When I was going through allll the test for "whatever" was wrong with me, I was diagnosed by one of the top docs in our State and he is the one that diagnosed my fibro, hypermobility, flat feet, some scoliosis and that was some of the big ones. I have went on to have added to my resume IBS, gastritis, divirticulosis, migraines, chronic myofascial pain, torn rotator cuff, torn tendon, arthiritis all the way down my collar bone, burning and tingling feelings in hands and feet and fibro fog all the time, suffered TIA strokes and that's all I can think of right now. I was so glad to see you write about the joint hypermobility as it is not talked about nearly enough. This causes me great pain along with the fibro. Wonderful Article. Thanks again for the great work.
I have always been hypermobile in my legs and hips and enjoyed contorting my body into weird configurations. I could hook my heels behing my neck and walk around on my hands. Backbends - no problem. My wrists were also hypoermobile. I was too tall and short waisted (bad center of gravity) too be much of a gymnast but the ways I could move my hips, knees and back definitely indicated hypermobility in major joints.
I grew up with the term "double-jointed", which applied to my legs, hips, arms, fingers, toes. I, too, could contort my body which was amplified by gymnastics and running. As I got older, it was my "weird" talent that could make people oooh and aaaah. I do remember a time when my joints were hurting to the point my parents would have to rub them down until I fell asleep. It was attributed to "growing pains" at that time. It probably didn't help either that I had a few car accidents in my 20's. In 1999, full back/neck X-rays ordered by my chiropractor due to a generalized pain underneath my shoulder were also sent to my general MD. General MD called w/concern due to the extent of stenosis, scolosis, spacing, etc.. She did further testing which luckily didn't indicate bone cancer. It was shortly after this in 1999, at the age of 35 that I was "officially" diagnosed with CFIDS and Fibromyalgia. I also have the laundry list of other nasty diagnoses, including IBS, TMJ, Esophageal Spasm, Duodenal ulcer, which came before the Fibro. diagnosis. Oh darn, brain fog is setting in....It wasn't until 2005 that the term "joint hypermobility" was used by my Physical Therapist to describe me, but I didn't realize it was possibly linked to Fibro. In 2006, I started having hip pain after I had bladder mesh sling operation. I believe the position of my hips during the surgery aided in tearing the labrium (cushion) in my right hip in two places. A few tumbles down the stairs from Vertigo also didn't help matters. The Orthopedic Surgeon said that due to my hypermobility, that my hip and leg were pushed far beyond the "normal" range. Surgery is required. I would have never thought at 48 years old that my "double-jointed" abilities could cause so much damage and be related to Fibromyalgia.
I do take comfort in knowing that I am not alone with all these symptoms. I also appreciate all the information that is provided by this website and Karen Lee Richards!
Jacki
Karen,
Thanks again and Kudos to you once more bring to the for front an important issue.
I'm actually not surprised, as I suspected for sometime that my hypermobility was connceted. No pun intended.
I always touted this as a god thing as a child, yet when I experienced a period of about 5 days when I could not stand up and bear any weight no one was concerned. This was in the early 60's of course. Then years of gymnastics taking advantage of what I could do.
I'm convinced tody this all plays a role.
Now osteoartritis is ravishing my spine as well as the othe over lapping conditions. MY doctor says she trusts me, has no doubt about my pain, and yet at 10 mgs of an opiate she tells me I am at my end of the road for opiate support for pain because opiates make pain worse for Fibro, and yet understands I may need some for the arthritis.
One again I am terribly confused. Playing the gae right, remaining compliant and never even going to an Er for pain in 28 yrs, doing the medication vacation when reccomned and now I feel like I have no more recourse.
Sorry for the whine, feeling a bit of a pity party for one tonight. Thanks for listening~
I have Ehler Danlos Syndrome - Classic type, Hypermobile type -- seems I inherited genes from both sides of my family and I just recently found out. I also have Rheumatoid Arthritis (dx 2007) and Fibromyalgia (dx 2009) along with 40+ years of acute and chronic joint issues from bi-lateral carpal tunnel at 20 to ligament reconstructions and pulled ACLs, etc. Just this week, my doctor pointed out to me that my chronic pain and fibromyalgia are likely caused by he Ehler Danlos Syndrome, specifically the hypermobility, which is causing continuous acute traumas and an overall chronic pain syndrome. Through the process of elimination, over the years, I had determined that if you brace it, it won't hurt, although it was often illogical why I needed to brace my knee, thumb, wrist, etc. one week and then they'd be fine the next. I've learned to take it easy or slow and not over do it. I'm just coming to accept this, having literally just moments ago talked to my boss about medically disability and working part-time. Hypermobile and people with Ehler Danlos are very prone to overuse injuries, in situations where others might not over use and although many with Ehler Danlos never experience any pain - my mother and sister for instance - others have chronic pain, and likely have had chronic pain since childhood. If your joints are hypermobile be gentle with them, protect them and brace them when necessary -- sometimes just a compression wrap will take the strain off... it's amazing how much less pain I ultimately have when I conservatively use my joints and pay attention to what they are doing. Lisa
I had just written my life story here and something just jumped in swepted me out and it was all lost just about the time I was about to click, post comment. Anyway, maybe that's for the best that you all wouldn't have to read all of that stuff. Anyway, I was commenting on Jacki's post about the hips. I had to have a hip replacement Sept.2010, and was at last able to retire as a dental assistant which killed me, the last yrs was a nightmare. The socket to my hip was gone, and had a severe tear in my Labrum I was literally dragging my left hip, and my feet are flat which contributes to the pain. Looking back on it I had pain as a child, and had a lot of fatigue, but just thought I was lazy, but I lived on a farm and loved to walk everywhere and my feet and legs hurt all the time, and I would just lay down somewhere, anywhere and go to sleep inside or outside. As a teenager I had fainting spells, most of the time I didn't completely go out, but I'm sure I had low blood pressure. I have always had to protect my energy levels, like rest as much as I could on weekends, and could never plan fun things because I knew it might take away the energy I needed for work. I take Vyvanse now, a timed released med that they give for ADD, which I do have, and it really helps with the energy, along with pain meds, and Lyrica. I am fairly controlled but my pain doctor is horrible and mean to me, I guess because of my records saying they had counseled me on using benzos and alcohol, which is absolutely not true, at that time I had not had a drop of alcohol in 20 yrs. This is infuriating! And also I tested positive for a drug that my doctor forgot to put on the list for testing, and I just now found this out when I requested my records from my previous pain doctor, and you just can't fight this. This is a misunderstood condition for the most part, and the doctors don't have much sympathy for it, but I will say my primary care doctor has really tried to help me. I think my hip problem was from the fact that I had a club foot when I was born and didn't walk for a long time, so the joint wasn't right to start with, which is one of the symptoms of Ehlers-Danlos which I'm sure I have, but how do you get tested for this?
Lisa, I just wrote a post and had not seen yours about Ehlers-Danlos, and you sound worse than me, but how do you get tested for this? I am going to see my doctor today and want to tell him about the Ehlers, and I always dread telling a doctor what I've read because they think you just read an article on the web and jumped to a conclusion about your condition but I've read a lot about this, and am sure I have Ehlers. I have all the symptoms right down to the high narrow arch in my mouth. I've been tested for most of the autoimmune conditions and came up with a slightly elevated RA positive, but they don't think I have RA. From what I've read there are varying degrees of Ehlers, depending on the mutation. I guess it's not so important to have diagnoses but it may help my pain doctor to take me more seriously about the pain, I literally hurt all over, and burn, and believe it or not burning is a symptom of ED. What can I do? I have read it can effect the heart, so I guess that is serious. I have thrown so much money at the pelvic pain, that I can't spend anymore money, had to borrow money for the last expensive test I had. Just wondering are any of you RH- blood type or have it in your family? Many people with this blood type have these problems.
IN MY 70TH YEAR , I CAN STILL PUT MT PALMS ON THE FLOOR, AND HAVE HAD LOW BACK PAIN SINCE AGE 12.
THE DOCS I WENT TO POOH POOHED THE BACK PAIN BECAUSE I WASN'T STIFF!
NOW I HAVE MUSCLE WEAKNESS IN MY LEGS DUE TO VERTEBRAE SLIPPAGES, AND LOTS OF OA IN ADDITION TO FMS AN CFS, AND VARIOUS OTHER NASTINESS.
I USE A WALKER IN THE HOUSE AND A SCOOTER IN THE COMMUNITY.
SLEEP IS HARD TO MAINTAIN BECAUSE OF PAIN.
SOME OF MY FINGER JOINTS DO THE BACKWARDS THING, KNEES TOO.
IN ADDITION, I HAVE HAD TWO RETINAL DETACHMENTS AND THE LAYERS OF MY CORNEAS SEPARATED AND FORMED LITTLE CRATERS : CORNEAL DYSTROPHY.
SO I FEEL LIKE I JUST NEVER WAS GLUED TOGETHER PROPERLY!
(I THOUGHT I MIGHT HAVE EHLERS DANLOS, BUT NO ONE EVER AGREED WITH ME ON THAT.)
I was so amazed when I started reading everyone's comments below. You don't hear much about Ehlers-danlos syndrome. Almost no one out there including the medical field have even heard of Ehlers-danlos Syndrome. I have been searching for answers for the last 10 years on this as I was diagnosed with EDS about 10 years ago. And yes, I do have it. There are tests they can do with the hypermobility that prove that you have it. There are also tests that can be done for it but only through a Genetic Counsellor. You have to have a referral for this. Now I know for a fact that in the United States they may have more knowledge about EDS than Canada, as I am in Canada. I will be going for some testing at the Genetic Department at one of the Hospitals in Canada, so finally I will receive more answers to this almost silent disease. I have had nothing but a list of health problems most of my life because of EDS. I have had two back surgeries for severe stenosis and scoliosis, along with bladder and bowel problems, chronic pain and very fatigue. I understand how everyone feels when you say your doctor just overlooks your symptoms and doesn't seem to show any empathy for you, I have felt the same way and even with people that are not in the medical field, I feel they think you are crazy or something. This is a real disease and more information should be available for us to have access to. I hope this helps with some of your issues. I know I am bound and determined to keep searching until I get all the answers I need to understand just what is happening to my body. This is our right. It should be no different than having any other illness. We just need to speak up more and let them know we want to be heard.
Yes, I have always had hypermobile joints...did yoga effortlessly which encouraged this, when I should have been doing strength training. Not E-D, but I have OA in all my joints (started age 33), migraines, easy bruising, TMJ. My ankles used to cave in while I was walking during my teens, my rotator cuff was injured during positioning in surgery for thumb OA. I got TMJ from having all of my wisdom teeth removed at once...and now have trouble getting my teeth cleaned. If you have children with hypermobile joints, I would encourage exercise that strengthens the joints/muscles not stretches them (like gymnastics). I would also mention hypermobility as a positioning issue during surgery to the surgeon during any surgery.
I have fibromyalgia but I did not know it until age 45. As a girl, I "turned my ankle", that is, my ankles caved in, causing me to stumble or fall, often, spraining one or both ankles to a mild or severe degree. I also had chronic skinned knees as a girl, from these falls. I just thought I was clumsy (which I am). My childhood doctor must have said something to my mother at one point, as she once made me get what I thought were horrible, sturdy oxfords, when all the other girls were wearing ballerina slippers. I only remember having the one pair.
As time went on, my ankles (especially the right one, as my right leg is dominant) went over more and more easily. Now they are like stretched-out rubber bands. About four years ago, I fell crossing the street and broke a bone in my foot and broke or severely damaged my wrist, having to wear huge leg and wrist braces for several months. I was wearing slide-on, 1" thick platform sandals at the time--that's why I fell. As this and the childhood example show, that has been a common denominator for me: Not taking reasonable precautions, e.g. wearing supportive shoes. One reason, besides stubborness, for this is that fibromyalgia has made hard, inflexible shoes painful to wear.
I had never given it much thought; but I have always been "double-jointed". Which was always fun as a kid to freak people out with my hands all bent out of shape. I have had a lot of problems with my knees and have had to have two surgeries on my right knee for torn miniscal and still have tremendous pain when I catch my self locking my knees. Just this morning I was standing in the kitchen and caught myself bending my knees way to far back and it hurt like all get out.
Like others I have been 'double jointed' since I was small. Suffered terrible growing pains and countless sprained wrists and ankles. Also ankles would just give way and I would be flat on the floor. I too wore sensible shoes to support turned in and flat feet. Would often wear stretchy bandages just for support.
Never thought anything of it, I just accepted it and made adaptations to what I did.
When I was 35 I started experincing symptoms of tiredness and pain, especially in my chest. As I am asthmatic and anaemic it was concluded it was due to that. The tiredness did not disappear but the pain went away when I was on prednisolone. Luckily for me I was seen by an air force consulant who realised there was something more going on.
Seen by rheum consultant sent for lots of tests, ultra sound, x rays and mri. Eventually after the rheum consultant retired and then seen again by a brilliant rheum doctor received diagnosis - R.A, osteo arthritis in shoulders, hips and wrists, hypermobility in fingers, wrists, elbows, shoulders, hips, knees, ankles and toes, fibromylagia, neuropathic pain and carpal tunnel in both hands.
I didn't realise until diagnosed that there were lots of little warnings over the years. I was difficult to diagnose because of all the steroids for my asthma kept masking symptoms.
Moving on to present day I see a wonderful physiotherapist who treats my hypermobility problems along with muscle weakness and I do gentle exercise to help the muscles round my unstable joints. Unfortunately, I have problems with my shoulders and hips moving out of sockets, tendon tears etc.
I definitely think that the hypermobility makes the pain worse and it is harder to find a comfortable position for aching joints.
It is great to read about others with the same problems , I don't feel so alone.
This discussion is so interesting! I too have have hyper-mobility, but not as severe as all of you are describing. It is more confined to the L side than to the R, which is where all my migraine and pain issues are located. I have always been able to touch my hands to the floor - if not behind my feet flat to the floor, and my thumb to my wrist which I can still do at age 62. When I was younger I could also do it on the right, and was double jointed in both hands but more predominantly on the L. I went to and orthopedic surgeon about a torn rotator cuff, and he told me I just had too much range of motion.
I also trip a lot, fall easily, lose my balance, and bruise easily - that has been going on since childhood - and I do have a narrow cleft at the top of my mouth. I also had knocked knees as a kid and wore shoes with ties until I was 15 or so with supports, and still have very high arches - so much so that there is a clear space underneath my arch which you can see when I have wet feet!
I have tingling in hands and feet,and some other symptoms, and have been diagnosed with fibromyalgia, but I don't have the severe joint pain that others have. I can't run anymore, but do walk with no trouble, just aching muscles which is more from being out of shape than anything else I think. I will have to ask my doc about all this next time I see her, since it is all new information to add to the mix. I am an adopted child, and have no medical history, so every time something like this comes up, it is like a little puzzle piece that I ask - I wonder if something like that was in my family? So much of it sounds like me, just in a much milder form.
I hope for less painful days for you all and better treatment from your docs. If they are not working with you and are not treating you well or with respect, it may be time to find another doctor who will. After all, you are the one paying the bills! Good wishes to everyone who has posted!
Definitely get your B12 and Iron checked. B12 def. can cause the tingling in the hands and feet, as well as problems with balance and memory/concentration problems. I think that these tests should be standard for us all at our primary docs and rhem. docs. The symptoms we all have from the CFS/Fibro can be made worse by lack of B12 and being iron def. The normal range for the B12 is really too low, IMO, here in the US. Other countries have a higher range for the Low for B12. If I remember correctly, the normal low for the US is 200 and below but you can have CNS symptoms, such as peripheral neuropathy and memory problems, if your B12 is measuring at 400. I have most of the problems that everyone is discussing on this site except for the hyper-joints. I've always had thumbs that popped and sported many many sprained ankles as a pre-teen and teenager but I can't hyper-extend any joints on purpose. The leg pains as a child/teen were sooo painful and scary. I always believed that I had bone cancer or something horrible because pain like that couldn't come from just growing pains. Pain and anemia and fatigue have been a perm. thing in my life for my whole life and only seems to get worse with age. But such is life. Once I was diagnosed with pernicious anemia and iron def. anemia and got my levels up, the falls stopped and the clouds opened up and the depression left. I still have A LOT of issues but getting some under control helps. Also, my eyes get really bad when my levels are low. Bad floaters and a terrible sensitivty to light. Anyway, I hope this helps. And spread the word about the importance of B12 testing, esp for those who are advanced in age. It can mimic dementia and symptoms are reversible if treated in time. Google B12 def. and I hope this helps with your balance and tingling issues. Thanks, Sheri F.
Definitely get your B12 and Iron checked. B12 def. can cause the tingling in the hands and feet, as well as problems with balance and memory/concentration. And low Iron can cause you to bruise easily. I think that these tests should be standard for us all at our primary docs and rheum. docs. The symptoms we all have from the CFS/Fibro can be made worse by lack of B12 and being iron def. The normal range for the B12 is really too low, IMO, here in the US. Other countries have a higher range for the low for B12, therefore you may be low but it's not being flagged by the lab. If I remember correctly, the normal low for the US is 200 and below but you can have CNS symptoms, such as peripheral neuropathy and memory problems, if your B12 is measuring at 400. I have most of the problems that everyone is discussing on this site except for the hyper-joints. I've always had thumbs that popped and sported many many sprained ankles as a pre-teen and teenager but I can't hyper-extend any joints on purpose. The leg pains as a child/teen were sooo painful and scary. I always believed that I had bone cancer or something horrible because pain like that couldn't come from just growing pains. Pain and anemia and fatigue have been a perm. thing in my life for my whole life and only seems to get worse with age. But such is life. Once I was diagnosed with pernicious anemia and iron def. anemia and got my levels up, the falls stopped and the clouds opened up and the depression left. I still have A LOT of issues but getting some under control helps. Also, my eyes get really bad when my levels are low. Bad floaters and a terrible sensitivty to light. Anyway, I hope this helps. And spread the word about the importance of B12 testing, esp for those who are advanced in age. It can mimic dementia and symptoms are reversible if treated in time. Google B12 deficiency and I hope this helps with your balance and tingling issues, as well as the fatigue and fibro-fog. G'luck. Thanks, Sheri F.
Even at almost 63 with terrible back and joint pain from my fibromyalgia, I can still bend over and place my hands on the floor. I even did this while 9 months pregnant. My fingers do curve up and I can make them all gnarly by bending down the last joint while they are still curved. My thumb can touch my wrist. I thought all these years that I was just limber in some odd day. I never thought about the fibro being the cause. What a nice surprise!
I have EDS 3, and have had Fibro since my late 20's. Actually I had horrific leg pains in childhood, which I have been told were related to Fibro. I am now 57 and many of my joints dislocate, subflex, and twist frequently. I am almost always in pain with little or large areas of inflamation from hyperextending something by just normal movement. I have always suspected there was a correlation with my EDS and the extreme Fibro. I have noe had for over 30 yeas. Repeated minor injuries/hyperflexations create muscle tension and inflamation in the ligiments and tendons, which over time become trigger points both latent and active, particularly in major joints such as thumbs, wrist, elbows, ankels, knees, shoulders. I also have had a rare form of Lupus which has been in remission for many years but I believe there is an autoimmune connection between them all. Any info you have on this would be greatly apreciated.
Hi
I do not have hypermobility but the vertebrae in my back do not stay in alignment. As I go through the day, I notice pain and if I lie on the floor I can
hear the vertebrae popping back into place and the pain is gone. I have done lots
of strengthening exercises to help my muscles support my spine but it has not
worked. Anyone else have this problem? I would appreciate hearing. Thanks.
Stephanie
Hi Stephanie -
I am curious about what exercises you have done to try and strengthen the muscles around your spine? These are the large back muscles, and also some very small muscles underneath which are very hard to get to but are very vital not only in supporting your spine but in supporting your core muscles, which are the basis for supporting your spine. I don't know how old you are, or what you have tried before. The programs I would suggest for you, all which are aimed at strengthening the core muscles which must be strong first before you start on the back muscles (trapezius and so on - a go get yourself a good muscle anatomy book so you can see the outer and inner muscles and educate yourself about what supports what), is either Pilates or just plain sit-ups in your house if you don't want to spend any money at all. I got my core muscles, and by those I mean the muscles that are referred to as the "pelvic girdle", that criss cross from one pelvic bone to the other, and then the muscles of the abdomen itself that help you breathe correctly with your diaphram, and not with your upper chest only. Make sure your neck is supported and do little crunches to start, and make sure you are using the muscle to pull you up, not your head and neck. It will feel very different if the muscle is working and not your neck! If you can only do 1 to start it is enough. That and push-ups (legs out, not on knees) got me in the best shape of my life. But it took about a year! And I did it every day whether I wanted to or not, and I went very very slowly, and if it hurt I stopped, figured out what was hurting, and did it another way. There is a difference between a "good" hurt, and a "bad" hurt - most people know what it is. If you are not sure, sign up for a series of classes a the local Y to get your form correct before you go it on your own. Pilates is all about "core" muscles, which is why it is a good place to start. Remember to go slowly, you are not in competition with your neighbor, or anyone else, and set your own goals. If you miss a day, it does not matter. Good luck with this, and don't give up. Strengthening your spine is a worthy goal, but you may have been starting from the spine, and without a good core to support your work, nothing would help.
Wishing you the best, keep us posted!
Over 35 million Americans suffer from TMJ, which stands for temporomandibular disorders and is basically a collection of poorly understood conditions appear as pain or discomfort in the jaw and surrounding tissues and limitations in jaw movements. Certain injuries or other physical conditions such as arthritis can affect the jaw joints, effectively hampering the ability of people to speak, eat, swallow and even breathe. Other conditions may overlap with the TMJ, resulting in additional discomfort. Chronic fatigue, endometriosis, fibromyalgia, hypermobility, irritable bowel syndrome, sleep disorders, among other conditions that may occur in connection with the TMJ. TMJ disorders are usually very complex, including hormonal and genetic influences, as well as many other biological factors. The largest demographic TMJ patients are women of childbearing age. Pain is usually the most common symptom, usually posing as a dull ache in the lower jaw, accompanied by difficulty in using the joint. People who suffer from TMJ may also experience neck or shoulder pain, migraines, numbness in the jaw or jaw locking, popping or grating in the jaw while opening or closing the mouth, bite that feels off center, tinnitus (ringing in the ears).
Our skin, discs, tendons, ligaments and many other tissues all rely on the protein collagen, the structural integrity to normal flexibility, healing ability, strength and consistency is assured. This enables us to significant daily stress in these tissues, no problems and the collagen also heavily involved in the strength and elasticity of the internal organs as we are. Some people are called "double-ago" because they are so bendy whilst others are very stiff and tight joints. Collagen is a major protein in connective tissue, at least in part dictate the activities we do and how we have an injury.
Ehlers-Danloss syndrome is caused by an abnormality in the way collagen is produced and exported in the body, an inherited deficiency in the strength of the material. 10 types of EDS are known to exist, with many overlaps, and three EDS is the same as benign joint hypermobility syndrome called benign because major changes as the veins are not present in this form. Is very hypermobile joints are the most obvious sign of this syndrome, with a smooth, supple skin that tends to slow and the scar badly in terms of wide and thin scars heal.
The typical signs and symptoms of joint hypermobility syndrome is a hyperextensible skin, hypermobile joints, tendency to dislocations, fragile tissues, poor wound healing and a tendency to bruise easily. Chronic joint and limb pain is common and many sufferers live with a constant and multiple pain complaints. Patients show many abnormal muscle and are struggling to stabilize their joints appropriately, uses the wrong muscle that can lead to pain problems. Functional limitation is common in this group, who can not participate in contact sports or vigorous without significant joint injuries and pain.
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My mother was diagnosed with FMS when she was about 38. I was also diagnosed at around 38 but wonder if I didnt have it for much longer. I have always been hyperflexible in some joints like my hips that I could rotate in and out of the joint at will. When I joined the Navy, my high arches fell and I'm now flat-footed (painfull process) and dislocated my shoulder playing racketball. I have dislocated an elbow, both shoulders se veral times and now get regular cortizone shots in my hips every 4 months so I can walk. It's great reading other posts. I lost my mom last year and its hard to find people to talk to that truly understand.
Yes, I have fibromyalgia and Ehler's Danlos Syndrome. I was diagnosed with EDS a few months ago. I have always had loose joints. I have dislocated my knee once, my shoulder 3 times and was born with hip displaysia. I currently have a new hip due to the arthritis in the affected hip. I have always been able to bend my joints farther than normal, along with easy bruising and smooth skin and scars that do not always go away.
According to the rheumatologist stretch marks are one of the symptoms of scars that don't go away. Falling frequently is also a symptom and I have also experienced that and have sprained both ankles doing that.
But exercise can help strengthen the joints to fight this disease. It does work, so I would encourage all those who can exercise, do exercise. But do not hyperextend the joints when exercising.
I hope this helps someone today.
I am hyper-flexible which was mega cool as a kid but became a problem, "tendon laxity", when I started having hips & knee probems in my 30's. I can still do the splits at 49 along with placing my hands flat on the floor while standing on the balls of my feet.
This also saved me when I was in a rollover car accident. The doc said I would have broken my neck if I hadn't been hyper-flexible!
I've had TMJ surgery to clear out scar tissue so my jaw would close, dx'd with FM after the MVA, sublixation problems- the femur partially dislocates from the hip socket, arthritis dx'd in knees, hips, back, & neck, chronic pain from the MVA, and the list goes on inlcuding the hypermobility after ruling out EDS.
I've asked my friends about this topic in the last week and over half indicated being very flexible. I would be interested to see where this connection goes.
Hi Karen...I have a hypermobile sacroiliac joint, which is no fun. With these, if you sit more than 30 minutes or so, when you get up the joint locks or you're bent forward so far you lose all balance. Luckily, I haven't fallen, but this pain is really bad. Unfortunately, for years all you heard was there is no tx for sijd. However, there is a fusion, which I'd never have due to poor bone quality or a new hardware procedure that may work.
The surgery is an I-fuse implant from SI Bone, and there aren't many surgeons who know how to do it, but I found one and am trying to move forward on this.
Thanks for this information!
It is about time that the U.S. sees that there is a connection between chronic pain and hypermobility. If you look at other countries, especially England, they have been studying this connection for years.
I have had ongoing chronic pain for the last 15 years. It started as a result of a fall and fractured sacrum bone. Now, although it has healed, the pain continues. It took over 20 doctors to finally diagnose an SI joint that will not stay in place and causes terrible pain. My hypermobility made diagnosis difficult. Since I was able to touch the ground with my palms, legs straight, and bending in all different ways, (during the many range of motion tests), I was constantly looked at as a drug addict looking for pain meds. THERE IS A CONNECTION BETWEEN PAIN, (all kinds), AND HYPERMOBILITY. Come on, lets catch up with our research!!!!!!!!!
The preservation of bone is a priority for arthritis patients
When complex regional pain syndrome or reflex sympathetic dystrophy, developed to maintain your bone structure is then a matter for serious consideration is his. Likewise, the development of foot pain or fibromyalgia you will swallow a lot more than a few pills. In cases of joint hypermobility, the focus is on recovery. Children need to develop the juvenile idiopathic arthritis from early intervention to prevent them from developing severe knee pain. There are several sources of calcium and so you have choices regarding the foods you will include in your diet. If you're desperate, there are some inexpensive supplements on the market right now.
Osteoporosis patients have no alternative but for foods that are fortified with calcium to take. It has been found that inflammatory arthritis, bone loss tends to increase. This is where the patient is always smaller than the condition develops. The health experts recommend that adults have over a thousand milligrams of calcium on a daily basis. If you are over 50 years old, then you should be aiming for a slightly increased requirement of 1200 mg per day. Milk is a great source of calcium, but there are other milk products that can help you. For example, you could take ice (as a reward), cheese and yogurt.
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I also have had hypermobility since I was a child. I was constantly spraining my ankles, could touch my thumb to my wrist and various other things. People always contributed it to being just clumsy. I also have always fallen. I was in a canoeing accident last year where we hit a tree in the water and managed to hyperextend my knee which tore the ACL in my knee and had to have an ACL reconstruction. I now wonder if the hypermobility made this more apt to happen. My doctor couldn't believe I could have damaged my knee that bad canoeing. Also about 13 years ago was in a car accident which damaged my neck and have had a spinal fusion and it is plated. My husband who was driving didn't have any problems with his neck.
Yes, we all know that healthy eating is good for us. We hear so many times. It's something that "should" do. But I want to give a personal take, make it real to you. I want to know how much of a difference healthy eating has done for me as hypermobility syndrome (HMS), suffering, and I want to give you some tips on how you can start to feel the health and vitality in your own life.
Let's look at the facts first:
Why healthy eating is especially good for HMS suffer from:
• When our body is clean, healthier you inside out.
Our detoxification organs, including liver and kidney, works 24/7 to keep our body in the natural foods we eat czystości.Więcej less have to work. This is good for two reasons: 1 - we have to look and feel better, two - our detoxification system can spend your time doing internal "domestic work", making sure every part of our body works very best he can. This means that our joints can be kept healthy and recover from injury faster.
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yes, I have always had hypermoblile joints, when I was young it was not much of a problem, except my feet and legs hurt a lot, had flat feet which is one of the symptoms of this condition. I was born with a club foot, and didn't walk for a long time, I eventually straightened it myself by constantly being reminded by my mother. I am 61 and in a lot of pain, legs shoulders, have chronic pelvic floor pain
(had complications from hysterectomy, then enterocele repair) but I have had autoimmune symptoms for yrs. and I truly believe that I have an undifferential connective tissue disorder. My shoulders will just feel like they are falling out of the socket and I can barely raise them up to pick up a coffee cup, or pull off my shirt. This is not ALL the time, I have spells of the severity, but it is very painful. I also have all the symptoms of Ehlers-Danlos, but all my tests, so far, have only come back with a slightly elevated positive RA. The symptoms of this disorder are; hypermobile joints,* skin laxity,* club foot*flat feet* muscular weakness** ligament weakness** Raynauds*vascular problems* syndrome* burning**hands are becoming deformed* lots of pain and burning**easily bruised* the big tip-off for me was the fact I also have a high narrow arch of the pallet of my mouth. The astrik is for my symptoms, and I basically have all of them. I am in a lot of pain daily. Walking and being on my feet really exacerbates my pain. I am having a real hard time getting the doctors to take me seriously. It is a connective tissue disorder, and can vary largely among patients. My pain doctor is very insensitive to my pain, and I have pain all over, but severe pelvic floor pain from surgeries, and possiblily Levator Ani problem, severe tension in that area. There are levels of severity of the Ehlers-Danlos and can be subtle or strong. Severity depends on the mutation of the protein. I think being RH- also predisposes me to this. Anyway, that's my input, if it effects the internal organs it can be severe. My father had vascular disease and died at the age of 47.
inflammation*