Mom had a disability appointment on Tuesday to see if I could get any benifiets. I need to take a break from work. The doctor told us that most folks have to apply at least twice before passing. I guess that they do that to see how bad you need/want help. Anyway, just an update. Please keep me in your prayers and I will do the same for ya'll.
Wishes of Good Health to You,
Morgan
Hello Morgan
so nice to hear what's going on in your world honey.
How did your apt with the juvinile pain specialist go?? If you already shared and I some how missed your post, just direct me to the post where you shared it. hehe I have this horrible memory and when I go through these long times of FM fatigue and brain fog, I can hardly remember what I had for supper last night, so don't mind me.
I'm curious about your SSD application and how the meeting went. I applied in 2003 and have been denied 3 times and then approved for a hearing. I've been waiting on my hearing date for nearly 2 years now. It's a very long drawn out process for many of us and the real kicker is that when SS sent me to be examined by their own doc. He told me he would be surprised if I was denied once, but to appeal if they did that. LOL, so at that time I actually had hope that it would all go through and I'd not be dealing with it for years. NOT SO!!Grrrrrrrr
The long never ending paperwork was so daunting and caused me such horrible anxiety, extra pain and mental strain. That my husband had me hire an attorney 3 years ago after my second denial. So they are the ones working on all the paperwork now and they contact me ever now and again.
I truely hope & pray that things go better for you honey, but don't give up, that's what they want you to do.
Lotsa hugs & prayers
Betty
Dearest Betty,
it's so nice to hear from you.
I haven't been to the specialist yet, I go on Febuary 19. Mom is nervously awaiting the appointment. I am now at the point that I have faith that I will get better on God's timming, but I try not to allow myself to get overly excited for the fear of disappointment agian. You know how it goes.
Mom's appointment went alright. She said that they told her nothing. The people who wroked at the office didn't even know for sure if there was a plan for some one my age. All that they seemed to be able to tell her was that normally people have to apply and be denied at least twice. I guess it's one of those deals that if you want it bad enough you must show it over and over agian.
I was surfing the web the other day as I normally do and to my surprise I found this foundation that can give scholarships to college students fighting lupus. I'm not sure if I would be eligible or not. The college that I'm going to attend is not acredited. I don't know if that matters. The Lord will work it out for me.
Sorry I haven't been around much. The winter months are just bad for me as everyone else. Extreme heat and cold are one in the same for we that deal with chronic pain.
Nothing new is really going on. homecoming is Tuesday 01-03-09. I think that dad is more worried about it than I am. I have made the cerimony every year since I was a freshman, but have never made court. It's no big deal. I'm more scared than excited. That night will be the first time since november that I will not use my cane. I will be holding no to dad's arm just as all of the other girls, so no one will really notice much that I have problems getting around, but they will find out soon enough when after the cerimony I attend the basketball game. I'm kind of excited about that though. I haven't been to a game since last year at the beginning of the season b/c it's too much for my body to handle after attending school most of the day.
How are you doing Betty? Hows Helen? I hope that you are doing well. You have been on my mind lately. I've been asking my loving sheperd to wrap His arms around you and guide and protect you. We have been singing this song at school that has been helping me get through those days when you want to "throw in the towel" . I hope that it will bless you as it does me.
Faith
Verse one:
When I began to live for Jesus faith was all I had,
there were many good times, and some they call bad,
as the battles they lingered and my fatih was almost gone,
I jsut looked up to Jesus and in hope carried on.
Chorus:
I still knmow that He can,
I always knew that He could,
so I hold on day by day just to see if He would,
it is hope when you believe that God can work miracles still,
it is faith when you can't see,but believe that He will.
Verse two:
God gave me faith to believe,
faith and not dispair,
faith to know your real and faith to know your there,
In my BURDENs o Lord I have faith in you still,
hope says you Can and faith says you Will.
Repeat chorus.
I truly believe that faith is one of my most frequently fought battles.
Anyway, I will talk to you soon Betty.
Love & prayers,
Morgan ( Psalms 71:1,14)
Morgan ~
I too thought I had missed your Rheu/pain appointment. Feb 19th ~ of course you ahve to wait right ;)
As far as the disability. I was sent home in a taxi on a medical leave of absence Oct 24, 2007. I applied for SSDI and was receiveing benefits by April. They make you wait 6 months and 24 months for medicare.
The only thing that I can think was different about my case is that I was in the hospital multiple time a year since 2004 (when I moved into my apartment with the mold) I have been seeing some type of doctor 4 to 10 times a month trying to get treatment. They have only been able to try to control the symptoms.
I think they look at you medical records and see what you ahve been through, etc.
At your age it is another story ~ you are unique ;) Using a lawyer would make it easier but I would try alone the first time at least as if you are awarded you will get 100% of your benefits and not have to share with your attorney every check you get.
I was blessed. I'm not sure why. I've never heard of anyone getting approved the first time. Like you said it's like they want to see how bad you need/want the help. So many peolpe give up when they hit the wall of NO.
How long have you been employed? Do you have disability insurance with your employer? Think about unemployment benefits also if you do take that much needed break from work.
Amanda,
I have been employed with the same employer since the summer before my freshman year. I'm not sure if my employer has any kind of disability except for the minimum amount required. I don't think that there is anything that she could offer me. At this point she does not like me. Before I worked my tail off ( I still do). I did my job, my supervisor's job plus I did what my fellow employees didn't do. Now it is all that I can do to just do my part. Anyway, we will see what happens. Why worry myself to death if I have no control over the situation?
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Hi Morgan,
We'll definitely keep you and your mom in our prayers. Please let us know how the appointment goes.
Thank you so much!
I really appreciate it.
Hopfully we will hear something in the next week or so.
Wishes of Good Health to You My Friend,
Morgan (Psalms 71:1,14)