Friday, June 01, 2012

at the end of my rope

By lorikeyder Friday, December 24, 2010

I'm almost 50 and I've been living with pain for about 15 years.  I had a great doc who really understood my desire for quality of life versus quantity.  I DO NOT want pain to run my life.  And, yet, here I am.  It's Christmas and I couldn't go see my family today because it's a long drive and my new doc couldn't take the time to refill a script.   My work life is being affected-after 20 years of being a valued employee, over the last 6 months it seems I've become expendable-in every way.   No one cares.  And I'm tired of the struggle.  Constantly trying to convince people that you're in pain.  Being treated like a drug adict and/or like an idiot (I can't call in a script for NORCO you have to have that in hand---excuuuuse me?  These docs should grow a set, when they want to say no instead of flat out lying.)  Doctors are far more concerned about narcotic usage than pain management.  I think it's just too hard - and what is there to live for anyway?  In 10 years I'll be really miserable, and as one very compassionate doc said to me, homeless, because no one will want to treat me.  I've tried so hard to do the right things, exercise, nutrition, being informed, following their rules.  I just can't stand the fact that my life, my ability to live the way I want is dependent on some middle-aged guy who doesn't give a *** about ME - or managing my pain.  I want to make sure that if I die soon - they will know that it was ON PURPOSE because I couldn't take it anymore and NOT accidental.  WHEN will the medical society GET IT? 

V, Health Guide
12/25/10 11:21pm

Hi, Lori,

 

Sorry to hear you didn't get to see your family for Christmas. That stinks!

 

Did you call the doctor, and he just wouldn't return your phone call?  I don't know what is going on w/this pain medication situation. I am new to this world of chronic pain, and I am always reading about people having trouble getting appropriate medication.

 

If it wasn't for my husband, I would not have a tree up, and I would not have been able to visit family today, either. I was taking a drug that had my arthritis under control...pretty much...but then I had an allergic reaction to the Plaquenil.  Right now I am only taking prednisone and Tramadol. Yuck!  I take the tramadol to be able to function, but I don't like the way it makes me feel. The alternative, though, is staying curled up in bed.

 

I don't know what the answer is. I just don't want you to give up.  Try to rest and give yourself some TLC, and then make an appointment with a different doctor, if need be.  There has to be someone out there who can help you.  You deserve help getting your life back.

 

Peace,

V

12/26/10 3:48pm

V - Thank you, for your kind words.  I'm glad you have a support system.  I chose to leave my husband a few years ago (a good thing) BUT I think some of this would be easier if I had someone to help.  I didn't get my tree up or any decorations--I barely did any shopping :-)  All in all I think this situation is kicking my butt.  I spoke to my doc on Thursday and he said to call him if I needed too.  Of course, what he neglected to tell me is that he wouldn't be available...and the on-call doc fed me a load of crap about not being able to call in the breakthrough med-so happy holidays to me

 

I realized that I keep waiting for these physicians to act the way the literature says it should be done.  Apparently, THEY aren't reading the same medical research, literature, etc. that I am.

 

I'm a true believer in things happening for a reason.  So, I wake up and breathe and wait to see what happens next. 

 

I wish you all the best and hope that 2011 brings you some relief from the pain! --L

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (9769) >
By lorikeyder— Last Modified: 12/27/10, First Published: 12/24/10