Hi
My story is posted on my profile page, but i think i need to add something in this area to ask some questions. I am set up for march 10th for the trial - my dr is admitting me to the hospital on monday, she is putting it in that afternoon. she is then keeping me there for 2 days while they monitor me and adjust the meds. i also have other medical issues that have been known to create complications (blood clotting disease that i inject medication 2x a day in my stomach, immune disease that i receive "chemo" type meds every 20 days.) So, i have a port a cath in my chest as well. since there will be other things to watch, she said i might be in a day or 2 longer? Is that normal? Have any of you stayed in the hospital during your trial? She said that "if" everything goes as planned, i would be out of the hospital by friday. i have these days that i am sooo ready for the surgery and then other days that i am scared and wonder if i am doing the right thing? i keep hoping that i will wake up one day and have my pain better - i don't expect it to be gone, but just better. i wonder if i have really given enough effort to deal with the pain. why does it "feel" like your giving in when you decide to get the pump? so, these are a few of my thoughts and questions about the pump. i'm hoping to jump start some communication here to find some of these things out - so any one with input would be great and most appreciated. if you read my bio, you will see more detail about my history that will explain a lot. God Bless you all - hang in there...
Hi there, my name is kim, its soo great to meet a new person on CPC :)
Wow....i dont know what to say! i read your profile. It is amazing to me what you have been through. Im not trying to sound like i feel sorry for you (i definitly do!) but more that i am so amazed after all you've been through that you still have such a great outlook on things. You are definitley someone i can look up too. Feel free to read my profile and such to get to know me. Id love to chat with you! no, im not going through the exact same thing as you, but as far as the pain goes, we can all agree on how difficult that is to handle. I had surgery on my low back 8/06, and im now back in the same boat i was in back then. Still suffering. I now have another pinched nerve and its soo bad at this point, that i cant even sit at work and do my job. Its effecting my life, my family, everything. I also suffer from seizures, which they havent figured out yet what has caused them. I had 2 EEG (were they study the brain waves and check for epilospy) which came back inconclusive. They ruled out that i DONT have epilopsy, which i guess is good, but i will never get rid of my fear that these can happen ANYTIME to me. Its sooo scary. Id almost like to get rid of the seizures completely if i could choose, and have this severe back pain for the rest of my life!! i would never complain of the pain if i could get rid of the seizures, it effects every part of my life. I hate them. Did you know 1 in 20 people will have one in their life? pretty scary if you ask me. I've only had about 8 in my life......but ive blacked out on almost everyone and its been a horrible experience.
Sorry, i dont mean to talk all about me! i just wanted to fill you in on my life. Will you please let me know what happens with the pain pump trial? my doctor has told me i am facing a 2nd surgery on my low back....unless i qualify for the pump. I havent been to another specialist since they said that, i was referred to another doc for a 4th opinion. But they have all said i have to do something to get better. So will see. Im just VERY intersted in the pain pump. I have heard alot of good things and not so good things as well. So i dont know what i want to do. Its true though..... how do you know your making the right decison??? and are we giving up when we decide to do that? i dont want to give up, but i cant live like this either. Im wayyyy to young for this! i cant even go out with my girlfriends for a drink or something much anymore b/c of how bad the pain is. (and what if i have a seizure well im out and about..or driving for that matter, i cant drive much,...just to work and back) I would just love to hear how it goes with the pump. Im so intersted in it.
Once again, I cant believe how much you have been through. Keep your faith at hand, thats the best way to get you through things in life. You really are inspiring to read about. Feel free to write me anytime. Sorry for such the long email!! (i kinda ramble on and on!!)
Take care of yourself, hope to hear from you. Your CPC friend, Kim