Does anyone have trouble speaking?

Shauna Community Member December 18, 2007
  • Sometimes I have trouble getting out what I need to say or it comes out all jumbled up or even backwards.

    It's not that I have trouble thinking what I need to say, well sometimes with the fibro fog but, somewhere between my brain and my mouth the signal gets crossed. I was wondering if it's just me or is it the Fibromyalgia?

    It's so frustrating and I get so mad but, when whomever I'm talking to laughs, I have to laugh too, to keep from crying.

     

    It seems to be getting alot worse.  I try to take my time with what I'm saying and even that sometimes doesn't help.  Does anyone have any advise?

     

    Thank you for this web-site, it is a big help

    Shauna

21 Comments
  • Cindi
    Jan. 22, 2011

    I have wondered several times if I was coming down with alzheimers but I had somebody tell me jokingly, "nah, ya just have 1/2 heimers!"(and I like that.) I am curious to know the symptoms of adult add or adh cause I cannot focus on one thing for too long. I'll be making a blanket and I'm down to sewing the binding on and I start a new one and I may have...

    RHMLucky777

    Read More

    I have wondered several times if I was coming down with alzheimers but I had somebody tell me jokingly, "nah, ya just have 1/2 heimers!"(and I like that.) I am curious to know the symptoms of adult add or adh cause I cannot focus on one thing for too long. I'll be making a blanket and I'm down to sewing the binding on and I start a new one and I may have 3 or 4 I'm working on at one time cause I get bored. ecspecially at night, my brain doesn't want to shut down. I lose my place in conversations I have to ask "excuse me, I'm sorry, what was I saying?" if they weren't paying attention then you can just drop it and silently have your feelings hurt and go on. The word is always simple and I lose it and it sneaks up on me an hour later or in the night and like the light comin on and sometimes it takes a couple of days before that light bulb comes on and I'm waiting for it! Normally I finally remember it. I put stuff in such good places that I think I won't have a bit of trouble remembering my good place and then I forget. I go to the dr. for a x ray they give you directions on how to stand and I stand there and look at them like they spoke a language I've never heard before and they have to manually pose me. I ask the same dadgum question 15 times and have no recollection of it and that's one of my biggest pet peeves. I ask a question and if I don't get the answer in a way I can understand it I ask the same question but in a different way still looking for my answer.My husband says "You already asked me that and I answered you and I'm sticking to my answer and it's goin to be the same no matter how you phrase the question." I say "okay, what was the question and the answer!!?" If I get lost, oh man, it is not a pretty site! I have a major meltdown!! Go to do something on the computer that I use to do but haven't done in a month or so and it's completely gone, like I've never done it before! Makes you feel so stupid cause you struggled to learn it and now it's gone and you don't know where or when. I had a dr. explain it to me one time. He said "your brain is like a computer, it has chips(not Lays or Pringles!!LOL) and with FMS you will remember what you do on a day to day basis over and over like taking care of your family, you won't lose it, the things you do every day will stay with ya.. Your computer can only hold so much info and when it's full in order to add something new, something old has to go but don't beat yourself up over it. Accept that you can't help it. I ask a question then I ask a question about a totally new subject and my husband is standing there with this puzzled look and he says "that's not what we were talkin about, where'd that come from?" He says "do you know what it's like tryin to carry on a conversation with you and your brain "flittin"(that's what we call it) around to different things and I said if you think that's bad ya oughtta be on the inside!!"

    Sometimes with all this memory loss and pain and things being out of your control it gets overwhelming. When thiose times come, you know they'll soon go but when you're in the valley, in that moment where "this ain't fair". This is what I do there are so many people alot worse off. I can adapt, my family adapts and my real friends understand and show me grace. Just don't be so hard on yourself and remember this. "I once thought how bad I had it cause my feet throbbed and ached and I cried and conpained and felt sorry for myself and I looked up and I saw a man who had no feet."

    • mindboggling
      May. 30, 2012

      Well I have never laughed so hard in front of my computer as I have reading everyone's comments.  I couldn't believe what I was reading because this is EXACTLY what I've been going through for the last few yrs now.  I don't know if I  found it so funny because I'm relieved that other people have the same problem but omg...trying to find the right...

      RHMLucky777

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      Well I have never laughed so hard in front of my computer as I have reading everyone's comments.  I couldn't believe what I was reading because this is EXACTLY what I've been going through for the last few yrs now.  I don't know if I  found it so funny because I'm relieved that other people have the same problem but omg...trying to find the right word for something like "the fridge" and describing it like the big white box, I've been there so many times.  I just couldn't find the words to describe what I was going thru and everyone here just took the words right out of my mouth...WHAT A RELIEF!!!  What really scares me though and believe me I'm already scared enough as it is but it's when I can't even find the right words to describe what I want to say...now that's pretty bad.  What I can't figure out though is that it everyone here has FM, fibromyalgia right?  I don't have FM but still have the exact same problem as everyone here so what gives?  Could it be the meds I'm on maybe?  I take Wellbutrin for my menopause(I thougth it would be safer than taking hormone pills) and I also take Mirtazapine for a deeper sleep(I was waking up at 2 or 3 am and couldn't go back to sleep which made it impossible to work with very little sleep) and I am also on Synthroid for my Hypothyroidism.  I will discuss it with my Dr. and see what he says but in the meantime I'm sort of relieved to know that other people have the same problem.  So glad I found this site, thanks to all of you for sharing! 

  • Anonymous
    samm22
    Dec. 16, 2010

    im 22 and i have the same problem , sometimes i think im going crazy, just simple sentnces will come out all backwards and i start to pronounce words   wrong, or i want to say something so simple and it becomes a mess.

            i also noticed that it is hard for me to explain things , because when i do i just cant...

    RHMLucky777

    Read More

    im 22 and i have the same problem , sometimes i think im going crazy, just simple sentnces will come out all backwards and i start to pronounce words   wrong, or i want to say something so simple and it becomes a mess.

            i also noticed that it is hard for me to explain things , because when i do i just cant say it right, and it doesnt make sense !!! something so simple to explain becomes a task. sometimes i just dont want to speak because its becoming an everyday occurence :(  sometimes i wonder if it is a speech problem , because i looked up the symptons of FM and it seems like im too young for it, but who knows? does anyone know how to improve this disfunction???? lol

    • Anonymous
      tamim
      Aug. 25, 2012

      I have exatly same problems as you do. I thought it is only me who is going through these problems. I always have problem speaking with two or more people, but when I talk with one person I speak ok. When I see other people speak nice and easily without any intrupt in sentences I just wonder there must be somehing lack on me. Sometimes I speak good for...

      RHMLucky777

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      I have exatly same problems as you do. I thought it is only me who is going through these problems. I always have problem speaking with two or more people, but when I talk with one person I speak ok. When I see other people speak nice and easily without any intrupt in sentences I just wonder there must be somehing lack on me. Sometimes I speak good for few days then week later I feel like I don't know how to speak. During that period I can't even finish my sentence while I talk to someone. It is very hard for me to express the thought. If you find any solution to this please let me konw. Do you know name of this kind of disease?

    • Frieda
      Dec. 23, 2012
      Omg. I can't believe I found this site. This have been a problem that I thought only I was experiencing. I am actually crying right now. Everything I have read so far I am currently living with. I am so nervous when I speak because my words and my mind are on different pages. I've been to a neurologist, took numerous test and all came back negitive. Leaving...
      RHMLucky777
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      Omg. I can't believe I found this site. This have been a problem that I thought only I was experiencing. I am actually crying right now. Everything I have read so far I am currently living with. I am so nervous when I speak because my words and my mind are on different pages. I've been to a neurologist, took numerous test and all came back negitive. Leaving me to think I'm just losing my mind. I am not on any medicine, have no other medical issue, don't smoke or drink. I just want o get back to my normal self. Any help or advise will be great. Frieda
  • Anonymous
    ARule
    Mar. 11, 2010

    I to have the same problem with my words. Some days are just horrible.  Luckily my kids and husband are use to it know so I do alot of pointing and sptting words out at the same time.  It seems like I'm playing charades half the timeUndecided   Like if I want to tell one of them to check the fridge for milk before I go to the store I may end up point...

    RHMLucky777

    Read More

    I to have the same problem with my words. Some days are just horrible.  Luckily my kids and husband are use to it know so I do alot of pointing and sptting words out at the same time.  It seems like I'm playing charades half the timeUndecided   Like if I want to tell one of them to check the fridge for milk before I go to the store I may end up point at the fridge and saying look in that big white thing for milk, or check the big white cold place for the white drink.  I get it out, or they figureit out.  You are right though laughing is sometimes called for before you cry.

     

    Gentle Hugs,

    Amy

    • Marion
      May. 24, 2011

      Hi Amy and everyone on here,

       

      I understand exactly what you mean, I have fibro/CFS and you have good days and bad, I to struggle saying things, I was worried i was getting dementia im 54. I forget what im saying mid sentence, and there is not even a thread in my head to pull out what i was talking about. You feel so stupid, I also say the wrong words,...

      RHMLucky777

      Read More

      Hi Amy and everyone on here,

       

      I understand exactly what you mean, I have fibro/CFS and you have good days and bad, I to struggle saying things, I was worried i was getting dementia im 54. I forget what im saying mid sentence, and there is not even a thread in my head to pull out what i was talking about. You feel so stupid, I also say the wrong words, I could maybe say things like fence but it will come out sense they I would have to say I mean fence, it's not all the time but frustrating, I wont remember what something is called and have to describe it "say slipper - you know the things I wear in the house on my feet". I also get complete blanks when Im talking and seem to have to wait for my brain to catch up to remember the words.

       

      I have also started feeling unsteady and loose my balance for no reason at all, I even fell over the other day and I hadn't tripped or slipped on anything.

       

      There are so many symptoms attached fo Fibro, and you do feel as though you imagine them until you look at other forums and realise that they are real, and you arn't loosing your mind. Smile

  • Anonymous
    Anonymous
    Dec. 28, 2009

    Dear Shauna,

    You are not alone! Just last week I told my 48yr old brother that I had seen the "foreplay" (we were discussing a movie and I meant to say "preview" I felt a little embarrassed but thankfully he understood and only chuckled a little bit. So, yes it is a component of FM. Three years ago (before diagnosis) I discovered great difficulty in acquiring...

    RHMLucky777

    Read More

    Dear Shauna,

    You are not alone! Just last week I told my 48yr old brother that I had seen the "foreplay" (we were discussing a movie and I meant to say "preview" I felt a little embarrassed but thankfully he understood and only chuckled a little bit. So, yes it is a component of FM. Three years ago (before diagnosis) I discovered great difficulty in acquiring new knowledge and had to give up a course which I was studying (and had paid for). This brain fog had settled in well before I started any treatment. I feel I have had a little improvement (not as confused) since starting Cymbalta but still a long way from what was my "norm". I think one of the best tools you have is reaching out to others and sharing your and their journey down this FM road, after all knowledge is power.  Best wishes and good luck! Toni, Adelaide, Australia

    • Anonymous
      Sara
      Jan. 05, 2010

      OMG I feel the same. I will have my thoughts  but will just freeze or ramble infront of people explaining my ideas. It's soo frustrating.

    • Ozigal
      Jan. 05, 2010

      Hi, Anon here, how's your memory? I'm pleased to say that my mobility has improved since starting 90mg Cymbalta, I now have 1 good day followed by 2 or 3 bad days (instead of all bad days) and along with this my mental faculties have improved (not as confused or scatterbrained) so I'm back to doing my puzzles and word games, yay!

      I will not pin my hopes on...

      RHMLucky777

      Read More

      Hi, Anon here, how's your memory? I'm pleased to say that my mobility has improved since starting 90mg Cymbalta, I now have 1 good day followed by 2 or 3 bad days (instead of all bad days) and along with this my mental faculties have improved (not as confused or scatterbrained) so I'm back to doing my puzzles and word games, yay!

      I will not pin my hopes on ever getting back what I had so if I do it will be a wonderful turnaround. Good luck with your headspace I hope it too improves. Bye for now.

  • Deb
    Deb
    Dec. 23, 2009

    It can be very embarrassing. I try to avoid places where I'll have to speak publicly. It's not so bad in front of friends...they understand. Others, I'm sure, think I'm a moron. I wish there was a cure. Sometimes I think the fog is worse than the pain.

  • Anonymous
    ray2oo8
    Sep. 04, 2009

    thanks god.

    i found you. i think i have the same problem with you, and this problem has been bothering me for over ten years now.

     

    could you write to me, i'd like to talk to you some other time, discuss how to overcome this problem..

     

    please   ray2oo8@foxmail.com

  • Charis
    Aug. 21, 2009

    FRIEND,

     

    I am a professional public speaker and have had great success, but I had trouble in 2 out or 4 speaking engagements last year.  I had 2 international speaking engagements within 6 weeks, along with 2 other engagements.  At the moment I stepped onto the area where I was to speak (and be filmed!) I suddenly felt almost all my energy leave...

    RHMLucky777

    Read More

    FRIEND,

     

    I am a professional public speaker and have had great success, but I had trouble in 2 out or 4 speaking engagements last year.  I had 2 international speaking engagements within 6 weeks, along with 2 other engagements.  At the moment I stepped onto the area where I was to speak (and be filmed!) I suddenly felt almost all my energy leave me.  I asked for a bar stool, higher than the audience, but they had none, so I had to face the music.  Since speaking has been easy for me, I "faced the music."  I knew what I was going to say.  But as I began, I began to stutter.  I couldn't believe it because I have never stuttered in my life.  I have never stuttered since that night.  But it lasted about 5 or 10 minutes in my presentation. 

     

    That was hard to get over.  I felt I had let them down.  I was on fire with my subject. They were paying me well. 

     

    I need to build myself up.  I am trying, but have not yet succeeded.

     

    I wish you all blessing, joy in whatever turns you on, and felt love from God.

     

    Charis

  • Charis
    Aug. 21, 2009

    FRIEND,

     

    I am a professional public speaker and have had great success, but I had trouble in 2 out or 4 speaking engagements last year.  I had 2 international speaking engagements within 6 weeks, along with 2 other engagements.  At the moment I stepped onto the area where I was to speak (and be filmed!) I suddenly felt almost all my energy leave...

    RHMLucky777

    Read More

    FRIEND,

     

    I am a professional public speaker and have had great success, but I had trouble in 2 out or 4 speaking engagements last year.  I had 2 international speaking engagements within 6 weeks, along with 2 other engagements.  At the moment I stepped onto the area where I was to speak (and be filmed!) I suddenly felt almost all my energy leave me.  I asked for a bar stool, higher than the audience, but they had none, so I had to face the music.  Since speaking has been easy for me, I "faced the music."  I knew what I was going to say.  But as I began, I began to stutter.  I couldn't believe it because I have never stuttered in my life.  I have never stuttered since that night.  But it lasted about 5 or 10 minutes in my presentation. 

     

    That was hard to get over.  I felt I had let them down.  I was on fire with my subject. They were paying me well. 

     

    I need to build myself up.  I am trying, but have not yet succeeded.

     

    I wish you all blessing, joy in whatever turns you on, and felt love from God.

     

    Grace

  • Anonymous
    Mar
    May. 20, 2009

    Shauna, you are not alone.  The most frustrating thing for me is when a perfectly ordinary word will not come to my brain when I need it.  I may want to say "washing machine"  and can't remember what it's called.  Then I try to describe it, as in "that thing you put the clothes in to clean them".  The fibro fog is worse at some times...

    RHMLucky777

    Read More

    Shauna, you are not alone.  The most frustrating thing for me is when a perfectly ordinary word will not come to my brain when I need it.  I may want to say "washing machine"  and can't remember what it's called.  Then I try to describe it, as in "that thing you put the clothes in to clean them".  The fibro fog is worse at some times than others, but I truly understand how you feel.  Sometimes the wrong word comes out anyway, and others have to guess what I'm talking about.  It is quite embarassing, but those who know me understand, because they know my condition.  It's worse when I stumble over words in public.  Just keep up your spirits and don't let it get you down.

     

    Mar

  • Anonymous
    Keri
    Apr. 23, 2009

    What was I saying is one of the questions I ask most often....I've been diagnosed with FM for about 11 years now, I am 25 & feel like I'm 50 at least! I will be thinking of something...and as I go to say it...poof! it's gone...or mid-sentence & away it goes...Although it usually resurfaces when in a diferent conversation...So I just throw it out in...

    RHMLucky777

    Read More

    What was I saying is one of the questions I ask most often....I've been diagnosed with FM for about 11 years now, I am 25 & feel like I'm 50 at least! I will be thinking of something...and as I go to say it...poof! it's gone...or mid-sentence & away it goes...Although it usually resurfaces when in a diferent conversation...So I just throw it out in the mix...thankfully my friends have become used to it! I also have running thoughts....So between not being able to go a second without thinking something & forgeting my thoughts...it puts me is a unfortunate place...Sometimes when chatting with girlfriends, they tell me to slow down b/c I'm talking so fast...w/o realizing it...probably to just get everything out before I forgetLaughing...I have the hardest time trying to remember things...even the simplest things....It does get frustrating as you might have figured out already...I work two jobs (which is not easy with FM)...It's sad that I have to ask someone what they ordered 3 times b/c as soon as I hear it...I can't remember what was heard...& I am thankful that there is a sign with my other companys' name right in front of me...when I answer the phone sometimes my mind draws a blank & I look up at the sign...Also, when I speak sometimes the first letters of the words gets mixed up...like I'm speaking dislexic. Sometimes when I write that happens too, although I think it's just that my mind is going faster than my hand can go! All together, I think it's really crappy not to mention all the other 'lovely' things that go along with FM...When people ask me why this or that? I say...I'm just lucky I guess! They look @ me funny, but it's easier than trying to explain something to them that they don't understand!  Sorry for rambling...(that happens alot too...) I just wanted you to know that you are so not alone....& I hope that somehow it helps ya...

  • Anonymous
    Anonymous
    Apr. 12, 2009

    I have the same problem, it is so frustrating, I used to be so quick with my words and thoughts, now I feel like I am losing mind, if you figure anything out to help this I would be so greatful!

  • mawmawfarmer
    Dec. 18, 2007
    It is funny the same thing happens to me. I totally forget someone's name or the word that I am trying to say at the moment. Me personally I think it has something to do with all of the pain medication that I am on. Before this chronic pain stuff this did not happen to me.  Some days I seem like I am in a fog not over medicated but just can't think...
    RHMLucky777
    Read More
    It is funny the same thing happens to me. I totally forget someone's name or the word that I am trying to say at the moment. Me personally I think it has something to do with all of the pain medication that I am on. Before this chronic pain stuff this did not happen to me.  Some days I seem like I am in a fog not over medicated but just can't think clearly. Seeing that I am in the legal field it does sometime become a problem. So far I have been able to make it but I just don't know for how long. Hang in there Johnnie
    • Betty Boop Too
      Dec. 20, 2007

      Hello shauna

      good to meet you.

      It would be wonderful if Karen stopped by and told us the word for what's happening to us.

      I used to think it was from the meds, but have recently come to understand that's it's probably the Fibro. 

      I will be in mid sentance and know what words I want to use, but will take long pauses and struggle to finish what...

      RHMLucky777

      Read More

      Hello shauna

      good to meet you.

      It would be wonderful if Karen stopped by and told us the word for what's happening to us.

      I used to think it was from the meds, but have recently come to understand that's it's probably the Fibro. 

      I will be in mid sentance and know what words I want to use, but will take long pauses and struggle to finish what I was saying and it's not be cause I'm all groggy from my meds or have forgotten what I was talking about, it's because I cannot find the words I need to use.  they will be simple words too?  Just baffles me and I get really worried about it, probably another reason why I don't talk on the phone much, as it happens alot on the phone.

      I've also read that the pain meds can make you forgetful, but when you have the combination of the two, it's really difficult.  I find it very embarrassing and troubles me to death.

       

      Well, I better get to bed, my pain is flaring up and I would like to get atleast a little sleep tonight.  UGH

      nice to see you and welcome

      Betty

    • Shauna
      Dec. 20, 2007

      Great to meet you too, Betty Boop too!

      Loved the comment. 

      I wanted to let you that sometimes I do forget mid sentence what I'm talking about.  It's as if the thought just flies right out of my head.  So, along with the jumbled up words, I may not be able to finish the conversation.  It's not that I'm dumb or anything, even...

      RHMLucky777

      Read More

      Great to meet you too, Betty Boop too!

      Loved the comment. 

      I wanted to let you that sometimes I do forget mid sentence what I'm talking about.  It's as if the thought just flies right out of my head.  So, along with the jumbled up words, I may not be able to finish the conversation.  It's not that I'm dumb or anything, even though I am a Blonde(ha,ha).  It's like I have some form of senility, imagine that at 38 years old.

    • Betty Boop Too
      Dec. 21, 2007

      Shauna

       

      Now that you mention it, I may be forgetful of what I was even talking about too.  But normally it's the forgetting what word I want to use that bothers me the most.  It sometimes feels like the problems a stroke victim has in finding the words they want to use, but can't quite get it.

      It's a little scarry sometimes too.

      Hope...

      RHMLucky777

      Read More

      Shauna

       

      Now that you mention it, I may be forgetful of what I was even talking about too.  But normally it's the forgetting what word I want to use that bothers me the most.  It sometimes feels like the problems a stroke victim has in finding the words they want to use, but can't quite get it.

      It's a little scarry sometimes too.

      Hope your doing well

      Take Care

      Betty

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