Please Just help It happened at the worst time ever

By belinda Friday, November 30, 2007

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I am laying here looking at my medicines and never thought in all my life I would be so afraid to take my medication thinking it would be my last. Meaning that if I could hang on just one more hour that would make it last longer. knowing the longer I wait the worst I will get. But due to my general practioner is no longer going to prescribe my medicine and knowing that no other doctor will take me on. See not because I misused my medicines but because he does not feel right in giving them to me. All that is running through my brain is how can I make it or my family .Knowing that I will be laying on the floor begging to die because of the pain is one of my thoughts.I have been there so many times. I live it daily but at least with the medicine I could function half way like getting to the bathroom or just getting myself something to drink is a miracle. I live in a small town and about 2 years ago went to a pain clinic that got me stable and they said as long as I had a local doctor to keep a eye on it that would be better because the travel was too much for me and my family. This doctor agreed and even once in a while spending a few days in the hospital was ok. Now all a sudden no doctor and the pain clinic will or can not take me either. I went to see a nuerosugean to only fine out that when I went back in the hospital for 3 weeks my general practioner did not send me right away to take care of my back that now I have permanent nerve damage. That no surgery could ever help me again. I have had to many back surgerys already.I can not sleep or eat I am so afraid of dealing with the pain and not having anything to take care of it and also no doctor and here I was doing so good (the medicine was working) it took over a year to get the right recipe together and now to know I will have to go back to nothing .I am afraid of withdraws also and going to the er just for them to give me a shot and send me home (it will only last a couple of hours)I am afraid for my family too They have been threw this in the past and My husband is going back to Iraq and I have noone to help me at all.I live in a area that has no specialist in pain or no nuerosurgean either they are all 3 or 4 hours away. I am willing to travel if I could fine a doctor that would see me and would listen and understand. I wished I never had to take another pill the rest of my life but I know by me laying here now making my medicine last that within 2 weeks I will be dealing with almost death. I called the neurosugean and all his office said was that it was out of his hands he does not do anything but surgery and not pain control. he said I needed to fine a doctor to handle my medicine. I know I sound all messed up but I am in a state of shock because I did nothing wrong and took my medicines as I should. I am taking soma, percocet, actiqs 600mg and a duregisic patch 100mg these medicines work. I have tried all the others you name it i have. if any of you know Of any doctor in north carolina that would see me and speaks english well ( see my former doctor did not understand english well) Which is one of the reasons I think he quit we could not communicate well and he even said if he could not heal me by dec. he would let me go. My test shows no healing . At least with the medicines I could function somewhat. please if anyone out there can or know what I can do let me know. I am willing to call you or you can call me. My story is very long. how I got like this- I was in a driveway getting mail and looked up to seeing an eighteen wheeler driving off the road hitting me in the side and broke my back and feet and I never got a penny he was illegal. So it goes on and on. I have called the medical association etc etc please anyone if you have a doctor that understands chronic pain and is not afraid of prescibing medicine do let me know this is like life and death. excuse the misspelling I am hurting and had only 2 hours sleep due to the pain. I know my pain is real because I can be in a deep sleep and within 2 hours awake screeming for relief.

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Betty Boop Too

12/ 1/07 7:03pm

Faulkner

Hello dear, it's nice to meet you.

sounds like life has taken a turn for the worst feeling situation that I think any of us can be in.

I've tried to think of something usefull I could find for you and I'm a little disappointed that I'm not able to do more, but here is a page that has some information to easily search for pain management doctors in your area or all over the US. http://www.painfoundation.org/page.asp?file=Links/FindDoctor.htm

I really think that it is a disaster that chronic pain patients can be hung out to dry, as you've explained here. If this link does not help you to at least find a doc in or near you, then send me a message and I'll try and find some phone numbers to some patient advocacy and see it they can help any.

As far as I'm concerned and what you say, I've understood properly. I think this should absolutely be a crime, to send a chronic pain patient out and not even give them some options to get another doctor or something that may help them. I wonder what would happen if a doctor dropped a diabetic or a epileptic like this with no alternative to recieve their meds or treatment.

If a doctor decides they are not going to treat a patient any longer for what ever reason, they should be held accountable for trying to refer the patient to another doctor that can help them.

My heart weeps for you and I'm so sorry that you've been treated this way. I wish I could do more to help you, but let me know if you want me to search for more phone numbers or something that may help. Unfortunately I'm on the other side of the country and just don't know what to do. Since your husband is in the military, are you able to go to the VA pain clinic? I'm not sure how it works for spouses and family of military men and women.

I'm here even if you just want to talk! you can get my e-mail and information by clicking on my name and it should take you to my profile page.

My prayers are with you and your family, I hope you can recieve some help and relief soon.

Betty

marlene

12/ 5/07 11:44am

I don't knw what part of north carolina you are in but, there is a doctor in Spartanburg SC named Dr. Robert Dorlon he is on Serpatine Dr right next to spartenburg regional hospital. hope this helps Marlene you can e-mail me at marlene102667@yahoo.com if you need more info.

belinda

12/ 6/07 1:44pm

Marlene I have been waiting to see if anyone knew of a doctor who at least understood pain and if you know this doctor please let me know i was up all night crying and worried because most doctors here are affraid of everyone who is in a serious condition I am willing to do anything at this point my family is so worried I feel that if life is going to be like this then I want to just commit myself but I am not crazy just hurting and noone will help

Marlene

12/ 6/07 10:26pm

Hi I am in preaty bad shape as well and I saw this doctor for about 2 years I lived in Union South Carolina and ran into the same problems all the docs were afraid to perscribe pain meds. This doctor is the best one I have ever seen. As long as you don't ask for early refills he will give you what you ask for. I was on Duragesic patches 1 every 2 days it is usually 3 days but, on the third day I was not getting much relief. Then for break through pain I was taking 3 10mg Norco which is like Vicodin. I was also on either flexiril or Soma. I just want to warn you he has a lot of patients and when I had office visits I would wait no less than 6 hours. You only had to see him every 3 months he would give you refills enough for 3 months. If I remember corectly it took about 2 weeks to get an office visit. Let me know how things work out for you but, I really do know what you are going through because I have moved several times and getting a doc is tough. I lived in Wisconsin for 9 months and It was the worst 9 months of my life I could not find a doc their at all. If you can not find is number let me know I may still have it. Are you close enough to travel their. Good luck Marlene

simmonsgrad03

12/ 7/07 3:17pm

what you are going threw is terrible. First eithically, a doc just can't stop medication. he has to wean you off or transter your care. ask him, wean you or transfer your care to someone else, he really has a duty to care legally, so you will not be left in the position you are in.

second there is more than one pain clinic. if you have to move, then move to one that will take you. I have one and because I live far will be moving closer (Boston). Once you have one stick with it. It is too difficult to get a pain clinic to take you. Contact your health insurance, see if they can help you. look on the internet, try looking at places that are affliated with teaching, they usually have good pain clinics. just stopping the meds you are on will put you into withdrawal. I am sorry for what you are going through. it should not happen. If your physician leaves you hanging with no treatment plan, call your state board of medicine and report him.

Best of luck and wishes.

belinda

12/ 8/07 2:38am

I got a certified letter from him saying he will not treat me period. I was in shock I did nothing wrong and he would not even talk with me or my husband. I went and got my records and wow was I surprised . I need an attorney. Oh I just got back from ER due to him and they could not believe this doctor did this but wow when they saw the letter the er doctor asked when would I sue him. That I have a ture case and My conditions is terrible. I wished I could move but cannot because my husband is in the quard and that is not possible for us at all. Even if I could I am too sick to even do that. the pain keeps me laying in bed screaming and looking at this laptop. I have no life at all like this. I hate seeing my family suffer as well. I know I need to do this and that but I am not able to even go to the bathroom;

simmonsgrad03

12/ 8/07 6:20am

Where do you live? - What type of insurance do you have? Some times the insurance co has a RN advocate that can help you. I would still report him to the Board or Registration in Medicine. He can discharge you as a patinet, but has refer you and cannot leave you hanging. It it against medical board regulations. Forget an attorney right now. that could take years. The board of registration will investigate him, and the doc is more afraid of them then an attorney. But that does not help you. What about the VA? The deal with chroinic pain all the time? What about your PCP, do you have a primary care doc? If so, get to them pronto and they should help you - with meds until you get to a pain clinic. Hope it helps.. keep us posted.

FibroLady

12/11/07 6:49pm

I don't know if this can help you or not, but there is a free site called rate mds. You can look through the doctors which have been rated in your area, and see if there is one who has a 5 (best) rating in a specialty that will help you. You can click on the doctor's name and read the comments about him/her. The contact info will be there as well. You can ALSO enter your last doctor's name and info if it isn't already there and rate HIM!! Warn others away. OK the addy for this site is:

http://www.ratemds.com/social/

If we're not allowed to enter web addys, it's just ratemds dot com. In order to add info you must register, but it's free. They always want people to add to the database. I hope you can get a lead on a good doc there. My heart goes out to you. If you lived in the Tucson region, I would share my doctor with you, he's wonderful.

Oh yes, after you click on a doctor's name, there is also a link to take you to his/her info from the state medical board. You will also have this link if you add your old doctor's name to the site. You can find out if he has other complaints against him too.

Peace and Love

Caroline

Joseph Rogers

4/10/08 5:08pm

I am an RN who is now on disability due to chronic pain. Pain according to the Medical Associatons of Doctors and Nurses are considered the 5th vital sign. I do not know if when you are in the hospial you see the faces of people in pain and a scale of 1-10.

Pain is subjective. it is what you say it is. period. Any physician or nurse whom refuses to help you and you suffer needlessly are going against their oaths The Hippocratic of the Doctors and the Nightengale for the Nurses. The first line in the Hippocratic oath is to relieve suffering of patients.

Any MD or Nurse who refuses to get you help with pain and makes you suffer should have compalaints filed against them. Every State has a Board of Medicine and a Board of Nursing. Go to the ER and refuse to leave until you see a Social Worker and an ethincs person to get you in contact with an MD who will treat you. I hope this helps

Please Just help It happened at the worst time ever

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