Drs Responsibility

Rascus Community Member November 08, 2008
  • I just basically want to share this and invite any responses that may be appropriate. I am a chronic pain patient and have been on powerful narcotics for the past 3 years and my pain has been well controlled by the regimen. During this time Ive only had two Drs that have taken care of my needs and here is where I have a problem. The first Dr took care of me for two years and stabilized my pain and then out of nowhere one day just told me he was leaving and I was basically on my own. So I ventuired to find a new Dr ...and to no avail so after trips to the ER and then finally attempting to go to a methadone clinic, as I was dependent and in need of pain relief and withdrawals I was asked to contact a Dr who worked with Suboxone. Anyway being in dire staits she saw me right away and after going over everything she decided that Suboxone or Methadone was not the way to go, as I had severe and chronic pain, and should be treated as a pain patient. She immediately wrote out prescriptions for what I had been on and I thought all was well as she decided to take me as a pain patient. Its now about a year or more later and my last apointment she informs me she is leaving the facility and will no longer be able to be my Dr. and to find a new one. So here I am,once again, on a regimen of powerful pain medications and nowhere to turn and once again no help from my Dr. So as you can see my questions are where is the responsibilties of Drs, what are patients as myself to do. Ive been a responsible patient with no abuse whatsoever since Ive been a pain patient,my records all well documented but yet left to suffer and if you will, fend for myself. I really welcome any responses to a dilema and Im certain that others have had to deal with this as well and greatly welcome your input.

                                             Regards Frank

32 Comments
  • painfull
    Apr. 14, 2010

    i am in the same thing what are good persons to do when you hurt so bad and it wont stop and all the drs are backing off  helping  any one i had a pain dr tell me on the first vist he would let me die bfore he would loose his lic.then i  askd him after this vist will we at least be able to talk and i tell you whats wrong with me his xzact...

    RHMLucky777

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    i am in the same thing what are good persons to do when you hurt so bad and it wont stop and all the drs are backing off  helping  any one i had a pain dr tell me on the first vist he would let me die bfore he would loose his lic.then i  askd him after this vist will we at least be able to talk and i tell you whats wrong with me his xzact words were we will never be  chaty he was so mean he did not know me at all so much for pain clinic in cda rathdrum i walked out he said he would give pain meds but i want  some one who cares are there any left if you know any please let us know i walked out i hurt so bad but i will not be treated like a drug addit when iam not

     

     

     

  • Rascus
    Mar. 19, 2009

    Just to say thanks for all the replies, I have not been on here lately as Ive been constantly fighting with Dr and Insurance....trying to get my Dr to do his job...which he wont only plays little God games...now he has me getting my Oxycontin on the 1st of the month and then on the 15th of the month will prescibe my Breakthru meds...go figure that one. Had...

    RHMLucky777

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    Just to say thanks for all the replies, I have not been on here lately as Ive been constantly fighting with Dr and Insurance....trying to get my Dr to do his job...which he wont only plays little God games...now he has me getting my Oxycontin on the 1st of the month and then on the 15th of the month will prescibe my Breakthru meds...go figure that one. Had to change Insurance as Humana after covering Oxycontin for the last 4 years stopped coverage..anyway now with the Dr playing his little games Im searcing for a Suboxone Dr...nearly impossible...guess you have to be rich. Anyway thats where Im at...along with writing to Senators and Congressmaen trying to wake them up,,,no luck yet tough .All of you in the same position keep the faith and dont give up hope as I do believe we are going to se change come at sometime,,,the sooner the better....Frank

  • Anonymous
    diane
    Nov. 21, 2008

    your letter touched me and angered me.  I do not believe it is legal for a doctor to "abandon" a patient who is on narcotics for the length of time you have been.  I am very interested to know the medication you are taking.  Back to abandonment--they must refer you to someone else.  I take 4 7.5 vicodan a day, on a good day thats ok...

    RHMLucky777

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    your letter touched me and angered me.  I do not believe it is legal for a doctor to "abandon" a patient who is on narcotics for the length of time you have been.  I am very interested to know the medication you are taking.  Back to abandonment--they must refer you to someone else.  I take 4 7.5 vicodan a day, on a good day thats ok on a bad leg day it doesn't even touch it.  my doctor and i go round and round about this, oxycontin, neurontin elavil etc. etc. do not work.  i give myself a shot of copaxone every day--still more plaques forming on my brain, but not as many relaspes--it is not meant to help pain and doesn't.  I am desperate to find a narcotic that will help me on those bad leg days when pain is in the 12 category and i know i should go to the hospital for a shot of demerol,  but i don't i was down that road ten years ago when finally diagnosed with a-typical trigeminal neuralgia (more common in people with MS).  But that's another story.  MY doctor says narcotics don't work for "nerve pain" the  burning pain we have.  They do work for me.  I know that I am dependent on the narcotics so that i may have some quality of life.  MY world has become smaller in the last couple years because of MS, but i'm ok with that. I have had the disease for 19 years and have kept a positive attitude.  ANY INFO relating to pain relief with narcotics would be GREATLY appreciated.  If there is a doctor out there who understands a response from you would be great.  During the tri-geminal time i wore a duragesic patch and was allowed 6, 7.5 vicodan a day for breakthrough pain--that worked.   Sincerely, Diane  I am thanking anyone in advance who has help for me.

     

    • Anonymous
      Anonymous
      Jan. 08, 2009

      The body is a powerful self healing mechanism once freed from the burden of the inflammatory acid food groups and chemical additives. I found a drug free strategy that works on pain by reducing these inflammatory acid foods in the diet and can include affordable natural adult stem cell enhancement created by Dr Christiab Drapeau.

       

      I'd be happy to...

      RHMLucky777

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      The body is a powerful self healing mechanism once freed from the burden of the inflammatory acid food groups and chemical additives. I found a drug free strategy that works on pain by reducing these inflammatory acid foods in the diet and can include affordable natural adult stem cell enhancement created by Dr Christiab Drapeau.

       

      I'd be happy to share with all interested!

       

      Byron Whitman

      bwhit177@ptd.net

      www.stemcelledu.org

       

  • Anonymous
    Anonymous
    Nov. 15, 2008

    Like you, I've been having the same problem.  My doctor left the state at the end of last year.  My neurologist referred to a pain management clinic.  However, I don't really like the type of treatment I'm getting there lately. I've done all the injections this year, and sad to say, none of them worked for me. Now, because they finally realize...

    RHMLucky777

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    Like you, I've been having the same problem.  My doctor left the state at the end of last year.  My neurologist referred to a pain management clinic.  However, I don't really like the type of treatment I'm getting there lately. I've done all the injections this year, and sad to say, none of them worked for me. Now, because they finally realize that I will need to be on medication constantly (as I have been for 12 years); they are now trying to find an excuse to stop treating me. I've tried to find another doctor to take over but I haven't had any luck there. We don't have a lot of pain doctors in my area. I did travel 100 miles to visit a new doctor, but after meeting her, I knew that it wouldn't be a good match.

     

    It is extremely hard to find a really good doctor. Any type of doctor. But to find a doctor that is willing to work with you on your pain issues is almost impossible.  The pain doctor I have right now, acts as if he is "god".

     

    My neurologist recently sent me to Mayo Clinic, and I return there in 2 weeks. I am to see a pain doctor there also. Hopefully, they can help me find someone that will work with me.

     

    If you have insurance, call them.  Ask them if they know of pain doctors in your area.

     Ask them for suggestions on how to find a doctor.  I know this probably isn't a lot of help, but all I can really say is, hang in there. I know it's really rough at times, but it's about all we can do.

     

    • pamela700
      Nov. 17, 2008

      hi frank+all,

       

      i had a similar problem, my excellent doc (pain mgmt+anesthesia+accupuncturist) retired, and i was handed off to another good doc in the same group. i never had a 'too early' prescription request, and we increased dosages etc. slowly and only as needed. i also tried 4 series of 3each cervical epidurals+trigger point injections, none of...

      RHMLucky777

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      hi frank+all,

       

      i had a similar problem, my excellent doc (pain mgmt+anesthesia+accupuncturist) retired, and i was handed off to another good doc in the same group. i never had a 'too early' prescription request, and we increased dosages etc. slowly and only as needed. i also tried 4 series of 3each cervical epidurals+trigger point injections, none of which helped (at the time i had 5 severely herniated discs in my neck as a result of being a passenger in a tow truck accident, starting at age 33). accupuncture helped a bit, but it was oxycontin+percocet for breakthrough that allowed me to live my life somewhat. (i'm on permanent disability from this problem.) however, the 2nd doctor, after about a year, decided to split up the practice, and his new practice would not take any medicare patients. he warned me, as i had my last appointment with him, that 'it would be very hard to get oxycontin from anyone'. he didn't offer me a referral at all, although i was happily given copies of my medical records for free.

       

      i then began calling all of the pain management doctors within a 50mile radius. hard for me, too, because i can't drive due to my injury (so i can't get my county transportation folks to take me very far). anyway, almost 90% of the pain clinics and docs i spoke to stated right up front that they DON'T PRESCRIBE NARCOTICS. i don't know how they expect to treat 'chronic intractable pain' without it!!! i did press on, and finally found a doc who would help.

       

      i then also found another doc who did a minimally invasive procedure on the 2 worst discs, called disc nucleoplasty, done through needles and using a radio transmitter (they 'vaporize' some of the bulging disc nucleus, and can also use the very-low-temperature transmitter to fix tears in the outer covering of the disc, almost like welding it back together). the procedure wasn't covered under medicare, but that doc worked with me and the manufacturer of the device to have almost all of the 18,000 waived (medicare paid 1800 for the hospital services, and i paid about 500). it was amazing - i actually felt my arms come back to life somewhat while still on the operating table! (yes, had to be awake for the procedure).

       

      i was able to wean myself off of the oxycontin and percocet in 38days after the surgery, at home, by halving my dosages gradually and increasing the times between dosages. i have lived without narcotics just over 3 years now! yay! although i cannot honestly say there haven't been times i should've had them in the house for an emergency/severe breakthrough, i've been able to manage with lots of advil, heat, and relaxation techniques.

       

      sadly, my condition recently worsened, and i find i will be facing neurosurgery to rip out 5 or 6 of the offending discs and rebuild my cervical spine with bone+titanium. apparently, they were unwilling to do more than 2 levels in someone so young (i.e., fusion), but i now have moderate to severe spinal cord compression, and that's bad. so i have hope i can be rebuilt, at age 42.

       

      all i can really say is, don't lose hope, keep searching and you will find a doctor to help you. you're really the only one who can do it, no one can do it for you, and you've got to keep it up no matter how discouraging it can be. i know the endless 30day cycle of being on narcotics is really hard, but it does NOT mean you're an addict. addiction is when you live only for the drugs, how to get the drugs, get more of them, etc. taking narcotics as prescribed for pain relief (not for a HIGH) does mean that your body is physically accomodated to them, but not ADDICTED. there's a huge difference. don't let anyone tell you you're a criminal for needing medecine to survive.

       

      good luck with your search!

       

      ---pam

  • Anonymous
    Bobbie
    Nov. 14, 2008

    I think your biggest problem is getting a doctor like the one who left.  You need a doctor who is willing to see you and not the preconceved notions he has when you walk in.  Perhaps a medical professional who will take the time to listen to you and sift through what is said to find the basic problems causing your pain.  You should be treated...

    RHMLucky777

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    I think your biggest problem is getting a doctor like the one who left.  You need a doctor who is willing to see you and not the preconceved notions he has when you walk in.  Perhaps a medical professional who will take the time to listen to you and sift through what is said to find the basic problems causing your pain.  You should be treated with respect and believed.  You should be given the best there is - even if you have to try several different methods before you find relief.

    That being said...is there a health care professional out there willing to do this and not just give out the latest "TV" meds?

    Hace you gone to the new spinal decompression chiropractor?  They use a machine that decompresses your spine while you lie down - PAINLESSLY.  Give it a try.  Keep us updated as we care.

  • Rascus
    Nov. 13, 2008

    Thanks folks for all the comments and some of your own stories and experiences. At this time I am still in the process of locating another Dr,though my previous is somewhat working with me but who knows for how long. I just keep trying new avenues and doing the best I can as that really seems to be all that we can do, have a few leads and am moving to a different...

    RHMLucky777

    Read More

    Thanks folks for all the comments and some of your own stories and experiences. At this time I am still in the process of locating another Dr,though my previous is somewhat working with me but who knows for how long. I just keep trying new avenues and doing the best I can as that really seems to be all that we can do, have a few leads and am moving to a different area myself ,a larger city and hopefully with maybe more to offer in the way of treatment. And to all who replied I wish you all the best in your search for the relief you may need....regards Frank

    • starryeyed
      Nov. 13, 2008

      Frank,

       

      I am sorry for your pain and problems.  I do understand about the doctors.  At 19 I was hit by a semi truck in a 51 vw bug which has for 40 yrs has caused me nothing but problems. Besides my neck which they want to put 2 titaium implants But there is a good disc in middle it will colapse eventually and need more surgery, I have...

      RHMLucky777

      Read More

      Frank,

       

      I am sorry for your pain and problems.  I do understand about the doctors.  At 19 I was hit by a semi truck in a 51 vw bug which has for 40 yrs has caused me nothing but problems. Besides my neck which they want to put 2 titaium implants But there is a good disc in middle it will colapse eventually and need more surgery, I have developed fibryomalgia and lost my right jaw joint and had 2 brain surgeries for an AVM and 5 brain seizures after the first surgery.  So I know about losing and finding doctors.  With fibro for many years you lived with the pain because "It is all in your head or your stressed or better yet your menopausel (at 20, 30 ,40 )  OK then why do some men have it?  Well ofcourse when I do find a doctor he eventually retires then yrs again and finally find fantastic one and he goes totally into research.  But he did give a list to his patients of doctors who would help.  But I have found that you have to be your own advocate in this.  You have to sort of shop for a good one and tell them if they plan to leave give you a referal.  I used to be intimidated a bit by doctors but they work for you plus they are just like  us but they studied to be a doctor.  So the will eventually leave you.  But make them give you referrals or as suggested by one post here the universities are a great way to at least get referalls.  Personally,  I am on only 3 meds now not for pain.  I react strange and truthfully have not found one that really works well enough for me to want to take.  Basically I pray alot, and sometimes cuss allot (when no one is around, lol)  But I don't use the meds since they don't help and I stopped taking my sleeping pills (sleep 3 to 4 maybe sometimes 5 hrs)

      because I sleep the same amount with or without them.  I use moist heat,hot tub, creams like heat anything, chiropractic, although right now till avm goes away not suppossed too.  Massage is great.  Unfortunetly all is temporary as are the meds.  Haven't tried pain clinics although it has been recommended so you may try that, my understanding is they even help wth your meds.  I wish you the very best of luck.  I quess what I am trying to say in a long winded way is for you to hang in and search and know you are not alone.

      bless you

      starryeyed

    • Anonymous
      Coral Ann Cowan
      Nov. 13, 2008
      Rascus, have you tried an herbalist who does muscle testing, This was my life giving help. I Thank the Good Lord every day for the wonderful help an herbalist gave me. takes a bit longer, but the results are fantastic.
    • nwichlet
      Nov. 17, 2008

      Hi Frank,  I truly understand and have gone through the same myself.  I have had two knee replacements, cervical disc repair, fibromalsia, problems from car accidents, etc.  I finally found a good pain management Dr. who prescribes me "Kadian" (time release morphine), and oxycodone for breakthrough.    I pray that I never have...

      RHMLucky777

      Read More

      Hi Frank,  I truly understand and have gone through the same myself.  I have had two knee replacements, cervical disc repair, fibromalsia, problems from car accidents, etc.  I finally found a good pain management Dr. who prescribes me "Kadian" (time release morphine), and oxycodone for breakthrough.    I pray that I never have to go through the process of finding a decent doctor again.  As you know, "primary care drs." most likely do not prescribe "narcotics" unless you are lucky.  It sucks that in this world, getting help for "pain", just so you can get up in the morning, is as difficult as "wining the lottery.  I pray for you and everyone else that needs help in this matter.  nwichlet@yahoo.com

  • Anonymous
    Coral Ann Cowan
    Nov. 13, 2008
    If you find any answer to your dilemma, I would sure like to know what it could be, I have lived with Sciatic nerve problems since I was 12. At 70 they tell me, finally what that is, and that I have Scoliosis.' At 74 they added Spinal Stinosis. It is I guess just something one has to live with, Remember Paul, he lived with what he called a thorn in his side...
    RHMLucky777
    Read More
    If you find any answer to your dilemma, I would sure like to know what it could be, I have lived with Sciatic nerve problems since I was 12. At 70 they tell me, finally what that is, and that I have Scoliosis.' At 74 they added Spinal Stinosis. It is I guess just something one has to live with, Remember Paul, he lived with what he called a thorn in his side till he died, asked God to remove it, and God said I do my best work thru you when in pain. Best of Luck to you,
  • sioux28110
    Nov. 13, 2008
    I too have found this situation in Monroe, NC; diagnosed in 2000 with Fibromyalgia, brilliant young doctor right out of university knew right off what my pain was coming from. I have been on all sorts of pain therapies, along with massage, accupuncture, injections, muscle relaxers, sleeping pills. Two years ago my wonderul doctor leaves for another state -...
    RHMLucky777
    Read More
    I too have found this situation in Monroe, NC; diagnosed in 2000 with Fibromyalgia, brilliant young doctor right out of university knew right off what my pain was coming from. I have been on all sorts of pain therapies, along with massage, accupuncture, injections, muscle relaxers, sleeping pills. Two years ago my wonderul doctor leaves for another state - I see another doctor in the same practice -- they say I'm sorry but I do not prescribe such and such - I was in shock. I then urgently went back to Pain clinic doc who says let's do injections (again) - have you ever had injections into trigger points - NO THANK YOU!!! At this point I have no doctor and my morphine script is due to run out in a week. I finally find a wonderful doctor who after much debate and discussion and research on her part prescribes morphine, etc. and to this date she works and adjusts my pain meds as needed. I wish you luck Frank - unfortunately doctors come and go...and perhaps someone reading my post and your post will tell us how to advocate for better ways of those truly in need of pain control get it. Sue
    • CJSwanson
      Nov. 13, 2008

      Trigger point injections are fast and work immediately.  Not painful beyond the normal injection, as a flu shot, etc.  Don't rule these out.  They last only 4 weeks, but a blessing just the same.  I have these regularly (monthly) in the neck and shoulders since RFA made things far worse there.  We can only assume it is due to the cadaver...

      RHMLucky777

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      Trigger point injections are fast and work immediately.  Not painful beyond the normal injection, as a flu shot, etc.  Don't rule these out.  They last only 4 weeks, but a blessing just the same.  I have these regularly (monthly) in the neck and shoulders since RFA made things far worse there.  We can only assume it is due to the cadaver bone replacement for the disks and possibly the plate attached to the spine.  No other reason for this reversal any of us could come up with.  I'm the one who suggested the above reaction and the doctors (3) agreed. 

    • sioux28110
      Nov. 13, 2008

      Thanks - I probably didn't like these injections because there was no real relief.  But in fairness I was in a bad state by the time I came to see the Pain Clinic Doc.  I have had numerous injections in upper back, shoulders in particular, with the best possible results prior.

       

      I'll probably consider this route the next flair up that comes my...

      RHMLucky777

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      Thanks - I probably didn't like these injections because there was no real relief.  But in fairness I was in a bad state by the time I came to see the Pain Clinic Doc.  I have had numerous injections in upper back, shoulders in particular, with the best possible results prior.

       

      I'll probably consider this route the next flair up that comes my way.Smile

    • Anonymous
      Coral Ann Cowan
      Nov. 13, 2008
      I aure do wonder, when doctors are going to wake up and start using products that get rid of Fibromyalgia. I hear so many people, when asked do you want to get rid of it? Their answer is always no, it is incurable. Long as doctors, keep getting their money with patients coming in on a regular basis, they won't give the help that is needed. Sorry, for the bad...
      RHMLucky777
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      I aure do wonder, when doctors are going to wake up and start using products that get rid of Fibromyalgia. I hear so many people, when asked do you want to get rid of it? Their answer is always no, it is incurable. Long as doctors, keep getting their money with patients coming in on a regular basis, they won't give the help that is needed. Sorry, for the bad comments, but one does not have to live with this affliction, once they are diagnosed. I was so unhappy when they used to tell me, go home, and soak in a hot tub, it was all in my head. But they would not help when I needed it. I have heard the comments when people ask if they can take something, go ahead rub it on your heel, see if you get relief, then laugh. It is so much easier to get rid of than live with it. I sure do hope all of you find something that will help you.
  • Anonymous
    Bella
    Nov. 13, 2008

    I'm so sorry to hear of your situation,  I'm near it as I've just moved from Nashville to Ft Lauderdale and the wait to see a new DR (and who know's if you will even like) is long and considerable.  My background is a diagnosis of Multiple Sclerosis back in 96 and 5 spinal surgeries all with the placement of titanium over the last 10 years, the most...

    RHMLucky777

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    I'm so sorry to hear of your situation,  I'm near it as I've just moved from Nashville to Ft Lauderdale and the wait to see a new DR (and who know's if you will even like) is long and considerable.  My background is a diagnosis of Multiple Sclerosis back in 96 and 5 spinal surgeries all with the placement of titanium over the last 10 years, the most recent being in June.  Although we had anticipated the move we didn't expect it to happen within 2 wks.  I have refills on my "refillable" meds, My pain Doctor wrote me one month of Generic MS Contin for down here just in case I could find a Pharmicist willing to verify with my pain Dr that she did indeed write the script, sadly no such luck however I pretty much figured thats how it was going to be so I started tapering off my MS Contin (not because I have less pain but because there isn't much else to take for pain) I am wondering the best route to go to find new pain management.  I've been to several in my time,  some who are great some who dont believe in pain, and all make you feel like a criminal.  So I do sympathize with you and hope you find the relief you need.  Take care and God Bless  Bella

  • Anonymous
    CJ
    Nov. 13, 2008

    As with you, I lost my doctor when he retired.  A young GP took over his practice and rather than admit he wasn't up on chronic pain, or the vertigo I developed from the freeway accident (rear ended), his attitude of it not really the level I was dealing with daily.  After about a year of suffering daily and being on the suicide track, I went to the...

    RHMLucky777

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    As with you, I lost my doctor when he retired.  A young GP took over his practice and rather than admit he wasn't up on chronic pain, or the vertigo I developed from the freeway accident (rear ended), his attitude of it not really the level I was dealing with daily.  After about a year of suffering daily and being on the suicide track, I went to the pain management center of a local medical center that is a part of a University.  Via their tests and evaluation it became apparent my situation was not only very real, but incurable.  In part from the surgery on my neck, where a nerve was pinched (vertigo resulting) as well as the pain over the majority of my spine.  I've been treated with steroids, trigger point injections and RFA.  The last is the most painful, but the results are well worth it.  In addition, most pain medications make me violently ill and won't stay down.  Now I take Tylenol #4 and this does reduce the pain level, along with the aforementioned procedures, to where I am a functional person again.  I do have a wheelchair for when going out for dinner, etc., and use a scooter to run my errands since this state frowns on those with vertigo holding a drivers license.  Other times I use a cane unless only walking short spurts around the house.  Don't give up, whatever you do.  There are those out there who will continue to work with you to obtain some level of relief.  If you are anywhere near a university with a medical department, contact them to see what is available in the pain management.  If they do not have this, most likely they can refer you to someone who specializes in this field. 

    • Anonymous
      Coral Ann Cowan
      Nov. 13, 2008

      To CJ, Good for you, I got a scooter, and travel all over town, the fact that we have to live with pain, doesnt. mean we are ready for no more life. I carry treats for the dogs I run across, and get to meet their owners. People tell me they know me, they see me out riding all over the country side, keeps me smiling and my spirits up.

    • CJSwanson
      Nov. 13, 2008

      I take my dog with me on most of my jaunts, other than the grocery, and she has become the sweetheart of many.  Rather than walk/run, the spoiled character rides with me, often laying down. People wave and smile from passing cars, kids love it and we are well known all around town.  This scooter has given me the freedom and independence I thought...

      RHMLucky777

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      I take my dog with me on most of my jaunts, other than the grocery, and she has become the sweetheart of many.  Rather than walk/run, the spoiled character rides with me, often laying down. People wave and smile from passing cars, kids love it and we are well known all around town.  This scooter has given me the freedom and independence I thought I'd never have again, and is my sanity point when cabin fever grabs hold.  From going full ahead to stop was a horrid transistion I couldn't handle, but that is now a thing of the past.  Depression only adds to the pain level.

    • Anonymous
      Coral Ann Cowan
      Nov. 13, 2008
      How wonderful to hear from you, if I could have a dog, I know I would do the same. But living in Assisted living, tho some do have cats in the building, i WOULD want both dog and cat, and so have to do without, besides my meager allowdance won't pay for so much. But that scooter has been a life saver for me, and all the dogs I do run across, come running when...
      RHMLucky777
      Read More
      How wonderful to hear from you, if I could have a dog, I know I would do the same. But living in Assisted living, tho some do have cats in the building, i WOULD want both dog and cat, and so have to do without, besides my meager allowdance won't pay for so much. But that scooter has been a life saver for me, and all the dogs I do run across, come running when they see me. Smiling. Coral Ann
    • CJSwanson
      Mar. 19, 2009

      I'm sorry you are where you can't have a pet.  My little girl is an assist dog, but when I'm doing well the assist goes the other way, since I've spoiled her.  Now I want to get a cat to keep her company so maybe she won't stalk me all the time.  I know she is just keeping track of me, but since she is distracted when other animals are here,...

      RHMLucky777

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      I'm sorry you are where you can't have a pet.  My little girl is an assist dog, but when I'm doing well the assist goes the other way, since I've spoiled her.  Now I want to get a cat to keep her company so maybe she won't stalk me all the time.  I know she is just keeping track of me, but since she is distracted when other animals are here, I'd love the break. 

       

      Yesterday I went for the spinal injections, which were increased due to the fact my back is continuing to worsen.  I returned home very sick and barely able to walk, with assistance, for around 8 hours, having to lay down during this time.  Minnie was right on the bed with me and would regularly check to see if I was breathing.  A habit she took on whenever I'd lay down during the day.  I can open my eyes, but she still doesn't accept I'm alive until my chest moves sufficiently or she can feel my breath on her nose.  It's hard not to laugh at her, but she sees this as her job.  Now it's 22 hours after the fact and she hasn't been more than 3 feet from me at any time.  I have to go outside and force her to follow just to let her relieve herself.  She won't go unless I do this.  I swear she'd get to the point her eyes would float.  She is great company and gives me a sense of security I didn't realize I'd have with her, or that I believed I needed.  Wrong again, in my old age. 

    • wanderer
      Mar. 19, 2009

      I've been in pain since a car accident in 1994 - it was work related, so was on Worker's Comp. I couldn't turn my head so couldn't drive for a year. Friends took me to therapy daily. After 5 years I had surgery to repair a T7-T8 disc rupture. It failed to help me, and fibromyalgia had started by then. I had to wait 2 years for the pain clinic, but I had a very...

      RHMLucky777

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      I've been in pain since a car accident in 1994 - it was work related, so was on Worker's Comp. I couldn't turn my head so couldn't drive for a year. Friends took me to therapy daily. After 5 years I had surgery to repair a T7-T8 disc rupture. It failed to help me, and fibromyalgia had started by then. I had to wait 2 years for the pain clinic, but I had a very helpful pain doctor who prescribed appropriate meds that helped dull the pain, but never relieved it. Before the surgery Worker's Comp tried 3 times to make me return to work. They sent me to their assessment center to see if I was faking the pain. I was followed for a long time. had a miniature camera installed above my back yard to spy on me to see if I'd be lifting boulders or something. After about 7 or 8 years, they put me on a pension. THe pain clinic has been a godsend. I get an epidural, SI blocks and 17 trigger point injections once a month for 3 months, then nothing for 3 months at the end of which I"m screaming to get back for the treatments. I have had 3 RFA's and the first one gave me almost total pain relief in my left shoulder/shoulder blade area for 6 months, and then it returned. I had another one last November, and it's still good. The doctor who does the RFA's tried it on my SI joints, and it didn't help. My low back pain, neck and headaches are tolerable with the trigger point injections. I am on oxycontin, oxycodone, buproprion, lyrica, lorazepam, cymbalta and imovane for sleep. My doctor put me on 2000 iuVit D, and may up that, as it is purported to help pain as well.

      Wanderer

    • painfull
      Apr. 14, 2010

      where is a good dr i cant, fine one how do you fined a pain dr i live in cda or spokane wash, help please

  • Anonymous
    Mike
    Nov. 11, 2008

    I am a pain med person who finally went the suboxone route and am off of vicodin and valium which have destroyed my life that I once had.If you continue on heavy pain meds sooner or later you will be an addict and be ruled by the drugs and will think of one thing only how to get my pain meds.I was there and I still have pain but suboxone saved what little life...

    RHMLucky777

    Read More

    I am a pain med person who finally went the suboxone route and am off of vicodin and valium which have destroyed my life that I once had.If you continue on heavy pain meds sooner or later you will be an addict and be ruled by the drugs and will think of one thing only how to get my pain meds.I was there and I still have pain but suboxone saved what little life I have now.I lost my wife and am now on disability but it is better than the other way.I know that pain can rule your life and I hope you can find another Dr.to help you but the fact of the matter is long term use of heavy narcotics will take over your life and damage your kidneys and other organs and of course it will rule your life and become the most important thing in your life.I guess I don't have a good answer except that I realized I could make it with less pain meds than before,If you have insurance you might want to try suboxone if not try a pain manangement clinic.They maay be able to help you with your pain meds.Good Luck and God Bless

    • Anonymous
      1stRed
      Nov. 13, 2008

       I've had a bum back for 30+ years when I blew out my first disk I missed a years work because of it I went thru all the therapy bed rest and other unpleasent prosedures they had to offer at the time and didn't put my foot down untill they decided it was time to start cutting and they said if I didn't have the operation I would be in a wheel chair by the...

      RHMLucky777

      Read More

       I've had a bum back for 30+ years when I blew out my first disk I missed a years work because of it I went thru all the therapy bed rest and other unpleasent prosedures they had to offer at the time and didn't put my foot down untill they decided it was time to start cutting and they said if I didn't have the operation I would be in a wheel chair by the time I was 40 if the operation didn't put me in one sooner it was than that I learned about chiropractors I am now in my 50s and still walking although quite bent over and not very far at any one time and as I have blown three more disks.

       Now that thats out of the way lets get to the meat and taters before I turned 50 the strongst pain medications I had ever taken were 4 bayer at one time which would probably still hold but about the same time that my back was melting I started bruising and bleeding easly so I am now in the position of only being able to take opoid pain relivers and have as yet to feel high or any thing like that but I have to admit that having the pain dulled is nice the only problem I have noticed myself is watching the clock so I can take the next dose before the pain starts to get bad again  as the worst time of the day is when I wake up and the half hour it takes me to get out of bed hobble out to the garage to get my morning fix of vicodin soma and cellebrex and get back to the fridge for somthing to wash them down with and fall into my chair then after about two hours when I can move I can start my day.

       After reading all of these stories starting in the morning after I take my morning fix I'm going to stop watching the clock leave the garage locked and see what happens. 

    • Anonymous
      Mike
      Nov. 13, 2008

      I understand and your situation is a lot worse than mine.Maybe they can put a opiod pump in you.I hope only the best for you.

    • Danedame
      Nov. 13, 2008

      I understand where you are coming from and have had the greatest relief since my Dr. put me on a time release pain med called Kadian.  It comes in either capsule or patch and it has made a great deal of difference in my life and how I am able to deal with chronic pain syndrome and failed back surgery.

    • Anonymous
      Anonymous
      Jan. 08, 2009

      Hello

      The body is a powerful self healing mechanism once freed from the burden of the inflammatory acid food groups and chemical additives. I found a drug free strategy that works on pain by reducing these inflammatory acid foods in the diet and can include affordable natural adult stem cell enhancement.

      I'd be happy to share with all interested!

       ...

      RHMLucky777

      Read More

      Hello

      The body is a powerful self healing mechanism once freed from the burden of the inflammatory acid food groups and chemical additives. I found a drug free strategy that works on pain by reducing these inflammatory acid foods in the diet and can include affordable natural adult stem cell enhancement.

      I'd be happy to share with all interested!

       

      Byron Whitman

      bwhit177@ptd.net

       

    • Anonymous
      diane
      Nov. 21, 2008

      Can you tell me what suboxone is.  I now take 4, 7.5 vicodan a day and it isn't doing the trick, so I take more and then suffer until prescription refill time.  It sounds like you've been there.  Pain in my legs reaches the 12 or 13 mark on the pain scale and I know I should go to the hospital for a shot of demerol.  I have been on...

      RHMLucky777

      Read More

      Can you tell me what suboxone is.  I now take 4, 7.5 vicodan a day and it isn't doing the trick, so I take more and then suffer until prescription refill time.  It sounds like you've been there.  Pain in my legs reaches the 12 or 13 mark on the pain scale and I know I should go to the hospital for a shot of demerol.  I have been on neurontin, elavil, etc. etc. oxycontin, they do not take care of the pain.  On a good leg day the prescribed meds do the trick, unfortunately for several months i have way more bad leg days then good.  I know I am "dependent" on the meds to function, but my theory is that I will not LAY DOWN to this disease because if I do I will become an invalid and that will be the beginning of the end.  I try to explain to the dr. that my body doesn't react to meds the way a regular persons does, the plaques on my brain are so numerous they can't be counted and who knows about my spine.  It seems i cannot get through to the doctor, i would be THRILLED to get pain relief with something non-narcotic, but i've run the gamet on those meds and it didn't work, the only thing that has given me relief has been narcotics.  Thanking you so much in advance for any help  that can be given.  Please if you are a doctor and read this your response would be most appreciated.  Sincerely, Diane

    • Anonymous
      Mike
      Nov. 21, 2008

      DIANE,I am sorry if I misimformed you about this medication.Suboxone is a opiod type drug to help you get off opiod drugs.It is really for detox and then it is used as maintance to stop the cravings for opiods.If you take suboxone and then take vicodin or any opiod drugs you will have a bad reaction.I am sure your pain levels are to bad for this but I found...

      RHMLucky777

      Read More

      DIANE,I am sorry if I misimformed you about this medication.Suboxone is a opiod type drug to help you get off opiod drugs.It is really for detox and then it is used as maintance to stop the cravings for opiods.If you take suboxone and then take vicodin or any opiod drugs you will have a bad reaction.I am sure your pain levels are to bad for this but I found out that my pain wasn't as bad when I got off vicodin 8tabs a day and valium 40 mils a day but I am not a doctor and you should speak with a doctor who can dispense suboxone and help you decide if this is better for you or not.I know I am able to do with less meds for my pain but everyone is different.I hope this helps but you must decide about your own pain.Suboxone does help with pain but it is mainly for getting off opiods.This drug is exspensive and no generic yet so it can be a hard decision.If you are running out before your refill is possible that was me it is a sign of addiction but pain is different for everyone.I hope this helps.You have to make the decision and that was the hard part for me.God Bless and take care.

    • Anonymous
      Anonymous
      Jan. 08, 2009

      The body is a powerful self healing mechanism once freed from the burden of the inflammatory acid food groups and chemical additives. I found a drug free strategy that works on pain by reducing these inflammatory acid foods in the diet and can include affordable natural adult stem cell enhancement.

      I'd be happy to share with all interested!

       

      Byron...

      RHMLucky777

      Read More

      The body is a powerful self healing mechanism once freed from the burden of the inflammatory acid food groups and chemical additives. I found a drug free strategy that works on pain by reducing these inflammatory acid foods in the diet and can include affordable natural adult stem cell enhancement.

      I'd be happy to share with all interested!

       

      Byron Whitman

      bwhit177@ptd.net