no name for my pain

Angie Berry Community Member March 09, 2008
  • I have been in pain all over by body for the past 10 years. I've been to my PCP who referred me to a pain mgt spec. Neither doctor know whats wrong with me but the pain spec just gave me norco 10/325 and flexeril 10 mg. I take the norco 1- 3x a day any only take flexeril once or twice a week at night First I'm worried about the long terms effects of taking pain pills and secondly, what if my pain is serious anh their overlooking the underlying problem. Neither doctor has tested for anything except Lymes disease and Lypus.I don't just want pain meds, I want to know whats wrong with me, but they don't seem to be interested.

    In 2000, I was in a bad car accident and was told that I had Fybromyalgia after 2 years and many different doctors, then I was brushed off like it was all in my head. When I stated to see a new doctor I did not tell him that I ahd Fybromyalgia because he would treat me differently, as I asked him what he thought of Fybromyalgia and he stated those people just want drugs. PCP was convinced that because I'm 41 I'm going to have pain but if it was a problem see the pain mgmt spec, which I did. But no results except pain meds.

    I also have trouble sleeping, so I went for a sleep study, it was concluded that I have chronic insommnia and I was put on 10mg Ambien that I've been taking everynight for the past 3 years. If I don't take it, I want sleep at all. I tried to stop taking it for a week but I only recvd 4 hours of short naps throughout the whole week whick lead to more pain.

    The bottom line is that I'm worried about taking the pain meds and sleeping pills for long periods of time. I would like other alternatives and to have a clear dianosis of my illness.

    Before all of this I was a healthy outgoing person. I'm not overweight, I'm happily married with 2 adult boys and 1 12 year at home. Ihave a great job that I love. The only illnesses in my family as high blood pressure, which I don't have. I'm having problems focusing and , concentrating,and some short term memory loss. I also had a partial hysterectomy in 2002.

    Please advise on what I should do to find out what wrong with me and what arethe long term effects of pain and sleeping pills.

    Thanks

    Help with the unknown 

5 Comments
  • prepackey
    Mar. 11, 2008
    dear Angie, you sound alot like me. i have been dealing with pain the past 13 yrs. and it travels in me, i have been though all kinds of test and nothing yetSadmy pain started in the botom of my feet and has hit me every where, but the tummy. and i mean pain where i would like to end my life. OHSU is testing me now, so mabey their is a name to what i'am...
    RHMLucky777
    Read More
    dear Angie, you sound alot like me. i have been dealing with pain the past 13 yrs. and it travels in me, i have been though all kinds of test and nothing yetSadmy pain started in the botom of my feet and has hit me every where, but the tummy. and i mean pain where i would like to end my life. OHSU is testing me now, so mabey their is a name to what i'am dealing with. but i can really relate to you, so i wish you all the luck to get a name on your pain! let try to stay somewhat close and mabey we can support one another. the best of wishes to you. love becky 
  • cyberchar
    Mar. 09, 2008

    Every study you read these days says the same thing, that those of us in chronic pain, as long as you stick with the dosage as prescribed, have an extremely minimal chance of becoming "addicted" to pain meds.  Doctors have found out that pain is a disease in itself. A body can not heal if it is in pain. Then when the pain gets so bad, it becomes...

    RHMLucky777

    Read More

    Every study you read these days says the same thing, that those of us in chronic pain, as long as you stick with the dosage as prescribed, have an extremely minimal chance of becoming "addicted" to pain meds.  Doctors have found out that pain is a disease in itself. A body can not heal if it is in pain. Then when the pain gets so bad, it becomes all but impossible to get relief.

     

    Why go to a pain management doctor and then not follow his advice? Believe me, pain management docs are certainly not known for handing out pain meds unless there is very good reason. There are so very many people out there who are in terrible pain and can find no doctor to listen to them, give them any kind of narcotic pain meds, nothing, unless they have a diagnosis. If your doctor recommended an antibiotic you wouldn't think twice about taking it. Pain medication is just as important. Pain prevents sleep, causes blood pressure to rise, and will finally wear a person down into they are but a shell of who they used to be.

     

    I thank God every day that I have medication that allows me to get dressed although slowly and painfully, and still enjoy my grandchildren. And I take my pills as soon as they leave so they don't see Nana all loopy.

     

    Perhaps there is someone out there who can help you get over this phobia about taking pain meds. Please don't let pain destroy your life, especially when you have the help available.

     

    Good luck. I wish you the very best, Char

    • becky
      Apr. 14, 2010

      iam sorry didnt mean that i dont take anything my good freind is a nurse, but what is helping me the most right now is amitriptyline, and the methadone & gabapentin OHSU put me on these.

  • Barbara Kivowitz
    Mar. 09, 2008

    I too had pain without a diagnosis.  The good news was that everything serious was ruled out.  I would suggest that you continue to see specialists in different disciplines to be evaluated from all angles.  They may find something; they may not.  When my army of specialists came with no clear answers, I finally decided to see a pain specialist...

    RHMLucky777

    Read More

    I too had pain without a diagnosis.  The good news was that everything serious was ruled out.  I would suggest that you continue to see specialists in different disciplines to be evaluated from all angles.  They may find something; they may not.  When my army of specialists came with no clear answers, I finally decided to see a pain specialist who helped me get control over my pain.  I started out on a high dose med cocktail and over the years I have been able to taper of to a pretty low maintenance level.  I also found some alternative approaches very helpful.

     

    Keep searching for the great doctors.   I hope you find the help you deserve.

    • becky
      Apr. 14, 2010

      i was on here awhile back, and then had to stop cause we where building are home. my pain is still here! it all started in the bottom of my feet lasted about a couple of years or more, and did they hurt the pain would get so bad. had many test. after about 10 yrs i got to go to OHSU, they did some test they where checking for small fiber neuropathy, and a few...

      RHMLucky777

      Read More

      i was on here awhile back, and then had to stop cause we where building are home. my pain is still here! it all started in the bottom of my feet lasted about a couple of years or more, and did they hurt the pain would get so bad. had many test. after about 10 yrs i got to go to OHSU, they did some test they where checking for small fiber neuropathy, and a few more, and still no daigose. the only place i swell is in the neck and the pain is bad. the only place i have not had the pain is in my abs and bottom. it tavels in me and can jump back and forth within seconds. so if you have herd of anything like this please let me know thankyou very much.  

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