Wednesday, February 15, 2012

Underlying Heart Condition

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Opae

Opae

Sun, May 24, 2009

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My doctors are aware that I have Long QT Syndrome, But three days ago now I had a really different and scary situation. I was working with my Homeschool teacher at my dining room table when all of a sudden i couldnt see. I took off my glasses and rubbed my eyes and they started to hurt terribly, I mean they hurt so bad I couldnt open them. When I finally did, I still couldnt see and it was like I couldnt feel them because I didnt even know they were open. I asked if they were, then I passed out. My teacher quickly went to get my mother, and they laid me on the floor. I wasnt breathing, and they said I hardly had a pulse. My mom started CPR and by the time paramedics got there amazingly I was beggining to come around. They rushed me to the ER where I was admitted to the ICU immediately. All that im telling you all is what ive learned from my family, I have no memory of anything before the Incident or any time during it. I was released from the hospital today, And put on a portable heart monitor. My Cardiologist believes this is all realated to my Auntonomic Dysfunction. My other doctors arent so sure. Anyone have some insite?

5/28/09 6:46pm

Opae,

 

I really don't have an insight but I would think that your cardiologist would know best about that sort of thing.

 

This must be very scary for you and sometimes not being able to understand something can be the worst thing of all I think. 

 

I know this is hard to do but try to keep your anxiety level down as much as you can and I think that you need to remember that just because this happened once doesn't mean it will happen again....sometimes things are just one time incidents and sometimes they don't have a real good explanation to go with them.

 

It is good that you have your family so close by just in case anything were to happen and it seems like you are getting excellent medical care.

 

Do you have chronic pain associated with something else?

 

Just know that there are those out here that understand what you are going through or as best as we possibly can and I wish you the very best and will be thinking about you.

 

Take care, you seem like a very cool person and have a lot to offer the world.

 

Randy.

 

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