Wednesday, February 15, 2012

Fibro Pain- Leg Pain, taking me to the edge!

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carnie

carnie

Fri, January 04, 2008

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Thank you to everyone who responded to my previous posts.  I think the past few months have been trying to prepare me for what was coming.  I have been able to find more more pain than I thought possible.  My left leg from hip to toes has been spasming since December 22.  That day my husband took me to the ER.  The doctor there was kind and respectful to what was going on.  He gave me some reasonable pain medication, in fact he was the first to give me proper medication.  So, I actually felt quite well over Christmas.  That was it.  I saw my doctor the other day and he sneared and said, people who take that level of pain medication should be dying of cancer etc. 

 

In the meantime, I am starting to feel sad, and I am on effexor!  I am afraid for my life.  I am afraid of losing my handsome, active caring husband, because this sucks for him too.  He has found some entertainment that does not include me, but I still fear.  Everyone looks at me as though thinking, "what is it now..." 

 

I read somewhere recently that the #1 cause of death among people with chronic pain was suicide.  Don't get me wrong I am NOT suicidal at all.  But I understand what they are saying.  Life is constant pain, and I feel like I am watchingit go by. 

 

I love my husband and my kids with my whole heart, soul, fibre and being.  I just wish I didn't feel like such a burden to them. 
Cry  
Carnie

1/ 5/08 10:15am

I have been where your at.  I was refered to a neurologist who told me that I was on too much pain medication.  I told him that it was all prescribed by my M.D.  He said that there was nothing wrong with me, it was all in my head and that if I was not off the meds. by the time I came back to see him in 2 weeks that he would hospitalize me for detoxification.  Well needless to say I told him he was crazy and I knew exactly when I was in pain and when I wasn't.  I didn't go back to see him again.

 

About the effexor,  I was on that for about 3 years and there came a point that it wasn't doing what it was suppose to do any longer.  I was refered to a Psyciatrist and she prescribed something different.  That would be my advise to you, to have your regular M.D. refer you to psyciatrist.  Don't get me wrong,  you aren't crazy,  you just need a M.D. who is specialized in the field of depression who has a better understanding of the different depression drugs on the market.  I hate that depression is part of the mental health field but, it is and therefore people with depression are sometimes labled crazy.  YOU ARE NOT CRAZY.  I hate the stigma that is attached to it and futhermore,  If  someone had a mental condition it is not a crime or something and its not contagious.  You can catch it from anyone. But, where I'm from here in the south,  that is sometimes how people view these things.  Anyway I know I'm rambling, so, the point I'm to make is to see kind of M.D. for the right condition.

 

Your partner in pain

Shauna

Anonymous
jojo
4/ 8/08 12:46am

Dear Carnie

 

First I want you to know that my heart and prayers go out to you ...I'M reading your post and find it hard to beleive that I'm not the one writing this...the symptoms are similar therefore I know the anguish,sadness and frustration are also the same. I felt bad when I saw that you wrote you were afraid of being a burden to your family because I repeat these words daily. It is not humanly possible to stand all these pains hammering the body...the intensity so severe...never being sure of what is causing this, always being in fear and especially living with the constant comments like you say so very well, what's wrong this time...Sad It's sad and cruel. I am happy to know that you received good care at the E.R. My family physician tells me either he doesn;t know what is wrong so just go home and live with it or something like "So, you're not the only one with sore legs" or "Look, it can't be you have all those pains in all those places all at once" in other words it's all in your head...

I'm telling you all this my friend not to burden you with my problems because you have enough of your own. I just want you to understand that there are others who do know what hell you are going through and sympathise deeply. Carnie, I'm allergic to mostly all types of medication so I had to learn to rely on alternative treatments such as ostheopathy and or acupuncture. Naturally with constant chronic pain comes depression.So I equally consult a pshycologist. But all these options cost a lot and it's not possible to go like I would need to so I have created a journal. I call it my bible. When I just can;t take it anymore, I get out my journal and pour my heart out. It doesn't get rid of the pain but it helps. I started my journal in 2002 and it has helped   in keeping my sanity when the pains are crushing and hammering my whole body. I encourage you greatly to do the same my friend.

Good luck and GOD BLESS

Jo-Anne 

Anonymous
revbassman
9/ 2/09 3:56am

   I know your pain mine has been constant for a long time and if that where not enough after two back sergeries not much better. I just went on Hydrocodine and I still hurt constanatly but I believe some day I will get healed by God. I have actually asked God to take me home because the pain was so bad. I have what is called degenerative disk dieses which is getting worse. Hang in there keep the faith Psalms 103 verses 1through 5.

Anonymous
painnnnn
2/15/09 11:07am

Well I Have had chronic pain since I was seven. I am only 21 and 60 mg of hydrocodone doesnt take my pain away. It just makes me feel more sick. So I know how you feel except I have no kids. Just a bf and a work full time and go to school full time. I want to give up everyday. I cant even keep my eyes open.

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