rsd since 1992

By crazy in1992 Wednesday, June 13, 2012

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Rsd in 1992. told I was crazy. believed them! could not tolerate anti-inflamatories,or any pain meds. over 18months 13 spinal blocks. first few numb from waist down. last no effect .Smoked pot. no pain relief but was able to get my mind on other things. Life ruined! few people could accept my constant complaints. lost wife,home and friends. Over the years pain lessened. Security job in 1998. been doing that ever since. Fear was my enemy.Being affraid of recurrence was all consuming. First and last thing on my mind. Now I am almost 65 and retirement and the fear of uselessness will go. I think no drugs helped me. God have mercy on those current and future sufferers.

Congress Drops Efforts to Add Tighter Controls on Painkillers

Comments (4) | Add comment

RSD Deb

6/21/12 6:28am

HI! so sorry to hear what you've been though! i've had RSD since 1990,when i was 30.Life has not been fun.The past 22 years have been a blur of pain,doc appointments & treatments. I try not to dwell on what "could've been". The meds just "take the edge off". A lot of people didn't believe how bad my pain is until they started getting aches & pains! But-according to the McGill Scale,RSD is the most painful condition there is.

All we can do is hope & learn to adapt.

Take care!

Debbie

crazy in '92

6/21/12 3:47pm

thanks Deb. It helps to know were not alone.

RSD Deb

6/22/12 7:17am

Y.W.! i'm on a couple RSD online support groups & it's been a blessing!

take care!

Reruho

6/21/12 10:47pm

I am a relative newbie, only having my RSD for 4+ years. I had the hardest time getting the ortho to listen to me. I do not have a lot of outward signs, like swelling or discoloration. He would just say HMMMMMMMMMM and scribe some notes down. I later found out he was writing RSD like symptoms in my records but he never shared it with me. I had to ask him directly, he said yes and shipped me off to Pain Management. The door never had time to hit my backside.

I have found that keeping a positive attitude and active has been extremely helpful. The knowledge that this may get worse still lingers in the back of my mind, but I don't let that cloud my day.

Reta

rsd since 1992

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