronic pain and Fibromyalgia (even if you don't have it or a diagnosis) it still has alot of really great information for you to learn about it.  I would find spacific articles and share them with my husband & mine & his families to not have to face them when I'm talking and have to put up with interuptions and if they have to read a print out, they normally will go ahead and read it.  Just don't make the print outs and information too long and most people will read them.

 

I hope you'll be back and that you will join in here and visit more.  I don't know of any automatic greetings here, except for the welcome email, so all or any comments you get are by real people and not employees or anything like that.

 

Hugs dear

I hope your having a good day

Your welcome to send me a private message by clicking on my name.

Gentle Hugs

Betty

Anonymous
Anonymous
10/10/08 9:36pm

Betty,

Thank you for your kind words to Carla.  She has been a friend of mine since middle school and your thoughtfulness is greatly appreciated.  Unfortunately Carla passed away yesterday.  She could no longer tolerate life here on Earth and we hope she has found peace.  Thank you for your website, you are helping so many people!

 

rs

10/12/08 4:35am

Annonymous Rc

 

I'm so sorry to hear that Carla is gone for us.  I don't know what to say, but I'm sorry for your loss and for her family's loss too.

 

I was not aware that she was ill enough to pass.  May I ask what happened to Carla?

 

Thank you for letting me know

I'm just so sorry for the Loss of Carla

My prayers are with you Carla, May the Lords peace and Love surround you and he hold you in his loving arms. Cry

I will miss you dear new friend

Betty

10/13/08 3:54pm

                                                        Cry

I'm sending my love and prayers to those in mourning over our friend. May God bless!

Anonymous
que
10/19/08 9:33pm

she took her life :(

It's unfortunate  someone couldnt read  in her last  post that she was thinking about it and the 'hints'were there.

I pray for her family what a tragedy.

Anonymous
Ben Conway
10/19/08 10:58pm

It's sad that people are posting anonymously and saying that they know what happened.  Carla did not deliberately take her own life and there is no evidence that she did.  She was sick and Carla's own writings on this site only scratch the surface of what was going on.  Her family tried repeatedly to get her the help she needed.

 

Saying anything otherwise is not only ill-informed, it is very hurtful to her family and those who really loved her.

10/21/08 12:37pm

I was just today informed about Carla's battle with pain. I read somewhere that the irony about chronic pain is that it is not (necessarily) fatal. There are times during my worst Migraine that I wish it were fatal. I can identify with Carla's wish to have something like cancer. Not only would I get the best treatment and no doctor would ever think I was seeking drugs, but my friends would treat me appropriately because I had a "legitimate" disease.

 

I have to say I have been driven to take whatever painkiller I had on hand to get rid of my pain. Fortunately, for me, I am still alive. Unfortunately, for Carla, that is not true. It is a tragic crime that she could not find relief from her pain.

Anonymous
Cheryl Lund
10/21/08 2:44pm

Thanks for setting the record straight, Ben, and for honoring and restoring dignity to Carla's life.  You are my hero! 

 

Carla's aunt,

 

Cheryl

Anonymous
Cheryl Lund
10/21/08 2:37pm

Carla Olson is FREE, FREE, FREE - she is liberated!  No more judgments, no more pain, no more suffering.  She is basking in the presence of Father God who completely loves her, and totally accepts her just as she is!  No more fear no more condemnation.  Carla no longer grows faint or weary! Her exuberance lives on and resounds in heaven! 

 

Cheryl

 

Anonymous
Anonymous
12/ 4/08 3:08am

Miss you Carla....

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By Carla Anna Olson— Last Modified: 06/20/11, First Published: 08/27/08