Complex Regional Pain Syndrome, Fibromayalgia, MS, CFS, Lupus, Huntington's Disease
I am a wife, mother and a caregiver who has a personal interest in people living with Chronic Pain. I have worked with adults with varying degrees of disabilities in the community and as well as in supportive housing projects. Familiar with CP, strokes, aquired brain injuries and Autism. I have also worked in Long Term Care with seniors in Palliative Care and as well in the Dementia Ward. I have recently started a support group in K-W for those dealing with the affects of living with Chronic Pain and their families. I myself am living with Neurological Chronic Pain Syndrome with symptoms of MS, and am trying to gleam as much information as I can about this disease and its affect on those dealing with the day to day challenges. I also have felt the feelings of depression, loneliness, anxiety and fear of losing ones independence and would like to help those like myself if I can. I have decided that this new path in my life will not stop me from doing what I love to do. It will not take away from me my will, my faith, my strength, my family..but it will allow me to perservere and give back to my community. I am working to help build an awareness that there is a lot of diversity in our lives and we must face this uncertainty with a positive outlook and to never lose our sense of ones self, of who we are. I am a wife, and a mother of three who loves the outdoors, camping, fishing and spending time with family and friends. I have 2 beautiful grandchildren that are helping me see the world in a different light. I want them to see me as the person who I am, not someone who is constantly struggling to get through another painful day, who is grumpy and mad at the world. But as the smiling, "energetic", fun-loving person I have always been. We must live life, and embrace our pain, and know that we are alive.