Disappointment again!

By tjhelser Thursday, July 17, 2008

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AFTER BEING REALLY SICK FROM FIBRO AND A FEW OTHER ILLS, I HAD WHAT I LIKE TO REFER TO AS A REMISSION. FOR ALMOST FOUR YEARS I WAS DOING REALLY WELL, NUMBER OF DOCS, MANY RX RECIPES TO MANAGE MY PAIN LEVEL UNTIL THE RIGHT COMBO WAS FOUND. ONCE FOUND IT TOOK ME A YEAR TO REBUILD MY STRENGTH AND STANIMA UP AGAIN BUT I DID IT. I DON'T WANT TO GIVE THE IMPRESSION I WAS WELL, BUT BETTER, ENOUGH SO THAT I WAS ABLE TO EVEN TO RETURN TO WORK PART TIME. AS AN ARTISTS DOING WHAT I LOVE AND BEING PAID FOR IT. CAN YOU IMAGINE MY LUCK?

THEN THE DISAPPOINTMENT SET IN AGAIN!

AFTER THOSE GLORIOUS FOUR YEARS I AM BACK TO BEING AT A FULL TIME #7-8 PAIN LEVEL AGAIN. THEN QUITE OFTEN I HAVE THE BREAK THROUGH PAIN WHICH BRINGS THE NUMBER UP PAST 10. I KNOW THAT THOSE OF YOU WHO HAVE ANY CHRONIC PAIN ILLNESS KNOW EXACLY WHAT I MEAN.

I'M FEELING AS IF I'VE LIVED THROUGH A DREAM AND WOKE UP IN HELL AGAIN. AS MUCH AS I TRY TO FIND THE POSITIVE IN THINGS THIS IS SOMETHING I AM STILL HAVING TROUBLE GETING PAST. YES, I AM BUMMED~ I KNOW WHAT I SHOULD DO ABOUT IT BUT AM AT A POINT WHERE I JUST DON'T CARE.

I FIND MYSELF HAVING A PITY PARTY FOR ONE AND SEEM TO BE ENJOYING IT. HOW SICK IT THAT?

I REALLY NEEDED TO SAY THAT OUTLOUD AND I THANK ANY OF YOU WHO ARE HERE READING THIS. I AM GRATEFUL FOR YOUR TIME AND EMPATHY.

GENTLE HUGS,

~ Tj ~

TMJ Vitek Implants

Comments (5) | Add comment

Get Better Naturally

7/20/08 9:58pm

Last year I lived in Louisville KY, and saw a Fibro specialist. Before that, I had no idea there were any specialists in this field. The clinic is Healing Options, and they did wonders for me; put me into remission. I'm on Darvocet 4 times a day (2600 mg), but he added Zyflammend (on iHerb.com), and Fibroboost (also on iHerb.com), which completely got rid of the mental fog in 10 days. In 1 year, the fog has not come back; these products are natural. However, the biggest breakthrough in pain relief was getting a shot of extremely low-dose testosterone. It lasts 30 days, and the side effect when it wears off is simply a couple of days of being a bit short tempered, acne breakouts on the trunk of the body.

However, we lived in a 3 level house, and I could literally run up and down stairs. Please contact your Dr to see if this is an option for you. God Bless You and Keep you safe..

marley

7/25/08 12:40am

I'm envious of your remission. How did you manage that? I've been searching for a drug that would at least get some of my life back, and I've been trying them all to no avail. The side effects are unbearable; nausea, vertigo, irritability, drowsiness. I guess my next step is acceptance of a way of life lost and a different, slower, less dynamic pace from now on. I have to admit that I'm not psyched, just defeated and exhausted.

sharoncookie

7/25/08 8:20am

Marley I sure know how you are feeling. I am there most of the time. You feel so alone, as nobody can know how you feel except those of us that have fibrom. Something what helped quite a bit is vit's I take one whole daily and C,E, B, D, calicum, and magnesium. I also do not eat sugar, white flour,prossese meat's like hot dogs or ham. Eat lots of fruits and vegs I buy canned fruits if I can't find fresh. Chicken, Fish, shrimp and one meal of beef a week. I try to stay on it and drink fruit juice when everyone is having coke ect! No solf drinks and most of all no diet anything as fibrom get's so bad on surar sub's. Hope that helps. Also when every one eats prossessed things like chips I have natural nuts and dried fruit. Take care Sharon

marley

7/25/08 10:01am

Sharoncookie,

Thanks for the advice. I have tried some supplements in the past, but perhaps not a good brand and always in combination with meds-hard to tell what was helping the most. May I ask which brand you use? Once I'm med free(almost there) I'd like to try a vit regimen & gauge its benefits.

Marley

sharon

7/25/08 10:16pm

nature valley for most. I dont take anything for my fibro except a mild non additive pain pill. I get them at grocery store , wallmart. hope it helps Sharon

Disappointment again!

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