That is the one thing that I don't understand. I have been suffering for so long and with the worse pain imaginable and don't understand why they haven't tested my spinal fluid. I have had 15 or more MRI's,had several Catscans, a Myeolgram, in which this test felt like it was killing me..afterwards, for I had a spinal tap headache for 7 days. IT was horrible because I couldn't set up or I would have this pounding in my head. I was told, by a nurse that I could get up after having the test done, but remembered that people had told me NOT to get up right after the test and that was confusing to me, but I trusted the nurse. I wish I would have just layed there. I know that it had only been a couple of hours after my test and I needed to go to the restroom and the nurse told me to go. I went, but after I got back to my bed, I felt a little tension in my head. I couldn't understand why they would tell me to do that? It didn't hit me, until I was on my way home and then it was just a small headache, but it turned to unrelentless pain everytime that I would set up. 

Also, why they would tell me NOT to have any drinks that were duiretics..just water or electrolite replinishing drinks. Later, to find out that a coke would have helped me get through that a lot more, since I had to go back to get a bloodpatch done and that was awful. After vomiting for 20hrs, I was give completely OUT.

I just know that I have been through some horrible pain and it is ALL over my body. I can't bend,reach,pull,push or do much at all or I pay 4 it 100x over and I hurt and don't have to do a single thing.

I am concerned that since the Myeologram did that to me, would the lumbar puncture do me the same way??...but they would be taking fluid out instead of putting it in, so I should be alright, shouldn't I? I want the test done and have for a while. I have mentioned it several times, but to no avail. I don't understand why they haven't done it on me, with the debilitating state that I have been in?

I really believe that I do have something along this line of diagnosis or it is something bad. I have every symptom you can just @ think of and that is why the ME sounds so much like it, because I have brain pain/temporal pain, where the jawbone is and the NUMBNESS IS HORRIBLE, but have been dx with Fibro and I just don't believe that is the answer. I also have so many symptoms that I believe I am a hard one to diagnose, but need to be so desperately just to have some kind of life, instead of having to stay in bed all the time.

I have recently been to get a physical. I thought, why not. They might actually find something that others aren't seeing. They did find that I am vitamin D deficient (my level number was 19)and I believe that might be the reason for a lot of my Chronic pain, but there is something more. I just feel it. 

I do know that I have the incognitive state at times and severe episodes to where I can't function or move for that matter.The whole left side of my body will go completely numb, and when they first started I would have other strong symptoms like my heart beating fast, my face would feel like novacane(like from the Dentist)was shot all in my cheek(face) and it seriously would feel that bad. My brain feels like it hurts and I can't be touched or touch, my muscles feel like they pull and are tight,especially in my legs(under my knees are the worse). I can't retrieve words or put them together at times. I am in a fog, but my husband seems to think that is because of my medicine(I have to take Gabapentin and I take 3-300mg 3x a day),but this seems to be progressive and I know that the Gabapentin seems to be helping me. I will actually get up and do a few things after a couple of hours after the dose. I am very strict on writing everything that I have to take down..sometimes to remember when I took it last, but at least it works. I also have been dx with DDD of Cervical,lumbar & Hip/joint,spondylosis,CM(over 5mm-mine is 6.5), VA(venous anomally)in which they seem to think that I was born with it, but wonder why I hurt so bad in the area where it is located, they say that I have a T8-T11 disk herniation with hypertrophy in T10-T11, I did have a C5-C6 spinal diskectomy back in '06. I just thought I would give u some kind of background on me.

I know that something serious is wrong, but can't get anyone to see it. They just look on the outside and figure that I am just some hypochondriac or something. NO, this is very real and I am so tired of suffering and just want a correct diagnosis for what it is that I have.I do want to mention that I have these small pestules or papules on my body, mostly my arms(bi-ceps & legs, but I have them on my face as well)The ones on my face are the same, but the ones around my mouth are tiny,but a little tiny round ball will come from pushing a little,but would one of these diagnosis make a person do that or do you think that it is something else? 

I do want to thank you for all of your information and help on this matter. Maybe, after me printing this and taking it to my NL, he will do the spinal fluid test on me...finally, I pray. All that he has ordered for me this next visit is an EMG and I know it has been a over a year, since I have had my last MRI. I know something is going on, in my head and it is not just ALL in my head...you know what I mean. Thanks for all of your input.:))<3 Karen