Fibromyalgia and Family Impact Survey

By Karen Lee Richards, Health Guide Thursday, April 05, 2012

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Anyone who lives with fibromyalgia knows only too well that invades every part of your life, including the most personal areas – your relationships with your family and friends. In an effort to better understand the impact fibromyalgia has on personal relationships, Dawn Marcus, M.D., Professor...

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Dawn Marcus

4/ 5/12 2:41pm

Thanks, Karen. Getting information out there about how important relationships can be affected by fibromyalgia is an important first step to better edcuating healthcare providers about the far-reaching effects of fibro.

Dana

4/ 5/12 10:07pm

I was saddened to realize while doing the survey & really thought about the questions, just how much resentment there is with friends & family when I have to decline invites or cancel last minute. And they all know this is real & that I have no control over flares. It is one of the hardest things about fibro that I have to deal with.

Thanks for the opportunity to provide input, Karen. Hope this will help.

daba

Karen Lee Richards, Health Guide

4/ 8/12 6:36pm

Thanks for taking the survey, Dana! I agree, it's so sad that this illness takes such a toll on our personal relationships. And I think many of us would agree that this can be one of the hardest part of dealing with FM.

I hope the results of this survey will be able to at least make a contribution toward improving our relationships. Thanks again for contributing! – Karen

Christine

4/13/12 8:14pm

I too realized after filling out the survey how isolating Fibro is. When I am having a bad pain day, I tend to stay in my room because I don't want to bring everyone else in the house down. At times Fibro can make me feel very lonely, I find that pretty sad. I appreciate the days where I'm not too bad but lately there are not many of those.

dirkduplooy

4/12/12 8:34am

I had lost my wife and child due to the fact that she did not want to understand my condition and when I became down due to the fact that I could not play with my toddler son like other daddies do. She left me saying that you are a great father and husband but I cannot live with your personality any longer...

ladykeno1

4/12/12 10:59am

I am so sorry this happened to you. It is so often very hard for others to understand what they can not see and may not feel in their bodies. This is true with families and with many doctors. God bless you and your life.

Mariepi

4/26/12 11:51am

I know we all age one day, that day is very much here for me ... Is there a book or articles specifically on fibro and aging. I saw many books on fibro but none on older fibromites. I think that fibro at 30-40-50 is different than fibro at 60-70. I don't want to say it is worst, but different, I kind of got used to live in painwith time or just do with it. at 30- 40 I was mad, at 50 madder but 60 started to give up, almost 70, well, don't know if I should cry or but just know it won't go away.

Fibromyalgia and Family Impact Survey

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