Loss of Memory and/or Concentration

amos64 Community Member November 28, 2007
  • Hello Everyone,

     

    I have been battling chronic pain for the past 4 years. Through the years the type and dose of pain meds escalated. So much so that at one time I was even on Fentenyl patches, that's right, the same stuff that is prescribed to Cancer patients.

     

    My wife and I realized that I was becoming a zombie and really I wasn't living anymore, I was merely existing. Well, after battling with the doctor I weaned myself off of the patch. I know take 75 mg of Lyrica. I also don't take it regularly because I don't want to my body to become adapt to it that it eventually loses it's influence or strength. I only take it when the pain becomes unbearable and then it only eases the pain.

     

    Now as if the struggles with pain aren't enough I have recently began to experience frequent memory losses or loss of my concentration. I have even began to call things by different names that sound similar or have some familiarity to the wrong name that I'm calling it. My wife now realizes that when I say such idiotic things she immidiately trys to think of what it is that I'm really trying to say.

     

    Do you think that perhaps due to the high doses of meds that this may have affected my memory. I also frequently lose where I was going in thought process.

     

    Thank you,

    Amos64

30 Comments
  • FibroLady
    Jan. 25, 2008
    I have to agree with the person who said that this is just part of certain conditions such as fibromyalgia, also MS, CFS/ME, as well as several others. It has nothing at all to do with what meds you may or may not be taking. It is simply a function of the neurological changes in the brains of people who suffer these conditions. There is little that can be done...
    RHMLucky777
    Read More
    I have to agree with the person who said that this is just part of certain conditions such as fibromyalgia, also MS, CFS/ME, as well as several others. It has nothing at all to do with what meds you may or may not be taking. It is simply a function of the neurological changes in the brains of people who suffer these conditions. There is little that can be done to alleviate it. It requires life style changes and an ability to adapt. You learn to make lists, calendars and other reminders. You make a concerted effort to always put things back where they belong...for instance, make sure your keys are always in the same place each time you are done using them. Some patients get a bit of help from the types of drugs used for ADD. I suffer from fibromyalgia, CFS/ME and several other conditons and/or syndromes. Whether I am being medicated or not, the brain fog is ever with me. In fact, I rate it over and above the pain as the worst symptom of these conditions. It becomes too evident in conversations, and there is nothing one can do to prepare for this ahead of time. It can be so humiliating. I have, or at least HAD an IQ of 159, and yet people often assume that I am at least border-line retarded at times. The love of learning has been a life-time pleasure of mine, and yet now I have great difficulty in learning anything new. My brain is like a sieve, it will not retain new facts for longer than a nanosecond. Things I used to know like the back of my hand now often slip from conscious recall. I hate it, and I do know that when I DO take meds, people are very quick to blame my memory problems on these drugs. I know, however, that the drugs are NOT a contributing factor. This seems to be a lose-lose situation, and causes me a lot of emotional trauma.
  • Anonymous
    Mary
    Dec. 05, 2007
    I know you were told in an earlier comment that you need to take Lyrica regularly, but they didn't mention that the benifit is cummulative. You need to build up to a therapeutic level in your blood and taking it everyday is what helps that happen. I definitely think you need a new doctor! Being okay with you taking a daily medicine as needed is ludicrous!...
    RHMLucky777
    Read More
    I know you were told in an earlier comment that you need to take Lyrica regularly, but they didn't mention that the benifit is cummulative. You need to build up to a therapeutic level in your blood and taking it everyday is what helps that happen. I definitely think you need a new doctor! Being okay with you taking a daily medicine as needed is ludicrous! then to tell you you don't need to continue with a specialist?? Just because you haven't found the right one doesn't mean s/he is not out there. Keep searching and keep up the fight!!
    • amos64
      Dec. 05, 2007

      Mary,

       

      I want to thank you for your input and most of all for your encouragement for me to fight on. I must tell you, between my wife constantly on me about not being able to work and the doctors telling me that they can't find the reason for my symptoms, I was starting to think that it was all in my head. But then, I get hit by those really sharp pains....

      RHMLucky777

      Read More

      Mary,

       

      I want to thank you for your input and most of all for your encouragement for me to fight on. I must tell you, between my wife constantly on me about not being able to work and the doctors telling me that they can't find the reason for my symptoms, I was starting to think that it was all in my head. But then, I get hit by those really sharp pains. What's worse is that I can't even try to tell my wife that I'm hurting because she then only replys with a sigh which sometimes is associated with a rolling of the eyes.

       

      I am trying to get in touch with a Neuropathy group here in Fort Worth and when I do meet with them my first question is going to be whom do they recommend to help me?

       

      I will get back on my Lyrica and I will do so regularly as prescribed and at then get connected with this group here in town.

       

      Thanks again, to you all!

       

      Amos

  • aulpn
    Dec. 04, 2007

    Amos64-

    I discovered the samething, that I was very sensitive to muscle relax-ers and pain pills. It took me many many years. I now only take 1/2 Vicodin when I am a 10 count and desprate!  Arthritis

    strength Tylenol is it for me as I rest with a heating pad! 

    I wonder if there is anything that can help for re-gaining the me-mory...

    RHMLucky777

    Read More

    Amos64-

    I discovered the samething, that I was very sensitive to muscle relax-ers and pain pills. It took me many many years. I now only take 1/2 Vicodin when I am a 10 count and desprate!  Arthritis

    strength Tylenol is it for me as I rest with a heating pad! 

    I wonder if there is anything that can help for re-gaining the me-mory loss back!

    Does anyone know of any?  I tried Focus Factor but that didn't last long at all!  My husband is very understanding, not

    finishing my sen-tences etc. 

    Glad you Wrote!

    AuLPN

    • aulpn
      Dec. 04, 2007

      I forgot what I was going to say until after I push-ed the button!

      My husband and I drove a thousand miles in a week and I remember nothing at all to this day! Memory Loss or what?

      Keep smiling!

      AuLPN

  • Anonymous
    Ann Busby
    Dec. 01, 2007
    we who have Fibromyalgia can relate. It's called fibro fog or brain fog, and we all deal with it. I don't think the meds have anything to do with it. Best bet is to get lots of rest, write everything down that needs remembering, and don't beat yourself up-it is what it is. Good luck,  Ann
  • Anonymous
    Debbie
    Nov. 30, 2007

    We sound like mirror images. I am on the fentyl patch and roxicode for break thru meds. I was dx with Late stage lyme disease, fibro and CFS. I was a trial attorney prior to becoming disabled 6 years ago.

     

    Please check for lyme disease. Treatment with antibodics may help you with a mulititude of symptoms. I am allergic to many antibodics which causes issues...

    RHMLucky777

    Read More

    We sound like mirror images. I am on the fentyl patch and roxicode for break thru meds. I was dx with Late stage lyme disease, fibro and CFS. I was a trial attorney prior to becoming disabled 6 years ago.

     

    Please check for lyme disease. Treatment with antibodics may help you with a mulititude of symptoms. I am allergic to many antibodics which causes issues with reovery. You may be differnt,

     

    Check the sites on lyme disease.

     

    God bless,

    Deb 

  • Tammy  Coons
    Nov. 30, 2007

    Amos,

    I was diagnosed with fibromyalgia 1 year ago and I also have Scoliosis. I have noticed that when I am in a lot of pain I can't focus and sometimes I am in so much pain I don't realize it. Chronic pain is a very odd thing. I am unavailable to get my prescription filled due to the fact that my husband just started a new job and also...

    RHMLucky777

    Read More

    Amos,

    I was diagnosed with fibromyalgia 1 year ago and I also have Scoliosis. I have noticed that when I am in a lot of pain I can't focus and sometimes I am in so much pain I don't realize it. Chronic pain is a very odd thing. I am unavailable to get my prescription filled due to the fact that my husband just started a new job and also my prescription has run out. I am taking 25mg of Nortriptylin just to help me sleep at night. i think I have also developed restless leg syndrome. I have found that if I keep using my brain daily like looking up stuff on the internet, reading and even helping my kids with their homework it helps to keep me going. Just remember we are all a family here too and we are all in this together. 

  • Diana
    Nov. 30, 2007

    Hi, I don't think it's the fentanyl patch (I am an oncology RN & work w/ cancer patients.) We use Fentanyl patches but that isn't the main drug; for painful cancers like bone we use a patch + IV Dilauded, Morphine long acting & immediate release. A patch alone would leave them in agony.

     

    Pain itself is very distracting & makes it...

    RHMLucky777

    Read More

    Hi, I don't think it's the fentanyl patch (I am an oncology RN & work w/ cancer patients.) We use Fentanyl patches but that isn't the main drug; for painful cancers like bone we use a patch + IV Dilauded, Morphine long acting & immediate release. A patch alone would leave them in agony.

     

    Pain itself is very distracting & makes it hard to concentrate, also can effect your memory. I tried Lyrica & had some odd side-effects w/ my mentation. I was surprised as I'm not prone to side effects but that's just me. If your pain is severe enough it will affect your concentration more than a patch. DianaCool

     

     

     

     

  • Anonymous
    Gary White
    Nov. 29, 2007
    Please people, if you are taking Lyrica for pain, take it regularly, as prescribed. It is a anti-seizure med and taking it just when you think you need it is very dangerous. Please, either take it regularly or ween yourself off of it gradually and then stop it for good.
    • Betty Boop Too
      Nov. 29, 2007

      Thank you Gary for letting everyone know that.  I'm not up to date on Lyrica yet and was not sure if taking whenever was good or bad.  thanks for you very helpful addition to this conversation.

      Betty

    • amos64
      Dec. 01, 2007

      I am very greatful for your inputs and I want to thank; Chuck, Gary White, Diana, Tammy Coons, Debbie, and Ann Busby at least caring enough to share some points of views.

       

      Guys, you what scares me? is that I have told my primary MD that I was taking Lyrica only as I needed it and he said that he was fine with it.

       

      That really makes me wonder about...

      RHMLucky777

      Read More

      I am very greatful for your inputs and I want to thank; Chuck, Gary White, Diana, Tammy Coons, Debbie, and Ann Busby at least caring enough to share some points of views.

       

      Guys, you what scares me? is that I have told my primary MD that I was taking Lyrica only as I needed it and he said that he was fine with it.

       

      That really makes me wonder about back when I told him that I wasn't going to see anymore specialists and that instead I was just going to try to learn how to live with it and his response was "I think that is healthy decision on your part." Can y'all believe that?

       

      I think he has just decided to give up on me and has decided to shrug me off.

       

      I just may start new with a new doctor, any suggestions for any in Fort Worth, TX?

       

      Thanks,

      Amos

  • Bambi
    Nov. 29, 2007

    Hello,

    I too, along with everyone else, suffered memory loss & lack of concentration at certain times. My doctor informed me that it could partially be due to some medication but it could easily be caused from not getting enough pain control & that my medicine might not be working for me or perhaps is at the wrong dosage. He explained the brain of someone...

    RHMLucky777

    Read More

    Hello,

    I too, along with everyone else, suffered memory loss & lack of concentration at certain times. My doctor informed me that it could partially be due to some medication but it could easily be caused from not getting enough pain control & that my medicine might not be working for me or perhaps is at the wrong dosage. He explained the brain of someone whom has chronic/constent pain is getting bombarded from all over, signaling the brain for each body part or joint that is having pain, is swollen, is having spasms, etc. Along with perhaps, ring in the ears, blurred vision, tiredness & the usual daily thought process. Our brain goes into over-load & shuts down by not allowing it to function normally.

     

    I understand & respect the personal choice, not take pain med's, or other med's, especially considering the side effects or long term effects. For me it's a matter of "quality" of life rather than, the "quantity" of life I have left.

     

    The problem I have is everyone, including my husband, blames everything on my medicines I take. I am sooo tired of hearing, "You need to just go off all your medicine, clean all that "crap" out of your system & excersice."

     

    Mind you, I have already done that once, checked each one of my med's to see if I still needed to take them. I now take ms- contin 1-11/2 a day,(that's down from 6 a day). Was on Lyrica for fibro., but insurance won't cover it until we start at the bottom of simular medicine, so I now am taking amitriptoline. Plaquinil for Lupus & RA, Zaneflex for muscle spasms. Calan-for migranes. Estratest-for hormones. Thyroid-...you guessed, for low thyroid!Cheesy-ha! ....& presciption Zantact.

     

    Does anyone else have this same problem? My husband runs in spurts, he'll be fine for a while, until it becomes too much of an inconveanence then I'm not doing enough or the right things to make me well. Oh yes, I'm sure everyone has gotten this at sometime, "I'm being too lazy", or "I lay around too much-anyone would be sore & stiff if they rested as much as I do." I've "given up", by agreeing to take pain med's, or by accepting my diagnoses, etc...

     

    To sum it up, I'm a 44yr. old wife, mother of 2, can't work outside the home anymore, I'm a freelance artist & would love to get a studio up & running- this is on my wish list when my health is better maintained. I've been diagnosed with cross-over auto-immune disease. Fibromyalgia, Lupus, RA,(twinges of RSD). I have chronic pain  from 8 surgeries on my left knee, (the last one they decided to just remove my knee cap.) -2 surgeries on my right knee. I'm very limited to the time I have to be up & moving around before I swell & hurt too much,( usually about 1-2 hrs.) I'm allergic to Asprin & Anti-Inflamatory med's, so I can't take usual med's for treatments.

     

    I hate having to justify everything & feeling guilty for having these chronic illnesses. I understand those of you whom feel so alone. I've always had a possitive attitude, try to make the best out of a sucky situation, -but I do realize the importance to be able to vent so we don't hold everything inside & explode! I'm here to "hear" -anything anyone would like to talk about, I'd love to listen & help out if I can! Vice versa, if anyone has any helpfull hints for me, I'd love to hear them.

    Thank you, wishing you more good days then bad ones!

                         peace, laughter & miracles,

                               BambiBig Grin
     

    • Chuck Murray
      Nov. 29, 2007

      Bambi,

       I think we all feel guilty about our illness/pain to some degree.

       I had to quit working about 17 mos ago and it still troubles me, for the first time in 35 yrs I'm not making a paycheck.

       I'm more fourtunate than most in that my wife and

      kids are big help to me and we have decent

      insurance with her job.

       It's hard not to...

      RHMLucky777

      Read More

      Bambi,

       I think we all feel guilty about our illness/pain to some degree.

       I had to quit working about 17 mos ago and it still troubles me, for the first time in 35 yrs I'm not making a paycheck.

       I'm more fourtunate than most in that my wife and

      kids are big help to me and we have decent

      insurance with her job.

       It's hard not to feel guilty.

      Like you I chose quality of life and for me

      that means meds and while they covered some on insurance theyr'e not free, so a couple times a month I feel bad about spening money we really don't have at

      the pharmacy.

       But, without them It's a small existence.

      Chuck 

    • Betty Boop Too
      Nov. 30, 2007

      Bambi

      I just had to comment on your husbands attitude, I'm really sorry that you are also stressed with his comments and idea's as to what you need to do with your chronic pain condition.

      My first couple of years of pain were really difficult for my husband our teen son and also for all my family and husbands family.  I did not get in some car accident...

      RHMLucky777

      Read More

      Bambi

      I just had to comment on your husbands attitude, I'm really sorry that you are also stressed with his comments and idea's as to what you need to do with your chronic pain condition.

      My first couple of years of pain were really difficult for my husband our teen son and also for all my family and husbands family.  I did not get in some car accident or fall off a cliff or somehting dramatic.  I sneezed twice really hard and fractured 2 disc in my spine.  So if began really kind of odd and then evolved into a serious condition.

      the first two years were very difficult for us all, the first full year I could barely walk, I gradually was able to get my dosage of pain meds enough uped, to finally begin walking better, but it was over two years until I was finally sent to a pain clinic and that has been nothing but a good and positive experience.

      My husband and son are the very greatest at understanding my illness and not bothering me about the meds I take.  I've heard from many other pain patients that are still not very supported by the spouses and some times children.

      Your husbands ideas for you are spoken like a true healthy person that's never experienced pain before.  If he were mine, I would probably get us to a therapist and get everything out on the table.

      My own situation is, if I don't take my meds, then I'll not be able to walk or get out of bed on my own.  My husband would much rather me getting up every day, walking on my own, then him having to take care of even my intimate needs, so he never complains about my meds as he's already aware how badly I need them to continue on trying to care for myself and have even a slight amount of independance.

      I truely feel bad for you or anyone that has to put up with their spouse not being supportive of their treatment, it very pain ful and also adds so much more stress to your pain condition.

      I cannot help but thin this makes your condition even worse and I hope you will be able to talk him into coming to your apts with you or trying a therapist alone first and let them know what the issues are and then inviting your husband to come too.  somtimes it helps for them to hear it from a doctor and not just from you.

      Take care Bambi, I hope you find a resolution to this issues.

      Betty

  • Chuck Murray
    Nov. 28, 2007

    Hi Amos,

     While I don't take the same meds as you

     I have noticed some of the same things.

     Difficulty concentrating/focusing, memory loss at times.

     Some days are worse than others but, I

    can't do without the meds.

    Chuck 

     

    • amos64
      Nov. 28, 2007

      Hello Chuck,

       

      I hear you on not being able to do without the meds. But what do I do? If I stay on my meds regularly I run the risk of renal failure not too far down the road. Another thing that I found is that as long as I don't take the meds "everyday" then my body won't get used to it and the medication will at least help in controlling...

      RHMLucky777

      Read More

      Hello Chuck,

       

      I hear you on not being able to do without the meds. But what do I do? If I stay on my meds regularly I run the risk of renal failure not too far down the road. Another thing that I found is that as long as I don't take the meds "everyday" then my body won't get used to it and the medication will at least help in controlling the pain from getting to unbearable.  Sad

       

    • Chuck Murray
      Nov. 28, 2007

      Amos,

      Do you see your md regularly?

      I hope it's not a dumb question.

      I have blood work done every 3 mos,

      any long term medication has risks to

      other body systems.

      Currently I'm trying some relaxtion techniques that are pretty effective.

      Maybe have a chat with your md about

      your concerns. I'm by no means an expert but, I'm fortunate to have a real...

      RHMLucky777

      Read More

      Amos,

      Do you see your md regularly?

      I hope it's not a dumb question.

      I have blood work done every 3 mos,

      any long term medication has risks to

      other body systems.

      Currently I'm trying some relaxtion techniques that are pretty effective.

      Maybe have a chat with your md about

      your concerns. I'm by no means an expert but, I'm fortunate to have a real good md

      to work with.

      Chuck

    • amos64
      Nov. 29, 2007

      Chuck,

       

      I just don't know what to do anymore. I have stopped seeing my pain dr. and I only see my primary dr. when my meds run out or if any of the symptoms become too big of a concern. I know that it must sound foolish but man, all I ever get from any of them is more surgeries, more drugs, and more specialists and we still don't know what is the...

      RHMLucky777

      Read More

      Chuck,

       

      I just don't know what to do anymore. I have stopped seeing my pain dr. and I only see my primary dr. when my meds run out or if any of the symptoms become too big of a concern. I know that it must sound foolish but man, all I ever get from any of them is more surgeries, more drugs, and more specialists and we still don't know what is the cause of my neuropathy. Even for my neurogenic bladder, I was the one that initiated the idea that it was the strong pain meds that was causing my bladder to become flaccid. Since reducing the intake of them my bladder has regained normal function, but my pains are still not well managed.

       

      In fact, the last conversation that I had with my md was about not seeing anymore specialists. I told him that I have decided to just try and learn to live with it, his response was "I think that is a healthy choice to make."

       

      Not too mention my wife constantly asking me if I'm going to work today? It's seems as all she cares about is if I get to go to work or not.

       

      As for the blood works, oh yes, I have had so many of them that I'm just tired of it.

       

    • Chuck Murray
      Nov. 29, 2007

      Hi Amos,

       I wish  there was more I could offer you than

      an understanding ear.

       Is there any chance of seeing another md?

      The reason I ask is: Here in our little town there are a multitude pf mds just not many that do more throw pills at ya.

       My doc didn't really get it until he sent me to a neurosurgeon since then it's been a lot easier....

      RHMLucky777

      Read More

      Hi Amos,

       I wish  there was more I could offer you than

      an understanding ear.

       Is there any chance of seeing another md?

      The reason I ask is: Here in our little town there are a multitude pf mds just not many that do more throw pills at ya.

       My doc didn't really get it until he sent me to a neurosurgeon since then it's been a lot easier.

        Maybe gather up all you records and tests and go to another clinic/facility tell them you're not leaving til something changes.

       I've had to get radical a couple times, I

      don't recommend it until every thing else is

      exhausted.

       It's hard, if not impossible to get someone

      to understand if they've not had to deal with what we do. Little things that we used to take for granted nowcan be un-manageable.

       Heck there's days when I can hardly put my own shoes on.

       Would your wife consider possible seeing a counselor with you? Sometimes hearing it

      from someone else makes it more real.

       Or maybe logging on to a forum or one of our boards and reading some of the posts?

       When I had to quit work and file ssdi over a year ago it made it really tuff on my wife(we've been a 2 income family for 25 yrs), she's been the only one working this whole time. To her credit she's not complained.

       But, we've talked a lot and often.

      chuck 

        

       

  • Betty Boop Too
    Nov. 28, 2007

    Hello Amos

    It's great to have you here with us!

    I have really noticed that my memory has gone way down hill.  My husband first noticed it a couple of years ago, when I could not even recollect the reruns of tv programs we had watched together and also have trouble remembering conversations we had.

    I thought at first it might be my meds, but then I also...

    RHMLucky777

    Read More

    Hello Amos

    It's great to have you here with us!

    I have really noticed that my memory has gone way down hill.  My husband first noticed it a couple of years ago, when I could not even recollect the reruns of tv programs we had watched together and also have trouble remembering conversations we had.

    I thought at first it might be my meds, but then I also know that when I am suffering long periods with undertreated pain, that's also when I have no memory of events duing the time span.

    I have read different articles and some say it's the pain and others have said that it's the meds, I think that the side effects on the meds even includes memory loss.

    The one that really bothers me the worst right now, is when I'm having a conversation and cannot remember the words that should be used in what every I'm talking about.  I just loose everyday words in the course of a conversation.  I think that it's the reason that I prefere to correspond over the PC other than on the phone or in person, as I struggle with words all the tim.  If I'm typing, I can pause and try to recall the word I'm thinking of.

     

    I'm with you both, I don't think that I could survive this without my faith and daily prayer life.

     

    Take care and look forward to your participation Amos.

    Betty

    • amos64
      Nov. 28, 2007

      Bety, God bless you. you know, I never thought about the possibility of severe pain causing memory loss. But I think that you are definitely on to something there.

       

      Yup, I also find it much easier to communicate in writing because as you said, I get the time to think about what I'm trying to say. Where as when you are speaking audibly and I pause to...

      RHMLucky777

      Read More

      Bety, God bless you. you know, I never thought about the possibility of severe pain causing memory loss. But I think that you are definitely on to something there.

       

      Yup, I also find it much easier to communicate in writing because as you said, I get the time to think about what I'm trying to say. Where as when you are speaking audibly and I pause to think of the word(s) that I want to say, people will look at me real funny.

       

      The worst was when I had an announcement to make at church doing Sunday service, boy I stumbled all over myself. It was embarressing.

       

      Hey, let me ask yo both something, do either of you become overwhelmed or just fed up with church members always asking "how are you doing?" meaning the illness. Many of times I try to just answer them as most people do with a casual "Oh I'm fine" but then they come back and say "I mean about your back?" That's another thing, I have not been diagnosed with any back problems and I have told them that many, many, many times. I have been diagnosed with Peripheral Neuropathy and a Neurogenic Bladder.

       

      Don't get me wrong, I know that they mean well and they are merely trying to express concern and all. But it's just that it find myself thinking "Do they really care or do they just ask to make conversation?" I guess I'm so tired of being associated with the illness, it's as though the illness defines who I am. As if it's now a part of me for the rest of my life. Maybe it is and I'm just going through the denial phase, I don't know, what do yall think?

    • Betty Boop Too
      Nov. 28, 2007

      Amos64

      I think when we go through long periods over the course of weeks with uncontrolled pain, it does interfere with our memory and I really think that pain is so extreme that it's all we are able to think about, therefore we're distracted from thinking about what's going on around us.  I'm very thankful that my doctors have slowly...

      RHMLucky777

      Read More

      Amos64

      I think when we go through long periods over the course of weeks with uncontrolled pain, it does interfere with our memory and I really think that pain is so extreme that it's all we are able to think about, therefore we're distracted from thinking about what's going on around us.  I'm very thankful that my doctors have slowly but surely gotten my dosage to a better point of pain control, but naturally I am still in pain and have to deal with it every day.  I don't know that they would be able to completely control the pain with meds anyway, unless of course they just knocked me out, which is not an option for me either.

      Ya know, I to have somewhat an issues with everyone wanting to ask me "How are you doing?"  Some days I want to just sit them down and tell them exactly how and whats going on with my pain and other days I don't even want to think about and the horrible thing is I know they mean well, but the thought that goes through my mind is; "How do you think I'm doing?"  I'm in pain 24/7, I stay home 90percent of the time and search for new ways to control pain, how do you think you would be doing????"

      But, I bite my tongue and depending on the person, I normally say "I'm surviving"  It would be such a lie, to tell them I"m fine, but I do sometimes just say fine, because I really don't think most people care anyway.  I'm sure you know the type.  They ask you and as soon as you begin to tell them, the change the subject or distract them selves with another passing by, so they don't have to stand and hear about your pain.  Our pain makes others uncomfortable, as they don't even want to think about what it would be like to be in pain 24/7 and have to know and understand that we have to face the pain for many years to come.

      I really think they don't know what to think or say to us.  I do pray for patience and understanding with my parish family and my regular family alike.  I know they all try their best, it's just they don't understand.  My elderly (92) friend is the one friend I have that does understand.  when she asks me how I am today, and I say fine, she'll say Your lying too, get yourself a cup of coffee and get over here and tell me the truth!  she has RA, so we pretty much share our pain together.

      My husband has really learned to just look at me and recognize how much pain I'm in.  I don't have to ever explain to him, that I'm having a bad pain day or I'm really fatigued, he can tell by my activities, when I will have bad days and he never says a word on the bad days (like today) that I did not even get dressed.  I was busy the past two days helping my elderly friend, so he pretty much knows that I'll be down and in pain today.  It's nice to not have to explain myself any more and I don't have to feel guilty, as he does not make me feel that way either.

      It's such a pleasure to have you here with us.  Take Care

      Betty

    • Bookworm
      Nov. 29, 2007

      amos64

      I am just new here also.  I suffer from chronic pain with neuropathy and I too take Lyrica 75mg 3 times a day for the nerve damage.  I am also on duragesic patches for my back pain. I usually experience a lot of memory loss and sentence forgetting if I am in a lot of pain usually the 3rd day of my patch. I also experience blurred vision and...

      RHMLucky777

      Read More

      amos64

      I am just new here also.  I suffer from chronic pain with neuropathy and I too take Lyrica 75mg 3 times a day for the nerve damage.  I am also on duragesic patches for my back pain. I usually experience a lot of memory loss and sentence forgetting if I am in a lot of pain usually the 3rd day of my patch. I also experience blurred vision and rapid vision changes from the Lyrica..that is what bothers me the most..even if I skip some doses of Lyrica even just the long term use causes the blurred vision..

      god bless you all.. bookworm 

  • mawmawfarmer
    Nov. 28, 2007
    Wacko Hi! Finally I am glad that I am not the only one whose memory is shot and when I try to speak and I just can't get the right word out. I am only 47 and feel like I have alzheimers or something. I fell that is due to all of the pain medication that I have taken during the past year. I did  have an addiction to Zanax about 4 years ago and it is...
    RHMLucky777
    Read More
    Wacko Hi! Finally I am glad that I am not the only one whose memory is shot and when I try to speak and I just can't get the right word out. I am only 47 and feel like I have alzheimers or something. I fell that is due to all of the pain medication that I have taken during the past year. I did  have an addiction to Zanax about 4 years ago and it is well documented that it will make you have some memory loss. I am currently on the Fentanal patches which are the only thing that can control my pain. I recently tried the time released morphine put it caused me to have severe sweating and trouble breathing. So I guess that I will stay on the patches since nothing else works. How are you able to stay off the pain meds? I have found out that if you wait to you are in severe pain it is impossible to get relief. Just some thoughts would be glad to hear from you!
    • amos64
      Nov. 28, 2007

      Hello,

       

      Yes I'm only 43 yrs old myself and it's just like you said, I wondered if I was coming down with alzeimers as well. As for how I manage? well my friend, sometimes it's not so bad but other times, it is unbearable. I was also informed that if I waited until the pain was too bad to take pain meds that it would lose it's effect. But...

      RHMLucky777

      Read More

      Hello,

       

      Yes I'm only 43 yrs old myself and it's just like you said, I wondered if I was coming down with alzeimers as well. As for how I manage? well my friend, sometimes it's not so bad but other times, it is unbearable. I was also informed that if I waited until the pain was too bad to take pain meds that it would lose it's effect. But you see, when I took my meds as scheduled something else began to happen to me. The high dose or the chronic use of the meds causes my bladder to become flacid, that means it just doesn't send any signal to the brain that it needs to be drained. Instead what it does is behaves like a balloon and it begins to expand. This then causes for an infection to be triggered and then brings on more pain. Plus, the doctors tell me that if my bladder and infection persists then I become a high risk for renal failure and in turn being placed on Dialisys. So, I don't know what else to do, sometimes I just breakdown in tears becuase I feel so alone, so isolated.  

    • mawmawfarmer
      Nov. 28, 2007
      I like you get frustrated but you do the best that you can. Luckly I am still working it is a challenge on most days but with the drugs I do get through it. If I did not have my great pain management dr. and the pain meds I know that I would not be able to work. So, I keep taking the meds and come to work when I can. I am the sole bread winner in the family....
      RHMLucky777
      Read More
      I like you get frustrated but you do the best that you can. Luckly I am still working it is a challenge on most days but with the drugs I do get through it. If I did not have my great pain management dr. and the pain meds I know that I would not be able to work. So, I keep taking the meds and come to work when I can. I am the sole bread winner in the family. My husband of almost 30 years is a paraplegic who keeps of the house while I work. Would you mind if I ask what state do you live in? Johnnie
    • amos64
      Nov. 28, 2007

      Yup, I too still manage to work, however, I have been out from work since Monday because of the pain.

       

      I live and work in Texas and I am a part-time carpenter. I used to be the main bread winner but now wife is the main wage earner.  When I am at home I do keep house as best as I can, my wife usually tells me what a blessing it is so I guess I do...

      RHMLucky777

      Read More

      Yup, I too still manage to work, however, I have been out from work since Monday because of the pain.

       

      I live and work in Texas and I am a part-time carpenter. I used to be the main bread winner but now wife is the main wage earner.  When I am at home I do keep house as best as I can, my wife usually tells me what a blessing it is so I guess I do okay.

       

      I wonder? how do you do it? I thought that my plate was overloaded but now you tell me how you fight chronic pain plus your husband is a paraplegic? I will definitely put you and your husband in my prayer list, that is if it's okay with you? I tell you, if it wasn't for my faith in Christ I would have lost it a long time ago. I know that He sustains me.

       

    • mawmawfarmer
      Nov. 28, 2007
      And me as well. Well for me I don';t sweat the small stuff. I try to do the best I can and it is not good enough well that is too bad.  My husband and my two adult daughters have been my rock since my first back surgery in October of last year. I had my second surgery in April of this year and am going to have the fusion done next year. I had emergency...
      RHMLucky777
      Read More
      And me as well. Well for me I don';t sweat the small stuff. I try to do the best I can and it is not good enough well that is too bad.  My husband and my two adult daughters have been my rock since my first back surgery in October of last year. I had my second surgery in April of this year and am going to have the fusion done next year. I had emergency gall bladder surgery 3 weeks ago. That was a shock!  I am a legal secretary for the managing partner as well as 2 partners in a large law firm here in Birmingham, Alabama. They have been great to me but I can tell that they are getting sick of me and my broke down back. Like i said before if it is not good enough for them well that is too bad.  When I get up in the morning I can tell what kind of day it is going to be. If I am hurting real bad I tell them so it will not be a surprise if I want to go home early. Johnnie
    • amos64
      Nov. 28, 2007

      Oh yes, I know that situation all too well. You see I used to be a I.T. Helpdesk professional for a local newspaper. Before I became ill I was referred to as my boss' right hand man. Amazing how dispensible one becomes when you are no longer able to perform as you did prior to getting ill. I eventually lost my job there but now I work for the seminary here...

      RHMLucky777

      Read More

      Oh yes, I know that situation all too well. You see I used to be a I.T. Helpdesk professional for a local newspaper. Before I became ill I was referred to as my boss' right hand man. Amazing how dispensible one becomes when you are no longer able to perform as you did prior to getting ill. I eventually lost my job there but now I work for the seminary here in Fort Worth. They know my battles and they are very supportive so I know that I no longer have to worry about losing my job.

       

      My wife and I also have two adult kids that also are a big help to us as well. They are 22 and 25. They each have their own apartments (in the same complex as my wife and I live in) so they are always close by.

       

      I also know what you mean about knowing what kind of day it will be when you first wake up. For me, on a normal day I always wake up between 4AM and 5AM, no matter what day of the week it is I wake up that early. However, when I am having a bad day I don't wake up so easily. I guess the pain during the night keeps me from sleeping enough and so I don't wake up so easily.