After the Diagnosis: Facing Life With Fibromyalgia

By Karen Lee Richards, Health Guide Wednesday, December 29, 2010
Do you remember how you felt when you first heard your diagnosis – fibromyalgia?  Fear?  Relief?  Confusion?  Uncertainty?  My first reaction was relief.  After seven years of suffering, I was relieved to finally have a name – something I could learn more abo...
Chronic Pain: 2010 in Review
12/30/10 5:27am

I would recommend to all new sufferers the importance of talking to others with FM. Find a worthwhile support group where you can express your feelings in a "no holds barred" fashion. There you will meet people aware of all that you are going through, people that will encourage and support you through the darkest episodes of FM. It is not an easy journey, it is a journey best shared to be understood.

It does get better.  Ozigal

12/31/10 4:33am

Spot on as always, Karen! Thanks once again!

 

I've also found for me that the grief cycle can start over again when different areas of my life are experienced again after the fibro diagnosis. Becoming a grandmother will be different the second time around, the vacation was exactly the same except for fibro; you see what I mean?

 

But it is also much, much easier now as I have more knowledge, support, and experience to help me get through each cycle.

 

And I'll second Ozigal's emphasis on SUPPORT! I felt so alone & isolated at first but finding folks that understand & would allow me to vent, question, etc. has been & remains a lifesaver for me.

 

Love, light, & laughter,

Dana

10/ 7/11 9:18pm
One if the hardest parts of this disease is knowing how to tell other people about something unseen and that some have never heard of. In a matter of a few years, I went from an active out going person to practically a hermit. What's your advice on how and whom to tell about your illness and more importantly dealing with coworkers. Also, I feel so bad for my sweet husband. Every day I start out with the goal of trying not to say one complaining word... I've yet to reach that goal. I'm tired of the pain and tired of being tired.
Anonymous
Anonymous
10/25/11 3:08pm

Finding and reading this article came at the right time for me.  I recently spoke with a disability specialist and she stated that one of the things I needed to do was to accept where I am in my limitations.  This has been extremely difficult for me because I am in my 30s and up until 3 years ago, I've lived a rather active life in fitness, work, volunteer service, and travels. Hearing the word 'acceptance' from the specialist sounded defeatist to me and greatly saddened me.  I have dreams and desires that I still endeavor to accomplish, and up until now, I've pushed my body and mind beyond fatigue to achieve my current accomplishments.  So, with my increased fibro symptoms, depression, anxiety and dosage of medications that are constantly being tweaked, I desperately needed to read something on fibromyalgia that helped my alter my outlook.  Thank you.

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By Karen Lee Richards, Health Guide— Last Modified: 01/05/12, First Published: 12/29/10