opioid medication

Action Alert: FDA Opens Discussion on Chronic Opioid Therapy

Karen Lee Richards Health Guide January 31, 2013
  • The FDA has announced a public hearing and has requested comments on the subject of the use of opioid drugs in the treatment of chronic pain.   The public hearing will be held on February 7 and 8, 2013 from 9 a.m. to 4 p.m. in Bethesda, Maryland. There will be a live Web cast of the hearing. I...

9 Comments
  • Carrie Beth Brown
    Health Guide
    Feb. 02, 2013
    As someone who has multiple diseases that cause a tremendous amount of pain, I find it hard to believe that so many doctors are pushing to make general restrictions on patients that they don't even know. Casting broad stroke limitations on pain meds without any regard to a patients condition is bad medical practice, period. The idea of not allowing patients...
    RHMLucky777
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    As someone who has multiple diseases that cause a tremendous amount of pain, I find it hard to believe that so many doctors are pushing to make general restrictions on patients that they don't even know. Casting broad stroke limitations on pain meds without any regard to a patients condition is bad medical practice, period. The idea of not allowing patients more than 90 days of opioid treatment would be fabulous, if they can guarantee they could actually cure all of us of our diseases in 89 days. If any of these people, doctors or not, advocating for pain control restrictions ever had to live with the kind of pain that so many of us live with on a daily basis (with no idea of whether it will ever let up due to the life long duration of the diseases), they would surely find themselves on the other side of pain control advocating for it instead of denying it.
  • Jessica Jhnson
    Feb. 06, 2013

    I jessica johnson as an IC patient, farely new and finding out more and more illness is wrong with me. I have been in pain constantly for months. i try so hard not to take my pain medication but sometimes i need too. My pain is so bad i break down crying some days, not just because of pain but because i dont want to feel it anymore. I cross examin myself and...

    RHMLucky777

    Read More

    I jessica johnson as an IC patient, farely new and finding out more and more illness is wrong with me. I have been in pain constantly for months. i try so hard not to take my pain medication but sometimes i need too. My pain is so bad i break down crying some days, not just because of pain but because i dont want to feel it anymore. I cross examin myself and if me being here is really helping my family (low points) this disease is so hard to handle mentally and physically and it breaks me when it it so underestimated. I break down in tears because of the debt i am pputting my family in, and the fact my 4 year old beautiful free souled daughter has to see her mother lose strength and breakdown and cry. i pray and beg for my strength back that i once had so long ago it feels like, and i feel like it is so deeply lost sometimes it scares me. all i feel like i am is a burden. Yes My pain medication helps me Get through a bad day in so much pain i can not even take my daughter to the park let alone outside on a bad day. but i do everything in my power to fight it. Taking our medication away will be hurting us all in the end. who knows with how bad it is some may not be able to live with the pain. many of us are in love and have a family and the last thing we want to do is break in front of them. but dealing with a consistant pain that never seems to go away can break any one. I speak as an Ic/PBS patient pleeding our case and the fact of which i dont know what to do if i had to live like this any longer. I am praying for relief and have tried everything i can. and still looking and trying new options. we are not taking these pain meds because we want to, we take them because we need to. how would yu feel if everytime u walked u not only feel urgency all the time but every step u take feels like you are getting stabbed with a knife strait to the bladder. I ask please dont take our pain meds because we need them. Instead help us keep studies going to try to find new reflief everyday, and rais awareness of our situations, feelings and disease we deal with on a daily basis as is.

    • PARAINTN27
      Feb. 07, 2013

      I wish I didn't have to take pain meds, but in order to function I need them. I am a paraplegic on the Feb. 22 will be 36 years since my accident. I have lost the use of my legs, bowels and bladder. I had a fusion after my accident and healed and gained my upper body, learned my wheelchair skills ect. After a few yrs the hardware was working it way through...

      RHMLucky777

      Read More

      I wish I didn't have to take pain meds, but in order to function I need them. I am a paraplegic on the Feb. 22 will be 36 years since my accident. I have lost the use of my legs, bowels and bladder. I had a fusion after my accident and healed and gained my upper body, learned my wheelchair skills ect. After a few yrs the hardware was working it way through my skin so had them removed (harrington rods) The Dr. failed to replace anything to keep my spine stable so the disc start to crumble. DDD, Spondy ect. in 2006 had a Anterior & posterior cage with 14 rods pins, screws and cadaver bone graft. My hips are bone on bone and the sound of the popping and cracking drives me nuts. Above my fusion is causing my arms and hands to go numb and I fear I will loose use of them as well. Even with meds I am never out of pain but I can take care of myself most days. I am lucky to have a great family and one friend I can count on. Without pain meds I would be bed ridden and to me that is not much of a life. I have tried so many different meds and the one they want to crack down on is the on that helps me the most. My Pain Dr. offered to RX oxycontin, MS Contin, methadone ect. I don't want to be on them they don't agree with me. We are not cookie cutters everyone's system is different! Also difference in addiction and tolarance,,,Undecided      ..

  • Jessica Jhnson
    Feb. 06, 2013

    I jessica johnson as an IC patient, farely new and finding out more and more illness is wrong with me. I have been in pain constantly for months. i try so hard not to take my pain medication but sometimes i need too. My pain is so bad i break down crying some days, not just because of pain but because i dont want to feel it anymore. I cross examin myself and...

    RHMLucky777

    Read More

    I jessica johnson as an IC patient, farely new and finding out more and more illness is wrong with me. I have been in pain constantly for months. i try so hard not to take my pain medication but sometimes i need too. My pain is so bad i break down crying some days, not just because of pain but because i dont want to feel it anymore. I cross examin myself and if me being here is really helping my family (low points) this disease is so hard to handle mentally and physically and it breaks me when it it so underestimated. I break down in tears because of the debt i am pputting my family in, and the fact my 4 year old beautiful free souled daughter has to see her mother lose strength and breakdown and cry. i pray and beg for my strength back that i once had so long ago it feels like, and i feel like it is so deeply lost sometimes it scares me. all i feel like i am is a burden. Yes My pain medication helps me Get through a bad day in so much pain i can not even take my daughter to the park let alone outside on a bad day. but i do everything in my power to fight it. Taking our medication away will be hurting us all in the end. who knows with how bad it is some may not be able to live with the pain. many of us are in love and have a family and the last thing we want to do is break in front of them. but dealing with a consistant pain that never seems to go away can break any one. I speak as an Ic/PBS patient pleeding our case and the fact of which i dont know what to do if i had to live like this any longer. I am praying for relief and have tried everything i can. and still looking and trying new options. we are not taking these pain meds because we want to, we take them because we need to. how would yu feel if everytime u walked u not only feel urgency all the time but every step u take feels like you are getting stabbed with a knife strait to the bladder. I ask please dont take our pain meds because we need them. Instead help us keep studies going to try to find new reflief everyday, and rais awareness of our situations, feelings and disease we deal with on a daily basis as is.

  • Anonymous
    kaitie
    Feb. 05, 2013

    Opiods are addictive. There are other medications that don't have addictive properties. A Dr. Sener(urologist) had me on morphine and oxycodone. I felt well enough to not take some for the afternoon and ended up in the hospital for withdrawal. There are doctors who are not concerned for the outcome of giving this medication. They care bout short term results...

    RHMLucky777

    Read More

    Opiods are addictive. There are other medications that don't have addictive properties. A Dr. Sener(urologist) had me on morphine and oxycodone. I felt well enough to not take some for the afternoon and ended up in the hospital for withdrawal. There are doctors who are not concerned for the outcome of giving this medication. They care bout short term results then the affects long term. I am now on tramadol and gabapentin without the dazed feeling. I am alert now. Opiods are dangerous and should not be debated. The drugs that would help the government doesn't want to cover under drug benefits. That should be the descussion. !

    • PARAINTN27
      Feb. 09, 2013

      Katie, The opiods may not be for you, but the tamadol and gabepentin awful for me. I am a paraplegic and both caused problems with my balance. I agree more needs to be done for the people who take them as a way to get high or to sell them..To me that is more the issue not us in chronic pain. I also think more crack down on the hard core drugs like meth, heroin...

      RHMLucky777

      Read More

      Katie, The opiods may not be for you, but the tamadol and gabepentin awful for me. I am a paraplegic and both caused problems with my balance. I agree more needs to be done for the people who take them as a way to get high or to sell them..To me that is more the issue not us in chronic pain. I also think more crack down on the hard core drugs like meth, heroin ect.. Happy for you that these meds helps you. we are all different in how out system can adapt to each med,,Smile

  • Anonymous
    Jackie
    Feb. 04, 2013

    I suffer from I.C. Interstitial Cystitis, a very painful bladder diseasse. The pain is severe and I require long term pain management for this condition. I have been in the ER many times due to severe pain. Many of us who suffer from I.C. end up in the ER for pain control. Our bladders bleed, and some of us have Hunner's ulcers, we also suffer from...

    RHMLucky777

    Read More

    I suffer from I.C. Interstitial Cystitis, a very painful bladder diseasse. The pain is severe and I require long term pain management for this condition. I have been in the ER many times due to severe pain. Many of us who suffer from I.C. end up in the ER for pain control. Our bladders bleed, and some of us have Hunner's ulcers, we also suffer from urniary retention and at times are unable to empty our bladders. Many of us also have other diseases that go along with I.C., other painful conditions such as Vulvodynia, and Vulvar Vestibulitis, which I also have. Our tissues are inflamed, and burn, and also break open and bleed, again there is no known cause for these disorders. Thousands of us with I.C.,Vulvodynia and Vulvar Vestibulitis live in constant pain. Our relationships suffer as many of us can not have martial relations due to the pain. Punishing those of us who need long term pain management is not the answer. We are not drug addicts or drug seekers, we are in pain and only seek relief from this horrible condition that has no known cause or cure. I would be devasted if my pain medicines were taken away from me, forcing me once again to seek pain relief in the ER

     

    Thank You,

    Jackie Schneider - Interstitial Cystitis patient.

    Principal Investigator: Jordan Dimitrakov
    Affiliation: Harvard University
    Country: USA
    Abstract: Interstitial cystitis (IC) is a chronic, debilitating clinical syndrome presenting as urinary urgency, frequency, and/or pelvic pain in the absence of any known cause.                              http://www.labome.org/grant/r21/dk/linkage/analysis/linkage-analysis-in-interstitial-cystitis-7267966.html            http://www.health.harvard.edu/newsletters/Harvard_Womens_Health_Watch/2011/August/diagnosing-and-treating-interstitial-cystitis           
  • Linda
    Feb. 02, 2013

    Thank you Karen again for keeping us updated!!!

      The Food and Drug Administration should be concentrating more on the ADDICTS, as you know this ruins it for us who suffer. Personaly from my end, my pcp only writes one script at a time for two Narcotic medications I take, I dont have an issue with that. BUT individuals who cannot get out to get there scripts...

    RHMLucky777

    Read More

    Thank you Karen again for keeping us updated!!!

      The Food and Drug Administration should be concentrating more on the ADDICTS, as you know this ruins it for us who suffer. Personaly from my end, my pcp only writes one script at a time for two Narcotic medications I take, I dont have an issue with that. BUT individuals who cannot get out to get there scripts or are given a hard time by their doctor(s) and made to feel like they are "Drug Seekers" pisses me off (Pardon my language). Enough is enough, we are the ones who suffer literally, because of those who ABUSE! 

      Thank you Karen for all you do for us..

                  Linda (Boston, MA.)

  • Mariepi
    Feb. 01, 2013

    I will follow that with great interrest.