After the spinal cord stimulator implant.

Mylie-lynn Community Member October 24, 2010
  • Wow, to think it has almost been a year from the spinal cord stimulator implant and almost two years from the time of being pushed off that wall. Living with reflex sympathetic dystrophy will never be easy. The spinal cord stimulator I am still getting use to, it has took a positive change on my life! It is so different to have something placed in your spine. With determination I have got much of my movement back in my right arm. Still today I struggle with chronic pain and every day is a struggle for me, I still push forward with a positive attitude to make my life as fun as possible . I believe now what is so difficult for me is time is going on and alot of people don't understand. The reason it is so emotional for me is I am starting to realize there really is no more the doctors can do for me and this pain is for the rest of my life. You look at the doctors as god and can fix anything, but once you are injured with something they can't fix it is kind of shocking well to me anyway.  Well other then that I am doing great and wishing for a cure one day as the rest of us. CoolI still have faith. For all of you that are deciding on a spinal cord stimulator implant, go for it. To tell the truth it really is the most  positive thing I could have done with my pain even though it has not took away it all, I am thankful for what it has helped.

10 Comments
  • Oreo
    Nov. 26, 2014
    I have been dealing with pain for over 5 yrs now. Several back surgeries and RSD. I had a stimulator trial last week and loved it. Getting ready for perm one the beginning of December. My question to all is has anyone felt a sensation in there chest? It almost feels like a piece of food is caught in there. I know that sounds wierd but that's the only way I...
    RHMLucky777
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    I have been dealing with pain for over 5 yrs now. Several back surgeries and RSD. I had a stimulator trial last week and loved it. Getting ready for perm one the beginning of December. My question to all is has anyone felt a sensation in there chest? It almost feels like a piece of food is caught in there. I know that sounds wierd but that's the only way I can explain it. It a tarted when he threaded the wires. I pray to God the perm one works as well as the temp one and I can have some kind of quality of life. As we all know pain is not fun and it ruins your life. Thanks so much. I look forward to hearing some responses.
  • Anonymous
    Judith
    Aug. 18, 2011

    I have had 2 SCS inserted this year & am over the moon with the relief I have been given. There is now a life apart from one ruled by pain. I have reduced my opiates to minimal. While I am not pain free, the difference of the pain message to the brain is sensational.

    I understand this procedure is not a benefit for everyone. However, to be given the opportunity...

    RHMLucky777

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    I have had 2 SCS inserted this year & am over the moon with the relief I have been given. There is now a life apart from one ruled by pain. I have reduced my opiates to minimal. While I am not pain free, the difference of the pain message to the brain is sensational.

    I understand this procedure is not a benefit for everyone. However, to be given the opportunity is wonderful & well worth the procedures. The recovery is minimal & the whole procedure is relatively easy from the patient aspect. 

    • Anonymous
      tj
      Jan. 05, 2014

      i had 2 failed lumbar surgeries ov e 10 years ago and have real chronic pain there. soon i will have to have a 4-5 level cervical fusion or could have catastrophic results if i don't do it so i am going to do it and hope it will help. they sqay it pr9obably wont help iwth thye low back pain but i am hoping maybe something will help. i was wonderin if this could...

      RHMLucky777

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      i had 2 failed lumbar surgeries ov e 10 years ago and have real chronic pain there. soon i will have to have a 4-5 level cervical fusion or could have catastrophic results if i don't do it so i am going to do it and hope it will help. they sqay it pr9obably wont help iwth thye low back pain but i am hoping maybe something will help. i was wonderin if this could help with the low  back pain. i have to take morphine 2 times a day to try to control the pain. Do you think it will heolp with the opan in the lower back in the bones??? I'm glad you have gotten some relief this is no way to live then you haar these idiot edoctors saying people with non cancer pain should not have pain meds. i dont' know about you but this pain is severe and never ends. The way they say even people with just back pain???? i wonder if they have ever experienced this kind of unrelenting pain. i think uif they6 had they wo9uld have a different outlook. wouold appreciate your thoughts on this. The lower back pain is the worst althe9ugh the neck can be just as  bad at times even worse it's a night mare.

      tim

  • Anonymous
    Cyndi
    Nov. 09, 2010

      I read your blog. I had the stimulator put in this past Aug. I find that it doesn't help me enough. I also had a fusion done in March of '09. My pain meds don't help any more and I have been to two different pain management offices on the advise of my neurosuron's office. Both pain management centers told me there was nothing they can do for me...

    RHMLucky777

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      I read your blog. I had the stimulator put in this past Aug. I find that it doesn't help me enough. I also had a fusion done in March of '09. My pain meds don't help any more and I have been to two different pain management offices on the advise of my neurosuron's office. Both pain management centers told me there was nothing they can do for me and my neuro's office told me there is nothing more they can do for me. How do you live with the pain? I get so frustrated at times and want to completely give up. I'm sick of being in pain all of the time and not being able to sleep right if at all. I'm lucky if I get to bed by 3am and still have a very hard time getting to sleep.

    • Mylie-lynn
      Nov. 23, 2010

      I'm really sorry to hear all that, but I really don't deal with my pain either. I get very frustrated and depressed at times. I stay very positive. it really helps to have someone strong that sees your pain everyday to support and understand what you go threw as I have my mother to be there for me. Keep busy with hobbies to keep your mind busy....

      RHMLucky777

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      I'm really sorry to hear all that, but I really don't deal with my pain either. I get very frustrated and depressed at times. I stay very positive. it really helps to have someone strong that sees your pain everyday to support and understand what you go threw as I have my mother to be there for me. Keep busy with hobbies to keep your mind busy. I was reading another lady that has a stimulator and she says alot of people don't know to keep going back in to your doctor and getting it reprogrammed until your happy with it. I bless and wish you all of luck!

      Mylie...

    • Joana
      May. 15, 2011

      Hi  honey.  my husand and i are reviewing the dvd and info this week. i've been dealing w/chronic back and sciatic pain for about 10 years now . tried it all and nothing has worked. really hate pain meds, you know?  anyway, i've heard the tingling drives people nuts and i believe i'd have to have it on all the time.  what's your comment...

      RHMLucky777

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      Hi  honey.  my husand and i are reviewing the dvd and info this week. i've been dealing w/chronic back and sciatic pain for about 10 years now . tried it all and nothing has worked. really hate pain meds, you know?  anyway, i've heard the tingling drives people nuts and i believe i'd have to have it on all the time.  what's your comment on that?

       

      ~j

    • Mylie-lynn
      May. 17, 2011

      The stimulator is a big step.. My thoughts on the stimulation bothering some people, it can but many people don't know to keep going into your doctor after the implant and having it reprogrammed. I would say where you have been dealing with cronic pain for 10 years now the stimulator is the way to go. Then again it is different for all people and all stiuations....

      RHMLucky777

      Read More

      The stimulator is a big step.. My thoughts on the stimulation bothering some people, it can but many people don't know to keep going into your doctor after the implant and having it reprogrammed. I would say where you have been dealing with cronic pain for 10 years now the stimulator is the way to go. Then again it is different for all people and all stiuations. However, I would do lots of research before making that decision. I know I couldn't live without mine and yes, I have the stimulator on at all times. I couldn't go without it. It made some great changes in my life.  If you have not already went in for the trial Spinal cord stimulator I would look into that.

       

      any more questions I would be happy to answer them.  

      -Mylie

    • Anonymous
      Judith
      Aug. 18, 2011

       

      The tingling sensation is definitely something you have to get used to, but after a month or even less, you will crave the sensation for the relief it offers.

      I have lived with chronic pain for 15 years & tired of having to increase my opiates. I am almost off all opiates now.

  • nkingry
    Oct. 31, 2010

    I read your blog, and I will be asking the doctor about it. I have been dealing with it for about 9 months now, and its pretty rough, it started in my wrist and moved to my shoulder, and i have a feeling its moving to my neck. Your story makes me feel more positive! thanks!!

    • Mylie-lynn
      Nov. 06, 2010

      Thanks for taking the time to read this! That's great! Your welcome. Stay positive, it helps.