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Tuesday, November, 24, 2009
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It's Fibromyalgia & ME/CFS Awareness Day!

Karen Lee Richards
Karen Lee Richards
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Co-Founder of the National Fibromyalgia Assn.

Karen Lee Richards’ career as a writer and patient advocate grew...

Karen Lee Richards

Tuesday, May 12, 2009
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Looking Ahead

Fibromyalgia awareness and understanding continues to grow.  As new educational programs to train doctors how to diagnose and treat FM take root and additional treatment options are approved, I think the future for FM patients looks bright and hopeful. 

 

ME/CFS awareness is a two-sided coin.  On the one hand, thanks to the CFIDS Association's year-long national media campaign to raise awareness, most people are familiar with the name chronic fatigue syndrome; but on the flip side, because of the name, too many people still think ME/CFS patients are just tired.  Despite that gap in understanding, I think ME/CFS researchers are right on the edge of some major breakthroughs, including the identification of subgroups and the development of a reliable diagnostic tool.  Also, the drug Ampligen is scheduled to be reviewed by the FDA this month for the treatment of ME/CFS.  If approved, it will be the first official ME/CFS medication.  Hopefully that approval will do for ME/CFS what Lyrica did for fibromyalgia.  We still have some ME/CFS battles to fight, but I'm confident in the end, we'll win the war. 

 

 

Happy Awareness Day!

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This video explains where back pain stems from by taking you through the anatomy of the back. 

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