lyrica and joint pain

arlene Community Member March 13, 2008
  • I recently found out that i have Fibromyalgia and i am on lyrica. This medication seems to help. My dose has been upped now and i am getting bad joint pain in my knees and fingers, my knuckels feel like thier on fire and is very painful when i first wake up and for about 1-2 hours after. It's painfull to bend my fingers. I have major swealing in my fingers and the tips of my fingers are numb, but that happened before the lyrica, it just got worse now with the lyrica. The other side effect i have with the lyrica is trouble sleeping, if i take my night dose at the right time i will be able to get to sleep.

    I was wondering if anyone elese is on lyrica? And what thier experiance is with it.

    I also have a back injury from 2000. My L4/L5, SI JOINTS, And of last summer BULGING DISK.

     

12 Comments
  • susan
    Mar. 23, 2008
    Hi arlene:  i have been on lyrica for the past 2 years....I take 2 each morning together with food and my other pills...personally, i have found it to be a big help...it has helped to stop the burning that was running down the right side of my arms to my fingers....i felt really good for a change....i was on  noratriptalyine before that and it made...
    RHMLucky777
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    Hi arlene:  i have been on lyrica for the past 2 years....I take 2 each morning together with food and my other pills...personally, i have found it to be a big help...it has helped to stop the burning that was running down the right side of my arms to my fingers....i felt really good for a change....i was on  noratriptalyine before that and it made me so drowsie, and dopy that the lyrica seemed to do the opposite....sue p.(beautifulbuddesigns@hotmail.com)
  • fibroannie
    Mar. 20, 2008
    Hi, Arlene, I too have FM and arthritis, and on Lyrica. It doesn't seem to be helping me, so I'm going to ween myself off. I was taking it twice a day, but was sleepy in the day, so am taking it at night. Take 3 25 mg tabs with 2 Nortiptiline (mood elevator) and 1 2-mg atavan, and still have nights I can't sleep. Your joint pain sounds...
    RHMLucky777
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    Hi, Arlene, I too have FM and arthritis, and on Lyrica. It doesn't seem to be helping me, so I'm going to ween myself off. I was taking it twice a day, but was sleepy in the day, so am taking it at night. Take 3 25 mg tabs with 2 Nortiptiline (mood elevator) and 1 2-mg atavan, and still have nights I can't sleep. Your joint pain sounds like rhumatoid arthritis, are you seeing a rheumatologist? They have some wonderful meds out-maybe you can try some of those. I too have a crushed low back and SI joint pain and problems. I just move as much as I can, stretch as much as I can, and take my pain meds. Need to be on an exercise program, but I've only been retired 2 months and travelling to see in-laws and my mother, so no way to start a routine. Good luck, Ann
  • Lisa
    Mar. 20, 2008

    Hi Arlene,

    I looked up lyrica on webmd and this is what i found for patient info on side effects:

    Drowsiness, dizziness, confusion, difficulty concentrating, unsteadiness, fatigue, swollen arms/legs, increased appetite, weight gain, nausea, dry mouth or constipation may occur. If any of these effects persist or worsen, notify your doctor or pharmacist promptly....

    RHMLucky777

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    Hi Arlene,

    I looked up lyrica on webmd and this is what i found for patient info on side effects:

    Drowsiness, dizziness, confusion, difficulty concentrating, unsteadiness, fatigue, swollen arms/legs, increased appetite, weight gain, nausea, dry mouth or constipation may occur. If any of these effects persist or worsen, notify your doctor or pharmacist promptly.

    Remember that your doctor has prescribed this medication because he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.

    Tell your doctor immediately if any of these unlikely but serious side effects occur: change in amount of urine, difficulty speaking, loss of coordination, mental/mood changes, muscle pain/tenderness/weakness (especially if you are tired or have a fever), stomach/abdominal pain, uncontrolled movements (e.g., tremor, twitching), unusual tiredness, vision changes

    For me I have the same hand issues and also have rsd, but fibro does the same thing. It seems to me that this medication is not working for you, it is adding to your problems. I had the same results. Just remember this is a new medication, no one knows what the longterm results are.

    I have a spinal cord stimulator and this has solved my morning problems with my hands and I take pain diliudad for my pain. Medications work different with each person.

    Who is treating you for your fibro?

    Also, soaking a wash cloth in ice water and then wrap you hands in this and then a dry cloth over for around 10 mins and this might help with the pain and swelling.

    Be strong, learn all you can.

    Lisa

    • arlene
      Mar. 20, 2008

      Thank you for all the info. I have gained like 30 pounds since lyrica,now when i have app. i dont even let them weigh me. I did'nt even loose my weight from having a baby 2 years ago. Last summer is when i got the bulging disk and that tore me up more since injury in 2000. Im just seeing a family doctor, finally she recomended me to a rhumatologist- i just...

      RHMLucky777

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      Thank you for all the info. I have gained like 30 pounds since lyrica,now when i have app. i dont even let them weigh me. I did'nt even loose my weight from having a baby 2 years ago. Last summer is when i got the bulging disk and that tore me up more since injury in 2000. Im just seeing a family doctor, finally she recomended me to a rhumatologist- i just have to wait 3 more weeks to get in. My doctor just could'nt answer my questions and wants to take me off the percocet and i told her thier is NO WAY !!! I was allready told i had ibs a few years ago and DDD. I was saw the same doctor as when i injured my back, then i got a letter saying he could no longer perscribe narcotics and had to switch doctors and from there it went down hill with doctors and specialist telling me to soak it up, and did'nt believe me that i was in pain. Finally i found this doctor and she is great. I had seen comercials for fm and did not connect anything, until some how i ran accross the symptoms on a web site and talked to my doctor about it. I had the redness on the palms of my hands before the lyrica and yes i was diganoiss with rhum. arthritis in my fingers when i was like 10 or somewhere around there, but the pain was never like now and the swelling. Ugg !!! My pointer finger is permently bent at the last bone by the nail and was always made fun of when little. Im gonna tell the rhumatologist i want off lyrica. What is ur pain meds like and side effects??? I have been on that nortriplyn, and 1 of those other ones you said and had bad reactions.

      Im gonna get off now, my fingers are to numb, but i look forward to chatting again. Thanks

    • Lisa
      Mar. 20, 2008

      Hi Arlene,

      One of the reasons I had asked if you are seeing a pain managment dr. is because they have access to all kinds of pain medications. You can also be treated with other options, morphine pump, tens unit, spinal cord stimulator, nerve block injections. Most pain drs start with the nerve blocks and something other than vicoden. Vicoden also like most...

      RHMLucky777

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      Hi Arlene,

      One of the reasons I had asked if you are seeing a pain managment dr. is because they have access to all kinds of pain medications. You can also be treated with other options, morphine pump, tens unit, spinal cord stimulator, nerve block injections. Most pain drs start with the nerve blocks and something other than vicoden. Vicoden also like most pain meds causes constipation. What state do you live in?

      I have a primary dr also and he has me see different drs for different illnesses. I have oa and ra and lupus, scleroderma and rsd, but i see a pain management dr, i don't go to a arithitis dr. they are not much help and don't have real treatment options. Are you retaining water? I to put on alot of weight, i had lost 20lbs in 21 days and then it took me almost 3yrs to keep my weight at 106, and then i put on 40lbs, but have lost 15 due to the water pills.

      personally i would not take vicoden or percocet i like my morphine it works for my body and i don't have any side effects from it except constipation, but i had that anyway. And antidepressant meds make me depressed. lol I also see my pain dr. once a month. with arithitis drs you always have to wait, this for me defeats the purpose of having a dr. I don't think i should have to wait 3-4 weeks when i am sick today. And they are also x-ray happy. ugh

      It sure sounds like you are going through alot in really a short period of time.

      I will write back again like you fingers hurt, but write me again if you want. Also do you belong to any other chronic health web sites?

      Oh yeah I also use and i am glad i found one that works, a skin creme that helps with keeping my hands and fingers loose.

      be pain free, lisa

    • arlene
      Mar. 20, 2008

      Hi Lisa, Yes-i have tryed the tens unit and did work for a while. I had to find a light duty job after i injured my back and i wore the tens unit while working and after about 1 hour it was turned up all the way and i was on darvocet then, so i was taken them every 2 hours, just to get threw the day.

      I live in Minn. and a smaller town at that, most dr. and specialist...

      RHMLucky777

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      Hi Lisa, Yes-i have tryed the tens unit and did work for a while. I had to find a light duty job after i injured my back and i wore the tens unit while working and after about 1 hour it was turned up all the way and i was on darvocet then, so i was taken them every 2 hours, just to get threw the day.

      I live in Minn. and a smaller town at that, most dr. and specialist i have to drive at least 1 hour. And driving is not a good thing for me, it makes pain worse. I just completed a neck and back clinic (6 weeks) and when i got to see the doctor half way threw, he said im no worse than any other person there. This was before the fm.

      I have got steriod injections in si's and lumbar,physical therapy,pool therapy,message therapy,traction therapy, a pain clinic, have been on morphin and duragisic patch and so many more. Im allergic to vicodine, get the itchy's. The only way i found out that percocet worked is cauz i had a surgery (laporscopy)Had scar tissue and lesions from c-section.

      My doctor want's me to see a chronic pain counseler, is that the same as a pain management dr. ???? The med i was asken about previously was ur diliudad - is there  bad side effects with that? Sorry i could'nt remember the name last time.

      I want to know if this fm just get's worse the longer u have it, or what. So u have been very helpfull and i hope we keep in touch. Thanks again, Arlene

    • Lisa
      Mar. 24, 2008

      Hi Arlene,

      I don't know if a pain counsler is the same as a pain mangement dr. I would call the office and find out. The diliudid that I take has some side effects at first, but went away after awhile. Of course consitpation is one side effect that stays, but changing your diet can help with that. At first I was tired and a little light headed, but that...

      RHMLucky777

      Read More

      Hi Arlene,

      I don't know if a pain counsler is the same as a pain mangement dr. I would call the office and find out. The diliudid that I take has some side effects at first, but went away after awhile. Of course consitpation is one side effect that stays, but changing your diet can help with that. At first I was tired and a little light headed, but that all went away within a months time. My body has adapted to the medication just like your vicodin I am sure at first you noticed you had a drug in your body, but by now it is no big deal.

      Whenever i take a new medication i inform my family and ask them to call me a couple of times a day for the first day to see if i am having any bad reactions. The patch works well for me, but i can't afford it. other then the patch the diluidid is the only medication that works. I take 4 to 8 mgs every 4 to 6 hours as needed. It is a medication that you have to be aware of when taking it and be responsible about it.

      It seems to me that you are over working your body, how can you tell what therapy is the right one if you are doing so many at one time. One therapy could actually be canceling the effects of another. I mean think about it what healthy person could do all that and not feel over worked tired, in pain. Doing to much can make it worse and if that is happening you might want to slow down and you might not need as much or often the pain meds.

      I lived in a small town also, i mean small 49 people and the ambulance did not even have oxygen on it. I moved back to florida we have great drs. hear. Is there anyway that you can be seen by a dr at your hospital and be treated there instead of all the running around which is not good either if you are trying to heal. Also, most drs get a paperback pdr for each exam room every month, ask you dr. if you can have one so you can read up on all your meds and that way you have it so you can check for yourself what you are taking. I am my family's first person to call when they have a question about meds.

      If you need anymore help or have anymore questions i am here to help you find a source or a site to answer your questions. you are not alone.

      have a pain free day, lisa

      ps: if my spelling or grammer is off blame my hands lol

  • Anonymous
    Karen Martino
    Mar. 20, 2008
    I have fibromyalgia and was started on Lyrica - 75 mg in the a.m. and 75 mg in the p.m.  and I have to admit that it did help with the pain.  Then I upped the dose to 75 mg in the a.m. and 150 mg in the p.m.  It was HORRIBLE.  I felt like I was a totally different person. I have no concentration, no memory, can't sit for any length of...
    RHMLucky777
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    I have fibromyalgia and was started on Lyrica - 75 mg in the a.m. and 75 mg in the p.m.  and I have to admit that it did help with the pain.  Then I upped the dose to 75 mg in the a.m. and 150 mg in the p.m.  It was HORRIBLE.  I felt like I was a totally different person. I have no concentration, no memory, can't sit for any length of time. I am a medical transcriptionist and I could not even focus.  I also had the weight gain and was eating just for the sake of eating.  I then went back to my regular dose of 75 and 75 however, the concentration, memory, "out of body" feeling existed.  I told my doctor and her response was "but it is helping the pain".  My feeling is that I would much rather be on narcotics because I know I can function with those than to be on the Lyrica.  I have since started to wean myself off the Lyrica totally so we will see what happens.
  • Anonymous
    janet
    Mar. 20, 2008
    I have had fibromyalgia for many years.  I started on Lyrica about 6 months ago.  I had a wonderfuul responce to it.  I increased to 75mg 2 x daily and it was wonderful.  I could do things I hadn't been able to do for years.  I also had some swelling in my hands.  It was something that occured before but Lyrica made it worse. ...
    RHMLucky777
    Read More
    I have had fibromyalgia for many years.  I started on Lyrica about 6 months ago.  I had a wonderfuul responce to it.  I increased to 75mg 2 x daily and it was wonderful.  I could do things I hadn't been able to do for years.  I also had some swelling in my hands.  It was something that occured before but Lyrica made it worse.  I have osteoarthritis in basically all major joints and in some minor ones.  The arthritis pain seemed to get worse also especially in my hands and knees and my hands would get realy warm.  I have many other health problems.  I have lupus with multiple system breakdown.  Before I started on Lyrica I had gotton to the point that I could hardly get up.  I was just wiped out, no energy and in pain.  The Lyrica worked for about 4 months, during that time I felt so good that I over did everything.  At least that is my husbands theory.  I started to get fatigued again and the pain was terrible again.  I couldn't sleep cause the pain in my joints was so bad.  My dr put me on 150mg of lyrica 2x daily and I have improved alot but not got the energy  or the pain relief that I had at firts.  My Dr has contacted a pain clinic for me and we well see what help that will bring.   
  • Betty Boop Too
    Mar. 18, 2008

    Hello Arlene

     

    Nice to see you out and about.

    Gosh, your's & Libby's reactions and side effects really worry me about this med.  I just read through a discussion on another pain group the other day and there are horrible weight gain, joint pain & swelling, seizure's, etc about this medication.

    When I first heard of Lyrica and being...

    RHMLucky777

    Read More

    Hello Arlene

     

    Nice to see you out and about.

    Gosh, your's & Libby's reactions and side effects really worry me about this med.  I just read through a discussion on another pain group the other day and there are horrible weight gain, joint pain & swelling, seizure's, etc about this medication.

    When I first heard of Lyrica and being approved for FM, I was really very hopeful.  I've stood back and not asked my doctor about it yet, just to find out how it worked for others.

     

    I just don't know that I would be willing to use it and have tried to weigh in all the extra side effects vs the benefits and I can say that I'm going to stay with the medication program that I'm on now and not try it on my self.  The weight gain alone would drive me nuts and I would fall into a horrible depression from the weight problem.  The extra joint pain and stiffness would be a real bummer too.  If I added it to my already morning stiffness and pain, then it would be rediculous.  I hope this gets them doing more research into another group of meds for Fibro, so at least doctors & patients will have a choice and maybe with drugs that do not have such extreme side effects.

     

    I am also aware of the fm patients that this medication has just made a world of difference in and I'm very happy for them too.  I'm just personally holding out for some more selection in medications and less side effects to worry about.

     

    Thanks

    Betty

  • Anonymous
    libby
    Mar. 14, 2008
      We do have alot in common.Lyrica does help somewhat.BUT i am beginning to wonder if its worth the swelling,,i have in fingers,feet.And i have gained well around 40 lbs since i started it.I can tell when i dont take it.the leg pain reminds me very fast.I wrote the company and complained that the weight side effects were bad.And i am on a list so that...
    RHMLucky777
    Read More
      We do have alot in common.Lyrica does help somewhat.BUT i am beginning to wonder if its worth the swelling,,i have in fingers,feet.And i have gained well around 40 lbs since i started it.I can tell when i dont take it.the leg pain reminds me very fast.I wrote the company and complained that the weight side effects were bad.And i am on a list so that if and when they figure a way to change the formula to stop so much weight gain i will be notified.IF i cN STILL FIT INTO MY CAR....theres a group u can find through yahoo search on Lyrica people are complaining about alot with  this med.see if you can find it through search it also gave me the number and website.i am on 100mg 3 daily.am considering not tKING IT.Let me know if i can help..Libby
    • arlene
      Mar. 15, 2008

      Yes, I would say we do have alot in common. The weight gain is awful...I do feel the lyrica does help a bit. I do get cold after i take it, some headachs and the joint pain. Im on 50mg in morning and 75mg at night, doctor just upped night one to 100mg but have not started it yet. If i take it and have to wait 4 daughter to fall asleep, i will be up 4 a few...

      RHMLucky777

      Read More

      Yes, I would say we do have alot in common. The weight gain is awful...I do feel the lyrica does help a bit. I do get cold after i take it, some headachs and the joint pain. Im on 50mg in morning and 75mg at night, doctor just upped night one to 100mg but have not started it yet. If i take it and have to wait 4 daughter to fall asleep, i will be up 4 a few hours. I know i don't get enough sleep and that makes a differnce, my 2 year old does not like 2 sleep, she don't take naps even.

      But i had so many questions 4 my doctor and she just could'nt answer them, so now she finally is sending me 2 a rhumatologist, it will take about a month 2 get in, but finally. Do you have skin redness? The inside of my palm is very red and i find that wierd.. My doctor want's to take me off the percocet, and i know i will not be able 2 walk if she does that and it seems she don't get it. But on the other hand this doctor is the only one that understood my pain and believed me, and figured out the FM. Before i found this doctor all i knew is i had a back injury with a bulging disk. The doctors just thought i wanted pain meds and did'nt bother to really find out what was wrong. So i can't wait to actually see a rhumatologist that knows about FM. I guess i want to know what is gonna happen to me down the road a year or more??? Do these doctors know about that?? and the weight, that get's me down/frustrated and probley makes the pain worse also. Some days i dont want to move, but i have a 2 year old and a 13 year old. Well my fingers are about totally numb, so let's keep in touch. I did not find that info on yahoo search, but will try again later. Thanks.....