Friday, June 01, 2012

ms contin

By soleilskye Monday, April 28, 2008

                          first post ever..I was hit by a drunk driver in 2000...ending up with many injuries, including,, a broken neck , hangman 's  fracture .   went off pain meds all together..4 yrs..ago. suffered and self medicated. 6  months ago , I was put on  ms. contin  30 mg  2x a day,  feel sick and  ..dont like emotional yucks..addiction feeling..cut back to one a day..got major head cold symptoms and next day, coughing to the point ..of throwing up.. { by the way,  excellent on neck pain}

 

had to turn back..ate one and felt better.. but three days later... now back til 2 ,and scared!! That.... is a dark place !! any advice or similar ms contin type yucks..?? misery needs company

72 hrs and counting
4/29/08 10:37am

Hi!  thought I would let you know a bit about the hazards of those meds you are on!  I have personally been in and out of emergancy rooms due to the addiciton withdrawl syptoms you described.  That is why over the last seven years on Oxycontin and Fentnyl patches my tolerance level got to the point where the meds were doin more harm than good.  I don't know the progression rate in which you were perscribed to that level of medication but I must warn you it will get worse in regards to the body first affects of feeling sick from that stuff and I really hated that ms contin It seemed like you could taste its medicine in you?  I mean it really made me ill as well after a month my pain mngt. changed my meds, but that is not the point I wanna make here the thing is you will build a tolerance and your body will actually gain other pains from the hurting of it needing the medication and oh' I am tell'n ya' the extra suffering is depressing.  This is where professional help is truly needed to monitior your health safely in leveling out to the barest minimum needed or  other ways to help with coping skills or tools that will benifit your health because alot of folks must realize we do not need other health ailments (kidney & liver damage and other's) ontop of our original disability.  It took me seven years to find this out in pain managment and jsut about ruined my health, I was fortunate enough to have a family physican help get off all my medications and I know alot of folks need to be medicated but they also should look in zeroing out and start back at a low dosage; so as to benifitting the rest of their bodies.  No one should take these actions without a physicains care and it took me 28 days in the hospital to get off 280mg a day of Oxycontin and the 50mg 3 day Fentnyl Patch. 

I would say if anyone of the meds I have been perscribed and "please never self Perscribe friend"  it leads to an addictiver nature if you have to be medicated the rest of your life. oh ya!  back to the medication in the 30 years I found benifcial and not addictive but just as all the others can be poisonous over long term usage is the Duragisic Fentenyl Patch.  This low dosage is delivered over a 3 day span and personally if I had a good 3 days I would not wear it and never had the sickness from withdrawls.  umm.. alot of folks say they are alergic to the glue and Yep' so was I it actually scarred my arm and the hives also, but I took a strong benadryl or what my Doc gave me; You have to wonder why some folks are so ressistent to wanting to use this patch when they take meds of equal strength.  They always say I can't use that and leave it at that?  I personally sat once a week for years in pain managemnt group therapy and if someone wants to help the hurt you have to make adjustments to get that help. Sometimes I wonder if an addictive nature takes over and some tend to wanna have that little pill available at their calling?

  I recommend a good group therapy that may help you find some other medicine that does not cause you other problems.  It seems like alot of folks out there do not have a true pain mangmt. one that is responsible to educate us on the pros and cons of liftime medication?  I know once those keys have been turned on in our brain with a particular medicine or really anything even 'cafffine or cigaretts' those keys cannot be unturned; It has been three years since I took any pain Medications and I can still smell the Oxycontin in my head!  I am fortunate to live a happy and prospurose life and may not be pain free but am In Charge of my Life and Live everyday not just Exist in that day.

i hope friend it does not take you so many years as it did for me to find this and at no way are any of this words directed as critisism, but on of hope and perseverance for those wanting to challange the day!

A Friend!

MB  

4/29/08 2:16pm

Thanx so much !!I guess this is the same reason I stopped before...and you are right about the pain.. I can remember thinking that when I got off that medication, (norco)that the pain was managable w/o the opiates ..and less...than with..

 

when I am truly honest with myself..I think I went to pm again because I wanted the Mental pain relief..so ..yes a group would be good..the accident has caused alot of disc degeneration..so knowing that my situation will progressivly worsen ..has been depressing..for me..as is knowing the horror that lies ahead w/ the detox.. and then the unknown..how will I manage the pain therafter..personally i went back to physical therapy when put on ms contin..and I was too medicated , and dizzy..from the meds to embrace it... thanx again for sharing

5/ 2/08 12:04pm

Thanx so much !!I guess this is the same reason I stopped before...and you are right about the pain.. I can remember thinking that when I got off that medication, (norco)that the pain was managable w/o the opiates ..and less...than with..

 

when I am truly honest with myself..I think I went to pm again because I wanted the Mental pain relief..so ..yes a group would be good..the accident has caused alot of disc degeneration..so knowing that my situation will progressivly worsen ..has been depressing..for me..as is knowing the horror that lies ahead w/ the detox.. and then the unknown..how will I manage the pain therafter..personally i went back to physical therapy when put on ms contin..and I was too medicated , and dizzy..from the meds to embrace it... thanx again for sharing

 

Hey! Friend!

 

i wanted to let you know that it is O.K. to have a bit of depression because that and pain go hand and hand. The thing is to relize this and be honest with yourself aout it; It takes alot of courage to face these facts and try not to put on a mask everday to cover ones anguish.  Myself at the time when I was at my lowest needed someone to hold my hand and walk me through this long journey of chronic pain. If you find yourself in that position just call someone or likemyself give urself a break at one of those bed and breakfast hospital stays: )   They can be very accomadating to your situation and may be good to help with the detox thing!  I needed 28 days in the hospital to recover my health (liver and kidney) problems from my meds after 7 years on 'em, but I was able to zero out and then adjust to a lower dosage of medication to manage my days. "oh yah' its not that bad"!

  Though it took me 30 years to find what's best for me; others have to make their own journey and try to avoid the hazardous detours along this path of chronic pain.

I relaize with your situation you may need long term medication and this is why it is important to find what is and is not tolerable. Pain at some point' you will find is a state of mind and one tool is redirecting that pain towards somthing productive or creative! It will take time to find this and when you do it is comforting to the soul and eases the mind of the constant reminder of your situation. I don't promise it will simply vanish just that you will find a time you escape a moment in the day doin something you are passionate about and this my frieind can be the Best kinda of Medicine. 

It is one of false hope for those to think bein totaly pain free is the goal? I found as you have mentioned their is a point when you can manage some pain. It may take years for those to find this level of understanding, but it is importatnt to have a group support system to prepare you not just for the physical challanges ahead but the mental and financial obstacles as well.  Some tools you find in your journey will help you with maintaining a quality of life and I realize if needed;  many will have to do this medicated. It is imperative though that this is done in a safe enviroment and one that provides us all with knowladgble ways of not just coping but living with Chronic pain instead of only existing with It.  A Neuropsychatrist, a Family physicain or pyschologist is always helpful and it is in our nature to want to fight this challange alone at first, but I say; it is a blessing if someone is their to hold your hand or give ya' a push in the right direction.

 

Hope this finds ya' in Good Spirits!

MB

5/ 3/08 2:11pm

I really appreciate your wisdom !  I have once again stopped the ms contin..yesterday at 4 pm..I took half dose..

 this morning is not too..  bad !  I awoke in a full sweat..can be normal..(.I am 43 ..so I think I am in perimenopause ..) felt as if I had to throw up..but..i am also having a problem w/ my eyes.. like there is an infection ..??   Have you heard of  this in withdrawal  ??  It started last weekend at first attempt..  have had the red eyes ..ambarrassed to see anyone ..makes me lOOk..worse..than.. I am..I took an ativan...05 mg..my normal dose .(.I usually only take half..) I had cofffee..my other addiction..morning only..organic french roast..

I live in northern california..via sanfrancisco..in a small town..also we are limited with support groups due to small populus..also doctors etc..most come from the largest nearest..town.

 

The ativan needs to go too ..Da ..figured that using it to detox..is ok..know that that is going to be another fine withdrawal experience too.. .05 x 3 daily..i usually half pills..because i am aware of their danger..was diagnosed w/  p.t.s..d..it was an ugly accident ,to say the least..head light ..to head light.. the drunk teen hit my car going 75 mph..passing a car  on blind turn...I was coming around turn..5 mins from home..had just gotten off work 1 hr drive , windy counr ty roads.. had just done three massages ( worked in spa..calistoga ca..) got off work.had sauna and mineral bath.."the good life !!!"

holistic health is my background..!! and here I sit stuck in the web Of pharmacopia!!  Some of the physial repulsion I feel when I take ms contin may also be a mental..repulsion as well..I was afraid..of it.!!  still am..

  I have a 4 yr old ..my mom has him for the duration of thr detox.. I went to heathfood.store,.got mega geeen juices..ginger..and a positive mood herbal supplement..st johns wort..calcium mag..etc..

 and..a calming combo...valarian root, camomile..scullcap..etc.. spent a fortune but..i needed to commit, and that helps me see ing my old healthy bottles in place of the script bottles.. when its over I plan on going back to physical therapy..and then maybe do the Pain man. shots..

 

I was on ultram..before the ms contin and celebrex.. keeping celebrex..it hel.ps I have arthritis in several spots..knees are bad .... so far I do,, have ache legs..and wrists..from no ms contin , I am pretty sure. "ultram.."had thought was no big deal ..non narcotic? but i see on message boards that some have issues with it..so I dont want that..Again,,~!!!  ok off to the unknown..there must be enough in my body still to not have bitten ..me yet !!  (60 mgs daily dose )

 

feeling nausea coming..  thanx for letting me share.&.giving hope.. Soleil Skye

5/ 4/08 9:11pm

soleilskye: 

                     Another member on this site asked me to check up on you as I have been where you are.  I was only 43 when my life was taken by pain.  The last 10 years do not exist for me, as I was on so much med and  never ending pain. I have managed to keep working (Jr. High SS Teacher) through it all, But at a HEAVY PRICE. I have no memory of my daughter being in Jr High or most of her High School years. She is now a Soph. in college. I told my wife of 20 years she could leave me and I would understand since I was more of a boarder than husband.  Luckly she did not. One year ago at the advice of my pain Doc I went through detox and began using Suboxone. Detox was the HARDEST thing I have ever attempted  but lord it was worth every bit of it.  I will go weeks at a time with no pain or breakthroughs. It is as though I have awaken from a coma or really long (10 year) sleep.  I sleep good, eat good, feel good, LIFE IS GOOD (again). I will NEVER be who I was prior to the illness, but I do control who I am and who I will be. I try to live each day to the absolute fullest because I know that life can change in an instant.  I never gave up on God and knew he would guide to my destination.  It just took a little longer than I had hoped. I am willing to discuss any aspect of my "Surgical Misadventure" and the journey it took me on if you think it may be of help for you. I know having someone who has been in your shoes makes alot of difference in being able to tell what you feel and are experiencing.  So I am offering my ears, understanding, and advice.  If you would want to talk or question me about anything please let me know. I would love to be able to help you or any other person suffering from Chronic Pain.          

                                         Bruce Trump

                                                          

5/ 5/08 12:30am

I appreciate your kindness..my last post was private w/ the nice lady from oklahoma..whom referred you....(that was so awesome..)I had read your posts 2 days ago when i stumbled across this site, by googling  ms contin issues  ..I dont normally do much on computer besides a few emails and shopping.   ( Divine Guidance ) got hooked on reading posts..and ended up here ! I remember I was shocked to see that you worked...through all that ..I have been on disability for 3 years.....lost in the day to day survival mode..loss of income / career has been a huge blow..I was a massage therapist working the spa genre', which is physically demanding as  is it ..rewarding..  ( was )

as you may have gotten..i have had a struggle the past 6 months..being put on ms contin by P. M . doc.(his nurse)..It really helped with my neck incredibly..but seemed to creep up fast with a dark , and zombie like effect..lets say i lost "connect" with my life..I felt like the effort to do things increased two fold, with the med..I thought it would be good because of the time release..and also not as bad on liver etc..I started to see that i was getting depressed and isolating, and certainly wouldnt want to burden my family, or what would i say..? hey ,...Im feeling weird..and the world feels like its closing in on me ?, and dinner will be ready soon.. Ive also felt angry and short tempered..w/ my 4 yr old...so I was pushing through with this mask..afraid of what was happening..so i decided i should quit now ,while i am only this far behind.. at 2 x30 mg pills daily.. enough to make me phychotic ! also combined w ativan .05 mg 3 x daily which i slit in half..because i know about them too.. also celebrex 200mg 1x daily , and ambian 5 mg.. so ..all this together.. for me...just seemed poisening..

 

I am at 55 hrs since last 1/2 of 30 mg. of ms..contin. and continuing with other meds for now.. and taking my new supplements called positive thoughts ,,aminos w/ b's , st johns wort etc.. and then a calm and rest w/ cal, mag, and other herbs, valerian scullcap etc..drinking  ginger mega green juice ..honestly..my head feels better , everything else hurts bad ,..legs, and lower back..hard to sit. didnt sleep much last night ..so much sweating..and dry hack every 5 seconds...

 

keeping busy watching boards is a miracle..like being in a rehab , bombarding myself w/ this issue..

 

i saw you talk of suboxone..? i saw this on HBO, fabulous series "Addiction " they were saying it was breakthrough..i even called people I knew W/ med issues about it..this was a year ago..then today on an opiate detox stuff that was scarey, like it was horrible to get off..now i am confused..and scared for..you..who i dont even know.. lol thankyou for reaching out..there are too many great people out there to learn ..  from... to be shut out by medications that are not always ....appropriate?

 

                           off  .... to ...cough...

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (9769) >
By soleilskye— Last Modified: 09/21/10, First Published: 04/28/08