Wednesday, February 15, 2012

Endless, Endless, Endless

Written by

Holly

Holly

Mon, September 08, 2008

The pain is truly Endless...and even though none of us wants it, those of us with Fibromyalgia live with it Endlessly.  Every day I wish that I could have freedom from pain...but it is Endless.  My friends and family hear of it, bear with me, support me, but, I'm sure, tire of it, Endlessly.  I feel locked behind a closed door, Endlessly entombed, eternally doomed, Endlessly reminded...of pain.  My prayer is for the end of pain for all of us who suffer...Endlessly. 

My name is Holly, and I live with Fibromyalgia.  I was diagnosed in 1997 after wondering "forever" why I was always "sick."  The constant pain, fatigue, brain fog...I was too young for that!  But now, eleven years later, at least I understand what it's all about, and how to best deal with it.  I have been to countless doctors, as I know thousands of others have, and my knowledge and understanding makes it livable.  I try to educate others, including my doctors, to this terrible disease, and to support my fellow sufferers.  I hope some day there will be a cure for Fibromyalgia...but until then, let's celebrate what is NOT wrong with us!

5/ 1/09 4:07am

I admire your spirit when you say that until there is a cure "we will celebrate what is NOT wrong us!" That is so true, my Dear.  Have faith, and keep speaking out and keep your head up. God bless you much!

Anonymous
Hopeful Annie
5/15/09 7:34pm

Your letter describes so many of us out here, I just wanted to say, I was diagnosed with fibromyalgia in the late 70's.  It was called Epstien-Barr Syndrome, then Chronic Fatigue and now Fibromyalgia. I had to dig for info and few doctors understood. I understand your article on Endless Pain, and my can I empathize with it. Keep up the good work, educating. I found articles and took them in, one doctor, the first who checked it out after I had read an article in a magazine about it, told me he didn't want to test me for Epstein-Barr because few came back positive. They were astounded when mine came back positive. Hang in there and let's pray our doctors become more and more enlightened. I am always tired, fatigued, make it through each day by sheer will power, and have had to curtail many of my activities. I cry sometimes from pain. Now so many other health conditions have come into play, I just thank God for what He has done for me.

5/16/09 11:55am

Greetings...well, you have suffered for even longer than I.  I was diagnosed in 1997, which seems like lifetimes ago.  Indeed, fibro certainly curtails a lot of activites...and when I have a flare--forget about everything!  Ugh.  But, I take pain meds, I cry to myself, I soldier on...and am thankful for every day that I can walk, rather than crawl, to my bathroom in the mornings.  It just really sucks!Yell  I also have rheumatoid/psoriatic arthritis, so my joints are painful as well. My prayers are with you, and all of us sufferers from this dreadful malady. 

 

We can chat any time...God bless!Smile

Holly

Anonymous
Hopeful Annie
5/19/09 6:56pm

Holly, so sorry to hear about your suffering, but your spirit is good. Like you, I learned to press on, and most days am successful at it. Like you, I learned to cry to myself and to God. I take that time as my "prayer time" and go off into a room I set up in my house for my computer room and prayer room. I put on good uplifting music and talk to God about it all. We certainly need to remember our fellow sufferers in our prayers.  I saw a lady in an opthalmologist clinic today who captured my heart. She was telling her husband how to go on and that she had had a good life. It always reminds me that I am not having it nearly as bad as some others. I know you will make it, and yes, I could not agree more that when you have a flare, forget it! Everything goes out the window. All your plans are put on hold. I create kidney stones, and have had lithotripsy and stone removal 5 times. But, I watched my sister die from diabetes complications in September, I was diagnosed in February, so I am really trying to fight the good fight now. Thanks for your response, Holly. I hope you keep soldiering on and your bad days are fewer. Keep the faith!

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