I woke up with a new pain issue this morning and I'm scared. For the majority of the past 10 years I've had Fibro it has mainly affected the upper part of my body (back of head, neck, shoulders, mid-back, chest, arms) and my hips and knees are tender points; they hurt if you touch them too hard and my skin hurts there, like there should be a bruise but there's not, and at times, my clothes hurt to wear.
This morning I woke up at 10am and when I got off the bed I stumbled and kind of fell because of excruciating pain in my hips. I was walking as though my feet were asleep and my husband even asked me what was wrong with my foot because I was unable to walk straight. It hurts to move, every step is hellish, and even sitting isn't comfortable. Getting up from a sitting position takes a few minutes because I have to brace myself for the pain. Last night (or yesterday), I fell asleep around 5am and I was fine because I had gotten out of bed to use the bathroom around 4:20 or so. I thought maybe I slept wrong but the pain is in my muscles and on both sides. I have never experienced this before. I think my pain threshold is quite high since I am used to being in pain but this is unbearable.
So, I called the doctor's office and they had me see a different Dr. than my primary care, although my Dr. was there seeing patients and consulted with the doctor that saw me. Rather than give me anymore narcotics (I already take Percocet), she gave me a prescription for Lyrica, 75mgs, 2 times daily. I asked if this would get rid of the pain now so I can function (I'm supposed to go on a camping trip to Martha's Vineyard with my 10 yr. old son's Boy Scout Troop in 5 hours) and she said it would. Of course, it didn't dawn on me until after I left the office that if this drug worked so great, why hasn't my Dr. prescribed it to me before, but I am willing to try anything and took her word on it. When I got to the pharmacy, around 4:45 this afternoon, I was told that my insurance company rejected the prescription because it needs a prior authorization. So, I called my Dr.'s office back and spoke to the nurse who told me that they had the paperwork but it wouldn't be put through until Monday because the person who does it was gone for the day. The nurse advised me to take 2 Percocet every 4 hours, which I can do because my script is written 1 to 2 every 4 to 6 hours as needed, but they'll only fill it every 2 weeks so I can't take 2 all of the time. Unfortunately, I took 2 this morning, and then another 2 this afternoon and I was still in a lot of pain, which I told the Dr. In addition, the pharmacy told me that almost everyone who gets a Lyrica prescription needs Prior Authorization first, so why did the Dr. give it to me if she knew I couldn't get it?!
Has anyone else experienced this kind of pain? Please tell me it will go away or at least ease up. I'm going to lose my mind - I just want to be normal, and be a good functional Mom for my kids. I can't do it like this! For those of you that have taken Lyrica, does it work as quickly as this doctor promised me it does?


amanda...i have been taking lyrica (150 mg b.i.d.) for several years...never had a problem and get a three month supply by mail for my cervical chronic pain...i also take percoset and think the percoset helps more than the lyrica since i feel immediate relief after i take it (wears off in 4 hours!!!)...as far as your leg and foot go i had the same symptoms...was sent to a p.t. and she diagnosed it as s.i. alignment (sacro-iliac)...i did certain excercises and after several weeks it began to diminish..but it was terrible..a numb dead weight feeling...i still do the excercises because i don't want it to come back!!!! i'm glad you get yourself to go camping...we (chronic pain patients) have to have a life even though i struggle through a pain level 8 24/7 and always try to "look good"...i hope i've been helpful at some level...beanie
Hi Beanie!
I did force myself to go camping with my son's Boy Scout Troop on Martha's Vineyard. I obviously couldn't do any bike riding but my son was content with the fact that I was just there. So, while everyone else was out riding bikes for the day, I sat at the campsite in someone's lounge chair reading a book and actually SLEEPING!!!! I couldn't believe it because I don't sleep normally but the sun felt so good and it was warm. I also knew that they'd be gone for hours so I felt comfortable taking 2 Percocet and a Zanaflex, which is my night time muscle relaxant but the Flexeril doesn't work that well because I've been taking it for 10 years and I'm in so much pain that I used the big guns during the day.
I am still in huge amounts of pain and it's driving me crazy not being able to walk normally, or sit and lay down comfortably. I have so much more sympathy for all of you that suffer from sciatica or lower back pain on a regular basis because this really sucks. I have tender points on the lower half of my body that hurt to touch and sometimes they ache or the skin hurts but this is unbearable.
Thank you for mentioning the PT; my Dr's office opens in 6 hours and I plan on being their first caller. In addition to begging for relief, I will ask them to put through a referral to my PT ASAP. Maybe she can fix me or at least provide me some relief.
Amanda
amanda....i'm anxious to hear if your p.t. agrees with my diagnosis of sacro-iliac align;ment....thank you for writting back...everyday is more and more of a struggle and my pain level (in my neck) increases and the degeneration continues as i get older...i'm 64...the scarey thing is that this is "the end game" and i go to bed in terrible pain and wake up at4:30 at the same pain level...sometimes worse...and have to get out of bed to stretch my neck and do my cervical stretches...do you ever have a good day?? beanie