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Wednesday, November, 25, 2009
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Why Painkillers Don’t Work on Fibromyalgia

Karen Lee Richards
Karen Lee Richards
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Co-Founder of the National Fibromyalgia Assn.

Karen Lee Richards’ career as a writer and patient advocate grew...

Karen Lee Richards

Friday, September 28, 2007
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Researchers have discovered why many fibromyalgia patients complain that even strong narcotic pain medications fail to relieve their pain. A study at the University of Michigan Health System found that the mu-opioid receptors (MOR) in people with fibromyalgia had a reduced ability to bind to the dr...
  1. Morphine
    beakerless
    Saturday, September 29, 2007 at 09:44 AM

    Very interesting article affirming my resistance to narcotic pain medication over many years.

     

    I received my fibromyagia diagnosis in 1984 by a wonderful rheumatologist.  Back then it was still referred to as fibrositis due to the misquided belief inflamation was causing the pain.  I cried when the doctor told me that it would not physical twist and deform my joints but that it was not all in my head.  He assured me my pain was real and that emotionally it could cripple me but back then the standard course of treatment was high doses of buffered aspirin which did nothing to relieve the pain or improve my seriously disturbed sleep.

     

    Over the next eight years or so I mostly had no treatment for my fibro, with intermittent periods when I was prescribed amytriptiline to help combat the sleep problems.  It was helpful but I had the constant aching between the flares.  Always the echoes of crazy, lazy and malingerer remained in the back of my mind along with the USMC boot camp creedos, No Pain No Gain and you have to break those muscles down before you can build them back up.  I would push myself until I got so ill I couldn't go on.

     

    The depression always seemed to me like the proverbial chicken and egg until I finally got into the VA healthcare system.  Once there I was repeatedly asked about sexual abuse and harrassment during my tour of duty.  When that dam finally burst I finally began my journey out of the darkness of PTSD and into the light of really living.

     

    I have continued to educate myself about brain chemistry and the medications that do or don't work.  Over the past few years it's become more difficult to discern where pain from fibro and other medical conditions meet and overlap.  Thus I have requested and received a referral to the VA Hospital's pain clinic and a new chapter begins.  In the interim low dose, slow relief morphine in conjunction with neurontin, naproxen and physical therapy have kept me functioning at a level I can live with for now. 

     

    The most important thing for me is that I have an understanding of the tools I am given.  The information I have found here is a key element to managing my own health care and I have found my doctors to be quite receptive to my desire to be a part of the health care team. 

     

    Thank you Karen.
     

    Reply
    re: Morphine
    Karen Lee Richards
    Saturday, September 29, 2007 at 04:47 PM

    I am so glad to hear you have doctors who are willing to work with you as a team.  That is often the most valuable asset we can have as we work to deal with our pain and other assorted symptoms and improve our quality of life.  I wish you the very best as you enter this new chapter of your life with FM.
     

    Reply
  2. Pain meds
    bzmomkfor
    Sunday, September 30, 2007 at 12:10 PM
       I appreciate the informative articles & information I find on this site.  This article explains to me why I feel like & have stated to my doctor I might as well eat Pez as take oxycodone 5mgs, in fact Pez would be better because then I'd have the satisfaction of knocking the little dispenser guy's head off his block!  I had asked for something different or for a break through pain medication but since we are just starting me on Neurontin & I had some very difficult side effects to adjust to the brief time I was on Lyrica the doctor doesn't want to change too much all at once.  So, we have a storm here today of some rain, not much in the way of weather concerns but it means a flare in fibro & I'm still battling a migraine since yesterday.  This article has me troubled as to what the medical community might find that can help us with our pain or if they will just discontinue pain meds & attempting to treat it altogether? Thank you for bringing this to light (said with apprehension but gratefulness for the clarifications).  I always enjoy learning more about what can help me & what may not.
    Reply
    re: Pain meds
    Bobbie
    Tuesday, May 12, 2009 at 04:20 PM

    Thank you for your comment!  I have just FINALLY been prescribed Oxycodone 5mgs for my fibro and Chronic Daily Headache pain.  I have been talking to my doctor for so long and now it took me almost having a nervous breakdown and almost loosing my job to even get that.  I only got some relief from the headaches after taking 7 of the 5 mg.  Very frustrating!  I have been taking Lyrica for only about 2 months with great relief for my neck/shoulder pain - even that is amazing to me.  I have been battling this pain since I had a bad whiplash accident 18 years ago!  I would like to talk more with you ...Smile  Take Care

    Reply
    re: Pain meds
    Karen Lee Richards
    Tuesday, May 19, 2009 at 02:45 AM

    Hi Bobbie,  I'd love to talk with you more.  If you'll click on my name in blue above, it will take you to my profile.  When you get there, just click "Send message" and you can send me a private message.  I'll look forward to hearing from you. – Karen

    Reply
  3. These studies aren't always what they seem
    grace
    Tuesday, January 08, 2008 at 11:02 PM

    I have FMS and a myriad of other issues, degenerative discs, bulging discs, shoulder impingement, chronic lower back pain. And as soon as a doctor sees I have FMS, they ignore the fact that I was on Vicoprofen for almost 3 years before I moved to another state and no doctor in this new state will listen to me.

    They won't even call my old doctors.

    I email the University of Michigan and told them that because of their study, the doctors refuse to give me opiods because I have FMS. I did get a response and if you would like a copy of my correspondence I would like to share it with you.

     

    Reply
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This video explains where back pain stems from by taking you through the anatomy of the back. 

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