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pollution and ME/CFS
Redhen1919
Thursday, July 09, 2009 at 07:08 PMre: pollution and ME/CFS
Karen Lee Richards
Tuesday, July 14, 2009 at 05:06 PMI agree. Actually, I'll be surprised if pollution doesn't play some part in ME/CFS. And, yes, I suspect it will be an uphill battle, much like flouride. Sadly, the lack of funding for ME/CFS research is disgraceful. And most people who have it are too sick to lobby and bring the kind of pressure needed to get something done.
re: re: pollution and ME/CFS
aussiesam
Thursday, October 08, 2009 at 09:30 PMI agree with you about the uphill battle, that we have to fight. Yes, to get funding for this, is left too those who have cfs/fm and their partners. Why is there no celebrity or politian too complaine that they have the illness and can not work any more. Is this illness such a secret or a no no to have, so lets kept is quite and suffer for it. For untill then, money that to be raised for research, will never happen because it is not news worthy or making a fuss off. Wether you live in the US, England or Australia untill someone stands up other than ourselves or our partners who have a bit of clout nothing will be done. It will still remain the Silent Disease. Maybe then doctors, specialists and people who will sponsor funding for recarch might happen. Maybe then it will come out of the hell hole and be reconised as an illness not something in the head. Aussiesam
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author's wording
dismayed
Monday, September 14, 2009 at 02:25 PMI have me/cfs (and am fatigued right now so references may not be as exact as wished for). In reading your article I had a few concerns about your wording. 1st is the title - you say breakthrough, but I believe this research info came out in January this year - so the article is a bit slow. 2nd, and most importantly and upsettingly, your phrasing in indicating that while some biological markers have been discovered, many doctors believe me/cfs is psychological it seems to me you are quite strongly implying some validity to their perspective, ignoring the fact that nearly every national government (including the US) and various international health organizations have recognized me/cfs for years. I feel you should have included this info and said that, unfortunately, despite the international recognition of the illness, some ill-informed doctors who do not keep up-to-date (and perhaps because a cause and cure have not been found yet), act as if the illness is psychological - making a devastating illness even more so for patients.
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After some research, I discovered that the makeup of natural gas can be 90% Hydrogen sulfide, emissions from petroleum refineries, coke ovens and paper mills. It would be interesting to find out what role pollution might play in ME/CFS. Will there be the same uphill battle like the one regarding fluoride?