also i forgot to mention that i get a burning sensation on my skin. The specialist i have seen are a family physician, urologist, gastrologist, neurologist, orthopedic, pain management dr. all have seemed to fail to help cure me, i have been to the clevland clinic florida, and miami miller school of medicine. The current meds i am on is lyrica 3x a day 100mg, wellbutrin 100mg 1x a day. I have been treated for prostitis, no infection was found and i was on antibiotics for close to a year, and for the thoughts of a pinched nerve, i have a herniated disk at L5-s1 compression but does not seem to be affecting the nerve says my neurologist, we did an emg test and results were normal( its not a shooting pain from my buttocks to the feet-which i believe to be sciatica.). The pain management doctor recommends that i have a spinal nerve block device implanted in my butt with electodes that go into my spinal canal to block the pain-very scary stuff, he says their is nothing left for him to do-we tried cortisone and nerve block injections with no results, also my neurologist said thier is nothing else he can do for me. i am at wits end and fustrated beyond belief, my life has been robbed from me.
Hi,
Like you I am in the South Florida area and I have a couple of Doctor's that I want you to go see and see if they can help you. They have helped me, so I am going to send you a private message with the names of these Doc's, OK? Good luck to you.
Hello PattyMac!
I'm so sorry to hear of your pain problems! It's the worst feeling in the world to hear from a DR...."There's nothing else I can do for you!"...I know, I've been told this myself!...Along with "You better learn to live with it!" -prior to the "nothing else"...& ending with-"since I can't find any cause for the increase in pain, I'm not going to be prescribing you anymore pain meds." There is such a lack of awareness & education for pain illnesses & pain treatment, I'm sad to say many others will probably be hearing the same thing.
The way say described your "burning pain" it makes me wonder if anyone has ever mentioned "CRSD/RSD" to you? It's a nerve ending pain, that has burning, tingling, sometimes numbing effects on your skin. I have it myself. I'm not insinuating this is what you have....there are so many side effect to having pain. But my concern is, if this is what you might have I'd hate for it to go on being untreated & you to have continued pain! Mine went untreated-(due to this a** of a DR I was telling you about earlier)....Since my RSD wasn't discovered or being treat it has spread from where it started in my knee & foot to the other side of my body now...because it is a "progressive disease". Maybe you should mention this to your DR & if he is uneducated in it then he could reffer you to a DR whom is...or if you're going to a new DR, mention this to him to see if he thinks further checking into it is necessary. I wish you much luck & I pray you find a good, honorable, respectful & ethical new DR!
Gentle hugs, my friend........Bambi Sampson
(PS} There's many of us CRSD/RSDer's & chronic pain sufferer's on Facebook, if you aren't an avid user-we all are really there for each other & help support one other when-ever we can....If you are already on Facebook-please look me up & "friendship request" me on there, I left my full name so you could find me on the site!}....Take care~peace & laughter!