Friday, June 01, 2012

Lyrica Question & Fibro Hip Pain - Unable to walk or sit comfortably

By Amanda Saturday, April 24, 2010

I woke up with a new pain issue this morning and I'm scared. For the majority of the past 10 years I've had Fibro it has mainly affected the upper part of my body (back of head, neck, shoulders, mid-back, chest, arms) and my hips and knees are tender points; they hurt if you touch them too hard and my skin hurts there, like there should be a bruise but there's not, and at times, my clothes hurt to wear.

 

This morning I woke up at 10am and when I got off the bed I stumbled and kind of fell because of excruciating pain in my hips. I was walking as though my feet were asleep and my husband even asked me what was wrong with my foot because I was unable to walk straight. It hurts to move, every step is hellish, and even sitting isn't comfortable. Getting up from a sitting position takes a few minutes because I have to brace myself for the pain. Last night (or yesterday), I fell asleep around 5am and I was fine because I had gotten out of bed to use the bathroom around 4:20 or so. I thought maybe I slept wrong but the pain is in my muscles and on both sides. I have never experienced this before. I think my pain threshold is quite high since I am used to being in pain but this is unbearable.

 

So, I called the doctor's office and they had me see a different Dr. than my primary care, although my Dr. was there seeing patients and consulted with the doctor that saw me. Rather than give me anymore narcotics (I already take Percocet), she gave me a prescription for Lyrica, 75mgs, 2 times daily. I asked if this would get rid of the pain now so I can function (I'm supposed to go on a camping trip to Martha's Vineyard with my 10 yr. old son's Boy Scout Troop in 5 hours) and she said it would. Of course, it didn't dawn on me until after I left the office that if this drug worked so great, why hasn't my Dr. prescribed it to me before, but I am willing to try anything and took her word on it. When I got to the pharmacy, around 4:45 this afternoon, I was told that my insurance company rejected the prescription because it needs a prior authorization. So, I called my Dr.'s office back and spoke to the nurse who told me that they had the paperwork but it wouldn't be put through until Monday because the person who does it was gone for the day. The nurse advised me to take 2 Percocet every 4 hours, which I can do because my script is written 1 to 2 every 4 to 6 hours as needed, but they'll only fill it every 2 weeks so I can't take 2 all of the time. Unfortunately, I took 2 this morning, and then another 2 this afternoon and I was still in a lot of pain, which I told the Dr. In addition, the pharmacy told me that almost everyone who gets a Lyrica prescription needs Prior Authorization first, so why did the Dr. give it to me if she knew I couldn't get it?! 

 

Has anyone else experienced this kind of pain? Please tell me it will go away or at least ease up. I'm going to lose my mind - I just want to be normal, and be a good functional Mom for my kids. I can't do it like this! For those of you that have taken Lyrica, does it work as quickly as this doctor promised me it does?

4/24/10 1:22pm

amanda...i have been taking lyrica (150 mg b.i.d.) for several years...never had a problem and get a three month supply by mail for my cervical chronic pain...i also take percoset and think the percoset helps more than the lyrica since i feel immediate relief after i take it (wears off in 4 hours!!!)...as far as your leg and foot go i had the same symptoms...was sent to a p.t. and she diagnosed it as s.i. alignment (sacro-iliac)...i did certain excercises and after several weeks it began to diminish..but it was terrible..a numb dead weight feeling...i still do the excercises because i don't want it to come back!!!! i'm glad you get yourself to go camping...we (chronic pain patients) have to have a life even though i struggle through a pain level 8 24/7 and always try to "look good"...i hope i've been helpful at some level...beanie

4/26/10 2:25am

Hi Beanie!

I did force myself to go camping with my son's Boy Scout Troop on Martha's Vineyard. I obviously couldn't do any bike riding but my son was content with the fact that I was just there. So, while everyone else was out riding bikes for the day, I sat at the campsite in someone's lounge chair reading a book and actually SLEEPING!!!! I couldn't believe it because I don't sleep normally but the sun felt so good and it was warm. I also knew that they'd be gone for hours so I felt comfortable taking 2 Percocet and a Zanaflex, which is my night time muscle relaxant but the Flexeril doesn't work that well because I've been taking it for 10 years and I'm in so much pain that I used the big guns during the day.

 

I am still in huge amounts of pain and it's driving me crazy not being able to walk normally, or sit and lay down comfortably. I have so much more sympathy for all of you that suffer from sciatica or lower back pain on a regular basis because this really sucks. I have tender points on the lower half of my body that hurt to touch and sometimes they ache or the skin hurts but this is unbearable.

 

Thank you for mentioning the PT; my Dr's office opens in 6 hours and I plan on being their first caller. In addition to begging for relief, I will ask them to put through a referral to my PT ASAP. Maybe she can fix me or at least provide me some relief.

 

Amanda

4/26/10 12:45pm

amanda....i'm anxious to hear if your p.t. agrees with my diagnosis of sacro-iliac align;ment....thank you for writting back...everyday is more and more of a struggle and my pain level (in my neck) increases and the degeneration continues as i get older...i'm 64...the scarey thing is that this is "the end game" and i go to bed in terrible pain and wake up at4:30 at the same pain level...sometimes worse...and have to get out of bed to stretch my neck and do my cervical stretches...do you ever have a good day?? beanie

4/29/10 5:10am

Hi there,

Sorry to hear of your predicament as I know the pain you speak of.

Thankfully I was in the Drs Surgery struggling to stand as he waited for me and this resulted in my pain meds being increased.

My Dr was sorry that I was in such a bad way and said so, he is a lovely, caring man. For me the excruciating pain settles down eventually to a throb and my legs will ache as well as my back.

I suffer knee pain and the areas of skin outside of my knees and thighs feel bruised and painful to touch.

For me the pain meds help some but I got no help from lyrica just extremely foggy.

I have found some help with Cymbalta if Lyrica is not for you.

These symptoms have greatly affected my life as I can no longer walk very far without bringing on pain first to my leg muscles, knees, hips and back. If I try to push myself my body screams in pain.

I hope your symptoms do not grow any further and that you are able to get good help. I use a shopping trolley/kart for support when I go to the mall, I grab one from the car park, it helps a great deal.

                               good luck and the very best to you, Ozigal

4/29/10 7:05am

Amanda,

I am sorry for your issues concerning your insurance and Lyrica.  I take Lyrica, it makes my groggy so I don't take it during the day if I have to be doing errands, etc. 

As far as the Hip Pain.....I started about 6 months or so ago with pain in my hip so bad that I can't sleep comfortable, can't lay on couch for long cause my hip and leg gets very painful.  My pain doctor told me it was in my hip (thought it was my leg, at first) and probably has not just my fibro pain but my osteoarthritis in my hip.  He said there is not much he can do at the moment but maybe try an epidural again. 

Its so aggravating not being able to do what you want to do.  I decided that I was going to work in my garden.  I was feeling pretty good.   Started put dirt and mulch down, planted my flowers, etc.  taking breaks as I went.  After an hour I was inside on couch, crying in pain.  I hate not being able to just plant some flowers.  I can't even watch my 2 yr. old granddaughter very often because of my pain.

Also about the Lyrica...I hate the TV commercials on Lyrica because it makes it seem that "if you take Lyrica you can live a normal life"  What a bunch of crap!

Take care sweetie.

 

Susan

Anonymous
Anonymous
5/ 1/10 8:57am

I have had hip pain and knee pain for most of the fifteen years I have had this stuff.  It is sometimes mild but the past month has been terrible I can barely move my hips to walk especially if I have sat for long.  I have not tried Lyrica but my doc does'nt think I am a good candidate and hasn't seen much improvement with it. It kills me to see those stupid ads too, since it looks so easy to manage the ilness and you look great too! I just want to live, work in my garden a little and enjoy my grandkids.  This is a constant challenge and beleiving that God has it all under control no matter what I see keeps me sane.  Everyone hang in there and lean not  on our own understanding but on God who has us all in the palm of his hand even when we don't know it.  Have a great Day! Jen

Anonymous
blackfedora2
4/17/12 2:55am

I had better results with Neuronton which helped greatly with the sleep and the pain, but I had such terrible bouts of depression and couldn't take in the day due to grogginess. So, I recently switched to Lyrica and I did notice an improved mood, but the hip pain started. I can barely walk! First in one and now in both! I'm 34 and I haven't had kids yet, so I hope there is something I can do to get better. I also just switched doctors and this new one acts like I'm making things up saying, "You're young and healthy." I feel like she is saying she doesn't believe me which is really insulting! Does anyone else have doctors tell them such things? It just makes me so mad! I do find that yoga and swimming helps - moving helps in general. I'm so glad to have found this site! Thanks everyone for sharing the things you have!

Anonymous
Deerie
4/29/10 7:36am

First, I'm not sure Lyrica works quickly, but it does work.

 

Second, hip pain in one of those things I've always had with FM.  It feels like someone has thrown grit into my joints and my walk becomes thundering and awkward -- especially when I first start to move after a period of inactivity whether that be sleep or sitting or driving in the car.  But, as with all FM pain, I find it comes on bad for a while (maybe even WEEKS) and just when I can't stand it anymore and I think that I'll finally have to go to the Dr., it suddenly disappears.  And then something else starts to hurt...

 

I would think that camping is not something you'd want to do during a bad outbreak of pain but, as with these important things that come along in life, you might find that you can often do what you have to do when push comes to shove.

 

 

Anonymous
alicia
4/29/10 9:13am

No it does not work immediately at least not for me. I was told that it takes time to build up in your system. However it does help with the pain when it kicks in. I'm so sorry you are hurting so badly, I can sympathize. I hope you get some relief soon.

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By Amanda— Last Modified: 04/17/12, First Published: 04/24/10