My husband had acute pancreatitis and was having lots of tests to rule out cancer. Our family dr. who is usually of good advises told him to get off the internet. Like if getting to know about pancreatitis online was bad..........finally he had a cholecystectomy and was fine after, it was a question of blocked ducts, the fear we had was big.
I had bad migraines for years. I was told that getting married would help( I think he meant having sex but then drs. did not spoke openly), then having kids would do it have hysterectomy......and later menopause....still have migraine and filled all those RX.
After an hysterectomy I had spottings( and migraine) the dr a europeen guy told me that I was crying for my uterus !!! Tears of blood !!! Saw an other obgyn. I had endometriosis and cells migrated to the wound.
I have been told by a mental hospital in the capital of Canada to get off morphine permanently or they would stop treating me....and they did and I got effective pain relief and help from at least some of the staff...I didn't give up my morphine and they threw me out. I have been told repeatedly to go home and "get used" to the pain. I have been deliberately blocked from pain clinics for seven years. They keep losing my file or what have you.
I finally made a serious suicide attempt and no one intervened.....in hospital....they had been warned of my depression and suicidality and after the attempt they deliberately left an object I could have used to finish the job to at least see if I would take the bait or help me finish the job....within 10 minutes of the object being left, a nurse rushes in and rushes me straight to the psych tanks, I told about the suicide attempt, but not about the tape......After I was in the psych tanks....and I was told to pull myself up, I can't do it for you and you don't look desperate enough and sent home.
I posted a request for help on here and they sent the police and paramedics to escort me to hospital....the nurse gives me my file to lead me to believe I am not wanted there and so I left and no one intervenes.
The cruelty has not ended here...It hurts just to write, but I intend to leave testimony here. Because I am in a wheelchair and was never so badly depressed to the point of suicide, until the pain, hit, medically caused twice by doctors who I know now had no business promising good things to my desperate parents with the little training they receive. I am giving up my home in Ottawa and telling my family how I feel and I want out of Ottawa before I wind up killing myself.
I face losing the cats, my Internet Access my books, but what good are any of these when lifelong cruelty and years of untreated chronic pain, neglect....I am talking to my sister and she is making damn sure is this what I want .....I've asked her to sign Power of Attorney and I am sure I want out of Ottawa Canada.....many people have told me that being in a wheelchair is worth dying over, I believe I do not share, but years of poverty, cruelty, neglect and now incontinence that threatens to bankrupt me is leaving me with few options save my family and whatever shelter they can find me....a hospital, nursing home...Actually I am seriously thinking of ending my life, but guess where I will end up if someone here calls the cops? The place where they watched me try to kill myself and did nothing to stop it save leave an item I could have used to finish the job....and right now, everything in me is telling me to finish the job....Disabled people usually want to live passionately, but things like systemic discrimination, lack of government caring, and chronic pain and abuse, tend to make some one want to die a lot sooner and in this debt ridden economy, many, many people see disabled and elderly members as an unwanted expense...the more dead the better...Many Catholic friends have called me a sinner and a traitor to disabled people for feeling depressed. The final straw was being lambasted by my sponsor for trying to help an unknown teenager who was contenplating suicide over a psycho boyfriend and my getting upset over getting treated badly by the police....I don't generally post on-line, it leaves evidence for those who have hurt me...the cops have been alternately treating me with cruelty then begging for help in tracking her down...A family member posed as her to me saying everything was fine and then twenty minutes later, the same user leaves another abused stranger a message saying the girl was in the hospital and we can't get her to leave the boyfriend.....I am upset at this girl being in the hospital, but being crucified by friends and played games on by the cops when I needed to be on the psych ward. The idiots finally did hospitalize me after someone with a conscience overheard me dictating into a tape recorder about what happened after I ran out of diapers, was sent to the Ottawa General by a naive welfare activist and then I was left stinking up the place until theyput me in isolation and I thought they were going to kill me there. Disabled people don't even have to ask to be killed...a long enough medical history, a look of agony or just being in an ER alone can get you finished off...with or without consent.
I too had a life before this pain hit me and now I think my sponsor in Toronto may be dying....he's suddenly lost eighty pounds, all his hair and sworn off sugar and came down with a mess of supplies for me AND funded my $150 ticket to my annual pilgrimmage and he fought with me viciously two days after bringing me the supplies and took me out to dinner where dinner costs 15$ a plate all except for the argument was for the first time.
Disabled people are better off in the community, not in nursing homes, but one cruelty or incident after another is forcing my hand and I myself may be dying from scoliosis myself....on the psych ward I was gasping for air putting wood and glue together, they can only give me oxygen and puffers but they are delaying even this....I am strongly advising anyone with a disability, chronic illness and/or chronic pain with a history of suicidal ideation, to leave Ottawa Canada as fast as possible if you value your lifes, they are practising euthanasia by omission for non-terminal cases now according to my pro-life sources (who are not speaking to me because my depression in the face of badly or untreated chronic pain is seen as treason. They are now allowing certain disabled depression people to "decide" to die, even if they do not request death and are mentally ill.
If I stay here, I am dead meat....wait list for a pain clinic here is five years.....and studies show that things like racism can affect pain control, even aspirin......I am begging my family's help to get me out of here, at leat one is willing to honour my wishes, but my days on-line and in the community are numbered and I now realize I have nothing to hope for, even with my family's help, it will take several YEARS just to find another place and my sister feels the relationship with my parents is so damaged, she feels I am better off here....where medical people in power are willing to let me commit suicide after waiting nearly a decade for a pain clinic...
I never wanted things to end like this or to retract my work in disabled rights out of desperation, torture and despair.....If any person at risk for mercy killing is in Ottawa Canada, leave....because I have seen enough to make me fear Ottawa more than my parents. I might wind up dead by suicide, but should that happen, forgive me.....if I can be pushed to my suicide, no one is immune, no matter how devot a Catholic or commited a disabled rights activist.
Most pro-lifers don't even know chronic pain exists and they would rather hide the truth than actually help people like us...I shared the Lancet article from here with them and no one replied. The huge scope of the problem might explain the huge demand for euthanasia, but I'm just a filthy traitor to my religious and activist beliefs, never mind that I once looked up to these people as heroes, even thanked them for their efforts while I still could....Were it not for my commitment to their cause, I would never have lasted seven years, with more odds against me that most pain survivors.
I could have helped you guys and the pro-life movements and countless other people with this horrible disease with my activism alone.....now I can only say goodbye to my last pleasures in life and my freedom just for a shot at SOME HOPE at a real pain clinic...not even a cure. I just don't want to feel like a traitor or a sinner anymore.
School is beyond me....and I lose my morphine and my doctor in three months. This is Canada and there is a huge shortage of doctors and pain specialists.If an able-bodied person struggles with this disease, try it with cerbral palsy, PTSD, abuse, depression, where even typing is agony....with one hand because my back is too bent to allow proper typing. Cerebral is nothing compared to chronic pain and it was the best doctors in the planet that brought it on, not my handicap//
I thought I'd seen enough cruelty due to cerebral palsy..Chronic pain shows me a new low every time I turn around...I could have made something out of myself, even handicapped, but without a pain clinic and more compassion (I don't call allowing someone to suffer for seven years without a pain clinic compassion....And my compassion is the only thing that saved certain fools from a lawsuit or worse.
Correction I lose my doctor in a month. She is willing to prescribe nine months worth of morphine before she leaves, but I likely will not find another doctor willing to treat me or prescibe morphine and I don't have the strength to do things I enjoy, much less crucial things, like get laundry money every other day in cold wether than causes flaire ups.....
2 years ago my old doctor reduced my total cholesterol down to 105. I had freaked out, became seriously depressed,angry and hostile, developed insomnia, went hormonal, had postmenopasual bleeding and issues with my gallbladder. Everytime I asked someone what was too low with cholesterol, they would marvel and tell me how wonderful my numbers were. But no one could tell me what was too low.
My new doctor called me to tell me my new cholesterol numbers and asked me if I was OCD. I think it was because I kept telling them it was my cholesterol levels causing the problem. I finally convinced my doctor to stop the Vytorin. Within 3 days I was a normal person again. My new doctor was amazed at the change in my personality when we talked the next week.
Reta
I had to change clinics and when I told this new doctor I had been on Soma for extreme pelvic pain, with hypertonic muscles in that area, along with my hydrocodone, he jumped all over me saying that 'Soma is the same thing as LSD', rediculous, I say.Soma really helped my problem, but because of misuse by others it is not prescribed with pain meds. LSD? That is a hallucinogenic. He also laughed when I told him I put off eating for a long time because it affected my pain meds, basically killed the effectiveness. Which it does, but he was making fun of me for saying that. I have yrs of experience with my meds and I know how they work on me. Now, the time released meds, it does not effect, at least with me. I don't need that kind of in put into my life. I am in pain, and nervous even seeing these pain doctors, as it is.
A few years ago I was told I had congestive heart failure. This was a shocking diagnosis since I was only 45. After my second emergency room visit due to trouble breathing because of fluid buildup in my lungs I was admitted to a hospital. The cardiologist on hand came in the room that following morning and told me...your problem is your obesity. Don't you realize how obese you are? There is nothing really wrong with your heart, its your weight.
Well, after she left the room I unplugged myself from the iv, got dressed, and walked out of the hospital. On my way to the bus stop I ran into an urgent care nurse that recognized me from previous visits. I followed her into her area and she took the iv out of my arm for me and taped me up. She also agreed with me that the doctor was an ass.
I did follow up with another cardiologist at that same hospital. It turns out I was taking Vioxx and was told to stop. Within 3 months all my symptoms had resolved, never to return and I was strongly cautioned not to take Vioxx again.
Oh, by the way I did end up losing the weight but the emotional scar that doctor left goes deep.
<sigh>
After I had my first daughter, I went to a Texas health department to get an IUD. The doctor told me I would lose my husband if I didn't lose weight. Interestingly, I've been married and divorced twice. Each time my marriage broke up, it was just after I'd lost weight.
I'd been going to Weight Watchers, but hadn't quite got to goal weight when I talked to an ob/gyn about having a baby with my second husband. I was 34 at the time, and the doc told me I should go ahead soon. I stopped going to WW since I wasn't supposed to lose weight while pregnant. One visit I was upset about the weight I'd gained, and the doctor said, "Well, I'm not the one putting the food in your mouth!"
patsy
I just received some odd advice from my dentist. I really like my dentist but sometimes I think he wants to make some extra money. He told me to ask my doctor about the association between the silver fillings in my mouth and MS. This is one of those things you hear about routinely on the Internet...someone urging you to get rid of all your metal fillings.
When I asked how insurance would cover this...he told me that he would "take care of it" by saying my fillings were old. Huh? So he wanted to replace my silver fillings (all two of them) with the tooth colored ones.
I dunno.
Here is more information on the whole mercury/dental filling controversy.
"Consumer Reports told its readers on several occasions that "if a dentist wants to remove your fillings because they contain mercury, watch your wallet."
Very interesting topic!
With regard to Karen's comment about the doctor who told his patient with chronic pain to go home and have sex with her husband - this advice is not so far fetched. As many chronic pain sufferers know, sex is a great pain killer mainly because an orgasm results in the body producing large amounts of endorphins which seem to reduce or even completely overcome the pain.
The problem is that neither the orgasm nor the rush of endphins lasts very long. Now if someone could find a way to lengthen both of these beyond what they persist in most people, he or she will make a fortune and many of us will be very happy!
Although this one isn't about me, it is the one that clearly stands out in my mind. Years ago, when my son was a junior in high school, I took him to a doctor for depression. The psychiatrist told me, "He isn't depressed, he doesn't like school. Since he only has a year left, you only have one more year to deal with it. Don't send him to college and he will be fine."
"Don't send him to college and he will be fine."?????
Needless to say, I found a different doctor for my son.
Eileen
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