I love beyond reason my lovely Wife. However she does not understand my problems. She thinks she does and she tries very hard, but even as a very well qualified Nurse, she does not. I need help to dress, to propell my wheelchair, to get in and out of cars, buildings etc. That is OK. I get the help and assistance needed. But that could come from almost anyone. However I have discovered a further handicap. I have a very badly bitten tongue. Due mainly to my Wifes embarressment. I do not worry any more about 'bumping' into the able bodied moron who tries very hard to not see the 'cripple'. I get very frustrated with the 'Nice' person who answers my questions by talking to my wife. I get annoyed with the changes made to a building, that make it even harder to get around (Why not try it yourself in a chair and you would soon learn, you designer idiot). I get frustrated by the fast moving foot traffic that just has to get in front of the wheel chair, in case you get stuck. It is just like the car rushing to get in front of the caravan. I get frustrated by the able bodied walking on the smooth foot path and causing me to be on the rough gravelled area (Great for the pain). The inconsiderate idiot that is parked in the handicapped bay, I want to park over the back of his car to prevent him escaping.
I have decided that I would like to improve my chair with one or two of the following. A 120 db PA system. A set of very bright and directional (right in the face) 1,000,000 candel headlights. But the best improvement would be the rotating knives on the wheels like those on the Chariots of Boudicca and her chums. Plus, don't forget, the Cow guard at the front, so that when my Wife pushes in the slightly wrong direct, my feet don't get the brunt, but that boring man in the Super-Market, who ignores me and pushes in front gets it instead. In fact a coupla nice High Voltage prongs would help.
All in all it would be a nice way to make me feel better, and a way to spread the 'JOY' of pain around a bit!
I'm glad I got that off my chest, because when I throw my head back and scream, My dear Wife thinks that something is wrong in my idealistic ex-sistance. I am not criticising her at all, it is just that without the experience yourself, you just cannot understand.
But you who are reading this self centred diatribe will understand!
Do you want to put your bit in as well? What is the main frustration that you come across? maybe I should start a list of the most frustrating things in the life of a Chronic Pain devotee. (Please laugh as it is better than crying again)
Love to my fellow Pain adherents.
