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After living with this illness for 23 years, and dealing with the same problems as others who have to fight off the disbelievers, it is nice to see a study that is already looking like there is enough interest to have it reviewed and retested very soon, for the Major Medical communitty. With tears in my eyes, I hope this is the case for those who have suffered with ME/CFS/FM for years. Diana
I have been hoping to see that FMS was included in this. The pain and symptoms of FMS are just as real and miserable as ME/CFS. I have been treated like a hypochondriac by several doctors. Even as I sit here typing my hips, legs. hands. back, neck are aching ( even after taking Lyrica ). It would be nice for science to validate FMS as well. IF that is what I really have. My doctor said lupus, then after one test said....its fibromyalgia. All I know is that it effects my whole day and night. I am hoping these findings will help us as well.
My wife & I have both had the symptoms of CFS since 1990. It is much more serious in my wife's case and she is in bed with it at the time of this entry. For us, it seems to become prevalent when the weather gets colder. We both experienced good health all summer until this past weekend when it flared up in my wife again.
We were married in 1990 in the Reno/Tahoe area where we were also residing at that time, so were in the area where Epstein-Barr is said to have originated. I don't know if there is a correlation to that or not. We now reside in Oregon and I am wondering if there is a particular blood test I should have so my doctor can treat the symptoms when they re-occur? I would like to obtain more information from Whitmore Peterson Institute if possible. I feel there might be a clue as to how It got into my blood stream in 89 or 90 as I had been a Reno resident from 1966-2000.
I also am aware that I carry the defective gene for Cystic Fibrosis. Any connection there?
How can I best contact you to get any information privately? Thanks A.
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I am excited despite the truth that there are "many false dawns". Every time scientific researchers uncover information like this, it validates CFS as a legitmate disease and moves us away from those medical practitioners who have labeled CFS sufferers as hypochondriacs.
Information is power and hope is often what gets us out of bed in the morning!
"information like this"
still requires confirmation by other laboratories before it can be considered to validate CFS as a disease rather than a collection of symptoms.
I suffer from CFS and would be delighted if a cause was found, but with my scientific training I remain sceptical until there is independent verification of this finding.
Duly noted. You make an important and valid point.
Thanks!
Martha