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Oprahs show
lakeboysgirl
Wednesday, September 30, 2009 at 05:36 AM -
Untitled Comment
Lene Andersen
Wednesday, September 30, 2009 at 10:28 AM -
Geeze
JoshuaY
Wednesday, September 30, 2009 at 12:56 PM -
addiction vs. dependence
mersilkee
Wednesday, September 30, 2009 at 04:10 PMI cringed when I read this post. I imagined my mother watching the show, calling my father to the T.V. set. More fuel to the fire that their daughter has an addiction to narcotics. My father told me recently that I'd better get off the Methadone or I would end up like Anna Nicole Smith. I have spent years trying to explain to them about my condition and prescription medication, but when they see this nonsense coming out of someone's mouth who happens to have an M.D. at the end of his or her name it is just more proof for their position.
Having a bad day getting worse.
M.
re: addiction vs. dependence
Sue
Thursday, October 01, 2009 at 10:31 PMI feel for you, I really do - having run through 38 doctors in 3 years, and being 'blown off' by most of them - they don't want to take the time to find out what is causing all of the pain.
I am finding out, unfortunately, that doctors will write prescriptions for pain, but are clueless as to the cause, and end up dubbing the sufferers as chronic complainers. Nothing could be further from the truth.
Go on Dr. Oz's website, and Oprah's, and beg them to reconsider this plight that so many people are suffering from.
I didn't see the episode, unfortunately, but if enough people start blasting both of them - with the power they have - maybe all of we little drops of water can make a tidal wave. It just takes one drop to start a rivelet, stream, river, etc., etc. Just keep blasting them.
If we were all able and could afford it, I just bet Oprah would not appreciate having 500 people camped on her doorstep, writhing in pain!!!!
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Oprah's Show
dreamer
Wednesday, September 30, 2009 at 05:49 PMOhhhh no. As I read through the article I could feel a grip on my heart and a knot in my stomach getting bigger. I've always believed in Oprah's shows as "word". I felt she of any other host, always researched everything to the fullesty beforing airing. I had a high opinion of Dr. Oz but now k of him as a moron or "stuck on his notoriaty". How can someone so right on many things be so wrong on this. He doesn't realize he/she just set us up and erased that which we all do to educate people of our plight and present us to look as pill popping addict's. I cannot believe his assessment. I felt so betrayed. And Oprah. What's wrong with you girl?? Did anyone watch his show on FM and if so, can you tell me briefly about it? Was it effective? I just wonder if people emailed Oprah's show advising them of their error and discrediting us.
Ooooooooooooo I want to scream. Thank God for all of you to help us deal with this kind of bull---- making the trail harder for us to navigate.
Tlhanks Karen. As usual......you are on top and "brought it home" to us. You are a wealth of information.
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Prescription pain medication
Sue
Wednesday, September 30, 2009 at 07:37 PMI am disappointed in Dr. Oz's interpretation of chronic pain, he must be one of the million(s)? of Doctors who don't understand it. Well, the people who have it wish more would understand.
My injuries started as work injuries, and my employer, nor the State of North Carolina understood what it was all about. My attorney didn't do anything but put a 'rubber stamp' on the phrase "fibromyalgia", etc.
I missed seeing this particular episode, however, I did go from doctor to doctor - 38 of them in 3 years! - and spent $8,000+ in 2007, and $10,000+ in 2008 - (how I paid all of it is beyond me) - and finally researched enough (including borrowing the "Merck Manual" that doctors use for diagnosing, from the library) and I realized that I had to go for Physical Therapy and then have chiropractic treatment. My muscles were so knotted up, that it only hurt when I moved. I also have degenerative disk disease - which was unknown when I had my job, but was discovered through an MRI in 8/08. I have the good fortune of knowing/having a dual certified physical therapist /chiropractor, and it took 2 months of treatment @ 2 times a week before I would adjust at all.
In my opinion, doctors want to 'put a band aid' (i.e., pills) on a problem - thereby masking the issue. I am 'fortunate' in that I am a former alcoholic, and did not want anything that was remotely addictive, so have never been prescribed the really heavy duty stuff, Thank God!
re: Prescription pain medication
MillieKeyLargo
Wednesday, September 30, 2009 at 10:02 PMI am very disappointed at Dr.Oz and at Oprah for not clarifying the issue of prescription drug abuse and the reality of many people around the World that suffer from chronic and/or intractable pain every single day!
For the poster that mention that most Doctor's use "bandages" (medications) as the only way to fix or treat their patient's issues, I want to let you know that there are some of us out there that a Chiropractor or PT will never, ever work for! IE: Myself
I had a 3 level/360 spinal fusion from L2 through L5 in 07 that failed miserably! I lost my job as a Social Worker due to this surgery. I had 3 more surgeries, in less than 2 years after the first fusion because other Physicians tried to help me, and they didn't work. My pain management Doctor gives me medications to be able to get out of bed in the morning, not as "a bandage", but because is the only thing that they can do for me right now! I take offense when someone speaks like you have........... I am glad that your issues were fixed by a Chiropractor and PT, but NOT all of us are as lucky as you, some of us live in constant pain 24/7 and need to take medications in order to live a semi "normal" life.
Going back to the Oprah show, I think that I am going to write her show, and I think that a lot of us should. We should allow her and Dr.Oz see our side of the story, America and the viewers of the Oprah Show, should be able to see the other side of the "drug wars", the side of us out here that suffer through chronic and/or intractable pain, day in and day out and need these medications to survive.
Is not as easy and as black and white as they put it........ We are people too and we deserve a chance.
Millie
re: re: Prescription pain medication
Sue
Thursday, October 01, 2009 at 09:58 AMMillieKeyLargo:
I am very sorry if I offended you, I didn't mean to. I certainly realize that not all people are helped by physical therapy or chiropractic treatment. I am obviously in the earlier stages of this disease, and that has been bad enough.
I have reported doctors and chiropractors to the American Medical Association. I had one Rheumatologist incorporate x-rays for my viewing that weren't even mine. And as you read my comment, you will notice that even my primary care physician accused me of 'researching too much' - NOT acceptable.
I have gone to local support group meetings, and it is disgusting that so many doctors don't acknowledge what a person is enduring. I have been treated like I was just 'a chronic complainer', which I am not.
I hope any and all people who read the posts, can find a doctor who will take proper care of them. The government needs to keep their thumbs out of some of this - as there ARE a lot of people who require heavy pain meds just to do the simplist things in their daily lives.
Please forgive me, as I am aware that physical therapy and chiropractic assistance does not help everyone. I have been told that some of the medication prescribed puts a person in a state where they cannot even stand to be touched.
Thankfully the CDC is looking into this more thoroughly, and 'God Willing', they will speed things up, so that people can be helped to the extent they require.
re: re: re: Prescription pain medication
lazidd78648
Thursday, October 01, 2009 at 10:05 PMthanks for you apolgy i was fixing to get on my soap box

i had a doctor so scared to give me any kind of drugs i almost killed myself i would crawl around the bed when it got so bad. my poor hubby took care of me and was my fighter . he took care of a few like this with the loudest roar ever heard..
we do need all of our family of fibro suffers are any chronic pain suffers.. we dont want the drug we won't our grandchildren to not have to say can i sit on your lap nana, well thanks for the listen . dd
re: Prescription pain medication
Sue
Thursday, October 01, 2009 at 10:23 PMI realize that some Americans are in such severe chronic pain, that they cannot live a normal life. And that is horrible.
I hope and PRAY that some doctor(s) somewhere will come up with something, and have enough BACKBONE to fight the government, et al, so that people can feel some real relief, and can return to at least some form of a normal life.
All of you people that are suffering, truly need relief, and it makes me angry that doctors just either don't do something, or are giving pills that don't resolve the problem.
I do know of someone who is addicted to Oxycotin (sp?), and has managed to make her son one due to back pain.
Maybe we should be aiming our guns at the drug companies - and all of their supposed research. They're all swimming in greenbacks, let them take some of this heat, and get something ACCOMPLISHED to help people like you and all the others in abject pain, who suffer constantly.
I emailed Dr. Oz, and Oprah - she seems to be able to move mountains when someone lights her fire - let's all send her our information, and maybe she can jump on the CDC to get something done.
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Oprah Showcases Pain Medication Addication
Joan
Thursday, October 01, 2009 at 12:17 AMDr. Richards,
I find myself fighting to find a physician because my last physician says I'm addicted to Vicodin. I voluntarily contacted a pain management facility that does not prescribe pain medication so that I could be evaluated for possible treatment. My former physician wanted me to take Savella, which is contraindicated with Cymbalta (which I have taken successfully for several years for major depression, recurrent). After discussion with my psychiatrist, I told my former physician that I refused to take Savella. He told me that that was a sure sign that I was addicted to Vicodin and proceeded to give me a menu to wean myself off Vicodin. I did try for one month to only take Vicodin when I could no longer stand the pain (3 per day). When I returned in one month and was not down to one Vicodin per day, my former physician became abusive, told me I was in the bad stage of emphysema (which he had never mentioned before and was not treating me for), and told me to stay away from the pill mill (the pain management center I was going to.
In the interim, I have learned that he has called my psychiatrist and told her that he has been trying to get me off Vicodin since Jan. 2009, when I was hospitalized and diagnosed with Type II Diabetes. When I went to pain management center on 09/30/2009, he had sent them a communication saying that I had gone to another doctor seeking pain medication. All of this is untrue, but it is making it very difficult for me to find another doctor.
Yes, I admit I am dependent on Vicodin. I suffer from fibromyalgia, arthritis of the spine, hips, pelvis, and knees, and I am in pain 24/7/365. My former physician told me that I was just going to have to learn to live the rest of my life with pain and what did I think they did 100 years ago.
I also suffer from post-traumatic stress disorder, and am just about at my wits end. This doctor has not only refused to treat me, but is now going about defaming me so that I cannot get proper medical treatment.
I agree wholeheartedly with you, Dr. Richards. I stopped watching Oprah several years ago because of some of the shows I found to be too over-emphasizing for my tastes. If this is the advice of Dr. Oz, I'm glad that I've chosen not to watch him also.
Thanks for listening and I welcome any suggestions.
re: Oprah Showcases Pain Medication Addication
mersilkee
Friday, October 02, 2009 at 04:14 AMHi,
I've read too many stories of people who have been harrassed by their physicians in the way you described. I had a similar thing happen to me early on in my search for a diagnosis, but it was before I was dependent on pain medication. A doctor had told me nothing was wrong with me and he sent letters to other doctors I went to see telling them that there was nothing wrong with me and I was a psych. case. Now, I am dying of degenerative brain disease.
I use to work in the medical field with doctors. What the guy did was malpractice. You can report him to the state medical board but truth is they won't do anything. You could sue him but where could you find a lawyer who would take that case?
The only way I see any of this changing is by a growing grassroots health consumer movement which I see is coming down the pike. The socialized medicine debate has sparked much contraversy and baby boomers are coming into the years when they will start utilizing medicine more than they ever have. I hope things like pain management will be able to ride on the backs of these movements. I'll be waving my banner via my computer.
When I first started seeing pain management doctors, it was hard finding one that gave me the relief I needed. I had a consult when I was in the hospital for pain with a pain management doctor. He was wonderful. He increased my pain meds while I was in the hospital and told me to make an appointment to see him at his clinic. I tried to that and was told that he and the other pain management physician I had met at the hospital wouldn't be seeing any new patients for six months so they gave me an appointment with an associate. I thought well, maybe that will be okay because he is in the same practice as that doctor. Sadly, I was wrong. That pain management doctor put me on Percocet. He told me it was stronger than Vicodan. I knew that wasn't true. I continued to have severe pain and my husband called this doctor. He told my husband that I would have to wait a few weeks until they could schedule an epidural and after that he would talk to me about adjusting my pain medicine.
I had already been going to an anesthesiologist who did epidural injections. He gave me the name of a psychiatrist who specialized in pain management. What I found out was it was a scam in which a few psychiatrists had discovered a way to get more money from insurance. So, I went to see this doctor who knew nothing about my condition. He seemed more like an undertaker than a therapist. I was required to see him for 15 minutes each month followed by an hour of counseling with his nurse practioner. My hubby went with me to these meetings. It was obvious she had a thing for my husband.
The doctor did put me on Fentanyl which brought me greater pain relief, but he didn't tell me how it worked or that it might start running out before 72 hours. I had a lot of problems with episodes of sweating, joint pain and fatigue which I later found out were withdrawal symptoms. Anyway, one day he told me that his nurse said that my husband and I needed additional couples therapy that wasn't covered by my insurance.
He told me if I didn't do the additional therapy, then he could no longer give me my pain meds. I told him that we couldn't pay for the extra therapy. He discharged me as a patient and gave me prescriptions for 3 months of Fentanyl patches.
I had been on the Internet alot and was in a pain management support group. I knew that pain management doctors frowned on patients who had been discharged from other practices. So, I received a name of a doctor who was a pain mangement specialist, I went to him and told him that I had to stop seeing my pain management doctor because he woudln't take our insurance which was basically true.
He said okay and told me to send records. I did send copies of bone scans and some reports done by a few other specialist. What I did not do was ever send him the records from that psychiatrist. He had a very busy practice so he never asked me about it again. I did have the box of patches to prove that I was taking them and that seemed to satisfy him.
I think that what you have to do at some point is find a way to disconnect yourself from the doctor who is causing you all the problems and do not give your new doctor anything that would lead him or her back to the problem guy.
We moved and I found a wonderful pain doctor in New York. I have to fly to see him now but he does phone conferences instead of monthly visits so I only have to see him every six months. He is very careful about prescribing etc and I do not think he does this for any of the rest of his patients. He has known me for years, he knows I am dying and that it is very difficult to make the trip.
I hope you find a good pain doctor.
re: re: Oprah Showcases Pain Medication Addication
Joan
Friday, October 09, 2009 at 08:38 PMI kept my appointment with pain mangement. Unfortunately, my former doctor pretended that he had referred me and sent them some information. At my last visit with the former doctor he told me that I was in the "bad" stage of emphysema, however, he had never treated me for that, and he told me that Vicodin only aggravated emphysema and that was another reason for me to stop taking it. In the report he sent to pain management he stated that my lungs were "clear." Now, how can that be if I'm in the bad stage of emphysema? Was this man trying so scare me to death?
Anyway, the pain management center only gives shots of steroids into the spine, neck, etc., and I was told there was little they could do for me, since my pain includes my total spine, neck, shoulders, arms, hips, legs. I had previously made an appointment with the county health department, who has several doctors available. I did keep that appointment also. They are referring me to a rheumatologist, who they say is better equipped to deal with someone suffering from fibromyalgia. They did agree to give me one month's supply of Vicodin, however, after doing a drug screen.
At least they are making referrals and trying to help me. Other physical issues, including diabetes Type II, insulin dependent, acid reflux caused by a hiatal hernia, and other serious illnesses that the former doctor refused to address are now being treated.
I will keep you all informed of my treatment with the rheumatologist. I also will remember each and every one of you in my prayers. Only those of us who are suffering from FB know what it is truly like and it seems hopeless trying to make other people understand what we are dealing with on a day to day basis.
Thank you all for your concern and God bless.
re: re: re: Oprah Showcases Pain Medication Addication
mersilkee
Saturday, October 10, 2009 at 06:47 PMI am sorry that you are having so much trouble with finding a good doctor. I will keep you in my prayers. I don't have fm but I can see that I obviously have an immune disorder because I started out with an IgG immunity disorder when I was four and I have had illnesses that have plagued me my entire life that I believe can all be traced to an autoimmune disorder but no one can figure out what it is, I call it the theory of everything that is wrong with me, the one root cause of all my suffering. I am dying now, so perhaps I'll never know.
I hope the rheumatologist will be able to give you meds that help your fm.
Take care.
M.
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Oh my, Oprah!
sherry
Thursday, October 01, 2009 at 12:18 AMI happened to come across this program also ( a few minutes into it already) and I couldn't believe what I was hearing. Dr. Oz & Oprah made it sound like if you were taking any medication for more than a couple of weeks you should be signing up at the local rehab. I was very disappointed that there was no distinction between a physical need for medication and addiction. I guess there is not enough drama with "just a physical need for medication" to have a whole hour program. I thought Oprah was a little more credible than that & shame on Dr. Oz!
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Oprah, Opiods, and Dr. Oz
mj or malia io
Thursday, October 01, 2009 at 01:48 PMThere's too much of this kind of misinformation being sent out over the air ways today. Dr. Oz has obviously never lived with chronic pain! Where do they find people who do these interviews and why don't they ever have people like us who live with chronic pain and still maintain as much of our lifestyles as possible. I've raised 17 foster children, 7 grand children, I got my AA in Human Service and I'm graduating with my BA in Adm. of Justice and Psychology and i take MS Contin 2x's a day and 15 mg oxycodone 4 times a day for breakthrough pain. I'm a photographer, i'm in aquatic therapy 3 times a week and i made the deans list twice. Before my doctor found the right medication for me I could hardly get out of bed, my social life was in the toilet, i just wanted to die because i couldn't take the pain any longer. So you know what i have to say to Dr. Oz? Talk to people who really know what pain is and what relief the medication gives us. I think they're afraid to find out the truth.
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addiction to pain medication (Oprah)
Anonymous
Thursday, October 01, 2009 at 02:31 PMI like Oprah but, she don't know what she is talking about. She is not a Doctor. Has she ever suffered a serious physical problem? With Pain? It does help for the medication. She needs to be taken off T.V. because she is getting way out of hand on other issues too. She thinks because she was molested everyone has been. She needs to see a therapist herself. Now with Obama in office she ain't going no where. She funded him & always said "she would never fund politics" She sure did this time???
re: addiction to pain medication (Oprah)
terri
Wednesday, October 07, 2009 at 03:21 PMI agree with everyone on pain, I missed this show, You would think a doctor would know better and not lump everyone into the same group!! I live on pain meds, to have a little more quility of life. I have been in wheelchair due to car accident at the age of sixteen, I am paraplegic complete t10 t12. I had alot of years that I was not in pain, had a baby when I was 23 and heis now 24yrs old. I'm grateful for the years I had without pain. Now it is a constant part of my life. I jump the pain mangenment ropes every month to keep my meds. I really wish I was not depending on them but I do! I'm a ,,,upbeat kinda of person but chronic pain changes every part of your life. Dr.'s are very willing to give you anti depree, and I'm not depressed I'm in pain, I just would like to be able to get outof th bed and do my daily things. I do all my housework and like I said raised a wonderful sn with the help from my husband. I have alot of operations the last in 2006 which I was praying would help while my posture is better The pain is worse, so what do you do? my Dr. told me that I would most likely have to be on meds the rest of my life and I think he is right . My spine surgery was really hard to recover from, wearing a brace for 6months and trying to keep my upper body srtong was a battle. I need to gain a few pounds but the pain effects everything. I was on the Fenetanal patches for a while they almost killed me I didn't care about anything because I was in such a fog. I am now on Hydrocone, highest dose that is possible and on gapapentin alpazolam, for the spasams, also help with sleep, I lok foward to sleep that is the only time I'm not in pain. So I guess if I was Oprah I could just buy what ever I needed but I'm just a regular person trying to have alittle slice of life.well enough of the soap box but sometimes it helps to just put in word even if no one reads it or not. I hope everyone can get a little peace and feel love for your fellow man!
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Untitled Comment
Anonymous
Thursday, October 01, 2009 at 03:15 PMI watched her show in horror!! Couldn't believe what I was hearing. Even worse, because of Oprah & Dr. Oz, our medical treatment, family treatment & public treatment will be much worse for those of us who suffer daily with chronic pain.
I too, agree with your acessment of the Oprah show and I am submitting letters to Oprah & Dr. Oz.
Everyone please, please submit your letters as well. Our voices must be heard!
Peace & blessings~
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Oprah show on pain pills.
Anonymous
Thursday, October 01, 2009 at 03:30 PMI also saw this show and laughed in pity for two people that are supposed to be so knowkedgable, especially the Doctor, that his feed back was so wrong and that he didn't seek to clarify whether this woman was taking 2 pills a day and that that only equaled 10mg. of vicodin. I then felt anger that this was being seen by thousands of viewers that were being given incorrect information. If this woman was stating that it was a "full time job" for her to get enough vicodin to support her habit then she was taking a lot more that 2 pills per day. This Doctor Oz doesn't know very much about chronic pain issues to indicate that no one show have the need to be on pain meds for more than two weeks. For many of us that deal with chronic pain, by the time we see a pain management Doctor, all other avenues have been exhausted. In my case I have an incureable condition and have been told by numerous Specialist that the only thing left is for them to try and make me as comfortable as possible. I will most likely be on pain meds for the rest of my life, which could be a year or most likely no more than 8 years. I know that there are some unscupulous Doctors out there that will give these drugs out with out getting a history from the patient indicating the real need for this type of treatment and that there are people that abuse the drugs. It really worries me that with shows like this and the abuse of certain celebrities of these drugs and the headlines that they bring. You can check any TV listing and find some news magazine type show doing segment about the abuse, but nothing is said about people that have a real need for this type of treatment. I have noticed already that even the pain management Doctors are overly cautous about prescribing the needed dosage to manage pain because of all the misinformation in the media.
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Oprah Show and Dr. Oz
Mattsmon
Thursday, October 01, 2009 at 04:19 PMTHANK YOU!! I, too, immediately sent an email to the Oprah show with regard to Dr. Oz's comments on ADDICTION and how he made NO distinction between ADDICTION vs. DEPENDENCE. Isn't he a heart surgeon? I would guess heart patients take daily medication to help with their disease......as surely diabetics take their insulin. Would he tell them they are ADDICTED to insulin????? Dr. Oz fell right off the pedestal I put him on......HEAD FIRST. Thank you so much for your right on remarks!!
Matt'smom
re: Oprah Show and Dr. Oz
a nurse with chronic pain
Thursday, October 01, 2009 at 04:39 PMi too, was hugely shocked to hear Oprah and Dr Oz speak this was about paind and medications. i sent her an email today. usually she reacts to many emails so perhaps she will do an update on this topic to put the record straight. i used to love everything she said but someone didn't do their homework prior to this presentation and she can't put the blame on a publisher who hadnt' investigated an author.
Dr Oz needs to stay with what he is familiar with in medicine. apparently their aren't any specialists in this field where he performs cardiac surgery.
re: re: Oprah Show and Dr. Oz
Mattsmon
Thursday, October 01, 2009 at 06:35 PMAMEN!! I don't know how you do it, being a nurse with chronic pain. I'm also sure you have seen your share of, how shall I say, Doctors who have a "God" complex, when it's actually you nurses who make sure we patients are OK. I had emergency neurosurgery last summer (my 5th) and when I came to I was in horrible NEW surgical pain and I was crying. The neuro was at my feet and there was a nurse at my head and she asked if I was crying from pain or having to urinate, I said "PAIN".
The neuro thought I was not quite awake yet and I heard him say "Oh, there's NOTHING you can give HER....she has a morphine pump!" You would think he would know that my morphine pump only pumps a MINUTE amount into ONE PLACE and does NOT make me pain free all over. The nurse whispered in my ear that she would not take me into recovery until she got me feeling much better.......her word was as good as she. Nurses are God's angels here on earth. I sure hope you get to feeling better and I'm so glad you also sent an email to Oprah. I urge every one of us on this site to do the same. And here I was, hanging on Dr. Oz's every word when he would be on.........he fell flat on his face this time. Perhaps they will pay attention when they hear from us!
God Bless You!
Matt'smom
re: re: Oprah Show and Dr. Oz
spody
Thursday, October 01, 2009 at 07:05 PMOprah and Dr. Oz BOTH should suffer with fibromyalgia, degenerative disc disease, rhuematoid arthritis, depression, rectocele hernia, etc. Need I go on? It's not like I haven't tried other methods. Spinal surgery, rhizotomy surgery, anti-depressants, vioxx, celebrex..... Luckily, I have a Dr. that understands. I take Lortab 10mg, 5xday. It is the only relief I get. I would try the NEW fibro medication IF I had insurance. I can not afford Lyrica w/out it. I am going to write both Oprah and Dr. Oz NOW! I encourage ALL chronic pain sufferers to do the same. It is going to get to where we will all have to suffer daily if this sort of propaganda does not stop! I can choose my medication or I can choose death. Can't live in the constant pain I have w/out my meds. (taken as prescribed) The meds don't get rid of the pain....just make it bearable. Just ridiculous!
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Untitled Comment
spencecats
Thursday, October 01, 2009 at 08:44 PMThank You..Thank you Karen for writting shuch a get story & to all who wrote their comments.
The last 40yrs. or more I'v been in Pain 24/7, yes I take meds & have 'Heard' from many many people how I'm just an 'Addict'. Some came from Chiroproprators, Pharmacists, even Dr's, a few Dr's have said to me 'What are you going to do take 'Vicidion' the rest of your life?'. This was after the Dr. had read all my reports, MRI'S or x-rays, then just get done telling me all the things wrong with my back, whats wrong with them? At one time my G.P. was taking care of my pain so he 'could' only give me so many pills a week, well I started running out before I could have them refilled, even when I knew I took just what he said to take. I counted them out each day, still I ran out, then I started counting them out in my car, yep I was shorted a few pills. I then started counting them in front of the Pharmacists, they saw I was shorted, then one of the Pharmacists told me he too had Back problems & went to a Chiropracter. That told me alot, he probly took a few from ever customer, after 6-7 mons. he wasn't there anymore. Alot of people get 'help' from Chiropracters, my Grandparents were Chiropracters. When I was 12 I woke one morning & couldn't move my legs, some how I got out of bed called my Mom at work crying & scared to death. She came right home, something she has NEVER done, she was a divorced Mom working 2 & 3jobs at times, with no Health Ins. she took me to a Chiropractor. but could only afford a few treatments, many times my Back would mess up & all I could do is crawl around pushing a heavy stepstool, to get up on the counters to do dishes, get clothes in the washer, even doing my Sisters chores, since if her's wern't done I was the one who got yelled at. She never carred, she was Mom's 'Baby', I looked my Abusive X-Dad. In fact a few yrs. ago she said to me 'I guess I just don't know how to clean house', of course not you never had to do a thing.
My Sister has been the worse to me about the meds I take, she too has back problems, from going over a hill on a ATV. But she 'Dealt' with it by drinking wine day & night, many times coming over to pick up my 'Nefew' & she could hardly walk. He saw that at 2yrs. old & didn't want her to drive him home. Were only 20 mins. apart so I would drive him home & put him to bed, making her 'belive' he just didn't want to leave me..well it worked. Her Husband & her were having dinner with the Chiroprater we all went to for yrs. there was something said about her drinking wine. Her Husband said 'Well at least she isn't 'Addicted' to pills' & the Chirorpractor agreed, guess being a drunk was better? Even in this Chiropractors eyes, she likes to tell all our realatives about me taking pills, even telling them I take a hunderd a day, to taking street drugs, guess that makes them look at me not her..right. Guess who spent 8 day in the hospitial? HER..& WHY? HER LIVER WAS SHUTTING DOWN! Now she's telling them it from medication the Dr. gave day.
I loved all your comments, my Computer is acting up & I didn't get to the 2nd. page, I'll try later, anyone have a problem with me printing out all you comments? I'v coped articles & if a Dr. or Pharmist was giving crap about my meds, remember I'v been fighting Pain most of my life. I would hand them a copy of a few articles, they seemed alot nicer the next time I came in. I too was yelling at the T.V. most of what was said was FALSE, I know I'll never go to Dr. Oz, or maybe I should, I wonder if he can fix my pain in 2 wks.? Every time a story like this is aired, were the ones who 'pay', I see my Pain Dr. next wk. lets see if anything changes. Anyone want to take their records, stories especially how 'Chronic Pain' has affected us, our family & friends if we have any left & go on Oprahs show. I'll make sure to post on her site & read all the comments there, probley when I wake-up at 1-2a.m. I'm sure many of you are the same, sleeping olny a few hrs. at a time, always waking up no matter what time it is in 'Screaming Pain'. Thanks to everyone again, sorry we have to 'Live' in pain, but happy were finally being heard.
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Untitled Comment
spencecats
Thursday, October 01, 2009 at 08:44 PMThank You..Thank you Karen for writting shuch a get story & to all who wrote their comments.
The last 40yrs. or more I'v been in Pain 24/7, yes I take meds & have 'Heard' from many many people how I'm just an 'Addict'. Some came from Chiroproprators, Pharmacists, even Dr's, a few Dr's have said to me 'What are you going to do take 'Vicidion' the rest of your life?'. This was after the Dr. had read all my reports, MRI'S or x-rays, then just get done telling me all the things wrong with my back, whats wrong with them? At one time my G.P. was taking care of my pain so he 'could' only give me so many pills a week, well I started running out before I could have them refilled, even when I knew I took just what he said to take. I counted them out each day, still I ran out, then I started counting them out in my car, yep I was shorted a few pills. I then started counting them in front of the Pharmacists, they saw I was shorted, then one of the Pharmacists told me he too had Back problems & went to a Chiropracter. That told me alot, he probly took a few from ever customer, after 6-7 mons. he wasn't there anymore. Alot of people get 'help' from Chiropracters, my Grandparents were Chiropracters. When I was 12 I woke one morning & couldn't move my legs, some how I got out of bed called my Mom at work crying & scared to death. She came right home, something she has NEVER done, she was a divorced Mom working 2 & 3jobs at times, with no Health Ins. she took me to a Chiropractor. but could only afford a few treatments, many times my Back would mess up & all I could do is crawl around pushing a heavy stepstool, to get up on the counters to do dishes, get clothes in the washer, even doing my Sisters chores, since if her's wern't done I was the one who got yelled at. She never carred, she was Mom's 'Baby', I looked my Abusive X-Dad. In fact a few yrs. ago she said to me 'I guess I just don't know how to clean house', of course not you never had to do a thing.
My Sister has been the worse to me about the meds I take, she too has back problems, from going over a hill on a ATV. But she 'Dealt' with it by drinking wine day & night, many times coming over to pick up my 'Nefew' & she could hardly walk. He saw that at 2yrs. old & didn't want her to drive him home. Were only 20 mins. apart so I would drive him home & put him to bed, making her 'belive' he just didn't want to leave me..well it worked. Her Husband & her were having dinner with the Chiroprater we all went to for yrs. there was something said about her drinking wine. Her Husband said 'Well at least she isn't 'Addicted' to pills' & the Chirorpractor agreed, guess being a drunk was better? Even in this Chiropractors eyes, she likes to tell all our realatives about me taking pills, even telling them I take a hunderd a day, to taking street drugs, guess that makes them look at me not her..right. Guess who spent 8 day in the hospitial? HER..& WHY? HER LIVER WAS SHUTTING DOWN! Now she's telling them it from medication the Dr. gave day.
I loved all your comments, my Computer is acting up & I didn't get to the 2nd. page, I'll try later, anyone have a problem with me printing out all you comments? I'v coped articles & if a Dr. or Pharmist was giving crap about my meds, remember I'v been fighting Pain most of my life. I would hand them a copy of a few articles, they seemed alot nicer the next time I came in. I too was yelling at the T.V. most of what was said was FALSE, I know I'll never go to Dr. Oz, or maybe I should, I wonder if he can fix my pain in 2 wks.? Every time a story like this is aired, were the ones who 'pay', I see my Pain Dr. next wk. lets see if anything changes. Anyone want to take their records, stories especially how 'Chronic Pain' has affected us, our family & friends if we have any left & go on Oprahs show. I'll make sure to post on her site & read all the comments there, probley when I wake-up at 1-2a.m. I'm sure many of you are the same, sleeping olny a few hrs. at a time, always waking up no matter what time it is in 'Screaming Pain'. Thanks to everyone again, sorry we have to 'Live' in pain, but happy were finally being heard.
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Untitled Comment
Anonymous
Thursday, October 01, 2009 at 10:04 PMThank you! Thank you! After watching that I felt like a junkie! Not only that but wondered just how I was going to start "sucking it up and dealing with my chronic
back pain and sciatica. Lord knows I would LOVE to be able to stop the meds. But the shear agony of daily pain is unfathomable. Just shoot me should that ever be.
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Here we go again !!
Mariepi
Thursday, October 01, 2009 at 11:16 PMI saw the end of that part and could not believe Oprah exclamtions. She does not know what she talking about and I am so desapointed at dr. Oz. I started to watch his new show and gave up because he seems to take everything lightely. 5 minutes or less to fix your problems for life!!.
It was the same with the O's thyroid supposed problem, Is she hypo or hyper ? Few days of rest and soya cured her??? Well it doesn't work like that.
Will send an email to oprah too. I am getting tired of these modern snail oil vendors. Happiness,health richness all for you if only you buy their books, if you don't . well, you end up sick, in pain, poor, and unhappy because you don't want to be well Again Karen you brought it to our attention. I thought I was the only one thinking that that program was !!!!@#$%^&*@#$%&*.
Thank you so much for the wonderful work you do and YOU know what you are talking about.
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Dr. Oz and Oprah
FibroMom
Friday, October 02, 2009 at 01:06 AMThey both did a real disservice to people who are taking their meds AS PRESCRIBED. Not to get high but to be able to live a normal life. If they had only given both sides of pain medications. Unfortunately, there are many doctors like Dr. Oz who parrot the media warnings without considering the damage done. I know in many, many cases of people who wouldn't be able to have any quality of life without pain management through opioids. I am one. I am closely monitored by my doctor and I don't take anything other than what is prescribed to me by that one doctor. I have been on the exact same dosage of Oxyicontin for over two years. No increase .. EVER. If I am having a really bad day I used Vicodin for the breakthrough pain. I get a certain number of each medication each month. I use no more that I should.. I don't get high from them, I get relief .. which I a kind of a high when you live your life in chronic pain but I don't get an opiate high. Oprah could do SO MUCH good .. but instead she and Dr. Oz take the party line and talk about the "abuse" angle .. and why? Because it makes more interesting and controversial television. If they really were interested in doing good they would have given BOTH sides of the issue. But who wants to see somebody that is able to function and have a life while taking opioids? Able to work part time after years of being house bound. Able to participate in normal family life? Instead they show the people who lose their homes, jobs and families.. they sell the public on the premise that ALL pain medications are BAD! This is just so untrue. I plan on writing to both Dr. Oz and Oprah. I am sure that neither of them will ever actually read my email or if they do I doubt that it will make any impact. No show will ever be done to show the good that comes from appropriate, careful and responsible pain management through opioids. It's just not P.C. and it won't get RATINGS. But if we ALL write. If we ALL give chronic pain sufferers a voice and face maybe somewhere down the road we will make an impact. Maybe we can persuade Oprah or Dr. Oz or Dr. Phil or Dr. Drew or somebody to show the other side so that those people who have NOT found the appropriate doctor or the right medications that there IS HOPE. That there is a reason to keep trying. I apologize for such a long post. This is something that really sets me off and venting my feelings here amongst people who understand and can relate is very cathartic. Thanks for listening. And Karen.. Keep on writing... you are doing more good than you could ever know.
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Pain medication
dockside
Friday, October 02, 2009 at 08:29 AMThank you Karen for writing this post!
I was quite disturbed by the show. Enough that I decided to write to Oprah last night. I have been a member of her web site for more than a year but never written before. I hope I sent my letter to the right place. It is very hard to find out what blog or message board would get to Oprah or her producers. If you know Oprah's email address or where I should have sent my letter Please let me know.
This is what I wrote.
Regarding your show on Tuesday, September 29th 2009
Dear Oprah,
I joined your network quite a long time ago and have enjoyed many of the emails your site sends to me, almost daily. It has made a positive difference in my life. When I joined, I had planned to write to you about perhaps having a show about chronic pain patients or the invisible illnesses but I lost my nerve to write the letter.
I have struggled with severe back and nerve pain since June 4, 2006 when I hurt my back with heavy duty gardening. I still have not had surgery for numerous reasons. I have deteriorated as the years went by. At first, (2 years) I was bed ridden except for medical appointments. With the treatment twice a week for more than 3 years by an excellent osteopath, I can do some normal activities in my house or short shopping trips in the morning only because by lunchtime the weight of being upright on my spine brings on terrible pain and muscle spasms and shooting nerve pain........ And this is with medications for pain.
However, my letter is not concerning my medical story or the story of other people who I have met with similar debilitating pain and our struggles to get better. This letter is about your Show on Tuesday with Dr. Oz and your guests who are abusing pain medication.
At first I enjoyed your show and agreed with your point to expose the abuse. But as the show continued you didn't present the other side........How the abuse of some people is beginning to affect the care of people with debilitating pain who are trying to survive day to day or sometimes moment to moment. Doctors are afraid to give medication to patients who need it. Pain clinics have been shut down leaving needy REAL patients left to go to emergency rooms because the pain is beyond endurance.
I was shocked to hear Dr. Oz say:
- Paraphrasing - If your plan with your doctor does not include recovering within 2 weeks using pain pills, then get a new doctor.
- We the patients are always looking for new treatments / doctors yet we fear going to new doctors who may prescribe more or other medications. We fear this for several reasons;
- The most obvious is being accused of Doctor hopping for more pills.
- Another is that these specialists tend to dole out medication without really considering other medications the patient may be taking.
- Most of us chronic pain patients depend on our primary care doctors to regulate our medication and we stick to the prescribed dosage to the letter.
- "If someone that you love cannot go a day without pills, or gets annoyed when you raise the issue, or feels guilty about the whole issue of pills in their life, they're probably addicted. Get them help."
- I would give anything not to have nerve pain. My body is definitely dependent but am I addicted? If the pain was permenently gone tomorrow, I would be asking my doctor to make a plan for me to diminish my dosage until zero........even if it takes 6 months. I don't get high. I don't drink alcohol or any other non prescribed drugs.
- We the patients who struggle everyday to survive also struggle to have our families and friends understand our plight.
- The use of necessary medication was not said by Dr. Oz or your show. This show degrades us the patients. It now makes it harder for our friends and families to understand why we need any medication.
- I was so disappointed in the one sidedness of Dr. Oz and your show. If Dr. Oz can get me to the right surgery in 2 weeks, please call me.
I am Canadian. Dr. Pradhan, from UCLA in California was prepared to operate but the hospital red tape cancelled the surgery because I asked for a detailed cost statement when I left the hospital, for income tax purposes. I am now trying to get to Switzerland to a specialist. I will have to use my life's retirement savings. There are some surgeons in Canada but I will have to wait more than 2 years, I have been told. What do I do in the mean time? This is not just a back ache. This is no life at all.
I was an active 53 year old when the nerve and back pain started and am now 57. I have endured 3 ½ years that I can't visit my grandchildren or even go out for lunch. My friends have gone on with their lives. My marriage fell apart. I am alone and in pain. I have done EVERYTHING, every treatment asked of me by any of my doctors. As I said, I see and Osteopath 2 times a week for physical therapy and treatment. I see a psychologist to help me deal with living with chronic pain. We do our sessions mostly by SKYPE because the half hour drive each way and then sitting for the session is too much for me. I see a top doctor at a pain clinic. I have cortisone shots regularly (which help somewhat) but are not good for me long term.
I often think that if no one had given me any pain medicine to begin with, I might have been seen and treated sooner because I would be crying in agonizing pain. This still happens but I can take a pill that will take the edge off (never takes it away completely). What would you have me or others like me do?
There are many other types of debilitating illnesses and there are many pain specialists that you could have presented or mentioned along with the abuse aspect of pain medication.
At this point, I feel we treat our pets with more understanding and better medical treatment. Would we ever let our dog or cat be left in extreme pain without medication?
Oprah, I hope you will consider doing a show with all the aspects. We pain patients suffer enough without adding loss of self respect because we take medication.
I am a huge fan and trust you will do the right thing to correct this one-sided view of pain medication. It was developed because people do sometimes need it, even long term.
Sincerely,
Deb
- Paraphrasing - If your plan with your doctor does not include recovering within 2 weeks using pain pills, then get a new doctor.
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Oprah Windbag's Credibility
Anonymous
Friday, October 02, 2009 at 08:58 AMI choose not to watch her show most of the time because she is an arrogant wench who thinks that she knows it all! She doesn't know her arse from a hole in the ground and I think that a lot more research needs to be done before she airs any more shows that deal with addiction and pain issues. I watched a few minutes of it at a friends house and I was not impressed at all with what I saw. There are a lot of people who think that Dr. Oz is GOD and that is not the case at all....same with Oprah.
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Oprah show
pie
Friday, October 02, 2009 at 12:52 PMDear Karen, this show made me so mad ! Shame on Oprah And Dr. Oz for sensationalizing such a serious subject! And then to do it w/ so much misinformation, that was the worst part. It's too bad that everyone who suffers from Fibro and other daily painful conditions could'nt just Storm HARPO studios with the TRUTH !!!! Thank you for letting me vent Sioux.
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Communication with "O" ??
Mariepi
Friday, October 02, 2009 at 02:11 PMI wanted to send an email to "O". For that I had to become a member, okay will do what it takes to get my point through...At the end of the registration process I was thanked by Oprah's picture and directed to her Shop the Oprah Store !!!! What ? She wants my money too ! It confirmed me in my thinking tat she's not only for our education but to continue her business of making $$$$$
As I was there might as well look at Dr. Oz Real Age site and guess what ? There is a Real Aage market place. Went to Dr.Phil,and found a Dr.Phil's store. Looked at Oprah's diet guru Bob Green guess what ??
I do doubt that these people want to be philanthropic with their viewers . I think I am not mistaking saying that they are making much money with their products.
I agree that sometimes one can advertise a book when it is for our own good like Teri Roberts with her books on migraines (with so much good informations ) or Mary Shomon,to name just few here.
They are real advocates and teachers. I am tired of feeling like I am not doing what it takes to get better, they are as bad as some of my so"friends" who tried to quilt me, because I don't look sick I should do this and that or rub myself with snake oil !!!
From this day forward I am banning these programs from my life, I was still watching Oprah at times and I started with dr Oz but few days ago I gave up too. Dr. Phil is gone for ever from my TV for few years.
I am having an indigestion of medical drive through or quick fix TV. Will go out for a walk instead, it is what they all tell us to do well........I'll do and take an ASA and a glass of water to cure my pains.
Marie
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e-mail addresses
pie
Friday, October 02, 2009 at 04:01 PM -
OPRAH'S SHOW ON ADDICTION TO PAIN MEDICATION
bassguitar
Saturday, October 03, 2009 at 10:05 AMI AM SO GLAD KAREN YOU POSTED A COMMENT ON THIS. I TOO WATCHED THE EPISODE LATER ON. DR. OZ SHOULD HAVE CORRECTED OPRAH WHEN MAKING COMMENTS ON THE DOSSAGES OF WHAT THE MOTHER AND SON WERE TAKING BECAUSE I SAID THE SAME THING, IT WAS EITHER 5 MG'S OF VICODIN, OR 10. THE OTHER PART WAS THE ACETAMINOPHEN. THIS WAS MISLEADING.
I ALSO WAS UPSET ABOUT WHAT DR. OZ SAID TOO, IF YOU CAN'T GO A DAY WITH OUT PAIN MEDS. HE CAN MAKE A COMMENT LIKE THAT, BUT MAKE IT CLEAR, THERE ARE SOME PEOOLE WHO TAKE PAIN MEDS FOR THE HIGH AND HAVE NO PAIN. THEN THERE ARE PEOPLE LIKE ME WHO LIVE IN CHRONIC PAIN AND HAVE TO BE ON SOMETHING TO BE ABLE TO FUNCTION WITH LITTLE PAIN AS I DO. I HAVE 9 BULGING DISCS IN BACK, 2 DISCS IN LOWER BACK THAT ARE BONE ON BONE, BONE SPURS AND SWELLING IN LEFT HOULDER AND OTSEOARTHITIS IN SPINE, AND FIBROMYALGIA. I HAVE A LIFE TO LIVE AND TAKE PERCOCET EVRYDAY WHICH ONLY TAKES THE EDGE OFF.
I CHOOSE NOT TO GO ON ANYTHING STRONGER, JUST TO MANAGE MY PAIN WITH VERY LITTLE PERCOCET EVERYDAY. WHICH RECENTLY MY PAIN MANAGEMENT DOCTOR WHO I HAVE BEEN SEEING FOR 2 1/2 YRS NOW, HAS BEEN HINTING TO ME THAT SHE WANTS ME OFF THE PERCOCET ALL TOGETHER. YOU COULD IMAGINE WHAT I TOLD HER AS MY PAIN ISNT SOMETHING THAT CAN BE FIXED BY SURGERY BECAYSE MOST OF THE DISCS ARE IN THORASIC SPINE, AND ALL GENENTIC. I DID NOT BRING ON INJURY TO ME BACK IT WAS INHERITIED.
I HAVE THIS BATTLE TO FIGHT WITH MY DOCTOR NOW, WISH ME LUCK CAUSE I DON'T KNOW WHAT TO DO. ANYWAY, THANKS FOR LISTENING AND I AM SO GLAD YOU MADE A COMMENT ON OPRAHS SHOW. I AM DEFINATELY GOING TO HER WEBSITE AND GOING TO CORRECT HER ON HER MISTAKES ABOUT MEDICATION, DR. OZ TOO. THEY BOTH SOULD SAY SOMETHING ON TV ABOUT IT AT A LATER TIME. AND ALSO CORRECT THE DIFFERENCE BETWEEN CHRONIC PAIN AND PEOPLE WHO ABUSE. BECAUSE OF HER SHOW KAREN, I REALLY TOOK A LOOK AT MYSELF AND THOUGHT AM I ADDICTED AS I TAKE 2 PERCOCET IN MORNING AND IN EVENING. SO FOR THE LAST 2 DAYS I DIDN'T TAKE ANYTHING. YOU COULD IMAGINE HOW I FELT BY THE THIRD DAY. THANK YOU FOR CLEARING THINGS UP, I LOVE READING YOUR COLUMNS, TAKE CARE TAMMY MICHAEL ^j^
reply to bassquitar
Mariepi
Saturday, October 03, 2009 at 12:26 PMHello.
My doc. took me off all acetaminophen containing drugs. I was on Tylenol # 3, tried percocets. I had some respite from the pain but not much. the reason he took me off was that he was afraid to kidneys and liver dammages, the ANSAID's ate my stomach, I had bleeding from there. Hhe put me on morphine and I did a lot better. he told me that morphine being the oldest pain reliever( go back the egyptians) and the safest if taken according directions, once I managed the side effects which for me was constipation I was fine. I am on the same dosage + some breakthrough meds. for over 5 years. Maybe it was what your doc. wants for you, take care of your kidneys and liver,
Take care
Marie
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Untitled Comment
Scooter
Saturday, October 03, 2009 at 03:10 PM -
Oprah The Idiot
Sidvicious
Sunday, October 04, 2009 at 01:27 AMI think a big problem is that so many of us chronic pain people don't get mad enough. We get told by some jerk doctor that we're addicts and we just walk away and don't really stand up for ourselves. We're so tired from the pain and we just want it to go away. I think it's time to get real angry and do something about this situation. Unfortunately, if we scream too loud, it only looks to others like we really are addicts. If you're caught in this situation, you feel stuck between a rock and a hard place and believe me, it's very uncomfortable. You're family and friends don't believe you, can't find a doctor who will believe you and it becomes a very solitary life. Then, to make matters worse, dumba_ _ Oprah pulls this crap. Have you ever noticed that whatever trend or gimmick that comes along, Oprah attaches herself to it and everyone else, like idiots, follow along. I just don't get that.
I wish for every person who reads this and gets really angry and wants to do something about it would get up and do it. Doesn't matter if you're in pain or not, all voices need to be heard. If we do nothing, do you think this will go away? It's going to get worse and worse until we're fighting to find help. It's imperative each and every one of us writes to Oprah and Dr Oz. Don't stop there, write other news organizations, political figures, etc. We have to do this if we want a future.
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Dear Karen, could you please publish the addresses of the oprah show and also Dr.(?) Oz's website where they be sure to get our comments on last weeks show on Addiction?? I have plenty to say to both of them but am not sure where to send it. Thank you very much, Sioux.







I fully agree with your acessment of the opray show. We have a hard enough time dealing with the fact that in order to have any quality of life we must take narcotics for non stop pain. People.....family and friends rarely understand the difference between dependant and addiction. Just another step towards making it harder for ourselves to accept that we have no choice really.........severe pain daily or medication.I for one had spent many years avoiding medication. Id rather have a life with my family than one spent in tears and unbearable pain