Friday, June 01, 2012

After the spinal cord stimulator implant.

By Mylie-lynn Sunday, October 24, 2010

Wow, to think it has almost been a year from the spinal cord stimulator implant and almost two years from the time of being pushed off that wall. Living with reflex sympathetic dystrophy will never be easy. The spinal cord stimulator I am still getting use to, it has took a positive change on my life! It is so different to have something placed in your spine. With determination I have got much of my movement back in my right arm. Still today I struggle with chronic pain and every day is a struggle for me, I still push forward with a positive attitude to make my life as fun as possible . I believe now what is so difficult for me is time is going on and alot of people don't understand. The reason it is so emotional for me is I am starting to realize there really is no more the doctors can do for me and this pain is for the rest of my life. You look at the doctors as god and can fix anything, but once you are injured with something they can't fix it is kind of shocking well to me anyway.  Well other then that I am doing great and wishing for a cure one day as the rest of us. CoolI still have faith. For all of you that are deciding on a spinal cord stimulator implant, go for it. To tell the truth it really is the most  positive thing I could have done with my pain even though it has not took away it all, I am thankful for what it has helped.

10/31/10 7:30pm

I read your blog, and I will be asking the doctor about it. I have been dealing with it for about 9 months now, and its pretty rough, it started in my wrist and moved to my shoulder, and i have a feeling its moving to my neck. Your story makes me feel more positive! thanks!!

11/ 6/10 12:17am

Thanks for taking the time to read this! That's great! Your welcome. Stay positive, it helps.

Anonymous
Cyndi
11/ 9/10 1:28pm

  I read your blog. I had the stimulator put in this past Aug. I find that it doesn't help me enough. I also had a fusion done in March of '09. My pain meds don't help any more and I have been to two different pain management offices on the advise of my neurosuron's office. Both pain management centers told me there was nothing they can do for me and my neuro's office told me there is nothing more they can do for me. How do you live with the pain? I get so frustrated at times and want to completely give up. I'm sick of being in pain all of the time and not being able to sleep right if at all. I'm lucky if I get to bed by 3am and still have a very hard time getting to sleep.

11/23/10 10:43pm

I'm really sorry to hear all that, but I really don't deal with my pain either. I get very frustrated and depressed at times. I stay very positive. it really helps to have someone strong that sees your pain everyday to support and understand what you go threw as I have my mother to be there for me. Keep busy with hobbies to keep your mind busy. I was reading another lady that has a stimulator and she says alot of people don't know to keep going back in to your doctor and getting it reprogrammed until your happy with it. I bless and wish you all of luck!

Mylie...

5/15/11 11:25am

Hi  honey.  my husand and i are reviewing the dvd and info this week. i've been dealing w/chronic back and sciatic pain for about 10 years now . tried it all and nothing has worked. really hate pain meds, you know?  anyway, i've heard the tingling drives people nuts and i believe i'd have to have it on all the time.  what's your comment on that?

 

~j

5/17/11 2:10am

The stimulator is a big step.. My thoughts on the stimulation bothering some people, it can but many people don't know to keep going into your doctor after the implant and having it reprogrammed. I would say where you have been dealing with cronic pain for 10 years now the stimulator is the way to go. Then again it is different for all people and all stiuations. However, I would do lots of research before making that decision. I know I couldn't live without mine and yes, I have the stimulator on at all times. I couldn't go without it. It made some great changes in my life.  If you have not already went in for the trial Spinal cord stimulator I would look into that.

 

any more questions I would be happy to answer them.  

-Mylie

Anonymous
Judith
8/18/11 6:54pm

 

The tingling sensation is definitely something you have to get used to, but after a month or even less, you will crave the sensation for the relief it offers.

I have lived with chronic pain for 15 years & tired of having to increase my opiates. I am almost off all opiates now.

Anonymous
Judith
8/18/11 6:48pm

I have had 2 SCS inserted this year & am over the moon with the relief I have been given. There is now a life apart from one ruled by pain. I have reduced my opiates to minimal. While I am not pain free, the difference of the pain message to the brain is sensational.

I understand this procedure is not a benefit for everyone. However, to be given the opportunity is wonderful & well worth the procedures. The recovery is minimal & the whole procedure is relatively easy from the patient aspect. 

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By Mylie-lynn— Last Modified: 04/04/12, First Published: 10/24/10