Thank you for sharing your experiences with Vitamin D. I never would have related it to cold sores and kidney stones. I continue to be surprised by all the things vitamin D seems to have an effect on. Glad to hear the calcium is helping you absorb vitamin D better. I hope you continue to see improvements.
What a great coincidence and today I find this series on FM & vitamin D
I was recently referred to a fibromyalgia specialist at the OSU Medical Center(after 10 yr diagnosis). My first visit included 9 vials of blood for testing and xrays of my pelvis and hips because of the extreme pain there. Today I recieved a follow-up call from my doctor. My Vitamin D levels were so low that she is prescribing the above mentioned dose of Vitamin D. (Also my liver enzymes were elavated (alcohol limited to 2-3 drinks 3-4x per year) which also bothers me greatly. Any thughts on that would be appreciated greatly as well). I sure hope this vitamin D regemin makes a diiference because the pain has gone from nearly un-managable to 12-18 hours of near unbearable.
I hope the vitamin D helps you. You might want to check which kind of vitamin D your doctor prescribed. I believe the prescription vitamin D is usually D2 but D3 is actually much more effective. It's not expensive and can be purchased at any health food store or online. But of course, talk with your doctor before you make any changes.
Also, be sure to talk with your doctor about your elevated liver enzymes. If they're only slightly elevated, it's probably nothing to worry about but should be checked again in two or three months to make sure they go back to normal. Every once in awhile mine will be a little high but when I'm retested, they're fine. Many medications are metabolized in the liver so it is important to keep a check on it. One over-the-counter medication to be particularly careful with is acetaminophen (Tylenol). Too much acetaminophen can damage the liver. It's often in other medications, both prescription and OTC, so you have to read labels carefully to make sure you're not getting too much.
I hope the new specialist is able to help you and you're feeling better soon.
I read about the high doses of Vitamin D for pain some time back and started taking 3,000-5,000 a day. My doc said that amount was OK.
I do not know if it has helped my pain at that lower level but I have suffered from depression every year I can remember. I even discussed buying lights for therapy.
Last year and then again this year the lack of sunlight doesn't seem to bother me at all.
It will be very interesting in the future to find out what vitamin therapy can do.
By the way, I am also a bariatric patient and it is currently not certain how much we absorb of oral meds and we know we have to take b-12 by injection because that part of our stomachs that absorbs B-12 is by-passed.