I have been living with a spinal cord stimulator for 3 1/2 years and a pump for 3 years.
If you are facing either one of these and have any questions, feel free to ask. I find it theraputic to share with others.
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spinal cord what if?
John Doe
Wednesday, August 12, 2009 at 10:44 AMre: spinal cord what if?
Nan of the Dunes
Wednesday, August 12, 2009 at 05:57 PMNumber one, ask to see someone from the manufacturer who knows what they are doing, they go thru reps faster than i change toilet paper rolls. If they take the time with you they should be able to program where you want it and get rid of where you don't. these leads have i think 8 spots apiece on them and can be fine tuned with someone who knows what they are doing and are willing to take the time to do it. I had seen on line before I got mine, that leads had migrated, but I figured by now, they would know what they were doing. The key, though is good programing(I get the best results programming my own, I have a degree in CIS and some of the reps would rather I do it, rather than they taking the time)
Good Luck
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Untitled Comment
JPN
Sunday, August 23, 2009 at 09:22 PMthis seems to be where they are headed for my husband. He is getting desparate so there maybe no ohter choice, but he has kinda a OCDC and aspergers like syndromes about things touching his body. I am not sur ehe could ahndle an implant, nor am I sure he could handle the elctrodes substituting the pain for a different "odd" sensation. how does it work for you and how does it affect you? Does it make you feel agitated or bugged? thanks or your help.
PS the day you wrote this was the one year anniversary of my husband breaking his leg which has now speed up his deblitating condition.
re: Untitled Comment
Nan from the Dunes
Sunday, August 23, 2009 at 09:43 PMThe stimulator feels just like a tens unit but is inside, it gets at the nerves(with work) and general area that are causing the pain, to kinda make your brain forget about the real pain. The only part he may have a problem with is the trial, my doc had me have it in for 4 days(over a weekend) these wires come out of you to the trial stimulator which you wear on a belt. The final one is all inside, I really don't know it is there except mine is in my left high rear cheek which doesn't have much padding. But it causes NO PAIN OR DISCOMFORT. If that bothers someone (under normal circumstances) they really don't have that much pain(unless I mean there is placement, healing or some other kinda of normal surgical problem)
The two most important things to make sure you do are: 1.. find out his docs normal protocol for how he does this, length of time, how etc. How often you can meet with whomever does the programing of the stimulator etc. 2. Make sure you keep meeting with the programmer until you can GET IT RIGHT. I wish you both luck and a pain free journey.
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Have you ever heard of anyone that has had the implant and had their leads "MIGRATE" and not be able to use it? This is John Doe and yesterday I posted " Spinal cord stimulator gone wrong", I am inquiring because my pain is back full force and now the same individuals (surgeon and neurotransmitter manufacturer representative)want me to take a few xrays to see what's what because my remote can't be programed and I can't use it at all. The implant is in my hip and the trial went great. The trial was suppose to mirror the final implant procedure, which it is not, and was set up to hit 4 points of relief-lower back, hips , knees and feet. I can not turn it on becaause for starters in is in my stomach and I can't take it. There are other areas that are not like the trial but this all I can say at this point. I can't believe what I went through to do this and now here I am....there are no words to describe it. Do you have anything you might like to share with me?
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