When I was 13 years old in the 8th grade jr. high school I was a fun out going exciting person, loved school A and B student and loved life to the fullest I loved to skateboard, fourwheeling, swimming, water parks, camping, and trying new things. Infront of my school there is a 6ft wall that has a grass hill behind the lip of the wall and at lunch students would always kinda hang out there waiting for the bell to ring to go back to class. on november 14, 2008 I was standing on the grass that is infront of the lip of wall talking to friends who where standing by me and some down off the wall on the cement when a boy I did not even know came running down the hill and pushed me off the wall and my feet got tangled on the lip of the wall which my feet being tangled made my elbow and hip slam the wall and then I came down and laned on my neck with my arm twisted. I felt a undiscribable amont of burning , numb, tingling pain i was in shock and disbelief what just happened. I have went to many doctors threw out my state and they have determind from my neck to the tip of my fingers in my right arm is Reflex sympathetic dystrophy the fall damaged my nervous system in my neck, broke my elbow, and dislocated my right hip. sence the fall I have no use of my right arm and can not straighten my arm out it is just stuck to my stomach. I have had to relearn a whole new life style with one arm. After a year of 16 neck and back nerve procedures that had no success for my pain. My Dr. has no options but to put a spinal cord stimulater in my spine and I have had the spinal cord stimulater trial and it took 60-70% of pain away so i have decided to get the surgery. I would like other people to share with me there chronic pain and if they have had a spinal cord stimulater and what they think of it. 
I am living with R.S.D.
12/10/09 1:27pm
I also have RSD and have since I was 15. I'm now 30. I see a doctor in Corpus Christi, TX, even though I live in southern CA. He is the best doctor I've found to treat RSD among many other chronic illnesses. I am actually here now. Check out the website at www.paindefeat.com. He does non-invasive treatments, which is the best thing for RSD.
12/12/09 3:40pm
I'd like to know what the consequences were for the complete jerk who did this to you?
12/12/09 6:11pm
The jerk who did this to me I didn't even know him. My parents prosacuted him and his family but the family has no insurance, no money. The courts ordered the family to pay 500.00 dallors and my medical bills right now is 150,000.00 and i have not even had my big surgery yet which i get on the 16th of december and the stimulater is going to be 70,000.00 and i need life time medical. He was also ordered to stay away from me so then a month later he had one of his friend at school again rehurt me and thats when my parents moved me to a private school becaused they feared for my safty and i have a awesome attorney he feels there is liability on the school because the school did not do anything about it or to help me.
Thanks Mylie.
12/12/09 8:10pm
Mylie I have a spinal cord stimulator used for chronic RSD pain in my L foot and leg. It
helps with the pain and increases circulation in my leg. With a lot of physical therapy,
nerve blocks and meds. I able to walk much better. I had a hard time walking and even
resorted to electric wheel chair. I also belong to an online support group that helps a lot. It I can help in any way let me know. Toni
12/12/09 11:07pm
Thanks for the support. It has been very stressful for me to get this surgery, The Dr. that was going to do my surgery backed out of it because of my age, so we had to go through finding a new Dr. so now i get the implant surgery on the 16th of december. I went through the trial and I really liked how much pain it took away. What was it like going threw the recovery and the surgery? and what are your postives and negatives to your spinal cord stimulater if you don't mind my asking? That is awesome it helps with the pain and circulation, about how much pain relief did it help?
12/15/09 11:36am
Just a suggestion.... find a Medical Massage Therapist. When I was active in my practice of Massage Therapy we worked ONLY from doctors Rx's. Our patients were workers Comp, liability, Auto Accident, etc., all medical. I worked daily on people just like you and saw amazing results. The insurance shold pay for it, it is less intrusive and it reduces/takes away your pain! I don't know what state you live in so don't know how they regulate Mass. Therapist but you want to be sure they are Licensed or registered or what ever your state requires. You also want to hear some references from doctors or other patients if possible. You need a Rx for Ins. to pay, also pre approval I would imagine, again it depends on where you live. Try it, you might like it.
lgh426
12/15/09 12:16pm
I have a 60 year old friend who had the same procedure you are speaking of , she had the tempary trial stimilator she said it worked well seem like but the permanant one only seem to help a little while.... you are a beautiful young lady I wish the best of health to you ...MY friend is rather heavy set and this too could be the reason she feels that her system doesn't seem to work well...she seems to comlpain about life in general as well...so avoid negative people.. I myself have fibramyalgia and degenerative disk disease in my neck and back... at least that is what the dr.s are calling it ...I had never heard of what you have but I had a serious car wreck and injury to my neck... I am concerned that my illness is being diagnoised correctly now...I have had many epiderial's and I have this numbness in my hand's you described... I have extreme muscle spasm's ....tightness in my shoulder's...after the epideral's I now have uncontrolable twitching and jerking in my leg's and body.. unless I take muscle relaxer's and medicine for chronic pain...terrible headaches... this has caused me to be very nervouslike...after the dr's went in and tried about 3 times to burn the nerve's in my neck ...I almost passed away on one occasion from too much anithesia...and 2 procedure's in 1 day being put under twice in one day ...so I caution against this- the insurance company bc/bs made the dr's dismiss and readmitt me before they would pay for 2 seperate procedures... I've been told I could have a law suite because the med's they shot into my i.v. to bring me back caused a sevier headache and they could'nt give me anything else for pain because it would lower my bloodpressure again...and they may loose me again ...this was a terrifying experience... I had gone and preadmitted earlier in the week for both sergury's in the same day.. the dr's approved and were ok with it being put under once... but the day of surgery the dr's didn't know bc/bs would make me be totally dismissed and readmitted before the 2nd procedure... I had not took my blood pressure med's before the 1st ptocedure they gave it to me between surgury's and my bp bottomed out during the 2nd surgury... If you have some info on how or to contact about suing bc/bs please contact me or if you've had a similar experience... God bless
12/15/09 2:19pm
I am very glad to see that you are not letting this stop you from achieving you goals in life! You are inspirational. You are a beautiful girl and you have a lot of potential!
12/28/09 5:14pm
Thanks so much that was sweet of you to say I believe staying positive gets you farther in life and i am thankful for what i got because someone out there always has it worst. I Think people should not take things Forgranted because your life can change in a second and they need to remember there is always situations people go threw that is must worst. Thanks again Mylie.
12/28/09 5:15pm
Thanks so much that was sweet of you to say I believe staying positive gets you farther in life and i am thankful for what i got because someone out there always has it worst. I Think people should not take things Forgranted because your life can change in a second and they need to remember there is always situations people go threw that is must worst. Thanks again Mylie.
12/25/09 9:33pm
Wow, you have been through so much at such a young age. I have daughter's who are 16 and 17 and I cannot imagine them going through what you have been through. You are a very beautiful yuoung lady and I hope and pray that all goes well with you and your surgery and all that.
I have chronic pain, but it's caused by fybromaylgia and hyperparathyroidism, the two diseases together are almost unbearable at times. In fact as I sit here typing on Christmas night 2009, my hips are hurting really bad and my knees and elbows are hurting really bad. I am on several medications for pain, and they just don't really work, but without them, I'd be in MUCH more pain, so they DO help, just not as much as I'd like them to. I also have a tumor on my spine and scoliosis, so those cause their own pain on top of the fybro and hyperparathyroidism. Let us know how the surgery goes. I pray that it goes really well and helps you out a lot. You are way too young to have chronic pain!
Living with Fybro....
12/28/09 5:09pm
Thanks for all the support. I have been threw alot for my age but i keept my head up and stayed positive. My surgery did go well, now i am just trying to get threw the healing part. So far it has helped 50% of my R.S.D. pain. Chronic pain is one of the worst things to go through and no one understands until they are in our shoes. Every day is a struggle, I hate waking up to know what i am facing for that day. I bet you feel the same but i am thankful for what i got because someone out there always has it worst. I Think people should not take things Forgranted because your life can change in a second and they need to remember there is always situations people go threw that is must worst. Thanks again Mylie.
1/ 2/10 12:24pm
Dear Mylie,
I am so sorry to hear about your injury and what affect it has had on you. It sounds as if you have seen several doctors and have tried many times to get some relief but with little or no success. I think the nerve stimulator is worth a try. I too went through the trials to see if it would work for me but had no success but my chronic pain is due to what they call inner core deterioration, my muscles no longer hold my body together and I have fibromyalgia and auto immune disorder. This procedure is simple and can be stopped if it doesnt help. The main thing to remember is to not dwell on what you could do before, if you do you can not move forward. You may have to live with the pain and unability to use your arm which I pray will not happen but some injuries just cannot be fixed but you can learn new ways as you already have to live a good life. Don't expect full pain relief but if you can get most of it reduced it would be worth it. I wish you the best of luck and if you and your doctor feel like this may bring you some relief then give it a try but always do your research for yourself and dont rely on the dr. to tell you everything about any procedures, you have to be the one in control of your health. Let us know how you are doing and I wish you the best,
Paula
1/18/10 12:37am
Dear Paula,
Thanks for being so positive about my situation, sometimes it is hard to keep in that frame of mind but from the help of my family I know I have to keep pushing on. It breaks my heart to hear someone elses situation like yourselfs thats why I always tell myself I could have it worst. I think going threw what I have all been threw at such a young age it has made me want to help more people and look at people in other situations and have my heart go out to them. I pray to god every night for miricals and to get me threw this all and not only for myself but for the people that have it much worst then myself. I do need to move forward because I look at it like life can change by every breath you take so let go whats gone and hold on to what you got. I really like how you said not to dwell on what you could do before because you wont be able to move forward and that is so true. I had my surgery and it went well yesterday was my 4th week from my surgery and it has been a very hard healing process but I will get threw it. I am also hoping once i fully heal i will get more pain decrease I think it is to early to tell yet. Thanks for your kind comments and keeping me in a positive frame of mind I truly will pray for you and you sound like a wonderful person so I know blessings will come your way. Thanks again Mylie
1/16/10 9:50pm
I congratulate you for how far you have come. I have only had RSD for 3 years from an accident which happened at home. It is so painful as you well know. After much prayer I just had the surgery and have the pain stimulator in, only a few weeks, My surgery was very difficult and I was just wonderering if anyone else has had this happen since it it suppose to be easy. How do you think yours works Mylie-Lynn? I don't know what to think yet. You should be very proud of yourself for all of your positive perservering, even though I know it is hard. I pray that you will feel better. One of my doctors actually told me he has been told of some cases of RSD being healed or disappearing. I could not even believe it, but hope is always great.Blessings!
1/18/10 12:08am
Thankyou for looking at me as a positive role model. People always tell me i have a positive out look on life I would have to thank my family for keeping me so positive. It truley breaks my heart to hear your story because i know how reflex sympathetic dystrophy changes your life. I went a whole year in chronic pain going threw proceedures and nothing working and me being so young i did not want to take pain medication so i tryed the pill Lryica I did not like how it made me feel i could not even think on this pill so i had my dr. take me off. With me being so young my Dr. did not want to go the stimulater way because of all its risk and how much it will take away from me in life but with all the pain i did not have a normal teenage life i layed on the bed and couldn't even be around my friends, also cant make it to school and people do not understand what we are going threw until they walk in our shoes. I also have a hard time being around people now because my pain being so bad my nerves are horrible when i get around people and i am hoping mental therapy will help me get back to the old me. My dr. told me the stimulater is the only way to go now they have tryed everything and alot of the doctors was amazed because i am the youngest person to have one. i went threw the trial and loved it so i was like alright i am ready for the implant, well i had to go threw classes to learn all the risk and being so young what i will never be able to do again and i am a very outgoing person. Yesterday was my 4th week sence the surgery and as you asked is it normal for it to be difficult? Yes i have had a VERY hard time threw the healing i am still down and can not do anything my dr. wont let me bend lift or twist for a whole year and he told me i will be down in bed for two months and the first 10 days being the worst. You also had the question what do i think of the stimulater? Well my thoughts on the stimulater is that it is better then nothing but just the other day i was questioning myself is it really helping the pain cuz i still can not sleep most nights and i still have my really bad days but i am hoping when i fully heal from the surgery i will feel more pain decrease. You know no matter how down you are feeling in life find away to turn that negaitive energy into positive energy. It helps to stay away from negaitive people that dont understand and dont let what they say or do get to you and keep your head up and keep pushing on. Every dark night brings better days is a saying i like. It is nice to talk to someone kinda in the same spot i am in life i also as well hope you get feeling better and get threw all these hard times. God bless you! thanks for commenting me and anymore questions i would love to answer for you.
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Hi Mylie,
I'd like to welcome you to ChronicPainConnection. I'm just so sorry you have a reason to be here, especially at such a young age. You are the same age as my granddaughter and it breaks my heart to think of all you have been through already.
I don't have any personal experience with a neurostimulator, but there are several community members here who do, so hopefully they will see your post and share their experiences with you.
Please feel free to share your thoughts or ask questions any time. We'll try to do all we can to support and encourage you. – Karen
I hate to appear dumb on this subject, but I am
. What exactly is RSD? What does it stand for? I got a little idea what is happening, but would like to hear more. JS
Hey Jonna R.S.D. stands for Reflex Sympathetic Dystrophy. It is a type of nerve damage so i deal with burning pain that feels like a horrable sun burn then it has a deep bone ache and the numb i feel is like if you was to put your hands in the snow then hurry and put it under hot water. My skin on my right arm turns colors like red, purple. If You google R.S.D. it will tell you more information. Thanks for your questions Mylie.
Thanks for your explanation, I appreciate it. Another dumb question; I know in a lot of cases, the nerves can heal. Is this something that doesn't happen in your case? Also, what happened to the rotten kid that pushed you?? Sorry, I am just naturally a curious person.
I am so sorry for spelling your name wrong haha i should of looked anyway my nerves will not heal in my case this is for the rest of my life. The only thing the dr.s can do for me is put the spinal cord stimlater in my spine to stimulate the nerves and help the pain. The boy got fined 500 dallors and put on probation. Thanks for your kind comments.
Thanks for the kind comments and your support Karen.